Guest guest Posted November 11, 2003 Report Share Posted November 11, 2003 Hello, Everyone, I am new to this group, but have been reading your posts with great interest. Is anyone on this list taking, or know of anyone who is taking, LDN for brachial neuritis/plexitus (or Parsonage- Syndrome)? My doctor would like me to try LDN, as my condition has some of the same symptoms as MS (such as the myelin being stripped from the nerves), but would like to know if I would be the guinea pig or if anyone else with this condition has already tried LDN? Any info or leads would be appreciated. Thanks very much for your help. Best regards, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2003 Report Share Posted November 11, 2003 > Hello, Everyone, > > I am new to this group, but have been reading your posts with great > interest. Is anyone on this list taking, or know of anyone who is > taking, LDN for brachial neuritis/plexitus (or Parsonage- > Syndrome)? My doctor would like me to try LDN, as my condition has some > of the same symptoms as MS (such as the myelin being stripped from the > nerves), but would like to know if I would be the guinea pig or if > anyone else with this condition has already tried LDN? > > Any info or leads would be appreciated. > > Thanks very much for your help. > > Best regards, > =================== LDN has such minimal side effects that I'd give it a try. In the first few months on LDN one might experience an increase in symptoms or numbness, stiffness, fatigue & tingling...that doesn't always happen. I have MS and I experienced numbness for a couple of weeks in my hands and had stiffness but all of that has subsided and I'm doing fantastic!! I've had approx. a 70% reduction in my pain, a 40% to 50% reduction in spasticity and a 40% reduction in fatigue. Bladder is 100% controlled on LDN. It took LDN 2 months to stop my severe insomnia and I'm no longer short of breath. I was on a mobility scooter for 14 years. I went shopping on foot the day after I took my first dose of LDN at 4.5mg. I have been scooterless for 4 1/2 months. I can ride and outdoor bicycle for the first time in 14 years. I can use the weight room at the YMCA. I can now climb 19 stairsteps up to the weight room. Copy this and take it to your doctor. BTW, who is this wonderful doctor wanting to prescribe LDN? Hug his or her neck!!!!! Not everyone with MS will see symptom improvement. I just happened to be one of the lucky 2/3 of people with MS who will see symptom improvement on LDN. I will say that the 2 troublsome fillers for the capsules are Lactose and cornstarch. People have complained of bad stiffness lasting a long time with Lactose. Diarrhea is sometimes a problem with these 2 fillers. Try to get Avicel(Cellulose) as your filler. I've heard that Skip's pharmacy is a great place to get a LDN script filled and he's the cheapest also. Skip has been filling LDN scripts for 4 years and he uses Avicel for the filler. Skip's pharmacy is listed on the LDN website. http://www.low dose naltrexone.org Bren~see notice below. Notice: REPLY TO THE GROUP. MY EMAIL ADDRESS IS TURNED OFF AND ANY MAIL SENT TO IT WILL BOUNCE. Quote Link to comment Share on other sites More sharing options...
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