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Re: ON LDN FOR TWO MONTHS NOW

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Good morning, Becky in Iowa:

What dose of LDN are you taking? Also, are you exhibiting any insomnia?

Noland

----- Original Message -----

From: " lebecky54 " <lebecky54@...>

<low dose naltrexone >

Sent: Thursday, October 23, 2003 8:18 AM

Subject: [low dose naltrexone] ON LDN FOR TWO MONTHS NOW

> HI ALL I am Becky and I have had ms for 17 years. I have been blind,

> in a wheelchair, etc. etc. I have fought this for so long and

> trusted y dr.s... I no longer do! The steroids over the years hagve

> caused major bone thinning and they were ready to teach me to self

> catherize........ until I found this website! Anyway I have noticed

> some real stiffness in the mornings, take me a couple hrs to move

> around. Due to arthritis or ldn I wonder and would like your

> thousghts on this.. Seems my leg muslces twitch more at night and I

> am wondering what excersizes might help. MY bladder is better unless

> I drink a lot of liquids at night. My e mail address is

> Lebecky54@... if anyone would like to stay in touch. So I would

> love to hear have you all deal with the stifnness and any thoughts

> or excersizes? Thanks, Becky in Iowa

>

>

>

>

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I was DX MS last November with advanced MS. My nuro put me on Copaxone

that did nothing except hurt. When the injection was given and for

several days after. I was also getting leg stiffness which is a Copaxone

side affect. Secondary progression was setting in which Copaxone does

nothing for.

I have been on LDN since spring time. My legs are still a little stiff but

seem to be getting better. My bladder control is " normal " again. My inner

ear balance is returned. My extreme fatigue is gone away! I still need a

coffee in the afternoon but that is close to normal. Sometimes after work

I still find myself overly tired (interferes with personal projects).

I do find that if I over work (physically) myself I will sometimes stagger,

which is better than before I used to be in pain if I over worked.

LDN has stopped the progression and also given me a life back. Before LDN

I was months away from becoming totally disabled!

B.

Original Message:

-----------------

From: Noland R. Durnell, P.E. rangeus50@...

Date: Thu, 23 Oct 2003 09:47:23 -0600

low dose naltrexone , lebecky54@...

Subject: Re: [low dose naltrexone] ON LDN FOR TWO MONTHS NOW

<html><body>

<tt>

Good morning, Becky in Iowa:<BR>

<BR>

What dose of LDN are you taking?  Also, are you exhibiting any insomnia?<BR>

<BR>

Noland<BR>

<BR>

----- Original Message ----- <BR>

From: " lebecky54 " <lebecky54@...><BR>

<low dose naltrexone ><BR>

Sent: Thursday, October 23, 2003 8:18 AM<BR>

Subject: [low dose naltrexone] ON LDN FOR TWO MONTHS NOW<BR>

<BR>

<BR>

> HI ALL I am Becky and I have had ms for 17 years. I have been blind,<BR>

> in a wheelchair, etc. etc.  I have fought this for so long and<BR>

> trusted y dr.s... I no longer do! The steroids over the years hagve<BR>

> caused  major bone thinning and they were ready to teach me to self<BR>

> catherize........ until I found this website! Anyway I have noticed<BR>

> some real stiffness  in the mornings, take me a couple hrs to move<BR>

> around. Due to arthritis or ldn I wonder and would like your<BR>

> thousghts on this..  Seems my leg muslces twitch more at night and I<BR>

> am wondering what excersizes might help. MY bladder is better unless<BR>

> I drink a lot of liquids at night. My e mail address is<BR>

> Lebecky54@... if anyone would like to stay in touch.  So I would<BR>

> love to hear have you all deal with the stifnness and any thoughts<BR>

> or excersizes? Thanks, Becky in Iowa<BR>

><BR>

><BR>

><BR>

>

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In rehab they gave me leg lifts (on side) and dumbells for arms.

This is anaerobic, and good for producing endorphins. I bicycle (lie

on back, do not support hips, cycle in air, with or without ankle

weights). By far the best is walking (used a gym floor with a walker).

It is not anaerobic but it uses the biggest muscles and you will

improve stamina.

-Sullivan

> HI ALL I am Becky and I have had ms for 17 years. I have been

blind,

> in a wheelchair, etc. etc. I have fought this for so long and

> trusted y dr.s... I no longer do! The steroids over the years hagve

> caused major bone thinning and they were ready to teach me to self

> catherize........ until I found this website! Anyway I have noticed

> some real stiffness in the mornings, take me a couple hrs to move

> around. Due to arthritis or ldn I wonder and would like your

> thousghts on this.. Seems my leg muslces twitch more at night and

I

> am wondering what excersizes might help. MY bladder is better

unless

> I drink a lot of liquids at night. My e mail address is

> Lebecky54@a... if anyone would like to stay in touch. So I would

> love to hear have you all deal with the stifnness and any thoughts

> or excersizes? Thanks, Becky in Iowa

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