Re: OT-why our kids are sensitive?

[Guest guest]

Kim,

I think that the question you're asking has such complex answers

that the combined knowledge of everyone working at this isn't

enough. At least not yet. Lots of things seem to help improve

excretion in SOME kids. Conserving glutathione through careful

supping, reducing yeast, cleaning up the gut with the right diet

and/or enzymes, improving the immune system, repairing methylation

and sulfation systems, maybe reducing the viral load, maybe reducing

testosterone. The list goes on and on.

The one thing I know for sure that allows my son to excrete metals

is the low frequent dosing I use for him. It sometimes feels like

we're getting nowhere fast and to be honest there are days when he

looks as autistic as a year ago (although not hurting himself, etc)

but I must keep reminding myself that although metals aren't his

only problem, he is excreting, SLoWLY. Safely.

I may be wrong about what is most important to my son, but I do

believe that although we can try many things, if we don't chelate

him and allow him to safely excrete the metals, the other stuff we

do simply isn't going to work long term. But at the same time, we

must do the other stuff. It's a struggle to know that you must do

many things but not too many things.

I personally think sensitivity is more complex than excretion. The

problems some of our kids have are legion, with inability to excrete

being one of them, but only one. I also think that there likely is

some best order to pursue treatments in, but no one really knows for

sure. I also think that some treatments are just a bad idea for

many kids, but know that there are many who would disagree with me.

We have pretty much the opposite problem as you do. My son rarely

reacts to anything. During darker moments I wonder why I even

bother with the supps. That kind of thinking does help me to

streamline and prioritize though. That kind of thing maybe even

more important with a child like yours, who has a strong reaction

with the possibility of regresssion to many interventions. I would

*think* that reducing your son's metal load would be a foundational

thing, something that will be required to fix almost everything

else. I would also think that diet might be very important as it

would seem to make sense that the very sensitive kids may also have

the worst guts and the least ability to deal with any sort of

infractions.

I realize this isn't helpful, but your question is one all of us

here wish we had an answer to.

Anita

>

> Hey everyone, I have been taking a chelation break with our

> son...his gut bugs are out of control...we are on diflucan/flagyl

> currently..and restarting the diet with help.

>

> But, on another list that I have been reading and posting

> on...someone mentioned a reason why some of our kids are so

> sensitive. Let me explain. (I also asked this question on that

> list too).

>

> Whenever we start a supplement and/or chelator, we have to use

> probably the lowest dose out there. (except ALA and DMSA, he did

> well on a normal dose). But, just like the virastop, he couldnt

> even handle a 1/2 capsule. We are trying the NCD drops, and while

> many kids are doing several drops 3x a day...our son shows extreme

> detox symptoms, stimming and chelation regression with only one

drop

> a day.

>

> Well, one person replied with a comment from her DAN doctor. This

> doctor said that many of our older kids are really toxic and the

> ones who are sensitive cannot excrete well at all. WHAT DOES

THIS

> DR. MEAN?

>

> Is excreting referring to urine output, stool/constipation? Does

> excreting refer to liver/kidneys, lymph/blood/lung pathways?

>

> Please.....our son is sensitive to meds/supplements. If this is

the

> reason he is so sensitive....THERE HAS GOT TO BE A WAY TO HELP

> EXCRETION? This must have happened to others before and someone

> must have found a way to help?

>

> Thanks......

>

> Kim

>

[Guest guest]

Kim,

By excretion I think the doctor may have meant ability to detox

metals without intervention. As most of us do daily. This same

inabilitiy to detox metals is being found in Alzheimer's patients.

Something to do with genetic makeup probably and level of exposure.

But some sensitivites may be related to a challenged immune system.

And with metals it is challenged. It gets confused trying to battle

the metals. Remember the body is used to finding " strangers " that

don't belong in the body and destroying them. The trouble here is

that his own cells have become the strangers to the immune system by

carrying metals. The immune system gets overdone in a way, and

starts reacting badly to anything that comes along and looks funny.

(the best layman terms I could use to explain it).

I myself, while not autistic, have developed more and more

sensitivities and things I can't tolerate as the toxicity of mercury

became higher. Things that did not bother me 10 years ago, I can't

stand now. Not sure biochemically how it all works but just to say

that your son's body has a lot to handle with the metals, viruses,

etc. All of these things play into sensitivity. Probably a bit of

genetics in there too.

We too are going slow. And sometimes we see nothing. But then all of

the sudden one day something so tiny, but yet huge for us. For

example the last round was rough. We saw nothing great. That was

last week. Today in the car, he undid a button on his shirt, just

out of the blue. He was so proud that he could undo a button.

I realize how hard the slow part is, and trying this and trying

that, somethings work, some don't. It is very frusturating. Take

some comfort in knowing that you are helping him if by no other

means but trying. Some parents never try anything, but prescription

drugs, a diagnosis, and " accept fate " .

I found it helpful to read up on how the immune system and body work

in the face of metals. Sometimes just knowing the how's makes it a

bit easy to take. Keep trying and hang in there.

> >

> > Hey everyone, I have been taking a chelation break with our

> > son...his gut bugs are out of control...we are on

diflucan/flagyl

> > currently..and restarting the diet with help.

> >

> > But, on another list that I have been reading and posting

> > on...someone mentioned a reason why some of our kids are so

> > sensitive. Let me explain. (I also asked this question on that

> > list too).

> >

> > Whenever we start a supplement and/or chelator, we have to use

> > probably the lowest dose out there. (except ALA and DMSA, he

did

> > well on a normal dose). But, just like the virastop, he couldnt

> > even handle a 1/2 capsule. We are trying the NCD drops, and

while

> > many kids are doing several drops 3x a day...our son shows

extreme

> > detox symptoms, stimming and chelation regression with only one

> drop

> > a day.

> >

> > Well, one person replied with a comment from her DAN doctor.

This

> > doctor said that many of our older kids are really toxic and the

> > ones who are sensitive cannot excrete well at all. WHAT DOES

> THIS

> > DR. MEAN?

> >

> > Is excreting referring to urine output, stool/constipation?

Does

> > excreting refer to liver/kidneys, lymph/blood/lung pathways?

> >

> > Please.....our son is sensitive to meds/supplements. If this is

> the

> > reason he is so sensitive....THERE HAS GOT TO BE A WAY TO HELP

> > EXCRETION? This must have happened to others before and

someone

> > must have found a way to help?

> >

> > Thanks......

> >

> > Kim

> >

>

[Guest guest]

>>We are trying the NCD drops, and while

> many kids are doing several drops 3x a day...our son shows extreme

> detox symptoms, stimming and chelation regression with only one drop

> a day.

Is this a mineral supplement? My son was mineral toxic, so giving him

minerals just caused more toxicity.

> Please.....our son is sensitive to meds/supplements. If this is the

> reason he is so sensitive....THERE HAS GOT TO BE A WAY TO HELP

> EXCRETION? This must have happened to others before and someone

> must have found a way to help?

My son tolerated almost no supplements, until about round 50 of ALA

chelation. At that point, he started tolerating supplements, and

started improving when I added them. He might just not tolerate the

supplements until more metal is removed.

Dana

[Guest guest]

Thanks Anita for discussing this with me. Yes, it is a very

complicated issue, I totally agree. The whole comment bothered me a

little, because I hate not knowing what is going on with him.

A couple of things. First, I completely understand what you meant

by wondering if supps are even working or not for your son... This

past weekend, I gave nothing to our son other that the script

medications like flagyl and diflucan. I just wondered....does this

stuff even work? Why am I constantly giving this stuff to him?

Then, I realized...it is the chelators and antivirals that he has

such a huge response to. Makes me think at least.

Second, I tried to google non-excretors, and other words in an

internet search. Each response came up with glutathione, one supp

that we are not using. Probably something else to consider.

thanks again for even trying to answer a tough question.

Kim

> >

> > Hey everyone, I have been taking a chelation break with our

> > son...his gut bugs are out of control...we are on

diflucan/flagyl

> > currently..and restarting the diet with help.

> >

> > But, on another list that I have been reading and posting

> > on...someone mentioned a reason why some of our kids are so

> > sensitive. Let me explain. (I also asked this question on that

> > list too).

> >

> > Whenever we start a supplement and/or chelator, we have to use

> > probably the lowest dose out there. (except ALA and DMSA, he

did

> > well on a normal dose). But, just like the virastop, he couldnt

> > even handle a 1/2 capsule. We are trying the NCD drops, and

while

> > many kids are doing several drops 3x a day...our son shows

extreme

> > detox symptoms, stimming and chelation regression with only one

> drop

> > a day.

> >

> > Well, one person replied with a comment from her DAN doctor.

This

> > doctor said that many of our older kids are really toxic and the

> > ones who are sensitive cannot excrete well at all. WHAT DOES

> THIS

> > DR. MEAN?

> >

> > Is excreting referring to urine output, stool/constipation?

Does

> > excreting refer to liver/kidneys, lymph/blood/lung pathways?

> >

> > Please.....our son is sensitive to meds/supplements. If this is

> the

> > reason he is so sensitive....THERE HAS GOT TO BE A WAY TO HELP

> > EXCRETION? This must have happened to others before and

someone

> > must have found a way to help?

> >

> > Thanks......

> >

> > Kim

> >

>