Re: LDN and relapse

[Guest guest]

Yes Audrey,

There have been some people that have experienced the similar relapses. I will send you some posts that we have saved regarding this and things that you can look to see if they may have triggered the relapse. Stress seems to be the number one thing to cause relapse if already doing well on LDN while getting one.

Aletha

[low dose naltrexone] LDN and relapse

I had a relapse eight months after starting LDN. Theywere all new symptoms and the relapse was no shorterand no less severe. Has anyone else experienced arelapse whilst on LDN?Mumpuss__________________________________________________________Sent from - a smarter inbox http://uk.mail.

[Guest guest]

Hi Mumpuss,Just because a person takes LDN does not guarantee that he or she will never again experience a relapse. The fact is, there are a number of things that can adversely affect an LDNer to the point of largely overruling the beneficial effect of that drug and whatever else they happen to be doing to treat their condition, including diet and food supplements. You can find a more detailed discussion of exacerbations (and how to cope with them) near the bottom of this website:http://tinyurl.com/grpm9All the best,Dudley Delany

dudley_delany

[Guest guest]

Hi Audrey:

I seem to be in one right now, but for me it is some

of the same symproms as before. ie: numbness in torso

and tightness in my leg, as well as urinary urgency. I

have been on LDN for now 7 weeks, and was doing great,

when this came on. It has been a week and a half so

far, but I do strongly believe that stress and diet

play a major role in how our bodies deals with these

issues, and I have been neglecting my diet and have

been also dealing with some stress. I sincerely hope

that I get through all of this soon. I strongly

believe in the LDN and I do believe it is doing it's

job at halting the progression of the MS. Even with

this minor setback. I Hope my response helped. Take

care.

--- Audrey Henry <mumpuss@...> wrote:

> I had a relapse eight months after starting LDN.

> They

> were all new symptoms and the relapse was no shorter

> and no less severe. Has anyone else experienced a

> relapse whilst on LDN?

> Mumpuss

>

>

>

>

__________________________________________________________

> Sent from - a smarter inbox

> http://uk.mail.

>

>

________________________________________________________________________________\

____

Never miss a thing. Make your home page.

http://www./r/hs

[Guest guest]

I agree with you Suzzie. I am forwarding some e-mails to you regarding relapses. Also the chats that I have saved which talk about increasing your dosage temporarily for exasperations. I hope they will be helpful

Aletha

Re: [low dose naltrexone] LDN and relapse

Hi Audrey:I seem to be in one right now, but for me it is someof the same symproms as before. ie: numbness in torsoand tightness in my leg, as well as urinary urgency. Ihave been on LDN for now 7 weeks, and was doing great,when this came on. It has been a week and a half sofar, but I do strongly believe that stress and dietplay a major role in how our bodies deals with theseissues, and I have been neglecting my diet and havebeen also dealing with some stress. I sincerely hopethat I get through all of this soon. I stronglybelieve in the LDN and I do believe it is doing it'sjob at halting the progression of the MS. Even withthis minor setback. I Hope my response helped. Takecare.--- Audrey Henry <mumpuss (DOT) co.uk> wrote:> I had a relapse eight months after starting LDN.> They> were all new symptoms and the relapse was no shorter> and no less severe. Has anyone else experienced a> relapse whilst on LDN?> Mumpuss> > > >__________________________________________________________> Sent from - a smarter inbox> http://uk.mail.> > __________________________________________________________Never miss a thing. Make your home page. http://www./r/hs

[Guest guest]

SUZZIE B - i agree, that even while using LDN, we must be ever mindful of eliminating certain food stuffs from our diet - gluten, dairy, grains, those that irritate the intestine, & those that we are allergic to, etc. it may be a little harder to alleviate the stress, according to our stations/jobs in our individual lives. but, wherever we can - WE NEED TO CHANGE OUR LIFESTYLES!! my diet is the main culprit in my flare-up of crohn's, after using the LDN TRANSDERMAL CREAM!! and....i have found that sometimes too much of a good thing can be an irritant!!

marshiris@...

crohn's disease - 17 years

LDN - JUNE, 2007Start the year off right. Easy ways to stay in shape in the new year.

[Guest guest]

Hi Aletha:

Thank-you for the posts that you have sent me in

regards to relapses. I noticed in one of the post that

someone wrote that they had a UTI and that is what

possibly caused the relapse. I am in the same

situationm and now I am wondering should I go off the

LDN until I clear up the infection, or should I remain

on the LDN and possibly increase the dosage in the

hope that the things will settle down. Any insight on

this would be wonderful. Is it safe to increase the

dosage if even for a short period of time? Maybe I

should contact skip and see what he recommends. Thanks

again for all the posts you sent me.

--- Aletha Wittmann <Aletha@...> wrote:

> I agree with you Suzzie. I am forwarding some

> e-mails to you regarding relapses. Also the chats

> that I have saved which talk about increasing your

> dosage temporarily for exasperations. I hope they

> will be helpful

> Aletha

> Re: [low dose naltrexone] LDN and relapse

>

>

> Hi Audrey:

>

> I seem to be in one right now, but for me it is

> some

> of the same symproms as before. ie: numbness in

> torso

> and tightness in my leg, as well as urinary

> urgency. I

> have been on LDN for now 7 weeks, and was doing

> great,

> when this came on. It has been a week and a half

> so

> far, but I do strongly believe that stress and

> diet

> play a major role in how our bodies deals with

> these

> issues, and I have been neglecting my diet and

> have

> been also dealing with some stress. I sincerely

> hope

> that I get through all of this soon. I strongly

> believe in the LDN and I do believe it is doing

> it's

> job at halting the progression of the MS. Even

> with

> this minor setback. I Hope my response helped.

> Take

> care.

>

>

>

> --- Audrey Henry <mumpuss@...> wrote:

>

> > I had a relapse eight months after starting LDN.

> > They

> > were all new symptoms and the relapse was no

> shorter

> > and no less severe. Has anyone else experienced

> a

> > relapse whilst on LDN?

> > Mumpuss

> >

> >

> >

> >

>

>

__________________________________________________________

> > Sent from - a smarter inbox

> > http://uk.mail.

> >

> >

>

>

>

__________________________________________________________

> Never miss a thing. Make your home page.

> http://www./r/hs

>

>

>

________________________________________________________________________________\

____

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[Guest guest]

There's no reason to stop taking LDN while having a UTI. If you up the

dosage, do not go higher than 4.5mgs. This is the optimal adult dosage

Art

--

>

> Hi Aletha:

>

> Thank-you for the posts that you have sent me in

> regards to relapses. I noticed in one of the post that

> someone wrote that they had a UTI and that is what

> possibly caused the relapse. I am in the same

> situationm and now I am wondering should I go off the

> LDN until I clear up the infection, or should I remain

> on the LDN and possibly increase the dosage in the

> hope that the things will settle down. Any insight on

> this would be wonderful. Is it safe to increase the

> dosage if even for a short period of time? Maybe I

> should contact skip and see what he recommends. Thanks

> again for all the posts you sent me.

>

>

[Guest guest]

Hi Art:

Thanks for responding I read in an earlier post that

some with a flare increased their dose to 10mg is that

recommended? I will continue taking the LDN at 4.5.

Thanks for your help.

--- Art Hansen <rtee54@...> wrote:

> There's no reason to stop taking LDN while having a

> UTI. If you up the

> dosage, do not go higher than 4.5mgs. This is the

> optimal adult dosage

>

> Art

> --

>

>

> >

> > Hi Aletha:

> >

> > Thank-you for the posts that you have sent me in

> > regards to relapses. I noticed in one of the post

> that

> > someone wrote that they had a UTI and that is what

> > possibly caused the relapse. I am in the same

> > situationm and now I am wondering should I go off

> the

> > LDN until I clear up the infection, or should I

> remain

> > on the LDN and possibly increase the dosage in the

> > hope that the things will settle down. Any insight

> on

> > this would be wonderful. Is it safe to increase

> the

> > dosage if even for a short period of time? Maybe I

> > should contact skip and see what he recommends.

> Thanks

> > again for all the posts you sent me.

> >

> >

>

>

>

________________________________________________________________________________\

____

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[Guest guest]

It's something I've occasionally considered, especially when going

through an MS exacerbation. There was a member here a few years ago who

said she increased her dose to 25mgs in the evening then again in the

morning and continued with it for a week. I forget the exact regime she

followed, but after some thought amd asking around for advice decided

against it. Read this warning...

People with Multiple Sclerosis on the big LDN forum are

experimenting with 6mg to get symptom improvement....SEE BELOW!!

Dr. Bihari only put a very minute amount of people with MS on 6mg and

of those he put on 6mg, his intentions were NOT to leave them at that

dose but to eventually reduce the dose back down. When he had his fall

and went into rehab, he had forgotten he had left Kiki on 6mg and her

MS started to worsen from being on 6mg too long, it was blocking

endorphins too long.

Taking 6mg for symptom improvement may be detrimental to your health

further down the road. Take 6mg at your own risk but when something bad

happens 2 to 3 years from now do not blame LDN.

Those of you who are using 6mg, have you done anything to compliment

the LDN like improve your diet, stop smoking, eliminate gluten, dairy

and sugar from your diet, done liver, parasite and candida yeast

detoxes, use supplements that help reduce viral load and help fight

candida yeast, get pool therapy, massage, acupuncture, reflexology, etc?

LDN is a bandaid, it can only do so much, you have to be willing to

step up to the plate and do your part to compliment LDN.

Remember, LDN's main purpose is to halt MS disease progression, NOT

improve symptoms, if you get symptom improvement on LDN then you were

one of the lucky two-thirds that might get symptom improvement.

Taking too much LDN can cause disease progression/worsening.

http://preview.tinyurl.com/2nkl7w

--

Art

--

>

> Hi Art:

>

> Thanks for responding I read in an earlier post that

> some with a flare increased their dose to 10mg is that

> recommended? I will continue taking the LDN at 4.5.

> Thanks for your help.

>

>

[Guest guest]

Except in the rare cases where someone with MS has a relapse of symptoms. We have a number of people that have tried temporarily upping their dosages above 4.5 (typically 6mg, 10mg or even 25mg) and so far this seems to be helpful to get the relapse under control. Or I should say that no one has written in that says it has not worked or had a negative effect.

Aletha

[low dose naltrexone] Re: LDN and relapse

There's no reason to stop taking LDN while having a UTI. If you up the dosage, do not go higher than 4.5mgs. This is the optimal adult dosageArt-->> Hi Aletha:> > Thank-you for the posts that you have sent me in> regards to relapses. I noticed in one of the post that> someone wrote that they had a UTI and that is what> possibly caused the relapse. I am in the same> situationm and now I am wondering should I go off the> LDN until I clear up the infection, or should I remain> on the LDN and possibly increase the dosage in the> hope that the things will settle down. Any insight on> this would be wonderful. Is it safe to increase the> dosage if even for a short period of time? Maybe I> should contact skip and see what he recommends. Thanks> again for all the posts you sent me. > >

[Guest guest]

Kathy Penrose is the member who used 25mgs to stop/reverse an MS

exacerbation. If you do a search on her name you'll find her posts. I

am not endorsing what she did/does, on the contrary, only providing

information to satisfy the curiosity of inquisitive LDN'ers.

Art

Diagnosed with MS April 1988

Using LDN since March 2005

--

>

> It's something I've occasionally considered, especially when going

> through an MS exacerbation. There was a member here a few years ago

who

> said she increased her dose to 25mgs in the evening then again in

the

> morning and continued with it for a week. I forget the exact regime

she

> followed, but after some thought amd asking around for advice

decided

> against it. Read this warning...

>

>

> People with Multiple Sclerosis on the big LDN forum are

> experimenting with 6mg to get symptom improvement....SEE BELOW!!

>

> Dr. Bihari only put a very minute amount of people with MS on 6mg

and

> of those he put on 6mg, his intentions were NOT to leave them at

that

> dose but to eventually reduce the dose back down. When he had his

fall

> and went into rehab, he had forgotten he had left Kiki on 6mg and

her

> MS started to worsen from being on 6mg too long, it was blocking

> endorphins too long.

>

> Taking 6mg for symptom improvement may be detrimental to your

health

> further down the road. Take 6mg at your own risk but when something

bad

> happens 2 to 3 years from now do not blame LDN.

>

> Those of you who are using 6mg, have you done anything to

compliment

> the LDN like improve your diet, stop smoking, eliminate gluten,

dairy

> and sugar from your diet, done liver, parasite and candida yeast

> detoxes, use supplements that help reduce viral load and help fight

> candida yeast, get pool therapy, massage, acupuncture, reflexology,

etc?

>

> LDN is a bandaid, it can only do so much, you have to be willing to

> step up to the plate and do your part to compliment LDN.

>

> Remember, LDN's main purpose is to halt MS disease progression, NOT

> improve symptoms, if you get symptom improvement on LDN then you

were

> one of the lucky two-thirds that might get symptom improvement.

>

> Taking too much LDN can cause disease progression/worsening.

>

> http://preview.tinyurl.com/2nkl7w

> --

>

> Art

> --

[Guest guest]

,

Dr. Bihari found that the lowest therapeutic dose of LDN was 1.75mg, you are not

on a high enough dose. With what you are dealing with go to 3mg or 4.5mg.

There is no rule that says you cannot start at 4.5mg, I did and so did almost

all of Dr. Bihari's patients as he generally started all his patients on 4.5mg

LDN.

LDN user 7yrs for progressive MS, organizer & host of 2007 LDN Conf.

Vanderbilt Univ.

================================

==================================

>

> I have been back on LDN for 3 weeks now for MS. This time its liquid that I

mix myself, the first time it was pills that I got from Skips pharmacy. The

first time I started with the recommended dose and slowly rose to 4.5 in 3

months. I completely lost fatigue and heat sensitivity, but still had transient

numbness and painless muscle spasms occasionally. I had to be off of it for

approx. 2 years because I had to change neuros and the new one did not believe

in prescribing it. I had a car accident last year and had to have surgery

because of it, and then could not walk for 6 weeks due to surgery. Im guessing

that the stress the accident, surgery and not being able to work for 7 weeks, or

walk for 6 weeks, caused a relapse because the debilitating fatigue, cog fog,

numbness, L'Hermittes's sign, and muscles spasms came back full force and I was

like this for nearly a year until I located a way to get LDN and make it myself

in the liquid form. I got it and mixed in the recommended way and started on

1.5ml-mg. The first week I didnt notice a difference, the second week I felt

better than ever, and now I'm ending the third week and I feel worse than EVER.

I feel like I'm in a full blown relapse. The fatigue is so bad that it is

nauseating, the heat sensitivity is so bad that when I take a shower I sleep for

hours on end, my right hand is numb daily, and for some reason I have broke out

on the worst cold sores I have ever seen in my life. Both of my lips look like

one big cold sore.

>

> I was wondering if anyone has dealt with this before? I have gotten cold sores

since I was about 9 when I caught mono from my cousin, usually about two a year,

never more than 5 a year. But now its like they are covering my entire lips. It

is so painful I cant sleep, and I can forget eating! I have been using Abreva

for about 5 days now and they dont seem to be getting any better. I look horrid

and refuse to leave the house.

>

> Any help would be greatly appreciated!

> Thanks, F.

>