Guest guest Posted October 20, 2003 Report Share Posted October 20, 2003 Hello, all- I having been taking LDN since May 2003 and have been slowly improving. After changing fillers from lactose to cc to liquid, I thought I finally found my answer. But now I am having extremely bad neuropathy and numbness has increased tremendously up my legs. But I am not sure if it's the LDN or nitrates. I seem to always have a bad relapse when I eat any kind of nitrate (especially hot dogs). I usually don't eat them anymore but I recently had one at a party because I was starving. Has anyone else out there had any similar experiences??? I just can't believe a single hot dog can do this to a person, but it's the only connection I can find for my relapses over the past 4 years of my diagnosis. Not that I am symptom free when I avoid them, but I definitely feel a little better, can't wear normal shoes yet though. Only slides, otherwise my feet feel like they are being crushed. Can't wear socks either. Also, anyone ever had IVIG treatments??? Did it help?? I heard it can help with neuropathy. Any advise would be greatly appreciated. Thanks, Quote Link to comment Share on other sites More sharing options...
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