Guest guest Posted April 2, 2003 Report Share Posted April 2, 2003 In a message dated 4/2/2003 5:34:39 PM Pacific Standard Time, jjgregg@... writes: > I was a little leary to start going down on my thyroid > meds so I went to see an Endocrinologist and she did blood work and > has determined that I have been taking WAY too much Armour which has > made me now Hyperthyroid (but I still have not lost ANY weight) and > the endocrinologist has put me on Levoxyl 150MCG and something called > Cytomel (which I have never heard of) 5 MCG. Does this sound out of > the ordinary to anyone? I am not quite sure why she took me off of > Armour completely. I think she said on my bloodwork I was at 0.04 > but I could be wrong I have it written down at work. > Dear JJ, I know this can seem confusing when you're told one thing by one doctor and then told something else by another! IMO, the problem lies in the idea that you're hyperthyroid just because the TSH test numbers are .04. Also I think your first doc was on the right track by treating your symptoms, not your blood test numbers. That's called treating subclinically. Your most recent doc is going strictly by the numbers, which, again IMO, is a very inhumane way of treating certain types of hypothyroidism. Plus he/she's telling you you're hyperthyroid! If you were truly hyper, then why would you still be exhibiting hypo symptoms? Did your symptoms abate any at 4 grains of Armour? If they did, then I recommend you find another doc who will treat subclinically. (I've been on very high doses of timed release T3 (T3 is the main ingredient in Cytomel) and MY numbers were .07 when I finally found a doctor who would treat me subclinically! So, from my own experience, a very low number like that doesn't always correlate with hyperthyroidism.) Also, you may need more T3 than is in Armour to help your metabolism rev up again. You can ask for extra supplementation with Cytomel or you may find you do better, like I did, on straight T3--either Cytomel (instant release) or WT3 (timed release.) You can find docs who treat subclinically at <A HREF= " http://www.wilsonssyndrome.com/TreatingDocs.htm " > http://www.wilsonssyndrome.com/TreatingDocs.htm</A> . Also, at <A HREF= " www.armourthyroid.com " > www.armourthyroid.com</A> . Best bet is to call the office ahead of time to ask if they treat according to your symptoms instead of your TSH numbers and if they're open to using alternate meds like 's T3 or Armour or Cytomel. Just a word of encouragement--My TSH numbers were always sub-zero like yours so I was denied medicine until about a year and a half ago when I went to a 's Thyroid Syndrome specialist. He was the first doc who opened my eyes to the fact that I really WAS sick and further, that simple medicine could help me regain my energy, my thinner figure, and my life! There is help out there for your needs! Keep asking questions and keep requesting better treatment from your doctor! Or else keep switching until you find a doc who will respond in truly healing ways! Good luck, in LA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2003 Report Share Posted April 2, 2003 Run from these stupid docs! You should be treated not the tests. I think you should go back on Armour and try OTC progesterone cream, which will really help thyroid function and weight loss. Once you are on Armour you cannot go by tsh tests! If you like doing the tests then get free T3 and free T4. Gracia > Hi I was diagnosed 3 years ago hypothyroid and my doc started me on > synthroid, symtoms the same then changed me to levoxyl, symtoms the > same, then decided to put me on Armour and everytime I saw her she > treated the symtoms not what showed on the blood test. Recently I > went from 3 grain Armour to 4 grain then back down to 3. My doc has > since been transfered and a new doc bought the practice she did a > blood test and determined that I was on too high a dose and moved me > to 2 grain she also gave me rx of xenical, since I need to lose about > 100 pounds. I was a little leary to start going down on my thyroid > meds so I went to see an Endocrinologist and she did blood work and > has determined that I have been taking WAY too much Armour which has > made me now Hyperthyroid (but I still have not lost ANY weight) and > the endocrinologist has put me on Levoxyl 150MCG and something called > Cytomel (which I have never heard of) 5 MCG. Does this sound out of > the ordinary to anyone? I am not quite sure why she took me off of > Armour completely. I think she said on my bloodwork I was at 0.04 > but I could be wrong I have it written down at work. > Any suggestions, information or comments by anyone is welcomed. > Thanks in advance! > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2003 Report Share Posted April 3, 2003 I'm pretty sure I have 's. I talked to a Naturopath about it a couple of years ago. My major syptoms are: depression fatigue weightgain hot natured (meaning I always feel hotter externally than I really am, my sweetie doesn't like to hold my hand because of this). Sincerely, Naomi --- annah1149@... wrote: --------------------------------- In a message dated 4/2/2003 5:34:39 PM Pacific Standard Time, jjgregg@... writes: > I was a little leary to start going down on my thyroid > meds so I went to see an Endocrinologist and she did blood work and > has determined that I have been taking WAY too much Armour which has > made me now Hyperthyroid (but I still have not lost ANY weight) and > the endocrinologist has put me on Levoxyl 150MCG and something called > Cytomel (which I have never heard of) 5 MCG. Does this sound out of > the ordinary to anyone? I am not quite sure why she took me off of > Armour completely. I think she said on my bloodwork I was at 0.04 > but I could be wrong I have it written down at work. > Dear JJ, I know this can seem confusing when you're told one thing by one doctor and then told something else by another! IMO, the problem lies in the idea that you're hyperthyroid just because the TSH test numbers are .04. Also I think your first doc was on the right track by treating your symptoms, not your blood test numbers. That's called treating subclinically. Your most recent doc is going strictly by the numbers, which, again IMO, is a very inhumane way of treating certain types of hypothyroidism. Plus he/she's telling you you're hyperthyroid! If you were truly hyper, then why would you still be exhibiting hypo symptoms? Did your symptoms abate any at 4 grains of Armour? If they did, then I recommend you find another doc who will treat subclinically. (I've been on very high doses of timed release T3 (T3 is the main ingredient in Cytomel) and MY numbers were .07 when I finally found a doctor who would treat me subclinically! So, from my own experience, a very low number like that doesn't always correlate with hyperthyroidism.) Also, you may need more T3 than is in Armour to help your metabolism rev up again. You can ask for extra supplementation with Cytomel or you may find you do better, like I did, on straight T3--either Cytomel (instant release) or WT3 (timed release.) You can find docs who treat subclinically at <A HREF= " http://www.wilsonssyndrome.com/TreatingDocs.htm " > http://www.wilsonssyndrome.com/TreatingDocs.htm</A> . Also, at <A HREF= " www.armourthyroid.com " > www.armourthyroid.com</A> . Best bet is to call the office ahead of time to ask if they treat according to your symptoms instead of your TSH numbers and if they're open to using alternate meds like 's T3 or Armour or Cytomel. Just a word of encouragement--My TSH numbers were always sub-zero like yours so I was denied medicine until about a year and a half ago when I went to a 's Thyroid Syndrome specialist. He was the first doc who opened my eyes to the fact that I really WAS sick and further, that simple medicine could help me regain my energy, my thinner figure, and my life! There is help out there for your needs! Keep asking questions and keep requesting better treatment from your doctor! Or else keep switching until you find a doc who will respond in truly healing ways! Good luck, in LA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2003 Report Share Posted April 3, 2003 You sound just like me! I have " easy bake oven " hands! Naomi <lisanaomi@...> wrote:I'm pretty sure I have 's. I talked to a Naturopath about it a couple of years ago. My major syptoms are: depression fatigue weightgain hot natured (meaning I always feel hotter externally than I really am, my sweetie doesn't like to hold my hand because of this). Sincerely, Naomi --- annah1149@... wrote: --------------------------------- In a message dated 4/2/2003 5:34:39 PM Pacific Standard Time, jjgregg@... writes: > I was a little leary to start going down on my thyroid > meds so I went to see an Endocrinologist and she did blood work and > has determined that I have been taking WAY too much Armour which has > made me now Hyperthyroid (but I still have not lost ANY weight) and > the endocrinologist has put me on Levoxyl 150MCG and something called > Cytomel (which I have never heard of) 5 MCG. Does this sound out of > the ordinary to anyone? I am not quite sure why she took me off of > Armour completely. I think she said on my bloodwork I was at 0.04 > but I could be wrong I have it written down at work. > Dear JJ, I know this can seem confusing when you're told one thing by one doctor and then told something else by another! IMO, the problem lies in the idea that you're hyperthyroid just because the TSH test numbers are .04. Also I think your first doc was on the right track by treating your symptoms, not your blood test numbers. That's called treating subclinically. Your most recent doc is going strictly by the numbers, which, again IMO, is a very inhumane way of treating certain types of hypothyroidism. Plus he/she's telling you you're hyperthyroid! If you were truly hyper, then why would you still be exhibiting hypo symptoms? Did your symptoms abate any at 4 grains of Armour? If they did, then I recommend you find another doc who will treat subclinically. (I've been on very high doses of timed release T3 (T3 is the main ingredient in Cytomel) and MY numbers were .07 when I finally found a doctor who would treat me subclinically! So, from my own experience, a very low number like that doesn't always correlate with hyperthyroidism.) Also, you may need more T3 than is in Armour to help your metabolism rev up again. You can ask for extra supplementation with Cytomel or you may find you do better, like I did, on straight T3--either Cytomel (instant release) or WT3 (timed release.) You can find docs who treat subclinically at <A HREF= " http://www.wilsonssyndrome.com/TreatingDocs.htm " > http://www.wilsonssyndrome.com/TreatingDocs.htm</A> . Also, at <A HREF= " www.armourthyroid.com " > www.armourthyroid.com</A> . Best bet is to call the office ahead of time to ask if they treat according to your symptoms instead of your TSH numbers and if they're open to using alternate meds like 's T3 or Armour or Cytomel. Just a word of encouragement--My TSH numbers were always sub-zero like yours so I was denied medicine until about a year and a half ago when I went to a 's Thyroid Syndrome specialist. He was the first doc who opened my eyes to the fact that I really WAS sick and further, that simple medicine could help me regain my energy, my thinner figure, and my life! There is help out there for your needs! Keep asking questions and keep requesting better treatment from your doctor! Or else keep switching until you find a doc who will respond in truly healing ways! Good luck, in LA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2003 Report Share Posted April 3, 2003 Gracia, What is the best OTC progesterone cream to buy? Janna Gracia <circe@...> wrote: Run from these stupid docs! You should be treated not the tests. I think you should go back on Armour and try OTC progesterone cream, which will really help thyroid function and weight loss. Once you are on Armour you cannot go by tsh tests! If you like doing the tests then get free T3 and free T4. Gracia > Hi I was diagnosed 3 years ago hypothyroid and my doc started me on > synthroid, symtoms the same then changed me to levoxyl, symtoms the > same, then decided to put me on Armour and everytime I saw her she > treated the symtoms not what showed on the blood test. Recently I > went from 3 grain Armour to 4 grain then back down to 3. My doc has > since been transfered and a new doc bought the practice she did a > blood test and determined that I was on too high a dose and moved me > to 2 grain she also gave me rx of xenical, since I need to lose about > 100 pounds. I was a little leary to start going down on my thyroid > meds so I went to see an Endocrinologist and she did blood work and > has determined that I have been taking WAY too much Armour which has > made me now Hyperthyroid (but I still have not lost ANY weight) and > the endocrinologist has put me on Levoxyl 150MCG and something called > Cytomel (which I have never heard of) 5 MCG. Does this sound out of > the ordinary to anyone? I am not quite sure why she took me off of > Armour completely. I think she said on my bloodwork I was at 0.04 > but I could be wrong I have it written down at work. > Any suggestions, information or comments by anyone is welcomed. > Thanks in advance! > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2003 Report Share Posted April 3, 2003 Well I am not sure since I have a prescription 100mg 2X a day from Womens International Pharmacy http://www.womensinternational.com but they also sell non prescription progesterone cream. Also there is http://www.progesterone.com > > Gracia, > What is the best OTC progesterone cream to buy? > Janna > Gracia <circe@...> wrote: > Run from these stupid docs! You should be treated not the tests. I think > you should go back on Armour and try OTC progesterone cream, which will > really help thyroid function and weight loss. Once you are on Armour you > cannot go by tsh tests! If you like doing the tests then get free T3 and > free T4. > Gracia > > > > Hi I was diagnosed 3 years ago hypothyroid and my doc started me on > > synthroid, symtoms the same then changed me to levoxyl, symtoms the > > same, then decided to put me on Armour and everytime I saw her she > > treated the symtoms not what showed on the blood test. Recently I > > went from 3 grain Armour to 4 grain then back down to 3. My doc has > > since been transfered and a new doc bought the practice she did a > > blood test and determined that I was on too high a dose and moved me > > to 2 grain she also gave me rx of xenical, since I need to lose about > > 100 pounds. I was a little leary to start going down on my thyroid > > meds so I went to see an Endocrinologist and she did blood work and > > has determined that I have been taking WAY too much Armour which has > > made me now Hyperthyroid (but I still have not lost ANY weight) and > > the endocrinologist has put me on Levoxyl 150MCG and something called > > Cytomel (which I have never heard of) 5 MCG. Does this sound out of > > the ordinary to anyone? I am not quite sure why she took me off of > > Armour completely. I think she said on my bloodwork I was at 0.04 > > but I could be wrong I have it written down at work. > > Any suggestions, information or comments by anyone is welcomed. > > Thanks in advance! > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2006 Report Share Posted March 23, 2006 It only means that the manufacturers of Lamictal did not do clinical drug trials for the items listed. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2006 Report Share Posted March 23, 2006 To me, and Im a mom too, lol, it sounds like they're saying is that they aren't sure if Lamictal is safe or effective because they haven't studied it for the following circumstances: 1.) if you're using Lamictal as your first and only AED 2.) if you're weaning off other meds onto Lamictal (except if you're weaning off one of the following: carbamazepine, phenytoin, phemobarbital, primidone or valproate) 3) if you're weaning from 2 AED's at once to Lamictal 4.) if your child is under 16 years old - except if your child has simple or complex partials and generalized seizures of Lennox-Gastaut seizures Wow, they have pretty much covered themselves in any case, haven't they? Hth, Mom to 4yo, dx'd with CPE June 10th 2005 ________________________________ From: [mailto: ] On Behalf Of H. Sent: Thursday, March 23, 2006 3:19 PM ; epilepsycircle ; EpilepsyApproach Subject: [ ] Please help me understand Can someone put this in " mom language " for me? Safety and effectiveness of LAMICTAL have not been established 1) as initial monotherapy, 2) for conversion to monotherapy from AEDs other than carbamazepine, phenytoin, phenobarbital, primidone, or valproate, 3) for simultaneous conversion to monotherapy from 2 or more concomitant AEDs, or 4) in patients below the age of 16, other than those with partial seizures and the generalized seizures of LGS In raising my children I have lost my mind but found my soul. - Shepherd Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2006 Report Share Posted December 28, 2006 Seems like achalasia .. Plz see your GI and take barium test.. Later,he will advise you to get dilatation done,if it's achalasia..don't panic.. It's an early stage so most likely , u should be okay after dilatations.. Mukesh PLEASE help me Understand Hi Everyone, I am hoping someone can help me understand. When I saw the esophagus specialist a few weeks ago he told me he " suspects " Achlasia but can't be for sure. Please forgive me if this email is alittle messy. I haven't had much sleep and I am just coming down of a major panic attack. When I don't get enough sleep my swallowing is horrific. Nothing feels like it goes down even water but it must be or I would be choking. I get this HUGE lump in my throat of what feels like a huge ball of mucous, my SWallowing feels all spastic and it flips me into horrible panic attacks... Now when I take valium, even a small dose within 40 mins everything in my throat relaxes and the lump almost disappears completely. Its still there but not as badly. My swallowing is still hard but not as bad.. Does Achlasia act like this? Im so confused.. Thanks for any help My Personal Web Page My Groups! RobynsTagDesigns RobynsStationary Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 28, 2006 Report Share Posted December 28, 2006 Robyn wrote: > Does Achlasia act like this? Achalasia acts a little different in each of us. Even if it appears the same on tests we can perceive it differently. Of those who have symptoms that could be achalasia most of them will not have achalasia but have other problems. There is no way to know if you have it by the way it " feels " . You need tests and even then there is sometimes some doubt though most times they are very conclusive one way or the other. If you have had test and no conclusion has been made it may be that you may have an esophageal motility disorder that is not specifically achalasia but similar or secondary achalasia. notan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2006 Report Share Posted December 29, 2006 Robyn, your symptoms sound similar to mine. In June of 2005 I started with some symptoms; food stuck, food and drink coming back up, hard lump in throat, seems like bad heartburn. It was Achalasia, and it got worse and then better over the next few months. This getting worse and then better went on until last January, then it got real bad. Nothing would go/stay down. Liquids were the worst. I lost 80 pounds in 3 months. I had the heller surgery in Feb of last year. the surgery was easy, I eat fine now, with some minor sticking of food (water puts it right down). The hardest part for me was the waiting. Waiting for the diagnosis, waiting for a course of action, waiting for the insurance, then the surgery, finally!!! When I was at my worst I was very dehydrated and was only able to get down a little yogurt (with protein suppliment thatI added from GNC), I could not eat, I re-gurgitated everything, my mind was not sharp at all (weight loss and no nutrients), I had no energy, I was lightheaded all of the time, and I just laid around. If you do have Achalasia please realize that this is something you will always have. You can live a very normal life. You must be pro-active and keep on the Docs until you get a course of action. You must get through until the surgery or procedure you choose. It could really get bad for you physically and mentally. You must just get through each day. Please know that this is a worst case scenerio. Your degree of Achalasia might not be as bad. Let me know if I can help in anyway. Try the yogurt if you cannot get anything down. Good Luck!! Vinnie --- xorobyng70ox <XoRobynG70oX@...> wrote: > > > Hi Everyone, > > I am hoping someone can help me understand. When > I saw the esophagus > specialist a few weeks ago he told me he " suspects " > Achlasia but can't be > for sure. Please forgive me if this email is > alittle messy. I haven't had > much sleep and I am just coming down of a major > panic attack. > > When I don't get enough sleep my swallowing is > horrific. Nothing feels > like it goes down even water but it must be or I > would be choking. I get > this HUGE lump in my throat of what feels like a > huge ball of mucous, my > SWallowing feels all spastic and it flips me into > horrible panic attacks... > Now when I take valium, even a small dose within 40 > mins everything in my > throat relaxes and the lump almost disappears > completely. Its still there > but not as badly. My swallowing is still hard but > not as bad.. Does Achlasia > act like this? Im so confused.. Thanks for any help > > > > > > My Personal Web Page > > My Groups! > > RobynsTagDesigns > > RobynsStationary > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2006 Report Share Posted December 29, 2006 Robyn- I would reccomend getting all the test done to confirm its achalasia.I will say that I have anxiety and I get the lump in my throat and it feels as if I cant swallow as well.Thats as symptom of anxiety but also a symptom that my son had with achalasia in the first stages.Please seek all test to get a clear diagnosis if its achlasia or not.I know all this is very over whelming and if I can help anyway let me know-your not alone in any of this! If the valium helps your symptoms go away it almost sounds as if its anxiety cause if it werent I dont think it would help.Im not sure on that one though not a Dr. Tonia > > > > > > > Hi Everyone, > > > > I am hoping someone can help me understand. When > > I saw the esophagus > > specialist a few weeks ago he told me he " suspects " > > Achlasia but can't be > > for sure. Please forgive me if this email is > > alittle messy. I haven't had > > much sleep and I am just coming down of a major > > panic attack. > > > > When I don't get enough sleep my swallowing is > > horrific. Nothing feels > > like it goes down even water but it must be or I > > would be choking. I get > > this HUGE lump in my throat of what feels like a > > huge ball of mucous, my > > SWallowing feels all spastic and it flips me into > > horrible panic attacks... > > Now when I take valium, even a small dose within 40 > > mins everything in my > > throat relaxes and the lump almost disappears > > completely. Its still there > > but not as badly. My swallowing is still hard but > > not as bad.. Does Achlasia > > act like this? Im so confused.. Thanks for any help > > > > > > > > > > > > My Personal Web Page > > > > My Groups! > > > > RobynsTagDesigns > > > > RobynsStationary > > > > > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 29, 2006 Report Share Posted December 29, 2006 Hi Robyn, The valium helps ease the fight or flight response of the panic attack, which relaxes the muscles in the body. This is could help ease your symptoms. My symptoms are worsened with stress (and that sounds common from posts I have read) so maybe your symptoms ease as the stress of the panic attack eases. I wouldn't rule out achalasia because the valium helps. I can't say for sure, I am a psychotherapist but not a psychiatrist or doctor. I agree with Tonia in recommending to get testing done for a diagnosis. The waiting to figure out a diagnosis was the hardest for me, once we figured it out, there was relief and now I am waiting for surgery, so I am pretty early in this process too. Please let me know if there is anything I can help you with. Also my mom has Graves Disease (a thyroid disorder) and she has dealt with anxiety and panic attacks for over 20 years now, especially around medical testing and problems, if you ever need anything I know she would be more than happy to talk with you as well. Good luck in your process. you are not alone. Take care, toniasdogsandi <toniasdogsandi@...> wrote: Robyn- I would reccomend getting all the test done to confirm its achalasia.I will say that I have anxiety and I get the lump in my throat and it feels as if I cant swallow as well.Thats as symptom of anxiety but also a symptom that my son had with achalasia in the first stages.Please seek all test to get a clear diagnosis if its achlasia or not.I know all this is very over whelming and if I can help anyway let me know-your not alone in any of this! If the valium helps your symptoms go away it almost sounds as if its anxiety cause if it werent I dont think it would help.Im not sure on that one though not a Dr.Tonia> > > > > > > Hi Everyone, > > > > I am hoping someone can help me understand. When> > I saw the esophagus> > specialist a few weeks ago he told me he "suspects"> > Achlasia but can't be> > for sure. Please forgive me if this email is > > alittle messy. I haven't had> > much sleep and I am just coming down of a major> > panic attack. > > > > When I don't get enough sleep my swallowing is> > horrific. Nothing feels> > like it goes down even water but it must be or I> > would be choking. I get> > this HUGE lump in my throat of what feels like a> > huge ball of mucous, my> > SWallowing feels all spastic and it flips me into> > horrible panic attacks...> > Now when I take valium, even a small dose within 40> > mins everything in my> > throat relaxes and the lump almost disappears> > completely. Its still there> > but not as badly. My swallowing is still hard but> > not as bad.. Does Achlasia> > act like this? Im so confused.. Thanks for any help> > > > > > > > > > > > My Personal Web Page > > > > My Groups!> > > > RobynsTagDesigns> > > > RobynsStationary> > > > > > > > > __________________________________________________> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2006 Report Share Posted December 30, 2006 Hi, Robyn. Your symptoms sound very stressful and I hope you get relief soon. A lot of us at this site have had similar problems. I had the regurgitation coming and going. I also had foam building up in my throat and mouth, usually at night. I also did some nasty inhaling of that foam, and drinks and food. Aspiration is painful, especially when it's solids. I'm lucky that I have been able to cough stuff back out. You have a doctor you like? I hope so. It's a journey, this Achalasia, and besides the good people here, having a doctor you like is critical. Good Luck with your journey. Deborah Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2008 Report Share Posted May 30, 2008 I don't mean to sound dumb. BUT, I am having a difficult time reading and understanding some of the e-mails here. The reason is because of the the abbreviations DT,NT,etc. I know what some of them mean, but don't know a lot of them. Is there any reference I could use??? I'm new to understanding ANY of this. My son just diagnosed last week with aspergers. (he's 15) I would appreciate any help to better understand. Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 30, 2008 Report Share Posted May 30, 2008 It can be tricky when you don't understand the meaning behind abbreviations. Don't worry about it just ask when you don't understand. Here are some of the abbreviations that I know: NT=neurotypical (not on the spectrum) DD=darling daughter or dear daughter DS=darling son or dear son DH=darling husband or dear husband AS=Asperger's Syndrome ASD=Austim Spectrum Disorders PDD=Pervasive Development Disorder BP=Bipolar That's all I can think of right now. I hope that helps.Hmmm what do you think? <marymomof2@...> wrote: I don't mean to sound dumb. BUT, I am having a difficult time reading and understanding some of the e-mails here. The reason is because of the the abbreviations DT,NT,etc. I know what some of them mean, but don't know a lot of them. Is there any reference I could use???I'm new to understanding ANY of this. My son just diagnosed last week with aspergers. (he's 15) I would appreciate any help to better understand. Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2008 Report Share Posted May 31, 2008 , I'll add a few more abbreviations that may be used: ST = speech therapy or speech therapist OT = occupational therapy or therapist PT = physical therapy or therapist HFA = high-functioning autism OCD = obsessive-compulsive disorder SID = sensory integration disorder (or dysfunction) MR = mental retardation NLD = (or NVLD) Nonverbal Learning Disability (or disorder) IMO = in my opinion ESY = extended school year APD = auditory processing disorder CAPD = central auditory processing disorder BIP = behavior intervention plan FBA = functional behavioral assessment FAPE = free appropriate public education OHI = other health impairments (used with IEPs) LD = learning disability > > It can be tricky when you don't understand the meaning behind abbreviations. Don't worry about it just ask when you don't understand. Here are some of the abbreviations that I know: > > NT=neurotypical (not on the spectrum) > DD=darling daughter or dear daughter > DS=darling son or dear son > DH=darling husband or dear husband > AS=Asperger's Syndrome > ASD=Austim Spectrum Disorders > PDD=Pervasive Development Disorder > BP=Bipolar > > That's all I can think of right now. I hope that helps. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 31, 2008 Report Share Posted May 31, 2008 I did a search for the "abc's" of it all when I was new and forund a site that had an entire list....Sorry...I cant remember where it is :-) Re: ( ) Please help me understand It can be tricky when you don't understand the meaning behind abbreviations. Don't worry about it just ask when you don't understand. Here are some of the abbreviations that I know: NT=neurotypical (not on the spectrum) DD=darling daughter or dear daughter DS=darling son or dear son DH=darling husband or dear husband AS=Asperger's Syndrome ASD=Austim Spectrum Disorders PDD=Pervasive Development Disorder BP=Bipolar That's all I can think of right now. I hope that helps.Hmmm what do you think? <marymomof2 > wrote: I don't mean to sound dumb. BUT, I am having a difficult time reading and understanding some of the e-mails here. The reason is because of the the abbreviations DT,NT,etc. I know what some of them mean, but don't know a lot of them. Is there any reference I could use???I'm new to understanding ANY of this. My son just diagnosed last week with aspergers. (he's 15) I would appreciate any help to better understand. Thanks, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2008 Report Share Posted June 1, 2008 An abbreviation list should be created and put into the files. I know it's like reading alphabet soup sometimes!!! > I don't mean to sound dumb. BUT, I am having a difficult time reading and understanding > some of the e-mails here. The reason is because of the the abbreviations DT,NT,etc. I > know what some of them mean, but don't know a lot of them. Is there any reference I could > use??? > I'm new to understanding ANY of this. My son just diagnosed last week with aspergers. (he's > 15) > I would appreciate any help to better understand. > Thanks, > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 1, 2008 Report Share Posted June 1, 2008 Here is a list of commonly usedinternet shorthand:ASD - autism spectrum disorderAspie - some people use this word as shorthand for their children with AS.dh - dear husbanddd - dear daughterds - dear sondw - dear wifelol - laughing out loudNT - neuro-typical (normal)rofl - rolling on the floor laughingroflmao - rolling on the floor laughing my a** offimo - in my opinionimho - in my humble/honest opinionbtw - by the wayOTOH - on the other handITA - I totally agreeITU - I totally understandGMTA - Great Minds Think AlikeIEP - individual education programFBA - functional behavior assessmentBP - behavior planST - speech therapyOT - occupational therapyPT - Physical therapy Quote Link to comment Share on other sites More sharing options...
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