Guest guest Posted December 28, 2003 Report Share Posted December 28, 2003 Welcome Chey, Facts you stated were correct except for the sleep aid. Dr. Bihari believes that the ldn should in most cases help you sleep better. You may experience insomnia for 1day to a few weeks but sleeping will eventually happen. If insomnia lasts for a few weeks, then in between a sleep aid may help here and there. If you rely on the sleep aid every night , you will not know if you have passed the insomnia period. I had insomnia for 21/2 weeks and was a zombie so I took a sleep aid 3x for sanity. Now I sleep like a baby. Good luck!( Most do not have insomnia this long.) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2003 Report Share Posted December 28, 2003 I have to take LDN on my own, so I read a lot in your posts. Let me see; -take LDN between 9-9.30 p.m. -start with 3 mg -don't expect too much -maybe take some extra sleep medication if nessecairy? Any tip is welcome, want to do it right. Thanks, Chey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2003 Report Share Posted December 28, 2003 Chey, when you say 'on your own', what do you mean? NO doctors endorsement?, measuring your own?, etc? What you wrote looks good, but whats wrong with expecting good results?. I think what people mean by not expecting too much, is that you may not see visible symptomatic relief right away, but after all, the idea behind LDN is to control relapses and exacerbations. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2003 Report Share Posted December 29, 2003 Yes , I mean, no doctor, no back-up, no pharmacy help, no nothing. Dutch physicians are against taking LDN because it not proven to them it works. But I've been on my own so often. For years I try to tell ppl that food(allergies) and MS are related. They all told me I'm crazy. Rec ently I read a piece on the Dutch MS-forum about studies regarding MS and food(allergies!! Why did nobody believe me earlier? Same goed for MS and virusses/bacteria (specially Chlamydia pneumonnaie). I know all these things for years, but called crazy. Crazy enough to still walk after 14 years? I was diagnosed agressive CPMS! Thank you Burnham for the helpfull links. I'm not on LDN yet because snailmail takes days from Spain to Holland, but it helps me so much to be in this group. You are all fighters like me and not winers like a lot of MSsers are (also read the post from Cabbie, no subject). Thnx guys!! Chey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2003 Report Share Posted December 29, 2003 Hi Chey, Pretty much the same situation for me, not for your reasons though, but more because I lost my med. ins. soon after being diagnosed, so I researched it, found it, and was convinced to start usng it. I measure it out from 50mg Revia tabs. Good luck to you. :0) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2003 Report Share Posted December 29, 2003 CHEY, Sorry you think allot of MSers are whiners. I don’t see it that way. MS is different for all of us. I would never second guess how anyone is doing with their disease or what their pain is like. Allot of people with MS don’t have any pain or symptoms for that matter. Try not to judge everyone. son Owner/ operator Friends with MS.com or join our email newsgroup: FriendsWithMS/ -----Original Message----- From: cheystay [mailto:c_chey@...] Sent: Monday, December 29, 2003 3:43 AM To: low dose naltrexone Subject: [low dose naltrexone] Re: Best way to take LDN Yes , I mean, no doctor, no back-up, no pharmacy help, no nothing. Dutch physicians are against taking LDN because it not proven to them it works. But I've been on my own so often. For years I try to tell ppl that food(allergies) and MS are related. They all told me I'm crazy. Rec ently I read a piece on the Dutch MS-forum about studies regarding MS and food(allergies!! Why did nobody believe me earlier? Same goed for MS and virusses/bacteria (specially Chlamydia pneumonnaie). I know all these things for years, but called crazy. Crazy enough to still walk after 14 years? I was diagnosed agressive CPMS! Thank you Burnham for the helpfull links. I'm not on LDN yet because snailmail takes days from Spain to Holland, but it helps me so much to be in this group. You are all fighters like me and not winers like a lot of MSsers are (also read the post from Cabbie, no subject). Thnx guys!! Chey Groups Links · To visit your group on the web, go to: low dose naltrexone/ · To unsubscribe from this group, send an email to: low dose naltrexone-unsubscribe · Quote Link to comment Share on other sites More sharing options...
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