Re: IEP Dx Problem

[Guest guest]

TOTALLY agree with Jan!

We went through this last year with our son. I look back and realize that school completely railroaded us...it was horrible. They treated our son like a dog, treated us like idiots. We begged for help from them, thinking they would help us....WRONG!

We got the advocate, called the State's Disability office, and let me tell you,that school straightened up QUICK. It was amazing all the things we requested suddenly were doable...go figure: another class (I HATED his teacher..and still do, she was EVIL and did NOTHING the IEP told her to), the behavorial specialist from the state came in and told the school yes, the parents are correct, you have the dr. dx, why aren't you doing special needs for him? Jake got speech, OT, modified tests, and a whole lot better teacher.

The ball finally started rolling the last semester of school.....our fault we didn't call the advocates office earlier. DO NOT WAIT...call them NOW!

Jake is in a new school now and the difference is incredible. Fantastic school with an awesome IEP team and even better teachers. Jake's whole attitude has changed and we have had zero problems. He got suspended 3 times last year...in 2nd grade, at the last school.

The first IEP meeting at this new school, I was terrified. I came out of that meeting in tears...of joy. I asked about getting an aid...something the last school literally laughed at as it was "all Jake's fault and he needed a good spanking." The Principal was at this meeting too and she said, "okay momma wants an aid, let's see what we can do." I about fell over! I was acknowledged as having a real concern.....WOW!!!!

I am amazed at the difference in schools here, both public schools. This school now has taught me what the last school did was criminal. Do you know the HEAD of the Special Needs for the COUNTY at the last school told me, " what happens here stays here", when I wanted a daily report sent home. Oh yeah, she's a winner.

I cannot stress enough, CALL THE ADVOCATE'S OFFICE NOW!

Tracey

In a message dated 12/15/2008 7:24:39 P.M. Central Standard Time, jrushen@... writes:

First...who did the evaluation? The school? Go get another evaluation...

Can your advocate go with you to the IEP tomorrow? If not go...but don't sign the paperwork yet...tell them you need to take it home to review it..I think you have 10 days. Here in the state of PA, it is called a NOREP (notice of _________educational placement). I have to look up what the R stands for again....any ways...I never sign it there...I always go home and review it.

And, like everyone tells me....you are part of the IEP team can request a team meeting anytime you want. And, if it is in his IEP and they are not following it ...then they are in the WRONG. The IEP is a fedearl regulation which MUST be followed. Get a book on IEP's and get your Advocate ASAP.....it will help so much.

Go to the meeting but don't let them bully you. Take information with you and write down whta you want to discuss and what you want them to provide your child and why and back it up with information...from books or info. from the internet. They will try to ride you..that is why you need an advocate....but the main thing is that the meeting is tommorrow...go...but don't sign anything...tell them you need to review it ...tell them you are getting an advocate. Please polite and repsectful...but don't let them pull the wool over your eyes. REad asa mauch as you can about your rights and your child's rights...Remember in reality you and your child are the Boss...they school won't let you know this ...but you are!

Jan

Janice Rushen

"I will try to be open to all avenues of wisdom and hope"

From: Sandy <xo_sandy >Subject: ( ) IEP Dx Problem Date: Monday, December 15, 2008, 4:52 PM

History:I adopted my son 1 1/2 years ago...at age 7 he received his first IEPunder the dx of Emotional Disturbance. He lived in 8 different fosterhomes before being placed with us...and we adopted.His dx through DSM IV is Reactive attachment Disorder; DepressiveDisorder; Academic Problems; Sexual Abuse Victim; Loss of bio home;foster placement; social skills difficulties; atypical behaviors; andcommunication problems.Recently, he received a Dx of Aspergers...He has been to children's hosp. and tested for chromosomalabnormalities (fragile X) and came back normal. He is being referredto neurology to be tested for other problems such as fetal developmentdisorders... he has very simple palmar creases as well as milddysmorphic facial features. Overall his appearance and actions arevery apparent that he is special needs.He tests low normal IQ as low as 79 and as high as 88. He is inspecial ed as well as mainstreamed. He lacks fine motor skills andsocial skills. His work is modified due to lack of concentration andeffort; however, he tests academically within normal of his peers.Present:I requested IEP reassessment because my son cannot get OT or testedfor learning disabilities under dx of emotional disturbance.I feel like his dx can be changed to Autism due to his AS diagnosis;however, I was just informed that his reevaluation was conducted andhe is going to remain with Dx of Emotional Disturbance because he doesnot fall under Autism.I feel an injustice is being done to my child and his educationalneeds are not being met. Every IEP...it is said that teachers willinform parents of child's assignments. ..and it's never done. He seemsto go to class and wave in and out of attention... not do any work andkeep getting passed to next grade level.I have signed up for an IEP Workshop and will meet with an advocate. but his IEP is tomorrow and nothing is going to get changed. What doI need to overrule the assessment?Also, has anyone noticed that Asperger's Disorder under theEducational Guidelines holds the same Behaviors as EmotionalDisturbance? I am at a loss...any help is appreciated. Thank you. A Good Credit Score is 700 or Above. See yours in just 2 easy steps!

[Guest guest]

First...who did the evaluation? The school? Go get another evaluation...

Can your advocate go with you to the IEP tomorrow? If not go...but don't sign the paperwork yet...tell them you need to take it home to review it..I think you have 10 days. Here in the state of PA, it is called a NOREP (notice of _________educational placement). I have to look up what the R stands for again....any ways...I never sign it there...I always go home and review it.

And, like everyone tells me....you are part of the IEP team can request a team meeting anytime you want. And, if it is in his IEP and they are not following it ...then they are in the WRONG. The IEP is a fedearl regulation which MUST be followed. Get a book on IEP's and get your Advocate ASAP.....it will help so much.

Go to the meeting but don't let them bully you. Take information with you and write down whta you want to discuss and what you want them to provide your child and why and back it up with information...from books or info. from the internet. They will try to ride you..that is why you need an advocate....but the main thing is that the meeting is tommorrow...go...but don't sign anything...tell them you need to review it ...tell them you are getting an advocate. Please polite and repsectful...but don't let them pull the wool over your eyes. REad asa mauch as you can about your rights and your child's rights...Remember in reality you and your child are the Boss...they school won't let you know this ...but you are!

Jan

Janice Rushen

"I will try to be open to all avenues of wisdom and hope"

From: Sandy <xo_sandy@...>Subject: ( ) IEP Dx Problem Date: Monday, December 15, 2008, 4:52 PM

History:I adopted my son 1 1/2 years ago...at age 7 he received his first IEPunder the dx of Emotional Disturbance. He lived in 8 different fosterhomes before being placed with us...and we adopted.His dx through DSM IV is Reactive attachment Disorder; DepressiveDisorder; Academic Problems; Sexual Abuse Victim; Loss of bio home;foster placement; social skills difficulties; atypical behaviors; andcommunication problems.Recently, he received a Dx of Aspergers...He has been to children's hosp. and tested for chromosomalabnormalities (fragile X) and came back normal. He is being referredto neurology to be tested for other problems such as fetal developmentdisorders... he has very simple palmar creases as well as milddysmorphic facial features. Overall his appearance and actions arevery apparent that he is special needs.He tests low normal IQ as low as 79 and as high as 88. He

is inspecial ed as well as mainstreamed. He lacks fine motor skills andsocial skills. His work is modified due to lack of concentration andeffort; however, he tests academically within normal of his peers.Present:I requested IEP reassessment because my son cannot get OT or testedfor learning disabilities under dx of emotional disturbance.I feel like his dx can be changed to Autism due to his AS diagnosis;however, I was just informed that his reevaluation was conducted andhe is going to remain with Dx of Emotional Disturbance because he doesnot fall under Autism.I feel an injustice is being done to my child and his educationalneeds are not being met. Every IEP...it is said that teachers willinform parents of child's assignments. ..and it's never done. He seemsto go to class and wave in and out of attention... not do any work andkeep getting passed to next grade level.I

have signed up for an IEP Workshop and will meet with an advocate. but his IEP is tomorrow and nothing is going to get changed. What doI need to overrule the assessment?Also, has anyone noticed that Asperger's Disorder under theEducational Guidelines holds the same Behaviors as EmotionalDisturbance? I am at a loss...any help is appreciated. Thank you.

[Guest guest]

I just remember the r stands for recommended....

Anyways...go to www.wrightslaw.com.....

there is tons and tons of informatin there to help you advocate for your child.....Roxanna told me about this site....it is Wonderful!!!

Janice Rushen

"I will try to be open to all avenues of wisdom and hope"

From: Sandy <xo_sandy (DOT) com>Subject: ( ) IEP Dx Problem Date: Monday, December 15, 2008, 4:52 PM

History:I adopted my son 1 1/2 years ago...at age 7 he received his first IEPunder the dx of Emotional Disturbance. He lived in 8 different fosterhomes before being placed with us...and we adopted.His dx through DSM IV is Reactive attachment Disorder; DepressiveDisorder; Academic Problems; Sexual Abuse Victim; Loss of bio home;foster placement; social skills difficulties; atypical behaviors; andcommunication problems.Recently, he received a Dx of Aspergers...He has been to children's hosp. and tested for chromosomalabnormalities (fragile X) and came back normal. He is being referredto neurology to be tested for other problems such as fetal developmentdisorders... he has very simple palmar creases as well as milddysmorphic facial features. Overall his appearance and actions arevery apparent that he is special needs.He tests low normal IQ as low as 79 and as high as 88. He

is inspecial ed as well as mainstreamed. He lacks fine motor skills andsocial skills. His work is modified due to lack of concentration andeffort; however, he tests academically within normal of his peers.Present:I requested IEP reassessment because my son cannot get OT or testedfor learning disabilities under dx of emotional disturbance.I feel like his dx can be changed to Autism due to his AS diagnosis;however, I was just informed that his reevaluation was conducted andhe is going to remain with Dx of Emotional Disturbance because he doesnot fall under Autism.I feel an injustice is being done to my child and his educationalneeds are not being met. Every IEP...it is said that teachers willinform parents of child's assignments. ..and it's never done. He seemsto go to class and wave in and out of attention... not do any work andkeep getting passed to next grade level.I

have signed up for an IEP Workshop and will meet with an advocate. but his IEP is tomorrow and nothing is going to get changed. What doI need to overrule the assessment?Also, has anyone noticed that Asperger's Disorder under theEducational Guidelines holds the same Behaviors as EmotionalDisturbance? I am at a loss...any help is appreciated. Thank you.

[Guest guest]

I just remember the r stands for recommended....

Anyways...go to www.wrightslaw.com.....

there is tons and tons of informatin there to help you advocate for your child.....Roxanna told me about this site....it is Wonderful!!!

Janice Rushen

"I will try to be open to all avenues of wisdom and hope"

From: Sandy <xo_sandy (DOT) com>Subject: ( ) IEP Dx Problem Date: Monday, December 15, 2008, 4:52 PM

History:I adopted my son 1 1/2 years ago...at age 7 he received his first IEPunder the dx of Emotional Disturbance. He lived in 8 different fosterhomes before being placed with us...and we adopted.His dx through DSM IV is Reactive attachment Disorder; DepressiveDisorder; Academic Problems; Sexual Abuse Victim; Loss of bio home;foster placement; social skills difficulties; atypical behaviors; andcommunication problems.Recently, he received a Dx of Aspergers...He has been to children's hosp. and tested for chromosomalabnormalities (fragile X) and came back normal. He is being referredto neurology to be tested for other problems such as fetal developmentdisorders... he has very simple palmar creases as well as milddysmorphic facial features. Overall his appearance and actions arevery apparent that he is special needs.He tests low normal IQ as low as 79 and as high as 88. He

is inspecial ed as well as mainstreamed. He lacks fine motor skills andsocial skills. His work is modified due to lack of concentration andeffort; however, he tests academically within normal of his peers.Present:I requested IEP reassessment because my son cannot get OT or testedfor learning disabilities under dx of emotional disturbance.I feel like his dx can be changed to Autism due to his AS diagnosis;however, I was just informed that his reevaluation was conducted andhe is going to remain with Dx of Emotional Disturbance because he doesnot fall under Autism.I feel an injustice is being done to my child and his educationalneeds are not being met. Every IEP...it is said that teachers willinform parents of child's assignments. ..and it's never done. He seemsto go to class and wave in and out of attention... not do any work andkeep getting passed to next grade level.I

have signed up for an IEP Workshop and will meet with an advocate. but his IEP is tomorrow and nothing is going to get changed. What doI need to overrule the assessment?Also, has anyone noticed that Asperger's Disorder under theEducational Guidelines holds the same Behaviors as EmotionalDisturbance? I am at a loss...any help is appreciated. Thank you.

[Guest guest]

Well I don't understand not getting OT. OT doesn't have to do with a

diagnosis, it has to do with fine & /or gross motor skills. I would

request an OT evaluation, mention his fine motor skills, what you

have noticed about them and request an evaluation for OT. If you can

think of how to tie it in with skills he needs for school (like

writing, using scissors, coloring, participating in PE...) that can

help justify the need.

One of my sons who was only getting speech therapy (for articulation)

got an OT eval, didn't have any diagnoses at all back then. This was

thru school.

If they feel his education is more affected by the other diagnoses so

argue the ED and putting him under Autism, then state you would

really like Autism added to his dx list in his record. Maybe argue

that some of his behavior problems might be helped if looked at from

the " autism perspective " as to what he needs, his learning style, how

to stop triggering any behaviors, how to get him to do his work

better, stay on task, maybe he needs many reminders/prompts before a

change in daily routine.... (Does he even have a behavior problem?

just threw that in above, may not be a problem)

Are you wanting his assignments written and sent home daily? Since

it hasn't been done, mention that and ask what THEY think is the best

way to get his assignments to you -- they will write/put in envelope,

they could email it to you daily, they could give you the homework

they plan to do for the entire week each Monday instead of daily....

Asking what would be easiest for the teacher (instead of sounding

like a demand or a complaint, etc) might make some type progress

here. (This always seems to be one the teachers find hard to follow

up with, even when put in the IEP)

Is he getting counseling anywhere? Wondering if he has a mental

health case manager, someone who could attend these meetings with

you. Also I would think he might qualify for some type services

through mental health, where at least you might get some support when

it comes to dealing with the school system. The way the mental

health system looks at youth/kids here is that if they have a mental

illness dx and also a developmental disability (DD) dx, then they

will generally put them under the " population " that seems to be

causing the most problems/need the most help -- so they might fall

under the MI or the DD so far as type of services they are eligible

for.

Quick thoughts and let us know how the IEP meeting goes. Wish I

could think of more to offer right now!

>

> History:

>

> I adopted my son 1 1/2 years ago...at age 7 he received his first

IEP

> under the dx of Emotional Disturbance. He lived in 8 different

foster

> homes before being placed with us...and we adopted.

[Guest guest]

LOL...I forgot to mention my reply:

"Is this Vegas?" She was FURIOUS at me and informed me that if I didn't " conduct myself better" we'd end the meeting. I laughed and winked at her in a "bitch" sort of way.

The Counselor was laughing and he later told me that it was the funniest thing he'd heard in a long time, "she deserved it" he said.

That woman was hated by everybody.

Tracey

In a message dated 12/16/2008 7:16:30 A.M. Central Standard Time, madideas@... writes:

Tracey wrote:

<<Do you know the HEAD of the Special Needs for the COUNTY at the last school told me, " what happens here stays here", when I wanted a daily report sent home. Oh yeah, she's a winner.>>

OMG! What a jerk! and how original! lol. I'm glad you got out of there!

RoxannaYou're UniqueJust like everyone else...

( ) IEP Dx Problem Date: Monday, December 15, 2008, 4:52 PM

History:I adopted my son 1 1/2 years ago...at age 7 he received his first IEPunder the dx of Emotional Disturbance. He lived in 8 different fosterhomes before being placed with us...and we adopted.His dx through DSM IV is Reactive attachment Disorder; DepressiveDisorder; Academic Problems; Sexual Abuse Victim; Loss of bio home;foster placement; social skills difficulties; atypical behaviors; andcommunication problems.Recently, he received a Dx of Aspergers...He has been to children's hosp. and tested for chromosomalabnormalities (fragile X) and came back normal. He is being referredto neurology to be tested for other problems such as fetal developmentdisorders... he has very simple palmar creases as well as milddysmorphic facial features. Overall his appearance and actions arevery apparent that he is special needs.He tests low normal IQ as low as 79 and as high as 88. He is inspecial ed as well as mainstreamed. He lacks fine motor skills andsocial skills. His work is modified due to lack of concentration andeffort; however, he tests academically within normal of his peers.Present:I requested IEP reassessment because my son cannot get OT or testedfor learning disabilities under dx of emotional disturbance.I feel like his dx can be changed to Autism due to his AS diagnosis;however, I was just informed that his reevaluation was conducted andhe is going to remain with Dx of Emotional Disturbance because he doesnot fall under Autism.I feel an injustice is being done to my child and his educationalneeds are not being met. Every IEP...it is said that teachers willinform parents of child's assignments. ..and it's never done. He seemsto go to class and wave in and out of attention... not do any work andkeep getting passed to next grade level.I have signed up for an IEP Workshop and will meet with an advocate. but his IEP is tomorrow and nothing is going to get changed. What doI need to overrule the assessment?Also, has anyone noticed that Asperger's Disorder under theEducational Guidelines holds the same Behaviors as EmotionalDisturbance? I am at a loss...any help is appreciated. Thank you.

A Good Credit Score is 700 or Above. See yours in just 2 easy steps!

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[Guest guest]

You said the evaluation was done but they need to get your permission before they do evaluations. Did you discuss what testing to have done and sign a paper with a list of testing on it? They can test for OT even if they have already finished the evaluation. They are required to test him in all areas of suspected disability, even if the problems are not related to his dx. So they need to address all areas where he is struggling.

Also, they can't tell you ahead of the meeting that they have decided what classification he is in. This is an IEP team decision and you are part of that team. This should not be discussed and decided upon until after the whole team has gone through all his information, including any relevant information that you have as well.

Sounds like you really need to find an advocate to help you with these things. Do not sign the IEP papers. Tell them you need time to go over them. Get an advocate and go over your concerns and what is going on.

Also, if they are not following the IEP, you have to let them know it and expect it to happen. Write letters and go up the food chain until someone makes it happen. It can be a problem - half the battle sometimes! - to get the IEP followed. The more you know about the laws, the better you will be able to advocate for him!

RoxannaYou're UniqueJust like everyone else...

( ) IEP Dx Problem

History:I adopted my son 1 1/2 years ago...at age 7 he received his first IEPunder the dx of Emotional Disturbance. He lived in 8 different fosterhomes before being placed with us...and we adopted.His dx through DSM IV is Reactive attachment Disorder; DepressiveDisorder; Academic Problems; Sexual Abuse Victim; Loss of bio home;foster placement; social skills difficulties; atypical behaviors; andcommunication problems.Recently, he received a Dx of Aspergers...He has been to children's hosp. and tested for chromosomalabnormalities (fragile X) and came back normal. He is being referredto neurology to be tested for other problems such as fetal developmentdisorders...he has very simple palmar creases as well as milddysmorphic facial features. Overall his appearance and actions arevery apparent that he is special needs.He tests low normal IQ as low as 79 and as high as 88. He is inspecial ed as well as mainstreamed. He lacks fine motor skills andsocial skills. His work is modified due to lack of concentration andeffort; however, he tests academically within normal of his peers.Present:I requested IEP reassessment because my son cannot get OT or testedfor learning disabilities under dx of emotional disturbance.I feel like his dx can be changed to Autism due to his AS diagnosis;however, I was just informed that his reevaluation was conducted andhe is going to remain with Dx of Emotional Disturbance because he doesnot fall under Autism.I feel an injustice is being done to my child and his educationalneeds are not being met. Every IEP...it is said that teachers willinform parents of child's assignments...and it's never done. He seemsto go to class and wave in and out of attention...not do any work andkeep getting passed to next grade level.I have signed up for an IEP Workshop and will meet with an advocate. but his IEP is tomorrow and nothing is going to get changed. What doI need to overrule the assessment?Also, has anyone noticed that Asperger's Disorder under theEducational Guidelines holds the same Behaviors as EmotionalDisturbance? I am at a loss...any help is appreciated. Thank you.

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[Guest guest]

Tracey wrote:

<<Do you know the HEAD of the Special Needs for the COUNTY at the last school told me, " what happens here stays here", when I wanted a daily report sent home. Oh yeah, she's a winner.>>

OMG! What a jerk! and how original! lol. I'm glad you got out of there!

RoxannaYou're UniqueJust like everyone else...

( ) IEP Dx Problem Date: Monday, December 15, 2008, 4:52 PM

History:I adopted my son 1 1/2 years ago...at age 7 he received his first IEPunder the dx of Emotional Disturbance. He lived in 8 different fosterhomes before being placed with us...and we adopted.His dx through DSM IV is Reactive attachment Disorder; DepressiveDisorder; Academic Problems; Sexual Abuse Victim; Loss of bio home;foster placement; social skills difficulties; atypical behaviors; andcommunication problems.Recently, he received a Dx of Aspergers...He has been to children's hosp. and tested for chromosomalabnormalities (fragile X) and came back normal. He is being referredto neurology to be tested for other problems such as fetal developmentdisorders... he has very simple palmar creases as well as milddysmorphic facial features. Overall his appearance and actions arevery apparent that he is special needs.He tests low normal IQ as low as 79 and as high as 88. He is inspecial ed as well as mainstreamed. He lacks fine motor skills andsocial skills. His work is modified due to lack of concentration andeffort; however, he tests academically within normal of his peers.Present:I requested IEP reassessment because my son cannot get OT or testedfor learning disabilities under dx of emotional disturbance.I feel like his dx can be changed to Autism due to his AS diagnosis;however, I was just informed that his reevaluation was conducted andhe is going to remain with Dx of Emotional Disturbance because he doesnot fall under Autism.I feel an injustice is being done to my child and his educationalneeds are not being met. Every IEP...it is said that teachers willinform parents of child's assignments. ..and it's never done. He seemsto go to class and wave in and out of attention... not do any work andkeep getting passed to next grade level.I have signed up for an IEP Workshop and will meet with an advocate. but his IEP is tomorrow and nothing is going to get changed. What doI need to overrule the assessment?Also, has anyone noticed that Asperger's Disorder under theEducational Guidelines holds the same Behaviors as EmotionalDisturbance? I am at a loss...any help is appreciated. Thank you.

A Good Credit Score is 700 or Above. See yours in just 2 easy steps!

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[Guest guest]

He he. I love it!!!! That's good.

From: Sandy <xo_sandy (DOT) com>Subject: ( ) IEP Dx Problem Date: Monday, December 15, 2008, 4:52 PM

History:I adopted my son 1 1/2 years ago...at age 7 he received his first IEPunder the dx of Emotional Disturbance. He lived in 8 different fosterhomes before being placed with us...and we adopted.His dx through DSM IV is Reactive attachment Disorder; DepressiveDisorder; Academic Problems; Sexual Abuse Victim; Loss of bio home;foster placement; social skills difficulties; atypical behaviors; andcommunication problems.Recently, he received a Dx of Aspergers...He has been to children's hosp. and tested for chromosomalabnormalities (fragile X) and came back normal. He is being referredto neurology to be tested for other problems such as fetal developmentdisorders... he has very simple palmar creases as well as milddysmorphic facial features. Overall his appearance and actions arevery apparent that he is special needs.He tests low normal IQ as low as 79 and as high as 88. He

is inspecial ed as well as mainstreamed. He lacks fine motor skills andsocial skills. His work is modified due to lack of concentration andeffort; however, he tests academically within normal of his peers.Present:I requested IEP reassessment because my son cannot get OT or testedfor learning disabilities under dx of emotional disturbance.I feel like his dx can be changed to Autism due to his AS diagnosis;however, I was just informed that his reevaluation was conducted andhe is going to remain with Dx of Emotional Disturbance because he doesnot fall under Autism.I feel an injustice is being done to my child and his educationalneeds are not being met. Every IEP...it is said that teachers willinform parents of child's assignments. ..and it's never done. He seemsto go to class and wave in and out of attention... not do any work andkeep getting passed to next grade level.I

have signed up for an IEP Workshop and will meet with an advocate. but his IEP is tomorrow and nothing is going to get changed. What doI need to overrule the assessment?Also, has anyone noticed that Asperger's Disorder under theEducational Guidelines holds the same Behaviors as EmotionalDisturbance? I am at a loss...any help is appreciated. Thank you.

A Good Credit Score is 700 or Above. See yours in just 2 easy steps!

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A Good Credit Score is 700 or Above. See yours in just 2 easy steps!

[Guest guest]

I agree with Jan on this.

I've been there, too & didn't get help for my son from the school

district until I hired an advocate and then a lawyer. Before I got

the advocate, I attended an IEP meeting where the meeting started by

asking me to sign a blank form stating that I agreed with the

results of the meeting. I didn't sign. At another meeting, one of

the school district employees was sure that my son did not have AS

(even though I had reports from 3 doctors) and she was on the phone

to a doctor friend who she said could come to my house today and

give my son an injection for depression that would have him back in

school within the week. This was really scary for me, not to mention

illegal.

When I had a lawyer, the school district still pushed everyone to

sign at the end of the meetings. They even scolded my lawyer for not

signing at the meetings. The lawyer just firmly stated that her firm

has a policy where the parent has a few days to review the results

of the meeting before signing.

So, don't be afraid to be a Mama Bear and to protect your cub. You

are the only person who really has your child's best interests at

heart.

(My 2 cents. The ED classification is not appropriate for AS kids.

The school may try to offer ED services as a solution, but they are

not appropriate for our kids. You do not want your child in a room

with kids who have behavior problems doing remedial schoolwork. Your

child will be bored by the classwork and will be the target for

bullies.)

[Guest guest]

>

> You said the evaluation was done but they need to get your

permission before they do evaluations. Did you discuss what testing

to have done and sign a paper with a list of testing on it? They can

test for OT even if they have already finished the evaluation. They

are required to test him in all areas of suspected disability, even if

the problems are not related to his dx. So they need to address all

areas where he is struggling.

One thing I found out recently is that, after the first IEP, parents

don't have as many rights. Also, in my state, being classified as

emotionally disturbed causes the student to lose a lot of rights.

Because Asperger is not an emotional disturbance, I would say that

maybe your first goal should be to get rid of the ED classification

and replace it with an AUT classification or whatever Asperger comes

under in your state. Sounds like you've already figured that out,

though. Also, they aren't required to test in all areas of disability

if they can " prove " it isn't relevant to success in the classroom.

You know that " proof " may be shaky, so watch that.

If you get your own evaluations done under your health insurance, your

medical dx will probably supercede their educational dx and also be

more detailed and useful. Just make sure you get their guidelines and

use someone the school district considers qualified. I don't think we

would have gotten anywhere without doing this.

Good luck--hope you aren't feeling so overwhelmed anymore!

Ruth

[Guest guest]

There are advocate out there for FREE...I have one....I have Learned so Much...and actually we (in PA) have 10 days before we have to sign...

I just signed my son's NOREP...I signed both Yes, I agee and No I don't agree.

What?

I checked...yes...I do agree with NOREP so that we could get the plan started as my son has specific learning disabilities and needs the servcies enacted ASAP.

But I also checked no I don't agree...and stated exactly what we still need to work on and why etc. etc

I always bring in printed articles and information on AS...such as ...if I am fighting for OT or Speech...I will look in the internet for proof that most AS children needs this. Or I iwll find article on how to work with or teach children with AS.

Now I really don't know about any other state....but I do know this is a FACT ....we Parents have MORE RIGHTS than we know. The schools are educated in this field so they run us over....we just need to read and learn our rights and stand up to them......get books out ...read...go to classes....I have found out that my son's school has done several illegal things....and thus I am gvien more ....I could have sued but that is not what I want...all I want is for them to help my son, to be able to teach him and guide him so that he will be able to function better in this world...so that he can obtain a job some day and be a participating individual. I also want to educate the school staff that our children are not "lazy" "defiaant in the way they think they are" and that our children do have emotions....I wish I could teach these teachers how to teach our kids.....ha haa! Maybe I will some day....

Jan

P.S. WE as parents have Much more weight and you just need to how the system works...sad but true ...it is a bureaucracy and we need to learn the laws...because the schools are breaking them left and right...and once you know that ...you can scare the "heck" out of them...remember...YOU do HAVE the POWER...they just make it look like you don't...but you can get them scrambling...so enpower yourselves ...read as much as you can on the laws and IEP.

For instance: my son has goals....but they didn't state the starting point....how it was going to be shown...plus I wasn't getting quarterly reports....well I finally got them...POOR...my son went backwards on everything...so I said...What are WE going to do ...to get my son to reach his goals...obviously something is NOT working.....Also, in the state of PA.....all Sped Classes have to teach at grade level.....so I said...How are WE going to get him to GRADE LEVEl....obviously they don't know as they have not answered me...but I have them thinking...and I will keep them on their toes....

Janice Rushen

"I will try to be open to all avenues of wisdom and hope"

From: Tamaoki <tamaoki_s@...>Subject: Re: ( ) IEP Dx Problem Date: Tuesday, December 16, 2008, 1:38 PM

I agree with Jan on this. I've been there, too & didn't get help for my son from the school district until I hired an advocate and then a lawyer. Before I got the advocate, I attended an IEP meeting where the meeting started by asking me to sign a blank form stating that I agreed with the results of the meeting. I didn't sign. At another meeting, one of the school district employees was sure that my son did not have AS (even though I had reports from 3 doctors) and she was on the phone to a doctor friend who she said could come to my house today and give my son an injection for depression that would have him back in school within the week. This was really scary for me, not to mention illegal. When I had a lawyer, the school district still pushed everyone to sign at the end of the meetings. They even scolded my lawyer for not signing at the meetings. The lawyer just firmly stated

that her firm has a policy where the parent has a few days to review the results of the meeting before signing.So, don't be afraid to be a Mama Bear and to protect your cub. You are the only person who really has your child's best interests at heart. (My 2 cents. The ED classification is not appropriate for AS kids. The school may try to offer ED services as a solution, but they are not appropriate for our kids. You do not want your child in a room with kids who have behavior problems doing remedial schoolwork. Your child will be bored by the classwork and will be the target for bullies.)

[Guest guest]

From all the teachers I work with and retired teachers I know here in the state of PA...an IEP is a legal document.....and it MUST be followed...and if it is NOT ..then there can be legal ramifications.....these are from the mouths of TEACHERS and my son's tutor said she always followed the IEP ...they are federally mandated.....

And also from the mouths of teachers......and I sure do know Many....we PARENTS have the POWER...we just don't know it and the school don't want us to know it...so they try to railroad us and bully us....that is why it is important to have an ADVOCATE.

Like I have said ...I discover serveral MAJOR errors with my son's schooling and IEP's and now the school is bending over backwards ...and they really listen and straighten up when you walk in with an Advocate....even shake in their boots....

Jan

Janice Rushen

"I will try to be open to all avenues of wisdom and hope"

From: Roxanna <madideas@...>Subject: Re: ( ) IEP Dx Problem Date: Tuesday, December 16, 2008, 8:01 AM

You said the evaluation was done but they need to get your permission before they do evaluations. Did you discuss what testing to have done and sign a paper with a list of testing on it? They can test for OT even if they have already finished the evaluation. They are required to test him in all areas of suspected disability, even if the problems are not related to his dx. So they need to address all areas where he is struggling.

Also, they can't tell you ahead of the meeting that they have decided what classification he is in. This is an IEP team decision and you are part of that team. This should not be discussed and decided upon until after the whole team has gone through all his information, including any relevant information that you have as well.

Sounds like you really need to find an advocate to help you with these things. Do not sign the IEP papers. Tell them you need time to go over them. Get an advocate and go over your concerns and what is going on.

Also, if they are not following the IEP, you have to let them know it and expect it to happen. Write letters and go up the food chain until someone makes it happen. It can be a problem - half the battle sometimes! - to get the IEP followed. The more you know about the laws, the better you will be able to advocate for him!

RoxannaYou're UniqueJust like everyone else...

( ) IEP Dx Problem

History:I adopted my son 1 1/2 years ago...at age 7 he received his first IEPunder the dx of Emotional Disturbance. He lived in 8 different fosterhomes before being placed with us...and we adopted.His dx through DSM IV is Reactive attachment Disorder; DepressiveDisorder; Academic Problems; Sexual Abuse Victim; Loss of bio home;foster placement; social skills difficulties; atypical behaviors; andcommunication problems.Recently, he received a Dx of Aspergers...He has been to children's hosp. and tested for chromosomalabnormalities (fragile X) and came back normal. He is being referredto neurology to be tested for other problems such as fetal developmentdisorders... he has very simple palmar creases as well as milddysmorphic facial features. Overall his appearance and actions arevery apparent that he is special needs.He tests low normal IQ as low as 79 and as high as 88. He

is inspecial ed as well as mainstreamed. He lacks fine motor skills andsocial skills. His work is modified due to lack of concentration andeffort; however, he tests academically within normal of his peers.Present:I requested IEP reassessment because my son cannot get OT or testedfor learning disabilities under dx of emotional disturbance.I feel like his dx can be changed to Autism due to his AS diagnosis;however, I was just informed that his reevaluation was conducted andhe is going to remain with Dx of Emotional Disturbance because he doesnot fall under Autism.I feel an injustice is being done to my child and his educationalneeds are not being met. Every IEP...it is said that teachers willinform parents of child's assignments. ..and it's never done. He seemsto go to class and wave in and out of attention... not do any work andkeep getting passed to next grade level.I

have signed up for an IEP Workshop and will meet with an advocate. but his IEP is tomorrow and nothing is going to get changed. What doI need to overrule the assessment?Also, has anyone noticed that Asperger's Disorder under theEducational Guidelines holds the same Behaviors as EmotionalDisturbance? I am at a loss...any help is appreciated. Thank you.

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[Guest guest]

We did private school for one year. I found that private school teachers are even more inexperienced than public school teachers. Now they tend to have more patience and are just nicer more understanding people, but as a private school teacher they don't have the special needs education...or special needs classes to learn from.

Plus with a private school, from our experience, they don't have the special needs services available and if they do, they are not free.

So with us in doing both schools, public school has more services available and it's free!

This may be different in other states, this is how it was in Arkansas.

Tracey

In a message dated 12/17/2008 6:52:34 A.M. Central Standard Time, ACuitino@... writes:

I have been where you are and even though some parents have good experiences with the services in public school, I still believe that in some cases we should look for other options in private school, before is too late. Any child can be damage by bad teachers and in the case of children in the spectrum the risk is even higher.My daughter is 17 now, she has AS plus a number of other issues associated to AS. She just finished her first semester I college with a GPA of 3.8, main stream full student, she lives in campus and right now we are trying to survive the Christmas break. It is a difficult journey and I am very tired most ot the time but I do not regret any minute. Do not allow your child to be mistreated in any way. God bless you. Sent from my BlackBerry® smartphone with SprintSpeed

From: rushen janice Date: Wed, 17 Dec 2008 01:46:35 -0800 (PST)< >Subject: Re: ( ) IEP Dx Problem

I am so fed up and tired of some of these teachers...and I work with them...Ha Ha! Well, not in the school where my ds is ....why do people go into teaching ...especially Sped...if they are not caring, compasionate, willing to go beyond....I hate hearing stories about how EVIL and CRUEL they are to Specia Needs children....My son too had a Wicked Witch of the WEst in 5th grade...just the look on her face when she marched into the IEP meetings was enough....and her TONE...she was Creulla over and over. Now she has a baby....let's see what happens.

I thought this year ...7th...would be better...but when we went into the IEP meeting ..me with my advocate...my son's case manager and sped teacher was very harsh to her (my advocate)....and she had not even said anything....

Now I had to write to my son's SS teacher...my son as he feels...that he is constantly yelling at him ....and so now my son is shutting down....and is turned off and angry.

Oh man, I wish these teachers knew how to work with our kids.

Jan

Janice Rushen

"I will try to be open to all avenues of wisdom and hope"

From: Sandy <xo_sandy (DOT) com>Subject: ( ) IEP Dx Problem Date: Monday, December 15, 2008, 4:52 PM

History:I adopted my son 1 1/2 years ago...at age 7 he received his first IEPunder the dx of Emotional Disturbance. He lived in 8 different fosterhomes before being placed with us...and we adopted.His dx through DSM IV is Reactive attachment Disorder; DepressiveDisorder; Academic Problems; Sexual Abuse Victim; Loss of bio home;foster placement; social skills difficulties; atypical behaviors; andcommunication problems.Recently, he received a Dx of Aspergers...He has been to children's hosp. and tested for chromosomalabnormalities (fragile X) and came back normal. He is being referredto neurology to be tested for other problems such as fetal developmentdisorders... he has very simple palmar creases as well as milddysmorphic facial features. Overall his appearance and actions arevery apparent that he is special needs.He tests low normal IQ as low as 79 and as high as 88. He is inspecial ed as well as mainstreamed. He lacks fine motor skills andsocial skills. His work is modified due to lack of concentration andeffort; however, he tests academically within normal of his peers.Present:I requested IEP reassessment because my son cannot get OT or testedfor learning disabilities under dx of emotional disturbance.I feel like his dx can be changed to Autism due to his AS diagnosis;however, I was just informed that his reevaluation was conducted andhe is going to remain with Dx of Emotional Disturbance because he doesnot fall under Autism.I feel an injustice is being done to my child and his educationalneeds are not being met. Every IEP...it is said that teachers willinform parents of child's assignments. ..and it's never done. He seemsto go to class and wave in and out of attention... not do any work andkeep getting passed to next grade level.I have signed up for an IEP Workshop and will meet with an advocate. but his IEP is tomorrow and nothing is going to get changed. What doI need to overrule the assessment?Also, has anyone noticed that Asperger's Disorder under theEducational Guidelines holds the same Behaviors as EmotionalDisturbance? I am at a loss...any help is appreciated. Thank you.

A Good Credit Score is 700 or Above. See yours in just 2 easy steps!

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[Guest guest]

This woman was unreal I tell you.

When I found out we could request testing and by law they had to do it, I requested every test known to man! Jake ended up with a VERY MINOR speech issue and that's the ONLY reason he got the SN help. This lady was sure not going to offer anything.

In fact, I said, "well, I want every test given to him that this school can do...since you have not offered this or any other help, here is a copy of MY rights as a parent and what you are legally required to do. By the way,it's on page 59...I highlighted it for you." ROFL! She stared me down and I again, winked at her.

You know it was SO obvious this woman was NOT going to help us help Jake. I got the above info from these . You cannot beat these groups of parents I tell you.

This is the HEAD of SN for the County. When I called the Disability office about all of this, the lady I originally talked to said they had 3 HUGE files on this school and her. I asked why in the heck she wasn't charged or fired.....she said, "politics." BLAHK!

I have learned an extremely valuable lesson. DO NOT take their crap and listen to other parents. They have laws they have to abide by, BUT they don't have to do them all if you don't request it, ask about it, or TELL them about it. They have limited funds and are going to do what they can to get by with the least possible help. WELLLLL....not with my child your not!

Jake was suspended 3 times last year in 2nd grade, he's a A/B student this year and loves school. The school and staff make ALLLLLLLLL the difference I tell you.

Tracey

In a message dated 12/17/2008 8:08:46 A.M. Central Standard Time, madideas@... writes:

I wonder why she was furious since she is the one who first used the phrase! What did she think people would think? lol. Sounds like she didn't have a sense of humor. lol

RoxannaYou're UniqueJust like everyone else...

( ) IEP Dx Problem Date: Monday, December 15, 2008, 4:52 PM

History:I adopted my son 1 1/2 years ago...at age 7 he received his first IEPunder the dx of Emotional Disturbance. He lived in 8 different fosterhomes before being placed with us...and we adopted.His dx through DSM IV is Reactive attachment Disorder; DepressiveDisorder; Academic Problems; Sexual Abuse Victim; Loss of bio home;foster placement; social skills difficulties; atypical behaviors; andcommunication problems.Recently, he received a Dx of Aspergers...He has been to children's hosp. and tested for chromosomalabnormalities (fragile X) and came back normal. He is being referredto neurology to be tested for other problems such as fetal developmentdisorders... he has very simple palmar creases as well as milddysmorphic facial features. Overall his appearance and actions arevery apparent that he is special needs.He tests low normal IQ as low as 79 and as high as 88. He is inspecial ed as well as mainstreamed. He lacks fine motor skills andsocial skills. His work is modified due to lack of concentration andeffort; however, he tests academically within normal of his peers.Present:I requested IEP reassessment because my son cannot get OT or testedfor learning disabilities under dx of emotional disturbance.I feel like his dx can be changed to Autism due to his AS diagnosis;however, I was just informed that his reevaluation was conducted andhe is going to remain with Dx of Emotional Disturbance because he doesnot fall under Autism.I feel an injustice is being done to my child and his educationalneeds are not being met. Every IEP...it is said that teachers willinform parents of child's assignments. ..and it's never done. He seemsto go to class and wave in and out of attention... not do any work andkeep getting passed to next grade level.I have signed up for an IEP Workshop and will meet with an advocate. but his IEP is tomorrow and nothing is going to get changed. What doI need to overrule the assessment?Also, has anyone noticed that Asperger's Disorder under theEducational Guidelines holds the same Behaviors as EmotionalDisturbance? I am at a loss...any help is appreciated. Thank you.

A Good Credit Score is 700 or Above. See yours in just 2 easy steps!

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[Guest guest]

I am so fed up and tired of some of these teachers...and I work with them...Ha Ha! Well, not in the school where my ds is ....why do people go into teaching ...especially Sped...if they are not caring, compasionate, willing to go beyond....I hate hearing stories about how EVIL and CRUEL they are to Specia Needs children....My son too had a Wicked Witch of the WEst in 5th grade...just the look on her face when she marched into the IEP meetings was enough....and her TONE...she was Creulla over and over. Now she has a baby....let's see what happens.

I thought this year ...7th...would be better...but when we went into the IEP meeting ..me with my advocate...my son's case manager and sped teacher was very harsh to her (my advocate)....and she had not even said anything....

Now I had to write to my son's SS teacher...my son as he feels...that he is constantly yelling at him ....and so now my son is shutting down....and is turned off and angry.

Oh man, I wish these teachers knew how to work with our kids.

Jan

Janice Rushen

"I will try to be open to all avenues of wisdom and hope"

From: Sandy <xo_sandy (DOT) com>Subject: ( ) IEP Dx Problem Date: Monday, December 15, 2008, 4:52 PM

History:I adopted my son 1 1/2 years ago...at age 7 he received his first IEPunder the dx of Emotional Disturbance. He lived in 8 different fosterhomes before being placed with us...and we adopted.His dx through DSM IV is Reactive attachment Disorder; DepressiveDisorder; Academic Problems; Sexual Abuse Victim; Loss of bio home;foster placement; social skills difficulties; atypical behaviors; andcommunication problems.Recently, he received a Dx of Aspergers...He has been to children's hosp. and tested for chromosomalabnormalities (fragile X) and came back normal. He is being referredto neurology to be tested for other problems such as fetal developmentdisorders... he has very simple palmar creases as well as milddysmorphic facial features. Overall his appearance and actions arevery apparent that he is special needs.He tests low normal IQ as low as 79 and as high as 88. He

is inspecial ed as well as mainstreamed. He lacks fine motor skills andsocial skills. His work is modified due to lack of concentration andeffort; however, he tests academically within normal of his peers.Present:I requested IEP reassessment because my son cannot get OT or testedfor learning disabilities under dx of emotional disturbance.I feel like his dx can be changed to Autism due to his AS diagnosis;however, I was just informed that his reevaluation was conducted andhe is going to remain with Dx of Emotional Disturbance because he doesnot fall under Autism.I feel an injustice is being done to my child and his educationalneeds are not being met. Every IEP...it is said that teachers willinform parents of child's assignments. ..and it's never done. He seemsto go to class and wave in and out of attention... not do any work andkeep getting passed to next grade level.I

have signed up for an IEP Workshop and will meet with an advocate. but his IEP is tomorrow and nothing is going to get changed. What doI need to overrule the assessment?Also, has anyone noticed that Asperger's Disorder under theEducational Guidelines holds the same Behaviors as EmotionalDisturbance? I am at a loss...any help is appreciated. Thank you.

A Good Credit Score is 700 or Above. See yours in just 2 easy steps!

[Guest guest]

I have been where you are and even though some parents have good experiences with the services in public school, I still believe that in some cases we should look for other options in private school, before is too late. Any child can be damage by bad teachers and in the case of children in the spectrum the risk is even higher.My daughter is 17 now, she has AS plus a number of other issues associated to AS. She just finished her first semester I college with a GPA of 3.8, main stream full student, she lives in campus and right now we are trying to survive the Christmas break. It is a difficult journey and I am very tired most ot the time but I do not regret any minute. Do not allow your child to be mistreated in any way. God bless you.Sent from my BlackBerry® smartphone with SprintSpeedFrom: rushen janice Date: Wed, 17 Dec 2008 01:46:35 -0800 (PST)< >Subject: Re: ( ) IEP Dx Problem I am so fed up and tired of some of these teachers...and I work with them...Ha Ha! Well, not in the school where my ds is ....why do people go into teaching ...especially Sped...if they are not caring, compasionate, willing to go beyond....I hate hearing stories about how EVIL and CRUEL they are to Specia Needs children....My son too had a Wicked Witch of the WEst in 5th grade...just the look on her face when she marched into the IEP meetings was enough....and her TONE...she was Creulla over and over. Now she has a baby....let's see what happens. I thought this year ...7th...would be better...but when we went into the IEP meeting ..me with my advocate...my son's case manager and sped teacher was very harsh to her (my advocate)....and she had not even said anything.... Now I had to write to my son's SS teacher...my son as he feels...that he is constantly yelling at him ....and so now my son is shutting down....and is turned off and angry.Oh man, I wish these teachers knew how to work with our kids. JanJanice Rushen "I will try to be open to all avenues of wisdom and hope"From: Sandy <xo_sandy (DOT) com>Subject: ( ) IEP Dx Problem Date: Monday, December 15, 2008, 4:52 PMHistory:I adopted my son 1 1/2 years ago...at age 7 he received his first IEPunder the dx of Emotional Disturbance. He lived in 8 different fosterhomes before being placed with us...and we adopted.His dx through DSM IV is Reactive attachment Disorder; DepressiveDisorder; Academic Problems; Sexual Abuse Victim; Loss of bio home;foster placement; social skills difficulties; atypical behaviors; andcommunication problems.Recently, he received a Dx of Aspergers...He has been to children's hosp. and tested for chromosomalabnormalities (fragile X) and came back normal. He is being referredto neurology to be tested for other problems such as fetal developmentdisorders... he has very simple palmar creases as well as milddysmorphic facial features. Overall his appearance and actions arevery apparent that he is special needs.He tests low normal IQ as low as 79 and as high as 88. He is inspecial ed as well as mainstreamed. He lacks fine motor skills andsocial skills. His work is modified due to lack of concentration andeffort; however, he tests academically within normal of his peers.Present:I requested IEP reassessment because my son cannot get OT or testedfor learning disabilities under dx of emotional disturbance.I feel like his dx can be changed to Autism due to his AS diagnosis;however, I was just informed that his reevaluation was conducted andhe is going to remain with Dx of Emotional Disturbance because he doesnot fall under Autism.I feel an injustice is being done to my child and his educationalneeds are not being met. Every IEP...it is said that teachers willinform parents of child's assignments. ..and it's never done. He seemsto go to class and wave in and out of attention... not do any work andkeep getting passed to next grade level.I have signed up for an IEP Workshop and will meet with an advocate. but his IEP is tomorrow and nothing is going to get changed. What doI need to overrule the assessment?Also, has anyone noticed that Asperger's Disorder under theEducational Guidelines holds the same Behaviors as EmotionalDisturbance? I am at a loss...any help is appreciated. Thank you.A Good Credit Score is 700 or Above. See yours in just 2 easy steps!

[Guest guest]

I wonder why she was furious since she is the one who first used the phrase! What did she think people would think? lol. Sounds like she didn't have a sense of humor. lol

RoxannaYou're UniqueJust like everyone else...

( ) IEP Dx Problem Date: Monday, December 15, 2008, 4:52 PM

History:I adopted my son 1 1/2 years ago...at age 7 he received his first IEPunder the dx of Emotional Disturbance. He lived in 8 different fosterhomes before being placed with us...and we adopted.His dx through DSM IV is Reactive attachment Disorder; DepressiveDisorder; Academic Problems; Sexual Abuse Victim; Loss of bio home;foster placement; social skills difficulties; atypical behaviors; andcommunication problems.Recently, he received a Dx of Aspergers...He has been to children's hosp. and tested for chromosomalabnormalities (fragile X) and came back normal. He is being referredto neurology to be tested for other problems such as fetal developmentdisorders... he has very simple palmar creases as well as milddysmorphic facial features. Overall his appearance and actions arevery apparent that he is special needs.He tests low normal IQ as low as 79 and as high as 88. He is inspecial ed as well as mainstreamed. He lacks fine motor skills andsocial skills. His work is modified due to lack of concentration andeffort; however, he tests academically within normal of his peers.Present:I requested IEP reassessment because my son cannot get OT or testedfor learning disabilities under dx of emotional disturbance.I feel like his dx can be changed to Autism due to his AS diagnosis;however, I was just informed that his reevaluation was conducted andhe is going to remain with Dx of Emotional Disturbance because he doesnot fall under Autism.I feel an injustice is being done to my child and his educationalneeds are not being met. Every IEP...it is said that teachers willinform parents of child's assignments. ..and it's never done. He seemsto go to class and wave in and out of attention... not do any work andkeep getting passed to next grade level.I have signed up for an IEP Workshop and will meet with an advocate. but his IEP is tomorrow and nothing is going to get changed. What doI need to overrule the assessment?Also, has anyone noticed that Asperger's Disorder under theEducational Guidelines holds the same Behaviors as EmotionalDisturbance? I am at a loss...any help is appreciated. Thank you.

A Good Credit Score is 700 or Above. See yours in just 2 easy steps!

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[Guest guest]

Wow, being classified as ED shouldn't lose anyone any rights at all. Classifications are just the formality for getting sped services. They are required to provide services based on need and not classifications. That goes along with being required to test in all areas of suspected disability. I guess they can argue against testing any specific area but why? They are already testing the kid. What would be the big deal in adding or removing specific testing within that frame? I guess they could play hard ball that way. But I would take their refusal to test and request a IEE because I would disagree with their findings (which are no findings.) In addition, request your PWN when they refuse to test a specific area. They need to show that this is not a problem in writing and detail all the things looked at in making this decision.

My school always added whatever we asked them to add to the MFE. Now we are doing e-school and they were just as accommodating.

RoxannaYou're UniqueJust like everyone else...

Re: ( ) IEP Dx Problem

>> You said the evaluation was done but they need to get yourpermission before they do evaluations. Did you discuss what testingto have done and sign a paper with a list of testing on it? They cantest for OT even if they have already finished the evaluation. Theyare required to test him in all areas of suspected disability, even ifthe problems are not related to his dx. So they need to address allareas where he is struggling. One thing I found out recently is that, after the first IEP, parentsdon't have as many rights. Also, in my state, being classified asemotionally disturbed causes the student to lose a lot of rights. Because Asperger is not an emotional disturbance, I would say thatmaybe your first goal should be to get rid of the ED classificationand replace it with an AUT classification or whatever Asperger comesunder in your state. Sounds like you've already figured that out,though. Also, they aren't required to test in all areas of disabilityif they can "prove" it isn't relevant to success in the classroom. You know that "proof" may be shaky, so watch that.If you get your own evaluations done under your health insurance, yourmedical dx will probably supercede their educational dx and also bemore detailed and useful. Just make sure you get their guidelines anduse someone the school district considers qualified. I don't think wewould have gotten anywhere without doing this.Good luck--hope you aren't feeling so overwhelmed anymore!Ruth

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[Guest guest]

They haven't responded yet to your question???? DOn't let them go too long before writing again, asking again and requesting a meeting to discuss what is going to happen.

RoxannaYou're UniqueJust like everyone else...

Re: ( ) IEP Dx Problem Date: Tuesday, December 16, 2008, 1:38 PM

I agree with Jan on this. I've been there, too & didn't get help for my son from the school district until I hired an advocate and then a lawyer. Before I got the advocate, I attended an IEP meeting where the meeting started by asking me to sign a blank form stating that I agreed with the results of the meeting. I didn't sign. At another meeting, one of the school district employees was sure that my son did not have AS (even though I had reports from 3 doctors) and she was on the phone to a doctor friend who she said could come to my house today and give my son an injection for depression that would have him back in school within the week. This was really scary for me, not to mention illegal. When I had a lawyer, the school district still pushed everyone to sign at the end of the meetings. They even scolded my lawyer for not signing at the meetings. The lawyer just firmly stated that her firm has a policy where the parent has a few days to review the results of the meeting before signing.So, don't be afraid to be a Mama Bear and to protect your cub. You are the only person who really has your child's best interests at heart. (My 2 cents. The ED classification is not appropriate for AS kids. The school may try to offer ED services as a solution, but they are not appropriate for our kids. You do not want your child in a room with kids who have behavior problems doing remedial schoolwork. Your child will be bored by the classwork and will be the target for bullies.)

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[Guest guest]

>

> Wow, being classified as ED shouldn't lose anyone any rights at all.

I didn't mean it this way, sorry bad wording. The logic behind this

is--for example--if a child's behaviors are caused by ED or BD, what

sense does it make to evaluate for communication disorders? If a

child's bad grades are caused by ED/BD behaviors, why would we check

for learning disabilities? And if the child does well on standardized

tests, that may well be what the school thinks. So, if you don't get

rid of the ED or BD classification, the school may well be looking in

the wrong direction for the problem.

> But I would take their refusal to test and request a IEE because I

would disagree with their findings (which are no findings.) In

addition, request your PWN when they refuse to test a specific area.

Exactly! Like I said, this is what worked for us. I didn't even do

an IEE, I just found out what their criteria were for evaluators, had

my own evaluations done under our health insurance, and brought them

back to the school to consider. They had no problems with this; in

fact, I think they were happy about it. Less trouble and money for

them to spend! If you can do it, I really think this may be the best

route to go for an HFA/AS child--just make sure you keep the school

updated on what you are doing and get their input so you don't end up

with something that won't help them.

Ruth

[Guest guest]

What private schools would accept a child like this? Was it a school

specifically designed for Aspergers? Let me know =)

>

> From: Sandy <xo_sandy (DOT) com>

> Subject: ( ) IEP Dx Problem

>

> Date: Monday, December 15, 2008, 4:52 PM

>

>

>

>

> History:

>

> I adopted my son 1 1/2 years ago...at age 7 he received his first IEP

> under the dx of Emotional Disturbance. He lived in 8 different foster

> homes before being placed with us...and we adopted.

>

> His dx through DSM IV is Reactive attachment Disorder; Depressive

> Disorder; Academic Problems; Sexual Abuse Victim; Loss of bio home;

> foster placement; social skills difficulties; atypical behaviors; and

> communication problems.

>

> Recently, he received a Dx of Aspergers...

>

> He has been to children's hosp. and tested for chromosomal

> abnormalities (fragile X) and came back normal. He is being referred

> to neurology to be tested for other problems such as fetal development

> disorders... he has very simple palmar creases as well as mild

> dysmorphic facial features. Overall his appearance and actions are

> very apparent that he is special needs.

>

> He tests low normal IQ as low as 79 and as high as 88. He is in

> special ed as well as mainstreamed. He lacks fine motor skills and

> social skills. His work is modified due to lack of concentration and

> effort; however, he tests academically within normal of his peers.

>

> Present:

>

> I requested IEP reassessment because my son cannot get OT or tested

> for learning disabilities under dx of emotional disturbance.

>

> I feel like his dx can be changed to Autism due to his AS diagnosis;

> however, I was just informed that his reevaluation was conducted and

> he is going to remain with Dx of Emotional Disturbance because he does

> not fall under Autism.

>

> I feel an injustice is being done to my child and his educational

> needs are not being met. Every IEP...it is said that teachers will

> inform parents of child's assignments. ..and it's never done. He seems

> to go to class and wave in and out of attention... not do any work and

> keep getting passed to next grade level.

>

> I have signed up for an IEP Workshop and will meet with an advocate.

> but his IEP is tomorrow and nothing is going to get changed. What do

> I need to overrule the assessment?

>

> Also, has anyone noticed that Asperger's Disorder under the

> Educational Guidelines holds the same Behaviors as Emotional

> Disturbance? I am at a loss...any help is appreciated. Thank you.

>

>

>

>

>

>

>

>

> A Good Credit Score is 700 or Above. See yours in just 2 easy steps!

>

[Guest guest]

Here's what happened:

The day before the meeting, my son's spec. ed. teacher called and told

me what was going to happen at the meeting the next day...his dx is

going to remain. I got upset and stated what is going on here. He

told me he felt he was a friend of the family and didn't want to

argue. Okay...thanks. I called the school psych and she confirmed

she was going to keep dx the same based on her own observation as well

as special ed teacher's AS questionnaire; however, she reduced the dx

of Emotional Disturbance to only one are rather than several as

before. Thanks. I asked her how she could feel her dx weighs more

than his therapists or parents? She wiggled around answering that

question. I didn't push. I told her in a friendly way that this was

not the end. I actually expalained that I am going to an IEP workshop

and speak to an advocate.

She states my son was on target 83% of the time in one class and 86%

of the time in another. What! This is the kid I get daily notes on

that crumples paper and throws it over his shoulder during class and

doesn't pay attention? This the kid that I get calls about because

he's been off-target and disruptive to others in the classroom...and

so on and so on.

I asked her if he knew she was in the classroom watching him...yes she

said he could have because she talked with him prior as part of

testing for aspergers. I explained to her that he is capable of

putting on a good front in a clinical setting and that she created

that by allowing him to know what she was doing. She also stated that

my son is involved in play 50% of the time on the playground...and 50%

will be alone reading...doesn't meet criteria. I asked her did she

notice when he was reading? Was the play becoming socially

uncomfortable so therefore he recoiled into a book? Did she notice

who he was playing with? Was the game appropriate for a 6th grade

level? Were the other children like my Son?

She said she asked the Yard Duty how he was on the playground. Who

replied he does play alone but he plays with others in equal

amounts...this is what she based her decision on.

I explained that AS children are active but Odd in their behaviors...I

also explained that my son can meet a 3 year old and tell me he made a

new friend. Does this seem normal? I know who he plays with on the

playground..two other kids with problems with school. My son will

play star wars with them until they play too rough or something

happens that makes him recoil back to the book.

I also pointed out my son's appearance...She agreed when looking at

him you can tell he is a special needs child.

I don't know if it's budget or what...I just don't get it. I will go

to my workshop and talk to an advocate. I will get more done through

children's hospital. And I will revisit this again.

Thanks for all your replies...and to leave on a good note..She agreed

to make the recommendation for OT..., but we don't have an OT

therapist at this time...as soon as one is hired he will get this

therapy. Probably January. So this did not come out as a total loss.

Sandy.

>

> History:

>

> I adopted my son 1 1/2 years ago...at age 7 he received his first IEP

> under the dx of Emotional Disturbance. He lived in 8 different foster

> homes before being placed with us...and we adopted.

>

> His dx through DSM IV is Reactive attachment Disorder; Depressive

> Disorder; Academic Problems; Sexual Abuse Victim; Loss of bio home;

> foster placement; social skills difficulties; atypical behaviors; and

> communication problems.

>

> Recently, he received a Dx of Aspergers...

>

> He has been to children's hosp. and tested for chromosomal

> abnormalities (fragile X) and came back normal. He is being referred

> to neurology to be tested for other problems such as fetal development

> disorders...he has very simple palmar creases as well as mild

> dysmorphic facial features. Overall his appearance and actions are

> very apparent that he is special needs.

>

> He tests low normal IQ as low as 79 and as high as 88. He is in

> special ed as well as mainstreamed. He lacks fine motor skills and

> social skills. His work is modified due to lack of concentration and

> effort; however, he tests academically within normal of his peers.

>

> Present:

>

> I requested IEP reassessment because my son cannot get OT or tested

> for learning disabilities under dx of emotional disturbance.

>

> I feel like his dx can be changed to Autism due to his AS diagnosis;

> however, I was just informed that his reevaluation was conducted and

> he is going to remain with Dx of Emotional Disturbance because he does

> not fall under Autism.

>

> I feel an injustice is being done to my child and his educational

> needs are not being met. Every IEP...it is said that teachers will

> inform parents of child's assignments...and it's never done. He seems

> to go to class and wave in and out of attention...not do any work and

> keep getting passed to next grade level.

>

> I have signed up for an IEP Workshop and will meet with an advocate.

> but his IEP is tomorrow and nothing is going to get changed. What do

> I need to overrule the assessment?

>

> Also, has anyone noticed that Asperger's Disorder under the

> Educational Guidelines holds the same Behaviors as Emotional

> Disturbance? I am at a loss...any help is appreciated. Thank you.

>

[Guest guest]

Hi Sandy, well the good news is the OT. But, wow, the rest. You

will have to just keep advocating. Sounds like you handled it well,

kept it nice but you did let them know you didn't agree.

Gee, sounded like when the school autism specialist (I should put

that in quotes) observed my son. He answered questions in class and

wrote on board (well, yes, he's smart and likes to answer, etc.). Oh

and she watched him at lunch, he talked to others. (Well, yeah, but

did she even hear what he said?? He says odd/not typical stuff,

others just smile nicely at him but see him as odd, weird...) She

saw no signs of autism.

Some schools (elsewhere) do well about the socializing, our's didn't

feel that was part of student's education; meaning, I should take

care of that myself, not their problem. (I really wanted to continue

arguing that but knew they couldn't offer anything anyway. This was

middle school by then, 8th grade, so high school was coming up soon)

Well, keep us updated, you're doing a great job, too bad there's so

much more to do re the school!

>

> Here's what happened:

>

> The day before the meeting, my son's spec. ed. teacher called and

told

> me what was going to happen at the meeting the next day...his dx is

> going to remain. I got upset and stated what is going on here. He

[Guest guest]

Thank you chris...It's nice to know others understand...it's an uphill

battle to say the least =) Sandy

> >

> > Here's what happened:

> >

> > The day before the meeting, my son's spec. ed. teacher called and

> told

> > me what was going to happen at the meeting the next day...his dx is

> > going to remain. I got upset and stated what is going on here. He

>