Guest guest Posted December 8, 2003 Report Share Posted December 8, 2003 Hi Al - I used Copaxone for about 7 months. I highly recommend if you go that way to make sure you use the Auto Eject. I also read all the literature and watched the videos. I will just give you my experience, but like everything, everyone is different. I wasn't to thrilled taking a shot everyday, but somewhat got better with that. I did get welts, sometimes large most every time. I found that it really did nothing for me at all. It was easy that it was premeasured and ready to go. Somewhat hard to travel with. For me, it just wasn't worth it. Didn't feel any better at all. It has been a big stress relief not to take the shots any longer............. _________________________________________________________________ Winterize your home with tips from MSN House & Home. http://special.msn.com/home/warmhome.armx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2003 Report Share Posted December 8, 2003 DITTO! CATHY Thanks, Sally , " lorenzo " <clorenzo02@h...> wrote: > Hi Al - I used Copaxone for about 7 months. For me, it just wasn't worth it. Didn't feel any better at all. It > has been a big stress relief not to take the shots any > longer............. > > _________________________________________________________________ > Winterize your home with tips from MSN House & Home. > http://special.msn.com/home/warmhome.armx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2003 Report Share Posted December 8, 2003 I was on Copaxone myself for about six months before LDN. It didn't do anything for me either. About the time I switched to LDN secondary progression was setting in and I was feeling worse every day! Thank god for LDN, it has given me my life back! Original Message: ----------------- From: lorenzo clorenzo02@... Date: Sun, 07 Dec 2003 20:43:55 -0800 low dose naltrexone Subject: [low dose naltrexone] copaxone <html><body> <tt> Hi Al - I used Copaxone for about 7 months. I highly recommend if you go <BR> that way to make sure you use the Auto Eject. I also read all the <BR> literature and watched the videos. I will just give you my experience, but <BR> like everything, everyone is different. I wasn't to thrilled taking a shot <BR> everyday, but somewhat got better with that. I did get welts, sometimes <BR> large most every time. I found that it really did nothing for me at all. It <BR> was easy that it was premeasured and ready to go. Somewhat hard to travel <BR> with. For me, it just wasn't worth it. Didn't feel any better at all. It <BR> has been a big stress relief not to take the shots any <BR> longer.............<BR> <BR> _________________________________________________________________<BR> Winterize your home with tips from MSN House & Home. <BR> <a href= " http://special.msn.com/home/warmhome.armx " >http://special.msn.com/home /warmhome.armx</a><BR> <BR> </tt> <br> <!-- |**|begin egp html banner|**| --> <table border=0 cellspacing=0 cellpadding=2> <tr bgcolor=#FFFFCC> <td align=center><font size= " -1 " color=#003399><b> Sponsor</b></font></td> </tr> <tr bgcolor=#FFFFFF> <td align=center width=470><table border=0 cellpadding=0 cellspacing=0> <tr> <td align=center><font face=arial size=-2>ADVERTISEMENT</font><br><a href= " http://rd./SIG=12c3idu7s/M=267637.4116730.5333196.1261774/D=e groupweb/S=1705118787:HM/EXP=1070945040/A=1853619/R=0/*http://www.netflix.co m/Default?mqso=60178356 & partid=4116730 " alt= " " ><img src= " http://us.a1.yimg.com/us.yimg.com/a/ne/netflix/yhoo1103_b_300250A.gif " alt= " click here " width= " 300 " height= " 250 " border= " 0 " ></a></td></tr></table> </td> </tr> <tr><td><img alt= " " width=1 height=1 src= " http://us.adserver./l?M=267637.4116730.5333196.1261774/D=egrou pmail/S=:HM/A=1853619/rand=585903361 " ></td></tr> </table> <!-- |**|end egp html banner|**| --> <br> <tt> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2004 Report Share Posted March 30, 2004 Copaxone is easy. Sometimes it leaves little lumps, and they are itchy at first, but the needles are tiny and the shot is easy to take. Lynda ----- Original Message ----- From: " yashagrawal " <yashagrawal@...> <low dose naltrexone > Sent: Tuesday, March 30, 2004 2:09 PM Subject: [low dose naltrexone] Copaxone > I am moving towards LDN with copaxone. Are the injections very > painful, is the daily dose a problem ?. > > Thanks for all your insights. > Yash > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 30, 2004 Report Share Posted March 30, 2004 I was on copaxone for four months. Then I stopped the copaxone cause of the side effects that I was having. Then I started the LDN and have been very happy with LDN. I had an MRI after being on LDN for a while and there was no progression of my MS. Maybe you should start the copaxone first to see if you have side effects. because if you start both of them at the same time then you won't know which one is giving you side effects. LDN did nothing but good for me but copaxone gave me shooting pains in my head and ears. Then it started to zap my upper body strength. That is when I got off of it. I see no need to be on anything but LDN. I had no problem with the injections, it just became part of my regular routine. Hope this helps Marie ----- Original Message ----- From: " yashagrawal " <yashagrawal@...> <low dose naltrexone > Sent: Tuesday, March 30, 2004 2:09 PM Subject: [low dose naltrexone] Copaxone > I am moving towards LDN with copaxone. Are the injections very > painful, is the daily dose a problem ?. > > Thanks for all your insights. > Yash > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2004 Report Share Posted March 31, 2004 And when you have lumps or reactions you’re told to keep changing areas and stay away from the reacting ones ;o) I wish you the best with the Copaxone!! From: Lynda Phelps [mailto:padma108@...] Sent: Tuesday, March 30, 2004 2:07 PM low dose naltrexone Subject: Re: [low dose naltrexone] Copaxone Copaxone is easy. Sometimes it leaves little lumps, and they are itchy at first, but the needles are tiny and the shot is easy to take. Lynda ----- Original Message ----- From: " yashagrawal " <yashagrawal@...> <low dose naltrexone > Sent: Tuesday, March 30, 2004 2:09 PM Subject: [low dose naltrexone] Copaxone > I am moving towards LDN with copaxone. Are the injections very > painful, is the daily dose a problem ?. > > Thanks for all your insights. > Yash > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2004 Report Share Posted March 31, 2004 Yash, I never want to be someone who is filled with negative energy. Having been there and injecting Copaxone for years, all I can say is it’s not fun! Why do you feel you need both Copaxone & LDN? Best of luck. (MS) -----Original Message----- From: yashagrawal [mailto:yashagrawal@...] Sent: Tuesday, March 30, 2004 2:10 PM To: low dose naltrexone Subject: [low dose naltrexone] Copaxone I am moving towards LDN with copaxone. Are the injections very painful, is the daily dose a problem ?. Thanks for all your insights. Yash Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2004 Report Share Posted March 31, 2004 I am going to stick with LDN for the long term, regardless of what other drugs come out. I'm very stiff legged from it, but I'm also certain LDN is not harming my immune system or damaging me in other ways. All of the mainstream treatments scare me. I am concerned about the permanent damage they may cause, the side effects sound terrible, and the expense is outrageous. And I know from past experience with everything from an aspirin to steroids that I am more sensitive to medications than my doctors ever plan for. Half a children's benadryl knocks me out. So I'm sure the injectables, IV solumedrol (one of the biggest mistakes in treatment I've ever allowed), and chemos are just not for me. But, all that said, everyone's body and needs are different. We all need to work towards what seems to be the treatment that suits us best. For me that means minimal meds, good supplements and good food. Other people may do better with more aggressive medications. I know they aren't for me, but since I'm not walking around in any body but my own I can't try to influence anyone away from them. I hope that LDN proves to be effective enough that people will be able to avoid the CRABs; the numbers of people who have stated here that they gave up the CRABs after starting LDN are a meaningful testament to the difficulties those meds caused them. I wonder how many people started the injectables out of fear; heaven knows MS is a frightening diagnosis. A theme running through most of our posts is the feeling that so many neuros aren't really interested in helping. I've seen four different neuros over the last 25 years or so and only felt good about one of them. What's the deal with that? Do they have a couple semesters of special classes to get that way? Why have so many of us had to argue with them about our decision not to take CRABs? OK, time to get off my soapbox, I'm already going to be late for work. (MS) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2004 Report Share Posted March 31, 2004 Wow, re-reading my post it sure sounds like I AM trying to influence folks away from the CRABs. Sorry, that wasn't my intent. We all need to do what seems right for us. ----- Original Message ----- From: " " <jatrac1@...> <low dose naltrexone > Sent: Wednesday, March 31, 2004 7:49 AM Subject: Re: [low dose naltrexone] Re: Copaxone > I am going to stick with LDN for the long term, regardless of what other > drugs come out. I'm very stiff legged from it, but I'm also certain LDN is > not harming my immune system or damaging me in other ways. All of the > mainstream treatments scare me. I am concerned about the permanent damage > they may cause, the side effects sound terrible, and the expense is > outrageous. And I know from past experience with everything from an aspirin > to steroids that I am more sensitive to medications than my doctors ever > plan for. Half a children's benadryl knocks me out. So I'm sure the > injectables, IV solumedrol (one of the biggest mistakes in treatment I've > ever allowed), and chemos are just not for me. > > But, all that said, everyone's body and needs are different. We all need to > work towards what seems to be the treatment that suits us best. For me that > means minimal meds, good supplements and good food. Other people may do > better with more aggressive medications. I know they aren't for me, but > since I'm not walking around in any body but my own I can't try to influence > anyone away from them. I hope that LDN proves to be effective enough that > people will be able to avoid the CRABs; the numbers of people who have > stated here that they gave up the CRABs after starting LDN are a meaningful > testament to the difficulties those meds caused them. I wonder how many > people started the injectables out of fear; heaven knows MS is a frightening > diagnosis. > > A theme running through most of our posts is the feeling that so many neuros > aren't really interested in helping. I've seen four different neuros over > the last 25 years or so and only felt good about one of them. What's the > deal with that? Do they have a couple semesters of special classes to get > that way? Why have so many of us had to argue with them about our decision > not to take CRABs? > > OK, time to get off my soapbox, I'm already going to be late for work. > > (MS) > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2004 Report Share Posted March 31, 2004 Hey yash: I've been thinking of moving to copaxone too... The shots are intramuscular which means deeper than subcutaneous... The paper that interests me was given at a conference a month or 2 back, where the guy found that Rats on copaxone did better with one shot a month then with lots of shots. I mean it's a decoy molecule that your body is supposed to attack rather than it's immune system, so you don't need it that often. Of course the fact that MS doesn't seem to be auto-immune makes me wonder about the crabs, and science in general. > I am moving towards LDN with copaxone. Are the injections very > painful, is the daily dose a problem ?. > > Thanks for all your insights. > Yash -------- my personal page http://www.vrhotwires.com/Bill_Meikle/bill.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2004 Report Share Posted March 31, 2004 ?????????? Avonex is IM. Beta, Rebif & Copax are all 3 subcutaneous. Copaxone is daily. ----- Original Message ----- From: Bill Meikle low dose naltrexone Sent: Wednesday, March 31, 2004 11:18 Subject: Re: [low dose naltrexone] Copaxone Hey yash: I've been thinking of moving to copaxone too...The shots are intramuscular which means deeper than subcutaneous... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2004 Report Share Posted March 31, 2004 Copaxone is not intramuscular Avonex is (once a week), Copaxone is subcutaneous (every day)! http://wwwrxlist.com/cgi/generic3/glatiramer_wcp.htm http://www.albany.net/~tjc/copaxone.html http://wwwrxlist.com/cgi/generic3/glatiramer_wcp.htm http://www.nationalmssociety.org/Brochures-Comparing.asp http://www.copaxone.com/ContentRoot/miscellaneous/pdfs/0102Gweb.pdf http://www.fda.gov/cder/foi/label/2001/20622s15lbl.pdf http://www.medsafe.govt.nz/Profs/Datasheet/c/Copaxoneinj.htm From: Bill Meikle [mailto:bcmeikle@...] Sent: Wednesday, March 31, 2004 11:19 AM low dose naltrexone Subject: Re: [low dose naltrexone] Copaxone Hey yash: I've been thinking of moving to copaxone too... The shots are intramuscular which means deeper than subcutaneous... The paper that interests me was given at a conference a month or 2 back, where the guy found that Rats on copaxone did better with one shot a month then with lots of shots. I mean it's a decoy molecule that your body is supposed to attack rather than it's immune system, so you don't need it that often. Of course the fact that MS doesn't seem to be auto-immune makes me wonder about the crabs, and science in general. > I am moving towards LDN with copaxone. Are the injections very > painful, is the daily dose a problem ?. > > Thanks for all your insights. > Yash -------- my personal page http://www.vrhotwires.com/Bill_Meikle/bill.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 31, 2004 Report Share Posted March 31, 2004 oops I was wrong. cool. A friend was on it and said that but I mixed it up. That would be easier. I hate shots in general but the ones in the muscle are brutal. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2004 Report Share Posted April 2, 2004 HI GUYS- COPAXONE IS A SUBCUTANEOUS INJECTION. AVONEX IS INTERMUSCULAR. I DO BOTH - OR I DID BOTHER UNTIL I STARTED LDN. NOW I ONLY DO THE COPAXONE WITH THE LDN. YOU MAY HAVE SITE REACTIONS WITH COIPAXONE BECAUSE THE DRUG IS DEPOSITED CLOSE TO THE SKIN. WATCH FOR NECROSIS OF THE SKIN - I'VE HEARD OF MANY CASES - I'VE HAD NO PROBLEM. I HAVE TO COMMENT ON CHEMO. I WAS ON CYTOXIN FOR 2 YEARS - AND I KNOW IT HALTED DISEASE PROGRESSION. MY CURRENT ROUTINE HAS SUCCESSFULLY KEPT ME UP AND WALKING. I DON'T THINK I WOULD BE WALKING HAD I NOT TRIED THE CHEMO - WHICH WAS NOT TOO BAD. IN FACT, I COMMUTED FROM NJ TO MASS EACH MONTH FOR TREATMENTS, RETURNING RIGHT AWAY TO A FULL-TIME JOB. I KNOW EVERYONE LEANS TOWARDS HOLISTIC APPROACHES, BUT SOMETIMES WE NEED TO RELY ON DRUGS AND WESTERN MEDICINE. IT'S SCAREY I KNOW - BUT IF I CAN DO IT, ANYONE CAN. I REALLY ENJOY THIS SITE. BESTAUNT Quote Link to comment Share on other sites More sharing options...
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