Re: Help!!!!!!!!!!!!

[Guest guest]

Hi. Good luck with the surgery. I can't tell exactly what your surgeon

did, but I had a lateral release in 1995 that was very successful (the pain

had come from a tight IT band), but revealed cracking on the underside of

the kneecap which, now, 7 years later, is chondromalacia. Anyway, back to

the surgery. It had taken so long for me to find an ortho surgeon who would

take me seriously (I was 50 and female) that by the time I had surgery my

quads were weak and in the case of the vastus lateralis, atrophied, so it

took me a year to recover, get back to normal, etc. But then I was GREAT!

I could climb mountains again (my sport), hike, rock climb, even run (and

I'd never run before). But in 1998 I got a desk job and sitting all day

with my knees bent caused new ITBFS, and then a couple of years later they

changed my job duties so I had to crawl under desks to get serial numbers.

I told them I was too old for that & it hurt my knees but they wouldn't

change my duties They're now facing a Worker's Comp claim because I now

realize that all that kneeling and getting up and down, not knowing that I

was shredding my meniscii and my kneecaps, is what's given me chondromalacia

and wrecked my meniscii. So (the point here is), it might take a while for

you to recover just from the trauma of surgery, but give it a chance.

Whatever he cut in there might loosen the pull on your kneecap and relieve

your chondromalacia.

I just had 3 Synvisc injections. Will report on those in a different post.

Ann

help!!!!!!!!!!!!

Hi, its roxy again. Well I had my athroscopy. What a joke! The doc

says he removed some crap and made a few cuts here and there but I

can't have a recon or replacement yet! I am sooooooooo frustrated.

Apartley I'm on grade 1 and he doesnt understand why I'm in so much

pain. Has anyone else been through this b4? I really dont understand

what is happening to me. After 2 weeks when my knees have recovered

from the op I will have a better idea where things stand but until

then who knows. I would really love to hear from anyone who

understands or has any advice. PLEASE if anyone had anything or just

wants to chat, email me.

Until then, Stay happy.

Roxy!

[Guest guest]

Lucky you. they wont do a latteral release on me. They dont think it

would help. The op was ok but I'm still in a lot of pain

unfortunatly. The doc made a few cuts and took some rubbish out but

it hasnt made much difference. IF anything they are worse. Its been a

rough road. I'm glad to hear that you are mt climbing again. Go for

it. Live life while you can. Unfortunatley I have been getting pretty

down latley. It is so frustrating. I am getting help though so I'm

trying to stay positive.

Good Luck with the Mt climbing. Have fun!

> Hi. Good luck with the surgery. I can't tell exactly what your

surgeon

> did, but I had a lateral release in 1995 that was very successful

(the pain

> had come from a tight IT band), but revealed cracking on the

underside of

> the kneecap which, now, 7 years later, is chondromalacia. Anyway,

back to

> the surgery. It had taken so long for me to find an ortho surgeon

who would

> take me seriously (I was 50 and female) that by the time I had

surgery my

> quads were weak and in the case of the vastus lateralis, atrophied,

so it

> took me a year to recover, get back to normal, etc. But then I was

GREAT!

> I could climb mountains again (my sport), hike, rock climb, even

run (and

> I'd never run before). But in 1998 I got a desk job and sitting

all day

> with my knees bent caused new ITBFS, and then a couple of years

later they

> changed my job duties so I had to crawl under desks to get serial

numbers.

> I told them I was too old for that & it hurt my knees but they

wouldn't

> change my duties They're now facing a Worker's Comp claim because

I now

> realize that all that kneeling and getting up and down, not knowing

that I

> was shredding my meniscii and my kneecaps, is what's given me

chondromalacia

> and wrecked my meniscii. So (the point here is), it might take a

while for

> you to recover just from the trauma of surgery, but give it a

chance.

> Whatever he cut in there might loosen the pull on your kneecap and

relieve

> your chondromalacia.

>

> I just had 3 Synvisc injections. Will report on those in a

different post.

>

> Ann

>

>

>

> help!!!!!!!!!!!!

>

>

> Hi, its roxy again. Well I had my athroscopy. What a joke! The doc

> says he removed some crap and made a few cuts here and there but I

> can't have a recon or replacement yet! I am sooooooooo frustrated.

> Apartley I'm on grade 1 and he doesnt understand why I'm in so

much

> pain. Has anyone else been through this b4? I really dont

understand

> what is happening to me. After 2 weeks when my knees have

recovered

> from the op I will have a better idea where things stand but until

> then who knows. I would really love to hear from anyone who

> understands or has any advice. PLEASE if anyone had anything or

just

> wants to chat, email me.

> Until then, Stay happy.

> Roxy!

>

>

>

[Guest guest]

They could be right about not doing the lateral release. If the lateral

tension on the kneecap is released too much, or if you didn't have lateral

maltracking to start with, a lateral release could give you medial

subluxation, and that's much more serious than lateral (or so I read back in

1995).

No, I'm not mtn. climbing again. I WAS after the release, but now the

chondromalacia/meniscal damage has crippled me. I'm frustrated too.

Yesterday I tried 15 min. on a semirecumbent exercycle. Today I'm really

hurting in my knees (and hip, even though there was no pressure at all on my

hip).

Ann

help!!!!!!!!!!!!

>

>

> Hi, its roxy again. Well I had my athroscopy. What a joke! The doc

> says he removed some crap and made a few cuts here and there but I

> can't have a recon or replacement yet! I am sooooooooo frustrated.

> Apartley I'm on grade 1 and he doesnt understand why I'm in so

much

> pain. Has anyone else been through this b4? I really dont

understand

> what is happening to me. After 2 weeks when my knees have

recovered

> from the op I will have a better idea where things stand but until

> then who knows. I would really love to hear from anyone who

> understands or has any advice. PLEASE if anyone had anything or

just

> wants to chat, email me.

> Until then, Stay happy.

> Roxy!

>

>

>

[Guest guest]

> Hello, I'm new to the group but I've been taking LDN at 4.5 mg for

> close to a couple of years for my RRMS. I'm still not certain of its

> effectiveness however as I've had all types of problems in this time.

> Some of them were definitely due to other factors which I already

> know and have eliminated. Recently though, after feeling really

> really good for about 10 months or so, my condition has begun to

> deteriorate again. I've read on the LDN website that some of the

> compounding pharmacies have been found unreliable. I get my LDN

> capsules through my Aetna insurance from the Merck-Medco mail order

> pharmacy they use. Does anybody else get their LDN from Merck-Medco

> and have they found it to be reliable? What are they supposed to

> compound the Naltrexone with anyway? Anything at all?

>

> I appreciate any help as I'm in panic mode now.

>

> Thank you, Tony

============

Tony I sent my reply directly to you. I'm sorry about that. I forgot to change

the routing of my message at the top. I very seldom post here because of the

way this board is set up. MS'ers have a hard time remembering as it is.

[Guest guest]

Sounds as if an LDN holiday may be in order. This is a couple of

days of no LDN at all to alleviate tachyphylaxis, or as some call it

accommodation, which means your body is too used to taking it, and it

has lost some effectiveness. On an LDN holiday there is no problem

from withdrawal and it should not affect immune balance or bring

on any other symptoms, other than a somewhat sounder sleep with less

waking up from dreams if that is what usually happens.

The object is that when the LDN holiday ends it has regained its

effectiveness. I have found this to be the case with several drugs.

Never tried it with interferon but I probably should have.

-Sullivan

--- In low dose naltrexone , " Bren " <TwisterAlley2@w...>

wrote:

> --- In low dose naltrexone , " ant0069 " <Ant069@h...>

wrote:

> > Hello, I'm new to the group but I've been taking LDN at 4.5 mg

for

> > close to a couple of years for my RRMS. I'm still not certain of

its

> > effectiveness however as I've had all types of problems in this

time.

> > Some of them were definitely due to other factors which I already

> > know and have eliminated. Recently though, after feeling really

> > really good for about 10 months or so, my condition has begun to

> > deteriorate again. I've read on the LDN website that some of the

> > compounding pharmacies have been found unreliable. I get my LDN

> > capsules through my Aetna insurance from the Merck-Medco mail

order

> > pharmacy they use. Does anybody else get their LDN from Merck-

Medco

> > and have they found it to be reliable? What are they supposed to

> > compound the Naltrexone with anyway? Anything at all?

> >

> > I appreciate any help as I'm in panic mode now.

> >

> > Thank you, Tony

>

> ============

>

> Tony I sent my reply directly to you. I'm sorry about that. I

forgot to change the routing of my message at the top. I very seldom

post here because of the way this board is set up. MS'ers have a

hard time remembering as it is.