Re: 2 months on LDN update

[Guest guest]

Martha,

It sounds to me like you may have been at the beginning of an

exacerbation when you started on LDN.....or maybe you have a UTI,

which can cause some of your old symptoms to crop up. Dr. Bahari

also said that old symptoms can crop up at the beginning of ldn but

it is tempory. So, I would deffinately give LDN more time.

Do check with Dr. to make sure you don't have an infection going

on....dbl up on your cranberry capsules. I had a UTI in the middle

of my 6 mos. on LDN, and was ready to quit ldn, but, got rid of UTI

and everything improved.

SallyC.

> I have progressive MS and have been taking 3.0mg LDN for two

months.

> So far no symptomatic improvement, and in the last week my right

foot

> has become more numb, and numbness has started in the left foot. My

> right leg is also wobblier. I'm wondering how long I should give it

> before trying something new. A friend with rheumatoid arthritis is

> doing well after five years of low-dose antibiotics: minocylcline.

> What to do?--Martha

[Guest guest]

On Mon, 20 Oct 2003 00:43:53 -0000, you wrote:

>I have progressive MS and have been taking 3.0mg LDN for two months.

>So far no symptomatic improvement, and in the last week my right foot

>has become more numb, and numbness has started in the left foot. My

>right leg is also wobblier. I'm wondering how long I should give it

>before trying something new.

My MS has always been progressive. It has been progressing for many

years. Never had an exacerbation, it just gets worse. In my case LDN

worked within a few days. Every night I count the number of steps I

can do before grabbing hold of something. Before LDN I was averaging

80 steps. This went up to about 120 when I first took LDN. However,

after a few weeks it was not helping so I took a break. After the

break it started working again. I now take LDN for ten days and then

have a two day break. That way it keeps helping. I don't think this

intermittent protocol works with people who have RRMS.

Steve

[Guest guest]

> I have progressive MS and have been taking 3.0mg LDN for two months.

> So far no symptomatic improvement, and in the last week my right foot

> has become more numb, and numbness has started in the left foot. My

> right leg is also wobblier. I'm wondering how long I should give it

> before trying something new. A friend with rheumatoid arthritis is

> doing well after five years of low-dose antibiotics: minocylcline.

> What to do?--Martha

=============

Why we sometimes get a temporary increase in MS symptoms after starting LDN.

LDN boosts your endorphins. People with MS have low endorphin T-Cells. LDN

boosts these endorphins & until your body's T-Cells regulate, you may experience

some uncomfortable feelings of burning, numbness, weakness, pain, stiffness,

etc... Insomnia in the early days on LDN is common. Just ride out these

symptoms. It's an indication that LDN is regulating your T-Cells. Each person is

different so the increase in symptoms may last longer in some than others.

The numbness in my hands lasted 2 weeks.

Now starting my 4th month on LDN I switched my filler to Calcium Carbonate from

Lactose. Much of my stiffness has gone away since making this switch.

[Guest guest]

> Why we sometimes get a temporary increase in MS symptoms after

starting LDN.

>

> LDN boosts your endorphins. People with MS have low endorphin

T-Cells. LDN boosts these endorphins & until your body's T-Cells

regulate, you may experience some uncomfortable feelings of burning,

numbness, weakness, pain, stiffness, etc... Insomnia in the early

days on LDN is common. Just ride out these symptoms. It's an

indication that LDN is regulating your T-Cells. Each person is

different so the increase in symptoms may last longer in some than others.

>

> The numbness in my hands lasted 2 weeks.

> Now starting my 4th month on LDN I switched my filler to Calcium

Carbonate from Lactose. Much of my stiffness has gone away since

making this switch.

Thanks, Bren, but I had the numbness before I started the LDN. It's

increased in the last week. Filler is calcium carbonate, and I don't

have stiffness. Sleep issues are resolved. After two months, it seems

as if I'd be out of the " early days. " It feels as if the MS is

progressing.

Martha