Re: ? about LDN dosing ???

[Guest guest]

Everyone is different. The fact that your thyroid is working better would suggest that the LDN is working for your problem. You would be better off if you adjusted your thyroid meds instead of switching the LDN dose.

SkipSee AOL's top rated recipes and easy ways to stay in shape for winter.

[Guest guest]

I have a similar question. I'm at 3.0 and need to go up and try 4.5

LDN. However, the doctor has not gotten my thyroid medication

regulated since I had my son. Do I need to go back in to check the

thyroid levels after the LDN increase? If so, how long should I

wait to have the levels rechecked? I didn't know if the extra LDN

would affect my thyroid levels/dose.

Thanks,

>

> Everyone is different. The fact that your thyroid is working

better would

> suggest that the LDN is working for your problem. You would be

better off if you

> adjusted your thyroid meds instead of switching the LDN dose.

> Skip

>

>

>

> **************************************See AOL's top rated recipes

> (http://food.aol.com/top-rated-recipes?NCID=aoltop00030000000004)

>

[Guest guest]

>

> Everyone is different. The fact that your thyroid is working better

would

> suggest that the LDN is working for your problem. You would be

better off if you

> adjusted your thyroid meds instead of switching the LDN dose.

> Skip

>

>

Thanks Skip...

I take both Levothroid (T4 @75mcg) and Cytomel (T3 @15mcg) -- I saw my

doctor on Monday and she suggested I cut my T4med by half and my T3med

by a third -- to try this reduced dose for a few days...see how I felt

-- then make a decision to resume the LDN on Friday.

At my appointment on Monday my heart rate was at 91 and I had lost 10

lbs in 2weeks (over the holidays) -- which are symptoms of the

overmedication. When your heart rate is that fast you can feel your

chest pound and it creates some anxious type feelings...bottom line:

it's just not a pleasant feeling.

Taking less thyroid meds has helped to bring my heart rate down, but I

was able to bring my heart rate down somewhat faster by taking some

magnesium. (In this instance I used a product called " Calm " -- you

make a hot " tea " with it. I had a couple of cups of a weak tea and I

could feel a difference in a couple of hours. )

I am my doctor's first patient on LDN so her prescription to lower my

thyroid meds is not based on any LDN experience -- it's just her 'best

guess' on how to handle this. When I asked her if she thought I should

take a lower LDN dose she indicated that LDN org website does not give

enough information about dosing... so she had no reference to guide

her on that recommendation. And she also commented that it wasn't

clear to her how it was determined that a 4.5 dose is where to start.

She reminded me... I know more about this therapy than she does. ugh.

If this " grass roots " effort to popularize LDN as a viable therapy is

take hold, then we need to provide the doctors that are willing to

think-outside-the box some good references (sites) to help guide them.

Jann

[Guest guest]

Hi Jann,

In the welcome e-mail I explain that starting LDN at 1.5 and building ones way up to 3 or 4.5 is a very good way to help with side effects. This dosing strategy might also prove to help to slowly ease in and see what meds work or don't work with your body and LDN.

Did you share the Welcome e-mail with the doctor? It is based upon what we have noted from peoples shared experiences from this chat site.

All my best

Aletha

[low dose naltrexone] Re: ? about LDN dosing ???

>> Everyone is different. The fact that your thyroid is working betterwould > suggest that the LDN is working for your problem. You would bebetter off if you > adjusted your thyroid meds instead of switching the LDN dose.> Skip> > Thanks Skip...I take both Levothroid (T4 @75mcg) and Cytomel (T3 @15mcg) -- I saw mydoctor on Monday and she suggested I cut my T4med by half and my T3medby a third -- to try this reduced dose for a few days...see how I felt-- then make a decision to resume the LDN on Friday. At my appointment on Monday my heart rate was at 91 and I had lost 10lbs in 2weeks (over the holidays) -- which are symptoms of theovermedication. When your heart rate is that fast you can feel yourchest pound and it creates some anxious type feelings...bottom line:it's just not a pleasant feeling. Taking less thyroid meds has helped to bring my heart rate down, but Iwas able to bring my heart rate down somewhat faster by taking somemagnesium. (In this instance I used a product called "Calm" -- youmake a hot "tea" with it. I had a couple of cups of a weak tea and Icould feel a difference in a couple of hours. ) I am my doctor's first patient on LDN so her prescription to lower mythyroid meds is not based on any LDN experience -- it's just her 'bestguess' on how to handle this. When I asked her if she thought I shouldtake a lower LDN dose she indicated that LDN org website does not giveenough information about dosing... so she had no reference to guideher on that recommendation. And she also commented that it wasn'tclear to her how it was determined that a 4.5 dose is where to start. She reminded me... I know more about this therapy than she does. ugh.If this "grass roots" effort to popularize LDN as a viable therapy istake hold, then we need to provide the doctors that are willing tothink-outside-the box some good references (sites) to help guide them. Jann

[Guest guest]

In Regards to LDN and thyroid medicine adjustments; if someone has

hypothyroidism it is very common to have autoantibodies to their

thyroid hormones. Your doctor probably checked those when you were

first diagnosed. These antibodies reduce the effectiveness of your

T4 and T3 hormones. These are autoimmune based antibodies and if LDN

reduces the autoimmune response by upregulating a segment of the

immune system it might reduce the activity of your thyroid

antibodies. This would reduce your thyroid supplement

requirements. This is just my opinion based on the two sciences put

together, but since there is little known about exactly how LDN

works then we are not sure. IN a nutshell, yes you should probably

get your thyroid levels checked including TSH, Free T4, and Free T3

Then your doctor can adjust accordingly. Most people wait 6 weeks

after an adjustment in meds to check their thyroid levels, I would

ask your doctor.

In regards to regulating your thyroid, make sure you are up on your

B vitamins and selenium. Deficiencies in these can reduce your

conversion of T4 to T3 which is the active hormone.

low dose naltrexone , " michelleruth1 "

<michelleruth1@...> wrote:

>

> I have a similar question. I'm at 3.0 and need to go up and try

4.5

> LDN. However, the doctor has not gotten my thyroid medication

> regulated since I had my son. Do I need to go back in to check

the

> thyroid levels after the LDN increase? If so, how long should I

> wait to have the levels rechecked? I didn't know if the extra LDN

> would affect my thyroid levels/dose.

>

> Thanks,

>

> >

> > Everyone is different. The fact that your thyroid is working

> better would

> > suggest that the LDN is working for your problem. You would be

> better off if you

> > adjusted your thyroid meds instead of switching the LDN dose.

> > Skip

> >

> >

> >

> > **************************************See AOL's top rated

recipes

> > (http://food.aol.com/top-rated-recipes?NCID=aoltop00030000000004)

> >

>

[Guest guest]

Hi Jann,

Here is a good LDN reference site to share with your doctor:

http://tinyurl.com/2boot2

Best regards,

Dudley Delany

dudley_delany

[low dose naltrexone] Re: ? about LDN dosing ???

>

> Everyone is different. The fact that your thyroid is working better

would

> suggest that the LDN is working for your problem. You would be

better off if you

> adjusted your thyroid meds instead of switching the LDN dose.

> Skip

>

>

Thanks Skip...

I take both Levothroid (T4 @75mcg) and Cytomel (T3 @15mcg) -- I saw my

doctor on Monday and she suggested I cut my T4med by half and my T3med

by a third -- to try this reduced dose for a few days...see how I felt

-- then make a decision to resume the LDN on Friday.

At my appointment on Monday my heart rate was at 91 and I had lost 10

lbs in 2weeks (over the holidays) -- which are symptoms of the

overmedication. When your heart rate is that fast you can feel your

chest pound and it creates some anxious type feelings...bottom line:

it's just not a pleasant feeling.

Taking less thyroid meds has helped to bring my heart rate down, but I

was able to bring my heart rate down somewhat faster by taking some

magnesium. (In this instance I used a product called " Calm " -- you

make a hot " tea " with it. I had a couple of cups of a weak tea and I

could feel a difference in a couple of hours. )

I am my doctor's first patient on LDN so her prescription to lower my

thyroid meds is not based on any LDN experience -- it's just her 'best

guess' on how to handle this. When I asked her if she thought I should

take a lower LDN dose she indicated that LDN org website does not give

enough information about dosing... so she had no reference to guide

her on that recommendation. And she also commented that it wasn't

clear to her how it was determined that a 4.5 dose is where to start.

She reminded me... I know more about this therapy than she does. ugh.

If this " grass roots " effort to popularize LDN as a viable therapy is

take hold, then we need to provide the doctors that are willing to

think-outside-the box some good references (sites) to help guide them.

Jann

[Guest guest]

Hi Althea I didn't receive a welcome e-mail would it be possible to

get one now I would like to read about what you mention below.

thanks

> >

> > Everyone is different. The fact that your thyroid is working

better

> would

> > suggest that the LDN is working for your problem. You would be

> better off if you

> > adjusted your thyroid meds instead of switching the LDN dose.

> > Skip

> >

> >

> Thanks Skip...

>

> I take both Levothroid (T4 @75mcg) and Cytomel (T3 @15mcg) -- I

saw my

> doctor on Monday and she suggested I cut my T4med by half and my

T3med

> by a third -- to try this reduced dose for a few days...see how I

felt

> -- then make a decision to resume the LDN on Friday.

>

> At my appointment on Monday my heart rate was at 91 and I had

lost 10

> lbs in 2weeks (over the holidays) -- which are symptoms of the

> overmedication. When your heart rate is that fast you can feel

your

> chest pound and it creates some anxious type feelings...bottom

line:

> it's just not a pleasant feeling.

>

> Taking less thyroid meds has helped to bring my heart rate down,

but I

> was able to bring my heart rate down somewhat faster by taking

some

> magnesium. (In this instance I used a product called " Calm " -- you

> make a hot " tea " with it. I had a couple of cups of a weak tea

and I

> could feel a difference in a couple of hours. )

>

> I am my doctor's first patient on LDN so her prescription to

lower my

> thyroid meds is not based on any LDN experience -- it's just

her 'best

> guess' on how to handle this. When I asked her if she thought I

should

> take a lower LDN dose she indicated that LDN org website does not

give

> enough information about dosing... so she had no reference to

guide

> her on that recommendation. And she also commented that it wasn't

> clear to her how it was determined that a 4.5 dose is where to

start.

> She reminded me... I know more about this therapy than she does.

ugh.

>

> If this " grass roots " effort to popularize LDN as a viable

therapy is

> take hold, then we need to provide the doctors that are willing to

> think-outside-the box some good references (sites) to help guide

them.

>

> Jann

>

[Guest guest]

>

> I would wait 4-6 weeks, or if you are have symptoms go immediately.

> skip

>

....wait 4-6 weeks to do what ??

I'll be retesting my thyroid levels in six weeks as that's the amount

of time needed to assess an impact to a thyroid med dose change.

Jann

[Guest guest]

Hi, I'm having an experience similar to Jann. I have autoimmune

hypothyroidism that's a hypo phase of Graves' disease and I need 60 mcg

T4 and 10 mcg T3 to keep my thyroid levels at mid-range. I also have

some after-effects of thyroid eye disease and test positive

for " Graves' autoantibodies "

I've been taking 1.5 mg of LDN for two weeks. As of yesterday my pulse

has shot up to 80, which is usually a sign my thyroid levels are too

high. I'm decreasing my thyroid replacement and will get labs in 4-6

weeks. In the meantime I'll watch my heart rate and may stop the

thyroid replacement altogether.

I'm quite surprised to have responded so quickly--but I'm very pleased.

I don't plan to increase my LDN since I'm already getting benefits at

1.5. If I'm able to return to normal thyroid function on LDN, the next

question will be how long to stay on it, but obviously the next step is

to get my thyroid labs in early Feb.

I'm also working with a " functional medicine " MD and will try to get

her involved as well.

Best wishes,

in Maine

.....

> Just trying to understand this process better to see if a lower dose

> would not interfere with my thyroid hormones -- I have Hashi's and

> take thyroid meds and I seem to have had a reaction -- I became

> overmedicated with thyroid hormones. >

> Thanks...

> Jann

>

[Guest guest]

Any oncologists in the Cleveland

Ohio area who believe in ldn, and

prescribe it? Conni

[Guest guest]

Hi Conni,May I suggest you contact a woman named Crystal. She maintains a list by location of doctors who prescribe LDN, and she may have on her list an oncologist near you. Her e-mail address isangelindisguise67@...To learn about other ways of obtaining LDN, visithttp://tinyurl.com/2dfbvdSincerely,Dudley Delany

dudley_delanyFrom: Conni Lawrence

Sent: Friday, January 11, 2008 2:56 PM

low dose naltrexone

Subject: [low dose naltrexone] Re: ? about LDN dosing ???

Any oncologists in the Cleveland

Ohio area who believe in ldn, and

prescribe it? Conni

[Guest guest]

I DON'T KNOW, ASK AT THE CLEVELAND CLINIC? or alternative meds...

[low dose naltrexone] Re: ? about LDN dosing ???

Any oncologists in the Cleveland Ohio area who believe in ldn, and prescribe it? Conni

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