Guest guest Posted February 27, 2008 Report Share Posted February 27, 2008 Ah... The autism reality slap YUP! Had a few of those. I think it happens a lot with those of us who have high functioning children. -- Re: ( ) Re: MCcarthey 20/20- Long Rose, i agree with u there have been a few times i thought to myself maybe they were wrong to dx my son with asperger's but then reality slaps me upside the head and sometimes it is a real hard slap,Lol like the last few days, he is spinning and spinning and he has been repeating for like a week now who's turn is it? even when not playing a game, TSS spoke w/ me on it yesterday, she said she doesn't know what has caused the onset but noticing more and more symptoms as well, and he has in home therapy he sees,psychtrist, psychologist behavior specialist and is taking meds, so i just hope for the best for him in the end, but feel there isn't a cure for this, but doesn't change my feelings for him or others u know? SherryRose <beachbodytan2002 > wrote: , in our school, the teacher started a big mess by stating my son doesn't look auti stic and is progressing. even though he has documentation starting at a very young age to present stating he's autistic. they challenged that doctor. so the school did some testing and said he's not autistic. (all because they wanted to change his classification before going into middle school next September) I took him back to the neurologist and she did her testing and stated he is progressing but still autistic. higher functioning, but still on the autistic spectrum. the school then sent their findings to her, ( this went back and forth for months) and that's when she explained to the school that autism is neurological which effects the brain. since you can't give a child a new brain, you can't cure the child. she also said the same things Roxanna had posted when she was explaining how our kids can progress. but how can you fix the brain?. I hope I'm wording this right, you can redirect, you can teach, you can roll model to the point where the child won't stand out. and progress to the point where he/she can function in the real world, but that child would always be different. My son would always flap his hands like a bird whenever he's excited. I taught him not to do that and he found another appropriate thing to do with his hands that doesn't stand out, or an eye catcher that would make him a target in school. because he was taught not to flap his hands and drilled to look at the person he's speaking to, and other things that he was drilled to learn over the years, doesn't mean he's cured from autism because he was taught to act "normal"...He is very high functioning, but there is always something new that we have to work on. or something with social skills he's not getting, or prompting needed in school. I wish there was a cure, and if I believed that a Dan doctor can cure him instead of doing all that we are doing now. I would do what ever I can to get my son there. The reason why this really hit a spot with me, is because I believe there are so many people being mis lead about the cu re, and spending so much time with this instead of getting the interventions need for their child to progress. and like any parent, we all want to hear our child is cured when making progress. I do wish you the best for you and your child. And I pray your child continues to do well because our children do work hard with all the strategies we give them. and being though this is such a sensitive topic, I'm not responding to this topic anymore. I think our last hot topic was the vaccines? jennifer_thorson <jennifer_thorson > wrote: Yes. The children were diagnosed, then treated, and then re-evaluated. The chance of being re-evaluated by the same person seems not very likely to me. I don't know the answer to this part. > > > > She was on. It was the 2nd piece that they did. Not too > > > long. She said basically the same information as on her other > > > appearances. She is going to be on Larry King, also.> > > > > > > > ----------------------------------------------------------> > > --------> > > > Luggage? GPS? Comic books? > > > > Check out fitting gifts for grads at Search. > > > > > > > > > > > > > > > > > > > > ----------------------------------------------------------> > > ----------> > > > Take the Internet to Go: Go puts the Internet in your > > > pocket: mail, news, photos more.> > > >> > >> > > > > > > > > > > > > > ---------------------------------> > Be a better friend, newshound, and know-it-all with Mobile. > Try it now.> >> > > > > > > ---------------------------------> Never miss a thing. Make your homepage.> Looking for last minute shopping deals? Find them fast with Search. Be a better friend, newshound, and know-it-all with Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2008 Report Share Posted February 27, 2008 I do think one common theme here is that what works for one child might not work for another child. I appreciate you sharing the diet is important for your daughter. It just helps me consider it more in the future (it's something I've been looking into to help my son with his stomach issues.) The way I see it, if sounds/sights/overstimulation to external environment can cause my son's behavior to become difficult, why can't internal "overstimulation" from foods he's sensitive to do the same thing? I've never tried the diet "hard core" but I suspect it's my next step. I really want to help Dylan with his stomach issues. So, in summary, thanks for sharing your story with me. I know how you feel b/c timeouts saved my family and I swear by them. But when I shared it on here, the majority of posters didn't use them or agree with them or they don't work. I fought that battle for awhile, but then realized if someone reads my story, maybe they'll try it and it will work and it will help their family. Maybe people will write me off. I don't recall many in agreement with the technique and it irritated me, but I let it go. I KNOW it works for us. To this day. Just like you know what works for your daughter. I also know you're looking for validation on here. There seems to be a few "hot button" topics that really bring out the passion in all of us! Please don't stop sharing though or we lose another side of the argument for and against a multitude of topics. ( ) Re: MCcarthey 20/20- Long The reason I feel attacked is because I come here for support and feel like this group is not supporting me currently. I explain what is working with my child and no one believes me? Am I hallucinating? Or does my daughter regress when she has gluten and casein even with enzymes? For my daughter diet is important. Not one person said anything to support me. Over the years people have said don't leave the forum over arguments, we are here for our children. I feel like I did in high school, the outcast. If things I say are not appropriate for this forum than I will leave. I understand the questions, but why can no one give me the benefit of the doubt about my own daughter? I am not telling anyone to do anything with their children. I think we all know how it feels when friends and family don't understand our child. I am on the forums to feel included, not like the outsider. I felt awful reading the statements yesterday. I am almost in tears now. > > > > > She was on. It was the 2nd piece that they did. Not too > > > > long. She said basically the same information as on her other > > > > appearances. She is going to be on Larry King, also.> > > > > > > > > > ------------ --------- --------- --------- --------- --------- -> > > > --------> > > > > Luggage? GPS? Comic books? > > > > > Check out fitting gifts for grads at Search. > > > > > > > > > > > > > > > > > > > > > > > > > ------------ --------- --------- --------- --------- --------- -> > > > ----------> > > > > Take the Internet to Go: Go puts the Internet in your > > > > pocket: mail, news, photos more.> > > > >> > > >> > > > > > > > > > > > > > > > > > > > > ------------ --------- --------- ---> > > Be a better friend, newshound, and know-it-all with > Mobile. > > Try it now.> > >> > > > > > > > > > > > > > > > > > > > ------------ --------- --------- ---> > Looking for last minute shopping deals? Find them fast with > Search.> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2008 Report Share Posted February 27, 2008 , I wasn't going to respond to this topic anymore because it's getting so sensitive. but because your feeling so hurt I want to. No one is attacking you, but I can see why you feel that way. It's because of your strong belief in something that is so different from what the rest of us is experiencing on this site. and since we all have important questions, we all want to ask you those questions, AND its just ''you'' with this exciting experience that you have with your Dan Doctor that's posting here. I can see why you ''feel attacked''. (but no one is attacking you, we are asking questions and learning like any other topic). Like someone else posted, everybodys questions are good questions. and our doctors which are specialsit in autism & autism research ( which helped me out more than I have time to explain) also think differently about 'cure'. IMO instead of using the word 'cure' should use the word progressing. Also I do believe, that you believe in the Dan doctor. but lots of us need more information on that before we would consider taking our children to a Dan Doctor. if that makes sense to you. but we all can see that you are a caring loving parent that wants to do the best for you child like all of us. So that's my point. in the end, we all want whats best for our children, and to find that out we need to ask qood questions to learn. (no matter who we seek that information from). I hope you can stay with us, I do love everybody here on this group, I've learned lots from all of you, and when I'm feeling upset, I feel better talking to you and everybody else here. I hope you stay, your a great mom and a great person. and I am so glad to hear good news about your daughter doing well.. *smile* Hugs Rosejennifer_thorson <jennifer_thorson@...> wrote: The reason I feel attacked is because I come here for support and feel like this group is not supporting me currently. I explain what is working with my child and no one believes me? Am I hallucinating? Or does my daughter regress when she has gluten and casein even with enzymes? For my daughter diet is important. Not one person said anything to support me. Over the years people have said don't leave the forum over arguments, we are here for our children. I feel like I did in high school, the outcast. If things I say are not appropriate for this forum than I will leave. I understand the questions, but why can no one give me the benefit of the doubt about my own daughter? I am not telling anyone to do anything with their children. I think we all know how it feels when friends and family don't understand our child. I am on the forums to feel included, not like the outsider. I felt awful reading the statements yesterday. I am almost in tears now. > > > > > She was on. It was the 2nd piece that they did. Not too > > > > long. She said basically the same information as on her other > > > > appearances. She is going to be on Larry King, also.> > > > > > > > > > ----------------------------------------------------------> > > > --------> > > > > Luggage? GPS? Comic books? > > > > > Check out fitting gifts for grads at Search. > > > > > > > > > > > > > > > > > > > > > > > > > ----------------------------------------------------------> > > > ----------> > > > > Take the Internet to Go: Go puts the Internet in your > > > > pocket: mail, news, photos more.> > > > >> > > >> > > > > > > > > > > > > > > > > > > > > ---------------------------------> > > Be a better friend, newshound, and know-it-all with > Mobile. > > Try it now.> > >> > > > > > > > > > > > > > > > > > > > ---------------------------------> > Looking for last minute shopping deals? Find them fast with > Search.> >> Be a better friend, newshound, and know-it-all with Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2008 Report Share Posted February 27, 2008 Rose, i don't know why he saying it he seems really bothered by it ,and has even told me i don't know why i keep saying that.the spinning thing i thought too was a sensory overload,as his need for touching people, he has been tested on that issue though, but the school pschologist finally got a hold of me so we are on the start, i'll have her test that as well,so we can figure out how to elimenate some of these issues, also he has been walking w/ one foot kind of turned to the side almost as if walking on the side of his foot, when i say something he tries to walk right but as soon as it is off his mind right back again,i just bought him new shoes i can't keep replacing them but what should i do, why would he be doing this.?SherryRose <beachbodytan2002@...> wrote: Sherry, I must of missed that post. it slipped by somehow. when you said your son is now repeating that same thing over and over. like 'who's turn is it' even when not playing a game. When does he do that ?? and why ?? my son does that EXACT thing over and over. he's into saying, do you like mashed bananas? he loves the way it sounds, and loves annoying everybody with that question. and the more the little stinker gets THAT response, the more he does it. Like, I'm on the phone, really into the conversation with that person, My son would be saying Mom !!!, Mom !!! MOMMMMM.. I'll say hold on and say WHAT !. they he'll say: do you like mashed bananas? and walk away. BUT as annoying as that is, I think he really had something he felt was important to say or ask me but forgot by the time I asked the person to hold on and say what. so he filled in the blank with: do you like mashed bananas ( which no one eats). Then when his sweet loving sister is annoying to him. he annoys her back by calling her. and when she finally goes to him, he says in his sweet voice. do you like mashed bananas? she gets so mad at him. so each time she pushes his buttons, he remembers how much she hates when he says that, and he will say it again and again. do you like mashed bananas?... as for the spinning, is why I don't let my son push a wagon in the supermarket, he will spin with it. but in your case, it can be your son's sensory overload from everything that's been happening in school. since your seeing it more as more things are happening to him. Rose<cmcintosh5cogeco (DOT) ca> wrote: Ah... The autism reality slap YUP! Had a few of those. I think it happens a lot with those of us who have high functioning children. -- Re: ( ) Re: MCcarthey 20/20- Long Rose, i agree with u there have been a few times i thought to myself maybe they were wrong to dx my son with asperger's but then reality slaps me upside the head and sometimes it is a real hard slap,Lol like the last few days, he is spinning and spinning and he has been repeating for like a week now who's turn is it? even when not playing a game, TSS spoke w/ me on it yesterday, she said she doesn't know what has caused the onset but noticing more and more symptoms as well, and he has in home therapy he sees,psychtrist, psychologist behavior specialist and is taking meds, so i just hope for the best for him in the end, but feel there isn't a cure for this, but doesn't change my feelings for him or others u know? SherryRose <beachbodytan2002 > wrote: , in our school, the teacher started a big mess by stating my son doesn't look auti stic and is progressing. even though he has documentation starting at a very young age to present stating he's autistic. they challenged that doctor. so the school did some testing and said he's not autistic. (all because they wanted to change his classification before going into middle school next September) I took him back to the neurologist and she did her testing and stated he is progressing but still autistic. higher functioning, but still on the autistic spectrum. the school then sent their findings to her, ( this went back and forth for months) and that's when she explained to the school that autism is neurological which effects the brain. since you can't give a child a new brain, you can't cure the child. she also said the same things Roxanna had posted when she was explaining how our kids can progress. but how can you fix the brain?. I hope I'm wording this right, you can redirect, you can teach, you can roll model to the point where the child won't stand out. and progress to the point where he/she can function in the real world, but that child would always be different. My son would always flap his hands like a bird whenever he's excited. I taught him not to do that and he found another appropriate thing to do with his hands that doesn't stand out, or an eye catcher that would make him a target in school. because he was taught not to flap his hands and drilled to look at the person he's speaking to, and other things that he was drilled to learn over the years, doesn't mean he's cured from autism because he was taught to act "normal"...He is very high functioning, but there is always something new that we have to work on. or something with social skills he's not getting, or prompting needed in school. I wish there was a cure, and if I believed that a Dan doctor can cure him instead of doing all that we are doing now. I would do what ever I can to get my son there. The reason why this really hit a spot with me, is because I believe there are so many people being mis lead about the cu re, and spending so much time with this instead of getting the interventions need for their child to progress. and like any parent, we all want to hear our child is cured when making progress. I do wish you the best for you and your child. And I pray your child continues to do well because our children do work hard with all the strategies we give them. and being though this is such a sensitive topic, I'm not responding to this topic anymore. I think our last hot topic was the vaccines? jennifer_thorson <jennifer_thorson > wrote: Yes. The children were diagnosed, then treated, and then re-evaluated. The chance of being re-evaluated by the same person seems not very likely to me. I don't know the answer to this part. > > > > She was on. It was the 2nd piece that they did. Not too > > > long. She said basically the same information as on her other > > > appearances. She is going to be on Larry King, also.> > > > > > > > ----------------------------------------------------------> > > --------> > > > Luggage? GPS? Comic books? > > > > Check out fitting gifts for grads at Search. > > > > > > > > > > > > > > > > > > > > ----------------------------------------------------------> > > ----------> > > > Take the Internet to Go: Go puts the Internet in your > > > pocket: mail, news, photos more.> > > >> > >> > > > > > > > > > > > > > ---------------------------------> > Be a better friend, newshound, and know-it-all with Mobile. > Try it now.> >> > > > > > > ---------------------------------> Never miss a thing. Make your homepage.> Looking for last minute shopping deals? Find them fast with Search. Be a better friend, newshound, and know-it-all with Mobile. Try it now. Be a better friend, newshound, and know-it-all with Mobile. Try it now. Never miss a thing. Make your homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2008 Report Share Posted February 27, 2008 Sherry, you son is experiencing so much for such a young child and for so long without any help from the school. But, I'm so glad for you and your son, with all your persistent hard work with getting the school to listen to you that they are finally going to do something and some testings. I can share with you, once they do set up a good strategy and 'real' goals for him, and a plan to stop the bullying. you will see an improvement and have such a relief. sometimes, our kids really can't explain " the, why are you doing that questions' because its hard for them or they don't have a description to describe it to you. He can't say I have so much I'm dealing with right now or I'm feeling so stressed, that's why I keep repeating myself. So saying - I don't know - is an answer. My son also walks a funny way and somehow puts holes in his sneakers on the bottom. I week after I buy his sneakers, they look so old. have you considered asking for a PT evaluation? Rosesherry burford <superchick0770@...> wrote: Rose, i don't know why he saying it he seems really bothered by it ,and has even told me i don't know why i keep saying that.the spinning thing i thought too was a sensory overload,as his need for touching people, he has been tested on that issue though, but the school pschologist finally got a hold of me so we are on the start, i'll have her test that as well,so we can figure out how to elimenate some of these issues, also he has been walking w/ one foot kind of turned to the side almost as if walking on the side of his foot, when i say something he tries to walk right but as soon as it is off his mind right back again,i just bought him new shoes i can't keep replacing them but what should i do, why would he be doing this.?SherryRose <beachbodytan2002 > wrote: Sherry, I must of missed that post. it slipped by somehow. when you said your son is now repeating that same thing over and over. like 'who's turn is it' even when not playing a game. When does he do that ?? and why ?? my son does that EXACT thing over and over. he's into saying, do you like mashed bananas? he loves the way it sounds, and loves annoying everybody with that question. and the more the little stinker gets THAT response, the more he does it. Like, I'm on the phone, really into the conversation with that person, My son would be saying Mom !!!, Mom !!! MOMMMMM.. I'll say hold on and say WHAT !. they he'll say: do you like mashed bananas? and walk away. BUT as annoying as that is, I think he really had something he felt was important to say or ask me but forgot by the time I asked the person to hold on and say what. so he filled in the blank with: do you like mashed bananas ( which no one eats). Then when his sweet loving sister is annoying to him. he annoys her back by calling her. and when she finally goes to him, he says in his sweet voice. do you like mashed bananas? she gets so mad at him. so each time she pushes his buttons, he remembers how much she hates when he says that, and he will say it again and again. do you like mashed bananas?... as for the spinning, is why I don't let my son push a wagon in the supermarket, he will spin with it. but in your case, it can be your son's sensory overload from everything that's been happening in school. since your seeing it more as more things are happening to him. Rose<cmcintosh5cogeco (DOT) ca> wrote: Ah... The autism reality slap YUP! Had a few of those. I think it happens a lot with those of us who have high functioning children. -- Re: ( ) Re: MCcarthey 20/20- Long Rose, i agree with u there have been a few times i thought to myself maybe they were wrong to dx my son with asperger's but then reality slaps me upside the head and sometimes it is a real hard slap,Lol like the last few days, he is spinning and spinning and he has been repeating for like a week now who's turn is it? even when not playing a game, TSS spoke w/ me on it yesterday, she said she doesn't know what has caused the onset but noticing more and more symptoms as well, and he has in home therapy he sees,psychtrist, psychologist behavior specialist and is taking meds, so i just hope for the best for him in the end, but feel there isn't a cure for this, but doesn't change my feelings for him or others u know? SherryRose <beachbodytan2002 > wrote: , in our school, the teacher started a big mess by stating my son doesn't look auti stic and is progressing. even though he has documentation starting at a very young age to present stating he's autistic. they challenged that doctor. so the school did some testing and said he's not autistic. (all because they wanted to change his classification before going into middle school next September) I took him back to the neurologist and she did her testing and stated he is progressing but still autistic. higher functioning, but still on the autistic spectrum. the school then sent their findings to her, ( this went back and forth for months) and that's when she explained to the school that autism is neurological which effects the brain. since you can't give a child a new brain, you can't cure the child. she also said the same things Roxanna had posted when she was explaining how our kids can progress. but how can you fix the brain?. I hope I'm wording this right, you can redirect, you can teach, you can roll model to the point where the child won't stand out. and progress to the point where he/she can function in the real world, but that child would always be different. My son would always flap his hands like a bird whenever he's excited. I taught him not to do that and he found another appropriate thing to do with his hands that doesn't stand out, or an eye catcher that would make him a target in school. because he was taught not to flap his hands and drilled to look at the person he's speaking to, and other things that he was drilled to learn over the years, doesn't mean he's cured from autism because he was taught to act "normal"...He is very high functioning, but there is always something new that we have to work on. or something with social skills he's not getting, or prompting needed in school. I wish there was a cure, and if I believed that a Dan doctor can cure him instead of doing all that we are doing now. I would do what ever I can to get my son there. The reason why this really hit a spot with me, is because I believe there are so many people being mis lead about the cu re, and spending so much time with this instead of getting the interventions need for their child to progress. and like any parent, we all want to hear our child is cured when making progress. I do wish you the best for you and your child. And I pray your child continues to do well because our children do work hard with all the strategies we give them. and being though this is such a sensitive topic, I'm not responding to this topic anymore. I think our last hot topic was the vaccines? jennifer_thorson <jennifer_thorson > wrote: Yes. The children were diagnosed, then treated, and then re-evaluated. The chance of being re-evaluated by the same person seems not very likely to me. I don't know the answer to this part. > > > > She was on. It was the 2nd piece that they did. Not too > > > long. She said basically the same information as on her other > > > appearances. She is going to be on Larry King, also.> > > > > > > > ----------------------------------------------------------> > > --------> > > > Luggage? GPS? Comic books? > > > > Check out fitting gifts for grads at Search. > > > > > > > > > > > > > > > > > > > > ----------------------------------------------------------> > > ----------> > > > Take the Internet to Go: Go puts the Internet in your > > > pocket: mail, news, photos more.> > > >> > >> > > > > > > > > > > > > > ---------------------------------> > Be a better friend, newshound, and know-it-all with Mobile. > Try it now.> >> > > > > > > ---------------------------------> Never miss a thing. Make your homepage.> Looking for last minute shopping deals? Find them fast with Search. Be a better friend, newshound, and know-it-all with Mobile. Try it now. Be a better friend, newshound, and know-it-all with Mobile. Try it now. Never miss a thing. Make your homepage. Looking for last minute shopping deals? Find them fast with Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2008 Report Share Posted February 27, 2008 No Rose i had not but now that i realize he is doing that i am going to request that as well. he always did what we called high stepping where he walks like he is stepping over things that aren't thereand it is just a strange gait to me, but just figured that was him. SherryRose <beachbodytan2002@...> wrote: Sherry, you son is experiencing so much for such a young child and for so long without any help from the school. But, I'm so glad for you and your son, with all your persistent hard work with getting the school to listen to you that they are finally going to do something and some testings. I can share with you, once they do set up a good strategy and 'real' goals for him, and a plan to stop the bullying. you will see an improvement and have such a relief. sometimes, our kids really can't explain " the, why are you doing that questions' because its hard for them or they don't have a description to describe it to you. He can't say I have so much I'm dealing with right now or I'm feeling so stressed, that's why I keep repeating myself. So saying - I don't know - is an answer. My son also walks a funny way and somehow puts holes in his sneakers on the bottom. I week after I buy his sneakers, they look so old. have you considered asking for a PT evaluation? Rosesherry burford <superchick0770 > wrote: Rose, i don't know why he saying it he seems really bothered by it ,and has even told me i don't know why i keep saying that.the spinning thing i thought too was a sensory overload,as his need for touching people, he has been tested on that issue though, but the school pschologist finally got a hold of me so we are on the start, i'll have her test that as well,so we can figure out how to elimenate some of these issues, also he has been walking w/ one foot kind of turned to the side almost as if walking on the side of his foot, when i say something he tries to walk right but as soon as it is off his mind right back again,i just bought him new shoes i can't keep replacing them but what should i do, why would he be doing this.?SherryRose <beachbodytan2002 > wrote: Sherry, I must of missed that post. it slipped by somehow. when you said your son is now repeating that same thing over and over. like 'who's turn is it' even when not playing a game. When does he do that ?? and why ?? my son does that EXACT thing over and over. he's into saying, do you like mashed bananas? he loves the way it sounds, and loves annoying everybody with that question. and the more the little stinker gets THAT response, the more he does it. Like, I'm on the phone, really into the conversation with that person, My son would be saying Mom !!!, Mom !!! MOMMMMM.. I'll say hold on and say WHAT !. they he'll say: do you like mashed bananas? and walk away. BUT as annoying as that is, I think he really had something he felt was important to say or ask me but forgot by the time I asked the person to hold on and say what. so he filled in the blank with: do you like mashed bananas ( which no one eats). Then when his sweet loving sister is annoying to him. he annoys her back by calling her. and when she finally goes to him, he says in his sweet voice. do you like mashed bananas? she gets so mad at him. so each time she pushes his buttons, he remembers how much she hates when he says that, and he will say it again and again. do you like mashed bananas?... as for the spinning, is why I don't let my son push a wagon in the supermarket, he will spin with it. but in your case, it can be your son's sensory overload from everything that's been happening in school. since your seeing it more as more things are happening to him. Rose<cmcintosh5cogeco (DOT) ca> wrote: Ah... The autism reality slap YUP! Had a few of those. I think it happens a lot with those of us who have high functioning children. -- Re: ( ) Re: MCcarthey 20/20- Long Rose, i agree with u there have been a few times i thought to myself maybe they were wrong to dx my son with asperger's but then reality slaps me upside the head and sometimes it is a real hard slap,Lol like the last few days, he is spinning and spinning and he has been repeating for like a week now who's turn is it? even when not playing a game, TSS spoke w/ me on it yesterday, she said she doesn't know what has caused the onset but noticing more and more symptoms as well, and he has in home therapy he sees,psychtrist, psychologist behavior specialist and is taking meds, so i just hope for the best for him in the end, but feel there isn't a cure for this, but doesn't change my feelings for him or others u know? SherryRose <beachbodytan2002 > wrote: , in our school, the teacher started a big mess by stating my son doesn't look auti stic and is progressing. even though he has documentation starting at a very young age to present stating he's autistic. they challenged that doctor. so the school did some testing and said he's not autistic. (all because they wanted to change his classification before going into middle school next September) I took him back to the neurologist and she did her testing and stated he is progressing but still autistic. higher functioning, but still on the autistic spectrum. the school then sent their findings to her, ( this went back and forth for months) and that's when she explained to the school that autism is neurological which effects the brain. since you can't give a child a new brain, you can't cure the child. she also said the same things Roxanna had posted when she was explaining how our kids can progress. but how can you fix the brain?. I hope I'm wording this right, you can redirect, you can teach, you can roll model to the point where the child won't stand out. and progress to the point where he/she can function in the real world, but that child would always be different. My son would always flap his hands like a bird whenever he's excited. I taught him not to do that and he found another appropriate thing to do with his hands that doesn't stand out, or an eye catcher that would make him a target in school. because he was taught not to flap his hands and drilled to look at the person he's speaking to, and other things that he was drilled to learn over the years, doesn't mean he's cured from autism because he was taught to act "normal"...He is very high functioning, but there is always something new that we have to work on. or something with social skills he's not getting, or prompting needed in school. I wish there was a cure, and if I believed that a Dan doctor can cure him instead of doing all that we are doing now. I would do what ever I can to get my son there. The reason why this really hit a spot with me, is because I believe there are so many people being mis lead about the cu re, and spending so much time with this instead of getting the interventions need for their child to progress. and like any parent, we all want to hear our child is cured when making progress. I do wish you the best for you and your child. And I pray your child continues to do well because our children do work hard with all the strategies we give them. and being though this is such a sensitive topic, I'm not responding to this topic anymore. I think our last hot topic was the vaccines? jennifer_thorson <jennifer_thorson > wrote: Yes. The children were diagnosed, then treated, and then re-evaluated. The chance of being re-evaluated by the same person seems not very likely to me. I don't know the answer to this part. > > > > She was on. It was the 2nd piece that they did. Not too > > > long. She said basically the same information as on her other > > > appearances. She is going to be on Larry King, also.> > > > > > > > ----------------------------------------------------------> > > --------> > > > Luggage? GPS? Comic books? > > > > Check out fitting gifts for grads at Search. > > > > > > > > > > > > > > > > > > > > ----------------------------------------------------------> > > ----------> > > > Take the Internet to Go: Go puts the Internet in your > > > pocket: mail, news, photos more.> > > >> > >> > > > > > > > > > > > > > ---------------------------------> > Be a better friend, newshound, and know-it-all with Mobile. > Try it now.> >> > > > > > > ---------------------------------> Never miss a thing. Make your homepage.> Looking for last minute shopping deals? Find them fast with Search. Be a better friend, newshound, and know-it-all with Mobile. Try it now. Be a better friend, newshound, and know-it-all with Mobile. Try it now. Never miss a thing. Make your homepage. Looking for last minute shopping deals? Find them fast with Search. Be a better friend, newshound, and know-it-all with Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2008 Report Share Posted February 27, 2008 No Rose i had not but now that i realize he is doing that i am going to request that as well. he always did what we called high stepping where he walks like he is stepping over things that aren't thereand it is just a strange gait to me, but just figured that was him. SherryRose <beachbodytan2002@...> wrote: Sherry, you son is experiencing so much for such a young child and for so long without any help from the school. But, I'm so glad for you and your son, with all your persistent hard work with getting the school to listen to you that they are finally going to do something and some testings. I can share with you, once they do set up a good strategy and 'real' goals for him, and a plan to stop the bullying. you will see an improvement and have such a relief. sometimes, our kids really can't explain " the, why are you doing that questions' because its hard for them or they don't have a description to describe it to you. He can't say I have so much I'm dealing with right now or I'm feeling so stressed, that's why I keep repeating myself. So saying - I don't know - is an answer. My son also walks a funny way and somehow puts holes in his sneakers on the bottom. I week after I buy his sneakers, they look so old. have you considered asking for a PT evaluation? Rosesherry burford <superchick0770 > wrote: Rose, i don't know why he saying it he seems really bothered by it ,and has even told me i don't know why i keep saying that.the spinning thing i thought too was a sensory overload,as his need for touching people, he has been tested on that issue though, but the school pschologist finally got a hold of me so we are on the start, i'll have her test that as well,so we can figure out how to elimenate some of these issues, also he has been walking w/ one foot kind of turned to the side almost as if walking on the side of his foot, when i say something he tries to walk right but as soon as it is off his mind right back again,i just bought him new shoes i can't keep replacing them but what should i do, why would he be doing this.?SherryRose <beachbodytan2002 > wrote: Sherry, I must of missed that post. it slipped by somehow. when you said your son is now repeating that same thing over and over. like 'who's turn is it' even when not playing a game. When does he do that ?? and why ?? my son does that EXACT thing over and over. he's into saying, do you like mashed bananas? he loves the way it sounds, and loves annoying everybody with that question. and the more the little stinker gets THAT response, the more he does it. Like, I'm on the phone, really into the conversation with that person, My son would be saying Mom !!!, Mom !!! MOMMMMM.. I'll say hold on and say WHAT !. they he'll say: do you like mashed bananas? and walk away. BUT as annoying as that is, I think he really had something he felt was important to say or ask me but forgot by the time I asked the person to hold on and say what. so he filled in the blank with: do you like mashed bananas ( which no one eats). Then when his sweet loving sister is annoying to him. he annoys her back by calling her. and when she finally goes to him, he says in his sweet voice. do you like mashed bananas? she gets so mad at him. so each time she pushes his buttons, he remembers how much she hates when he says that, and he will say it again and again. do you like mashed bananas?... as for the spinning, is why I don't let my son push a wagon in the supermarket, he will spin with it. but in your case, it can be your son's sensory overload from everything that's been happening in school. since your seeing it more as more things are happening to him. Rose<cmcintosh5cogeco (DOT) ca> wrote: Ah... The autism reality slap YUP! Had a few of those. I think it happens a lot with those of us who have high functioning children. -- Re: ( ) Re: MCcarthey 20/20- Long Rose, i agree with u there have been a few times i thought to myself maybe they were wrong to dx my son with asperger's but then reality slaps me upside the head and sometimes it is a real hard slap,Lol like the last few days, he is spinning and spinning and he has been repeating for like a week now who's turn is it? even when not playing a game, TSS spoke w/ me on it yesterday, she said she doesn't know what has caused the onset but noticing more and more symptoms as well, and he has in home therapy he sees,psychtrist, psychologist behavior specialist and is taking meds, so i just hope for the best for him in the end, but feel there isn't a cure for this, but doesn't change my feelings for him or others u know? SherryRose <beachbodytan2002 > wrote: , in our school, the teacher started a big mess by stating my son doesn't look auti stic and is progressing. even though he has documentation starting at a very young age to present stating he's autistic. they challenged that doctor. so the school did some testing and said he's not autistic. (all because they wanted to change his classification before going into middle school next September) I took him back to the neurologist and she did her testing and stated he is progressing but still autistic. higher functioning, but still on the autistic spectrum. the school then sent their findings to her, ( this went back and forth for months) and that's when she explained to the school that autism is neurological which effects the brain. since you can't give a child a new brain, you can't cure the child. she also said the same things Roxanna had posted when she was explaining how our kids can progress. but how can you fix the brain?. I hope I'm wording this right, you can redirect, you can teach, you can roll model to the point where the child won't stand out. and progress to the point where he/she can function in the real world, but that child would always be different. My son would always flap his hands like a bird whenever he's excited. I taught him not to do that and he found another appropriate thing to do with his hands that doesn't stand out, or an eye catcher that would make him a target in school. because he was taught not to flap his hands and drilled to look at the person he's speaking to, and other things that he was drilled to learn over the years, doesn't mean he's cured from autism because he was taught to act "normal"...He is very high functioning, but there is always something new that we have to work on. or something with social skills he's not getting, or prompting needed in school. I wish there was a cure, and if I believed that a Dan doctor can cure him instead of doing all that we are doing now. I would do what ever I can to get my son there. The reason why this really hit a spot with me, is because I believe there are so many people being mis lead about the cu re, and spending so much time with this instead of getting the interventions need for their child to progress. and like any parent, we all want to hear our child is cured when making progress. I do wish you the best for you and your child. And I pray your child continues to do well because our children do work hard with all the strategies we give them. and being though this is such a sensitive topic, I'm not responding to this topic anymore. I think our last hot topic was the vaccines? jennifer_thorson <jennifer_thorson > wrote: Yes. The children were diagnosed, then treated, and then re-evaluated. The chance of being re-evaluated by the same person seems not very likely to me. I don't know the answer to this part. > > > > She was on. It was the 2nd piece that they did. Not too > > > long. She said basically the same information as on her other > > > appearances. She is going to be on Larry King, also.> > > > > > > > ----------------------------------------------------------> > > --------> > > > Luggage? GPS? Comic books? > > > > Check out fitting gifts for grads at Search. > > > > > > > > > > > > > > > > > > > > ----------------------------------------------------------> > > ----------> > > > Take the Internet to Go: Go puts the Internet in your > > > pocket: mail, news, photos more.> > > >> > >> > > > > > > > > > > > > > ---------------------------------> > Be a better friend, newshound, and know-it-all with Mobile. > Try it now.> >> > > > > > > ---------------------------------> Never miss a thing. Make your homepage.> Looking for last minute shopping deals? Find them fast with Search. Be a better friend, newshound, and know-it-all with Mobile. Try it now. Be a better friend, newshound, and know-it-all with Mobile. Try it now. Never miss a thing. Make your homepage. Looking for last minute shopping deals? Find them fast with Search. Looking for last minute shopping deals? Find them fast with Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2008 Report Share Posted February 27, 2008 Sherry – I think I read somewhere that a “strange” gait is common with our kids. I know they didn’t use the word strange, that is mine ‘cause I can’t remember where I read this or exactly what it said. Maybe someone on this list that is not having a senior moment can help with this. I do know that my son walks “funny”. When he runs it also looks different – don’t know if it is different or just because he is overweight. LOL. From: [mailto: ] On Behalf Of sherry burford Sent: Wednesday, February 27, 2008 4:33 PM To: Subject: Re: ( ) Re: MCcarthey 20/20- Long No Rose i had not but now that i realize he is doing that i am going to request that as well. he always did what we called high stepping where he walks like he is stepping over things that aren't thereand it is just a strange gait to me, but just figured that was him. Sherry Rose <beachbodytan2002 > wrote: Sherry, you son is experiencing so much for such a young child and for so long without any help from the school. But, I'm so glad for you and your son, with all your persistent hard work with getting the school to listen to you that they are finally going to do something and some testings. I can share with you, once they do set up a good strategy and 'real' goals for him, and a plan to stop the bullying. you will see an improvement and have such a relief. sometimes, our kids really can't explain " the, why are you doing that questions' because its hard for them or they don't have a description to describe it to you. He can't say I have so much I'm dealing with right now or I'm feeling so stressed, that's why I keep repeating myself. So saying - I don't know - is an answer. My son also walks a funny way and somehow puts holes in his sneakers on the bottom. I week after I buy his sneakers, they look so old. have you considered asking for a PT evaluation? Rose sherry burford <superchick0770 > wrote: Rose, i don't know why he saying it he seems really bothered by it ,and has even told me i don't know why i keep saying that.the spinning thing i thought too was a sensory overload,as his need for touching people, he has been tested on that issue though, but the school pschologist finally got a hold of me so we are on the start, i'll have her test that as well,so we can figure out how to elimenate some of these issues, also he has been walking w/ one foot kind of turned to the side almost as if walking on the side of his foot, when i say something he tries to walk right but as soon as it is off his mind right back again,i just bought him new shoes i can't keep replacing them but what should i do, why would he be doing this.?Sherry Rose <beachbodytan2002 > wrote: Sherry, I must of missed that post. it slipped by somehow. when you said your son is now repeating that same thing over and over. like 'who's turn is it' even when not playing a game. When does he do that ?? and why ?? my son does that EXACT thing over and over. he's into saying, do you like mashed bananas? he loves the way it sounds, and loves annoying everybody with that question. and the more the little stinker gets THAT response, the more he does it. Like, I'm on the phone, really into the conversation with that person, My son would be saying Mom !!!, Mom !!! MOMMMMM.. I'll say hold on and say WHAT !. they he'll say: do you like mashed bananas? and walk away. BUT as annoying as that is, I think he really had something he felt was important to say or ask me but forgot by the time I asked the person to hold on and say what. so he filled in the blank with: do you like mashed bananas ( which no one eats). Then when his sweet loving sister is annoying to him. he annoys her back by calling her. and when she finally goes to him, he says in his sweet voice. do you like mashed bananas? she gets so mad at him. so each time she pushes his buttons, he remembers how much she hates when he says that, and he will say it again and again. do you like mashed bananas?... as for the spinning, is why I don't let my son push a wagon in the supermarket, he will spin with it. but in your case, it can be your son's sensory overload from everything that's been happening in school. since your seeing it more as more things are happening to him. Rose Chris <cmcintosh5cogeco (DOT) ca> wrote: Ah... The autism reality slap YUP! Had a few of those. I think it happens a lot with those of us who have high functioning children. -- Re: ( ) Re: MCcarthey 20/20- Long Rose, i agree with u there have been a few times i thought to myself maybe they were wrong to dx my son with asperger's but then reality slaps me upside the head and sometimes it is a real hard slap,Lol like the last few days, he is spinning and spinning and he has been repeating for like a week now who's turn is it? even when not playing a game, TSS spoke w/ me on it yesterday, she said she doesn't know what has caused the onset but noticing more and more symptoms as well, and he has in home therapy he sees,psychtrist, psychologist behavior specialist and is taking meds, so i just hope for the best for him in the end, but feel there isn't a cure for this, but doesn't change my feelings for him or others u know? Sherry Rose <beachbodytan2002 > wrote: , in our school, the teacher started a big mess by stating my son doesn't look auti stic and is progressing. even though he has documentation starting at a very young age to present stating he's autistic. they challenged that doctor. so the school did some testing and said he's not autistic. (all because they wanted to change his classification before going into middle school next September) I took him back to the neurologist and she did her testing and stated he is progressing but still autistic. higher functioning, but still on the autistic spectrum. the school then sent their findings to her, ( this went back and forth for months) and that's when she explained to the school that autism is neurological which effects the brain. since you can't give a child a new brain, you can't cure the child. she also said the same things Roxanna had posted when she was explaining how our kids can progress. but how can you fix the brain?. I hope I'm wording this right, you can redirect, you can teach, you can roll model to the point where the child won't stand out. and progress to the point where he/she can function in the real world, but that child would always be different. My son would always flap his hands like a bird whenever he's excited. I taught him not to do that and he found another appropriate thing to do with his hands that doesn't stand out, or an eye catcher that would make him a target in school. because he was taught not to flap his hands and drilled to look at the person he's speaking to, and other things that he was drilled to learn over the years, doesn't mean he's cured from autism because he was taught to act " normal " ...He is very high functioning, but there is always something new that we have to work on. or something with social skills he's not getting, or prompting needed in school. I wish there was a cure, and if I believed that a Dan doctor can cure him instead of doing all that we are doing now. I would do what ever I can to get my son there. The reason why this really hit a spot with me, is because I believe there are so many people being mis lead about the cu re, and spending so much time with this instead of getting the interventions need for their child to progress. and like any parent, we all want to hear our child is cured when making progress. I do wish you the best for you and your child. And I pray your child continues to do well because our children do work hard with all the strategies we give them. and being though this is such a sensitive topic, I'm not responding to this topic anymore. I think our last hot topic was the vaccines? jennifer_thorson <jennifer_thorson > wrote: Yes. The children were diagnosed, then treated, and then re- evaluated. The chance of being re-evaluated by the same person seems not very likely to me. I don't know the answer to this part. > > > > She was on. It was the 2nd piece that they did. Not too > > > long. She said basically the same information as on her other > > > appearances. She is going to be on Larry King, also. > > > > > > > > ---------------------------------------------------------- > > > -------- > > > > Luggage? GPS? Comic books? > > > > Check out fitting gifts for grads at Search. > > > > > > > > > > > > > > > > > > > > ---------------------------------------------------------- > > > ---------- > > > > Take the Internet to Go: Go puts the Internet in your > > > pocket: mail, news, photos more. > > > > > > > > > > > > > > > > > > > > > --------------------------------- > > Be a better friend, newshound, and know-it-all with Mobile. > Try it now. > > > > > > > > > --------------------------------- > Never miss a thing. Make your homepage. > Looking for last minute shopping deals? Find them fast with Search. Be a better friend, newshound, and know-it-all with Mobile. Try it now. Be a better friend, newshound, and know-it-all with Mobile. Try it now. Never miss a thing. Make your homepage. Looking for last minute shopping deals? Find them fast with Search. Looking for last minute shopping deals? Find them fast with Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2008 Report Share Posted February 27, 2008 It does seem to be very common. My son has a normal looking walk and run but frequently him and gravity just don't get along. His biological half sister has a really odd run though. It reminds me of a duck. As far as I know she is NT. With some of her behaviors though she might need tested later on. She's only 3 so right now it's a wait and see situation. My autistic brother has an odd walk. He has never ran so I don't know what he would have run like. Re: ( ) Re: MCcarthey 20/20- Long Rose, i agree with u there have been a few times i thought to myself maybe they were wrong to dx my son with asperger's but then reality slaps me upside the head and sometimes it is a real hard slap,Lol like the last few days, he is spinning and spinning and he has been repeating for like a week now who's turn is it? even when not playing a game, TSS spoke w/ me on it yesterday, she said she doesn't know what has caused the onset but noticing more and more symptoms as well, and he has in home therapy he sees,psychtrist, psychologist behavior specialist and is taking meds, so i just hope for the best for him in the end, but feel there isn't a cure for this, but doesn't change my feelings for him or others u know? SherryRose <beachbodytan2002> wrote: , in our school, the teacher started a big mess by stating my son doesn't look auti stic and is progressing. even though he has documentation starting at a very young age to present stating he's autistic. they challenged that doctor. so the school did some testing and said he's not autistic. (all because they wanted to change his classification before going into middle school next September) I took him back to the neurologist and she did her testing and stated he is progressing but still autistic. higher functioning, but still on the autistic spectrum. the school then sent their findings to her, ( this went back and forth for months) and that's when she explained to the school that autism is neurological which effects the brain. since you can't give a child a new brain, you can't cure the child. she also said the same things Roxanna had posted when she was explaining how our kids can progress. but how can you fix the brain?. I hope I'm wording this right, you can redirect, you can teach, you can roll model to the point where the child won't stand out. and progress to the point where he/she can function in the real world, but that child would always be different. My son would always flap his hands like a bird whenever he's excited. I taught him not to do that and he found another appropriate thing to do with his hands that doesn't stand out, or an eye catcher that would make him a target in school. because he was taught not to flap his hands and drilled to look at the person he's speaking to, and other things that he was drilled to learn over the years, doesn't mean he's cured from autism because he was taught to act "normal"...He is very high functioning, but there is always something new that we have to work on. or something with social skills he's not getting, or prompting needed in school. I wish there was a cure, and if I believed that a Dan doctor can cure him instead of doing all that we are doing now. I would do what ever I can to get my son there. The reason why this really hit a spot with me, is because I believe there are so many people being mis lead about the cu re, and spending so much time with this instead of getting the interventions need for their child to progress. and like any parent, we all want to hear our child is cured when making progress. I do wish you the best for you and your child. And I pray your child continues to do well because our children do work hard with all the strategies we give them. and being though this is such a sensitive topic, I'm not responding to this topic anymore. I think our last hot topic was the vaccines? jennifer_thorson <jennifer_thorson> wrote: Yes. The children were diagnosed, then treated, and then re-evaluated. The chance of being re-evaluated by the same person seems not very likely to me. I don't know the answer to this part. > > > > She was on. It was the 2nd piece that they did. Not too > > > long. She said basically the same information as on her other > > > appearances. She is going to be on Larry King, also.> > > > > > > > ------------ --------- --------- --------- --------- --------- -> > > --------> > > > Luggage? GPS? Comic books? > > > > Check out fitting gifts for grads at Search. > > > > > > > > > > > > > > > > > > > > ------------ --------- --------- --------- --------- --------- -> > > ----------> > > > Take the Internet to Go: Go puts the Internet in your > > > pocket: mail, news, photos more.> > > >> > >> > > > > > > > > > > > > > ------------ --------- --------- ---> > Be a better friend, newshound, and know-it-all with Mobile . > Try it now.> >> > > > > > > ------------ --------- --------- ---> Never miss a thing. Make your homepage.> Looking for last minute shopping deals? Find them fast with Search. Be a better friend, newshound, and know-it-all with Mobile. Try it now. Be a better friend, newshound, and know-it-all with Mobile. Try it now. Never miss a thing. Make your homepage. Looking for last minute shopping deals? Find them fast with Search. Looking for last minute shopping deals? Find them fast with Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2008 Report Share Posted February 27, 2008 Sherry, my son's PE teacher said he has poor muscle tone, which he had from a young child. he runs like Fried Flintstone too- out of sync child. (did I spell that right)?. He said he should stay active - which he is very active. However, when I brought that up at the meeting, they said that he was getting so many services that adding this would just be too much for him. even though I disagree and he can have PT right in PE class and not be pulled out from his classroom. at that time it wasn't a Hugh priority and I was fighting for other services that were needed. I wish I didn't give in so easily because its not going to go away on its own. Does you son fit that description? "the out of sync child" or just with a strange gait?. Rose sherry burford <superchick0770@...> wrote: No Rose i had not but now that i realize he is doing that i am going to request that as well. he always did what we called high stepping where he walks like he is stepping over things that aren't thereand it is just a strange gait to me, but just figured that was him. SherryRose <beachbodytan2002 > wrote: Sherry, you son is experiencing so much for such a young child and for so long without any help from the school. But, I'm so glad for you and your son, with all your persistent hard work with getting the school to listen to you that they are finally going to do something and some testings. I can share with you, once they do set up a good strategy and 'real' goals for him, and a plan to stop the bullying. you will see an improvement and have such a relief. sometimes, our kids really can't explain " the, why are you doing that questions' because its hard for them or they don't have a description to describe it to you. He can't say I have so much I'm dealing with right now or I'm feeling so stressed, that's why I keep repeating myself. So saying - I don't know - is an answer. My son also walks a funny way and somehow puts holes in his sneakers on the bottom. I week after I buy his sneakers, they look so old. have you considered asking for a PT evaluation? Rosesherry burford <superchick0770 > wrote: Rose, i don't know why he saying it he seems really bothered by it ,and has even told me i don't know why i keep saying that.the spinning thing i thought too was a sensory overload,as his need for touching people, he has been tested on that issue though, but the school pschologist finally got a hold of me so we are on the start, i'll have her test that as well,so we can figure out how to elimenate some of these issues, also he has been walking w/ one foot kind of turned to the side almost as if walking on the side of his foot, when i say something he tries to walk right but as soon as it is off his mind right back again,i just bought him new shoes i can't keep replacing them but what should i do, why would he be doing this.?SherryRose <beachbodytan2002 > wrote: Sherry, I must of missed that post. it slipped by somehow. when you said your son is now repeating that same thing over and over. like 'who's turn is it' even when not playing a game. When does he do that ?? and why ?? my son does that EXACT thing over and over. he's into saying, do you like mashed bananas? he loves the way it sounds, and loves annoying everybody with that question. and the more the little stinker gets THAT response, the more he does it. Like, I'm on the phone, really into the conversation with that person, My son would be saying Mom !!!, Mom !!! MOMMMMM.. I'll say hold on and say WHAT !. they he'll say: do you like mashed bananas? and walk away. BUT as annoying as that is, I think he really had something he felt was important to say or ask me but forgot by the time I asked the person to hold on and say what. so he filled in the blank with: do you like mashed bananas ( which no one eats). Then when his sweet loving sister is annoying to him. he annoys her back by calling her. and when she finally goes to him, he says in his sweet voice. do you like mashed bananas? she gets so mad at him. so each time she pushes his buttons, he remembers how much she hates when he says that, and he will say it again and again. do you like mashed bananas?... as for the spinning, is why I don't let my son push a wagon in the supermarket, he will spin with it. but in your case, it can be your son's sensory overload from everything that's been happening in school. since your seeing it more as more things are happening to him. Rose<cmcintosh5cogeco (DOT) ca> wrote: Ah... The autism reality slap YUP! Had a few of those. I think it happens a lot with those of us who have high functioning children. -- Re: ( ) Re: MCcarthey 20/20- Long Rose, i agree with u there have been a few times i thought to myself maybe they were wrong to dx my son with asperger's but then reality slaps me upside the head and sometimes it is a real hard slap,Lol like the last few days, he is spinning and spinning and he has been repeating for like a week now who's turn is it? even when not playing a game, TSS spoke w/ me on it yesterday, she said she doesn't know what has caused the onset but noticing more and more symptoms as well, and he has in home therapy he sees,psychtrist, psychologist behavior specialist and is taking meds, so i just hope for the best for him in the end, but feel there isn't a cure for this, but doesn't change my feelings for him or others u know? SherryRose <beachbodytan2002 > wrote: , in our school, the teacher started a big mess by stating my son doesn't look auti stic and is progressing. even though he has documentation starting at a very young age to present stating he's autistic. they challenged that doctor. so the school did some testing and said he's not autistic. (all because they wanted to change his classification before going into middle school next September) I took him back to the neurologist and she did her testing and stated he is progressing but still autistic. higher functioning, but still on the autistic spectrum. the school then sent their findings to her, ( this went back and forth for months) and that's when she explained to the school that autism is neurological which effects the brain. since you can't give a child a new brain, you can't cure the child. she also said the same things Roxanna had posted when she was explaining how our kids can progress. but how can you fix the brain?. I hope I'm wording this right, you can redirect, you can teach, you can roll model to the point where the child won't stand out. and progress to the point where he/she can function in the real world, but that child would always be different. My son would always flap his hands like a bird whenever he's excited. I taught him not to do that and he found another appropriate thing to do with his hands that doesn't stand out, or an eye catcher that would make him a target in school. because he was taught not to flap his hands and drilled to look at the person he's speaking to, and other things that he was drilled to learn over the years, doesn't mean he's cured from autism because he was taught to act "normal"...He is very high functioning, but there is always something new that we have to work on. or something with social skills he's not getting, or prompting needed in school. I wish there was a cure, and if I believed that a Dan doctor can cure him instead of doing all that we are doing now. I would do what ever I can to get my son there. The reason why this really hit a spot with me, is because I believe there are so many people being mis lead about the cu re, and spending so much time with this instead of getting the interventions need for their child to progress. and like any parent, we all want to hear our child is cured when making progress. I do wish you the best for you and your child. And I pray your child continues to do well because our children do work hard with all the strategies we give them. and being though this is such a sensitive topic, I'm not responding to this topic anymore. I think our last hot topic was the vaccines? jennifer_thorson <jennifer_thorson > wrote: Yes. The children were diagnosed, then treated, and then re-evaluated. The chance of being re-evaluated by the same person seems not very likely to me. I don't know the answer to this part. > > > > She was on. It was the 2nd piece that they did. Not too > > > long. She said basically the same information as on her other > > > appearances. She is going to be on Larry King, also.> > > > > > > > ----------------------------------------------------------> > > --------> > > > Luggage? GPS? Comic books? > > > > Check out fitting gifts for grads at Search. > > > > > > > > > > > > > > > > > > > > ----------------------------------------------------------> > > ----------> > > > Take the Internet to Go: Go puts the Internet in your > > > pocket: mail, news, photos more.> > > >> > >> > > > > > > > > > > > > > ---------------------------------> > Be a better friend, newshound, and know-it-all with Mobile. > Try it now.> >> > > > > > > ---------------------------------> Never miss a thing. Make your homepage.> Looking for last minute shopping deals? Find them fast with Search. Be a better friend, newshound, and know-it-all with Mobile. Try it now. Be a better friend, newshound, and know-it-all with Mobile. Try it now. Never miss a thing. Make your homepage. Looking for last minute shopping deals? Find them fast with Search. Be a better friend, newshound, and know-it-all with Mobile. Try it now. Never miss a thing. Make your homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2008 Report Share Posted February 27, 2008 I have been trying to find a Dan doctor in my area for years, I'd take my son to one if I could, I have heard wonderful things they can do for children of autism, it's worth a try, I will try anything to help my son, as long as it isn't going to hurt him further. And I'm still not certain the vaccines didn't do this to my son. So Who's afraid of the big bad wolf now. lol This site is so fun. pj , I wasn't going to respond to this topic anymore because it's getting so sensitive. but because your feeling so hurt I want to. No one is attacking you, but I can see why you feel that way. It's because of your strong belief in something that is so different from what the rest of us is experiencing on this site. and since we all have important questions, we all want to ask you those questions, AND its just ''you'' with this exciting experience that you have with your Dan Doctor that's posting here. I can see why you ''feel attacked''. (but no one is attacking you, we are asking questions and learning like any other topic). Like someone else posted, everybodys questions are good questions. and our doctors which are specialsit in autism & autism research ( which helped me out more than I have time to explain) also think differently about 'cure'. IMO instead of using the word 'cure' should use the word progressing. Also I do believe, that you believe in the Dan doctor. but lots of us need more information on that before we would consider taking our children to a Dan Doctor. if that makes sense to you. but we all can see that you are a caring loving parent that wants to do the best for you child like all of us. So that's my point. in the end, we all want whats best for our children, and to find that out we need to ask qood questions to learn. (no matter who we seek that information from). I hope you can stay with us, I do love everybody here on this group, I've learned lots from all of you, and when I'm feeling upset, I feel better talking to you and everybody else here. I hope you stay, your a great mom and a great person. and I am so glad to hear good news about your daughter doing well.. *smile* Hugs Rosejennifer_thorson <jennifer_thorson> wrote: The reason I feel attacked is because I come here for support and feel like this group is not supporting me currently. I explain what is working with my child and no one believes me? Am I hallucinating? Or does my daughter regress when she has gluten and casein even with enzymes? For my daughter diet is important. Not one person said anything to support me. Over the years people have said don't leave the forum over arguments, we are here for our children. I feel like I did in high school, the outcast. If things I say are not appropriate for this forum than I will leave. I understand the questions, but why can no one give me the benefit of the doubt about my own daughter? I am not telling anyone to do anything with their children. I think we all know how it feels when friends and family don't understand our child. I am on the forums to feel included, not like the outsider. I felt awful reading the statements yesterday. I am almost in tears now. > > > > > She was on. It was the 2nd piece that they did. Not too > > > > long. She said basically the same information as on her other > > > > appearances. She is going to be on Larry King, also.> > > > > > > > > > ------------ --------- --------- --------- --------- --------- -> > > > --------> > > > > Luggage? GPS? Comic books? > > > > > Check out fitting gifts for grads at Search. > > > > > > > > > > > > > > > > > > > > > > > > > ------------ --------- --------- --------- --------- --------- -> > > > ----------> > > > > Take the Internet to Go: Go puts the Internet in your > > > > pocket: mail, news, photos more.> > > > >> > > >> > > > > > > > > > > > > > > > > > > > > ------------ --------- --------- ---> > > Be a better friend, newshound, and know-it-all with > Mobile. > > Try it now.> > >> > > > > > > > > > > > > > > > > > > > ------------ --------- --------- ---> > Looking for last minute shopping deals? Find them fast with > Search.> >> Be a better friend, newshound, and know-it-all with Mobile. Try it now. Be a better friend, newshound, and know-it-all with Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2008 Report Share Posted February 27, 2008 My son runs and walks different, too. He runs almost "smoothly"..........with his arms kind of "out" and goes really fast. I'm giggling right now. Walking,,,,,,,,,it's like he just needs to get "where he's going". This also,,,,is almost in a smooth motion. No typical "bouncing" like the average stride makes. Hee hee. Robin Elgamal <cindyelgamal@...> wrote: Sherry – I think I read somewhere that a “strange” gait is common with our kids. I know they didn’t use the word strange, that is mine ‘cause I can’t remember where I read this or exactly what it said. Maybe someone on this list that is not having a senior moment can help with this. I do know that my son walks “funny”. When he runs it also looks different – don’t know if it is different or just because he is overweight. LOL. From: [mailto: ] On Behalf Of sherry burfordSent: Wednesday, February 27, 2008 4:33 PM Subject: Re: ( ) Re: MCcarthey 20/20- Long No Rose i had not but now that i realize he is doing that i am going to request that as well. he always did what we called high stepping where he walks like he is stepping over things that aren't thereand it is just a strange gait to me, but just figured that was him. SherryRose <beachbodytan2002 > wrote: Sherry, you son is experiencing so much for such a young child and for so long without any help from the school. But, I'm so glad for you and your son, with all your persistent hard work with getting the school to listen to you that they are finally going to do something and some testings. I can share with you, once they do set up a good strategy and 'real' goals for him, and a plan to stop the bullying. you will see an improvement and have such a relief. sometimes, our kids really can't explain " the, why are you doing that questions' because its hard for them or they don't have a description to describe it to you. He can't say I have so much I'm dealing with right now or I'm feeling so stressed, that's why I keep repeating myself. So saying - I don't know - is an answer. My son also walks a funny way and somehow puts holes in his sneakers on the bottom. I week after I buy his sneakers, they look so old. have you considered asking for a PT evaluation? Rosesherry burford <superchick0770 > wrote: Rose, i don't know why he saying it he seems really bothered by it ,and has even told me i don't know why i keep saying that.the spinning thing i thought too was a sensory overload,as his need for touching people, he has been tested on that issue though, but the school pschologist finally got a hold of me so we are on the start, i'll have her test that as well,so we can figure out how to elimenate some of these issues, also he has been walking w/ one foot kind of turned to the side almost as if walking on the side of his foot, when i say something he tries to walk right but as soon as it is off his mind right back again,i just bought him new shoes i can't keep replacing them but what should i do, why would he be doing this.?SherryRose <beachbodytan2002 > wrote: Sherry, I must of missed that post. it slipped by somehow. when you said your son is now repeating that same thing over and over. like 'who's turn is it' even when not playing a game. When does he do that ?? and why ?? my son does that EXACT thing over and over. he's into saying, do you like mashed bananas? he loves the way it sounds, and loves annoying everybody with that question. and the more the little stinker gets THAT response, the more he does it. Like, I'm on the phone, really into the conversation with that person, My son would be saying Mom !!!, Mom !!! MOMMMMM.. I'll say hold on and say WHAT !. they he'll say: do you like mashed bananas? and walk away. BUT as annoying as that is, I think he really had something he felt was important to say or ask me but forgot by the time I asked the person to hold on and say what. so he filled in the blank with: do you like mashed bananas ( which no one eats). Then when his sweet loving sister is annoying to him. he annoys her back by calling her. and when she finally goes to him, he says in his sweet voice. do you like mashed bananas? she gets so mad at him. so each time she pushes his buttons, he remembers how much she hates when he says that, and he will say it again and again. do you like mashed bananas?... as for the spinning, is why I don't let my son push a wagon in the supermarket, he will spin with it. but in your case, it can be your son's sensory overload from everything that's been happening in school. since your seeing it more as more things are happening to him. Rose<cmcintosh5cogeco (DOT) ca> wrote: Ah... The autism reality slap YUP! Had a few of those. I think it happens a lot with those of us who have high functioning children. -- Re: ( ) Re: MCcarthey 20/20- Long Rose, i agree with u there have been a few times i thought to myself maybe they were wrong to dx my son with asperger's but then reality slaps me upside the head and sometimes it is a real hard slap,Lol like the last few days, he is spinning and spinning and he has been repeating for like a week now who's turn is it? even when not playing a game, TSS spoke w/ me on it yesterday, she said she doesn't know what has caused the onset but noticing more and more symptoms as well, and he has in home therapy he sees,psychtrist, psychologist behavior specialist and is taking meds, so i just hope for the best for him in the end, but feel there isn't a cure for this, but doesn't change my feelings for him or others u know? SherryRose <beachbodytan2002 > wrote: , in our school, the teacher started a big mess by stating my son doesn't look auti stic and is progressing. even though he has documentation starting at a very young age to present stating he's autistic. they challenged that doctor. so the school did some testing and said he's not autistic. (all because they wanted to change his classification before going into middle school next September) I took him back to the neurologist and she did her testing and stated he is progressing but still autistic. higher functioning, but still on the autistic spectrum. the school then sent their findings to her, ( this went back and forth for months) and that's when she explained to the school that autism is neurological which effects the brain. since you can't give a child a new brain, you can't cure the child. she also said the same things Roxanna had posted when she was explaining how our kids can progress. but how can you fix the brain?. I hope I'm wording this right, you can redirect, you can teach, you can roll model to the point where the child won't stand out. and progress to the point where he/she can function in the real world, but that child would always be different. My son would always flap his hands like a bird whenever he's excited. I taught him not to do that and he found another appropriate thing to do with his hands that doesn't stand out, or an eye catcher that would make him a target in school. because he was taught not to flap his hands and drilled to look at the person he's speaking to, and other things that he was drilled to learn over the years, doesn't mean he's cured from autism because he was taught to act "normal"...He is very high functioning, but there is always something new that we have to work on. or something with social skills he's not getting, or prompting needed in school. I wish there was a cure, and if I believed that a Dan doctor can cure him instead of doing all that we are doing now. I would do what ever I can to get my son there. The reason why this really hit a spot with me, is because I believe there are so many people being mis lead about the cu re, and spending so much time with this instead of getting the interventions need for their child to progress. and like any parent, we all want to hear our child is cured when making progress. I do wish you the best for you and your child. And I pray your child continues to do well because our children do work hard with all the strategies we give them. and being though this is such a sensitive topic, I'm not responding to this topic anymore. I think our last hot topic was the vaccines? jennifer_thorson <jennifer_thorson > wrote: Yes. The children were diagnosed, then treated, and then re-evaluated. The chance of being re-evaluated by the same person seems not very likely to me. I don't know the answer to this part. > > > > She was on. It was the 2nd piece that they did. Not too > > > long. She said basically the same information as on her other > > > appearances. She is going to be on Larry King, also.> > > > > > > > ----------------------------------------------------------> > > --------> > > > Luggage? GPS? Comic books? > > > > Check out fitting gifts for grads at Search. > > > > > > > > > > > > > > > > > > > > ----------------------------------------------------------> > > ----------> > > > Take the Internet to Go: Go puts the Internet in your > > > pocket: mail, news, photos more.> > > >> > >> > > > > > > > > > > > > > ---------------------------------> > Be a better friend, newshound, and know-it-all with Mobile. > Try it now.> >> > > > > > > ---------------------------------> Never miss a thing. Make your homepage.> Looking for last minute shopping deals? Find them fast with Search. Be a better friend, newshound, and know-it-all with Mobile. Try it now. Be a better friend, newshound, and know-it-all with Mobile. Try it now. Never miss a thing. Make your homepage. Looking for last minute shopping deals? Find them fast with Search. Looking for last minute shopping deals? Find them fast with Search. Looking for last minute shopping deals? Find them fast with Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2008 Report Share Posted February 27, 2008 I'm not sure about the out of sync thing but he is walking w/ one foot turned almost completely on his side.and so i am wondering if he needs PT for that, what do you think? SherryRose <beachbodytan2002@...> wrote: Sherry, my son's PE teacher said he has poor muscle tone, which he had from a young child. he runs like Fried Flintstone too- out of sync child. (did I spell that right)?. He said he should stay active - which he is very active. However, when I brought that up at the meeting, they said that he was getting so many services that adding this would just be too much for him. even though I disagree and he can have PT right in PE class and not be pulled out from his classroom. at that time it wasn't a Hugh priority and I was fighting for other services that were needed. I wish I didn't give in so easily because its not going to go away on its own. Does you son fit that description? "the out of sync child" or just with a strange gait?. Rose sherry burford <superchick0770 > wrote: No Rose i had not but now that i realize he is doing that i am going to request that as well. he always did what we called high stepping where he walks like he is stepping over things that aren't thereand it is just a strange gait to me, but just figured that was him. SherryRose <beachbodytan2002 > wrote: Sherry, you son is experiencing so much for such a young child and for so long without any help from the school. But, I'm so glad for you and your son, with all your persistent hard work with getting the school to listen to you that they are finally going to do something and some testings. I can share with you, once they do set up a good strategy and 'real' goals for him, and a plan to stop the bullying. you will see an improvement and have such a relief. sometimes, our kids really can't explain " the, why are you doing that questions' because its hard for them or they don't have a description to describe it to you. He can't say I have so much I'm dealing with right now or I'm feeling so stressed, that's why I keep repeating myself. So saying - I don't know - is an answer. My son also walks a funny way and somehow puts holes in his sneakers on the bottom. I week after I buy his sneakers, they look so old. have you considered asking for a PT evaluation? Rosesherry burford <superchick0770 > wrote: Rose, i don't know why he saying it he seems really bothered by it ,and has even told me i don't know why i keep saying that.the spinning thing i thought too was a sensory overload,as his need for touching people, he has been tested on that issue though, but the school pschologist finally got a hold of me so we are on the start, i'll have her test that as well,so we can figure out how to elimenate some of these issues, also he has been walking w/ one foot kind of turned to the side almost as if walking on the side of his foot, when i say something he tries to walk right but as soon as it is off his mind right back again,i just bought him new shoes i can't keep replacing them but what should i do, why would he be doing this.?SherryRose <beachbodytan2002 > wrote: Sherry, I must of missed that post. it slipped by somehow. when you said your son is now repeating that same thing over and over. like 'who's turn is it' even when not playing a game. When does he do that ?? and why ?? my son does that EXACT thing over and over. he's into saying, do you like mashed bananas? he loves the way it sounds, and loves annoying everybody with that question. and the more the little stinker gets THAT response, the more he does it. Like, I'm on the phone, really into the conversation with that person, My son would be saying Mom !!!, Mom !!! MOMMMMM.. I'll say hold on and say WHAT !. they he'll say: do you like mashed bananas? and walk away. BUT as annoying as that is, I think he really had something he felt was important to say or ask me but forgot by the time I asked the person to hold on and say what. so he filled in the blank with: do you like mashed bananas ( which no one eats). Then when his sweet loving sister is annoying to him. he annoys her back by calling her. and when she finally goes to him, he says in his sweet voice. do you like mashed bananas? she gets so mad at him. so each time she pushes his buttons, he remembers how much she hates when he says that, and he will say it again and again. do you like mashed bananas?... as for the spinning, is why I don't let my son push a wagon in the supermarket, he will spin with it. but in your case, it can be your son's sensory overload from everything that's been happening in school. since your seeing it more as more things are happening to him. Rose<cmcintosh5cogeco (DOT) ca> wrote: Ah... The autism reality slap YUP! Had a few of those. I think it happens a lot with those of us who have high functioning children. -- Re: ( ) Re: MCcarthey 20/20- Long Rose, i agree with u there have been a few times i thought to myself maybe they were wrong to dx my son with asperger's but then reality slaps me upside the head and sometimes it is a real hard slap,Lol like the last few days, he is spinning and spinning and he has been repeating for like a week now who's turn is it? even when not playing a game, TSS spoke w/ me on it yesterday, she said she doesn't know what has caused the onset but noticing more and more symptoms as well, and he has in home therapy he sees,psychtrist, psychologist behavior specialist and is taking meds, so i just hope for the best for him in the end, but feel there isn't a cure for this, but doesn't change my feelings for him or others u know? SherryRose <beachbodytan2002 > wrote: , in our school, the teacher started a big mess by stating my son doesn't look auti stic and is progressing. even though he has documentation starting at a very young age to present stating he's autistic. they challenged that doctor. so the school did some testing and said he's not autistic. (all because they wanted to change his classification before going into middle school next September) I took him back to the neurologist and she did her testing and stated he is progressing but still autistic. higher functioning, but still on the autistic spectrum. the school then sent their findings to her, ( this went back and forth for months) and that's when she explained to the school that autism is neurological which effects the brain. since you can't give a child a new brain, you can't cure the child. she also said the same things Roxanna had posted when she was explaining how our kids can progress. but how can you fix the brain?. I hope I'm wording this right, you can redirect, you can teach, you can roll model to the point where the child won't stand out. and progress to the point where he/she can function in the real world, but that child would always be different. My son would always flap his hands like a bird whenever he's excited. I taught him not to do that and he found another appropriate thing to do with his hands that doesn't stand out, or an eye catcher that would make him a target in school. because he was taught not to flap his hands and drilled to look at the person he's speaking to, and other things that he was drilled to learn over the years, doesn't mean he's cured from autism because he was taught to act "normal"...He is very high functioning, but there is always something new that we have to work on. or something with social skills he's not getting, or prompting needed in school. I wish there was a cure, and if I believed that a Dan doctor can cure him instead of doing all that we are doing now. I would do what ever I can to get my son there. The reason why this really hit a spot with me, is because I believe there are so many people being mis lead about the cu re, and spending so much time with this instead of getting the interventions need for their child to progress. and like any parent, we all want to hear our child is cured when making progress. I do wish you the best for you and your child. And I pray your child continues to do well because our children do work hard with all the strategies we give them. and being though this is such a sensitive topic, I'm not responding to this topic anymore. I think our last hot topic was the vaccines? jennifer_thorson <jennifer_thorson > wrote: Yes. The children were diagnosed, then treated, and then re-evaluated. The chance of being re-evaluated by the same person seems not very likely to me. I don't know the answer to this part. > > > > She was on. It was the 2nd piece that they did. Not too > > > long. She said basically the same information as on her other > > > appearances. She is going to be on Larry King, also.> > > > > > > > ----------------------------------------------------------> > > --------> > > > Luggage? GPS? Comic books? > > > > Check out fitting gifts for grads at Search. > > > > > > > > > > > > > > > > > > > > ----------------------------------------------------------> > > ----------> > > > Take the Internet to Go: Go puts the Internet in your > > > pocket: mail, news, photos more.> > > >> > >> > > > > > > > > > > > > > ---------------------------------> > Be a better friend, newshound, and know-it-all with Mobile. > Try it now.> >> > > > > > > ---------------------------------> Never miss a thing. Make your homepage.> Looking for last minute shopping deals? Find them fast with Search. Be a better friend, newshound, and know-it-all with Mobile. Try it now. Be a better friend, newshound, and know-it-all with Mobile. Try it now. Never miss a thing. Make your homepage. Looking for last minute shopping deals? Find them fast with Search. Be a better friend, newshound, and know-it-all with Mobile. Try it now. Never miss a thing. Make your homepage. Looking for last minute shopping deals? Find them fast with Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2008 Report Share Posted February 27, 2008 , I have been kinda staying out of this whole discussion, b/c i don't have alot of info on the subject or this asperger's dx. but i am sure noone meant to make you feel excluded, i have only been in this group for like a month i think, my son has only been dx for a yr, and we are still trying to figure out what works and what doesn't, some days one thing works but the next it won't so, i cannot offer too much advice or anything in that nature.my stepson( my fiancee son) turned eight today, b/c we won't have him until next wk we had his b'day today, at about 7:30 i needed to go pickup my son's medicine, my son asked to go i was alittle surprised as they were eating and playing but let him go when we got into the car he said mommy i am sorry i wanted to leave the party but the noise was too much, i was so thrilled he knew he needed a break and asked me without a major meltdown, he has never done this before, but like i said we are in the beginning of things, this wk has been major symptomatic for him, next wk he maybe fine for a day or two, but for me this is reality and i get thru the best i can and keep looking for answer. I can't and quite honestly don't take everyones advice, but i do listen to others opinions and try to consider if i think it will work or not, for some it may for others it may not. so hopefully you will feel better about this group and continue to offer your advice and your opinions, we were made to all have the same views or even ideas, that would be so boring if we did,LOL anyway Smile i am sure noone intentionally wanted to hurt your feelings.Sherryjennifer_thorson <jennifer_thorson@...> wrote: All I want is to feel included. I am a little reactive because I am constantly dealing with having to explain. The only people who understand the consequences of her eating something she cannot tolerate are the teachers at her school. When she was eating gluten with occassional casein with enzymes, the teacher would ask on Monday if she had any changes to her diet when ever she ate cheese or had ice cream. They were the ones that suggested that we no longer give any casein in November and by January recommended she no longer have gluten. Since last spring when we first challenged the diet, they have had to have her removed from class numerous times. First we stopped allowing regular food at school and she improved. Then removed most casein and she improved. Then the removal of all casein. Before stopping the diet she was so much better than she is now. She had much better concentration and less sensory issues. I feel like we are starting over. So for me it is obvious that diet affects her. > > > > > > She was on. It was the 2nd piece that they did. Not too > > > > > long. She said basically the same information as on her > other > > > > > appearances. She is going to be on Larry King, also.> > > > > > > > > > > > ----------------------------------------------------------> > > > > --------> > > > > > Luggage? GPS? Comic books? > > > > > > Check out fitting gifts for grads at Search. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ----------------------------------------------------------> > > > > ----------> > > > > > Take the Internet to Go: Go puts the Internet in > your > > > > > pocket: mail, news, photos more.> > > > > >> > > > >> > > > > > > > > > > > > > > > > > > > > > > > > > > > ---------------------------------> > > > Be a better friend, newshound, and know-it-all with > > Mobile. > > > Try it now.> > > >> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ---------------------------------> > > Looking for last minute shopping deals? Find them fast with > > > Search.> > >> >> > > > > > > ---------------------------------> Be a better friend, newshound, and know-it-all with Mobile. Try it now.> Never miss a thing. Make your homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2008 Report Share Posted February 27, 2008 i read that too cindy and i guess that is why it hasn't bothered me before but i am getting concerned and also replacing shoes for him when there are other children just seems like another issue to deal with. Sherry Elgamal <cindyelgamal@...> wrote: Sherry – I think I read somewhere that a “strange” gait is common with our kids. I know they didn’t use the word strange, that is mine ‘cause I can’t remember where I read this or exactly what it said. Maybe someone on this list that is not having a senior moment can help with this. I do know that my son walks “funny”. When he runs it also looks different – don’t know if it is different or just because he is overweight. LOL. From: [mailto: ] On Behalf Of sherry burfordSent: Wednesday, February 27, 2008 4:33 PM Subject: Re: ( ) Re: MCcarthey 20/20- Long No Rose i had not but now that i realize he is doing that i am going to request that as well. he always did what we called high stepping where he walks like he is stepping over things that aren't thereand it is just a strange gait to me, but just figured that was him. SherryRose <beachbodytan2002 > wrote: Sherry, you son is experiencing so much for such a young child and for so long without any help from the school. But, I'm so glad for you and your son, with all your persistent hard work with getting the school to listen to you that they are finally going to do something and some testings. I can share with you, once they do set up a good strategy and 'real' goals for him, and a plan to stop the bullying. you will see an improvement and have such a relief. sometimes, our kids really can't explain " the, why are you doing that questions' because its hard for them or they don't have a description to describe it to you. He can't say I have so much I'm dealing with right now or I'm feeling so stressed, that's why I keep repeating myself. So saying - I don't know - is an answer. My son also walks a funny way and somehow puts holes in his sneakers on the bottom. I week after I buy his sneakers, they look so old. have you considered asking for a PT evaluation? Rosesherry burford <superchick0770 > wrote: Rose, i don't know why he saying it he seems really bothered by it ,and has even told me i don't know why i keep saying that.the spinning thing i thought too was a sensory overload,as his need for touching people, he has been tested on that issue though, but the school pschologist finally got a hold of me so we are on the start, i'll have her test that as well,so we can figure out how to elimenate some of these issues, also he has been walking w/ one foot kind of turned to the side almost as if walking on the side of his foot, when i say something he tries to walk right but as soon as it is off his mind right back again,i just bought him new shoes i can't keep replacing them but what should i do, why would he be doing this.?SherryRose <beachbodytan2002 > wrote: Sherry, I must of missed that post. it slipped by somehow. when you said your son is now repeating that same thing over and over. like 'who's turn is it' even when not playing a game. When does he do that ?? and why ?? my son does that EXACT thing over and over. he's into saying, do you like mashed bananas? he loves the way it sounds, and loves annoying everybody with that question. and the more the little stinker gets THAT response, the more he does it. Like, I'm on the phone, really into the conversation with that person, My son would be saying Mom !!!, Mom !!! MOMMMMM.. I'll say hold on and say WHAT !. they he'll say: do you like mashed bananas? and walk away. BUT as annoying as that is, I think he really had something he felt was important to say or ask me but forgot by the time I asked the person to hold on and say what. so he filled in the blank with: do you like mashed bananas ( which no one eats). Then when his sweet loving sister is annoying to him. he annoys her back by calling her. and when she finally goes to him, he says in his sweet voice. do you like mashed bananas? she gets so mad at him. so each time she pushes his buttons, he remembers how much she hates when he says that, and he will say it again and again. do you like mashed bananas?... as for the spinning, is why I don't let my son push a wagon in the supermarket, he will spin with it. but in your case, it can be your son's sensory overload from everything that's been happening in school. since your seeing it more as more things are happening to him. Rose<cmcintosh5cogeco (DOT) ca> wrote: Ah... The autism reality slap YUP! Had a few of those. I think it happens a lot with those of us who have high functioning children. -- Re: ( ) Re: MCcarthey 20/20- Long Rose, i agree with u there have been a few times i thought to myself maybe they were wrong to dx my son with asperger's but then reality slaps me upside the head and sometimes it is a real hard slap,Lol like the last few days, he is spinning and spinning and he has been repeating for like a week now who's turn is it? even when not playing a game, TSS spoke w/ me on it yesterday, she said she doesn't know what has caused the onset but noticing more and more symptoms as well, and he has in home therapy he sees,psychtrist, psychologist behavior specialist and is taking meds, so i just hope for the best for him in the end, but feel there isn't a cure for this, but doesn't change my feelings for him or others u know? SherryRose <beachbodytan2002 > wrote: , in our school, the teacher started a big mess by stating my son doesn't look auti stic and is progressing. even though he has documentation starting at a very young age to present stating he's autistic. they challenged that doctor. so the school did some testing and said he's not autistic. (all because they wanted to change his classification before going into middle school next September) I took him back to the neurologist and she did her testing and stated he is progressing but still autistic. higher functioning, but still on the autistic spectrum. the school then sent their findings to her, ( this went back and forth for months) and that's when she explained to the school that autism is neurological which effects the brain. since you can't give a child a new brain, you can't cure the child. she also said the same things Roxanna had posted when she was explaining how our kids can progress. but how can you fix the brain?. I hope I'm wording this right, you can redirect, you can teach, you can roll model to the point where the child won't stand out. and progress to the point where he/she can function in the real world, but that child would always be different. My son would always flap his hands like a bird whenever he's excited. I taught him not to do that and he found another appropriate thing to do with his hands that doesn't stand out, or an eye catcher that would make him a target in school. because he was taught not to flap his hands and drilled to look at the person he's speaking to, and other things that he was drilled to learn over the years, doesn't mean he's cured from autism because he was taught to act "normal"...He is very high functioning, but there is always something new that we have to work on. or something with social skills he's not getting, or prompting needed in school. I wish there was a cure, and if I believed that a Dan doctor can cure him instead of doing all that we are doing now. I would do what ever I can to get my son there. The reason why this really hit a spot with me, is because I believe there are so many people being mis lead about the cu re, and spending so much time with this instead of getting the interventions need for their child to progress. and like any parent, we all want to hear our child is cured when making progress. I do wish you the best for you and your child. And I pray your child continues to do well because our children do work hard with all the strategies we give them. and being though this is such a sensitive topic, I'm not responding to this topic anymore. I think our last hot topic was the vaccines? jennifer_thorson <jennifer_thorson > wrote: Yes. The children were diagnosed, then treated, and then re-evaluated. The chance of being re-evaluated by the same person seems not very likely to me. I don't know the answer to this part. > > > > She was on. It was the 2nd piece that they did. Not too > > > long. She said basically the same information as on her other > > > appearances. She is going to be on Larry King, also.> > > > > > > > ----------------------------------------------------------> > > --------> > > > Luggage? GPS? Comic books? > > > > Check out fitting gifts for grads at Search. > > > > > > > > > > > > > > > > > > > > ----------------------------------------------------------> > > ----------> > > > Take the Internet to Go: Go puts the Internet in your > > > pocket: mail, news, photos more.> > > >> > >> > > > > > > > > > > > > > ---------------------------------> > Be a better friend, newshound, and know-it-all with Mobile. > Try it now.> >> > > > > > > ---------------------------------> Never miss a thing. Make your homepage.> Looking for last minute shopping deals? Find them fast with Search. Be a better friend, newshound, and know-it-all with Mobile. Try it now. Be a better friend, newshound, and know-it-all with Mobile. Try it now. Never miss a thing. Make your homepage. Looking for last minute shopping deals? Find them fast with Search. Looking for last minute shopping deals? Find them fast with Search. Looking for last minute shopping deals? Find them fast with Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2008 Report Share Posted February 27, 2008 I think it's awesome that you found out that going GFCF did wonders. What things did you see for the better? What were the "bad" things like before? I'm glad you talk about what worked for your daughter. I think we're all glad. The major thing that has helped us, is pulling our son out of school. To each his own, I guess. I think people get so heated because we all want so badly for our kids to NOT have AS, but yet,,,,,we love our kids and find that for most of our lives, we are trying to make others SEE them for who they are and we are advocating for them CONSTANTLY. When we hear that something either works or cures or whatever,,,,,,,we are either interested, not interested or totally disagree. I think we all have to be careful when we disagree with someone else who KNOWS it has worked for them. Sure,,,,there may be other factors involved,,,,,but for the person,,,,,it worked. We should be happy for them and question nicely, if we feel the need to do so. Maybe start a new topic asking for different views on it,,,,,,,but for the one who said it worked,,,,,they should be allowed to say it without feeling like they're being cornered. Again,,,,,I don't think it was intentional,,,,,,,,,,I think we just have lots of emotion going. Robinjennifer_thorson <jennifer_thorson@...> wrote: All I want is to feel included. I am a little reactive because I am constantly dealing with having to explain. The only people who understand the consequences of her eating something she cannot tolerate are the teachers at her school. When she was eating gluten with occassional casein with enzymes, the teacher would ask on Monday if she had any changes to her diet when ever she ate cheese or had ice cream. They were the ones that suggested that we no longer give any casein in November and by January recommended she no longer have gluten. Since last spring when we first challenged the diet, they have had to have her removed from class numerous times. First we stopped allowing regular food at school and she improved. Then removed most casein and she improved. Then the removal of all casein. Before stopping the diet she was so much better than she is now. She had much better concentration and less sensory issues. I feel like we are starting over. So for me it is obvious that diet affects her. > > > > > > She was on. It was the 2nd piece that they did. Not too > > > > > long. She said basically the same information as on her > other > > > > > appearances. She is going to be on Larry King, also.> > > > > > > > > > > > ----------------------------------------------------------> > > > > --------> > > > > > Luggage? GPS? Comic books? > > > > > > Check out fitting gifts for grads at Search. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ----------------------------------------------------------> > > > > ----------> > > > > > Take the Internet to Go: Go puts the Internet in > your > > > > > pocket: mail, news, photos more.> > > > > >> > > > >> > > > > > > > > > > > > > > > > > > > > > > > > > > > ---------------------------------> > > > Be a better friend, newshound, and know-it-all with > > Mobile. > > > Try it now.> > > >> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ---------------------------------> > > Looking for last minute shopping deals? Find them fast with > > > Search.> > >> >> > > > > > > ---------------------------------> Be a better friend, newshound, and know-it-all with Mobile. Try it now.> Be a better friend, newshound, and know-it-all with Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2008 Report Share Posted February 27, 2008 Fabulously stated, Robin! Re: ( ) Re: MCcarthey 20/20- Long I think it's awesome that you found out that going GFCF did wonders. What things did you see for the better? What were the "bad" things like before? I'm glad you talk about what worked for your daughter. I think we're all glad. The major thing that has helped us, is pulling our son out of school. To each his own, I guess. I think people get so heated because we all want so badly for our kids to NOT have AS, but yet,,,,,we love our kids and find that for most of our lives, we are trying to make others SEE them for who they are and we are advocating for them CONSTANTLY. When we hear that something either works or cures or whatever,,,, ,,,we are either interested, not interested or totally disagree. I think we all have to be careful when we disagree with someone else who KNOWS it has worked for them. Sure,,,,there may be other factors involved,,,, ,but for the person,,,,,it worked. We should be happy for them and question nicely, if we feel the need to do so. Maybe start a new topic asking for different views on it,,,,,,,but for the one who said it worked,,,,,they should be allowed to say it without feeling like they're being cornered. Again,,,,,I don't think it was intentional, ,,,,,,,,, I think we just have lots of emotion going. Robinjennifer_thorson <jennifer_thorson> wrote: All I want is to feel included. I am a little reactive because I am constantly dealing with having to explain. The only people who understand the consequences of her eating something she cannot tolerate are the teachers at her school. When she was eating gluten with occassional casein with enzymes, the teacher would ask on Monday if she had any changes to her diet when ever she ate cheese or had ice cream. They were the ones that suggested that we no longer give any casein in November and by January recommended she no longer have gluten. Since last spring when we first challenged the diet, they have had to have her removed from class numerous times. First we stopped allowing regular food at school and she improved. Then removed most casein and she improved. Then the removal of all casein. Before stopping the diet she was so much better than she is now. She had much better concentration and less sensory issues. I feel like we are starting over. So for me it is obvious that diet affects her. > > > > > > She was on. It was the 2nd piece that they did. Not too > > > > > long. She said basically the same information as on her > other > > > > > appearances. She is going to be on Larry King, also.> > > > > > > > > > > > ------------ --------- --------- --------- --------- --------- -> > > > > --------> > > > > > Luggage? GPS? Comic books? > > > > > > Check out fitting gifts for grads at Search. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ------------ --------- --------- --------- --------- --------- -> > > > > ----------> > > > > > Take the Internet to Go: Go puts the Internet in > your > > > > > pocket: mail, news, photos more.> > > > > >> > > > >> > > > > > > > > > > > > > > > > > > > > > > > > > > > ------------ --------- --------- ---> > > > Be a better friend, newshound, and know-it-all with > > Mobile. > > > Try it now.> > > >> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ------------ --------- --------- ---> > > Looking for last minute shopping deals? Find them fast with > > > Search.> > >> >> > > > > > > ------------ --------- --------- ---> Be a better friend, newshound, and know-it-all with Mobile. Try it now.> Be a better friend, newshound, and know-it-all with Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2008 Report Share Posted February 28, 2008 Google.. "TOE Walking and Autism together and you get tons of info. There is a connection. http://childbrain.com/pddq5.shtml -- Re: ( ) Re: MCcarthey 20/20- Long Rose, i agree with u there have been a few times i thought to myself maybe they were wrong to dx my son with asperger's but then reality slaps me upside the head and sometimes it is a real hard slap,Lol like the last few days, he is spinning and spinning and he has been repeating for like a week now who's turn is it? even when not pl aying a game, TSS spoke w/ me on it yesterday, she said she doesn't know what has caused the onset but noticing more and more symptoms as well, and he has in home therapy he sees,psychtrist, psychologist behavior specialist and is taking meds, so i just hope for the best for him in the end, but feel there isn't a cure for this, but doesn't change my feelings for him or others u know? SherryRose <beachbodytan2002 > wrote: , in our school, the teacher started a big mess by stating my son doesn't look auti stic and is progressing. even though he has documentation starting at a very young age to present stating he's autistic. they challenged that doctor. so the school did some testing and said he's not autistic. (all because they wanted to change his classification before going into middle school next September) I took him back to the neurologist and she did her testing and stated he is progressing but still autistic. higher functioning, but still on the autistic spectrum. the school then sent their findings to her, ( this went back and forth for months) and that's when she explained to the school that autism is neurological which effects the brain. since you can't give a child a new brain, you can't cure the child. she also said the same things Roxanna had posted when she was explaining how our kids can progress. but how can you fix the brain?. I hope I'm wording this right, you can redirect, you can teach, you can roll model to the point where the child won't stand out. and progress to the point where he/she can function in the real world, but that child would always be different. My son would always flap his hands like a bird whenever he's excited. I taught him not to do that and he found another appropriate thing to do with his h ands that doesn't stand out, or an eye catcher that would make him a target in school. because he was taught not to flap his hands and drilled to look at the person he's speaking to, and other things that he was drilled to learn over the years, doesn't mean he's cured from autism because he was taught to act "normal"...He is very high functioning, but there is always something new that we have to work on. or something with social skills he's not getting, or prompting needed in school. I wish there was a cure, and if I believed that a Dan doctor can cure him instead of doing all that we are doing now. I would do what ever I can to get my son there. The reason why this really hit a spot with me, is because I believe there are so many people being mis lead about the cu re, and spending so much time with this instead of getting the interventions need for their child to progress. and like any parent, we all want to hear our child is cu red when making progress. I do wish you the best for you and your child. And I pray your child continues to do well because our children do work hard with all the strategies we give them. and being though this is such a sensitive topic, I'm not responding to this topic anymore. I think our last hot topic was the vaccines? jennifer_thorson <jennifer_thorson > wrote: Yes. The children were diagnosed, then treated, and then re-evaluated. The chance of being re-evaluated by the same person seems not very likely to me. I don't know the answer to this part. > > > > She was on. It was the 2nd piece that they did. Not too > > > long. She said basically the same information as on her other > > > appearances. She is going to be on Larry King, also.> > > > > > > > ----------------------------------------------------------> > > --------> > > > Luggage? GPS? Comic b ooks? > > > > Check out fitting gifts for grads at Search. > > > > > > > > > > > > > > > > > > > > ----------------------------------------------------------> > > ----------> > > > Take the Internet to Go: Go puts the Internet in your > > > pocket: mail, news, photos more.> > > >> > >> > > > > > > > > > > > > > ---------------------------------> > Be a better friend, newshound, and know-it-all with Mobile. > Try it now.> >> > > > > > > ---------------------------------> Never miss a thing. Make your homepage.> Looking for last minute shopping deals? Find them fast with Search. Be a better friend, newshound, and know-it-all with Mobile. Try it now. Be a better friend, newshound, and know-it-all with Mobile. Try it now. Never miss a thing. Make your homepage. Looking for last minute shopping deals? Find them fast with Search. Looking for last minute shopping deals? Find them fast with Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2008 Report Share Posted February 28, 2008 , I have read in the past a few people that have posted about the gluten and casein diet. they have shared sites to order their foods and recipes as well treats. Maybe someone on this site today also does that diet that they can share experiences and relate with yours. maybe change the subject to who is on the gluten and casein diets? Something like that. We aren't doing that diet but glad you found something that works with your daughter Rosejennifer_thorson <jennifer_thorson@...> wrote: All I want is to feel included. I am a little reactive because I am constantly dealing with having to explain. The only people who understand the consequences of her eating something she cannot tolerate are the teachers at her school. When she was eating gluten with occassional casein with enzymes, the teacher would ask on Monday if she had any changes to her diet when ever she ate cheese or had ice cream. They were the ones that suggested that we no longer give any casein in November and by January recommended she no longer have gluten. Since last spring when we first challenged the diet, they have had to have her removed from class numerous times. First we stopped allowing regular food at school and she improved. Then removed most casein and she improved. Then the removal of all casein. Before stopping the diet she was so much better than she is now. She had much better concentration and less sensory issues. I feel like we are starting over. So for me it is obvious that diet affects her. > > > > > > She was on. It was the 2nd piece that they did. Not too > > > > > long. She said basically the same information as on her > other > > > > > appearances. She is going to be on Larry King, also.> > > > > > > > > > > > ----------------------------------------------------------> > > > > --------> > > > > > Luggage? GPS? Comic books? > > > > > > Check out fitting gifts for grads at Search. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ----------------------------------------------------------> > > > > ----------> > > > > > Take the Internet to Go: Go puts the Internet in > your > > > > > pocket: mail, news, photos more.> > > > > >> > > > >> > > > > > > > > > > > > > > > > > > > > > > > > > > > ---------------------------------> > > > Be a better friend, newshound, and know-it-all with > > Mobile. > > > Try it now.> > > >> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ---------------------------------> > > Looking for last minute shopping deals? Find them fast with > > > Search.> > >> >> > > > > > > ---------------------------------> Be a better friend, newshound, and know-it-all with Mobile. Try it now.> Be a better friend, newshound, and know-it-all with Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2008 Report Share Posted February 28, 2008 I don't mean to make you feel bad. I just honestly don't believe in this stuff - it is nothing against you specifically at all. I would love to be supportive and tell you it works but I could not do that. If you've been here for two years, you know I have never been a fan of this stuff. If it works for you, then I am glad it is. I just don't see the theory overall. I think we were discussing this McCarthy lady and not you specifically. I'm not sure how you managed to become the focus of this except that you were trying to argue that McCarthy did mean to say "cure" and to defend her for saying it. Anytime you say "cure" in an autism forum, you are ripe for debate, that is for sure! But someone brought up an older email where I said I was sick of these hollywood people coming in and becoming experts overnight, yadda yadda yadda. It had less to do with her specific choice of therapy (althought that bothers me as well) but more to do with just tired of seeing her plastered everywhere when there is so much ahead of her, so much she doesn't know. If you believe it works, then you must know a lot of people do not believe it works already. So this can't be the first time you've been discussing it and had someone ask questions and say they don't believe it works. I know there are that specialize in this and you would probably get support for your choice if you joined one. And no! I don't mean to say you need to leave here. I am just saying that you would probably get support among a group of people who agree with what you are doing already and if you joined one of those in addition to groups you may already be in (like this one), you could freely discuss your choice and be supported in the way you feel you need. I've joined other over the years based on my specific needs at that time so I could learn from like-minded people who are practicing the same therapies I believe in and was doing myself. Here, you are welcome to say you disagree and provide reasons why. It works both ways and you are welcome to your POV. But for me personally, I can't agree or support this kind of therapy. I have a lot of questions and I don't feel it's not being supportive to question these things. I know some groups are always "positive" and everything is wonderful and nobody can ever disagree. I am always the one who asks, "Wait a minute, that doesn't make sense...." and then people think I'm being mean because I'm "not supportive." I always state the obvious (to me) and it isn't that i personally am trying to pick on someone. I just think outloud sometimes. I think being supportive is more than just saying "wonderful" to everything no matter what. I think we process what we know, we provide information that we feel is based on fact, we give our experiences. This is how I feel I can be supportive, even if I disagree with someone. We did ABA with my now 11 yo and I took a lot of heat from people over that. It is finally becoming more mainstream but years ago, it was a more controversial topic in the autism world. I think we have to carefully study what we feel is a good idea or therapy or way to deal with things. I don't mind people asking questions and there are people who disagree with ABA - that is ok. You should realize a lot of people will not agree over this subject and that's going to be ok. You do what works for you and you have to learn to take criticism and use it to further your study into this. Take what is being asked and ask yourself that question. How do you personally see it? How do you explain it? I don't mean here on this group - I just mean for yourself. I think it is a good way to make sure you agree with your choices and maybe you find you disagree and try something else instead. I remember when we were trying to get ABA in school for our ds, they had tons of scare stories to throw at me. I didn't know all the answers either! So sometimes I left meetings wondering, "What if they are right?" So I would come home and study that subject/topic/concern. And I would make my own conclusions from that. Next time it would get brought up, I would have my opinion ready and feel more confident in my choices because they did this. So it's not always a bad thing to hear criticisms of a therapy if you use it to learn more about your choices. It can really cement your decisions and make you more confident in what you've decided to do. RoxannaAutism Happens ( ) Re: MCcarthey 20/20- Long The reason I feel attacked is because I come here for support and feel like this group is not supporting me currently. I explain what is working with my child and no one believes me? Am I hallucinating? Or does my daughter regress when she has gluten and casein even with enzymes? For my daughter diet is important. Not one person said anything to support me. Over the years people have said don't leave the forum over arguments, we are here for our children. I feel like I did in high school, the outcast. If things I say are not appropriate for this forum than I will leave. I understand the questions, but why can no one give me the benefit of the doubt about my own daughter? I am not telling anyone to do anything with their children. I think we all know how it feels when friends and family don't understand our child. I am on the forums to feel included, not like the outsider. I felt awful reading the statements yesterday. I am almost in tears now. > > > > > She was on. It was the 2nd piece that they did. Not too > > > > long. She said basically the same information as on her other > > > > appearances. She is going to be on Larry King, also.> > > > > > > > > > ----------------------------------------------------------> > > > --------> > > > > Luggage? GPS? Comic books? > > > > > Check out fitting gifts for grads at Search. > > > > > > > > > > > > > > > > > > > > > > > > > ----------------------------------------------------------> > > > ----------> > > > > Take the Internet to Go: Go puts the Internet in your > > > > pocket: mail, news, photos more.> > > > >> > > >> > > > > > > > > > > > > > > > > > > > > ---------------------------------> > > Be a better friend, newshound, and know-it-all with > Mobile. > > Try it now.> > >> > > > > > > > > > > > > > > > > > > > ---------------------------------> > Looking for last minute shopping deals? Find them fast with > Search.> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2008 Report Share Posted February 28, 2008 I think I kind of understand where you are coming from ... I have to do alot of explaining to others about my kids ( I'm sure most of us do) ... people saying just beat their a$$ and they won't be disrespectful or fill in the _____ . so on top of explaining about aspergers and all that entails you have to explain and try to get people to understand that and the diet... if it works for your child I say go for it. I would've tried it with my kids had they been diagnosed younger... it's hard to get 19 yos to do anything they don't want to.. and I'm sorry you don't feel included, especially on a SUPPORT group for aspergers... I understand that too... it's bad enough not to be "included" on the outside .. you certainly shouldn't have to feel that way here. I think alot of the debate is going to continue for a looong while...but (and I'm sorry for rambling.. I'm not that great with words) if the diet works for your child I don't see how that is any different than trying a sensory diet, or behavior therapy or the MANY other things we as parents try to help our kids fit in just a little better... again I'm so sorry you are feeling left out and I hope dearly that that changes... Toni ( ) Re: MCcarthey 20/20- Long All I want is to feel included. I am a little reactive because I am constantly dealing with having to explain. The only people who understand the consequences of her eating something she cannot tolerate are the teachers at her school. When she was eating gluten with occassional casein with enzymes, the teacher would ask on Monday if she had any changes to her diet when ever she ate cheese or had ice cream. They were the ones that suggested that we no longer give any casein in November and by January recommended she no longer have gluten. Since last spring when we first challenged the diet, they have had to have her removed from class numerous times. First we stopped allowing regular food at school and she improved. Then removed most casein and she improved. Then the removal of all casein. Before stopping the diet she was so much better than she is now. She had much better concentration and less sensory issues. I feel like we are starting over. So for me it is obvious that diet affects her. > > > > > > She was on. It was the 2nd piece that they did. Not too > > > > > long. She said basically the same information as on her > other > > > > > appearances. She is going to be on Larry King, also.> > > > > > > > > > > > ----------------------------------------------------------> > > > > --------> > > > > > Luggage? GPS? Comic books? > > > > > > Check out fitting gifts for grads at Search. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ----------------------------------------------------------> > > > > ----------> > > > > > Take the Internet to Go: Go puts the Internet in > your > > > > > pocket: mail, news, photos more.> > > > > >> > > > >> > > > > > > > > > > > > > > > > > > > > > > > > > > > ---------------------------------> > > > Be a better friend, newshound, and know-it-all with > > Mobile. > > > Try it now.> > > >> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ---------------------------------> > > Looking for last minute shopping deals? Find them fast with > > > Search.> > >> >> > > > > > > ---------------------------------> Be a better friend, newshound, and know-it-all with Mobile. Try it now.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2008 Report Share Posted February 28, 2008 Thanks i will,Sherry<cmcintosh5@...> wrote: Google.. "TOE Walking and Autism together and you get tons of info. There is a connection. http://childbrain.com/pddq5.shtml -- Re: ( ) Re: MCcarthey 20/20- Long Rose, i agree with u there have been a few times i thought to myself maybe they were wrong to dx my son with asperger's but then reality slaps me upside the head and sometimes it is a real hard slap,Lol like the last few days, he is spinning and spinning and he has been repeating for like a week now who's turn is it? even when not pl aying a game, TSS spoke w/ me on it yesterday, she said she doesn't know what has caused the onset but noticing more and more symptoms as well, and he has in home therapy he sees,psychtrist, psychologist behavior specialist and is taking meds, so i just hope for the best for him in the end, but feel there isn't a cure for this, but doesn't change my feelings for him or others u know? SherryRose <beachbodytan2002 > wrote: , in our school, the teacher started a big mess by stating my son doesn't look auti stic and is progressing. even though he has documentation starting at a very young age to present stating he's autistic. they challenged that doctor. so the school did some testing and said he's not autistic. (all because they wanted to change his classification before going into middle school next September) I took him back to the neurologist and she did her testing and stated he is progressing but still autistic. higher functioning, but still on the autistic spectrum. the school then sent their findings to her, ( this went back and forth for months) and that's when she explained to the school that autism is neurological which effects the brain. since you can't give a child a new brain, you can't cure the child. she also said the same things Roxanna had posted when she was explaining how our kids can progress. but how can you fix the brain?. I hope I'm wording this right, you can redirect, you can teach, you can roll model to the point where the child won't stand out. and progress to the point where he/she can function in the real world, but that child would always be different. My son would always flap his hands like a bird whenever he's excited. I taught him not to do that and he found another appropriate thing to do with his h ands that doesn't stand out, or an eye catcher that would make him a target in school. because he was taught not to flap his hands and drilled to look at the person he's speaking to, and other things that he was drilled to learn over the years, doesn't mean he's cured from autism because he was taught to act "normal"...He is very high functioning, but there is always something new that we have to work on. or something with social skills he's not getting, or prompting needed in school. I wish there was a cure, and if I believed that a Dan doctor can cure him instead of doing all that we are doing now. I would do what ever I can to get my son there. The reason why this really hit a spot with me, is because I believe there are so many people being mis lead about the cu re, and spending so much time with this instead of getting the interventions need for their child to progress. and like any parent, we all want to hear our child is cu red when making progress. I do wish you the best for you and your child. And I pray your child continues to do well because our children do work hard with all the strategies we give them. and being though this is such a sensitive topic, I'm not responding to this topic anymore. I think our last hot topic was the vaccines? jennifer_thorson <jennifer_thorson > wrote: Yes. The children were diagnosed, then treated, and then re-evaluated. The chance of being re-evaluated by the same person seems not very likely to me. I don't know the answer to this part. > > > > She was on. It was the 2nd piece that they did. Not too > > > long. She said basically the same information as on her other > > > appearances. She is going to be on Larry King, also.> > > > > > > > ----------------------------------------------------------> > > --------> > > > Luggage? GPS? Comic b ooks? > > > > Check out fitting gifts for grads at Search. > > > > > > > > > > > > > > > > > > > > ----------------------------------------------------------> > > ----------> > > > Take the Internet to Go: Go puts the Internet in your > > > pocket: mail, news, photos more.> > > >> > >> > > > > > > > > > > > > > ---------------------------------> > Be a better friend, newshound, and know-it-all with Mobile. > Try it now.> >> > > > > > > ---------------------------------> Never miss a thing. Make your homepage.> Looking for last minute shopping deals? Find them fast with Search. Be a better friend, newshound, and know-it-all with Mobile. Try it now. Be a better friend, newshound, and know-it-all with Mobile. Try it now. Never miss a thing. Make your homepage. Looking for last minute shopping deals? Find them fast with Search. Looking for last minute shopping deals? Find them fast with Search. Never miss a thing. Make your homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2008 Report Share Posted February 28, 2008 I should have said that differently than I did, you are right it came out badly. I did not mean it to sound that way as in you should leave. It is something that I have wondered about people (not you specifically) who are in these forums but they say that they have cured autism or decreased the problems to such a degree through DAN protocol that you could not tell their kid had a dx at all. I then want to ask them, "So why are you hanging out here????" You know, if my kid were cured, I'd be filling my time with all those fun things I dream that NT people get to do. <g> lol. I do think diet can affect behavior. If a kid is allergic or sensitive to milk, for instance, it can cause problems with behavior. I am sensitive to milk and so is my dd. She isn't autistic. But even as a baby, we had to get soy for her and she was very colicky. Today she is 16 yo and a vegetarian so who knows. lol. I think we are not always talking about the same things here - what one person is doing might not be the whole thing - the "whole DAN protocol package." But when I am talking about the whole DAN thing, I am thinking the whole pee in a cup for a week, get the joint pulls and touches to remove allergies, take tons of vitamins and minerals based on hair samples, chelation - the whole package. Then I saw a post you wrote where you talked about just eliminating milk/dairy and I thought - maybe we are not even talking about the same thing entirely. I believe diet can affect us but not to the degree that it causes autism. Obviously, if a person has an allergy, I think it could really cause major problems. I don't think changing their diet fixes autism or cures it. If anyone is sensitive to a food, changing the diet will make them do better overall. But I don't feel it is so dramatic as a cure for autism. Maybe it's a "chicken or egg" discussion most times. I sometimes think they have the digestion problems first and not that the problems are caused by foods they are eating. So many times it is just assumed that the kid has autism so they have the leaky gut and we need to chelate and give these pills and....on and on. What if the food didn't cause the digestion problems. Maybe it's not cause/effect at work sometimes? I would like to change the equation around sometimes and have other possibilities studied instead of just assuming it is this specific protocol. I think we need to look at all causes for these problems because it could be that they have another disorder going on and not just needing vitamins or special diets to fix it. And sometimes the way some of the parents talk who do all the protocol - it can make me dizzy and they sound dizzy. I've gone to IEP meetings where they have all sat around and said, "Yep, he ate french fries again, didn't he." Nobody had to look at the behavior or figure out if the kid had any other problems going on aside from having major autism and being non-verbal (lol) - it was always blame the french fry and meeting is over. whoosh, solved that problem! <g> One mom had her pet die and she thought her kid had hit the pet, causing seizures to the pet, causing the pet to die. So for days she said, "It was the red popcicle." She blamed giving him a red popcicle the week before for him hitting the pet and the pet dying. ACK! (Turns out, the pet licked up some paint in the bathroom they were remodeling. So that red popcicle did nothing at all.!) THAT is the kind of stuff that makes me crazy. RoxannaAutism Happens ( ) Re: MCcarthey 20/20- Long When you said "Why are you here if your child is cured?" I felt like you meant I should not be here. I am a member of other forums that discuss diet/biomedical issues but they do not talk much about school. I have always found this to be the place to ask questions and learn about school related issues. You and others have been doing this for a long time and I value your suggestions. Regarding the diet I was a skeptic and my husband was the biggest skeptic. We have challenged the diet so many times because he did not believe. For me I can see how GI issues can create symptoms or magnify symptoms. Do you believe that food allergies/intolerances affect behavior? Pain decreases attention span and can put someone in a bad mood. Some try the diet with no symptoms and have no result. This makes sense to me. My daughter has always had GI problems. For me it makes sense that she is sensative to certain foods. Removing these foods removed some behavior due to pain, being gassy,and overstimulated. Whether it affects her behavior or not, her pediatrician supports it due to the fact that she gained significant weight after starting the diet, after losing a pound over 2 years.The problem with anything in written form is that we cannot see facial expressions or hear tone of voice. Questions asked in a non-threatening way are fine. Reading the questions without seeing/hearing the writer appeared confrontational. You brought up a good point earlier about the tape you watched of a DAN Dr. moving energy. That is more like Eastern Medicine which does not have scientific data. Some swear by it but many do not. For me I would not have engaged in that or detox through the feet into water. I also agree that parents that rely on the DAN Dr to cure their child without any hard work on their end is bad for the child. I started behavior modification when she was 3 and have worked with the ST/OT. I am an OT myself so I have spent a lot of time on therapy. I took her to ballet to address gross motor delay, attention span, and socialization. She made a lot of progress prior to starting the diet. She was in special ed and received wonderful instruction. The diet was one of many treatments. The diet allowed her to participate more fully in her treatments to meet her goals.I don't need you to believe in the diet. Just support me with the issues I still face. I was just reading back to a post you wrote about getting an IEE for my son. I appreciate all the advice you give. My daughter is doing so much better, but I know I still have a lot to face. >> I don't mean to make you feel bad. I just honestly don't believe in this stuff - it is nothing against you specifically at all. I would love to be supportive and tell you it works but I could not do that. If you've been here for two years, you know I have never been a fan of this stuff. If it works for you, then I am glad it is. I just don't see the theory overall. I think we were discussing this McCarthy lady and not you specifically. I'm not sure how you managed to become the focus of this except that you were trying to argue that McCarthy did mean to say "cure" and to defend her for saying it. Anytime you say "cure" in an autism forum, you are ripe for debate, that is for sure! But someone brought up an older email where I said I was sick of these hollywood people coming in and becoming experts overnight, yadda yadda yadda. It had less to do with her specific choice of therapy (althought that bothers me as well) but more to do with just tired of seeing her plastered everywhere when there is so much ahead of her, so much she doesn't know.> > If you believe it works, then you must know a lot of people do not believe it works already. So this can't be the first time you've been discussing it and had someone ask questions and say they don't believe it works. I know there are that specialize in this and you would probably get support for your choice if you joined one. And no! I don't mean to say you need to leave here. I am just saying that you would probably get support among a group of people who agree with what you are doing already and if you joined one of those in addition to groups you may already be in (like this one), you could freely discuss your choice and be supported in the way you feel you need. I've joined other over the years based on my specific needs at that time so I could learn from like-minded people who are practicing the same therapies I believe in and was doing myself. > > Here, you are welcome to say you disagree and provide reasons why. It works both ways and you are welcome to your POV. But for me personally, I can't agree or support this kind of therapy. I have a lot of questions and I don't feel it's not being supportive to question these things. I know some groups are always "positive" and everything is wonderful and nobody can ever disagree. I am always the one who asks, "Wait a minute, that doesn't make sense...." and then people think I'm being mean because I'm "not supportive." I always state the obvious (to me) and it isn't that i personally am trying to pick on someone. I just think outloud sometimes. I think being supportive is more than just saying "wonderful" to everything no matter what. I think we process what we know, we provide information that we feel is based on fact, we give our experiences. This is how I feel I can be supportive, even if I disagree with someone. > > We did ABA with my now 11 yo and I took a lot of heat from people over that. It is finally becoming more mainstream but years ago, it was a more controversial topic in the autism world. I think we have to carefully study what we feel is a good idea or therapy or way to deal with things. I don't mind people asking questions and there are people who disagree with ABA - that is ok. You should realize a lot of people will not agree over this subject and that's going to be ok. You do what works for you and you have to learn to take criticism and use it to further your study into this. Take what is being asked and ask yourself that question. How do you personally see it? How do you explain it? I don't mean here on this group - I just mean for yourself. I think it is a good way to make sure you agree with your choices and maybe you find you disagree and try something else instead. I remember when we were trying to get ABA in school for our ds, they had tons of scare stories to throw at me. I didn't know all the answers either! So sometimes I left meetings wondering, "What if they are right?" So I would come home and study that subject/topic/concern. And I would make my own conclusions from that. Next time it would get brought up, I would have my opinion ready and feel more confident in my choices because they did this. So it's not always a bad thing to hear criticisms of a therapy if you use it to learn more about your choices. It can really cement your decisions and make you more confident in what you've decided to do.> > Roxanna> Autism Happens> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2008 Report Share Posted February 28, 2008 Roxana – I love your posts. You are so damn funny!!! I roared when I read your last paragraph. These types of people make me so crazy, too. From: [mailto: ] On Behalf Of Roxanna Sent: Thursday, February 28, 2008 4:03 PM Subject: Re: ( ) Re: MCcarthey 20/20- Long I should have said that differently than I did, you are right it came out badly. I did not mean it to sound that way as in you should leave. It is something that I have wondered about people (not you specifically) who are in these forums but they say that they have cured autism or decreased the problems to such a degree through DAN protocol that you could not tell their kid had a dx at all. I then want to ask them, " So why are you hanging out here???? " You know, if my kid were cured, I'd be filling my time with all those fun things I dream that NT people get to do. <g> lol. I do think diet can affect behavior. If a kid is allergic or sensitive to milk, for instance, it can cause problems with behavior. I am sensitive to milk and so is my dd. She isn't autistic. But even as a baby, we had to get soy for her and she was very colicky. Today she is 16 yo and a vegetarian so who knows. lol. I think we are not always talking about the same things here - what one person is doing might not be the whole thing - the " whole DAN protocol package. " But when I am talking about the whole DAN thing, I am thinking the whole pee in a cup for a week, get the joint pulls and touches to remove allergies, take tons of vitamins and minerals based on hair samples, chelation - the whole package. Then I saw a post you wrote where you talked about just eliminating milk/dairy and I thought - maybe we are not even talking about the same thing entirely. I believe diet can affect us but not to the degree that it causes autism. Obviously, if a person has an allergy, I think it could really cause major problems. I don't think changing their diet fixes autism or cures it. If anyone is sensitive to a food, changing the diet will make them do better overall. But I don't feel it is so dramatic as a cure for autism. Maybe it's a " chicken or egg " discussion most times. I sometimes think they have the digestion problems first and not that the problems are caused by foods they are eating. So many times it is just assumed that the kid has autism so they have the leaky gut and we need to chelate and give these pills and....on and on. What if the food didn't cause the digestion problems. Maybe it's not cause/effect at work sometimes? I would like to change the equation around sometimes and have other possibilities studied instead of just assuming it is this specific protocol. I think we need to look at all causes for these problems because it could be that they have another disorder going on and not just needing vitamins or special diets to fix it. And sometimes the way some of the parents talk who do all the protocol - it can make me dizzy and they sound dizzy. I've gone to IEP meetings where they have all sat around and said, " Yep, he ate french fries again, didn't he. " Nobody had to look at the behavior or figure out if the kid had any other problems going on aside from having major autism and being non-verbal (lol) - it was always blame the french fry and meeting is over. whoosh, solved that problem! <g> One mom had her pet die and she thought her kid had hit the pet, causing seizures to the pet, causing the pet to die. So for days she said, " It was the red popcicle. " She blamed giving him a red popcicle the week before for him hitting the pet and the pet dying. ACK! (Turns out, the pet licked up some paint in the bathroom they were remodeling. So that red popcicle did nothing at all.!) THAT is the kind of stuff that makes me crazy. Roxanna Autism Happens ----- Original Message ----- From: jennifer_thorson Sent: Thursday, February 28, 2008 4:13 PM Subject: ( ) Re: MCcarthey 20/20- Long When you said " Why are you here if your child is cured? " I felt like you meant I should not be here. I am a member of other forums that discuss diet/biomedical issues but they do not talk much about school. I have always found this to be the place to ask questions and learn about school related issues. You and others have been doing this for a long time and I value your suggestions. Regarding the diet I was a skeptic and my husband was the biggest skeptic. We have challenged the diet so many times because he did not believe. For me I can see how GI issues can create symptoms or magnify symptoms. Do you believe that food allergies/intolerances affect behavior? Pain decreases attention span and can put someone in a bad mood. Some try the diet with no symptoms and have no result. This makes sense to me. My daughter has always had GI problems. For me it makes sense that she is sensative to certain foods. Removing these foods removed some behavior due to pain, being gassy,and overstimulated. Whether it affects her behavior or not, her pediatrician supports it due to the fact that she gained significant weight after starting the diet, after losing a pound over 2 years. The problem with anything in written form is that we cannot see facial expressions or hear tone of voice. Questions asked in a non- threatening way are fine. Reading the questions without seeing/hearing the writer appeared confrontational. You brought up a good point earlier about the tape you watched of a DAN Dr. moving energy. That is more like Eastern Medicine which does not have scientific data. Some swear by it but many do not. For me I would not have engaged in that or detox through the feet into water. I also agree that parents that rely on the DAN Dr to cure their child without any hard work on their end is bad for the child. I started behavior modification when she was 3 and have worked with the ST/OT. I am an OT myself so I have spent a lot of time on therapy. I took her to ballet to address gross motor delay, attention span, and socialization. She made a lot of progress prior to starting the diet. She was in special ed and received wonderful instruction. The diet was one of many treatments. The diet allowed her to participate more fully in her treatments to meet her goals. I don't need you to believe in the diet. Just support me with the issues I still face. I was just reading back to a post you wrote about getting an IEE for my son. I appreciate all the advice you give. My daughter is doing so much better, but I know I still have a lot to face. > > I don't mean to make you feel bad. I just honestly don't believe in this stuff - it is nothing against you specifically at all. I would love to be supportive and tell you it works but I could not do that. If you've been here for two years, you know I have never been a fan of this stuff. If it works for you, then I am glad it is. I just don't see the theory overall. I think we were discussing this McCarthy lady and not you specifically. I'm not sure how you managed to become the focus of this except that you were trying to argue that McCarthy did mean to say " cure " and to defend her for saying it. Anytime you say " cure " in an autism forum, you are ripe for debate, that is for sure! But someone brought up an older email where I said I was sick of these hollywood people coming in and becoming experts overnight, yadda yadda yadda. It had less to do with her specific choice of therapy (althought that bothers me as well) but more to do with just tired of seeing her plastered everywhere when there is so much ahead of her, so much she doesn't know. > > If you believe it works, then you must know a lot of people do not believe it works already. So this can't be the first time you've been discussing it and had someone ask questions and say they don't believe it works. I know there are that specialize in this and you would probably get support for your choice if you joined one. And no! I don't mean to say you need to leave here. I am just saying that you would probably get support among a group of people who agree with what you are doing already and if you joined one of those in addition to groups you may already be in (like this one), you could freely discuss your choice and be supported in the way you feel you need. I've joined other over the years based on my specific needs at that time so I could learn from like-minded people who are practicing the same therapies I believe in and was doing myself. > > Here, you are welcome to say you disagree and provide reasons why. It works both ways and you are welcome to your POV. But for me personally, I can't agree or support this kind of therapy. I have a lot of questions and I don't feel it's not being supportive to question these things. I know some groups are always " positive " and everything is wonderful and nobody can ever disagree. I am always the one who asks, " Wait a minute, that doesn't make sense.... " and then people think I'm being mean because I'm " not supportive. " I always state the obvious (to me) and it isn't that i personally am trying to pick on someone. I just think outloud sometimes. I think being supportive is more than just saying " wonderful " to everything no matter what. I think we process what we know, we provide information that we feel is based on fact, we give our experiences. This is how I feel I can be supportive, even if I disagree with someone. > > We did ABA with my now 11 yo and I took a lot of heat from people over that. It is finally becoming more mainstream but years ago, it was a more controversial topic in the autism world. I think we have to carefully study what we feel is a good idea or therapy or way to deal with things. I don't mind people asking questions and there are people who disagree with ABA - that is ok. You should realize a lot of people will not agree over this subject and that's going to be ok. You do what works for you and you have to learn to take criticism and use it to further your study into this. Take what is being asked and ask yourself that question. How do you personally see it? How do you explain it? I don't mean here on this group - I just mean for yourself. I think it is a good way to make sure you agree with your choices and maybe you find you disagree and try something else instead. I remember when we were trying to get ABA in school for our ds, they had tons of scare stories to throw at me. I didn't know all the answers either! So sometimes I left meetings wondering, " What if they are right? " So I would come home and study that subject/topic/concern. And I would make my own conclusions from that. Next time it would get brought up, I would have my opinion ready and feel more confident in my choices because they did this. So it's not always a bad thing to hear criticisms of a therapy if you use it to learn more about your choices. It can really cement your decisions and make you more confident in what you've decided to do. > > Roxanna > Autism Happens > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2008 Report Share Posted February 28, 2008 I am one that is VERY happy it is working for your child. I have heard/read a bit about the diet but have yet to try it only because it seems very difficult for me to get everyone in his life to follow it. I don't think it is fair of anyone to say if it is working for your kid than why isn't everyone doing it. People have to understand that EVERYONE is different. Things work differently for everyone, even us adults. It would be like saying, "Why does Advil work for you and not me?" Everything affects everyone differently when it comes to every single thing we put in and on our bodies. It is absolutely fantastic that it is working for you child and I 100% support you!!jennifer_thorson <jennifer_thorson@...> wrote: The reason I feel attacked is because I come here for support and feel like this group is not supporting me currently. I explain what is working with my child and no one believes me? Am I hallucinating? Or does my daughter regress when she has gluten and casein even with enzymes? For my daughter diet is important. Not one person said anything to support me. Over the years people have said don't leave the forum over arguments, we are here for our children. I feel like I did in high school, the outcast. If things I say are not appropriate for this forum than I will leave. I understand the questions, but why can no one give me the benefit of the doubt about my own daughter? I am not telling anyone to do anything with their children. I think we all know how it feels when friends and family don't understand our child. I am on the forums to feel included, not like the outsider. I felt awful reading the statements yesterday. I am almost in tears now. > > > > > She was on. It was the 2nd piece that they did. Not too > > > > long. She said basically the same information as on her other > > > > appearances. She is going to be on Larry King, also.> > > > > > > > > > ----------------------------------------------------------> > > > --------> > > > > Luggage? GPS? Comic books? > > > > > Check out fitting gifts for grads at Search. > > > > > > > > > > > > > > > > > > > > > > > > > ----------------------------------------------------------> > > > ----------> > > > > Take the Internet to Go: Go puts the Internet in your > > > > pocket: mail, news, photos more.> > > > >> > > >> > > > > > > > > > > > > > > > > > > > > ---------------------------------> > > Be a better friend, newshound, and know-it-all with > Mobile. > > Try it now.> > >> > > > > > > > > > > > > > > > > > > > ---------------------------------> > Looking for last minute shopping deals? Find them fast with > Search.> >> Quote Link to comment Share on other sites More sharing options...
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