Guest guest Posted May 1, 2001 Report Share Posted May 1, 2001 I will call my friend who is a chiropractor to find out the reference she on the link to mercury poisoning and head banging. When I was a baby my parents took me to several doctors in complete worry that something was wrong with me. I did it at anytime, but especially if I didn't get my way about something (sticking finger in socket, etc.) All they would tell them was that it was just a " phase " and that they should divert my attention by placing my head under the running water in the kitchen sink. My parents tried this, and I gasped for a second and then continued banging on the bottom of the sink. It did finally pass and my Mom looked back at the whole ordeal and realized that the banging was worse after vaccinations. Eventually I " grew out of it " . With , I looked back at her 1st year calendar and noticed that it happened more after vaccinations (this was before I saw the light with vaccinations) and as soon as it would start to subside there were more shots and it would happen again. 's was not as severe as mine was thankfully. There was a story once on 20-20 about this " rare disorder " , but they obviously never linked it to mercury or vaccines! Message: 5 Date: Mon, 30 Apr 2001 22:21:31 -0400 From: " Laurie L " <boldml@...> Subject: Re: Intro: I have a friend who's child head bangs...when do you mean? He does it when he's mad. do you have reference? I am not a medical doctor, nor do I portray one on t.v. (but my husband,Mike,is!) Message: 13 Date: Mon, 30 Apr 2001 23:26:53 EDT From: HolisticMomma@... Subject: Re: Intro: I'm glad y'all brought that up about head banging. I think you got something there! Wouldn't surprise me at all if there is a link to vaccine poison and head bangers. I buy that more than I do that it is " normal " behavior. I mean so many children do it now, that it has actually become " normal " as in " just a phase " . Banging your head on hard surfaces just isn't " normal " behavior no matter what your age. In my ever so humble opinion. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2001 Report Share Posted May 3, 2001 I just noticed on a head banging post that it was mentioned that some children only do it when mad. I thought I wold take the opportunity to remind everyone that mercury has been linked to rage. There are several sources for this and also Coulter's book entitled " Vaccination-Social Violence and Criminality-The Medical Assault on the American Brain " . Has everyone here read it yet? I have the book, but haven't read it yet. I'm still working on Viera Scheibner's book. Also I would like to mention that I am seeing several posts on the Mothering Board that concern me. Moms writing about how violent their very young children are. They are asking for advice on how to handle violent behavior. They see it as a " behavior " problem and have not considered a physiological link. So far I have successfully refrained from asking these moms if their children are vaccinated. In my heart, I feel I already know the answer. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2001 Report Share Posted May 3, 2001 > I just noticed on a head banging post that it was mentioned that some > children only do it when mad. I thought I wold take the opportunity to > remind everyone that mercury has been linked to rage. I've been following the head banging posts carefully for a couple of days now... Max has been hitting himself in the head and face for no known reason for several months. Not often, but when I first noticed it, I frowned and thought, " Where did he learn that? We don't do that. " but I laughed at him and told him he was being a silly boy. Now I'm *realy* wondering WHY he does this. And then reading this post from Holistic Momma really shook me up. I see rage in my 12 month old son as well as in myself. I have alot of rage, I know that, and it takes alot for me to control it. I don't want Max seeing me get upset and yelling and screaming over something as simple as an explanation on how to do a search on Ebay. (My husband wasn't being very clear and it sent me into a fit.) I have noticed Max screaming the way I do sometimes and I think, " Gosh, I REALLY have to work on that better. He's learning what he sees. " I have to wonder, Is my rage because of what *I* learned as a child (my mother is also like this), is it from mercury? I have mercury fillings. I've been vaccinated. I eat canned tuna. Is Max's rage because of what *he* is learning, is it from mercury? He's been vaccinated, he sees me acting like a lunatic sometimes, he's eaten canned tuna (only twice in his life, though). *SIGH* This distresses me greatly. ~ Texas Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2001 Report Share Posted May 3, 2001 At 09:13 AM 05/03/2001 EDT, you wrote: >I just noticed on a head banging post that it was mentioned that some >children only do it when mad. I thought I wold take the opportunity to >remind everyone that mercury has been linked to rage. There are several >sources for this and also Coulter's book entitled " Vaccination-Social >Violence and Criminality-The Medical Assault on the American Brain " . Has >everyone here read it yet? I have the book, but haven't read it yet. I'm >still working on Viera Scheibner's book. > >Also I would like to mention that I am seeing several posts on the Mothering >Board that concern me. Moms writing about how violent their very young >children are. They are asking for advice on how to handle violent behavior. >They see it as a " behavior " problem and have not considered a physiological >link. So far I have successfully refrained from asking these moms if their >children are vaccinated. In my heart, I feel I already know the answer. > Yes, it is horrifying. In homeopathic treatment several different remedy pictures come up for these children and they can REALLY be helped with homeopathy even if it is the mercury. Violent children, children abusive to animals, etc. All leads to horrfying things -------------------------------------------------------- Sheri Nakken, R.N., MA moderator Vaccination Information & Choice Network, Nevada City CA & UK 530-478-1242 Voicemail in US http://www.nccn.net/~wwithin/vaccine.htm " All that is necessary for the triumph of evil is that good men ( & women) do nothing " ...Edmund Burke ANY INFO OBTAINED HERE NOT TO BE CONSTRUED AS MEDICAL OR LEGAL ADVICE. THE DECISION TO VACCINATE IS YOURS AND YOURS ALONE. Well Within's Earth Mysteries & Sacred Site Tours http://www.nccn.net/~wwithin International Tours, Homestudy Courses, ANTHRAX & OTHER Vaccine Dangers Education, Homeopathic Education CEU's for nurses, Books & Multi-Pure Water Filters Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2001 Report Share Posted May 3, 2001 Sounds like this could be the cause of my son's Oppositional Defiant Disorder? Sherri HolisticMomma@... wrote: > I just noticed on a head banging post that it was mentioned that some > children only do it when mad. I thought I wold take the opportunity to > remind everyone that mercury has been linked to rage. There are several > sources for this and also Coulter's book entitled " Vaccination-Social > Violence and Criminality-The Medical Assault on the American Brain " . Has > everyone here read it yet? I have the book, but haven't read it yet. I'm > still working on Viera Scheibner's book. > > Also I would like to mention that I am seeing several posts on the Mothering > Board that concern me. Moms writing about how violent their very young > children are. They are asking for advice on how to handle violent behavior. > They see it as a " behavior " problem and have not considered a physiological > link. So far I have successfully refrained from asking these moms if their > children are vaccinated. In my heart, I feel I already know the answer. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2001 Report Share Posted May 3, 2001 hi, these are just some thoughts on the issue. I have travelled to Cuba several times and know many people with children there. Cuba unfortunately highly vaccinates their children, they are quite proud of it, being a developing nation, to be able to keep up with the US on vaccinations, and probably the rate is even higher than here, considering there are more doctors and everyone has healthcare. Being asked about violence in schools I got mostly bewildering looks. " Violence? Why should there be violence? " Some people though that the reports on school shootings in the US is pure propaganda from the Cuban side trying to make the US look bad. When I told them they were real, they were stunned. All the kids I have met there, even living in poverty and being vaccinated, are very kind, gentle and curteous. The way they interact with each other is a beautiful sight to see, and not once have I noticed the violent behavior so common in children here. As much harm as the vaccines do, I believe that most of the violence here is cultural and family based. More so in the culture, especially for boys. I am just reading " Raising Cain " about protecting the emotional lives of boys, which also gives some answers. I got to get back to work - Love, Mara Vaccinations wrote: > > I just noticed on a head banging post that it was mentioned that some > children only do it when mad. Â I thought I wold take the opportunity to > remind everyone that mercury has been linked to rage. Â There are several > sources for this and also Coulter's book entitled " Vaccination-Social > Violence and Criminality-The Medical Assault on the American Brain " . Â Has > everyone here read it yet? Â I have the book, but haven't read it yet. Â I'm > still working on Viera Scheibner's book. > > Also I would like to mention that I am seeing several posts on the Mothering > Board that concern me. Â Moms writing about how violent their very young > children are. Â They are asking for advice on how to handle violent behavior. Â > They see it as a " behavior " problem and have not considered a physiological > link. Â So far I have successfully refrained from asking these moms if their > children are vaccinated. Â In my heart, I feel I already know the answer. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2001 Report Share Posted May 3, 2001 >And then reading this post from Holistic Momma really shook me up. I >see rage in my 12 month old son as well as in myself. I have alot of >rage, I know that, and it takes alot for me to control it. I don't >want Max seeing me get upset and yelling and screaming over something >as simple as an explanation on how to do a search on Ebay. (My >husband wasn't being very clear and it sent me into a fit.) I have >noticed Max screaming the way I do sometimes and I think, " Gosh, I >REALLY have to work on that better. He's learning what he sees. " > >I have to wonder, Is my rage because of what *I* learned as a child >(my mother is also like this), is it from mercury? I have mercury >fillings. I've been vaccinated. I eat canned tuna. Is Max's rage >because of what *he* is learning, is it from mercury? He's been >vaccinated, he sees me acting like a lunatic sometimes, he's eaten >canned tuna (only twice in his life, though). *SIGH* > >This distresses me greatly. > >~ >Texas - have you gotten to a homeopath yet? -------------------------------------------------------- Sheri Nakken, R.N., MA moderator Vaccination Information & Choice Network, Nevada City CA & UK 530-478-1242 Voicemail in US http://www.nccn.net/~wwithin/vaccine.htm " All that is necessary for the triumph of evil is that good men ( & women) do nothing " ...Edmund Burke ANY INFO OBTAINED HERE NOT TO BE CONSTRUED AS MEDICAL OR LEGAL ADVICE. THE DECISION TO VACCINATE IS YOURS AND YOURS ALONE. Well Within's Earth Mysteries & Sacred Site Tours http://www.nccn.net/~wwithin International Tours, Homestudy Courses, ANTHRAX & OTHER Vaccine Dangers Education, Homeopathic Education CEU's for nurses, Books & Multi-Pure Water Filters Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 3, 2001 Report Share Posted May 3, 2001 > > - have you gotten to a homeopath yet? > -------------------------------------------------------- > Sheri Nakken, R.N., MA *looking away sheepishly* no... Not yet. My husband is FINALLY open to trying one, but I went and lost the list you emailed me! Could you let me know where to find a list? I had found a list online once, but I don't remember the url. Thanks ~ San , Texas Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2001 Report Share Posted September 6, 2001 > Jan wrote about head banging and concussion: > Mike didn't, but I thought he was going to > get brain damage from it. > Jan, > I asked Dr. Jim Hatton about head banging and it > causing OCD. He felt it did not have anything to do > with OCD. FWIW > Vivian in WA ST > Viv, oh, I am glad to hear that! I think that he banged his head because he already had the OCD and he probably was frustrated and didn't know why. I saw symptoms of OCD when he was only about a year and a half old, but of course I didn't know what it was or what was wrong, kept thinking it was something he would grow out of. The doctors didn't know either. Jan __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 30, 2003 Report Share Posted August 30, 2003 Theratogs---what is this? Is it like the unitards we have used for JJ? On Saturday, August 30, 2003, at 06:29 AM, Kim & Bernardo Amenabar wrote: > ckout our homepage for information, bookmarks, and photos > of our kids. Share favorite bookmarks, ideas, and other information by > including them. Don't forget, messages are a permanent record of the > archives for our list. > -------------------------------------------- > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2003 Report Share Posted August 31, 2003 Hi Kim, That is wonderful news that has an OT working with him. One of my sons OT even had mentioned to me that if I ever wanted to purchase from a catalog that she would not mind purchasing it at discount if I wanted to continue with therapy at home. Which is nice to know. These therapeautic things could add up. So take advantage on what the OT has to offer or borrow supplies to continue them at home. On what you had mentioned on the theratogs, this is new to me. I did review the site you had mentioned and of course ran into another site with the picture of it. What do you think, do you feel the OT has done some homework on using this item? When trying out things I too would like to know what experiences others have observed. http://www.theratogs.com/ http://www.gaitways.com/TheraTogs/specs.html Like the Wilbarger brushing, it worked for awhile but then we had to discontinue it as this caused too much overstimulation where it felt like an overdose reaction. Joint compression and massages works for my son & weights but once again its how much to apply and for how long as its not good to over do it. I found a " jump o lene " that works great as a ball pit. It is inflatable- looks like a swimming pool, but the walls are higher and it has an inflatable bottom that he enjoys alot for that craving deep pressure. I found it at a toy store for about $15.00 and what a great investment as I've seen it for over $40.00 and up elsewhere. The balls at Wal-Mart, about 100 of them for about $20.00. Caution must supervise or you'll end up with the balls thrown everywhere. I did hear another OT mentioning something like a cover or dome tent placed over to avoid this mess. I purchased a small tent with pillows thrown around for his shut down recently at Target and once again for a brief time. Loves his body sox, must be snug fitted. His mini-trampolene, having a blast with it. Yes, my house is turning into a therapy setting. Anything to keep him calm is a-ok in my book on how my house turns out. Its nice that you're staying on track with ruling out any underlying medical issues. How about any food allergy test or have you tried any food elimination with certain items? I've heard others mentioning that once their child was placed on the GFCF diet that this also decreased the headbanging issues. I know its too much to work around on the trial and errors but once you see results and you see your son safe and calm it eases your mind for some comfort that it helps to understand what is going on with your son. www.gfcfdiet.com (gluten free casein free) or www.feingold.org (no artificial colors or flavorings) or at http://laurynhb.tripod.com/jeffwelcome.html Lookin gforward when yu post once something works out for your son and luck on the trials. A great big bear hug to . Irma,15,DS/ASD Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2005 Report Share Posted October 28, 2005 Oh my Theresa - getting in and out of cars withOUT banging my head has become quite the challenge! Isn't it odd that the very simplest things we used to take for granted have become our most difficult to navigate? I think the scariest is not being able to turn to look over my shoulder while driving. Thank God for side mirrors - so far, so good! ~~ > > Hi Ken, My name on the NSF boards is Theresa. I know, not very > imaginative. What you described in the way that you walk and stuff is > how it is for me being fused to the sacrum. You also need to be careful > getting in and out of cars. My son has a 2003 Ford Ranger Tremor with a > lift kit on it and to get out I basically slide down the side of the > seat. I have a 2001 Mazda 626 and have to be careful bringing my head > into the car and I'm only 5'1 1/2 " tall. Driving takes a little getting > used to. I try to pull through the parking spaces so I don't have to > back up when I leave a place. I have also lost some of the motion in my > neck, more so on the right side. I also had arthritic DDD, my discs > were pretty much like yours, hardly anything there. In all, I had 6 > discs removed during the A/P surgery. Theresa > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2005 Report Share Posted October 28, 2005 Hi there.. I bought a mini suv (a GMC Jimmy) not too tall or too low - but I never hit my head... as far as turning your head while driving, I have always kept my shoulders straight and just turned my head in addition to using the mirrors - but I caution you - try not to rely only on mirrors... accidents are caused that way as they are not reliable enough on their own - if you must - I suggest trying to use larger RV type and getting the small tape on round mini mirrors that help to see cars coming along side - also, giving yourself enough time to make a turn... I'm sure you have already thought about these ideas and others.. if so, please do share them with us!! =) <Dawg@...> wrote: Oh my Theresa - getting in and out of cars withOUT banging my head has become quite the challenge! Isn't it odd that the very simplest things we used to take for granted have become our most difficult to navigate? I think the scariest is not being able to turn to look over my shoulder while driving. Thank God for side mirrors - so far, so good!~~>> Hi Ken, My name on the NSF boards is Theresa. I know, not very > imaginative. What you described in the way that you walk and stuff is > how it is for me being fused to the sacrum. You also need to be careful > getting in and out of cars. My son has a 2003 Ford Ranger Tremor with a > lift kit on it and to get out I basically slide down the side of the > seat. I have a 2001 Mazda 626 and have to be careful bringing my head > into the car and I'm only 5'1 1/2" tall. Driving takes a little getting > used to. I try to pull through the parking spaces so I don't have to > back up when I leave a place. I have also lost some of the motion in my > neck, more so on the right side. I also had arthritic DDD, my discs > were pretty much like yours, hardly anything there. In all, I had 6 > discs removed during the A/P surgery. Theresa> Ken Leonard Branch Manager - Sr. Mortgage Planner - Realtor Direct Line: 562-355-2954 Richmond Home Loan 10531 Humbolt St. Los Alamitos, Ca 90720 office: 562-799-9303 fax: 562-799-9304 FareChase - Search multiple travel sites in one click. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2005 Report Share Posted October 28, 2005 Hi Ken - it's hard to imagine until it happens to you, but I never had a problem with hitting my head until after being fused to the sacrum. It really takes away almost ALL of your flexability. And as for driving, unfortunately not only can I not twist my body to look over my shoulder, but my neck also won't turn much more than an inch to the right or the left. My husband has installed truck side- mirrors on the car for me. Not only are they larger, but also include the round distance mirror on the bottom. :-) Peace......... > > > > Hi Ken, My name on the NSF boards is Theresa. I know, not very > > imaginative. What you described in the way that you walk and stuff > is > > how it is for me being fused to the sacrum. You also need to be > careful > > getting in and out of cars. My son has a 2003 Ford Ranger Tremor > with a > > lift kit on it and to get out I basically slide down the side of > the > > seat. I have a 2001 Mazda 626 and have to be careful bringing my > head > > into the car and I'm only 5'1 1/2 " tall. Driving takes a little > getting > > used to. I try to pull through the parking spaces so I don't have > to > > back up when I leave a place. I have also lost some of the motion > in my > > neck, more so on the right side. I also had arthritic DDD, my > discs > > were pretty much like yours, hardly anything there. In all, I had > 6 > > discs removed during the A/P surgery. Theresa > > > > > > > > > scoliosis veterans * flatback sufferers * revision candidates > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2005 Report Share Posted October 28, 2005 Dear and Ken, Thanks for the idea about the small round mirrors for turning or seeing people next to me, I'm going out to get them today. I drive mostly with kids in the car, and mine already know my limitations that way and are my second set of eyes when driving. I especially hate changing lanes on the freeway. Thanks for teaching an old dog new tricks, I'm sure this one will help! Colorado Springs [ ] Re: Head Banging > Hi Ken - it's hard to imagine until it happens to you, but I never > had a problem with hitting my head until after being fused to the > sacrum. It really takes away almost ALL of your flexability. And as > for driving, unfortunately not only can I not twist my body to look > over my shoulder, but my neck also won't turn much more than an inch > to the right or the left. My husband has installed truck side- > mirrors on the car for me. Not only are they larger, but also > include the round distance mirror on the bottom. :-) > Peace......... > > >> > >> > Hi Ken, My name on the NSF boards is Theresa. I know, not very >> > imaginative. What you described in the way that you walk and > stuff >> is >> > how it is for me being fused to the sacrum. You also need to be >> careful >> > getting in and out of cars. My son has a 2003 Ford Ranger Tremor >> with a >> > lift kit on it and to get out I basically slide down the side of >> the >> > seat. I have a 2001 Mazda 626 and have to be careful bringing my >> head >> > into the car and I'm only 5'1 1/2 " tall. Driving takes a little >> getting >> > used to. I try to pull through the parking spaces so I don't > have >> to >> > back up when I leave a place. I have also lost some of the > motion >> in my >> > neck, more so on the right side. I also had arthritic DDD, my >> discs >> > were pretty much like yours, hardly anything there. In all, I > had >> 6 >> > discs removed during the A/P surgery. Theresa >> > >> >> >> >> >> >> >> scoliosis veterans * flatback sufferers * revision candidates >> >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2005 Report Share Posted October 28, 2005 - That's Great!! Thanks for letting us know!! I hope it helps!! - At what levels are you fused? (Is it typical for people to only get about an inch of head movement)? ty! Kirkaldie <.Kirkaldie@...> wrote: Dear and Ken,Thanks for the idea about the small round mirrors for turning or seeing people next to me, I'm going out to get them today. I drive mostly with kids in the car, and mine already know my limitations that way and are my second set of eyes when driving. I especially hate changing lanes on the freeway. Thanks for teaching an old dog new tricks, I'm sure this one will help!Colorado Springs [ ] Re: Head Banging> Hi Ken - it's hard to imagine until it happens to you, but I never> had a problem with hitting my head until after being fused to the> sacrum. It really takes away almost ALL of your flexability. And as> for driving, unfortunately not only can I not twist my body to look> over my shoulder, but my neck also won't turn much more than an inch> to the right or the left. My husband has installed truck side-> mirrors on the car for me. Not only are they larger, but also> include the round distance mirror on the bottom. :-)> Peace.........>> >> >>> > Hi Ken, My name on the NSF boards is Theresa. I know, not very>> > imaginative. What you described in the way that you walk and> stuff>> is>> > how it is for me being fused to the sacrum. You also need to be>> careful>> > getting in and out of cars. My son has a 2003 Ford Ranger Tremor>> with a>> > lift kit on it and to get out I basically slide down the side of>> the>> > seat. I have a 2001 Mazda 626 and have to be careful bringing my>> head>> > into the car and I'm only 5'1 1/2" tall. Driving takes a little>> getting>> > used to. I try to pull through the parking spaces so I don't> have>> to>> > back up when I leave a place. I have also lost some of the> motion>> in my>> > neck, more so on the right side. I also had arthritic DDD, my>> discs>> > were pretty much like yours, hardly anything there. In all, I> had>> 6>> > discs removed during the A/P surgery. Theresa>> >>>>>>>>>>>>>>> scoliosis veterans * flatback sufferers * revision candidates>>>>>>>> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 28, 2005 Report Share Posted October 28, 2005 Hey , Ken, and , , like you I don't have full range of motion with my head anymore. I have more range when I turn to the left and less to the right. I don't know anything about the discs in my neck, but I do know that I have a curve up there and they really don't want to deal with it because it's not real bad, otherwise I would be completely fused. Ken, I don't know if we loose the range of motion in our neck because of being fused to the sacrum. But here is three of us all fused to the sacrum and having problems with turning out heads. Also Ken, when you are walking down the hall or in the mall, and someone says something to you, you can't just keep walking and turn your head to answer them. I find I have to stop and turn my whole body to answer them. , Like you I don't like to change lanes anymore on the freeway because of the limitation with the neck turning. I try to let my husband do all the freeway driving. I have pretty much been staying in our own neck of the city. I really don't like driving in strange places anymore because of being unfamiliar with the roads and not being able to twist to see everything. Well, we are off to see our son and attend a Black Tie banquet for his fraternity in the small town of Nacogdoches, about 2 hours away. Can't wait to get to the hotel and sit in the hot tub and spread out in the king size bed. Take Care, Theresa P.S. , I still want to get over there and meet you one day soon! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2005 Report Share Posted October 29, 2005 Thanks for sharing this with me Theresa ~ ya know, I sound like I already live very similarly to someone fused to scrum then, b/c I do all of that now!! My lumbar spine is almost always inflamed lately... and now I'm starting to notice more pain in the neck to around the shoulder blades (I think I have been on the computer too much)... Ken.Theresa <tabd1@...> wrote: Hey , Ken, and ,, like you I don't have full range of motion with my head anymore. I have more range when I turn to the left and less to the right. I don't know anything about the discs in my neck, but I do know that I have a curve up there and they really don't want to deal with it because it's not real bad, otherwise I would be completely fused.Ken, I don't know if we loose the range of motion in our neck because of being fused to the sacrum. But here is three of us all fused to the sacrum and having problems with turning out heads. Also Ken, when you are walking down the hall or in the mall, and someone says something to you, you can't just keep walking and turn your head to answer them. I find I have to stop and turn my whole body to answer them., Like you I don't like to change lanes anymore on the freeway because of the limitation with the neck turning. I try to let my husband do all the freeway driving. I have pretty much been staying in our own neck of the city. I really don't like driving in strange places anymore because of being unfamiliar with the roads and not being able to twist to see everything.Well, we are off to see our son and attend a Black Tie banquet for his fraternity in the small town of Nacogdoches, about 2 hours away. Can't wait to get to the hotel and sit in the hot tub and spread out in the king size bed.Take Care, TheresaP.S. , I still want to get over there and meet you one day soon! FareChase - Search multiple travel sites in one click. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2005 Report Share Posted October 29, 2005 > Theresa - I asked my doctor at the time about ever needing my neck fused and she didn't even want to discuss it! I think that will be the next surprise for us all....we'll be " the first " ginea pigs to have entire spinal fusions from C-1 to S-1. Horrid thought, isn't it? Peace..... > Hey , Ken, and , > > , like you I don't have full range of motion with my head anymore. > I have more range when I turn to the left and less to the right. I > don't know anything about the discs in my neck, but I do know that I > have a curve up there and they really don't want to deal with it > because it's not real bad, otherwise I would be completely fused. > > Ken, I don't know if we loose the range of motion in our neck because > of being fused to the sacrum. But here is three of us all fused to the > sacrum and having problems with turning out heads. Also Ken, when you > are walking down the hall or in the mall, and someone says something to > you, you can't just keep walking and turn your head to answer them. I > find I have to stop and turn my whole body to answer them. > > , Like you I don't like to change lanes anymore on the freeway > because of the limitation with the neck turning. I try to let my > husband do all the freeway driving. I have pretty much been staying in > our own neck of the city. I really don't like driving in strange places > anymore because of being unfamiliar with the roads and not being able > to twist to see everything. > > Well, we are off to see our son and attend a Black Tie banquet for his > fraternity in the small town of Nacogdoches, about 2 hours away. Can't > wait to get to the hotel and sit in the hot tub and spread out in the > king size bed. > > Take Care, Theresa > > P.S. , I still want to get over there and meet you one day soon! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2005 Report Share Posted October 29, 2005 , Interesting you say that.. the neurosurgeon told me exactly that as a possible risk and one of "his" main reasons not to go in and clean up my disc's (I know theres a more technical term for it... ) Abbreviated... lami/desko?? Anyway, I admit to not knowing much of the medical in's and out's but it would seem with all the new technology they could just replace disc's instead of continuing the fusing going Up the Spine.... ??? Anyone hear of anything new or that is being tested at this point??? Ken. <Dawg@...> wrote: >Theresa -I asked my doctor at the time about ever needing my neck fused and she didn't even want to discuss it! I think that will be the next surprise for us all....we'll be "the first" ginea pigs to have entire spinal fusions from C-1 to S-1. Horrid thought, isn't it?Peace.....>Hey , Ken, and ,> > , like you I don't have full range of motion with my head anymore. > I have more range when I turn to the left and less to the right. I > don't know anything about the discs in my neck, but I do know that I > have a curve up there and they really don't want to deal with it > because it's not real bad, otherwise I would be completely fused.> > Ken, I don't know if we loose the range of motion in our neck because > of being fused to the sacrum. But here is three of us all fused to the > sacrum and having problems with turning out heads. Also Ken, when you > are walking down the hall or in the mall, and someone says something to > you, you can't just keep walking and turn your head to answer them. I > find I have to stop and turn my whole body to answer them.> > , Like you I don't like to change lanes anymore on the freeway > because of the limitation with the neck turning. I try to let my > husband do all the freeway driving. I have pretty much been staying in > our own neck of the city. I really don't like driving in strange places > anymore because of being unfamiliar with the roads and not being able > to twist to see everything.> > Well, we are off to see our son and attend a Black Tie banquet for his > fraternity in the small town of Nacogdoches, about 2 hours away. Can't > wait to get to the hotel and sit in the hot tub and spread out in the > king size bed.> > Take Care, Theresa> > P.S. , I still want to get over there and meet you one day soon!> FareChase - Search multiple travel sites in one click. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2005 Report Share Posted October 29, 2005 Ken - there IS something new to replace fusing....artificial discs. But they are sooo new that there isn't much to go on yet. But it sounds very hopeful for the future. ~~ > > > Theresa - > > I asked my doctor at the time about ever needing my neck fused and > she didn't even want to discuss it! I think that will be the next > surprise for us all....we'll be " the first " ginea pigs to have > entire spinal fusions from C-1 to S-1. Horrid thought, isn't it? > Peace..... > > > > Hey , Ken, and , > > > > , like you I don't have full range of motion with my head > anymore. > > I have more range when I turn to the left and less to the right. I > > don't know anything about the discs in my neck, but I do know that > I > > have a curve up there and they really don't want to deal with it > > because it's not real bad, otherwise I would be completely fused. > > > > Ken, I don't know if we loose the range of motion in our neck > because > > of being fused to the sacrum. But here is three of us all fused to > the > > sacrum and having problems with turning out heads. Also Ken, when > you > > are walking down the hall or in the mall, and someone says > something to > > you, you can't just keep walking and turn your head to answer > them. I > > find I have to stop and turn my whole body to answer them. > > > > , Like you I don't like to change lanes anymore on the > freeway > > because of the limitation with the neck turning. I try to let my > > husband do all the freeway driving. I have pretty much been > staying in > > our own neck of the city. I really don't like driving in strange > places > > anymore because of being unfamiliar with the roads and not being > able > > to twist to see everything. > > > > Well, we are off to see our son and attend a Black Tie banquet for > his > > fraternity in the small town of Nacogdoches, about 2 hours away. > Can't > > wait to get to the hotel and sit in the hot tub and spread out in > the > > king size bed. > > > > Take Care, Theresa > > > > P.S. , I still want to get over there and meet you one day > soon! > > > > > > > > > scoliosis veterans * flatback sufferers * revision candidates > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2006 Report Share Posted August 14, 2006 Hi Dana, In my opinion the trick is to see what is working and to what extent and at what dosages. Try to figure out when the head banging restarted. Actually, I would start with making sure you don't have a fungal flare up right now. If you don't have an antifungal onboard, I would get one. Next, you can stop and restart MB12 again to see if the dosage or the MB12 is causing any headaches... it may in the wrong dose or if someone is a non-responder. I would start there. If nothing changes from the MB12 adjustments then you might want to lower your dose of Valtrex before starting school to see if that helps. If you were seeing rashes I wouldn't stop (especially if you are seeing any type of gain from it elsewhere). - Stan > > I'm new to this group and have gained some very helpful insight from your postings. > > I'm hoping someone can help me with a new problem my son has developed. He just turned six, is non verbal (uses PECs) and is starting his third month of valtrex. > > So far we have had three rash outbreaks and off and on fever. Lately he has started banging his head when frustrated. He bangs it on the bed, couch and sometimes carpeted floor. If we are out and I say it is " time to go " or " don't touch " he grabs my hand and bangs his head on my forearm or hip. > > I feel it starts out as frustration but continues due to some sensory issues being met. > > Has anyone dealt with this before and do you have any suggestions. He has been on mb12 nasal spray for 6 weeks with little noticeable improvement. > > School is starting in two weeks and I am worried about this behavior continuing. > > Any advice would be greatly appreciated. > > Thanks, > Dana > > > --------------------------------- > Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2006 Report Share Posted August 14, 2006 Hi Dana, In my opinion the trick is to see what is working and to what extent and at what dosages. Try to figure out when the head banging restarted. Actually, I would start with making sure you don't have a fungal flare up right now. If you don't have an antifungal onboard, I would get one. Next, you can stop and restart MB12 again to see if the dosage or the MB12 is causing any headaches... it may in the wrong dose or if someone is a non-responder. I would start there. If nothing changes from the MB12 adjustments then you might want to lower your dose of Valtrex before starting school to see if that helps. If you were seeing rashes I wouldn't stop (especially if you are seeing any type of gain from it elsewhere). - Stan > > I'm new to this group and have gained some very helpful insight from your postings. > > I'm hoping someone can help me with a new problem my son has developed. He just turned six, is non verbal (uses PECs) and is starting his third month of valtrex. > > So far we have had three rash outbreaks and off and on fever. Lately he has started banging his head when frustrated. He bangs it on the bed, couch and sometimes carpeted floor. If we are out and I say it is " time to go " or " don't touch " he grabs my hand and bangs his head on my forearm or hip. > > I feel it starts out as frustration but continues due to some sensory issues being met. > > Has anyone dealt with this before and do you have any suggestions. He has been on mb12 nasal spray for 6 weeks with little noticeable improvement. > > School is starting in two weeks and I am worried about this behavior continuing. > > Any advice would be greatly appreciated. > > Thanks, > Dana > > > --------------------------------- > Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2006 Report Share Posted August 14, 2006 Dana,     2 things.  What diet is he on? Gluten and Casein maybe. The one thing that I know helps my son with head issues, (mine does head stands), is crainosacral therapy. It sounds like he is in need of pressure on his head. Maybe he is working on something in his brain with the valtrex and needs some craino to help adjust the flow of the fluid in his brain. I absolutely know when my son needs craino because he takes my hands and places them on his head. Hope this helps. - From: mb12 valtrex [mailto:mb12 valtrex ] On Behalf Of Dana Freeman Sent: Monday, August 14, 2006 11:14 AM mb12 valtrex Subject: Head banging I'm new to this group and have gained some very helpful insight from your postings. I'm hoping someone can help me with a new problem my son has developed. He just turned six, is non verbal (uses PECs) and is starting his third month of valtrex. So far we have had three rash outbreaks and off and on fever. Lately he has started banging his head when frustrated. He bangs it on the bed, couch and sometimes carpeted floor. If we are out and I say it is " time to go " or " don't touch " he grabs my hand and bangs his head on my forearm or hip. I feel it starts out as frustration but continues due to some sensory issues being met. Has anyone dealt with this before and do you have any suggestions. He has been on mb12 nasal spray for 6 weeks with little noticeable improvement. School is starting in two weeks and I am worried about this behavior continuing. Any advice would be greatly appreciated. Thanks, Dana  Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 14, 2006 Report Share Posted August 14, 2006 Dana,     2 things.  What diet is he on? Gluten and Casein maybe. The one thing that I know helps my son with head issues, (mine does head stands), is crainosacral therapy. It sounds like he is in need of pressure on his head. Maybe he is working on something in his brain with the valtrex and needs some craino to help adjust the flow of the fluid in his brain. I absolutely know when my son needs craino because he takes my hands and places them on his head. Hope this helps. - From: mb12 valtrex [mailto:mb12 valtrex ] On Behalf Of Dana Freeman Sent: Monday, August 14, 2006 11:14 AM mb12 valtrex Subject: Head banging I'm new to this group and have gained some very helpful insight from your postings. I'm hoping someone can help me with a new problem my son has developed. He just turned six, is non verbal (uses PECs) and is starting his third month of valtrex. So far we have had three rash outbreaks and off and on fever. Lately he has started banging his head when frustrated. He bangs it on the bed, couch and sometimes carpeted floor. If we are out and I say it is " time to go " or " don't touch " he grabs my hand and bangs his head on my forearm or hip. I feel it starts out as frustration but continues due to some sensory issues being met. Has anyone dealt with this before and do you have any suggestions. He has been on mb12 nasal spray for 6 weeks with little noticeable improvement. School is starting in two weeks and I am worried about this behavior continuing. Any advice would be greatly appreciated. Thanks, Dana  Messenger with Voice. Make PC-to-Phone Calls to the US (and 30+ countries) for 2¢/min or less. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.