Guest guest Posted October 16, 2003 Report Share Posted October 16, 2003 Just got back from my 2nd 3 month LDN follow up. My EDSS was written down as 3.0, which I believe is down from 3.5 He mentioned MRI's and said he's in no rush to send me for another because "we're not running an LDN study" and went on to say "if the MRI came back worse, would I change treatments?" I said I WOULD like another MRI at some point, and he agreed, maybe in 3 or 6 months. I asked him if I could have LDN in 4.5 MG in 1.5 MG caps, and he gave me a new script, so I'll be testing me and 4.5 in a while..... speaking of which... did anyone/everyone who ordered from Skip's finally get their order filled???? I also did some sort of 'survey' that they said they will do again in 1 year. Questions mainly, but they also had me walk 25 feet "as fast as I can". Did it in 5 Seconds. I think that's good, the PA seemed impressed. Before I saw the neuro, he sent in his MS Nurse to chat with me, I guess to get some background to try to get me to do the survey afterwards. She NEVER heard of LDN, or Naltrexone and wanted to know why I wasn't already on one of the CRABs. I gave her a bit of background, showed her the notes in my charts from Jan and Apr, and when I left I gave her the website address. The nurse also made sure my survey said that I was taking LDN, Naltrexone 3.0, IN LIEU OF any of the CRABs. Going back to see the neuro in 3 months. Quote Link to comment Share on other sites More sharing options...
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