Lewy Body Dementia

[Guest guest]

Anybody ever heard of "Lewy Body Dementia"? I ask because I have MS and have for over 10 years but nobody in my family has any history of it, Now my Dad (age 79) has just gotten diagnosed with it. It is another of our favorite type disease that is not hereditary but may have a hereditary link.

I know the name sounds made up but it is real. I'd appreciate hearing from anyone with any knowledge.

Thanks, Larry

[Guest guest]

Hi Larry,This site will give you information about Lewy Body Dementia:http://www.lewybodydementia.orgWith best wishes,Dudley Delany

dudley_delanyFrom: Larry Stahl

Sent: Saturday, January 12, 2008 2:12 PM

low dose naltrexone

Subject: [low dose naltrexone] Lewy Body Dementia

Anybody ever heard of "Lewy Body Dementia"? I ask because I have MS and have for over 10 years but nobody in my family has any history of it, Now my Dad (age 79) has just gotten diagnosed with it. It is another of our favorite type disease that is not hereditary but may have a hereditary link.

I know the name sounds made up but it is real. I'd appreciate hearing from anyone with any knowledge.

Thanks, Larry

[Guest guest]

>

> Anybody ever heard of " Lewy Body Dementia " ?

I have been a member of several forums dealing with this type of

dementia (my older sister was affected). They have changed ownership

and places---the most recent is group:

FTD_support/

I see they are in the process of moving yet again and are taking on

new members at the new website:

http://ftdsupportforum.com/

These dementias are so different than the well-known Alzheimers, that

it's a big help to join a forum. The forum above is for:

" Frontal Temporal Dementia, but they are a source for Pick's

Disease(PiD), Frontotemporal Dementia (FTD), Primary Progressive

Aphasia (PPA), Frontotemporal Lobe Degeneration (FTLD), Dementia with

Lewy Bodies (DLB) and Corticobasal Ganglionic Degeneration (CBGD) "

It's so hard on family members because the symptoms often resemble

mental illness and psychosis, and cause behavioral problems,

combativeness, and personality changes---not the typical memory-loss

that one associates with Alzheimers.

Family members typically have a VERY difficult time caring for the

loved one--and need all the support and understanding they can get.

Get as much information as you can, too---that will help.

Best,

Calli