Re: LDN -a must read for New People

[Guest guest]

I was asked by a congressional staffer the following:

"Can you find out if those patients are part of a research study? If so, it may be possible to get you enrolled; especially if it is NIH funded research. Let me know. j"

I couldn't find any evidence if NIH in Naltrexone research for use in MS. do any of you have any additional information / in site?

Dan

[Guest guest]

>

> I was asked by a congressional staffer the following:

>

> " Can you find out if those patients are part of a research study? If so, it

may be possible to get you enrolled; especially if it is NIH funded research.

Let me know. j "

>

> I couldn't find any evidence if NIH in Naltrexone research for use in MS. do

any of you have any additional information / in site?

> Dan

============

There are no clinical trials going on for LDN and MS. There will soon be a

clinical trial in PA for Crohn's and LDN.

I doubt that MS will get a clinical trial with LDN. There are the big

pharmaceutical companies that make Avonex, Betaseron, Copaxone and Rebif that

would be jeapordized millions or billions of dollars if a clinical trial for LDN

took place. These injectible drugs cost $1200 per month and LDN costs from $11

for 3mg capsules to around $22 for the 4.5mg capsules. These prices would come

from Skip's pharmacy in Florida. Skip fills many LDN scripts and can offer LDN

at a very cheap price. The big pharmaceutical companies put a halt to Elaine

DeLack's Procarin from getting it's clinical trial. The big dogs scared off the

pharmaceutical company that had promised Elaine a clinical trial for her

Procarin. This shows me that we MS'ers are on our own. I do not trust the MS

Society one bit anymore and have quit donating to them. I donate to the

MSAA(Multiple Sclerosis Association Of America) who provide wheelchairs,

scooters, canes, walkers, ramps, cool suits and many other things that MS'ers

need. All the MSAA requires is a script from your neuro stating what assistive

device the patient is in need of.