Guest guest Posted January 23, 2009 Report Share Posted January 23, 2009 Hi Diane. I'm Robin and have a 12yr old boy. Your story is very familiar. Our course, in the end, was to yank Ian out and now he does a Virtual School from home. Things are much better. Anyway, I know you'll get some wonderful advice, here. One thing I do know, is that very rarely is there a school/life situation, where everything just falls in place for someones child. There is a lot of "Yeah, sure, we'll do it......we understand".....and a lot of, "no ways" that get said to all of the parents. It seems like an endless fight, when you never really wanted a fight. You just wanted your child to get a fair shake, that, to you, didn't sound so irrational. Sigh. Oh well........ Sounds like you're doing everything you can. Have a great day. Robin Normal is just a cycle on a washing machine!! From: dphock <dphock@...>Subject: ( ) AS and school (longish) Date: Thursday, January 22, 2009, 4:31 PM Hi--I'm a new member, so I'll introduce myself. I'm Diane, mom of a 13year old with relatively mild AS. We've been thru what is probably atypical course...being told thru elementary school that C is gifted,as an explanation for seeing her social difficulties in the classroomsetting. A full evaluation last year confirmed the AS we suspectedfor a long time.C has gone to public school through 6 grade, with great academicsuccess but increasing unhappiness, depression, and anxiety aboutschool. She has not had great social experiences at school, althoughshe has solid friendships (on a one-on-one basis) outside of school.For 7th grade, my husband and I decided to try to eliminate a lot ofthe environmental stressors, and enrolled C in a new, very smallprivate school. It's a K-8 school in its second year (run by anexperienced principal from another private school). There are about100 kids in the school, 13 in 7th grade. The school has promoteditself as a rigorous academic school which teaches "the individualchild" based on each individual child's needs. Sounds perfect, yes?Before school started, my husband and I asked for what was effectivelyan IEP meeting. We brought C's counselor and the evaluatingpsychologist to try to outline what C's needs are, what situationsmight prove difficult for her, etc. The teachers, principal andclassroom helper were there and said all the right things.Well, here is our dilemma. They SAY the right things. But inpractice, they do not seem tuned in to C or what she needs. I hadhoped -- maybe naively -- that once we explained and they saw what C'sparticular issues were, they would not only accomodate them, but tryto think about her, anticipate things, and plan accordingly so thatthe dynamic would work for her. There are only 13 kids in the class,so that didn't seem unreasonable, I didn't think.Time after time, we are finding that her main teacher doesn't seem tohave a clue. She's a great and dynamic teacher in terms of presentingthe info to the class and making learning fun. But attending to C,understanding what might be hard for her, and helping her BEFOREHANDsimply has not occurred and, we now think, may just not be within herskill set. We've removed C from PE at school, as we saw the PEteacher there as simply not being able to get her issues, and she wasfinding the whole dynamic so humiliating that she hated, hated HATEDgoing to school on PE days. For now, we have stopped waiting for them to help us figure out whatwill work for her (I had expected, again naively, that we'd be"partners" and that they would work with us to make school a goodplace for her.) Now, we are in a stage where we just TELL them whatwe think needs to happen. They accomodate that, or at least say theywill, but we're not convinced that they are being anything close toproactive to make school a good place for her.So, where from here? We are going in next week to talk to theprincipal, and thinking of calling another IEP to regroup and beclearer about our expectations for how things will be for C at school.We hesitate to get to get to negative with them, as we don't want tobe perceived as "problem parents" but we feel our expectations arehigh, especially because the class is so small and they keep talkingabout how they teach the "individual. " We want to convey ourimpression thus far that they don't do what they say.I'm concerned about 8th grade next year, very concerned about highschool, and starting to research home-schooling and online schoolalternatives. But I guess I'm hoping some of you can give me advice.Maybe it's just that my husband and I have been too naive about thisschool, and we need to get a lot more aggressive about insisting onwhat we think will be best for C, without expecting them to help usarrive at that as a team.Anyway, any advice will be appreciated. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2009 Report Share Posted January 23, 2009 You may find it difficult making any progress simply because it is a private school and the law does not " make " them accomodate special ed children. I hope that you can make some progress but be prepared for the fact that they may simply choose not to change their ways. Vickie > > Hi-- > > I'm a new member, so I'll introduce myself. I'm Diane, mom of a 13 > year old with relatively mild AS. We've been thru what is probably a > typical course...being told thru elementary school that C is gifted, > as an explanation for seeing her social difficulties in the classroom > setting. A full evaluation last year confirmed the AS we suspected > for a long time. > > C has gone to public school through 6 grade, with great academic > success but increasing unhappiness, depression, and anxiety about > school. She has not had great social experiences at school, although > she has solid friendships (on a one-on-one basis) outside of school. > > For 7th grade, my husband and I decided to try to eliminate a lot of > the environmental stressors, and enrolled C in a new, very small > private school. It's a K-8 school in its second year (run by an > experienced principal from another private school). There are about > 100 kids in the school, 13 in 7th grade. The school has promoted > itself as a rigorous academic school which teaches " the individual > child " based on each individual child's needs. Sounds perfect, yes? > > Before school started, my husband and I asked for what was effectively > an IEP meeting. We brought C's counselor and the evaluating > psychologist to try to outline what C's needs are, what situations > might prove difficult for her, etc. The teachers, principal and > classroom helper were there and said all the right things. > > Well, here is our dilemma. They SAY the right things. But in > practice, they do not seem tuned in to C or what she needs. I had > hoped -- maybe naively -- that once we explained and they saw what C's > particular issues were, they would not only accomodate them, but try > to think about her, anticipate things, and plan accordingly so that > the dynamic would work for her. There are only 13 kids in the class, > so that didn't seem unreasonable, I didn't think. > > Time after time, we are finding that her main teacher doesn't seem to > have a clue. She's a great and dynamic teacher in terms of presenting > the info to the class and making learning fun. But attending to C, > understanding what might be hard for her, and helping her BEFOREHAND > simply has not occurred and, we now think, may just not be within her > skill set. We've removed C from PE at school, as we saw the PE > teacher there as simply not being able to get her issues, and she was > finding the whole dynamic so humiliating that she hated, hated HATED > going to school on PE days. > > For now, we have stopped waiting for them to help us figure out what > will work for her (I had expected, again naively, that we'd be > " partners " and that they would work with us to make school a good > place for her.) Now, we are in a stage where we just TELL them what > we think needs to happen. They accomodate that, or at least say they > will, but we're not convinced that they are being anything close to > proactive to make school a good place for her. > > So, where from here? We are going in next week to talk to the > principal, and thinking of calling another IEP to regroup and be > clearer about our expectations for how things will be for C at school. > We hesitate to get to get to negative with them, as we don't want to > be perceived as " problem parents " but we feel our expectations are > high, especially because the class is so small and they keep talking > about how they teach the " individual. " We want to convey our > impression thus far that they don't do what they say. > > I'm concerned about 8th grade next year, very concerned about high > school, and starting to research home-schooling and online school > alternatives. But I guess I'm hoping some of you can give me advice. > Maybe it's just that my husband and I have been too naive about this > school, and we need to get a lot more aggressive about insisting on > what we think will be best for C, without expecting them to help us > arrive at that as a team. > > Anyway, any advice will be appreciated. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2009 Report Share Posted January 23, 2009 I need help too..Any advice would be appreciated..My Aspie's (10 yr old) teacher called me today to tell me that my son has been very impulsive lately..Falling off chairs, overreacting to small things, " adjusting himself " in front of others. Mostly since coming back from Winter break.. I have discussed this with him on numerous occassions and he says he understands,but keeps doing these behaviors,., Its like he cant control it..How to I get himto stop these behaviors?The teacher wanted me to tell her how to handle it, and quite frankly, I'm not sure..Any advice? Conni Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2009 Report Share Posted January 23, 2009 > > The school has promoted > itself as a rigorous academic school which teaches " the individual > child " based on each individual child's needs. Sounds perfect, yes? Actually, no. The word " rigorous " is throwing a red flag at me. Most Asperger kids need flexibility. Giving kids more individual teaching is not the same thing as giving kids DIFFERENT teaching. > She's a great and dynamic teacher in terms of presenting > the info to the class and making learning fun. But attending to C, > understanding what might be hard for her, and helping her BEFOREHAND > simply has not occurred and, we now think, may just not be within her > skill set. This may well be. You probably don't want to hear this, but you are asking a lot of teachers who are not special education teachers and have no special education department to work with. > So, where from here? We are going in next week to talk to the > principal, and thinking of calling another IEP to regroup and be > clearer about our expectations for how things will be for C at school. You might want to start out by asking them what they plan for C BEFORE you discuss anything about what YOU want. See what they say when they aren't being led. Ask them where their boundaries are. What can they do and what can't they do? What is THEIR plan? Then you can introduce your ideas as part of the discussion of their plan and see what they think. You may want to explicitly ask them to be upfront with you about what they can and can't do. > Maybe it's just that my husband and I have been too naive about this > school, and we need to get a lot more aggressive about insisting on > what we think will be best for C, without expecting them to help us > arrive at that as a team. I would say that it is unlikely they will know how to teach your daughter if they can't come up wih a plan in the first place. You can try to tell them what to do, but if they don't know how, it isn't going to happen. And if they aren't motivated to learn about teaching kids with Asperger, it isn't going to happen either. You have to remember that this is a private school, and they aren't under any obligation to educate your daughter--it is their choice. You're not really in a place where you can make demands. Offering individual attention is not the same thing as offering differentiated teaching to accommodate disability. It doesn't sound like they ever promised such a thing or advertised themselves as such a school. I would say the decision you have to make is whether this is the right school for your daughter--the way it is. > Anyway, any advice will be appreciated. If you can afford a small private school like this one, you might want to consider one of the private schools specifically for kids with learning differences like ADHD and Asperger. They are popping up all over the place since so many public schools are doing badly with this group of kids. There are many that are college prep and some that are even for gifted kids with learning disabilities. Most of the people I know with kids in such schools are very happy with them. They are very expensive though. Hope this helps! (I have a 14yo son with Asperger and developmental coordination disorder in public jr high, by the way--we did do private school for a couple of years though). Ruth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 23, 2009 Report Share Posted January 23, 2009 > > I need help too..Any advice would be appreciated..My Aspie's (10 yr old) > teacher called me today to tell me that my son has been very impulsive > lately..Falling off chairs, overreacting to small things, " adjusting > himself " in front of others. Mostly since coming back from Winter > break.. I have discussed this with him on numerous occassions and he > says he understands,but keeps doing these behaviors,., Its like he cant > control it..How to I get himto stop these behaviors?The teacher wanted > me to tell her how to handle it, and quite frankly, I'm not sure..Any > advice? Hi Conni. This is not something there is a simple answer to. If you are in public school, ask for a full and individual special ed evaluation IN WRITING. Call your school district special ed office to ask for details like who to turn it into and whether there is a form. If you are in private school, you will need to get the evaluations done yourself through your health insurance. My advice would be to start getting supports in place, even though you don't know enough yet to know what they need to be! I don't have a pat answer to your son's problems; it is not something that is going to be a quick fix. For my own self, it was a matter of lots of reading, talking to people, friends, discussions lists, professionals I took my son to, experimenting, etc. It's a process. Try not to be discouraged. It will get better and better the more you learn about Asperger and how it affects your son specifically. Hopefully someone else will have a better answer for NOW, as I seem to be flat out of ideas at the moment. Sorry. Ruth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2009 Report Share Posted January 24, 2009 You need to request the school conduct an FBA (Functional Behavior Assessment) and Positive Behavior Plan. They need to get at the root of why these behaviors are occuring and find ways to lessen the occurence. Pam In a message dated 1/23/2009 9:07:51 P.M. Eastern Standard Time, clbrew311@... writes: I need help too..Any advice would be appreciated..My Aspie's (10 yr old)teacher called me today to tell me that my son has been very impulsivelately..Falling off chairs, overreacting to small things, "adjustinghimself" in front of others. Mostly since coming back from Winterbreak.. I have discussed this with him on numerous occassions and hesays he understands,but keeps doing these behaviors,., Its like he cantcontrol it..How to I get himto stop these behaviors?The teacher wantedme to tell her how to handle it, and quite frankly, I'm not sure..Anyadvice?Conni A Good Credit Score is 700 or Above. See yours in just 2 easy steps! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2009 Report Share Posted January 24, 2009 Pam, Thanks so much! I will try that and let you know what happens.. Is the FBA and Positive Behavior Plan two different things? Or is that all one phrase? Thanks. Conni Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 24, 2009 Report Share Posted January 24, 2009 Ruth, Thanks. My son is in mainstream classroom with a 504 plan.. He meets with a guidance counselor once a week in a group setting.. Pam suggested I request a Functional Behavior assessment..I just need to know,what exactly is a FBA? Conni I need help too..Any advice would be appreciated..My Aspie's (10 yr old) > teacher called me today to tell me that my son has been very impulsive > lately..Falling off chairs, overreacting to small things, " adjusting > himself " in front of others. Mostly since coming back from Winter > break.. I have discussed this with him on numerous occassions and he > says he understands,but keeps doing these behaviors,., Its like he cant > control it..How to I get himto stop these behaviors?The teacher wanted > me to tell her how to handle it, and quite frankly, I'm not sure..Any > advice? Hi Conni. This is not something there is a simple answer to. If you are in public school, ask for a full and individual special ed evaluation IN WRITING. Call your school district special ed office to ask for details like who to turn it into and whether there is a form. If you are in private school, you will need to get the evaluations done yourself through your health insurance. My advice would be to start getting supports in place, even though you don't know enough yet to know what they need to be! I don't have a pat answer to your son's problems; it is not something that is going to be a quick fix. For my own self, it was a matter of lots of reading, talking to people, friends, discussions lists, professionals I took my son to, experimenting, etc. It's a process. Try not to be discouraged. It will get better and better the more you learn about Asperger and how it affects your son specifically. Hopefully someone else will have a better answer for NOW, as I seem to be flat out of ideas at the moment. Sorry. Ruth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2009 Report Share Posted January 25, 2009 Conni, a Postive Behavior Plan should come out of the FBA...so the FBA would be done first. In a message dated 1/25/2009 11:46:33 A.M. Eastern Standard Time, clbrew311@... writes: Pam,Thanks so much! I will try that and let you know what happens.. Is theFBA and Positive Behavior Plan two different things? Or is that all onephrase? Thanks.Conni A Good Credit Score is 700 or Above. See yours in just 2 easy steps! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2009 Report Share Posted January 25, 2009 These links may help: Functional Behavior Assessment and Behavior Intervention Plans. ERIC/OSEP Digest slaw - Functional Behavioral Assessments: What? Why? How? Who? by Starin, Ph.D. In a message dated 1/25/2009 11:46:43 A.M. Eastern Standard Time, clbrew311@... writes: Ruth,Thanks. My son is in mainstream classroom with a 504 plan.. He meetswith a guidance counselor once a week in a group setting.. Pam suggestedI request a Functional Behavior assessment..I just need to know,whatexactly is a FBA?ConniI need help too..Any advice would be appreciated..My Aspie's (10 yr old)> teacher called me today to tell me that my son has been very impulsive> lately..Falling off chairs, overreacting to small things, "adjusting> himself" in front of others. Mostly since coming back from Winter> break.. I have discussed this with him on numerous occassions and he> says he understands,but keeps doing these behaviors,., Its like hecant> control it..How to I get himto stop these behaviors?The teacher wanted> me to tell her how to handle it, and quite frankly, I'm not sure..Any> advice?Hi Conni. This is not something there is a simple answer to. If youare in public school, ask for a full and individual special edevaluation IN WRITING. Call your school district special ed office toask for details like who to turn it into and whether there is a form.If you are in private school, you will need to get the evaluationsdone yourself through your health insurance. My advice would be tostart getting supports in place, even though you don't know enough yetto know what they need to be!I don't have a pat answer to your son's problems; it is not somethingthat is going to be a quick fix. For my own self, it was a matter oflots of reading, talking to people, friends, discussions lists,professionals I took my son to, experimenting, etc. It's a process. Try not to be discouraged. It will get better and better the more youlearn about Asperger and how it affects your son specifically.Hopefully someone else will have a better answer for NOW, as I seem tobe flat out of ideas at the moment. Sorry.Ruth A Good Credit Score is 700 or Above. See yours in just 2 easy steps! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 25, 2009 Report Share Posted January 25, 2009 My son just had a FBA...this is how his school ran it... The entire IEP team was there, his homeroom teacher, his guidance counselor, myself, I invited his outside Behavioral Support Councelor. The assistant principal was there, the Occupational Therpist plus his school's special educ. supervisor plus another special ed. supivisor (she was invited as she knows alot about Aspergers and Autism). The woman who ran the meeting was the district's behavior specialist.... She wrote on the board... What he excells in His problem areas Then we discussed the quick triggers and the long term triggers, then his behaviors and his actions in school and looking at everything...we can try to figure out what is going on....what is triggering him...and then work on resolving the problems. It is very interesting but it was difficult on me...to listen to others talk about your own child and how he does not fit in and the things he does....I'll be honest and tell you i cried...it was overwhelming for me... Jan Janice Rushen "I will try to be open to all avenues of wisdom and hope" From: ppanda65@... <ppanda65@...>Subject: Re: ( ) AS and school (longish) Date: Sunday, January 25, 2009, 1:46 PM These links may help: Functional Behavior Assessment and Behavior Intervention Plans. ERIC/OSEP Digest slaw - Functional Behavioral Assessments: What? Why? How? Who? by Starin, Ph.D. In a message dated 1/25/2009 11:46:43 A.M. Eastern Standard Time, clbrew311webtv (DOT) net writes: Ruth,Thanks. My son is in mainstream classroom with a 504 plan.. He meetswith a guidance counselor once a week in a group setting.. Pam suggestedI request a Functional Behavior assessment.. I just need to know,whatexactly is a FBA?ConniI need help too..Any advice would be appreciated. .My Aspie's (10 yr old)> teacher called me today to tell me that my son has been very impulsive> lately..Falling off chairs, overreacting to small things, "adjusting> himself" in front of others. Mostly since coming back from Winter> break.. I have discussed this with him on numerous occassions and he> says he understands, but keeps doing these behaviors,., Its like hecant> control it..How to I get himto stop these behaviors?The teacher wanted> me to tell her how to handle it, and quite frankly, I'm not sure..Any> advice?Hi Conni. This is not something there is a simple answer to. If youare in public school, ask for a full and individual special edevaluation IN WRITING. Call your school district special ed office toask for details like who to turn it into and whether there is a form.If you are in private school, you will need to get the evaluationsdone yourself through your health insurance. My advice would be tostart getting supports in place, even though you don't know enough yetto know what they need to be!I don't have a pat answer to your son's problems; it is not somethingthat is going to be a quick fix. For my own self, it was a matter oflots of reading, talking to people, friends, discussions lists,professionals I took my son to, experimenting, etc. It's a process. Try not to be discouraged. It will get better and better the more youlearn about Asperger and how it affects your son specifically.Hopefully someone else will have a better answer for NOW, as I seem tobe flat out of ideas at the moment. Sorry.Ruth A Good Credit Score is 700 or Above. See yours in just 2 easy steps! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2009 Report Share Posted January 26, 2009 I believe that any child who has behaviors interferring with their learning, is eligible for a Functional Behavior Assessment and Positive Behavioral Plan. Some districts are utilizing RTI (Response to Intervention) before conducting FBA's and special education evaluations. But you don't have to have an IEP to have a FBA done. Pam A Good Credit Score is 700 or Above. See yours in just 2 easy steps! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 26, 2009 Report Share Posted January 26, 2009 > > My son just had a FBA...this is how his school ran it... > � > The entire IEP team was there, his homeroom teacher, his guidance counselor, myself, I invited his outside Behavioral Support Councelor.� The assistant principal was there, the Occupational Therpist plus his school's special educ. supervisor plus another special ed. supivisor (she was invited as she knows alot about Aspergers and Autism).� The woman who ran the meeting was the district's behavior specialist.... Conni, just to let you know, since I know your son has only a 504 Plan rather than an IEP, technically you can have a FBA with a 504. It would be hard to get since a 504 is only supposed to be accommodations, not intervention, and 504 accommodations will only involve general ed staff. Now, they can pull in special ed people to consult at the 504 meetings, but you will probably have to do the squeaky wheel thing to make that happen (I did anyway). Ruth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2009 Report Share Posted January 27, 2009 Hi Diane and welcome to our group! My question is about public school. You didn't say if C had any accommodations in regular public school before you pulled her out for the small school? I am just guessing that she did not. I wanted to say that each school is different, each teacher different. Some years, we had great people who did mostly good stuff. Other years, the teacher would be all wrong and the year stunk. I don't know that it mattered as much how many kids were there. You need a good main sped teacher. Even if your dd is gifted, if she has an IEP, a sped teacher/director can help you run interference with the staff. Directions coming from the other teacher/specialist will go over better than if it's coming from the parents. I know this sounds bad but even though school's say they want a partnership with parents, they don't really want you to show up and tell them what to do. They want to tell you what to do at home and that's the end of the partnership in learning. There are some teachers who really work well with parents. There are some who avoid parents or consider us annoying. Again, having a sped person to be the in between person can often help in situations where the teacher is not wanting to work with you. As for your current problem, I would make a list of all the problems going on currently and take it to your meeting. Use it to guide your conversation and try to focus on her needs, rather than their inability to support her needs. It might go over better that way. You can say, "What can be done to .....?" and try to get them to come up with solutions. If the results of your meeting are not written down into a formal IEP plan, write a follow up letter outlining exactly what you discussed and agreed to at the meeting. Then later, if something is not happening, you can refer back to your meeting and nicely but more pointedly ask them how that is working or if it needs to be tweaked? That might refocus teacher to do what she needs to do. We are eschooling right now and my ds is doing better than he was in school. It is hard work and not easy, though. Good luck and let us know how your meeting goes/or went if I am late posting! RoxannaYou're UniqueJust like everyone else... ( ) AS and school (longish) Hi--I'm a new member, so I'll introduce myself. I'm Diane, mom of a 13year old with relatively mild AS. We've been thru what is probably atypical course...being told thru elementary school that C is gifted,as an explanation for seeing her social difficulties in the classroomsetting. A full evaluation last year confirmed the AS we suspectedfor a long time.C has gone to public school through 6 grade, with great academicsuccess but increasing unhappiness, depression, and anxiety aboutschool. She has not had great social experiences at school, althoughshe has solid friendships (on a one-on-one basis) outside of school.For 7th grade, my husband and I decided to try to eliminate a lot ofthe environmental stressors, and enrolled C in a new, very smallprivate school. It's a K-8 school in its second year (run by anexperienced principal from another private school). There are about100 kids in the school, 13 in 7th grade. The school has promoteditself as a rigorous academic school which teaches "the individualchild" based on each individual child's needs. Sounds perfect, yes?Before school started, my husband and I asked for what was effectivelyan IEP meeting. We brought C's counselor and the evaluatingpsychologist to try to outline what C's needs are, what situationsmight prove difficult for her, etc. The teachers, principal andclassroom helper were there and said all the right things.Well, here is our dilemma. They SAY the right things. But inpractice, they do not seem tuned in to C or what she needs. I hadhoped -- maybe naively -- that once we explained and they saw what C'sparticular issues were, they would not only accomodate them, but tryto think about her, anticipate things, and plan accordingly so thatthe dynamic would work for her. There are only 13 kids in the class,so that didn't seem unreasonable, I didn't think.Time after time, we are finding that her main teacher doesn't seem tohave a clue. She's a great and dynamic teacher in terms of presentingthe info to the class and making learning fun. But attending to C,understanding what might be hard for her, and helping her BEFOREHANDsimply has not occurred and, we now think, may just not be within herskill set. We've removed C from PE at school, as we saw the PEteacher there as simply not being able to get her issues, and she wasfinding the whole dynamic so humiliating that she hated, hated HATEDgoing to school on PE days. For now, we have stopped waiting for them to help us figure out whatwill work for her (I had expected, again naively, that we'd be"partners" and that they would work with us to make school a goodplace for her.) Now, we are in a stage where we just TELL them whatwe think needs to happen. They accomodate that, or at least say theywill, but we're not convinced that they are being anything close toproactive to make school a good place for her.So, where from here? We are going in next week to talk to theprincipal, and thinking of calling another IEP to regroup and beclearer about our expectations for how things will be for C at school.We hesitate to get to get to negative with them, as we don't want tobe perceived as "problem parents" but we feel our expectations arehigh, especially because the class is so small and they keep talkingabout how they teach the "individual." We want to convey ourimpression thus far that they don't do what they say.I'm concerned about 8th grade next year, very concerned about highschool, and starting to research home-schooling and online schoolalternatives. But I guess I'm hoping some of you can give me advice.Maybe it's just that my husband and I have been too naive about thisschool, and we need to get a lot more aggressive about insisting onwhat we think will be best for C, without expecting them to help usarrive at that as a team.Anyway, any advice will be appreciated. No virus found in this incoming message.Checked by AVG - http://www.avg.com Version: 8.0.176 / Virus Database: 270.10.12/1910 - Release Date: 1/22/2009 6:28 PM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2009 Report Share Posted January 27, 2009 Conni, Pam had great advice about requesting an FBA. I also wanted to add that falling off chairs can often be a problem addressed by an OT (occupational therapist.) Some kids do not realize where their body's are in relation to "everything else" and slide off their seats, not realizing that they going to do that. It may be something out of his control. You should ask for an OT evaluation for sensory issues and see if that person can help him. They sell different seat cushions that might help as well if he is fidgety. Again, the OT could help you with those ideas/needs. RoxannaYou're UniqueJust like everyone else... Re: ( ) AS and school (longish) Ruth,Thanks. My son is in mainstream classroom with a 504 plan.. He meetswith a guidance counselor once a week in a group setting.. Pam suggestedI request a Functional Behavior assessment..I just need to know,whatexactly is a FBA?ConniI need help too..Any advice would be appreciated..My Aspie's (10 yr old)> teacher called me today to tell me that my son has been very impulsive> lately..Falling off chairs, overreacting to small things, "adjusting> himself" in front of others. Mostly since coming back from Winter> break.. I have discussed this with him on numerous occassions and he> says he understands,but keeps doing these behaviors,., Its like hecant> control it..How to I get himto stop these behaviors?The teacher wanted> me to tell her how to handle it, and quite frankly, I'm not sure..Any> advice?Hi Conni. This is not something there is a simple answer to. If youare in public school, ask for a full and individual special edevaluation IN WRITING. Call your school district special ed office toask for details like who to turn it into and whether there is a form.If you are in private school, you will need to get the evaluationsdone yourself through your health insurance. My advice would be tostart getting supports in place, even though you don't know enough yetto know what they need to be!I don't have a pat answer to your son's problems; it is not somethingthat is going to be a quick fix. For my own self, it was a matter oflots of reading, talking to people, friends, discussions lists,professionals I took my son to, experimenting, etc. It's a process. Try not to be discouraged. It will get better and better the more youlearn about Asperger and how it affects your son specifically.Hopefully someone else will have a better answer for NOW, as I seem tobe flat out of ideas at the moment. Sorry.Ruth No virus found in this incoming message.Checked by AVG - http://www.avg.com Version: 8.0.176 / Virus Database: 270.10.13/1914 - Release Date: 1/24/2009 8:40 PM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2009 Report Share Posted January 27, 2009 Roxanna, Thanks I didnt know about the seat cushions..Are they special ones?My son has had an OT eval, but they said he did not need it..Maybe now that he is in a new school I will try again? Conni Conni, Pam had great advice about requesting an FBA. I also wanted to add that falling off chairs can often be a problem addressed by an OT (occupational therapist.) Some kids do not realize where their body's are in relation to " everything else " and slide off their seats, not realizing that they going to do that. It may be something out of his control. You should ask for an OT evaluation for sensory issues and see if that person can help him. They sell different seat cushions that might help as well if he is fidgety. Again, the OT could help you with those ideas/needs.  Roxanna You're Unique Just like everyone else... Re: ( ) AS and school (longish) Ruth, Thanks. My son is in mainstream classroom with a 504 plan.. He meets with a guidance counselor once a week in a group setting.. Pam suggested I request a Functional Behavior assessment..I just need to know,what exactly is a FBA? Conni I need help too..Any advice would be appreciated..My Aspie's (10 yr old) > teacher called me today to tell me that my son has been very impulsive > lately..Falling off chairs, overreacting to small things, " adjusting > himself " in front of others. Mostly since coming back from Winter > break.. I have discussed this with him on numerous occassions and he > says he understands,but keeps doing these behaviors,., Its like he cant > control it..How to I get himto stop these behaviors?The teacher wanted > me to tell her how to handle it, and quite frankly, I'm not sure..Any > advice? Hi Conni. This is not something there is a simple answer to. If you are in public school, ask for a full and individual special ed evaluation IN WRITING. Call your school district special ed office to ask for details like who to turn it into and whether there is a form. If you are in private school, you will need to get the evaluations done yourself through your health insurance. My advice would be to start getting supports in place, even though you don't know enough yet to know what they need to be! I don't have a pat answer to your son's problems; it is not something that is going to be a quick fix. For my own self, it was a matter of lots of reading, talking to people, friends, discussions lists, professionals I took my son to, experimenting, etc. It's a process. Try not to be discouraged. It will get better and better the more you learn about Asperger and how it affects your son specifically. Hopefully someone else will have a better answer for NOW, as I seem to be flat out of ideas at the moment. Sorry. Ruth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 27, 2009 Report Share Posted January 27, 2009 Ruth , What is the " squeaky wheel " thing you are referring to? Conni Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2009 Report Share Posted January 28, 2009 > > Ruth , > What is the " squeaky wheel " thing you are referring to? I'm not totally sure what you mean out of context, but I don't ever let the school alone. I let school administrators know when teachers are not following my son's 504 plan, I answer any teacher's questions in full copied to a school administrator, point out things that aren't working, etc. There have been some times when I go for weeks contacting several teachers and administrators pretty much every single day. In two years, I have gone from no accommodations at all, to informal accommodations, through a failed IEP eval, to a 504, now to another IEP eval--this time their idea--to be done with the Autism team. When they would not evaluate, I did it--neuropsych, occupational therapy and speech--and brought it back to them. Since it is now their idea, I think he will finally get services--at age 14! We will see. Many school districts will try to get away with solving problems at the lowest level possible, so you just have to keep pushing until there are no more excuses left. Ironically, totally coincidentally, the children's hospital also contacted me and okayed us for an autism study that will get my son the ADOS and ADI-R for free--the one thing where they didn't take our insurance so we couldn't do. When it rains, it pours LOL! Ruth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2009 Report Share Posted January 28, 2009 Could someone tell me what ADOS and ADI-R stand for? Thanks, From: [mailto: ] On Behalf Of r_woman2 Sent: Wednesday, January 28, 2009 1:22 PM Subject: Re: ( ) AS and school (longish) > > Ruth , > What is the " squeaky wheel " thing you are referring to? I'm not totally sure what you mean out of context, but I don't ever let the school alone. I let school administrators know when teachers are not following my son's 504 plan, I answer any teacher's questions in full copied to a school administrator, point out things that aren't working, etc. There have been some times when I go for weeks contacting several teachers and administrators pretty much every single day. In two years, I have gone from no accommodations at all, to informal accommodations, through a failed IEP eval, to a 504, now to another IEP eval--this time their idea--to be done with the Autism team. When they would not evaluate, I did it--neuropsych, occupational therapy and speech--and brought it back to them. Since it is now their idea, I think he will finally get services--at age 14! We will see. Many school districts will try to get away with solving problems at the lowest level possible, so you just have to keep pushing until there are no more excuses left. Ironically, totally coincidentally, the children's hospital also contacted me and okayed us for an autism study that will get my son the ADOS and ADI-R for free--the one thing where they didn't take our insurance so we couldn't do. When it rains, it pours LOL! Ruth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2009 Report Share Posted January 28, 2009 > > Could someone tell me what ADOS and ADI-R stand for? http://www.umich.edu/~umacc/diagnostic_instruments/description.htm The Autism Diagnostic Interview-Revised ( ADI-R: Lord, Rutter & Le Couteur, 1994) and the Autism Diagnostic Observation Schedule (ADOS: WPS Edition; Lord, Rutter, DiLavore & Risi, 1999) are complementary diagnostic instruments originally created for research, but now adapted for clinical purposes. They are intended to be used by experienced clinicians; training in their use is highly recommended. For these reasons, and because of their length, they are most appropriate as part of a comprehensive evaluation within specialty clinics. A strength of both instruments is that they operationalize current DSM-IV and ICD-10 criteria and quantify separately the three domains that define autism spectrum disorders: social reciprocity, communication and restricted, repetitive behaviors and interests. This can be very helpful in increasing parents' understanding of their children's disabilities and setting goals. The clinical version of the ADI-R takes about 90 minutes to administer and yields current scores and history. The ADOS is a standardized observation of social behavior in naturalistic and communicative contexts, with different modules and tasks for children of different ages and language levels. It yields scores that fall within a range from autism to autism spectrum disorder, and so may be particularly helpful with difficult to diagnose cases. It takes about 30-45 minutes to administer. Inter-rater and test-retest reliability as well as internal validity have been demonstrated for both instruments and they, and their previous versions, have been widely used in research and in academic centers for about 15 years. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2009 Report Share Posted January 28, 2009 I have been wondering that also so thank you. However,you said the ADOS takes 30--45 minutes. I have my son scheduled for one on Monday and they said I will be there for at least 4 hours. Do they do both tests? All I was told was about the ADOS. Thank you From: r_woman2 <me2ruth@...>Subject: Re: ( ) AS and school (longish) Date: Wednesday, January 28, 2009, 2:17 PM >> Could someone tell me what ADOS and ADI-R stand for?http://www.umich. edu/~umacc/ diagnostic_ instruments/ description. htmThe Autism Diagnostic Interview-Revised ( ADI-R: Lord, Rutter & LeCouteur, 1994) and the Autism Diagnostic Observation Schedule (ADOS:WPS Edition; Lord, Rutter, DiLavore & Risi, 1999) are complementarydiagnostic instruments originally created for research, but nowadapted for clinical purposes.They are intended to be used by experienced clinicians; training intheir use is highly recommended. For these reasons, and because oftheir length, they are most appropriate as part of a comprehensiveevaluation within specialty clinics. A strength of both instruments isthat they operationalize current DSM-IV and ICD-10 criteria andquantify separately the three domains that define autism spectrumdisorders: social reciprocity, communication and restricted,repetitive behaviors and interests. This can be very helpful inincreasing parents' understanding of their children's disabilities andsetting goals.The clinical version of the ADI-R takes about 90 minutes to administerand yields current scores and history. The ADOS is a standardizedobservation of social behavior in naturalistic and communicativecontexts, with different modules and tasks for children of differentages and language levels. It yields scores that fall within a rangefrom autism to autism spectrum disorder, and so may be particularlyhelpful with difficult to diagnose cases. It takes about 30-45 minutesto administer. Inter-rater and test-retest reliability as well asinternal validity have been demonstrated for both instruments andthey, and their previous versions, have been widely used in researchand in academic centers for about 15 years. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2009 Report Share Posted January 28, 2009 > > I have been wondering that also so thank you. However,you said the ADOS takes 30--45 minutes. I have my son scheduled for one on Monday and they said I will be there for at least 4 hours. Do they do both tests? All I was told was about the ADOS. It depends where you go, of course. I would be willing to be they are planning on doing additional testing and interviewing. For example, if he has never had an IQ test, they pretty much have to do that. And they will probably at least interview you for an hour give or take, even if they don't do the ADI-R. And they may have other things in mind that they think will be helpful for a complete dx. Ruth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2009 Report Share Posted January 28, 2009 Thank you. As the day gets closer I am having more anxiety over this. I need him to be dx for therapy reasons but at the same time I want them to find nothing and it all be in my head. From: r_woman2 <me2ruth@...>Subject: Re: ( ) AS and school (longish) Date: Wednesday, January 28, 2009, 3:54 PM >> I have been wondering that also so thank you. However,you said theADOS takes 30--45 minutes. I have my son scheduled for one on Mondayand they said I will be there for at least 4 hours. Do they do bothtests? All I was told was about the ADOS.It depends where you go, of course. I would be willing to be they areplanning on doing additional testing and interviewing. For example,if he has never had an IQ test, they pretty much have to do that. Andthey will probably at least interview you for an hour give or take,even if they don't do the ADI-R. And they may have other things inmind that they think will be helpful for a complete dx.Ruth Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 28, 2009 Report Share Posted January 28, 2009 Ruth, I think you just answered something I wondered about. When I took my son to TEACCH years ago to see about Aspergers dx, we weren't there that long, couple hours I guess by time we left. But I had sent them the results of all the tests I had the school do not long before that; so maybe that was why 's evaluation was shorter than I'd expected. > > It depends where you go, of course. I would be willing to be they are > planning on doing additional testing and interviewing. For example, > if he has never had an IQ test, they pretty much have to do that. And > they will probably at least interview you for an hour give or take, > even if they don't do the ADI-R. And they may have other things in > mind that they think will be helpful for a complete dx. > > Ruth > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 29, 2009 Report Share Posted January 29, 2009 Hi Conni, You can see an example of one here --> < http://www.adaptivechild.com/index.asp?PageAction=VIEWPROD & ProdID=1382 > or http://tinyurl.com/aoeffm RoxannaYou're UniqueJust like everyone else... Re: ( ) AS and school (longish)Ruth,Thanks. My son is in mainstream classroom with a 504 plan.. He meetswith a guidance counselor once a week in a group setting.. Pam suggestedI request a Functional Behavior assessment..I just need to know,whatexactly is a FBA?ConniI need help too..Any advice would be appreciated..My Aspie's (10 yr old)> teacher called me today to tell me that my son has been very impulsive> lately..Falling off chairs, overreacting to small things, "adjusting> himself" in front of others. Mostly since coming back from Winter> break.. I have discussed this with him on numerous occassions and he> says he understands,but keeps doing these behaviors,., Its like hecant> control it..How to I get himto stop these behaviors?The teacher wanted> me to tell her how to handle it, and quite frankly, I'm not sure..Any> advice?Hi Conni. This is not something there is a simple answer to. If youare in public school, ask for a full and individual special edevaluation IN WRITING. Call your school district special ed office toask for details like who to turn it into and whether there is a form.If you are in private school, you will need to get the evaluationsdone yourself through your health insurance. My advice would be tostart getting supports in place, even though you don't know enough yetto know what they need to be!I don't have a pat answer to your son's problems; it is not somethingthat is going to be a quick fix. For my own self, it was a matter oflots of reading, talking to people, friends, discussions lists,professionals I took my son to, experimenting, etc. It's a process. Try not to be discouraged. It will get better and better the more youlearn about Asperger and how it affects your son specifically.Hopefully someone else will have a better answer for NOW, as I seem tobe flat out of ideas at the moment. Sorry.Ruth No virus found in this incoming message.Checked by AVG - http://www.avg.com Version: 8.0.176 / Virus Database: 270.10.14/1920 - Release Date: 1/27/2009 6:15 PM Quote Link to comment Share on other sites More sharing options...
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