Re: Did many of you notice that you had a great start, then felt somewhat worse...

[Guest guest]

Check out the below links. The first two are by Dr. Bob Lawrence or on his site. He is very knowledgeable about how people with MS respond to LDN.

http://www.msrc.co.uk/index.cfm?fuseaction=show & pageid=627 & CFID=1404825 & CFTOKEN=89119321

http://www.msrc.co.uk/index.cfm?fuseaction=show & pageid=628 & CFID=1404825 & CFTOKEN=89119321

http://www.mwt.net/~drbrewer/lownaltrex.htm

http://pub218.ezboard.com/bldnlow dose naltrexone

PS. I have been on LDN for MS for over six months with good results.

If you go to the Group for this news group you can gain much information reading the archives.

To answer your question, yes. But things do improve in time. The most important factor is that it stops the progression!

B.

----- Original Message -----

From: yowife2002

low dose naltrexone

Sent: Saturday, December 20, 2003 8:39 PM

Subject: [low dose naltrexone] Did many of you notice that you had a great start, then felt somewhat worse...

....than when you started? I asked on another site and received only one response. It was very interesting, but I thought I would try again here to get a few more thoughts. I am excited about the possibilities, but was sad when I had even a bit more numbness in my feet today than when I took the first pill last evening. I am trying to be patient, and I know, if anything teaches the need to be patient, this disease does!Any advice is appreciated.Sally

[Guest guest]

On Sun, 21 Dec 2003 07:42:51 -0500, you wrote:

>To answer your question, yes. But things do improve in time. The most

important factor is that it stops the progression!

>

> B.

I hasn't stopped mine!

See my graph at http://www.easynn.com/column.jpg

The horizontal axis shows the day numbers.

See the red " average " line.

The initial increase up to day 134 was due to lots of practice taking

steps. Then my steps started to decline and things just got worse up

to day 230 when I started the LDN. From that point my steps improved

up to about day 340 when my steps started to get worse again. Around

about day 470 I began to take LDN with occasional two day breaks. The

progression slowed down but has never levelled off or reversed again.

[Guest guest]

>

> See my graph at http://www.easynn.com/column.jpg

>

> The horizontal axis shows the day numbers.

>

> See the red " average " line.

>

>

Your graph is too small to read. could you either resend or explain

what you are graphing.

--Jeff

[Guest guest]

On Sun, 21 Dec 2003 09:21:22 -0800, you wrote:

>I would immediately switch to one of the 2 better compounding pharmacies==

>irmat's or Skip's.

I have absolute confidence in Dr Lawrence, my supplier. He has MS and

takes LDN himself.

>Also sometimes people get confused about relapses and

>progression--- progression would be NEW symptoms from what I understand.

I'm not confused about relapses because I have progressive MS and so

have never had a relapse. Progressive MS is much simpler to

understand.

Steve

[Guest guest]

On Sun, 21 Dec 2003 20:51:17 -0000, you wrote:

>>

>> See my graph at http://www.easynn.com/column.jpg

>>

>> The horizontal axis shows the day numbers.

>>

>> See the red " average " line.

>>

>>

>Your graph is too small to read. could you either resend or explain

>what you are graphing.

>

>--Jeff

>

I don't know why you see it as too small. I didn't send it at all,

it's a web page.

The graph is the number of steps I can do before have to grad hold of

something for support. I take a count every night. It varies from 5 to

180 so the average shows any trend.

Steve