Guest guest Posted January 27, 2001 Report Share Posted January 27, 2001 Sue, My children are Super Big Babies, that's why I find it difficult to approach the issue. Here is the site address so you can take a look at it. preemie-list Another thing... May I forward you an email that I have just received from a Doctor to get your perspective on it? Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2001 Report Share Posted January 27, 2001 : I belong to a group hosted by http://www.preemie.org I honestly don't know how many members there are, but it has been fairly helpful when dealing with issues with my boys. I doubt that there are 900 members because there are only about 4-5 posts each day (or maybe they are not as chatty as we plagio parents are!!) When I first joined I brought up the flat head issue and got a mild response. Unfortunately too many other preemie families are dealing with far more serious issues than plagio. It would be a good group to go back at again. I will forward the petition onto them. I also belong to a Christian Mothers of Multiples group and I did forward the petition on to them...there is at least one DOC band family and one helmet family. Was one of your kids a preemie? Sue Luck mom to , DOC band graduate Cleveland ----- Original Message ----- From: <Ssassafras1@...> <Plagiocephaly > Sent: Saturday, January 27, 2001 1:28 PM Subject: Any " Preemie " Experts? > Hi Everyone, > > I have been emailing my heart out. I have become a member in many > different groups. I became a member of the " Microcephaly " group. I > felt awful about posting in that group, because they have gone > through so much. > > I have found a " Preemie " group of 900 members. The group is > restricted, and my membership is pending. I was wondering if anyone > already belongs to the group? > > I feel a bit weird joining a group I know nothing about, but in doing > so, the point has been brought up that " Misshaped Heads " affects > their other children. > > If anyone would like to post in this group, please email me. > > Thanks!, > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2001 Report Share Posted January 28, 2001 : Sure, forward the message. Sue ----- Original Message ----- From: <Ssassafras1@...> <Plagiocephaly > Sent: Saturday, January 27, 2001 2:13 PM Subject: Re: Any " Preemie " Experts? > Sue, > > My children are Super Big Babies, that's why I find it difficult to approach > the issue. > Here is the site address so you can take a look at it. > preemie-list > > Another thing... May I forward you an email that I have just received from a > Doctor to get your perspective on it? > > Thanks, > > > Quote Link to comment Share on other sites More sharing options...
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