Guest guest Posted January 12, 2008 Report Share Posted January 12, 2008 hallo belinda, leuk hier iemand uit nederland te ontmoeten die ook ldn gebruikt. ik gebruik het voor mijn auto-immuunaandoeningen, bechterev en hashimoto en crohn. het heeft mijn crp enorm naar beneden gebracht en ik heb nu een forum waar ik o.a. een deel over ldn heb geopend. tot nu toe heb ik niemand gevonden die ldn gebruikt en ik zou heel graag ldn meer bekendheid geven in nederland. in mijn blog heb ik er een heleboel info over geplaatst: http://deeyeopener.web-log.nl zou je het leuk vinden om je bevindingen met ldn in mijn forum te plaatsen? het adres is: http://hormonaledisbal.forum2go.nl groetjes, marja zahavi > > Hi LDN-people, > > Im a girl from The Netherlands (with progressive MS dx. 08 2007) and > on LDN for about 70 day's now (4,5 mg). I have found all the > information over LDN on the Internet, I buy and make my own liquid LDN > without prescription from my neuro. > > I dont have experienced yet a decrease in symptomes (besides less > tingling in my legs). I have a strong believe in LDN and I've read > serveral great stories. Im still progressing but I hope the LDN will > stop or slower that. > > Im reading here for several months but I still have a tiny question. I > know you must take LDN between 9pm/3am, so I taking LDN before I go to > bed. Sometimes its 23.00 but another night its 01.00. Is this a > problem? Is it better to take LDN on the same time each night? > > Thanks in advance! > > You all do great work by helping us with your information! My doctor > only knows about LDN because I told him so and that is not always > handy when you are insecure about things... > > Sorry for my bad English but Im doing my best! :-) > > Belinda > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2008 Report Share Posted January 12, 2008 Hi Belinda, It is probably preferable to take LDN at the same time every night, but there is no clear evidence that not doing so will be detrimental. It is one of those gray areas that needs further research. With best wishes, Dudley Delany dudley_delany [low dose naltrexone] Is the time to take LDN, the same every night? Hi LDN-people, Im a girl from The Netherlands (with progressive MS dx. 08 2007) and on LDN for about 70 day's now (4,5 mg). I have found all the information over LDN on the Internet, I buy and make my own liquid LDN without prescription from my neuro. I dont have experienced yet a decrease in symptomes (besides less tingling in my legs). I have a strong believe in LDN and I've read serveral great stories. Im still progressing but I hope the LDN will stop or slower that. Im reading here for several months but I still have a tiny question. I know you must take LDN between 9pm/3am, so I taking LDN before I go to bed. Sometimes its 23.00 but another night its 01.00. Is this a problem? Is it better to take LDN on the same time each night? Thanks in advance! You all do great work by helping us with your information! My doctor only knows about LDN because I told him so and that is not always handy when you are insecure about things... Sorry for my bad English but Im doing my best! :-) Belinda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2008 Report Share Posted January 12, 2008 Hi Belinda, welcome to this board, it's nice to have another european here! To be a part of this group you will alway get nice and friendly support. Please, enjoy whenever you want, and don't think about your English, it hasn't been a problem at all not being too much of an language expert in here ;-).. I am doing the same thing as you, it variates when I take my ldn, i jump between 11.pm and 00.30 am, and to be honest, I don't think it's too smart :-)...so I have to decide taking it more regularly. I think someone in here wrote that it's quite neccessary doing so. But I forget sometimes.....but never till the next day.... I come from Norway, it's a little country, we're only 4.5 millions here....and I think it's fantastic that in such a little country, 200 doctors prescribes ldn to their patients :-) With all the best from Ingrid [low dose naltrexone] Is the time to take LDN, the same every night?Hi LDN-people,Im a girl from The Netherlands (with progressive MS dx. 08 2007) andon LDN for about 70 day's now (4,5 mg). I have found all theinformation over LDN on the Internet, I buy and make my own liquid LDNwithout prescription from my neuro.I dont have experienced yet a decrease in symptomes (besides lesstingling in my legs). I have a strong believe in LDN and I've readserveral great stories. Im still progressing but I hope the LDN willstop or slower that.Im reading here for several months but I still have a tiny question. Iknow you must take LDN between 9pm/3am, so I taking LDN before I go tobed. Sometimes its 23.00 but another night its 01.00. Is this aproblem? Is it better to take LDN on the same time each night?Thanks in advance!You all do great work by helping us with your information! My doctoronly knows about LDN because I told him so and that is not alwayshandy when you are insecure about things...Sorry for my bad English but Im doing my best! :-)Belinda Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 12, 2008 Report Share Posted January 12, 2008 For the first 4 or so years I took my LDN between 1230 and 0230 am every day... it varied a lot, depending how involved I got at work and when I realized I didn't take it. http://www.larrygc.com/mystory I can't imagine getting better results if I had taken it the same same minute every day. [low dose naltrexone] Is the time to take LDN, the same every night? Hi LDN-people,....Im reading here for several months but I still have a tiny question. Iknow you must take LDN between 9pm/3am, so I taking LDN before I go tobed. Sometimes its 23.00 but another night its 01.00. Is this aproblem? Is it better to take LDN on the same time each night? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2008 Report Share Posted January 15, 2008 Hi LDN-people! Thanks for your responding! (also thanks to Crystal and Aletha for responding to my mailbox) :-D I understand that I dont have too take the LDN on the exact same time every evening/night because it is not prooven that it will work better when you do so. Most of the time I take it 23.30 hour but sometimes its later or earlyier. My doctor is not prescribing LDN because he dont believe in it (there are no proven -placebo controlled- trials for MS yet and he is listening to the pharma). He thinks chemo could meaby help me but I dont wanna try that, and he is not pushing with the chemo, because of the side-effects. He knows Im using liquid LDN (at my own responsebility) and my neuro is checking my blood and other neurothings every month but when I have a question about LDN he simply couldnt answer it, because he dont know anything about LDN (exept the info he gets from me). ;-) My neuro is -besides he dont wanne give me LDN- a nice and capable doctor and I dont want to change him for another doctor. I cant swallow pils so the liquid is a good thing for me. Ive started at 1,5 mg and then slowly upped it to 4,5 mg. I dont use any other medicin so there is no interaction. I only take calcium-magnesium twice a day because of spasmen and tremors (I dont know if it helps but I stick to that because it dont harm me). I tried also B1-100 and anti-oxidants but I dont mention anything and im a little bit scared about the longtime use of B1-100. To Marja: I know you and you forum. :-) Its nice to know a Dutch LDN user. I know another one who uses LDN for HIV. Ive been at your forum but there is not much information about LDN. I have my own blog (Dutch) and post several post about LDN & my MS. Im also an advocate for LDN and think when you have a immunsystemdisorder you can better try LDN instead of CRAB or chemo. I will take another look there soon! Thanks!! With warm wishes too, Belinda Quote Link to comment Share on other sites More sharing options...
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