LDN, doctors, neurologists...

August 25, 2003

I'm sure a lot of doctors and neurologists will not prescribe LDN.

There are a lot of ESP (economic, social, political) reasons not to.

I intend to give my neurologist and my GP *one* *chance* to prescribe

it for me, and then I go the other route. The doctors who are prescribing

it already without seeing your whole file probably already believe it will

help. Remember that they all took an oath to do no harm.

That is the very least you can say about this drug: that it will do no

harm. It may help. My doctors will not prescribe vitamin C to me but I

take it. They don't distribute any vitamins to in-patients at hospitals,

as a default thing, but considering the food, many should take them anyway.

What matter most to me as a PwMS are that Drs. Bihari and Zagon think they

have

found a way to treat a part of the immune system, the system that is broken

in MS and other diseases, that this is an orphan drug, and that the dose is

one sixteenth that normally given for human drug addiction and approved for

medical

use by the FDA, and in Canada. Both of them *have* written papers on

endorphin

receptors. What do you think would happen if Dr. Bihari gave a press

conference

and announced to the world that LDN " cure " s all those diseases? His pockets

are

not deep enough to fully investigate these claims. All he has are

anecdotes.

There are precautions against with taking the therapy incorrectly.

There is discord between LDN and the interferons. This means taking LDN as

intended may involve going against your neurologist's recommendations for

*other*

medication. That is your personal decision, which no one can legitimately

advise you on *except* your neurologist, and perhaps your GP.

Personally I think I have neutralizing antibodies to alpha-1a interferon,

and will be tested before I do anything. Then I will go on copaxone if my

neurologist agrees, no ABCRs at all if not, and try LDN therapy by whatever

means necessary. I will also titrate myself off interferon because I am

afraid

to trigger another relapse by going " cold turkey " .

I am not saying anything about whether anyone should or shouldn't take

interferon as well as LDN. I just want to avoid it myself.

-Sullivan

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