Guest guest Posted December 4, 2007 Report Share Posted December 4, 2007 New here---hello Everyone, I just started Plaquenil 2 months ago for Sjogren's, and started taking Levothroid for hypothyroidism. I've got my next Rheumatologist appointment next Thursday and thought I'd ask the doctor about using LDN. Would I have to quit the Plaquenil, or can I take both at the same time? My bloodwork shows lots of auto-immune antibodies: ANA speckled-high titer, SS-A, SS-B, thyroglobulin Ab, etc. My symptoms are very dry eyes, low WBC, and low platelet count. But I feel pretty healthy otherwise--no fatigue or joint pain, for example. Does LDN help with the blood count problems? Thanks, Calli Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2007 Report Share Posted December 4, 2007 Hi Calli, This site tells what drugs to avoid when taking LDN: http://tinyurl.com/yv4a3k I don't know whether LDN helps with blood count problems or not, but it is probably worth a try. All the best, Dudley Delany dudley_delany [low dose naltrexone] Is LDN compatible with Plaquenil? New here---hello Everyone, I just started Plaquenil 2 months ago for Sjogren's, and started taking Levothroid for hypothyroidism. I've got my next Rheumatologist appointment next Thursday and thought I'd ask the doctor about using LDN. Would I have to quit the Plaquenil, or can I take both at the same time? My bloodwork shows lots of auto-immune antibodies: ANA speckled-high titer, SS-A, SS-B, thyroglobulin Ab, etc. My symptoms are very dry eyes, low WBC, and low platelet count. But I feel pretty healthy otherwise--no fatigue or joint pain, for example. Does LDN help with the blood count problems? Thanks, Calli Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2007 Report Share Posted December 4, 2007 Hi Calli, I believe Plaquenil is designed to suppress the immune system -- which is contrary to what LDN does. Your rheumy should be able to explain the actions better than me...I've never taken Plaquenil although I do have Sjogren's. I also have Hashi's and vitiligo. I take Levothroid and Cytomel for my Hashi's. Do you know if your rhuemy is familiar with LDN already --??-- Jann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2007 Report Share Posted December 4, 2007 Does anyone know what or if there is a protocol for LDN being taken simultaneously with Interferon treatment for Hep C? Thanks, Steve Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2007 Report Share Posted December 4, 2007 Hi Steve, For a list of medications that should be avoided when taking LDN, visit http://tinyurl.com/yv4a3k Have you considered taking colloidal silver (CS) for your hep C? For information about CS visit http://tinyurl.com/2fd7xs Here is another treatment option for hep C that you may find of interest: http://tinyurl.com/26gsan With best wishes, Dudley Delany dudley_delany RE: [low dose naltrexone] Is LDN compatible with Plaquenil? Does anyone know what or if there is a protocol for LDN being taken simultaneously with Interferon treatment for Hep C? Thanks, Steve Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 4, 2007 Report Share Posted December 4, 2007 > > Do you know if your rhuemy is familiar with LDN already --??-- > > Jann > I don't know if she is or not, but I plan to ask her at my next appointment (soon). I think the LDN benefit or compatibility issue might depend on whether LDN " reves up " the immune system (in which case it would work against Plaquenil); or whether it " regulates " the immune system---helping it to distinguish between actual threats and self-attack. Plaquenil is an immunomodulator, but the reason it helps is not well understood. One article I read said that Plaquenil slowly changes the pH of cells, making them less likely to be marked for " attack " by antibodies. Whether or not this is contradictory to the effects of increased beta-endorphins is what I'm trying to understand. I'm a bit afraid that my Rheumy will think this is all quackery, in which case I won't get real information from her, but merely a " reaction " to the idea. Calli Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2007 Report Share Posted December 5, 2007 HI Steve, They do not work together. I will send you what I have on Hep C and the e-mail about what not to take with LDN Aletha RE: [low dose naltrexone] Is LDN compatible with Plaquenil? Does anyone know what or if there is a protocol for LDN being takensimultaneously with Interferon treatment for Hep C?Thanks, Steve Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2007 Report Share Posted December 5, 2007 Hi all When I first started LDN, about two years ago, I was on Plaquenil, and used the two drugs in combination several months. I cant remember any significant side effects from that experience. What I have read, is that Plaquenil like LDN is merely a modulator of the immune system, not an immune supressor. The drug is used to treat different infections like malaria. Recent studies show that plaquenil also has effect agains HIV. Lisean Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2007 Report Share Posted December 6, 2007 > > Hi all > When I first started LDN, about two years ago, I was on Plaquenil, and > used the two drugs in combination several months. I cant remember any > significant side effects from that experience. Did you discontinue the Plaquenil on your doctor's advice? And did you notice more improvement from the LDN--is that why you stopped Plaquenil? Thanks Calli Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2007 Report Share Posted December 6, 2007 Hi I have several AI's including Sjogren and was on Plaquenil from 2003 until april 2006. I had some effect of Plaq, but also side effects, especially problems with focusing eyes. In addition to this, LDN (which I started in february 2006) worked well on most of the Sjogren symptoms, so that is why I ended Plaq. Actually I felt great the period I used both drugs. Maybe the two drugs work in synergism? But I do not know if this co- use is recommended. Maybe someone can ask Skip or some other pharmacist about this. Lisean Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2007 Report Share Posted December 6, 2007 Hi Lisean, For a list of drugs that should be avoided when taking LDN, visit http://tinyurl.com/yv4a3k The site also includes contact information for Skip. Best regards, Dudley Delany dudley_delany [low dose naltrexone] Re: Is LDN compatible with Plaquenil? Hi I have several AI's including Sjogren and was on Plaquenil from 2003 until april 2006. I had some effect of Plaq, but also side effects, especially problems with focusing eyes. In addition to this, LDN (which I started in february 2006) worked well on most of the Sjogren symptoms, so that is why I ended Plaq. Actually I felt great the period I used both drugs. Maybe the two drugs work in synergism? But I do not know if this co- use is recommended. Maybe someone can ask Skip or some other pharmacist about this. Lisean Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2007 Report Share Posted December 6, 2007 Hi All, I have been on LDN for about 15 days now and feeling good. My question is that I have a dentist appt next week to have my teeth cleaned. When I go there because of my Mitro Valve Prolapse I have to take 4 Antibodies I think is Amoxcillian or something like that before I go. Will this interfere with the LDN?? Thank you so much Judy Re: [low dose naltrexone] Re: Is LDN compatible with Plaquenil? Hi Lisean,For a list of drugs that should be avoided when taking LDN, visithttp://tinyurl.com/yv4a3kThe site also includes contact information for Skip.Best regards,Dudley Delanydudley_delany-----Original Message-----From: liseanderSent: Thursday, December 6, 2007 12:05 PMlow dose naltrexone Subject: [low dose naltrexone] Re: Is LDN compatible with Plaquenil?HiI have several AI's including Sjogren and was on Plaquenil from 2003 until april 2006. I had some effect of Plaq, but also side effects, especially problems with focusing eyes. In addition to this, LDN (which I started in february 2006) worked well on most of the Sjogren symptoms, so that is why I ended Plaq.Actually I felt great the period I used both drugs. Maybe the two drugs work in synergism? But I do not know if this co-use is recommended. Maybe someone can ask Skip or some other pharmacistabout this. Lisean Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2007 Report Share Posted December 6, 2007 ANYTHING you do once on LDN will work the way it's Supposed To, as if you were 'Normal', except for opiod based drugs since they're directly playing tug of war. Anything else will work the way it's Supposed To, so if it's an Antiibotic, it'll be the Best Darn Antibiotic there is, killing all those biotics. LOL I think docs should prescribe 'normal' people LDN for the duration of their antibiotic courses. JMHO Re: [low dose naltrexone] Re: Is LDN compatible with Plaquenil? Hi All, I have been on LDN for about 15 days now and feeling good. My question is that I have a dentist appt next week to have my teeth cleaned. When I go there because of my Mitro Valve Prolapse I have to take 4 Antibodies I think is Amoxcillian or something like that before I go. Will this interfere with the LDN?? Thank you so much Judy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 6, 2007 Report Share Posted December 6, 2007 Thanks a lot. Liseander Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2007 Report Share Posted December 7, 2007 > Actually I felt great the period I used both drugs. > Maybe the two drugs work in synergism? That's hopeful. >But I do not know if this co- > use is recommended. Maybe someone can ask Skip or some other pharmacist > about this. I got a short email from Skip in reply to this question; basically he said LDN has not been tested in combination with Plaquenil (just paraphrasing, not quoting). It didn't really answer my question---I guess I should have asked whether it would be harmful to take both.... Calli Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2007 Report Share Posted December 7, 2007 Hi Judy, Have you seen this? http://www.americanheart.org/presenter.jhtml?identifier=3047051 Alana >>>> My question is that I have a dentist appt next week to have my teeth cleaned. When I go there because of my Mitro Valve Prolapse I have to take 4 Antibodies I think is Amoxcillian or something like that before I go. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2007 Report Share Posted December 7, 2007 Gee thanks for the information ALana. I went over to the site and was really surprised to read what I did. Thank you again so much I guess that answers my question. I will not take the antibiotics for my teeth cleaning. It is 4 pills at 500 ml each. WOW Judy [low dose naltrexone] Re: Is LDN compatible with Plaquenil? Hi Judy,Have you seen this?http://www.americanheart.org/presenter.jhtml?identifier=3047051Alana>>>> My question is that I have a dentist appt next week to have my teeth cleaned. When I go there because of my Mitro Valve Prolapse I have to take 4 Antibodies I think is Amoxcillian or something like that before I go. No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.503 / Virus Database: 269.16.17/1176 - Release Date: 12/6/2007 11:15 PM Quote Link to comment Share on other sites More sharing options...
Guest RKN Posted October 21, 2018 Report Share Posted October 21, 2018 Hi Calli, If you have Hashmoto's, the autoimmune hypothroidism, not all thyroid medicines work. Most don't do anything for T3, which is affected by Hashmoto's. I was on Synthroid for 15 years; it was prescribed to me by 2 different endocrinologist at 2 different practices. I was extremely frustrated with still having so many symptoms. I found a different practice* and during the evaluation one of the first questions she asked is " "Why are you on Synthroid?" She put me on Nature Thyroid and I'm so much better! I lost 10 pounds in 2 weeks and the medicine was my only change! It's very inexpensive, and unlike Synthroid, doesn't contain gluten or milk for those with allergies. Fyi: My diagnoses Hashmoto's, Sjogrens, Celiacs, RA, Raynaud's, and I some neuropathy. Prescriptions: Nature Thyroid, Nabumetone, LDN (starting low &slow) 1/4 of a tablet nightly)Vitamin D, Folic Acid. I take other vitamins as well. Keep asking questions like you're doing. Patient blogs are terrific and have helped me along the way to better health. Weaning off Plaquinil. My new rheumy and hubby encouraged me to try again. I have and too many side effects. I asked the practice* who switched my thyroid med about and she asked, ever here of LDN. I said no and she said though not. Started LDN this week and so far so good. The only side effect are vivid dreams, but they are better than the scary dreams I had with Plaquinil (among a lot of other side effects). We all know (The Patients), we are all different and not everthing works for everyone. Keep pushing and keep reading. We have 1 body, 1 life. Despite the odds, I'm going to whatever I can to be here for my family as long as I can and enjoy it! I take other vitamins as well. Good luck and Good Health! <3 RKN Quote Link to comment Share on other sites More sharing options...
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