Guest guest Posted February 26, 2008 Report Share Posted February 26, 2008 Because everyone advances and everyone learns to some degree. Our brains are not cemented when we are born but they are growing and changing, connections are made or not made, milestones and learning take place. People think that they suddenly chelate a kid and they are "cured" from this treatment. But the child could be moving forward anyway - like they were destined to do. A good diet is important, to be sure. And if someone is allergic to specific foods, a real allergy, then you should find that out! But as for curing autism, it doesn't do that. I've seen kids on the diet and being chelated and I've seen them go no farther than they were going before they started. I've seen the parents putting all the time and money into this stuff but not putting the effort and work into actual real therapy and tutoring. Not everyone is that way but the ones in my area that I know personally have been this way. I used to get so upset watching them go nowhere and getting chelated over and over again for nothing. Now I just try to remember that people make choices and you can't convince them otherwise. All I ever ask is that people take data and objectively measure whether anything they are doing is working or not working. One family chelated their kid a lot. He was non-verbal and very autistic. I watched him a lot when I volunteered in the classroom. Later, a friend was brought in to do ABA with him and I thought, "thank goodness!" they were doing something that actually had a chance of helping him. But it turned out that they could not handle "making" him do anything....like sit down and learn. So it never worked out. I think they wanted an easy answer - give vitamins and watch his diet - easier than having to do real work with a kid who was very tough to work with. It's sad. But he will never advance very far because nobody will expect it from him. And he's had all the diet and chelation money can buy but he is no farther along than he was years ago. I've seen kids make advances at specific ages and then other kids make those advances but it is attributed to "the diet" or "chelation." I am just not a believer. Everyone has their opinion and that is just mine. In the bigger sense, I agree with your doctor that we can't cure autism. I don't believe it can be cured. I do think with a lot of therapies and interventions, these kids can learn and can make progress. I believe how much progress depends on the child and the level of problems that they have neurologically. Autism does not always happen by itself - you can often have autism and tourettes and OCD and....each person affected to specific degrees in different areas. So nobody can predict outcomes easily. RoxannaAutism Happens Re: ( ) Re: MCcarthey 20/20- Long Roxanna & , if our doctor, specialist in autism, and a Dr of neurology, specializing in autism & research. (they work in a team) with other specialist involved stated in their reports that autism is a neurological disorder which effects the brain. and she went on to explain that (which she elaborated) you can't cure autism because you can't give a child a new brain. I also heard this from the research department in Pittsfield study of autism, and Yale university in Connecticut - stating you can't cure autism. but a child with intervention, strategies, and consistent therapies, will progress and learn to do well in the real world with continued services. but would always be different. How can you explain that?jennifer_thorson <jennifer_thorson > wrote: I believe she did mean 'cure'. If a child with autism has treatment and no longer has autism than it is a cure. But that does not mean that no residual issue are present. Many NT kids have behavior issues, sensory sensativity, etc. My daughter is not cured yet, as she was just diagnosed now with PDD NOS, but she has gone from moderate autism to this point in 2 years. She started the biomedical route at 4 (late) so she may never be cured. But most of her traits are NT now. She is delayed in social development (but advancing quickly) and has immature make believe play (but also advancing quickly). When she is not gfcf she regresses far to the point she would receive an autism diagnosis. But on the diet she is functional. I believe she will be cured to the point of no one seeing any autism spectrum issues, but only through her own management of her behavior. I expect that since she has an interest in her peers that she will learn how to keep friends. It may be trial and error but she will get there. She imitates others which makes her make believe play look scripted, but she shows genuine enjoyment when playing with her brother. She observes the kids in her class and incorporates that into her play. Her speech was very scripted in the past and is not so much now. It has been less than 2 years since she started speaking in sentenses so the progress has been off the charts. Many parents who follow the biomedical route cure their children. Most have started when they were very young and were quite aggressive with treatments. These are parents like you and I and not celebrities. It can be a big strain on the budget but necessary. I went to one DAN Dr. visit after she was on the diet 2 months. I did a lot of research before the appt. and used the evaluation to guide me towards the next step. I got lab work from the DAN Dr. and had my pediatrician write it up so it would be covered by my insurance. I tried supplements others recommended from the forums and adjusted them as needed. Chelation was not appropriate for my daughter as it caused more problems since the toxins went through the stomach and caused yeast overgrowth that I could not control. We decided to just continue with the glutathione that the DAN Dr. ordered. My daughter has a high probability of mercury poisoning so mercury may be causing havoc in her brain. This may always affect her. But the risks of chelation outweighted the benefits. I am glad people like McCarthty have brought a spotlight on biomedical treatments. She is willing to take the critisism. But many families will benefit from the info. > > She was on. It was the 2nd piece that they did. Not too > long. She said basically the same information as on her other > appearances. She is going to be on Larry King, also.> > > > ----------------------------------------------------------> --------> > Luggage? GPS? Comic books? > > Check out fitting gifts for grads at Search. > > > > > > > > > > ----------------------------------------------------------> ----------> > Take the Internet to Go: Go puts the Internet in your > pocket: mail, news, photos more.> >> Be a better friend, newshound, and know-it-all with Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2008 Report Share Posted February 26, 2008 Roxanna, I agree with you on what you just posted. that was the way the professionals explained it to me...It's so sad that MCcarthey gets to be put in the limelight and mis-lead so many parents and school staff that there is a cure. LOL, I wonder if that's why my sons 3rd grade teacher & the other person both thought they cured my son. Hahahaha. wrong ! Rose Roxanna <madideas@...> wrote: Because everyone advances and everyone learns to some degree. Our brains are not cemented when we are born but they are growing and changing, connections are made or not made, milestones and learning take place. People think that they suddenly chelate a kid and they are "cured" from this treatment. But the child could be moving forward anyway - like they were destined to do. A good diet is important, to be sure. And if someone is allergic to specific foods, a real allergy, then you should find that out! But as for curing autism, it doesn't do that. I've seen kids on the diet and being chelated and I've seen them go no farther than they were going before they started. I've seen the parents putting all the time and money into this stuff but not putting the effort and work into actual real therapy and tutoring. Not everyone is that way but the ones in my area that I know personally have been this way. I used to get so upset watching them go nowhere and getting chelated over and over again for nothing. Now I just try to remember that people make choices and you can't convince them otherwise. All I ever ask is that people take data and objectively measure whether anything they are doing is working or not working. One family chelated their kid a lot. He was non-verbal and very autistic. I watched him a lot when I volunteered in the classroom. Later, a friend was brought in to do ABA with him and I thought, "thank goodness!" they were doing something that actually had a chance of helping him. But it turned out that they could not handle "making" him do anything....like sit down and learn. So it never worked out. I think they wanted an easy answer - give vitamins and watch his diet - easier than having to do real work with a kid who was very tough to work with. It's sad. But he will never advance very far because nobody will expect it from him. And he's had all the diet and chelation money can buy but he is no farther along than he was years ago. I've seen kids make advances at specific ages and then other kids make those advances but it is attributed to "the diet" or "chelation." I am just not a believer. Everyone has their opinion and that is just mine. In the bigger sense, I agree with your doctor that we can't cure autism. I don't believe it can be cured. I do think with a lot of therapies and interventions, these kids can learn and can make progress. I believe how much progress depends on the child and the level of problems that they have neurologically. Autism does not always happen by itself - you can often have autism and tourettes and OCD and....each person affected to specific degrees in different areas. So nobody can predict outcomes easily. RoxannaAutism Happens Re: ( ) Re: MCcarthey 20/20- Long Roxanna & , if our doctor, specialist in autism, and a Dr of neurology, specializing in autism & research. (they work in a team) with other specialist involved stated in their reports that autism is a neurological disorder which effects the brain. and she went on to explain that (which she elaborated) you can't cure autism because you can't give a child a new brain. I also heard this from the research department in Pittsfield study of autism, and Yale university in Connecticut - stating you can't cure autism. but a child with intervention, strategies, and consistent therapies, will progress and learn to do well in the real world with continued services. but would always be different. How can you explain that?jennifer_thorson <jennifer_thorson > wrote: I believe she did mean 'cure'. If a child with autism has treatment and no longer has autism than it is a cure. But that does not mean that no residual issue are present. Many NT kids have behavior issues, sensory sensativity, etc. My daughter is not cured yet, as she was just diagnosed now with PDD NOS, but she has gone from moderate autism to this point in 2 years. She started the biomedical route at 4 (late) so she may never be cured. But most of her traits are NT now. She is delayed in social development (but advancing quickly) and has immature make believe play (but also advancing quickly). When she is not gfcf she regresses far to the point she would receive an autism diagnosis. But on the diet she is functional. I believe she will be cured to the point of no one seeing any autism spectrum issues, but only through her own management of her behavior. I expect that since she has an interest in her peers that she will learn how to keep friends. It may be trial and error but she will get there. She imitates others which makes her make believe play look scripted, but she shows genuine enjoyment when playing with her brother. She observes the kids in her class and incorporates that into her play. Her speech was very scripted in the past and is not so much now. It has been less than 2 years since she started speaking in sentenses so the progress has been off the charts. Many parents who follow the biomedical route cure their children. Most have started when they were very young and were quite aggressive with treatments. These are parents like you and I and not celebrities. It can be a big strain on the budget but necessary. I went to one DAN Dr. visit after she was on the diet 2 months. I did a lot of research before the appt. and used the evaluation to guide me towards the next step. I got lab work from the DAN Dr. and had my pediatrician write it up so it would be covered by my insurance. I tried supplements others recommended from the forums and adjusted them as needed. Chelation was not appropriate for my daughter as it caused more problems since the toxins went through the stomach and caused yeast overgrowth that I could not control. We decided to just continue with the glutathione that the DAN Dr. ordered. My daughter has a high probability of mercury poisoning so mercury may be causing havoc in her brain. This may always affect her. But the risks of chelation outweighted the benefits. I am glad people like McCarthty have brought a spotlight on biomedical treatments. She is willing to take the critisism. But many families will benefit from the info. > > She was on. It was the 2nd piece that they did. Not too > long. She said basically the same information as on her other > appearances. She is going to be on Larry King, also.> > > > ----------------------------------------------------------> --------> > Luggage? GPS? Comic books? > > Check out fitting gifts for grads at Search. > > > > > > > > > > ----------------------------------------------------------> ----------> > Take the Internet to Go: Go puts the Internet in your > pocket: mail, news, photos more.> >> Be a better friend, newshound, and know-it-all with Mobile. Try it now. Be a better friend, newshound, and know-it-all with Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2008 Report Share Posted February 26, 2008 , I wanted to ask a question - when using the word cured, for autism. Has a child been seen by a neurologist that specializes in autism, and gave the child a DX of autism. then same child, seen by the Dan Dr which has specialized training in nutritional and biomedical treatments has agreed the child has autism, did treatment, then cured the child. then has that parent took that same cured child back to the neurologist that specializes in autism that DXed the child first, and agreed that he/she has been cured from autism from the Dan Dr?.. My point is, has the diagnosis been confirmed by both doctors, and when the Dan Dr. cured the child from autism, the medical doctors agreed the child is cured. thanks for sharing Rose jennifer_thorson <jennifer_thorson@...> wrote: A DAN Dr. is a medical doctor with specialized training in nutrition and biomedical treatments. So it depends on which professional you want to believe. I went with the doctor that has cured children with autism. I know many think this is a waste of money, and it does not work with all children. That is why I did research first. I have met people that said it is a placebo affect. For me I have tracked the effects of each treatment and have seen regression when my daughter eats something she cannot tolerate. DAN Dr. can give a much better explanation than me, but if parents are looking for answers they can help.gersSupport , Rose <beachbodytan2002@...> wrote:>> Roxanna & ,> if our doctor, specialist in autism, and a Dr of neurology, specializing in autism & research. (they work in a team) with other specialist involved stated in their reports that autism is a neurological disorder which effects the brain. and she went on to explain that (which she elaborated) you can't cure autism because you can't give a child a new brain. > I also heard this from the research department in Pittsfield study of autism, and Yale university in Connecticut - stating you can't cure autism. but a child with intervention, strategies, and consistent therapies, will progress and learn to do well in the real world with continued services. but would always be different. > How can you explain that?> > jennifer_thorson <jennifer_thorson@...> wrote:> I believe she did mean 'cure'. If a child with autism has treatment > and no longer has autism than it is a cure. But that does not mean > that no residual issue are present. Many NT kids have behavior > issues, sensory sensativity, etc. My daughter is not cured yet, as > she was just diagnosed now with PDD NOS, but she has gone from > moderate autism to this point in 2 years. She started the biomedical > route at 4 (late) so she may never be cured. But most of her traits > are NT now. She is delayed in social development (but advancing > quickly) and has immature make believe play (but also advancing > quickly). When she is not gfcf she regresses far to the point she > would receive an autism diagnosis. But on the diet she is > functional. I believe she will be cured to the point of no one > seeing any autism spectrum issues, but only through her own > management of her behavior. I expect that since she has an interest > in her peers that she will learn how to keep friends. It may be > trial and error but she will get there. She imitates others which > makes her make believe play look scripted, but she shows genuine > enjoyment when playing with her brother. She observes the kids in > her class and incorporates that into her play. Her speech was very > scripted in the past and is not so much now. It has been less than 2 > years since she started speaking in sentenses so the progress has > been off the charts. > > Many parents who follow the biomedical route cure their children. > Most have started when they were very young and were quite aggressive > with treatments. These are parents like you and I and not > celebrities. It can be a big strain on the budget but necessary. I > went to one DAN Dr. visit after she was on the diet 2 months. I did > a lot of research before the appt. and used the evaluation to guide > me towards the next step. I got lab work from the DAN Dr. and had my > pediatrician write it up so it would be covered by my insurance. I > tried supplements others recommended from the forums and adjusted > them as needed. Chelation was not appropriate for my daughter as it > caused more problems since the toxins went through the stomach and > caused yeast overgrowth that I could not control. We decided to just > continue with the glutathione that the DAN Dr. ordered. My daughter > has a high probability of mercury poisoning so mercury may be causing > havoc in her brain. This may always affect her. But the risks of > chelation outweighted the benefits. > > I am glad people like McCarthty have brought a spotlight on > biomedical treatments. She is willing to take the critisism. But > many families will benefit from the info. > > > > > She was on. It was the 2nd piece that they did. Not too > > long. She said basically the same information as on her other > > appearances. She is going to be on Larry King, also.> > > > > > ----------------------------------------------------------> > --------> > > Luggage? GPS? Comic books? > > > Check out fitting gifts for grads at Search. > > > > > > > > > > > > > > > ----------------------------------------------------------> > ----------> > > Take the Internet to Go: Go puts the Internet in your > > pocket: mail, news, photos more.> > >> >> > > > > > > ---------------------------------> Be a better friend, newshound, and know-it-all with Mobile. Try it now.> Never miss a thing. Make your homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2008 Report Share Posted February 26, 2008 If your kid is cured, then why hang out places like this? RoxannaAutism Happens ( ) Re: MCcarthey 20/20- Long A DAN Dr. is a medical doctor with specialized training in nutrition and biomedical treatments. So it depends on which professional you want to believe. I went with the doctor that has cured children with autism. I know many think this is a waste of money, and it does not work with all children. That is why I did research first. I have met people that said it is a placebo affect. For me I have tracked the effects of each treatment and have seen regression when my daughter eats something she cannot tolerate. DAN Dr. can give a much better explanation than me, but if parents are looking for answers they can help.gersSupport , Rose <beachbodytan2002@...> wrote:>> Roxanna & ,> if our doctor, specialist in autism, and a Dr of neurology, specializing in autism & research. (they work in a team) with other specialist involved stated in their reports that autism is a neurological disorder which effects the brain. and she went on to explain that (which she elaborated) you can't cure autism because you can't give a child a new brain. > I also heard this from the research department in Pittsfield study of autism, and Yale university in Connecticut - stating you can't cure autism. but a child with intervention, strategies, and consistent therapies, will progress and learn to do well in the real world with continued services. but would always be different. > How can you explain that?> > jennifer_thorson <jennifer_thorson@...> wrote:> I believe she did mean 'cure'. If a child with autism has treatment > and no longer has autism than it is a cure. But that does not mean > that no residual issue are present. Many NT kids have behavior > issues, sensory sensativity, etc. My daughter is not cured yet, as > she was just diagnosed now with PDD NOS, but she has gone from > moderate autism to this point in 2 years. She started the biomedical > route at 4 (late) so she may never be cured. But most of her traits > are NT now. She is delayed in social development (but advancing > quickly) and has immature make believe play (but also advancing > quickly). When she is not gfcf she regresses far to the point she > would receive an autism diagnosis. But on the diet she is > functional. I believe she will be cured to the point of no one > seeing any autism spectrum issues, but only through her own > management of her behavior. I expect that since she has an interest > in her peers that she will learn how to keep friends. It may be > trial and error but she will get there. She imitates others which > makes her make believe play look scripted, but she shows genuine > enjoyment when playing with her brother. She observes the kids in > her class and incorporates that into her play. Her speech was very > scripted in the past and is not so much now. It has been less than 2 > years since she started speaking in sentenses so the progress has > been off the charts. > > Many parents who follow the biomedical route cure their children. > Most have started when they were very young and were quite aggressive > with treatments. These are parents like you and I and not > celebrities. It can be a big strain on the budget but necessary. I > went to one DAN Dr. visit after she was on the diet 2 months. I did > a lot of research before the appt. and used the evaluation to guide > me towards the next step. I got lab work from the DAN Dr. and had my > pediatrician write it up so it would be covered by my insurance. I > tried supplements others recommended from the forums and adjusted > them as needed. Chelation was not appropriate for my daughter as it > caused more problems since the toxins went through the stomach and > caused yeast overgrowth that I could not control. We decided to just > continue with the glutathione that the DAN Dr. ordered. My daughter > has a high probability of mercury poisoning so mercury may be causing > havoc in her brain. This may always affect her. But the risks of > chelation outweighted the benefits. > > I am glad people like McCarthty have brought a spotlight on > biomedical treatments. She is willing to take the critisism. But > many families will benefit from the info. > > > > > She was on. It was the 2nd piece that they did. Not too > > long. She said basically the same information as on her other > > appearances. She is going to be on Larry King, also.> > > > > > ----------------------------------------------------------> > --------> > > Luggage? GPS? Comic books? > > > Check out fitting gifts for grads at Search. > > > > > > > > > > > > > > > ----------------------------------------------------------> > ----------> > > Take the Internet to Go: Go puts the Internet in your > > pocket: mail, news, photos more.> > >> >> > > > > > > ---------------------------------> Be a better friend, newshound, and know-it-all with Mobile. Try it now.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2008 Report Share Posted February 26, 2008 I am not the person who said she didn't mean to say "cure." RoxannaAutism Happens ( ) Re: MCcarthey 20/20- Long I believe she did mean 'cure'. If a child with autism has treatment and no longer has autism than it is a cure. But that does not mean that no residual issue are present. Many NT kids have behavior issues, sensory sensativity, etc. My daughter is not cured yet, as she was just diagnosed now with PDD NOS, but she has gone from moderate autism to this point in 2 years. She started the biomedical route at 4 (late) so she may never be cured. But most of her traits are NT now. She is delayed in social development (but advancing quickly) and has immature make believe play (but also advancing quickly). When she is not gfcf she regresses far to the point she would receive an autism diagnosis. But on the diet she is functional. I believe she will be cured to the point of no one seeing any autism spectrum issues, but only through her own management of her behavior. I expect that since she has an interest in her peers that she will learn how to keep friends. It may be trial and error but she will get there. She imitates others which makes her make believe play look scripted, but she shows genuine enjoyment when playing with her brother. She observes the kids in her class and incorporates that into her play. Her speech was very scripted in the past and is not so much now. It has been less than 2 years since she started speaking in sentenses so the progress has been off the charts. Many parents who follow the biomedical route cure their children. Most have started when they were very young and were quite aggressive with treatments. These are parents like you and I and not celebrities. It can be a big strain on the budget but necessary. I went to one DAN Dr. visit after she was on the diet 2 months. I did a lot of research before the appt. and used the evaluation to guide me towards the next step. I got lab work from the DAN Dr. and had my pediatrician write it up so it would be covered by my insurance. I tried supplements others recommended from the forums and adjusted them as needed. Chelation was not appropriate for my daughter as it caused more problems since the toxins went through the stomach and caused yeast overgrowth that I could not control. We decided to just continue with the glutathione that the DAN Dr. ordered. My daughter has a high probability of mercury poisoning so mercury may be causing havoc in her brain. This may always affect her. But the risks of chelation outweighted the benefits. I am glad people like McCarthty have brought a spotlight on biomedical treatments. She is willing to take the critisism. But many families will benefit from the info. > > She was on. It was the 2nd piece that they did. Not too > long. She said basically the same information as on her other > appearances. She is going to be on Larry King, also.> > > > ----------------------------------------------------------> --------> > Luggage? GPS? Comic books? > > Check out fitting gifts for grads at Search. > > > > > > > > > > ----------------------------------------------------------> ----------> > Take the Internet to Go: Go puts the Internet in your > pocket: mail, news, photos more.> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2008 Report Share Posted February 26, 2008 you know... you have a good point !! I wish my son was cured.. What I don't get is, If these Dan Doctors are that good and curing autism. why aren't the autism research specialist on it?. why aren't every parent with a child with autism seeing a Dan doctor who is on this site? I can't be the only one that wants a cure for my son. Why isn't this on CNN? Dan doctor finds cure for autism. why aren't those children on every news station like they are now showing 1 out of every 150 kids have autism, and state: take them to a Dan Doctor to be cured. and show/interview all the kids that were cured from autism. I would like to know if a neurologist specializing in autism, who diagnosed that child with autism, and that child got 'cured ' by a Dan doctor, and was seen again by that neurologist. - would he/she agree that he's cured?, and agree that the Dan doctor cured him? or did he/she move on to a higher functioning level like lots of our kids did. where they don't stand out. also, I don't feel like I'm being one sided on this. Its just that if a Dan doctor can cure autism. why isn't he getting all that publicity instead of . Roxanna <madideas@...> wrote: If your kid is cured, then why hang out places like this? RoxannaAutism Happens ( ) Re: MCcarthey 20/20- Long A DAN Dr. is a medical doctor with specialized training in nutrition and biomedical treatments. So it depends on which professional you want to believe. I went with the doctor that has cured children with autism. I know many think this is a waste of money, and it does not work with all children. That is why I did research first. I have met people that said it is a placebo affect. For me I have tracked the effects of each treatment and have seen regression when my daughter eats something she cannot tolerate. DAN Dr. can give a much better explanation than me, but if parents are looking for answers they can help.gersSupport , Rose <beachbodytan2002@...> wrote:>> Roxanna & ,> if our doctor, specialist in autism, and a Dr of neurology, specializing in autism & research. (they work in a team) with other specialist involved stated in their reports that autism is a neurological disorder which effects the brain. and she went on to explain that (which she elaborated) you can't cure autism because you can't give a child a new brain. > I also heard this from the research department in Pittsfield study of autism, and Yale university in Connecticut - stating you can't cure autism. but a child with intervention, strategies, and consistent therapies, will progress and learn to do well in the real world with continued services. but would always be different. > How can you explain that?> > jennifer_thorson <jennifer_thorson@...> wrote:> I believe she did mean 'cure'. If a child with autism has treatment > and no longer has autism than it is a cure. But that does not mean > that no residual issue are present. Many NT kids have behavior > issues, sensory sensativity, etc. My daughter is not cured yet, as > she was just diagnosed now with PDD NOS, but she has gone from > moderate autism to this point in 2 years. She started the biomedical > route at 4 (late) so she may never be cured. But most of her traits > are NT now. She is delayed in social development (but advancing > quickly) and has immature make believe play (but also advancing > quickly). When she is not gfcf she regresses far to the point she > would receive an autism diagnosis. But on the diet she is > functional. I believe she will be cured to the point of no one > seeing any autism spectrum issues, but only through her own > management of her behavior. I expect that since she has an interest > in her peers that she will learn how to keep friends. It may be > trial and error but she will get there. She imitates others which > makes her make believe play look scripted, but she shows genuine > enjoyment when playing with her brother. She observes the kids in > her class and incorporates that into her play. Her speech was very > scripted in the past and is not so much now. It has been less than 2 > years since she started speaking in sentenses so the progress has > been off the charts. > > Many parents who follow the biomedical route cure their children. > Most have started when they were very young and were quite aggressive > with treatments. These are parents like you and I and not > celebrities. It can be a big strain on the budget but necessary. I > went to one DAN Dr. visit after she was on the diet 2 months. I did > a lot of research before the appt. and used the evaluation to guide > me towards the next step. I got lab work from the DAN Dr. and had my > pediatrician write it up so it would be covered by my insurance. I > tried supplements others recommended from the forums and adjusted > them as needed. Chelation was not appropriate for my daughter as it > caused more problems since the toxins went through the stomach and > caused yeast overgrowth that I could not control. We decided to just > continue with the glutathione that the DAN Dr. ordered. My daughter > has a high probability of mercury poisoning so mercury may be causing > havoc in her brain. This may always affect her. But the risks of > chelation outweighted the benefits. > > I am glad people like McCarthty have brought a spotlight on > biomedical treatments. She is willing to take the critisism. But > many families will benefit from the info. > > > > > She was on. It was the 2nd piece that they did. Not too > > long. She said basically the same information as on her other > > appearances. She is going to be on Larry King, also.> > > > > > ----------------------------------------------------------> > --------> > > Luggage? GPS? Comic books? > > > Check out fitting gifts for grads at Search. > > > > > > > > > > > > > > > ----------------------------------------------------------> > ----------> > > Take the Internet to Go: Go puts the Internet in your > > pocket: mail, news, photos more.> > >> >> > > > > > > ---------------------------------> Be a better friend, newshound, and know-it-all with Mobile. Try it now.> Looking for last minute shopping deals? Find them fast with Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2008 Report Share Posted February 26, 2008 , in our school, the teacher started a big mess by stating my son doesn't look autistic and is progressing. even though he has documentation starting at a very young age to present stating he's autistic. they challenged that doctor. so the school did some testing and said he's not autistic. (all because they wanted to change his classification before going into middle school next September) I took him back to the neurologist and she did her testing and stated he is progressing but still autistic. higher functioning, but still on the autistic spectrum. the school then sent their findings to her, ( this went back and forth for months) and that's when she explained to the school that autism is neurological which effects the brain. since you can't give a child a new brain, you can't cure the child. she also said the same things Roxanna had posted when she was explaining how our kids can progress. but how can you fix the brain?. I hope I'm wording this right, you can redirect, you can teach, you can roll model to the point where the child won't stand out. and progress to the point where he/she can function in the real world, but that child would always be different. My son would always flap his hands like a bird whenever he's excited. I taught him not to do that and he found another appropriate thing to do with his hands that doesn't stand out, or an eye catcher that would make him a target in school. because he was taught not to flap his hands and drilled to look at the person he's speaking to, and other things that he was drilled to learn over the years, doesn't mean he's cured from autism because he was taught to act "normal"...He is very high functioning, but there is always something new that we have to work on. or something with social skills he's not getting, or prompting needed in school. I wish there was a cure, and if I believed that a Dan doctor can cure him instead of doing all that we are doing now. I would do what ever I can to get my son there. The reason why this really hit a spot with me, is because I believe there are so many people being mis lead about the cure, and spending so much time with this instead of getting the interventions need for their child to progress. and like any parent, we all want to hear our child is cured when making progress. I do wish you the best for you and your child. And I pray your child continues to do well because our children do work hard with all the strategies we give them. and being though this is such a sensitive topic, I'm not responding to this topic anymore. I think our last hot topic was the vaccines? jennifer_thorson <jennifer_thorson@...> wrote: Yes. The children were diagnosed, then treated, and then re-evaluated. The chance of being re-evaluated by the same person seems not very likely to me. I don't know the answer to this part. > > > > She was on. It was the 2nd piece that they did. Not too > > > long. She said basically the same information as on her other > > > appearances. She is going to be on Larry King, also.> > > > > > > > ----------------------------------------------------------> > > --------> > > > Luggage? GPS? Comic books? > > > > Check out fitting gifts for grads at Search. > > > > > > > > > > > > > > > > > > > > ----------------------------------------------------------> > > ----------> > > > Take the Internet to Go: Go puts the Internet in your > > > pocket: mail, news, photos more.> > > >> > >> > > > > > > > > > > > > > ---------------------------------> > Be a better friend, newshound, and know-it-all with Mobile. > Try it now.> >> > > > > > > ---------------------------------> Never miss a thing. Make your homepage.> Looking for last minute shopping deals? Find them fast with Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2008 Report Share Posted February 26, 2008 I don’t think Rose is being hostile at all. In fact, I was getting ready to respond to Rose’s post when yours came through. Rose asks some very good questions as to why if “DAN doctors are that good and curing autism” why hasn’t everyone else jumped to have their child “cured”. I am a nurse and my husband is a physician and so we believe all medical care and treatments should be based on scientific research and individuals that provide this care should be thoroughly and appropriately trained. I pulled the following statement right off the website of the Autism Research Institute which is the website for DAN (Defeat Autism Now): Currently, a practitioner must attend at least one Defeat Autism Now! Conference and/or Physician's seminar in order to be added to the list of clinicians using the Defeat Autism Now! approach. I don’t know about anyone else, and I don’t intend to sound hostile as you keep saying people that respond to you are, but I would not allow a surgeon to do a CABG (coronary artery bypass graft – open heart surgery) on me or my love ones after only attending one conference on heart surgery! No, I don’t believe autism can be cured today. But, I can say and will say our kids can improve, move to higher functioning, stand out less, etc. with the appropriate supports and therapies. From: [mailto: ] On Behalf Of jennifer_thorson Sent: Tuesday, February 26, 2008 9:08 PM Subject: ( ) Re: MCcarthey 20/20- Long Again the hostility? Most people do not believe autism can be cured. DAN Dr. have annual conferences and have been trying to get the message out for years. But because of the reasons you stated, they do not get a lot of credit. Children lose their diagnosis, but many medical professionals say they 'grew' out of it. I can understand HFA children learning the skills they need to adapt and appear NT, but children with full blown autism? But you either believe or you don't. But I don't appreciate being attacked. I explained what has helped my daughter just as all of you have explained what has helped your children. I am feeling like leaving this forum after 2 years. Many of you have given me advice over the years and I have given you advice. We have shared our concerns and I thought this was a place to talk. I guess I was mistaken. > > > > She was on. It was the 2nd piece that they did. Not too > > > long. She said basically the same information as on her other > > > appearances. She is going to be on Larry King, also. > > > > > > > > ---------------------------------------------------------- > > > -------- > > > > Luggage? GPS? Comic books? > > > > Check out fitting gifts for grads at Search. > > > > > > > > > > > > > > > > > > > > ---------------------------------------------------------- > > > ---------- > > > > Take the Internet to Go: Go puts the Internet in your > > > pocket: mail, news, photos more. > > > > > > > > > > > > > > > > > > > > > --------------------------------- > > Be a better friend, newshound, and know-it-all with Mobile. > Try it now. > > > > > > > > > > > > --------------------------------- > Looking for last minute shopping deals? Find them fast with Search. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2008 Report Share Posted February 26, 2008 . I hope you don't leave. I've enjoyed reading about what has worked for your daughter. I hope we all have. We all have kids with different levels of ASD's. We all try different "things" with them. We all swear by the things that have worked for us, personally......and toss aside the things that didnt' work or that we would never try with our kids, for whatever reason. I hope the responses were made simply out of the need to "say" that they didn't agree with DAN docs. I don't know,,,,,,,, Anyway,,,,,,,I just wanted to say that I agree with your posts. I personally, know of an 11 yr old non-verbal autistic child who did chelation over quite a bit of time...and now speaks. Seems, actually, like a kid with AS (in my opinion). So,,,,,,,,,did he just improve on his own, with therapies and such, and it was a coincidence? Maybe. I'm sure there are many examples of it working and many of it not. Just like diets, therapies, prayer, etc. I hope that you continue to share your views here. Robinjennifer_thorson <jennifer_thorson@...> wrote: Again the hostility? Most people do not believe autism can be cured. DAN Dr. have annual conferences and have been trying to get the message out for years. But because of the reasons you stated, they do not get a lot of credit. Children lose their diagnosis, but many medical professionals say they 'grew' out of it. I can understand HFA children learning the skills they need to adapt and appear NT, but children with full blown autism? But you either believe or you don't. But I don't appreciate being attacked. I explained what has helped my daughter just as all of you have explained what has helped your children. I am feeling like leaving this forum after 2 years. Many of you have given me advice over the years and I have given you advice. We have shared our concerns and I thought this was a place to talk. I guess I was mistaken. > > > > She was on. It was the 2nd piece that they did. Not too > > > long. She said basically the same information as on her other > > > appearances. She is going to be on Larry King, also.> > > > > > > > ----------------------------------------------------------> > > --------> > > > Luggage? GPS? Comic books? > > > > Check out fitting gifts for grads at Search. > > > > > > > > > > > > > > > > > > > > ----------------------------------------------------------> > > ----------> > > > Take the Internet to Go: Go puts the Internet in your > > > pocket: mail, news, photos more.> > > >> > >> > > > > > > > > > > > > > ---------------------------------> > Be a better friend, newshound, and know-it-all with Mobile. > Try it now.> >> > > > > > > > > > ---------------------------------> Looking for last minute shopping deals? Find them fast with Search.> Be a better friend, newshound, and know-it-all with Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2008 Report Share Posted February 26, 2008 Rose – I laughed when I got to your last two sentences. I don’t know you except “here” but you are always so kind and so nice From: [mailto: ] On Behalf Of Rose Sent: Tuesday, February 26, 2008 9:27 PM Subject: Re: ( ) Re: MCcarthey 20/20- Long , in our school, the teacher started a big mess by stating my son doesn't look autistic and is progressing. even though he has documentation starting at a very young age to present stating he's autistic. they challenged that doctor. so the school did some testing and said he's not autistic. (all because they wanted to change his classification before going into middle school next September) I took him back to the neurologist and she did her testing and stated he is progressing but still autistic. higher functioning, but still on the autistic spectrum. the school then sent their findings to her, ( this went back and forth for months) and that's when she explained to the school that autism is neurological which effects the brain. since you can't give a child a new brain, you can't cure the child. she also said the same things Roxanna had posted when she was explaining how our kids can progress. but how can you fix the brain?. I hope I'm wording this right, you can redirect, you can teach, you can roll model to the point where the child won't stand out. and progress to the point where he/she can function in the real world, but that child would always be different. My son would always flap his hands like a bird whenever he's excited. I taught him not to do that and he found another appropriate thing to do with his hands that doesn't stand out, or an eye catcher that would make him a target in school. because he was taught not to flap his hands and drilled to look at the person he's speaking to, and other things that he was drilled to learn over the years, doesn't mean he's cured from autism because he was taught to act " normal " ...He is very high functioning, but there is always something new that we have to work on. or something with social skills he's not getting, or prompting needed in school. I wish there was a cure, and if I believed that a Dan doctor can cure him instead of doing all that we are doing now. I would do what ever I can to get my son there. The reason why this really hit a spot with me, is because I believe there are so many people being mis lead about the cure, and spending so much time with this instead of getting the interventions need for their child to progress. and like any parent, we all want to hear our child is cured when making progress. I do wish you the best for you and your child. And I pray your child continues to do well because our children do work hard with all the strategies we give them. and being though this is such a sensitive topic, I'm not responding to this topic anymore. I think our last hot topic was the vaccines? jennifer_thorson <jennifer_thorson > wrote: Yes. The children were diagnosed, then treated, and then re- evaluated. The chance of being re-evaluated by the same person seems not very likely to me. I don't know the answer to this part. > > > > She was on. It was the 2nd piece that they did. Not too > > > long. She said basically the same information as on her other > > > appearances. She is going to be on Larry King, also. > > > > > > > > ---------------------------------------------------------- > > > -------- > > > > Luggage? GPS? Comic books? > > > > Check out fitting gifts for grads at Search. > > > > > > > > > > > > > > > > > > > > ---------------------------------------------------------- > > > ---------- > > > > Take the Internet to Go: Go puts the Internet in your > > > pocket: mail, news, photos more. > > > > > > > > > > > > > > > > > > > > > --------------------------------- > > Be a better friend, newshound, and know-it-all with Mobile. > Try it now. > > > > > > > > > --------------------------------- > Never miss a thing. Make your homepage. > Looking for last minute shopping deals? Find them fast with Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2008 Report Share Posted February 26, 2008 Sorry, I am using a different laptop than usual and I laid my hand on the wrong thing and sent my message before I finished it! I was trying to say that Rose is always so kind and nice and tries so hard to be diplomatic (which is wonderful as I sometimes am not as diplomatic as I probably should be). I agree with Rose that this particular discussion probably needs to stop as it appears to have gotten too sensitive. From: [mailto: ] On Behalf Of Elgamal Sent: Tuesday, February 26, 2008 9:41 PM Subject: RE: ( ) Re: MCcarthey 20/20- Long Rose – I laughed when I got to your last two sentences. I don’t know you except “here” but you are always so kind and so nice From: [mailto: ] On Behalf Of Rose Sent: Tuesday, February 26, 2008 9:27 PM Subject: Re: ( ) Re: MCcarthey 20/20- Long , in our school, the teacher started a big mess by stating my son doesn't look autistic and is progressing. even though he has documentation starting at a very young age to present stating he's autistic. they challenged that doctor. so the school did some testing and said he's not autistic. (all because they wanted to change his classification before going into middle school next September) I took him back to the neurologist and she did her testing and stated he is progressing but still autistic. higher functioning, but still on the autistic spectrum. the school then sent their findings to her, ( this went back and forth for months) and that's when she explained to the school that autism is neurological which effects the brain. since you can't give a child a new brain, you can't cure the child. she also said the same things Roxanna had posted when she was explaining how our kids can progress. but how can you fix the brain?. I hope I'm wording this right, you can redirect, you can teach, you can roll model to the point where the child won't stand out. and progress to the point where he/she can function in the real world, but that child would always be different. My son would always flap his hands like a bird whenever he's excited. I taught him not to do that and he found another appropriate thing to do with his hands that doesn't stand out, or an eye catcher that would make him a target in school. because he was taught not to flap his hands and drilled to look at the person he's speaking to, and other things that he was drilled to learn over the years, doesn't mean he's cured from autism because he was taught to act " normal " ...He is very high functioning, but there is always something new that we have to work on. or something with social skills he's not getting, or prompting needed in school. I wish there was a cure, and if I believed that a Dan doctor can cure him instead of doing all that we are doing now. I would do what ever I can to get my son there. The reason why this really hit a spot with me, is because I believe there are so many people being mis lead about the cure, and spending so much time with this instead of getting the interventions need for their child to progress. and like any parent, we all want to hear our child is cured when making progress. I do wish you the best for you and your child. And I pray your child continues to do well because our children do work hard with all the strategies we give them. and being though this is such a sensitive topic, I'm not responding to this topic anymore. I think our last hot topic was the vaccines? jennifer_thorson <jennifer_thorson > wrote: Yes. The children were diagnosed, then treated, and then re- evaluated. The chance of being re-evaluated by the same person seems not very likely to me. I don't know the answer to this part. > > > > She was on. It was the 2nd piece that they did. Not too > > > long. She said basically the same information as on her other > > > appearances. She is going to be on Larry King, also. > > > > > > > > ---------------------------------------------------------- > > > -------- > > > > Luggage? GPS? Comic books? > > > > Check out fitting gifts for grads at Search. > > > > > > > > > > > > > > > > > > > > ---------------------------------------------------------- > > > ---------- > > > > Take the Internet to Go: Go puts the Internet in your > > > pocket: mail, news, photos more. > > > > > > > > > > > > > > > > > > > > > --------------------------------- > > Be a better friend, newshound, and know-it-all with Mobile. > Try it now. > > > > > > > > > --------------------------------- > Never miss a thing. Make your homepage. > Looking for last minute shopping deals? Find them fast with Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2008 Report Share Posted February 26, 2008 stay with us, I think some of us sometimes have our bras on too tight.pj . I hope you don't leave. I've enjoyed reading about what has worked for your daughter. I hope we all have. We all have kids with different levels of ASD's. We all try different "things" with them. We all swear by the things that have worked for us, personally.. ....and toss aside the things that didnt' work or that we would never try with our kids, for whatever reason. I hope the responses were made simply out of the need to "say" that they didn't agree with DAN docs. I don't know,,,,,,,, Anyway,,,,,, ,I just wanted to say that I agree with your posts. I personally, know of an 11 yr old non-verbal autistic child who did chelation over quite a bit of time...and now speaks. Seems, actually, like a kid with AS (in my opinion). So,,,,,,,,,did he just improve on his own, with therapies and such, and it was a coincidence? Maybe. I'm sure there are many examples of it working and many of it not. Just like diets, therapies, prayer, etc. I hope that you continue to share your views here. Robinjennifer_thorson <jennifer_thorson> wrote: Again the hostility? Most people do not believe autism can be cured. DAN Dr. have annual conferences and have been trying to get the message out for years. But because of the reasons you stated, they do not get a lot of credit. Children lose their diagnosis, but many medical professionals say they 'grew' out of it. I can understand HFA children learning the skills they need to adapt and appear NT, but children with full blown autism? But you either believe or you don't. But I don't appreciate being attacked. I explained what has helped my daughter just as all of you have explained what has helped your children. I am feeling like leaving this forum after 2 years. Many of you have given me advice over the years and I have given you advice. We have shared our concerns and I thought this was a place to talk. I guess I was mistaken. > > > > She was on. It was the 2nd piece that they did. Not too > > > long. She said basically the same information as on her other > > > appearances. She is going to be on Larry King, also.> > > > > > > > ------------ --------- --------- --------- --------- --------- -> > > --------> > > > Luggage? GPS? Comic books? > > > > Check out fitting gifts for grads at Search. > > > > > > > > > > > > > > > > > > > > ------------ --------- --------- --------- --------- --------- -> > > ----------> > > > Take the Internet to Go: Go puts the Internet in your > > > pocket: mail, news, photos more.> > > >> > >> > > > > > > > > > > > > > ------------ --------- --------- ---> > Be a better friend, newshound, and know-it-all with Mobile. > Try it now.> >> > > > > > > > > > ------------ --------- --------- ---> Looking for last minute shopping deals? Find them fast with Search.> Be a better friend, newshound, and know-it-all with Mobile. Try it now. Looking for last minute shopping deals? Find them fast with Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2008 Report Share Posted February 26, 2008 Don't give up on the group. We need you here. Having different opinions is what makes this group so useful to me. All of our children are different so what works for one might not work for someone else. But we won't know what our options are if people leave b/c people don't agree. As one who's been in the middle of the back-and-forth before, all I request of everyone is to keep the discussion above board and not make this personal. From the posts I've read so far on this topic, it sounds like more disagreement than anyone getting nasty or personal. Being passionate about the way you see something is okay. Please stay... ( ) Re: MCcarthey 20/20- Long Again the hostility? Most people do not believe autism can be cured. DAN Dr. have annual conferences and have been trying to get the message out for years. But because of the reasons you stated, they do not get a lot of credit. Children lose their diagnosis, but many medical professionals say they 'grew' out of it. I can understand HFA children learning the skills they need to adapt and appear NT, but children with full blown autism? But you either believe or you don't. But I don't appreciate being attacked. I explained what has helped my daughter just as all of you have explained what has helped your children. I am feeling like leaving this forum after 2 years. Many of you have given me advice over the years and I have given you advice. We have shared our concerns and I thought this was a place to talk. I guess I was mistaken. > > > > She was on. It was the 2nd piece that they did. Not too > > > long. She said basically the same information as on her other > > > appearances. She is going to be on Larry King, also.> > > > > > > > ------------ --------- --------- --------- --------- --------- -> > > --------> > > > Luggage? GPS? Comic books? > > > > Check out fitting gifts for grads at Search. > > > > > > > > > > > > > > > > > > > > ------------ --------- --------- --------- --------- --------- -> > > ----------> > > > Take the Internet to Go: Go puts the Internet in your > > > pocket: mail, news, photos more.> > > >> > >> > > > > > > > > > > > > > ------------ --------- --------- ---> > Be a better friend, newshound, and know-it-all with Mobile. > Try it now.> >> > > > > > > > > > ------------ --------- --------- ---> Looking for last minute shopping deals? Find them fast with Search.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2008 Report Share Posted February 26, 2008 And with that one Patti, I'm calling it a night. I always like to end my evening on the computer with a smile on my face . Re: ( ) Re: MCcarthey 20/20- Long stay with us, I think some of us sometimes have our bras on too tight.pj . I hope you don't leave. I've enjoyed reading about what has worked for your daughter. I hope we all have. We all have kids with different levels of ASD's. We all try different "things" with them. We all swear by the things that have worked for us, personally.. ....and toss aside the things that didnt' work or that we would never try with our kids, for whatever reason. I hope the responses were made simply out of the need to "say" that they didn't agree with DAN docs. I don't know,,,,,,,, Anyway,,,,,, ,I just wanted to say that I agree with your posts. I personally, know of an 11 yr old non-verbal autistic child who did chelation over quite a bit of time...and now speaks. Seems, actually, like a kid with AS (in my opinion). So,,,,,,,,,did he just improve on his own, with therapies and such, and it was a coincidence? Maybe. I'm sure there are many examples of it working and many of it not. Just like diets, therapies, prayer, etc. I hope that you continue to share your views here. Robinjennifer_thorson <jennifer_thorson> wrote: Again the hostility? Most people do not believe autism can be cured. DAN Dr. have annual conferences and have been trying to get the message out for years. But because of the reasons you stated, they do not get a lot of credit. Children lose their diagnosis, but many medical professionals say they 'grew' out of it. I can understand HFA children learning the skills they need to adapt and appear NT, but children with full blown autism? But you either believe or you don't. But I don't appreciate being attacked. I explained what has helped my daughter just as all of you have explained what has helped your children. I am feeling like leaving this forum after 2 years. Many of you have given me advice over the years and I have given you advice. We have shared our concerns and I thought this was a place to talk. I guess I was mistaken. > > > > She was on. It was the 2nd piece that they did. Not too > > > long. She said basically the same information as on her other > > > appearances. She is going to be on Larry King, also.> > > > > > > > ------------ --------- --------- --------- --------- --------- -> > > --------> > > > Luggage? GPS? Comic books? > > > > Check out fitting gifts for grads at Search. > > > > > > > > > > > > > > > > > > > > ------------ --------- --------- --------- --------- --------- -> > > ----------> > > > Take the Internet to Go: Go puts the Internet in your > > > pocket: mail, news, photos more.> > > >> > >> > > > > > > > > > > > > > ------------ --------- --------- ---> > Be a better friend, newshound, and know-it-all with Mobile. > Try it now.> >> > > > > > > > > > ------------ --------- --------- ---> Looking for last minute shopping deals? Find them fast with Search.> Be a better friend, newshound, and know-it-all with Mobile. Try it now. Looking for last minute shopping deals? Find them fast with Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2008 Report Share Posted February 26, 2008 Glad I could make you smile. I though it was getting a little tense myself.pj And with that one Patti, I'm calling it a night. I always like to end my evening on the computer with a smile on my face . Re: ( ) Re: MCcarthey 20/20- Long stay with us, I think some of us sometimes have our bras on too tight.pj . I hope you don't leave. I've enjoyed reading about what has worked for your daughter. I hope we all have. We all have kids with different levels of ASD's. We all try different "things" with them. We all swear by the things that have worked for us, personally.. ....and toss aside the things that didnt' work or that we would never try with our kids, for whatever reason. I hope the responses were made simply out of the need to "say" that they didn't agree with DAN docs. I don't know,,,,,,,, Anyway,,,,,, ,I just wanted to say that I agree with your posts. I personally, know of an 11 yr old non-verbal autistic child who did chelation over quite a bit of time...and now speaks. Seems, actually, like a kid with AS (in my opinion). So,,,,,,,,,did he just improve on his own, with therapies and such, and it was a coincidence? Maybe. I'm sure there are many examples of it working and many of it not. Just like diets, therapies, prayer, etc. I hope that you continue to share your views here. Robinjennifer_thorson <jennifer_thorson> wrote: Again the hostility? Most people do not believe autism can be cured. DAN Dr. have annual conferences and have been trying to get the message out for years. But because of the reasons you stated, they do not get a lot of credit. Children lose their diagnosis, but many medical professionals say they 'grew' out of it. I can understand HFA children learning the skills they need to adapt and appear NT, but children with full blown autism? But you either believe or you don't. But I don't appreciate being attacked. I explained what has helped my daughter just as all of you have explained what has helped your children. I am feeling like leaving this forum after 2 years. Many of you have given me advice over the years and I have given you advice. We have shared our concerns and I thought this was a place to talk. I guess I was mistaken. > > > > She was on. It was the 2nd piece that they did. Not too > > > long. She said basically the same information as on her other > > > appearances. She is going to be on Larry King, also.> > > > > > > > ------------ --------- --------- --------- --------- --------- -> > > --------> > > > Luggage? GPS? Comic books? > > > > Check out fitting gifts for grads at Search. > > > > > > > > > > > > > > > > > > > > ------------ --------- --------- --------- --------- --------- -> > > ----------> > > > Take the Internet to Go: Go puts the Internet in your > > > pocket: mail, news, photos more.> > > >> > >> > > > > > > > > > > > > > ------------ --------- --------- ---> > Be a better friend, newshound, and know-it-all with Mobile. > Try it now.> >> > > > > > > > > > ------------ --------- --------- ---> Looking for last minute shopping deals? Find them fast with Search.> Be a better friend, newshound, and know-it-all with Mobile. Try it now. Looking for last minute shopping deals? Find them fast with Search. Looking for last minute shopping deals? Find them fast with Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2008 Report Share Posted February 27, 2008 I wasn't being hostile at all. I always have wondered if people think they have cured their kids, then why are they still hanging out in autistic forums. I honestly feel that is a legit question. You don't have to leave at all but lower your guns a little, please. RoxannaAutism Happens ( ) Re: MCcarthey 20/20- Long If you read what I wrote I said she was not cured. Why the hostility? I come to this forum for help with school issues. Just because I have a different perspective from you does not mean you should pretty much tell me to leave. > > > > She was on. It was the 2nd piece that they did. Not too > > > long. She said basically the same information as on her other > > > appearances. She is going to be on Larry King, also.> > > > > > > > ----------------------------------------------------------> > > --------> > > > Luggage? GPS? Comic books? > > > > Check out fitting gifts for grads at Search. > > > > > > > > > > > > > > > > > > > > ----------------------------------------------------------> > > ----------> > > > Take the Internet to Go: Go puts the Internet in your > > > pocket: mail, news, photos more.> > > >> > >> > > > > > > > > > > > > > ---------------------------------> > Be a better friend, newshound, and know-it-all with Mobile. > Try it now.> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2008 Report Share Posted February 27, 2008 You are the only one who is talking about being hostile. I think these are good questions to ask - if it's a real cure then why isn't it being used for every child w/autism? I think because the answers are not positive to your position, you think people are being mean or hostile. But these are legit concerns for a lot of people who "don't believe" the same way as you. Legit questions should never be the enemy because information is important. These kinds of questions are not new questions about this sort of treatment. It's not the first time someone asked these questions and won't be the last I am sure. As for growing out of autism, I don't understand that either. But I do realize that many kids with high functioning autism and AS do advance a lot as they grow. I don't think they ever outgrow having autism. But they do grow and learn to adapt. Some do very well. Others remain with problems to deal with in various degrees. I disagree that any one therapy or diet is the big fix either. Over time, people mature and grow and adapt. With therapies and help, they can do better than they would otherwise. But we can't predict what they would do on their own without help. There are so many factors contributing to development and growth, so many growing stages that little kids go through and most people are throwing everything they know at the kid to foster improvement. Anyway, I think most people do hear about diet and Dan Doc's and chelation along the way so it's not a lack of popularity that is the reason why more people don't do these things. It isn't used by everyone because it isn't a cure. If it were, people would be flocking in droves to it. If there are ever studies in the future proving it works or helps kids with autism, then people will be there wanting to do it. RoxannaAutism Happens ( ) Re: MCcarthey 20/20- Long Again the hostility? Most people do not believe autism can be cured. DAN Dr. have annual conferences and have been trying to get the message out for years. But because of the reasons you stated, they do not get a lot of credit. Children lose their diagnosis, but many medical professionals say they 'grew' out of it. I can understand HFA children learning the skills they need to adapt and appear NT, but children with full blown autism? But you either believe or you don't. But I don't appreciate being attacked. I explained what has helped my daughter just as all of you have explained what has helped your children. I am feeling like leaving this forum after 2 years. Many of you have given me advice over the years and I have given you advice. We have shared our concerns and I thought this was a place to talk. I guess I was mistaken. > > > > She was on. It was the 2nd piece that they did. Not too > > > long. She said basically the same information as on her other > > > appearances. She is going to be on Larry King, also.> > > > > > > > ----------------------------------------------------------> > > --------> > > > Luggage? GPS? Comic books? > > > > Check out fitting gifts for grads at Search. > > > > > > > > > > > > > > > > > > > > ----------------------------------------------------------> > > ----------> > > > Take the Internet to Go: Go puts the Internet in your > > > pocket: mail, news, photos more.> > > >> > >> > > > > > > > > > > > > > ---------------------------------> > Be a better friend, newshound, and know-it-all with Mobile. > Try it now.> >> > > > > > > > > > ---------------------------------> Looking for last minute shopping deals? Find them fast with Search.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2008 Report Share Posted February 27, 2008 Well, that would make me want to know why he/she isn't cured if she doing the diet and chelation? RoxannaAutism Happens ( ) Re: MCcarthey 20/20- Long A DAN Dr. is a medical doctor with specialized training in nutrition and biomedical treatments. So it depends on which professional you want to believe. I went with the doctor that has cured children with autism. I know many think this is a waste of money, and it does not work with all children. That is why I did research first. I have met people that said it is a placebo affect. For me I have tracked the effects of each treatment and have seen regression when my daughter eats something she cannot tolerate. DAN Dr. can give a much better explanation than me, but if parents are looking for answers they can help.gersSupport , Rose <beachbodytan2002@...> wrote:>> Roxanna & ,> if our doctor, specialist in autism, and a Dr of neurology, specializing in autism & research. (they work in a team) with other specialist involved stated in their reports that autism is a neurological disorder which effects the brain. and she went on to explain that (which she elaborated) you can't cure autism because you can't give a child a new brain. > I also heard this from the research department in Pittsfield study of autism, and Yale university in Connecticut - stating you can't cure autism. but a child with intervention, strategies, and consistent therapies, will progress and learn to do well in the real world with continued services. but would always be different. > How can you explain that?> > jennifer_thorson <jennifer_thorson@...> wrote:> I believe she did mean 'cure'. If a child with autism has treatment > and no longer has autism than it is a cure. But that does not mean > that no residual issue are present. Many NT kids have behavior > issues, sensory sensativity, etc. My daughter is not cured yet, as > she was just diagnosed now with PDD NOS, but she has gone from > moderate autism to this point in 2 years. She started the biomedical > route at 4 (late) so she may never be cured. But most of her traits > are NT now. She is delayed in social development (but advancing > quickly) and has immature make believe play (but also advancing > quickly). When she is not gfcf she regresses far to the point she > would receive an autism diagnosis. But on the diet she is > functional. I believe she will be cured to the point of no one > seeing any autism spectrum issues, but only through her own > management of her behavior. I expect that since she has an interest > in her peers that she will learn how to keep friends. It may be > trial and error but she will get there. She imitates others which > makes her make believe play look scripted, but she shows genuine > enjoyment when playing with her brother. She observes the kids in > her class and incorporates that into her play. Her speech was very > scripted in the past and is not so much now. It has been less than 2 > years since she started speaking in sentenses so the progress has > been off the charts. > > Many parents who follow the biomedical route cure their children. > Most have started when they were very young and were quite aggressive > with treatments. These are parents like you and I and not > celebrities. It can be a big strain on the budget but necessary. I > went to one DAN Dr. visit after she was on the diet 2 months. I did > a lot of research before the appt. and used the evaluation to guide > me towards the next step. I got lab work from the DAN Dr. and had my > pediatrician write it up so it would be covered by my insurance. I > tried supplements others recommended from the forums and adjusted > them as needed. Chelation was not appropriate for my daughter as it > caused more problems since the toxins went through the stomach and > caused yeast overgrowth that I could not control. We decided to just > continue with the glutathione that the DAN Dr. ordered. My daughter > has a high probability of mercury poisoning so mercury may be causing > havoc in her brain. This may always affect her. But the risks of > chelation outweighted the benefits. > > I am glad people like McCarthty have brought a spotlight on > biomedical treatments. She is willing to take the critisism. But > many families will benefit from the info. > > > > > She was on. It was the 2nd piece that they did. Not too > > long. She said basically the same information as on her other > > appearances. She is going to be on Larry King, also.> > > > > > ----------------------------------------------------------> > --------> > > Luggage? GPS? Comic books? > > > Check out fitting gifts for grads at Search. > > > > > > > > > > > > > > > ----------------------------------------------------------> > ----------> > > Take the Internet to Go: Go puts the Internet in your > > pocket: mail, news, photos more.> > >> >> > > > > > > ---------------------------------> Be a better friend, newshound, and know-it-all with Mobile. Try it now.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2008 Report Share Posted February 27, 2008 Well said cindy, Rose isn't hostile by no means, she is very kind and considerate and i value her opinions as well as others on here a great deal.Sherry Elgamal <cindyelgamal@...> wrote: I don’t think Rose is being hostile at all. In fact, I was getting ready to respond to Rose’s post when yours came through. Rose asks some very good questions as to why if “DAN doctors are that good and curing autism” why hasn’t everyone else jumped to have their child “cured”. I am a nurse and my husband is a physician and so we believe all medical care and treatments should be based on scientific research and individuals that provide this care should be thoroughly and appropriately trained. I pulled the following statement right off the website of the Autism Research Institute which is the website for DAN (Defeat Autism Now): Currently, a practitioner must attend at least one Defeat Autism Now! Conference and/or Physician's seminar in order to be added to the list of clinicians using the Defeat Autism Now! approach. I don’t know about anyone else, and I don’t intend to sound hostile as you keep saying people that respond to you are, but I would not allow a surgeon to do a CABG (coronary artery bypass graft – open heart surgery) on me or my love ones after only attending one conference on heart surgery! No, I don’t believe autism can be cured today. But, I can say and will say our kids can improve, move to higher functioning, stand out less, etc. with the appropriate supports and therapies. From: [mailto: ] On Behalf Of jennifer_thorsonSent: Tuesday, February 26, 2008 9:08 PM Subject: ( ) Re: MCcarthey 20/20- Long Again the hostility? Most people do not believe autism can be cured. DAN Dr. have annual conferences and have been trying to get the message out for years. But because of the reasons you stated, they do not get a lot of credit. Children lose their diagnosis, but many medical professionals say they 'grew' out of it. I can understand HFA children learning the skills they need to adapt and appear NT, but children with full blown autism? But you either believe or you don't. But I don't appreciate being attacked. I explained what has helped my daughter just as all of you have explained what has helped your children. I am feeling like leaving this forum after 2 years. Many of you have given me advice over the years and I have given you advice. We have shared our concerns and I thought this was a place to talk. I guess I was mistaken. > > > > She was on. It was the 2nd piece that they did. Not too > > > long. She said basically the same information as on her other > > > appearances. She is going to be on Larry King, also.> > > > > > > > ----------------------------------------------------------> > > --------> > > > Luggage? GPS? Comic books? > > > > Check out fitting gifts for grads at Search. > > > > > > > > > > > > > > > > > > > > ----------------------------------------------------------> > > ----------> > > > Take the Internet to Go: Go puts the Internet in your > > > pocket: mail, news, photos more.> > > >> > >> > > > > > > > > > > > > > ---------------------------------> > Be a better friend, newshound, and know-it-all with Mobile. > Try it now.> >> > > > > > > > > > ---------------------------------> Looking for last minute shopping deals? Find them fast with Search.> Looking for last minute shopping deals? Find them fast with Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2008 Report Share Posted February 27, 2008 Well said cindy, Rose isn't hostile by no means, she is very kind and considerate and i value her opinions as well as others on here a great deal.Sherry Elgamal <cindyelgamal@...> wrote: I don’t think Rose is being hostile at all. In fact, I was getting ready to respond to Rose’s post when yours came through. Rose asks some very good questions as to why if “DAN doctors are that good and curing autism” why hasn’t everyone else jumped to have their child “cured”. I am a nurse and my husband is a physician and so we believe all medical care and treatments should be based on scientific research and individuals that provide this care should be thoroughly and appropriately trained. I pulled the following statement right off the website of the Autism Research Institute which is the website for DAN (Defeat Autism Now): Currently, a practitioner must attend at least one Defeat Autism Now! Conference and/or Physician's seminar in order to be added to the list of clinicians using the Defeat Autism Now! approach. I don’t know about anyone else, and I don’t intend to sound hostile as you keep saying people that respond to you are, but I would not allow a surgeon to do a CABG (coronary artery bypass graft – open heart surgery) on me or my love ones after only attending one conference on heart surgery! No, I don’t believe autism can be cured today. But, I can say and will say our kids can improve, move to higher functioning, stand out less, etc. with the appropriate supports and therapies. From: [mailto: ] On Behalf Of jennifer_thorsonSent: Tuesday, February 26, 2008 9:08 PM Subject: ( ) Re: MCcarthey 20/20- Long Again the hostility? Most people do not believe autism can be cured. DAN Dr. have annual conferences and have been trying to get the message out for years. But because of the reasons you stated, they do not get a lot of credit. Children lose their diagnosis, but many medical professionals say they 'grew' out of it. I can understand HFA children learning the skills they need to adapt and appear NT, but children with full blown autism? But you either believe or you don't. But I don't appreciate being attacked. I explained what has helped my daughter just as all of you have explained what has helped your children. I am feeling like leaving this forum after 2 years. Many of you have given me advice over the years and I have given you advice. We have shared our concerns and I thought this was a place to talk. I guess I was mistaken. > > > > She was on. It was the 2nd piece that they did. Not too > > > long. She said basically the same information as on her other > > > appearances. She is going to be on Larry King, also.> > > > > > > > ----------------------------------------------------------> > > --------> > > > Luggage? GPS? Comic books? > > > > Check out fitting gifts for grads at Search. > > > > > > > > > > > > > > > > > > > > ----------------------------------------------------------> > > ----------> > > > Take the Internet to Go: Go puts the Internet in your > > > pocket: mail, news, photos more.> > > >> > >> > > > > > > > > > > > > > ---------------------------------> > Be a better friend, newshound, and know-it-all with Mobile. > Try it now.> >> > > > > > > > > > ---------------------------------> Looking for last minute shopping deals? Find them fast with Search.> Never miss a thing. Make your homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2008 Report Share Posted February 27, 2008 Well said cindy, Rose isn't hostile by no means, she is very kind and considerate and i value her opinions as well as others on here a great deal.Sherry Elgamal <cindyelgamal@...> wrote: I don’t think Rose is being hostile at all. In fact, I was getting ready to respond to Rose’s post when yours came through. Rose asks some very good questions as to why if “DAN doctors are that good and curing autism” why hasn’t everyone else jumped to have their child “cured”. I am a nurse and my husband is a physician and so we believe all medical care and treatments should be based on scientific research and individuals that provide this care should be thoroughly and appropriately trained. I pulled the following statement right off the website of the Autism Research Institute which is the website for DAN (Defeat Autism Now): Currently, a practitioner must attend at least one Defeat Autism Now! Conference and/or Physician's seminar in order to be added to the list of clinicians using the Defeat Autism Now! approach. I don’t know about anyone else, and I don’t intend to sound hostile as you keep saying people that respond to you are, but I would not allow a surgeon to do a CABG (coronary artery bypass graft – open heart surgery) on me or my love ones after only attending one conference on heart surgery! No, I don’t believe autism can be cured today. But, I can say and will say our kids can improve, move to higher functioning, stand out less, etc. with the appropriate supports and therapies. From: [mailto: ] On Behalf Of jennifer_thorsonSent: Tuesday, February 26, 2008 9:08 PM Subject: ( ) Re: MCcarthey 20/20- Long Again the hostility? Most people do not believe autism can be cured. DAN Dr. have annual conferences and have been trying to get the message out for years. But because of the reasons you stated, they do not get a lot of credit. Children lose their diagnosis, but many medical professionals say they 'grew' out of it. I can understand HFA children learning the skills they need to adapt and appear NT, but children with full blown autism? But you either believe or you don't. But I don't appreciate being attacked. I explained what has helped my daughter just as all of you have explained what has helped your children. I am feeling like leaving this forum after 2 years. Many of you have given me advice over the years and I have given you advice. We have shared our concerns and I thought this was a place to talk. I guess I was mistaken. > > > > She was on. It was the 2nd piece that they did. Not too > > > long. She said basically the same information as on her other > > > appearances. She is going to be on Larry King, also.> > > > > > > > ----------------------------------------------------------> > > --------> > > > Luggage? GPS? Comic books? > > > > Check out fitting gifts for grads at Search. > > > > > > > > > > > > > > > > > > > > ----------------------------------------------------------> > > ----------> > > > Take the Internet to Go: Go puts the Internet in your > > > pocket: mail, news, photos more.> > > >> > >> > > > > > > > > > > > > > ---------------------------------> > Be a better friend, newshound, and know-it-all with Mobile. > Try it now.> >> > > > > > > > > > ---------------------------------> Looking for last minute shopping deals? Find them fast with Search.> Be a better friend, newshound, and know-it-all with Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2008 Report Share Posted February 27, 2008 Well said cindy, Rose isn't hostile by no means, she is very kind and considerate and i value her opinions as well as others on here a great deal.Sherry Elgamal <cindyelgamal@...> wrote: I don’t think Rose is being hostile at all. In fact, I was getting ready to respond to Rose’s post when yours came through. Rose asks some very good questions as to why if “DAN doctors are that good and curing autism” why hasn’t everyone else jumped to have their child “cured”. I am a nurse and my husband is a physician and so we believe all medical care and treatments should be based on scientific research and individuals that provide this care should be thoroughly and appropriately trained. I pulled the following statement right off the website of the Autism Research Institute which is the website for DAN (Defeat Autism Now): Currently, a practitioner must attend at least one Defeat Autism Now! Conference and/or Physician's seminar in order to be added to the list of clinicians using the Defeat Autism Now! approach. I don’t know about anyone else, and I don’t intend to sound hostile as you keep saying people that respond to you are, but I would not allow a surgeon to do a CABG (coronary artery bypass graft – open heart surgery) on me or my love ones after only attending one conference on heart surgery! No, I don’t believe autism can be cured today. But, I can say and will say our kids can improve, move to higher functioning, stand out less, etc. with the appropriate supports and therapies. From: [mailto: ] On Behalf Of jennifer_thorsonSent: Tuesday, February 26, 2008 9:08 PM Subject: ( ) Re: MCcarthey 20/20- Long Again the hostility? Most people do not believe autism can be cured. DAN Dr. have annual conferences and have been trying to get the message out for years. But because of the reasons you stated, they do not get a lot of credit. Children lose their diagnosis, but many medical professionals say they 'grew' out of it. I can understand HFA children learning the skills they need to adapt and appear NT, but children with full blown autism? But you either believe or you don't. But I don't appreciate being attacked. I explained what has helped my daughter just as all of you have explained what has helped your children. I am feeling like leaving this forum after 2 years. Many of you have given me advice over the years and I have given you advice. We have shared our concerns and I thought this was a place to talk. I guess I was mistaken. > > > > She was on. It was the 2nd piece that they did. Not too > > > long. She said basically the same information as on her other > > > appearances. She is going to be on Larry King, also.> > > > > > > > ----------------------------------------------------------> > > --------> > > > Luggage? GPS? Comic books? > > > > Check out fitting gifts for grads at Search. > > > > > > > > > > > > > > > > > > > > ----------------------------------------------------------> > > ----------> > > > Take the Internet to Go: Go puts the Internet in your > > > pocket: mail, news, photos more.> > > >> > >> > > > > > > > > > > > > > ---------------------------------> > Be a better friend, newshound, and know-it-all with Mobile. > Try it now.> >> > > > > > > > > > ---------------------------------> Looking for last minute shopping deals? Find them fast with Search.> Looking for last minute shopping deals? Find them fast with Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2008 Report Share Posted February 27, 2008 Rose, i agree with u there have been a few times i thought to myself maybe they were wrong to dx my son with asperger's but then reality slaps me upside the head and sometimes it is a real hard slap,Lol like the last few days, he is spinning and spinning and he has been repeating for like a week now who's turn is it? even when not playing a game, TSS spoke w/ me on it yesterday, she said she doesn't know what has caused the onset but noticing more and more symptoms as well, and he has in home therapy he sees,psychtrist, psychologist behavior specialist and is taking meds, so i just hope for the best for him in the end, but feel there isn't a cure for this, but doesn't change my feelings for him or others u know? SherryRose <beachbodytan2002@...> wrote: , in our school, the teacher started a big mess by stating my son doesn't look autistic and is progressing. even though he has documentation starting at a very young age to present stating he's autistic. they challenged that doctor. so the school did some testing and said he's not autistic. (all because they wanted to change his classification before going into middle school next September) I took him back to the neurologist and she did her testing and stated he is progressing but still autistic. higher functioning, but still on the autistic spectrum. the school then sent their findings to her, ( this went back and forth for months) and that's when she explained to the school that autism is neurological which effects the brain. since you can't give a child a new brain, you can't cure the child. she also said the same things Roxanna had posted when she was explaining how our kids can progress. but how can you fix the brain?. I hope I'm wording this right, you can redirect, you can teach, you can roll model to the point where the child won't stand out. and progress to the point where he/she can function in the real world, but that child would always be different. My son would always flap his hands like a bird whenever he's excited. I taught him not to do that and he found another appropriate thing to do with his hands that doesn't stand out, or an eye catcher that would make him a target in school. because he was taught not to flap his hands and drilled to look at the person he's speaking to, and other things that he was drilled to learn over the years, doesn't mean he's cured from autism because he was taught to act "normal"...He is very high functioning, but there is always something new that we have to work on. or something with social skills he's not getting, or prompting needed in school. I wish there was a cure, and if I believed that a Dan doctor can cure him instead of doing all that we are doing now. I would do what ever I can to get my son there. The reason why this really hit a spot with me, is because I believe there are so many people being mis lead about the cure, and spending so much time with this instead of getting the interventions need for their child to progress. and like any parent, we all want to hear our child is cured when making progress. I do wish you the best for you and your child. And I pray your child continues to do well because our children do work hard with all the strategies we give them. and being though this is such a sensitive topic, I'm not responding to this topic anymore. I think our last hot topic was the vaccines? jennifer_thorson <jennifer_thorson > wrote: Yes. The children were diagnosed, then treated, and then re-evaluated. The chance of being re-evaluated by the same person seems not very likely to me. I don't know the answer to this part. > > > > She was on. It was the 2nd piece that they did. Not too > > > long. She said basically the same information as on her other > > > appearances. She is going to be on Larry King, also.> > > > > > > > ----------------------------------------------------------> > > --------> > > > Luggage? GPS? Comic books? > > > > Check out fitting gifts for grads at Search. > > > > > > > > > > > > > > > > > > > > ----------------------------------------------------------> > > ----------> > > > Take the Internet to Go: Go puts the Internet in your > > > pocket: mail, news, photos more.> > > >> > >> > > > > > > > > > > > > > ---------------------------------> > Be a better friend, newshound, and know-it-all with Mobile. > Try it now.> >> > > > > > > ---------------------------------> Never miss a thing. Make your homepage.> Looking for last minute shopping deals? Find them fast with Search. Be a better friend, newshound, and know-it-all with Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2008 Report Share Posted February 27, 2008 I don't believe she said her child was cured. -- Re: ( ) Re: MCcarthey 20/20- Long If your kid is cured, then why hang out places like this? RoxannaAutism Happens ( ) Re: MCcarthey 20/20- Long A DAN Dr. is a medical doctor with specialized training in nutrition and biomedical treatments. So it depends on which professional you want to believe. I went with the doctor that has cured children with autism. I know many think this is a waste of money, and it does not work with all children. That is why I did research first. I have met people that said it is a placebo affect. For me I have tracked the effects of each treatment and have seen regression when my daughter eats something she cannot tolerate. DAN Dr. can give a much better explanation than me, but if parents are looking for answers they can help.gersSupport , Rose <beachbodytan2002@...> wrote:>> Roxanna & ,> if our doctor, specialist in autism, and a Dr of neurology, specializing in autism & research. (they work in a team) with other specialist involved stated in their reports that autism is a neurological disorder which effects the brain. and she went on to explain that (which she elaborated) you can't cure autism because you can't give a child a new brain. > I also heard this from the research department in Pittsfield study of autism, and Yale university in Connecticut - stating you can't cure autism. but a child with intervention, strategies, and consistent therapies, will progress and learn to do well in the real world with continued services. but would always be different. > How can you explain that?> > jennifer_thorson <jennifer_thorson@...> wrote:> I believe she did mean 'cure'. If a child with autism has treatment > and no longer has autism than it is a cure. But that does not mean > that no residual issue are present. Many NT kids have behavior > issues, sensory sensativity, etc. My daughter is not cured yet, as > she was just diagnosed now with PDD NOS, but she has gone from > moderate autism to this point in 2 years. She started the biomedical > route at 4 (late) so she may never be cured. But most of her traits > are NT now. She is delayed in social development (but advancing > quickly) and has immature make believe play (but also advancing > quickly). When she is not gfcf she regresses far to the point she > would receive an autism diagnosis. But on the diet she is > functional. I believe she will be cured to the point of no one > seeing any autism spectrum issues, but only through her own > management of her behavior. I expect that since she has an interest > in her peers that she will learn how to keep friends. It may be > trial and error but she will get there. She imitates others which > makes her make believe play look scripted, but she shows genuine > enjoyment when playing with her brother. She observes the kids in > her class and incorporates that into her play. Her speech was very > scripted in the past and is not so much now. It has been less than 2 > years since she started speaking in sentenses so the progress has > been off the charts. > > Many parents who follow the biomedical route cure their children. > Most have started when they were very young and were quite aggressive > with treatments. These are parents like you and I and not > celebrities. It can be a big strain on the budget but necessary. I > went to one DAN Dr. visit after she was on the diet 2 months. I did > a lot of research before the appt. and used the evaluation to guide > me towards the next step. I got lab work from the DAN Dr. and had my > pediatrician write it up so it would be covered by my insurance. I > tried supplements others recommended from the forums and adjusted > them as needed. Chelation was not appropriate for my daughter as it > caused more problems since the toxins went through the stomach and > caused yeast overgrowth that I could not control. We decided to just > continue with the glutathione that the DAN Dr. ordered. My daughter > has a high probability of mercury poisoning so mercury may be causing > havoc in her brain. This may always affect her. But the risks of > chelation outweighted the benefits. > > I am glad people like McCarthty have brought a spotlight on > biomedical treatments. She is willing to take the critisism. But > many families will benefit from the info. > > > > > She was on. It was the 2nd piece that they did. Not too > > long. She said basically the same information as on her other > > appearances. She is going to be on Larry King, also.> > > > > > ----------------------------------------------------------> > --------> > > Luggage? GPS? Comic books? > > > Check out fitting gifts for grads at Search. > > > > > > > > > > > > > > > ----------------------------------------------------------> > ----------> > > Take the Internet to Go: Go puts the Internet in your > > pocket: mail, news, photos more.> > >> >> > > > > > > ---------------------------------> Be a better friend, newshound, and know-it-all with Mobile. Try it now.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2008 Report Share Posted February 27, 2008 Sherry, I must of missed that post. it slipped by somehow. when you said your son is now repeating that same thing over and over. like 'who's turn is it' even when not playing a game. When does he do that ?? and why ?? my son does that EXACT thing over and over. he's into saying, do you like mashed bananas? he loves the way it sounds, and loves annoying everybody with that question. and the more the little stinker gets THAT response, the more he does it. Like, I'm on the phone, really into the conversation with that person, My son would be saying Mom !!!, Mom !!! MOMMMMM.. I'll say hold on and say WHAT !. they he'll say: do you like mashed bananas? and walk away. BUT as annoying as that is, I think he really had something he felt was important to say or ask me but forgot by the time I asked the person to hold on and say what. so he filled in the blank with: do you like mashed bananas ( which no one eats). Then when his sweet loving sister is annoying to him. he annoys her back by calling her. and when she finally goes to him, he says in his sweet voice. do you like mashed bananas? she gets so mad at him. so each time she pushes his buttons, he remembers how much she hates when he says that, and he will say it again and again. do you like mashed bananas?... as for the spinning, is why I don't let my son push a wagon in the supermarket, he will spin with it. but in your case, it can be your son's sensory overload from everything that's been happening in school. since your seeing it more as more things are happening to him. Rose<cmcintosh5@...> wrote: Ah... The autism reality slap YUP! Had a few of those. I think it happens a lot with those of us who have high functioning children. -- Re: ( ) Re: MCcarthey 20/20- Long Rose, i agree with u there have been a few times i thought to myself maybe they were wrong to dx my son with asperger's but then reality slaps me upside the head and sometimes it is a real hard slap,Lol like the last few days, he is spinning and spinning and he has been repeating for like a week now who's turn is it? even when not playing a game, TSS spoke w/ me on it yesterday, she said she doesn't know what has caused the onset but noticing more and more symptoms as well, and he has in home therapy he sees,psychtrist, psychologist behavior specialist and is taking meds, so i just hope for the best for him in the end, but feel there isn't a cure for this, but doesn't change my feelings for him or others u know? SherryRose <beachbodytan2002 > wrote: , in our school, the teacher started a big mess by stating my son doesn't look auti stic and is progressing. even though he has documentation starting at a very young age to present stating he's autistic. they challenged that doctor. so the school did some testing and said he's not autistic. (all because they wanted to change his classification before going into middle school next September) I took him back to the neurologist and she did her testing and stated he is progressing but still autistic. higher functioning, but still on the autistic spectrum. the school then sent their findings to her, ( this went back and forth for months) and that's when she explained to the school that autism is neurological which effects the brain. since you can't give a child a new brain, you can't cure the child. she also said the same things Roxanna had posted when she was explaining how our kids can progress. but how can you fix the brain?. I hope I'm wording this right, you can redirect, you can teach, you can roll model to the point where the child won't stand out. and progress to the point where he/she can function in the real world, but that child would always be different. My son would always flap his hands like a bird whenever he's excited. I taught him not to do that and he found another appropriate thing to do with his hands that doesn't stand out, or an eye catcher that would make him a target in school. because he was taught not to flap his hands and drilled to look at the person he's speaking to, and other things that he was drilled to learn over the years, doesn't mean he's cured from autism because he was taught to act "normal"...He is very high functioning, but there is always something new that we have to work on. or something with social skills he's not getting, or prompting needed in school. I wish there was a cure, and if I believed that a Dan doctor can cure him instead of doing all that we are doing now. I would do what ever I can to get my son there. The reason why this really hit a spot with me, is because I believe there are so many people being mis lead about the cu re, and spending so much time with this instead of getting the interventions need for their child to progress. and like any parent, we all want to hear our child is cured when making progress. I do wish you the best for you and your child. And I pray your child continues to do well because our children do work hard with all the strategies we give them. and being though this is such a sensitive topic, I'm not responding to this topic anymore. I think our last hot topic was the vaccines? jennifer_thorson <jennifer_thorson > wrote: Yes. The children were diagnosed, then treated, and then re-evaluated. The chance of being re-evaluated by the same person seems not very likely to me. I don't know the answer to this part. > > > > She was on. It was the 2nd piece that they did. Not too > > > long. She said basically the same information as on her other > > > appearances. She is going to be on Larry King, also.> > > > > > > > ----------------------------------------------------------> > > --------> > > > Luggage? GPS? Comic books? > > > > Check out fitting gifts for grads at Search. > > > > > > > > > > > > > > > > > > > > ----------------------------------------------------------> > > ----------> > > > Take the Internet to Go: Go puts the Internet in your > > > pocket: mail, news, photos more.> > > >> > >> > > > > > > > > > > > > > ---------------------------------> > Be a better friend, newshound, and know-it-all with Mobile. > Try it now.> >> > > > > > > ---------------------------------> Never miss a thing. Make your homepage.> Looking for last minute shopping deals? Find them fast with Search. Be a better friend, newshound, and know-it-all with Mobile. Try it now. Be a better friend, newshound, and know-it-all with Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
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