Meagan

[Guest guest]

Severe side effects are possible from just about all drugs. As I'm sure you

know, your daughter will need regular blood tests to monitor for liver

damage. Also, lung functioning may be affected in some cases. I think most

of us whose children are on mtx were scared to death about putting our kids

on it. has been on it since December and has had virtually no side

effects ( a little tiredness when she first started it and when her dosage

was increased). Overall, studies show it is safe as long as regular

monitoring is performed. Best of luck to you and Meagan.

Diane (, 3, pauci)

[Guest guest]

We both have daughters that are 8 years old. My daughter's name is .

She has had JRA for 4 1/2 years and has been on methotrexate since the

beginning. She hasn't had any " serious " side effects, however, it does have

side effects. I think the most trouble that she has with it is fatigue and

at times nausea. I'm sure your daughter's doctor will monitor her while she

is taking it. We have learned to arrange our lives around the time that she

gets the medication. In other words, we try to make plans on days that we

know/hope that she will be feeling well.

I wish the best to Meagan!!

[Guest guest]

Hi ,didnt catch your name.Dont know anyone personally,but the patiant insert

is full of things,most are when MTX is given in high doses for

chemotherapy.It can cause several side effects as does any drug.It is a

pretty potent drug,but people with RA and JRA take it in much smaller

amounts than cancer patiants.Most side effects or shall I say most common

are mouth sores,fatigue and nausea.By taking folic acid you can reduce or

eliminate these.My son has been on it for a year and not a single side

effect at all.Some on this list have been on it for years and no

problems,some had to be taken off due to side effects usually elevated liver

enzymes.Meagan will have labs done every month until she is on a maintinance

dose then every other month,unless the dose gets raised.Through lab work

they can find any problems before you show symptoms.It is the drug of

preferance for rheumys now a days,alot is known about it,and how to look for

any problems early before anything happens.It works by suppressing the

immune system,it doesnt happen over night,MTX along with most anti rheumatic

drugs take several weeks to months before a responce is reached.At first

when you read about it ,it will terrify you,I cried several times.Whenever

they do clinical trials they have to list every single side effect even if

it may have been caused by something else.It has been used safely for a long

time,but there is always the risk your child may develop a problem that most

dont.Each child is differant and respond to meds differant.Im personally a

big fan of MTX it has helped my son trmendously.

Becki and 3systemic

Meagan

>My daughter Meagan is 8 years old and has JRA in her left . She will

>be starting a weekly dose of Methotrexate once a week (for at least 2

>years). Does anyone know if anyone has had any severe side effects

>from this drug?

>

>

>

>To unsubscribe, please send a message to:

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[Guest guest]

Hi. Welcome to the group. My son (15, pauci jra, spondyloarthropy) has been

on MTX since Dec. His main side effect has been mouth sores which he keeps

under control by using Listerine every day. He sometimes gets fatigue, but

he takes his on Friday night so that won't bother him at school. He also

takes folic acid to help reduce the chance of side effects to his liver. You

may want to ask your dr about that. He also takes Celebrex. Michele

Meagan

My daughter Meagan is 8 years old and has JRA in her left . She will

be starting a weekly dose of Methotrexate once a week (for at least 2

years). Does anyone know if anyone has had any severe side effects

from this drug?

[Guest guest]

Hi Becky,

The header says Allan,but he doesnt even know how to turn this thing on.I am

s mom,Becki also ,only with an i.So now there are 3 Becky/i here.Two

with an i and one y.It may get a little confusing at first.My son has

systemic,and before treatment almost every joint was involved.Main ones

being both wrists both knees both ankles his lft elbo,jaw and neck.In about

6 -8 months the MTX got rid of every active joint except his lft ankle.Just

had it injected 6 days ago,and it looks much better.The MTX could very well

put Meagan in remission. started out on only 7.5mg being raised to his

max at 25mg,and still not a single side effect other than injection site

will bruise sometimes,and thats probably me giving it to fast.The labs are

hard in the beginning,but got used to it and doesnt cry anymore,even

when they put the IV in for the injection,he didnt cry,but he was scared

because of all the nurses and equipment.You have the right attitude,you have

to take this day by day.In the beginning especially,everyday can be totally

differant.I hope has a quick responce to the MTX,but be prepared for

it to take a few months.Welcome to the group.

Becki and 4systemic

Meagan

>,

> am so glad I found this group. Sometimes I feel so alone and like

>no one understands. Especially when you get the comment " children

>don't get arthritis " or when I have to carry her because her knee

>hurts so bad and people make comments like " Isn't she a little big to

>be carried? " . Meagan will be starting her methotrexate on

>Wednesday. The doctor told me she will be on it for approximately 2

>years. Has been on it for the entire 4-1/2 years? Is that

>safe? Meagan is also on Vioxx . When takes her methotrexate

>when does she get the fatigue or nausea? Is it the next day or right

>after taking her dose?

>

>

>

>Hope is having a good day. We can just go day to day with

>this disease.

>

>

>

>Becky Presciano

>

>

>

>

>

>

>

>

>

>

>To unsubscribe, please send a message to:

> -unsubscribe

>

>To change your email delivery options, please visit:

> /

>

>

[Guest guest]

Michele,

Thanks. Thanks for the tip on Listerine. Meagan is also on folic

acid and Vioxx. Will be having labs every week at first. Meagan is 8

and has pauci jra in her left knee.

Becky Presciano

> Hi. Welcome to the group. My son (15, pauci jra, spondyloarthropy)

has been

> on MTX since Dec. His main side effect has been mouth sores which

he keeps

> under control by using Listerine every day. He sometimes gets

fatigue, but

> he takes his on Friday night so that won't bother him at school. He

also

> takes folic acid to help reduce the chance of side effects to his

liver. You

> may want to ask your dr about that. He also takes Celebrex.

Michele

>

> Meagan

>

>

> My daughter Meagan is 8 years old and has JRA in her left . She

will

> be starting a weekly dose of Methotrexate once a week (for at least

2

> years). Does anyone know if anyone has had any severe side effects

> from this drug?

>

>

>

>

[Guest guest]

Becki,

Thanks for the words of encourgement. I will let you know how she

does after her first dose today. Hope is having a good day

today.

Becky Presciano (Meagan 8 pauci jra)

> Hi Becky,

> The header says Allan,but he doesnt even know how to turn this

thing on.I am

> s mom,Becki also ,only with an i.So now there are 3 Becky/i

here.Two

> with an i and one y.It may get a little confusing at first.My son

has

> systemic,and before treatment almost every joint was involved.Main

ones

> being both wrists both knees both ankles his lft elbo,jaw and

neck.In about

> 6 -8 months the MTX got rid of every active joint except his lft

ankle.Just

> had it injected 6 days ago,and it looks much better.The MTX could

very well

> put Meagan in remission. started out on only 7.5mg being

raised to his

> max at 25mg,and still not a single side effect other than injection

site

> will bruise sometimes,and thats probably me giving it to fast.The

labs are

> hard in the beginning,but got used to it and doesnt cry

anymore,even

> when they put the IV in for the injection,he didnt cry,but he was

scared

> because of all the nurses and equipment.You have the right

attitude,you have

> to take this day by day.In the beginning especially,everyday can be

totally

> differant.I hope has a quick responce to the MTX,but be

prepared for

> it to take a few months.Welcome to the group.

> Becki and 4systemic

> Meagan

>

>

> >,

> > am so glad I found this group. Sometimes I feel so alone and like

> >no one understands. Especially when you get the comment " children

> >don't get arthritis " or when I have to carry her because her knee

> >hurts so bad and people make comments like " Isn't she a little big

to

> >be carried? " . Meagan will be starting her methotrexate on

> >Wednesday. The doctor told me she will be on it for approximately

2

> >years. Has been on it for the entire 4-1/2 years? Is that

> >safe? Meagan is also on Vioxx . When takes her

methotrexate

> >when does she get the fatigue or nausea? Is it the next day or

right

> >after taking her dose?

> >

> >

> >

> >Hope is having a good day. We can just go day to day with

> >this disease.

> >

> >

> >

> >Becky Presciano

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >To unsubscribe, please send a message to:

> > -unsubscribe@y...

> >

> >To change your email delivery options, please visit:

> > /

> >

> >

[Guest guest]

Hi Becky, I know just how you feel. Riley is big for her age. She'll be

5 next month and she wears a size 7. People always give me that " That child

should be walking " look when I carry her because she is so big and heavy, not

real easy to carry. Riley is on MTX, she gets diarreah a day or so after her

dose. She's a little fatigued the next day. Welcome to the group, I'm so glad

you found us! Take care and big hugs to you and

Meagan.

Ellie and Riley 4 poly

> ,

>am so glad I found this group.nbsp; Sometimes I feel so alone and like

>no one understands.nbsp; Especially when you get the comment quot;children

>don't get arthritisquot; or when I have to carry her because her knee

>hurts so bad and people make comments like quot;Isn't she a little big to

>be carried?quot;.nbsp; Meagan will be starting her methotrexate on

>Wednesday.nbsp; The doctor told me she will be on it for approximately 2

>years.nbsp; Has been on it for the entire 4-1/2 years?nbsp; Is that

>safe?nbsp; Meagan is also on Vioxx .nbsp; When takes her methotrexate

>when does she get the fatigue or nausea?nbsp; Is it the next day or right

>after taking her dose?nbsp;

>

>

>

>Hope is having a good day.nbsp; We can just go day to day with

>this disease.

>

>

>

>Becky Presciano

>

>

>

>

>

>

>

>

>

>

>    *

[Guest guest]

Hi Kim,

Sorry I haven't checked my e-mails. Had doctor appointments all day

yesterday. Meagan has been going to ish Rite since she was 2

and has been on Naproxen and now most recently on Vioxx. She used to

see Dr. Finch (who was the guru for arthritis) until he retired about

2 years ago. He was the greatest. Dr. Panuro is also good. Anyway

we had an appointment with the orthopedic at ish (Dr. Rathjan)

and now he thinks Meagan has something called Synovial Hemangioma.

We were supposed to start methotrexate yesterday but we are putting

that on hold pending new tests. We love ish Rite. It is the

greatest place!!!! Like I said we have been going there for the past

6 years. They are so compasionate and wonderful at that hopsital. We

live in Highland Village (about 20 miles south of Denton) Wow! that

is so weired that we are so close. How old is your daughter Meaghan?

> Becky,

> Hi We haven't met,,but I wanted to say welcome to the group. When

I saw

> the words " ish Rite " and " Dallas " in your post I almost

fainted !!!

> We go there for Logan. What do you think of Dr. Panuro (sp?) Have

ya'll

> had good results? Where do ya'll live? I'm just falling all over

myself

> at the thought of another jra child living so close. We live in

> Aubrey,,,very small town north of Denton. We have only had 1

visit,so

> far,but Logan goes back on Aug. 7.At the time of his visit the Dr.

> thought he had reactive arthrtis from a strep infection,,but it is

still

> hanging around 8 months later.Logan has it in his right knee the

> worst,,but lately,he has had a lot of pain in his

feet,heels,ankles. I

> look forward to hearing from you,,,by the way,,my oldest daughters

name

> is Meaghan.

> Kim and Logan 5

[Guest guest]

Hi Kim,

The best person at ish Rite to draw blood is Shiela. In the six

years we have been going to ish she has never poked Meagan more

than once. If she is busy, we wait. Meagan never even cries when

Shield draws her blood. Snynovial Hemangioma is a beneign tumor

usually in the knee that causes swelling and pain. It is very rare

and usually occurs only in children. The ortho. said this is only

the second case he has ever seen. To me Six Flags is a nightmare.

Too hot to go until maybe October. Hope your little one is having a

pain free day. Hugs. Becky

In @y..., Kim D <smithkim@j...> wrote:

> Becky,

> Hey it sure is a small world. I love ish Rite also,,the only

> problem I have had with them is,,,once we went to have Logan's blood

> drawn ,because he was bruising so bad,and they didn't tell the lady

> (Shirly?) that she had to walk the blood up to the lab,,so she had

to

> draw it again. I thought she would have a fit. She was so mad,,,she

was

> just telling someone off on the phone.She kept saying " You mean I

have to

> poke this baby again because you didn't tell me this?'' Then they

gave

> him all sorts of toys and stuffed animals What is synovial

hemangioma?

> I have never heard of that one.

> Hope ya'll are having a good day. Did you hear about the power

outage in

> Arlington? My sister was at Six Flags at the time, with my 2 girls.

I'm

> so glad I didn't go !!LOL

> My Meaghan is 13,Katelyn is 10, Logan is 5,and Ethan is 3

>

> Kim

[Guest guest]

Hi Kim,

Hope Logan is doing well. We just found out that Meagan does have a

synovial hemangioma. It was diagonosed when we had an MRI done on

6/21/02. She had swelling in her right knee since she was 2. Now

they are saying they think the swelling is coming from this

hemangioma. Anyway, they can operate but they think it will grow

back. They just want to manage the pain until she is about 11 or 12

and then operate. Don't know what I am going to do. I am going to

get a second opinion. For now they have taken her off all her meds

except Vioxx. She was pain free for a week. She had lots of pain

yesterday though and was limping all day. She is a lot better

today.

Hugs, Becky (Meagan 8)

> Becky,

> The nurse that had to draw Logan twice was Sheila.Isn't she the

one

> that is in the room to the left? She had never done this particular

blood

> test,so she didn't know ,that she had to walk it up. She is

> amazing,though. We will always ask for her.She calmed logan down so

well.

> Do you have a picture of Meagan up on her wall? We told her we would

> bring one ,of Logan,next time.

> I hope ya'll are having a good day,,,do you know if Meagan has a

> tumor,or not?If so, what do they do for it?How do they diagnose

that?

> Kim and Logan 5

[Guest guest]

Becky,

How is Meagan? Why are they going to wait till she is 11 or 12 to do

anything about the synovial hemangioma ? I hope you get a second

opinion,,,just for the sake of putting your mind at ease. Does her knee

look swollen on the side,or just swollen all over? Logans knee is still

swollen,,we go back to Punaro on Weds. I hope they will do something. I

told my pediatrician that I'm not real happy with the rheumy so far,and

he told me that the only other one is in Houston. I just feel like they

brush off my concerns. Like with Logans knee,,,it is still swollen ,after

9 months,and all they have done is up the Naprosyn to 8ml, twice a day.

He doesn't complain of it hurting as often,but it is swollen out on the

side,so much,that it brushes up on his other knee. Have you been very

pleased with Punaro? Maybe we will get more answers on Weds.

Hope Meagan is feeling better. By the way,,, why did they take her off

all her meds?

Kim and Logan 5

[Guest guest]

I don't agree with your attitude about this group, not all of us have been so bless as you with everything just falling into place for us. We all need each other, and some more than others may have more problems, but then that's why we are here isn't it? pj

Never miss a thing. Make your homepage.

[Guest guest]

Amen,Patti Betty Patti Journey <pjpoo78363@...> wrote: I don't agree with your attitude about this group, not all of us have been so bless as you with everything just falling into place for us. We all need each other, and some more than others may

have more problems, but then that's why we are here isn't it? pj Never miss a thing. Make your homepage. Take care, Betty

Looking for last minute shopping deals? Find them fast with Search.

[Guest guest]

Yes Yes patti well spoken.Patti Journey <pjpoo78363@...> wrote: I don't agree with your attitude about this group, not all of us have been so bless as you with everything just falling into place for us. We all need each other, and some more than others may have more problems, but then that's why we are here isn't it? pj Never miss a thing. Make

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