Re: Promising results for ai thyroid disease

[Guest guest]

Hi ,

After talking to you earlier today, I'm thinking you might want to resume the LDN, especially since it's a low dose. If it's causing a fall in your blocking TSH receptor antibodies and your TSI are also on their way down, you might not want to interfere with the process. I'm anxious to hear more about your progress, Elaine

Read my articles at http://spas.suite101.com/ http://autoimmunedisease.suite101.com and www.elaine-moore.com/gravesdisease/ and read more about me at www.elainemoore.net

If we single-pointedly practice great compassion, then, with little effort, we will be able to gain all other virtues-Geshe Namgyal Wangchen, "Awakening the Mind"

[low dose naltrexone] Promising results for ai thyroid disease

Hi, as I posted last week I've had what seems to be significant

improvement in my thyroid disease and thyroid eye disease; my ecsema

also seems to be improving.

I was taking 60 mcg T4 and 10 mcg T3 to address a hypothyroid phase

of Graves' disease (Graves' antibodies attach to the TSH receptors

and can make a person either hyperthyroid or hypothyroid, depending

on the balance of two types of antibodies). After 2 weeks on 1.5 mg

LDN, I stopped my replacement because my heart rate shot up to 80,

signaling my thyroid levels were too high. I also stopped the LDN

because I wasn't certain what was going on.

I've been without thyroid replacement since Thursday and my heart

rate has nearly returned to normal. The remaining thyroid eye disease

symptom that bothered me, a visibly protruding eye, has disappeared

and my eyes look equal again. I'll report back when I get labs in a

month or so--and if I start to experience hypothyroid symptoms again

I'll probably go back on the LDN--but I'm very encouraged.

Best wishes,

in Maine

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[Guest guest]

Hi Elaine,

Yes, I think I will resume the LDN. I was dividing 10 mg into 6 doses, so I

was taking slightly more than 1.5 mg. I had stopped it last week when I had

the dramatic rise in thyroid levels just to be sure they didn't keep rising

for some reason (as if perhaps TSI would be the one type of autoantibody it

didn't effect?) but my pulse is nearly back to normal, so I'm no longer as

concerned.

It's more reasonable to think I'd need a little longer than two weeks on LDN

to correct a problem going back at least 6 years and probably much longer.

I'll get labs in a month and post my results.

Some of us on Graves' Support are very interested in finding out what LDN

can do for Graves'--and for people still hyper, to see if we can start LDN

without stopping the antithyroid med (atd) until we know our levels are

under control. The dilemma is that we should stop immunosuppressants, and

presumably the atds fall into this category. Perhaps a safer strategy would

be frequent lab work and being prepared to decrease it very quickly.

I never expected to have such dramatic improvement in my remaining thyroid

eye disease symptoms, and the eczema on my palms that I developed last

spring is also healing, so I'm very encouraged. I hope this will be a huge

help for people with ai thyroid disease. I'll keep you posted, and I

appreciate you telling us about it. (Actually Angel over on Mediboard picked

up your article from suite101, which is what triggered the current

interest.) I guess that proves women with thyroid problems should not " stay

off the Internet, " despite what our endos tell us!

Best wishes,

B.

_____________

From: low dose naltrexone

[mailto:low dose naltrexone ] On Behalf Of Elaine

Sent: Monday, January 07, 2008 10:16 PM

low dose naltrexone

Subject: Re: [low dose naltrexone] Promising results for ai thyroid disease

Hi ,

After talking to you earlier today, I'm thinking you might want to resume

the LDN, especially since it's a low dose. If it's causing a fall in your

blocking TSH receptor antibodies and your TSI are also on their way down,

you might not want to interfere with the process. I'm anxious to hear more

about your progress, Elaine

Read my articles at http://spas.suite101.com/

http://autoimmunedisease.suite101.com and

www.elaine-moore.com/gravesdisease/ and read more about me at

www.elainemoore.net

If we single-pointedly practice great compassion, then, with little effort,

we will be able to gain all other virtues-Geshe Namgyal Wangchen, " Awakening

the Mind "