New to Group, daughter diagnosed with a brainstem tumor

[Guest guest]

Hello,

I am new to this group, and would love to hear of anyone using LDN to

treat a brain tumor, and even more specifically, a brain stem tumor.

My 13 year old daughter was diagnosed 7 months ago with a diffuse

pontine glioma. She is doing very well. She did have radiation and

2 rounds of chemo. We discovered a non-toxic formula called

Protocel, at which point we discontinued the chemo. She also works

with a wonderful Qigong Master. I am thinking about adding LDN to

her treatment and would love any info.

Thanks for your help.

[Guest guest]

Good morning, :

Sorry to hear that your daughter has the tumor. As you have probably read

at www.LDNinfo.org the tumor is not one of the listed known diseases that

LDN is believed to treat. However, I wouldn't think that it would be

detrimental to take. I do recommend getting a telephone appointment with

Dr. Bihari to discuss your daughter's problem. I've found him to be very

knowledgeable. The first conference appointment will cost you $500 and he

does not file any insurance claims but takes credit cards. That will be

your responsibility to file a claim with your insurance.

Noland

----- Original Message -----

From: <Campg5@...>

<low dose naltrexone >

Sent: Tuesday, December 16, 2003 5:59 PM

Subject: [low dose naltrexone] New to Group, daughter diagnosed with a

brainstem tumor

> Hello,

>

> I am new to this group, and would love to hear of anyone using LDN to

> treat a brain tumor, and even more specifically, a brain stem tumor.

> My 13 year old daughter was diagnosed 7 months ago with a diffuse

> pontine glioma. She is doing very well. She did have radiation and

> 2 rounds of chemo. We discovered a non-toxic formula called

> Protocel, at which point we discontinued the chemo. She also works

> with a wonderful Qigong Master. I am thinking about adding LDN to

> her treatment and would love any info.

>

> Thanks for your help.

>

>

>

>

[Guest guest]

:

Sorry I can't help you with the brain tumor. I don't know where you live,

but have you considered talking to Dr. Bihari about it? I just went to see

him and started on LDN - I have lyme and other autoimmune problems. It's

just been a week and I am noticing some changes.

Since he treats so many people with LDN I would ask him directly what his

experience has been. His number is on the website.