Guest guest Posted December 15, 2003 Report Share Posted December 15, 2003 My Grandson has second primary progession ms--his neo wants to put him on naltrone shots and said it could put him in remission. I feel hes too young right now and not that serverve. I just don't know that much about it but I think its pretty dangerous for a 26 year old. i want him to get a second opinion. Has any one been on it? Could yu tell me your results and what yhou think about it. Hes on ldn and copaxone. Ldn is not helping like a lot of ms on this site. He has optic neurtis and legs are week--using a cane now. thankd for any input. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2003 Report Share Posted December 15, 2003 Hi deec, are you referring to novantrone? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2003 Report Share Posted December 15, 2003 Dee, do you mean Novantrone? I have secondary progressive MS, and I just started doing the Novantrone infusions. I go to the oncology unit today to have my white count checked. Since I just started doing these, I don't have a lot of experience to share. I made the decision I did after a great deal of reading and looking at original studies . . . and after my neuro said that she felt my progression was so quick that if I chose to do interferons instead, I'd probably be regretting that choice from a wheelchair by sometime next year. The chances of heart or liver toxicity occurring with Novantrone are small, although there are researchers who feel that heart scans ought to be done more frequently than they are now during a course of treatment. I will likely insist on another MUGA scan well before my 8th infusion. A somewhat larger question is that of whether or not Novantrone can lead to forming secondary leukemia, many years down the road. Anyway, my own feeling has been that the possibility of Novantrone killing me is much smaller than the possibility of my MS leading to impairment that could kill me or depression great enough to make me not particularly care about sticking around. I also use LDN, by the way. My neuro had no problem prescribing it for me. I was taking it before I started the Novantrone, but I had to quit for awhile, on account of its interference with my sleep schedule at a time when every minute of sleep I could grab was extremely important. I didn't have improvement or a halt to my progression, but I have to say that I had only started using LDN at an extremely stressful time in my life. I was up against the wall physically, emotionally, mentally, spiritually. I'm not sure what would have put the lid on my MS! Of course, doing it the way I'm doing it--with the Novantrone--won't allow me to know which is working, the LDN or the Novantrone or both--but hey, I'm a person who needs all the help she can get, not a science experiment! Galoux Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 15, 2003 Report Share Posted December 15, 2003 Never heard of that are you sure its not novantrone? Novantrone is a once every 3 month infusion for no more than 12 treatments. It’s a low dose chemo. I know of a lot of people who used this and are doing really well now. I would suggest a 2nd opinion and would suggest he get off the copaxone and go for something stronger like Beta. Only problem is that you can not do beta and LDN together. If the LDN isn’t working for him then he would be better off stopping it and going for the Beta anyway. Just my opinion but if he’s been on it for a long time and has not gotten any benefits then why continue? I would switch to beta. it’s the strongest of the MS injectables and is approved for secondary progressive MS. son Owner/ operator Friends with MS.com FriendsWithMS/ -----Original Message----- From: deec2290@... [mailto:deec2290@...] Sent: Sunday, December 14, 2003 7:59 PM To: low dose naltrexone Subject: [low dose naltrexone] Naltrone (cancer drug) My Grandson has second primary progession ms--his neo wants to put him on naltrone shots and said it could put him in remission. I feel hes too young right now and not that serverve. I just don't know that much about it but I think its pretty dangerous for a 26 year old. i want him to get a second opinion. Has any one been on it? Could yu tell me your results and what yhou think about it. Hes on ldn and copaxone. Ldn is not helping like a lot of ms on this site. He has optic neurtis and legs are week--using a cane now. thankd for any input. To unsubscribe from this group, send an email to: low dose naltrexone-unsubscribe Your use of is subject to the Terms of Service. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2003 Report Share Posted December 17, 2003 How long has your grandson been on LDN? Noland ----- Original Message ----- From: <deec2290@...> <low dose naltrexone > Sent: Sunday, December 14, 2003 8:59 PM Subject: [low dose naltrexone] Naltrone (cancer drug) > My Grandson has second primary progession ms--his neo wants to put him on naltrone shots and said it could put him in remission. I feel hes too young right now and not that serverve. I just don't know that much about it but I think its pretty dangerous for a 26 year old. i want him to get a second opinion. Has any one been on it? Could yu tell me your results and what yhou think about it. Hes on ldn and copaxone. Ldn is not helping like a lot of ms on this site. He has optic neurtis and legs are week--using a cane now. thankd for any input. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2003 Report Share Posted December 17, 2003 My doctor also recommended Novatrone for my MS. I have had MS for 16 year, diagnosed when I was 15. Been healthy until about 4 months ago when I was just so still all the time and fall down allot. I spoke with allot of people and even at 31 I think I am to young for that drug. Novartone has many potential nasty side effects. I started LDN 2 days ago and I am hoping that it helps because Novatrone is not an attractive option. ~Dawn"Noland R. Durnell, P.E." <rangeus50@...> wrote: How long has your grandson been on LDN?Noland----- Original Message ----- From: <deec2290@...><low dose naltrexone >Sent: Sunday, December 14, 2003 8:59 PMSubject: [low dose naltrexone] Naltrone (cancer drug)> My Grandson has second primary progession ms--his neo wants to put him onnaltrone shots and said it could put him in remission. I feel hes too youngright now and not that serverve. I just don't know that much about it but Ithink its pretty dangerous for a 26 year old. i want him to get a secondopinion. Has any one been on it? Could yu tell me your results and what yhouthink about it. Hes on ldn and copaxone. Ldn is not helping like a lot of mson this site. He has optic neurtis and legs are week--using a cane now.thankd for any input.>>> Quote Link to comment Share on other sites More sharing options...
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