Guest guest Posted November 8, 2003 Report Share Posted November 8, 2003 Thats fabulous, I am going to forward your post to my sister. My brother-in-law was just recently dx with myelodysplastic, it sounds similar. He was given two years to live, longer with a bone marrow transplant, but his brother only has a 20% chance of matching, and even then, there is only a 40% chance that it will work. I think it's terrible that these docs are so prepared to tell you exactly when you are going to die. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2003 Report Share Posted November 9, 2003 " GOD BLESS YOU " SUSIE, AND ELL YOU FATHER " HAPPY BIRTHDAY " IN ADVANCE, CAUSE I KNOW HE WILL BE HERE, THANKS TO LDN. ALOHA, SALLY > Good Morning Everyone, > > Periodically I have written about my 88 year old dad who was diagnosed with multiple myeloma (bone marrow plasma cancer) who is a patient of Dr. Bihari's. For one year now, my dad has taken 4.5 mg of low dose naltrexone (LDN) at bed time, and I am pleased to report that his most recent tests have shown no disease progression in his year on LDN. He eats well, took a two week road trip from our home in Virginia to Ohio last September, and I am writing this correspondence today from Maui, Hawaii, where Dad and I are vacationing for three weeks. I cannot say enough good about LDN, Dr. Bihari, or Irmat Pharmacy. I am so grateful for this enormous blessing in our lives; it is truly a miracle to me to have my dad doing so well. He will celebrate his 89th birthday on January 17, 2004. > > When I address this group I generally focus on my dad and his recovery from multiple myeloma. Two years ago I was diagnosed with chronic fatigue syndrome. I had to retire on disability at the age of 45. Because I have an open minded doctor who was not afraid to think outside the box, he consulted with Dr. Bihari and now I too am on 4.5mg LDN. The results have been so outstanding that next month I will begin a new job. Yet another miracle in my life. > > I have been deeply moved and inspired by the messages of hope and recovery posted by this group. I have always been concerned that while LDN can be found on the internet, this information is virtually unable to be found elsewhere, unless one knows Dr. Bihari (or one of the other prescribing physicians). Therefore, I am in the process of compiling information that I would like to put in a book form, so that those who do not have access to the internet can learn about LDN. It is my belief that if the information from Dr. Bihari's web site, in addition to testimonials from those of us who have reaped the benefits of LDN, can educate the public at large and through the spread of this knowledge through a strong public relations campaign, interest can be stimulated in establishing clinical trial programs that would allow LDN to become a recognized treatment option for cancer, MS, and other ailments for which it has been shown to bring about improved health. > > If you would like to included in this effort, please send your testimonial to me and include your name, city/state, the nature of your illness, how long ago you you were diagnosed, when you began taking LDN and what LDN has done for you. Thank you very much for taking time to read this post. I look forward to hearing from you. Aloha, Susie Sedlock Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2003 Report Share Posted November 9, 2003 So glad to hear all of this Susie. I wish that I had something substantial to tell you but I don't. I will be having an MRI in January. I do feel great and have seen some symptomatic relief. I do beleive that I have stopped the progression of my disease (MS) but I have no proof until January. I am going to keep your address and will report back to you. Hoping that both of you stay happy and healthy. God Bless. Marie ----- Original Message ----- From: Susie Sedlock low dose naltrexone Sent: Saturday, November 08, 2003 11:22 AM Subject: [low dose naltrexone] Progress Report After One Year On LDN Good Morning Everyone, Periodically I have written about my 88 year old dad who was diagnosed with multiple myeloma (bone marrow plasma cancer) who is a patient of Dr. Bihari's. For one year now, my dad has taken 4.5 mg of low dose naltrexone (LDN) at bed time, and I am pleased to report that his most recent tests have shown no disease progression in his year on LDN. He eats well, took a two week road trip from our home in Virginia to Ohio last September, and I am writing this correspondence today from Maui, Hawaii, where Dad and I are vacationing for three weeks. I cannot say enough good about LDN, Dr. Bihari, or Irmat Pharmacy. I am so grateful for this enormous blessing in our lives; it is truly a miracle to me to have my dad doing so well. He will celebrate his 89th birthday on January 17, 2004. When I address this group I generally focus on my dad and his recovery from multiple myeloma. Two years ago I was diagnosed with chronic fatigue syndrome. I had to retire on disability at the age of 45. Because I have an open minded doctor who was not afraid to think outside the box, he consulted with Dr. Bihari and now I too am on 4.5mg LDN. The results have been so outstanding that next month I will begin a new job. Yet another miracle in my life. I have been deeply moved and inspired by the messages of hope and recovery posted by this group. I have always been concerned that while LDN can be found on the internet, this information is virtually unable to be found elsewhere, unless one knows Dr. Bihari (or one of the other prescribing physicians). Therefore, I am in the process of compiling information that I would like to put in a book form, so that those who do not have access to the internet can learn about LDN. It is my belief that if the information from Dr. Bihari's web site, in addition to testimonials from those of us who have reaped the benefits of LDN, can educate the public at large and through the spread of this knowledge through a strong public relations campaign, interest can be stimulated in establishing clinical trial programs that would allow LDN to become a recognized treatment option for cancer, MS, and other ailments for which it has been shown to bring about improved health. If you would like to included in this effort, please send your testimonial to me and include your name, city/state, the nature of your illness, how long ago you you were diagnosed, when you began taking LDN and what LDN has done for you. Thank you very much for taking time to read this post. I look forward to hearing from you. Aloha, Susie Sedlock Quote Link to comment Share on other sites More sharing options...
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