Re: Call for LDN testimonials to be included in printed book format

[Guest guest]

Sue,

I will make sure I pass this onto my group

and ask my LDN users if they want to participate. Those in my group on LDN are having

remarkable improvements in their MS thanks to this medication. I wish more doctors were giving this to their

patients.

son

Owner/

operator

Friends with MS.com

-----Original Message-----

From: Susie Sedlock

[mailto:2002Eldo@...]

Sent: Sunday, November 23, 2003

12:22 PM

To:

low dose naltrexone

Subject: [low dose naltrexone] Call

for LDN testimonials to be included in printed " book " format

Hello

Everyone,

Several

weeks ago I posted a progress report about my 88 year old dad with

multiple myeloma and my chronic fatigue syndrome after one year on

LDN. As I told of our good news, I also mentioned the need to get this

very important information beyond the internet and word of mouth, and

compile/write a " book " that would contain information from the LDN

web site, as well as personal testimonials from those of us who are in this group

using LDN and have shown improvement.

While

I have heard from many of you and contacted some of you directly, I want to

re-extend the invitation to participate and be a part of this project.

Some of you have raised issues concerning confidentiality of your identity.

I respect that, and in reviewing the LDN web site, I have noted that the only

identification used is the person's first initial, his/her age, diagnosis, and

their results with LDN. I believe our testimonials should

follow the same format, and wanted to post this format for the book to one and

all, just in case anyone might have reservations about submitting a

testimonial due to confidentiality issues.

I am

working in conjunction with the LDN web site editor, and at this time I

anticipate this grass roots effort will culminate in a self published

(perhaps in 3 ring binder format) book. One of my reasons for leaning

towards this format is because the LDN project is a work in progress. It

is simply wonderful that there will be clinical trials on LDN for Chrohn's

Disease. But our work will not be done until the good news about

LDN continues spreading, to the general public, to the medical community,

and hopefully, the spread of this knowledge will bring more clinical

trials of LDN so it may become recognized standard treatments for MS, cancer,

chronic fatigue, and many other illnesses it has been shown to effectuate

improvements. As news on more clinical trials may emerge, the three ring

binder will allow for more chapters to be written, ordered and sent to those

who purchased the original book. If anyone out there has a better idea

for how to format this book, I am open to hearing your ideas.

While

I haven't discussed this with the web site editor, or any of you prior to now,

any monetary gain from the sale of this book in my opinion should be set aside

in a special fund for the clinical trials that are so much needed. That

way, this project could accomplish two major goals. First, educate the

public and second, raise money for clinical trials. I have

enjoyed hearing from so many of you, and I hope if you haven't already done so,

please send me your testimonial along with written authority to put it in

print. I realize the Holiday Season is upon us, but I am hoping to have

my first " draft " ready for review by January 1, 2004.

Thank

you everyone, for all your help. I will be leaving beautiful Maui

tomorrow, and will be back in Virginia on Tuesday, 11/25. So to one and

all, Happy Thanksgiving, and God Bless. Aloha

Oe, Susie

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[Guest guest]

Susie....I'm getting there...Hubby home from hospital and everything

is good. Both of us are just exhausted. As soon as I get back in

the groove, I will send you my long story, in abridged

fashion...lol.

Love, Sally

> Hello Everyone,

>

> Several weeks ago I posted a progress report about my 88 year old

dad with multiple myeloma and my chronic fatigue syndrome after one

year on LDN. As I told of our good news, I also mentioned the need

to get this very important information beyond the internet and word

of mouth, and compile/write a " book " that would contain information

from the LDN web site, as well as personal testimonials from those

of us who are in this group using LDN and have shown improvement.

>

> While I have heard from many of you and contacted some of you

directly, I want to re-extend the invitation to participate and be a

part of this project. Some of you have raised issues concerning

confidentiality of your identity. I respect that, and in reviewing

the LDN web site, I have noted that the only identification used is

the person's first initial, his/her age, diagnosis, and their

results with LDN. I believe our testimonials should follow the same

format, and wanted to post this format for the book to one and all,

just in case anyone might have reservations about submitting a

testimonial due to confidentiality issues.

>

> I am working in conjunction with the LDN web site editor, and at

this time I anticipate this grass roots effort will culminate in a

self published (perhaps in 3 ring binder format) book. One of my

reasons for leaning towards this format is because the LDN project

is a work in progress. It is simply wonderful that there will be

clinical trials on LDN for Chrohn's Disease. But our work will not

be done until the good news about LDN continues spreading, to the

general public, to the medical community, and hopefully, the spread

of this knowledge will bring more clinical trials of LDN so it may

become recognized standard treatments for MS, cancer, chronic

fatigue, and many other illnesses it has been shown to effectuate

improvements. As news on more clinical trials may emerge, the three

ring binder will allow for more chapters to be written, ordered and

sent to those who purchased the original book. If anyone out there

has a better idea for how to format this book, I am open to hearing

your ideas.

>

> While I haven't discussed this with the web site editor, or any of

you prior to now, any monetary gain from the sale of this book in my

opinion should be set aside in a special fund for the clinical

trials that are so much needed. That way, this project could

accomplish two major goals. First, educate the public and second,

raise money for clinical trials. I have enjoyed hearing from so

many of you, and I hope if you haven't already done so, please send

me your testimonial along with written authority to put it in

print. I realize the Holiday Season is upon us, but I am hoping to

have my first " draft " ready for review by January 1, 2004.

>

> Thank you everyone, for all your help. I will be leaving

beautiful Maui tomorrow, and will be back in Virginia on Tuesday,

11/25. So to one and all, Happy Thanksgiving, and God Bless. Aloha

Oe, Susie