Re: Dwan-UCSF clinical trial MS/LDN Results

[Guest guest]

>

> I just spoke to Ross, Project Coordinator for the above

trial.

>

> He said they found that LDN helps depression; but, LDN did not help

with MS symptoms.

>

> Unfortunate that UCSF's Clinical Trial MS/LDN results are so

standard medical practice

> results.

>

> But, that is no shock coming from a standard medical university.

>

> UCSF's standard results aren't stopping me from taking my LDN with

your advice and my own

> observations.

>

> My secondary progressive MS is going to stop progressing and life

will get better with LDN!

>

> Best,

>

> Dwan

>

Very sad news but not unexpected. They didnt conduct the trial in a

correct manner. People stayed on whatever meds they were already on

for a start and the length of the trial was very inadequate. When

and I went to a seminar at UCSF recently they were very very

reluctant to discuss the trial. more than once offered his

time if they wanted to talk to him about his experiences with his

three years on LDN but they were not interested even though his neuro

that prescribes the LDN works at UCSF!!

The fact that they think it`s for symptom relief just shows how

little they know. has showed no disease progression for the

three years he`s been on it and his neuro (despite prescribing it)

still says that s MS is probably benign.

Bev

[Guest guest]

The trial was too short.

Also, we have had a few people from the trial get on our chat site and have had good results with LDN. One got out of a wheel chair and into a walker. Then when the trial was over he went back to the wheel chair because they would not continue to give him LDN. He had to find another doctor so he could commence.

I am hoping that the trial in Italy will show us more what we know to be true regarding MS symptoms and lack of progression.

My best

Aletha

[low dose naltrexone] Dwan-UCSF clinical trial MS/LDN Results

I just spoke to Ross, Project Coordinator for the above trial.He said they found that LDN helps depression; but, LDN did not help with MS symptoms.Unfortunate that UCSF's Clinical Trial MS/LDN results are so standard medical practice results.But, that is no shock coming from a standard medical university.UCSF's standard results aren't stopping me from taking my LDN with your advice and my own observations.My secondary progressive MS is going to stop progressing and life will get better with LDN!Best,Dwan

[Guest guest]

Good to know this! Thanks

-- LarryGC/LarryLDN LDN Info rrms

[low dose naltrexone] Dwan-UCSF clinical trial MS/LDN Results

I just spoke to Ross, Project Coordinator for the above trial.He said they found that LDN helps depression; but, LDN did not help with MS symptoms.Unfortunate that UCSF's Clinical Trial MS/LDN results are so standard medical practice results.But, that is no shock coming from a standard medical university.UCSF's standard results aren't stopping me from taking my LDN with your advice and my own observations.My secondary progressive MS is going to stop progressing and life will get better with LDN!Best,Dwan

[Guest guest]

That's the spirit, Dwan Keep that POSITIVE attitude.JanetDwan Pete <dwanpete2@...> wrote: I just spoke to Ross, Project Coordinator for the above trial. He said they found that LDN helps depression; but, LDN did not help with MS symptoms. Unfortunate that UCSF's Clinical Trial MS/LDN results are so standard medical practice results. But, that is no shock coming from a standard medical university. UCSF's standard results

aren't stopping me from taking my LDN with your advice and my own observations. My secondary progressive MS is going to stop progressing and life will get better with LDN! Best, Dwan

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[Guest guest]

Aletha,

I'd like to know what they come up with in Italy.

The man who got off LDN and had to go back to his

wheelchair - I'll have to remember that.

Thank you,

Dwan

________________________________________________________________________________\

____

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[Guest guest]

well, I did participate in the trial myself and have

been on LDN since Apr 07 & am still on it.

During this period, and a few days after the study -

end of August 07 - was concluded I developed optic

neuritis.

From that time till today, while I still take LDN, I

haven't noticed any impovement or worsening.

Am about the same, but will continue taking LDN

because I feel the time is too short that am on LDN.

Theo

--- Aletha Wittmann <Aletha@...> wrote:

> The trial was too short.

>

> Also, we have had a few people from the trial get on

> our chat site and have had good results with LDN.

> One got out of a wheel chair and into a walker.

> Then when the trial was over he went back to the

> wheel chair because they would not continue to give

> him LDN. He had to find another doctor so he could

> commence.

>

> I am hoping that the trial in Italy will show us

> more what we know to be true regarding MS symptoms

> and lack of progression.

>

> My best

> Aletha

> [low dose naltrexone] Dwan-UCSF clinical

> trial MS/LDN Results

>

>

> I just spoke to Ross, Project Coordinator

> for the above trial.

>

> He said they found that LDN helps depression; but,

> LDN did not help with MS symptoms.

>

> Unfortunate that UCSF's Clinical Trial MS/LDN

> results are so standard medical practice

> results.

>

> But, that is no shock coming from a standard

> medical university.

>

> UCSF's standard results aren't stopping me from

> taking my LDN with your advice and my own

> observations.

>

> My secondary progressive MS is going to stop

> progressing and life will get better with LDN!

>

> Best,

>

> Dwan

>

>

>

>

________________________________________________________________________________\

____

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[Guest guest]

hi al,the italian trial is now stopped due to a case of renal insuficence occured to a pat.

it probably happened to a my neurologist pat.because he told me about it,but he was sure it was not due to ldn,and he wrote so in his report

but when the trial on ppms finished with god results on ms symptoms and the comission decided to go on with a new trial duble blind on rrms,they stopped it because of that renal ins.

till now i think it is steel stopped,the comission should have a meting on febbruary to get a decision on it.

considering now the effect that ldn has on ms symptoms,i'm another ms pat.that got big improvment in my lifestyle.

my best

emiliano

----- Messaggio originale -----Da: Aletha Wittmann <Aletha@...>A: low dose naltrexone Inviato: Sabato 19 gennaio 2008, 1:46:58Oggetto: Re: [low dose naltrexone] Dwan-UCSF clinical trial MS/LDN Results

The trial was too short.

Also, we have had a few people from the trial get on our chat site and have had good results with LDN. One got out of a wheel chair and into a walker. Then when the trial was over he went back to the wheel chair because they would not continue to give him LDN. He had to find another doctor so he could commence.

I am hoping that the trial in Italy will show us more what we know to be true regarding MS symptoms and lack of progression.

My best

Aletha

[low dose naltrexone] Dwan-UCSF clinical trial MS/LDN Results

I just spoke to Ross, Project Coordinator for the above trial.He said they found that LDN helps depression; but, LDN did not help with MS symptoms.Unfortunate that UCSF's Clinical Trial MS/LDN results are so standard medical practice results.But, that is no shock coming from a standard medical university.UCSF's standard results aren't stopping me from taking my LDN with your advice and my own observations.My secondary progressive MS is going to stop progressing and life will get better with LDN!Best,Dwan

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