Guest guest Posted March 2, 2003 Report Share Posted March 2, 2003 Thanks ! I really try to say things the right way, but I took one of my meds that put me to sleep, so I feel like I am only half here right now, so if what I say sounds stupid, let me know... hehe. I knew about the TMJ, and lop-sided ears, but was not sure if there could be any neuro damage done if left untreated. Our neuro refuses to treat with a band, and he is almost 9 months (on the 5th), so basically he is already fused. (per our physical therapist) I am getting a new neuro up in town, but I am not sure how long it will take for us to get in. Thanks for the reply! Dont worry about pregnancy brain, I have mommy brain! mimi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2003 Report Share Posted March 2, 2003 i have heard of ear problems related to hearing and ear infections, vision problems, TMJ problems. self esteem of course. of course, there have been no long term studies, so this is really hard to prove, especially if fighting insurance companies. jen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2003 Report Share Posted March 2, 2003 Hi Mimi, There are some things that could happen to a baby with plagio that went untreated. If I'm not mistaken ear problems, TJM and I know there's more but I can't think of them. ..lol I'm sure you'll get a bunch of replies so you'll get your answer. Pregnancy brain is really bad for me lately. I'm sure no one is offended by what you said. You're right, there are things much worse than plagio. > I have a question for everyone.... Do you know if there are any long term > effects from plagio/torticollis? is almost 9 months and I was just > wondering what we have to look forward to in his future. I know that his > other dx's are the biggie's for developmental delays, cerebral palsy, ect... > are a little more " critical " (bad term, but I didn't know how else to phrase > it, hope I didn't offend anyone) than the plagio. (geesh, I feel like a real > ICK now) > Mimi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2003 Report Share Posted March 2, 2003 Hi Mimi: Check out this link from our " links " seciton with some POSSIBLE ( I stess the word POSSIBLE!) long term effects: Plagiocephaly/files//Pediatrics%20--%20Long%2\ 0Term.htm Just an FYI, my daughter just turned 3, she wore a band with 50-60% correction of what was severe plagio but has no developmental or physical delays that are noteworthy, she's a bit behind in speech but I don't attribute that to her plagio at all. I've also been w/this group for over 2 yrs and have yet to hear of any children's delays or any other problems resulting from plagio., shew! Debbie Abby' smom DOCGrad MI > > > I have a question for everyone.... Do you know if there are any > long term > > effects from plagio/torticollis? is almost 9 months and I > was just > > wondering what we have to look forward to in his future. I know > that his > > other dx's are the biggie's for developmental delays, cerebral > palsy, ect... > > are a little more " critical " (bad term, but I didn't know how else > to phrase > > it, hope I didn't offend anyone) than the plagio. (geesh, I feel > like a real > > ICK now) > > Mimi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2003 Report Share Posted March 3, 2003 In a message dated 3/2/2003 8:02:18 PM Eastern Standard Time, windycitymimi@... writes: Do you know if there are any long term effects from plagio/torticollis? is almost 9 months and I was just wondering what we have to look forward to in his future Mimi, I know that with untreated torticollis, upper scoliosis can occur. As I have learned, the brain stem protects the brain, and if its saying go crooked, the body will follow. Not to mention, tort can also cause facial asymmetry, it acts like a magnet and pulls the upper body up to meet the muscle, and the facial features down to meet it. The body will tend to compensate by pulling up the shoulder or hip to create a feeling of balance (which is so ironic because it creates even more imbalance in a sense- but the SCM muscle is fooling the brain so to speak). Working this out early is very important before the child gets set in any wrong posture, which enables the rest to occur. My son's rib cage was very misaligned already at 3 mnths old, thankfully we had a pt that took the whole body approach in dealing with torticollis, understanding the tort side affects not only the SCM muscle, but the entire body. With plagio, I have always been told, and it really makes sense if you think it out, that TMJ, vision and ear canal problems may plague a child that has asymmetries in those areas- I don't understand why Docs would dispute that, any shift of symmetrical features would no doubt cause some type of impairment to that function, even if its with migraines, ear infections, vision probs., or dare I say, just cosmetic (this alone in this world is reason enough to treat imo- I wouldn't deny my child braces for crooked teeth either, totally cosmetic). Hope this helps! That's my 2 cents! mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 4, 2003 Report Share Posted March 4, 2003 In a message dated 03/02/2003 9:26:44 PM Eastern Standard Time, dj2kirby@... writes: Plagiocephaly/files//Pediatrics%20--%20Long%20Term.htm I was unable to access this article. Is the address correct. Jen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2003 Report Share Posted November 20, 2003 Hi guys, Just a quick question that I hope someone can answer for me. Where can I find facts relating to liver problems manifesting itself in uses of as much as 300mg of LDN? I came across this site. www.casehealth.com where people can post stories about medical breakthroughs that they have experienced. I decide to post my story and got an e-mail back from the webmaster detailing my story but with a disclaimer about liver damage in 50mg doses. I told him that I would get back to him with details about where he could find info on that being the case in much higher doses. I just don't want people to be scared off by his comments. Does anyone know where I can find details about this? Thanks so much. JoyceF _________________________________________________________________ Say “goodbye” to busy signals and slow downloads with a high-speed Internet connection! Prices start at less than $1 a day average. https://broadband.msn.com (Prices may vary by service area.) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 20, 2003 Report Share Posted November 20, 2003 Hi Joyce, Couldn't be better if he tells us where he has been reading about liver damage at 50 mg? You might know already these links that state more infos about Naltrexone use and its safety: http://osiris.sunderland.ac.uk/autism/naltrexo.htm http://www.drugabuse.gov/MeetSum/naltrexone.html Hope this helps. --- In low dose naltrexone , " wkendz 32 " <wkendz32@h...> wrote: > Hi guys, > Just a quick question that I hope someone can answer for me. Where can I > find facts relating to liver problems manifesting itself in uses of as much > as 300mg of LDN? > I came across this site. www.casehealth.com where people can post stories > about medical breakthroughs that they have experienced. I decide to post my > story and got an e-mail back from the webmaster detailing my story but with > a disclaimer about liver damage in 50mg doses. I told him that I would get > back to him with details about where he could find info on that being the > case in much higher doses. I just don't want people to be scared off by his > comments. > Does anyone know where I can find details about this? Thanks so much. JoyceF > > _________________________________________________________________ > Say " goodbye " to busy signals and slow downloads with a high-speed Internet > connection! Prices start at less than $1 a day average. > https://broadband.msn.com (Prices may vary by service area.) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2006 Report Share Posted August 2, 2006 Sandy . . . You stomach should go down . . . But it probably won't happen overnight . . . And, you're so right . . . YOU are the one who has to help yourself! . . . It's tough when you feel so bad . . . and when it feels like the fight has gone out of you! . . . But, just take it one step, one day at a time . . . It will only be when you've made it a way down the road when you'll be able to look back and see how far you've come. Keeping a journal will help you see your progress! By the time someone finds out you aren't pregnant, they're probably the one who is embarassed! They asked because they want to strike up a conversation with you and are interested in you! . . . I'd suggest coming up with a funny comeback about when your baby is due . . . something to get both of you laughing! . . . "The baby will get here as soon as I can find a puppy for my husband - I don't want him to be jealous!" . . . "Oh, I'm not pregnant . .. I just swallowed a watermelon seed!" . . . Then smile real big! If you feel like sharing, use this as an opportunity to tell them about the problems that come with breast implants! The implant industry has money for public relation people . . .we have just us . . . so we need to tell our story one by one. Apparently you look approachable and friendly . . .And that's good! Hugs and prayers, Rogene Quote Link to comment Share on other sites More sharing options...
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