Our trial of Valtrex/ & Kim

[Guest guest]

Dear ,

's viral test (done here in Spain) and medical history

(roseolla+vaccines) seemed to indicate that antiviral therapy could

indeed be the way to go. Under the supervision of Dr. Usman we started

Valtrex (dose: full dose was 250 three times a day). She thought that

we could try Valtrex for 3 months, but after seven weeks we had

enough. This is a post of our journal that describes what was going on

at the time:

" I really don't know what to think. has uncontrollable visual

stims, his hands are in constant movement. There are tones of

vocalizations that I also believe are stims. He has no acknowledged

his cousins for two days. We are in 3rd week of Valtrex and

looks really sick. We started with a runny nose, a cold developed and

had a huge appetite. The ear infection followed and was a little

bit more agressive. Now, week number 3, has had watery eyes,

with a distarch and redness in the white part of his eyes. It does not

seem to bother him, but it is bothering me. He has puffy, purple/grey

under his eyes. He looks really sick. is also very spaced out

these days. I think that this has increased over the course of

Valtrex. He is also quite emotional.

I have read a few messages on the Valtrex message board where people

report the physical symptons and they all seem to be very similar to

's. However, they are also reporting gains, and I am not having

any gains to report. A couple of days ago, had a great morning

with him where paid attention to kids. Unfortunately, this has

not happened with his cousins so we are not sustaining the gain, in my

opinion. There are no changes in language or eye contact or play. "

was sick for the entire time we did Valtrex. Valtrex brought

verbal and visual stims, physical sickness, OCD behavior and the worst

reports from therapy/school ever to the point that the developmental

psychologist called me for a meeting. It was the first time I saw

rocked himself, while humming and lost in space. In theory, he

should have been a responder, the experience brought a major

regression that has taken months to recover from.

We will revisit the possibility of a viral protocol for him in the

future, but doubt that Valtrex would be part of it as it was clear to

us that this drug is definitely not for him (glad though that brought

recovery to others).

I'm not sure if I have answered your question. Let me know if I need

to clarify anything any further.

> >

> > I just dont get it. What am I missing? I am thrilled to read

> others

> > who are doing so well, those who post and say their kids are

> > improving. After 18 months of biomed, we are still we were when

> we

> > started. I take 20 minutes each morning and night, mixing up

> > supplements to give our son . And I wonder, what am i

> doing?

> >

> > When we started, we were told he was high functioning. He

> > looked/appeared very NT and we had 3 " big things " we wanted to

> work on,

> > which would make him practically indistinguishable from peers.

> Well,

> > 18 months later, those 3 things still exist, havent gotten

> > better....except that now we have OCD's, anxiety, and increased

> sensory

> > stuff...and extreme ADHD behaviors. Again, what am I missing?

> We

> > now have learned that our son is moderate to low functioning.

> HOW on

> > earth has our kid gone backwards?

> >

> > Here are some things I wonder about, and would appreciate any

> opinion.

> >

> > First, we have never gotten rid of yeast. I will be asking for

> > diflucan from our DAN next week. I am convinced that he is a gut

> kid

> > and things will get better when yeast is under control. I have

> tried

> > EVERY natural antifungal out there...candex, candidase, OoO,

> numerous

> > probiotics, etc. Still there. Makes me think that he has

> TH1/TH2

> > imbalance.

> >

> > Chelation has worked somewhat, but we are not seeing " huge gains "

> with

> > each round like we used to. We just finished round 8 of DMSA/ALA

> > combo with no gains what so ever. Again, perhaps yeast is making

> the

> > gains?

> >

> > LDN was wonderful, great gains at first, they stopped though.

> >

> > And, we started OLE for our anti viral protocol (yes, without

> diflucan

> > first), and he has regressed completely. He repeats the same

> phrase

> > over and over and over....100 times a day. It is so God da*^

> > discouraging. I truly dont know how much more I can take?

> >

> > Any ideas? Why isnt he getting better?

> >

> > Thanks. Kim

> >

>

=======================================================

[Guest guest]

Oh : I dont know what to say. I feel so badly for you...and at

the same time sick to my stomach. The regression your son

experienced is very similar to our son's regression. My husband and

I just cried last night together for the first time. We didnt even

cry at his initial diagnosis. My husband thought the biomed route

would make our son normal. He had such high hopes. Now, its as if

we didnt do any biomed ever. 18 months erased. And the regression

you described is what we are seeing...visual stims constantly, verbal

stims, scripting, HUGE OCD issues like I've never seen before

ever...obsessing on specific things, repeating phrases over and over,

always turning off the tv and uncontrollable anger, frustration and

tantrums that he NEVER had before.

For us, we only used virastop and OLE. And, both very minimal. I

wonder what would have happened if we used valtrex.

I hope things are going better for you now. Did you ever get back to

baseline, where things were before you used valtrex? I wonder if we

will ever get back to where we started.

I will be praying for you and your family when I pray for ours. It

just doesnt make any sense....

Thanks for sharing, I know how hard it must be to re-live that

story. God Bless

Kim

> > >

> > > I just dont get it. What am I missing? I am thrilled to

read

> > others

> > > who are doing so well, those who post and say their kids are

> > > improving. After 18 months of biomed, we are still we were

when

> > we

> > > started. I take 20 minutes each morning and night, mixing

up

> > > supplements to give our son . And I wonder, what am

i

> > doing?

> > >

> > > When we started, we were told he was high functioning. He

> > > looked/appeared very NT and we had 3 " big things " we wanted

to

> > work on,

> > > which would make him practically indistinguishable from

peers.

> > Well,

> > > 18 months later, those 3 things still exist, havent gotten

> > > better....except that now we have OCD's, anxiety, and

increased

> > sensory

> > > stuff...and extreme ADHD behaviors. Again, what am I

missing?

> > We

> > > now have learned that our son is moderate to low

functioning.

> > HOW on

> > > earth has our kid gone backwards?

> > >

> > > Here are some things I wonder about, and would appreciate any

> > opinion.

> > >

> > > First, we have never gotten rid of yeast. I will be asking

for

> > > diflucan from our DAN next week. I am convinced that he is a

gut

> > kid

> > > and things will get better when yeast is under control. I

have

> > tried

> > > EVERY natural antifungal out there...candex, candidase, OoO,

> > numerous

> > > probiotics, etc. Still there. Makes me think that he has

> > TH1/TH2

> > > imbalance.

> > >

> > > Chelation has worked somewhat, but we are not seeing " huge

gains "

> > with

> > > each round like we used to. We just finished round 8 of

DMSA/ALA

> > > combo with no gains what so ever. Again, perhaps yeast is

making

> > the

> > > gains?

> > >

> > > LDN was wonderful, great gains at first, they stopped though.

> > >

> > > And, we started OLE for our anti viral protocol (yes, without

> > diflucan

> > > first), and he has regressed completely. He repeats the

same

> > phrase

> > > over and over and over....100 times a day. It is so God da*^

> > > discouraging. I truly dont know how much more I can take?

> > >

> > > Any ideas? Why isnt he getting better?

> > >

> > > Thanks. Kim

> > >

> >

>

>

>

>

>

>

> =======================================================

>

[Guest guest]

Hi -

We did not do either Valrex or Virastop. We did homepathic remedies

for viruses. I just wanted to say to you that we had the exact same

experience. This happened to us 2x. First we started the

homeopathy soon into biomed. And both kids were totally

disregulated for about 5 or 6 weeks. THen, after about a year on

them wiht the kids doing well, we switched merks of teh remedies.

The doctor di dnot tell me that the new ones were much stronger. We

had a HUGE regression that lasted for onver a month. We lost all

gains that we had gotten the two years prior. IT was extremely

scary, as I didn't link it to the homeopathic remedies right away,

since we had only switched makers. It was only after about a month

that the doctor finally admitted the rememdies were stronger and

coudl have caused it. In fact, he siad, most regress for about a 30-

45 day period on anti-virals if it is a problem for you.

I just wanted to mention that my kids came out of this regression

better than prior to the treatment. And, after retesting their

titers, it is clear that they have come down quite a bit. In

reading about Valtrex and antivirals, it seems like regression is

often part of the package. (I know this a bad forum to say that,

but I think viral issues are a different animal than chelation.)

My kids titers are still higher tham our doc would like. And, they

tested positive for both CMV and HHV6. So, we are contemplating

hitting this again. We are thinking about using Valtrex. I would

be interested in hearing if others are ultimately getting good

results with Valtrex - any reports either way.

Ruth

> > > >

> > > > I just dont get it. What am I missing? I am thrilled to

> read

> > > others

> > > > who are doing so well, those who post and say their kids

are

> > > > improving. After 18 months of biomed, we are still we

were

> when

> > > we

> > > > started. I take 20 minutes each morning and night,

mixing

> up

> > > > supplements to give our son . And I wonder, what

am

> i

> > > doing?

> > > >

> > > > When we started, we were told he was high functioning. He

> > > > looked/appeared very NT and we had 3 " big things " we

wanted

> to

> > > work on,

> > > > which would make him practically indistinguishable from

> peers.

> > > Well,

> > > > 18 months later, those 3 things still exist, havent gotten

> > > > better....except that now we have OCD's, anxiety, and

> increased

> > > sensory

> > > > stuff...and extreme ADHD behaviors. Again, what am I

> missing?

> > > We

> > > > now have learned that our son is moderate to low

> functioning.

> > > HOW on

> > > > earth has our kid gone backwards?

> > > >

> > > > Here are some things I wonder about, and would appreciate

any

> > > opinion.

> > > >

> > > > First, we have never gotten rid of yeast. I will be

asking

> for

> > > > diflucan from our DAN next week. I am convinced that he

is a

> gut

> > > kid

> > > > and things will get better when yeast is under control. I

> have

> > > tried

> > > > EVERY natural antifungal out there...candex, candidase,

OoO,

> > > numerous

> > > > probiotics, etc. Still there. Makes me think that he

has

> > > TH1/TH2

> > > > imbalance.

> > > >

> > > > Chelation has worked somewhat, but we are not seeing " huge

> gains "

> > > with

> > > > each round like we used to. We just finished round 8 of

> DMSA/ALA

> > > > combo with no gains what so ever. Again, perhaps yeast is

> making

> > > the

> > > > gains?

> > > >

> > > > LDN was wonderful, great gains at first, they stopped

though.

> > > >

> > > > And, we started OLE for our anti viral protocol (yes,

without

> > > diflucan

> > > > first), and he has regressed completely. He repeats the

> same

> > > phrase

> > > > over and over and over....100 times a day. It is so God

da*^

> > > > discouraging. I truly dont know how much more I can take?

> > > >

> > > > Any ideas? Why isnt he getting better?

> > > >

> > > > Thanks. Kim

> > > >

> > >

> >

> >

> >

> >

> >

> >

> > =======================================================

> >

[Guest guest]

Thank you Ruth for sharing this story, it is good to know that

perhaps our son will also come out of this regression, eventually.

You are right about regression and antivirals, which ever protocol

you use...it is inevitable.

I have been reading the Body Ecology Diet as I am making coconut

kefir now. THey primarily started to control yeast, however, their

products also address viral issues. They wrote that at some point,

we must address the viral issues in our kids, that they are there!

And, that our kids autistic symptoms WILL get worse before it gets

better. I keep telling myself that....and that is what we are going

through, and things will get better. Like I said previously, I just

hope for what he had going into this mess.

Thanks again....it helps more than you know!

Kim

> > > > >

> > > > > I just dont get it. What am I missing? I am thrilled to

> > read

> > > > others

> > > > > who are doing so well, those who post and say their kids

> are

> > > > > improving. After 18 months of biomed, we are still we

> were

> > when

> > > > we

> > > > > started. I take 20 minutes each morning and night,

> mixing

> > up

> > > > > supplements to give our son . And I wonder, what

> am

> > i

> > > > doing?

> > > > >

> > > > > When we started, we were told he was high functioning.

He

> > > > > looked/appeared very NT and we had 3 " big things " we

> wanted

> > to

> > > > work on,

> > > > > which would make him practically indistinguishable from

> > peers.

> > > > Well,

> > > > > 18 months later, those 3 things still exist, havent

gotten

> > > > > better....except that now we have OCD's, anxiety, and

> > increased

> > > > sensory

> > > > > stuff...and extreme ADHD behaviors. Again, what am I

> > missing?

> > > > We

> > > > > now have learned that our son is moderate to low

> > functioning.

> > > > HOW on

> > > > > earth has our kid gone backwards?

> > > > >

> > > > > Here are some things I wonder about, and would appreciate

> any

> > > > opinion.

> > > > >

> > > > > First, we have never gotten rid of yeast. I will be

> asking

> > for

> > > > > diflucan from our DAN next week. I am convinced that he

> is a

> > gut

> > > > kid

> > > > > and things will get better when yeast is under control.

I

> > have

> > > > tried

> > > > > EVERY natural antifungal out there...candex, candidase,

> OoO,

> > > > numerous

> > > > > probiotics, etc. Still there. Makes me think that he

> has

> > > > TH1/TH2

> > > > > imbalance.

> > > > >

> > > > > Chelation has worked somewhat, but we are not

seeing " huge

> > gains "

> > > > with

> > > > > each round like we used to. We just finished round 8 of

> > DMSA/ALA

> > > > > combo with no gains what so ever. Again, perhaps yeast

is

> > making

> > > > the

> > > > > gains?

> > > > >

> > > > > LDN was wonderful, great gains at first, they stopped

> though.

> > > > >

> > > > > And, we started OLE for our anti viral protocol (yes,

> without

> > > > diflucan

> > > > > first), and he has regressed completely. He repeats the

> > same

> > > > phrase

> > > > > over and over and over....100 times a day. It is so God

> da*^

> > > > > discouraging. I truly dont know how much more I can

take?

> > > > >

> > > > > Any ideas? Why isnt he getting better?

> > > > >

> > > > > Thanks. Kim

> > > > >

> > > >

> > >

> > >

> > >

> > >

> > >

> > >

> > > =======================================================

> > >

[Guest guest]

Hi Kim,

please tell me, how do you make coconut kefir?

Kim GIll <kim.gill@...> wrote: Thank you Ruth for sharing this story,

it is good to know that

perhaps our son will also come out of this regression, eventually.

You are right about regression and antivirals, which ever protocol

you use...it is inevitable.

I have been reading the Body Ecology Diet as I am making coconut

kefir now. THey primarily started to control yeast, however, their

products also address viral issues. They wrote that at some point,

we must address the viral issues in our kids, that they are there!

And, that our kids autistic symptoms WILL get worse before it gets

better. I keep telling myself that....and that is what we are going

through, and things will get better. Like I said previously, I just

hope for what he had going into this mess.

Thanks again....it helps more than you know!

Kim

> > > > >

> > > > > I just dont get it. What am I missing? I am thrilled to

> > read

> > > > others

> > > > > who are doing so well, those who post and say their kids

> are

> > > > > improving. After 18 months of biomed, we are still we

> were

> > when

> > > > we

> > > > > started. I take 20 minutes each morning and night,

> mixing

> > up

> > > > > supplements to give our son . And I wonder, what

> am

> > i

> > > > doing?

> > > > >

> > > > > When we started, we were told he was high functioning.

He

> > > > > looked/appeared very NT and we had 3 " big things " we

> wanted

> > to

> > > > work on,

> > > > > which would make him practically indistinguishable from

> > peers.

> > > > Well,

> > > > > 18 months later, those 3 things still exist, havent

gotten

> > > > > better....except that now we have OCD's, anxiety, and

> > increased

> > > > sensory

> > > > > stuff...and extreme ADHD behaviors. Again, what am I

> > missing?

> > > > We

> > > > > now have learned that our son is moderate to low

> > functioning.

> > > > HOW on

> > > > > earth has our kid gone backwards?

> > > > >

> > > > > Here are some things I wonder about, and would appreciate

> any

> > > > opinion.

> > > > >

> > > > > First, we have never gotten rid of yeast. I will be

> asking

> > for

> > > > > diflucan from our DAN next week. I am convinced that he

> is a

> > gut

> > > > kid

> > > > > and things will get better when yeast is under control.

I

> > have

> > > > tried

> > > > > EVERY natural antifungal out there...candex, candidase,

> OoO,

> > > > numerous

> > > > > probiotics, etc. Still there. Makes me think that he

> has

> > > > TH1/TH2

> > > > > imbalance.

> > > > >

> > > > > Chelation has worked somewhat, but we are not

seeing " huge

> > gains "

> > > > with

> > > > > each round like we used to. We just finished round 8 of

> > DMSA/ALA

> > > > > combo with no gains what so ever. Again, perhaps yeast

is

> > making

> > > > the

> > > > > gains?

> > > > >

> > > > > LDN was wonderful, great gains at first, they stopped

> though.

> > > > >

> > > > > And, we started OLE for our anti viral protocol (yes,

> without

> > > > diflucan

> > > > > first), and he has regressed completely. He repeats the

> > same

> > > > phrase

> > > > > over and over and over....100 times a day. It is so God

> da*^

> > > > > discouraging. I truly dont know how much more I can

take?

> > > > >

> > > > > Any ideas? Why isnt he getting better?

> > > > >

> > > > > Thanks. Kim

> > > > >

> > > >

> > >

> > >

> > >

> > >

> > >

> > >

> > > =======================================================

> > >

[Guest guest]

Sorry, I'm not Kim, but if you join this group and look in their

files, you'll find good instructions on how to make young coconut

kefir.

beginnerBEDROK/?yguid=198943229

Kim may have other tips, though.

René

>

> Hi Kim,

> please tell me, how do you make coconut kefir?

[Guest guest]

> I have been reading the Body Ecology Diet as I am making coconut

> kefir now.

Great idea, Kim. Please give us a report on how the diet goes -- and

the kefir-making!

Nell