Guest guest Posted October 22, 2003 Report Share Posted October 22, 2003 -----Original Message-----From: n Quinn [mailto:benquinn@...] ............I don't see any Omega3 fish oils in your supplements..this is unusual is it not? ------------------------------------- n,I don't know. The list I posted is taken by my wife, to counteract the PN effects of a new drug called Velcade (aka PS-341) which she takes to control a blood cancer called Multiple Myeloma. Velcade is a "proteasome inhibitor" and is a first in class drug, newly approved for MM. She has permanent PN from Thalidomide taken as a treatment for her MM 2 years ago. She takes everything on the non-prescription side every day. From the 'scripted side, she takes an anti-depressent also, but not ZoloftShe sees a definite improvement in controlling temporary PN associated with Velcade injections. She also is experiencing a very slight improvement in the permanent PN level from the Thal'.This list was assembled and is reccomended by a Hem/Onc at Dana Farber Cancer Institute, Boston Ma. with whom we consulted 1 year ago. Hem/Oncs tend to be very focused on the specific life threatening disease and not thinking wholistically (sp?) or even long term.I posted the list as a "for what it's worth" offering for those who are looking to try something to handle PN. I am also aware but don't have links to a study done in Germany concerning cancer patients w' PN who took high (600-900 mg/daily) doses of Alpha Lipoic Acid for 2 years who slowly got some improvement in PN symptoms. Lastly, some get a measure of relief taking Neurontin, slowly escalating dosage to effective levels. My Barb took Neurontin to dull the HPN from a shingles outbreak.That exhausts my knowledge on the subject. Don Schultz (no medical training, and not terribly bright)Near Joliet IL.Husband and Caregiver to Barb Schultz, born '49Dx'd June/01; IgA Kappa @5,880, B2M 7.8, Radiation to L3, Aredia 6X now Zometa monthly, 100mg Thal daily & 40mgX4days pulsed Dex thru Dec '01 when failed; Mar-Jun/02 2 rounds VAD no effect & 2 rounds DTPACE modest effect; autoSCT July/02 full remission in Sep/02. Interferon maint' Aug/02 to Jan 03; Jan 03 IgA climbing; Feb 03 Hi dose Dex Failed, Velcade Phase3 trial Mar/03, IgA down 99% after 2 cycles, After 8 cycles of phase3 trial IgA below normal. Now in Continuation phase, 1 liter saline minimizing fluish side effects. Taking DanaFarber supplement regimen to minimize Velcade PN.Blessed be the Lord, who daily loads us with benefits, even the God of our salvation. Selah (pause, consider this) Psalms 68:19http://www.labtestsonline.org/http://www.myeloma.org/http://www.multiplemyeloma.org/http://www.escapepod.com/myeloma/Abb.html (abbreviations) Quote Link to comment Share on other sites More sharing options...
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