Re: Re: MCcarthey 20/20- Long

[Guest guest]

, That's wonderful!!! She really changed, didn't she? How long have you been doing it for? Robinjennifer_thorson <jennifer_thorson@...> wrote: My daughter was 4 when autism was first mentioned. I read a lot over the next couple of months and thought the gfcf diet was crazy. I am a logical person and it did not make scientific sense to me. But then later I read the main symptoms which were very picky kid, only eating dairy and bread/crakcers. At 4 she did not make eye

contact, did not talk in sentenses, had delayed echolalia for video and conversations on the bus. She talked in giberish very fast, spun in circles, side to side body writhing, a lot of GI problems (withholding, excessive gas, and burping), no sensation of cold, pain with warm water, hypersensativity to sound, no awareness of danger, and poor awareness of surroundings including children around her. Three days into the diet she made good eye contact and spoke in sentenses. She became interested in other children, sensory problems decreased, no spinning, digestive issues decreased, awareness of her surrounding increased, and she made friends. > > > > > > > She was on. It was the 2nd piece that they did. Not too > > > > > > long. She said basically the same information as on her > > other > > > > > > appearances. She is going to be on Larry King, also.> > > > > > > > > > > > > > ----------------------------------------------------------> > > > > > --------> > > > > > > Luggage? GPS?

Comic books? > > > > > > > Check out fitting gifts for grads at Search. > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ----------------------------------------------------------> > > > > > ----------> > > > > > > Take the Internet to Go: Go puts the Internet in > > your > > > > > > pocket: mail, news, photos more.> > > > > > >> > > > > >> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ---------------------------------> > > > > Be a better friend,

newshound, and know-it-all with > > > Mobile. > > > > Try it now.> > > > >> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ---------------------------------> > > > Looking for last minute shopping deals? Find them fast with > > > > > Search.> > > >> > >> > > > > > > > > > > > > > ---------------------------------> > Be a better friend, newshound, and know-it-all with Mobile. > Try it now.> >> > > > > > > ---------------------------------> Be a better

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Totally agree, everyone needs to be able share their stories and what works for them because it can help someone else. MacAllister <smacalli@...> wrote: I do think one common theme here is that what works for one child might not work for another child. I appreciate you sharing the diet is important for your daughter. It just helps me consider it more in the

future (it's something I've been looking into to help my son with his stomach issues.) The way I see it, if sounds/sights/overstimulation to external environment can cause my son's behavior to become difficult, why can't internal "overstimulation" from foods he's sensitive to do the same thing? I've never tried the diet "hard core" but I suspect it's my next step. I really want to help Dylan with his stomach issues. So, in summary, thanks for sharing your story with me. I know how you feel b/c timeouts saved my family and I swear by them. But when I shared it on here, the majority of posters didn't use them or agree with them or they don't work. I fought that battle for awhile, but then realized if someone reads my story, maybe they'll try it and it

will work and it will help their family. Maybe people will write me off. I don't recall many in agreement with the technique and it irritated me, but I let it go. I KNOW it works for us. To this day. Just like you know what works for your daughter. I also know you're looking for validation on here. There seems to be a few "hot button" topics that really bring out the passion in all of us! Please don't stop sharing though or we lose another side of the argument for and against a multitude of topics. ( ) Re: MCcarthey 20/20- Long The reason I feel attacked is because I come here for support and feel like this group is not supporting me currently. I explain what is working with my child and no one believes me? Am I hallucinating? Or does my daughter regress when she has gluten and casein even with enzymes? For my daughter diet is important. Not one person said anything to support me. Over the years people have said don't leave the forum over arguments, we are here for our children. I feel like I did in high school, the outcast. If things I say are not appropriate for this forum than I will leave.

I understand the questions, but why can no one give me the benefit of the doubt about my own daughter? I am not telling anyone to do anything with their children. I think we all know how it feels when friends and family don't understand our child. I am on the forums to feel included, not like the outsider. I felt awful reading the statements yesterday. I am almost in tears now. > > > > > She was on. It was the 2nd piece that they did. Not too > > > > long. She said basically the same information as on her other > > > > appearances. She is going to be on Larry King, also.> > > > > > > > > > ------------ --------- --------- --------- --------- --------- -> > > > --------> > > > > Luggage? GPS? Comic books? > > > > > Check out fitting

gifts for grads at Search. > > > > > > > > > > > > > > > > > > > > > > > > > ------------ --------- --------- --------- --------- --------- -> > > > ----------> > > > > Take the Internet to Go: Go puts the Internet in your > > > > pocket: mail, news, photos more.> > > > >> > > >> > > > > > > > > > > > > > > > > > > > > ------------ --------- --------- ---> > > Be a better friend, newshound, and know-it-all with > Mobile. > > Try it now.> > >> > > > > > > > > > > > > > > > > > > > ------------ --------- --------- ---> > Looking for

last minute shopping deals? Find them fast with > Search.> >>

[Guest guest]

LOL, funny was me trying to keep a straight face while this lady is talking about that red popcicle. LOL. You know me, not one to bite my tongue and here I was trying not to say a word or else it would all come tumbling out. LOL.

RoxannaAutism Happens

( ) Re: MCcarthey 20/20- Long

When you said "Why are you here if your child is cured?" I felt like you meant I should not be here. I am a member of other forums that discuss diet/biomedical issues but they do not talk much about school. I have always found this to be the place to ask questions and learn about school related issues. You and others have been doing this for a long time and I value your suggestions. Regarding the diet I was a skeptic and my husband was the biggest skeptic. We have challenged the diet so many times because he did not believe. For me I can see how GI issues can create symptoms or magnify symptoms. Do you believe that food allergies/intolerances affect behavior? Pain decreases attention span and can put someone in a bad mood. Some try the diet with no symptoms and have no result. This makes sense to me. My daughter has always had GI problems. For me it makes sense that she is sensative to certain foods. Removing these foods removed some behavior due to pain, being gassy,and overstimulated. Whether it affects her behavior or not, her pediatrician supports it due to the fact that she gained significant weight after starting the diet, after losing a pound over 2 years.The problem with anything in written form is that we cannot see facial expressions or hear tone of voice. Questions asked in a non-threatening way are fine. Reading the questions without seeing/hearing the writer appeared confrontational. You brought up a good point earlier about the tape you watched of a DAN Dr. moving energy. That is more like Eastern Medicine which does not have scientific data. Some swear by it but many do not. For me I would not have engaged in that or detox through the feet into water. I also agree that parents that rely on the DAN Dr to cure their child without any hard work on their end is bad for the child. I started behavior modification when she was 3 and have worked with the ST/OT. I am an OT myself so I have spent a lot of time on therapy. I took her to ballet to address gross motor delay, attention span, and socialization. She made a lot of progress prior to starting the diet. She was in special ed and received wonderful instruction. The diet was one of many treatments. The diet allowed her to participate more fully in her treatments to meet her goals.I don't need you to believe in the diet. Just support me with the issues I still face. I was just reading back to a post you wrote about getting an IEE for my son. I appreciate all the advice you give. My daughter is doing so much better, but I know I still have a lot to face. >> I don't mean to make you feel bad. I just honestly don't believe in this stuff - it is nothing against you specifically at all. I would love to be supportive and tell you it works but I could not do that. If you've been here for two years, you know I have never been a fan of this stuff. If it works for you, then I am glad it is. I just don't see the theory overall. I think we were discussing this McCarthy lady and not you specifically. I'm not sure how you managed to become the focus of this except that you were trying to argue that McCarthy did mean to say "cure" and to defend her for saying it. Anytime you say "cure" in an autism forum, you are ripe for debate, that is for sure! But someone brought up an older email where I said I was sick of these hollywood people coming in and becoming experts overnight, yadda yadda yadda. It had less to do with her specific choice of therapy (althought that bothers me as well) but more to do with just tired of seeing her plastered everywhere when there is so much ahead of her, so much she doesn't know.> > If you believe it works, then you must know a lot of people do not believe it works already. So this can't be the first time you've been discussing it and had someone ask questions and say they don't believe it works. I know there are that specialize in this and you would probably get support for your choice if you joined one. And no! I don't mean to say you need to leave here. I am just saying that you would probably get support among a group of people who agree with what you are doing already and if you joined one of those in addition to groups you may already be in (like this one), you could freely discuss your choice and be supported in the way you feel you need. I've joined other over the years based on my specific needs at that time so I could learn from like-minded people who are practicing the same therapies I believe in and was doing myself. > > Here, you are welcome to say you disagree and provide reasons why. It works both ways and you are welcome to your POV. But for me personally, I can't agree or support this kind of therapy. I have a lot of questions and I don't feel it's not being supportive to question these things. I know some groups are always "positive" and everything is wonderful and nobody can ever disagree. I am always the one who asks, "Wait a minute, that doesn't make sense...." and then people think I'm being mean because I'm "not supportive." I always state the obvious (to me) and it isn't that i personally am trying to pick on someone. I just think outloud sometimes. I think being supportive is more than just saying "wonderful" to everything no matter what. I think we process what we know, we provide information that we feel is based on fact, we give our experiences. This is how I feel I can be supportive, even if I disagree with someone. > > We did ABA with my now 11 yo and I took a lot of heat from people over that. It is finally becoming more mainstream but years ago, it was a more controversial topic in the autism world. I think we have to carefully study what we feel is a good idea or therapy or way to deal with things. I don't mind people asking questions and there are people who disagree with ABA - that is ok. You should realize a lot of people will not agree over this subject and that's going to be ok. You do what works for you and you have to learn to take criticism and use it to further your study into this. Take what is being asked and ask yourself that question. How do you personally see it? How do you explain it? I don't mean here on this group - I just mean for yourself. I think it is a good way to make sure you agree with your choices and maybe you find you disagree and try something else instead. I remember when we were trying to get ABA in school for our ds, they had tons of scare stories to throw at me. I didn't know all the answers either! So sometimes I left meetings wondering, "What if they are right?" So I would come home and study that subject/topic/concern. And I would make my own conclusions from that. Next time it would get brought up, I would have my opinion ready and feel more confident in my choices because they did this. So it's not always a bad thing to hear criticisms of a therapy if you use it to learn more about your choices. It can really cement your decisions and make you more confident in what you've decided to do.> > Roxanna> Autism Happens>

[Guest guest]

I wonder if the paint was red??? I am

still laughing my butt off over this.

From: [mailto: ] On Behalf Of Roxanna

Sent: Thursday, February 28, 2008

10:21 PM

Subject: Re: ( )

Re: MCcarthey 20/20- Long

LOL, funny was

me trying to keep a straight face while this lady is talking about that red

popcicle. LOL. You know me, not one to bite my tongue and here I

was trying not to say a word or else it would all come tumbling out.

LOL.

Roxanna

Autism Happens

( ) Re: MCcarthey

20/20- Long

When you

said " Why are you here if your child is cured? " I felt like

you meant I should not be here. I am a member of other forums that

discuss diet/biomedical issues but they do not talk much about

school. I have always found this to be the place to ask questions

and learn about school related issues. You and others have been

doing this for a long time and I value your suggestions. Regarding

the diet I was a skeptic and my husband was the biggest skeptic. We

have challenged the diet so many times because he did not believe.

For me I can see how GI issues can create symptoms or magnify

symptoms. Do you believe that food allergies/intolerances affect

behavior? Pain decreases attention span and can put someone in a bad

mood. Some try the diet with no symptoms and have no result. This

makes sense to me. My daughter has always had GI problems. For me

it makes sense that she is sensative to certain foods. Removing

these foods removed some behavior due to pain, being gassy,and

overstimulated. Whether it affects her behavior or not, her

pediatrician supports it due to the fact that she gained significant

weight after starting the diet, after losing a pound over 2 years.

The problem with anything in written form is that we cannot see

facial expressions or hear tone of voice. Questions asked in a non-

threatening way are fine. Reading the questions without

seeing/hearing the writer appeared confrontational.

You brought up a good point earlier about the tape you watched of a

DAN Dr.

moving energy. That is more like Eastern Medicine which does

not have scientific data. Some swear by it but many do not. For me

I would not have engaged in that or detox through the feet into

water. I also agree that parents that rely on the DAN Dr to cure

their child without any hard work on their end is bad for the child.

I started behavior modification when she was 3 and have worked with

the ST/OT. I am an OT myself so I have spent a lot of time on

therapy. I took her to ballet to address gross motor delay,

attention span, and socialization. She made a lot of progress prior

to starting the diet. She was in special ed and received wonderful

instruction. The diet was one of many treatments. The diet allowed

her to participate more fully in her treatments to meet her goals.

I don't need you to believe in the diet. Just support me with the

issues I still face. I was just reading back to a post you wrote

about getting an IEE for my son. I appreciate all the advice you

give. My daughter is doing so much better, but I know I still have a

lot to face.

>

> I don't mean to make you feel bad. I just honestly don't believe

in this stuff - it is nothing against you specifically at all. I

would love to be supportive and tell you it works but I could not do

that. If you've been here for two years, you know I have never been

a fan of this stuff. If it works for you, then I am glad it is. I

just don't see the theory overall. I think we were discussing this

McCarthy lady and not you specifically. I'm not sure how you

managed to become the focus of this except that you were trying to

argue that McCarthy did mean to say " cure " and to defend her

for saying it. Anytime you say " cure " in an autism forum, you are

ripe for debate, that is for sure! But someone brought up an older

email where I said I was sick of these hollywood people coming in and

becoming experts overnight, yadda yadda yadda. It had less to do

with her specific choice of therapy (althought that bothers me as

well) but more to do with just tired of seeing her plastered

everywhere when there is so much ahead of her, so much she doesn't

know.

>

> If you believe it works, then you must know a lot of people do not

believe it works already. So this can't be the first time you've

been discussing it and had someone ask questions and say they don't

believe it works. I know there are that specialize in

this and you would probably get support for your choice if you joined

one. And no! I don't mean to say you need to leave here. I am just

saying that you would probably get support among a group of people

who agree with what you are doing already and if you joined one of

those in addition to groups you may already be in (like this one),

you could freely discuss your choice and be supported in the way you

feel you need. I've joined other over the years based

on my specific needs at that time so I could learn from like-minded

people who are practicing the same therapies I believe in and was

doing myself.

>

> Here, you are welcome to say you disagree and provide reasons why.

It works both ways and you are welcome to your POV. But for me

personally, I can't agree or support this kind of therapy. I have a

lot of questions and I don't feel it's not being supportive to

question these things. I know some groups are always " positive " and

everything is wonderful and nobody can ever disagree. I am always

the one who asks, " Wait a minute, that doesn't make sense.... " and

then people think I'm being mean because I'm " not supportive. " I

always state the obvious (to me) and it isn't that i personally am

trying to pick on someone. I just think outloud sometimes. I think

being supportive is more than just saying " wonderful " to everything

no matter what. I think we process what we know, we provide

information that we feel is based on fact, we give our experiences.

This is how I feel I can be supportive, even if I disagree with

someone.

>

> We did ABA

with my now 11 yo and I took a lot of heat from people

over that. It is finally becoming more mainstream but years ago, it

was a more controversial topic in the autism world. I think we have

to carefully study what we feel is a good idea or therapy or way to

deal with things. I don't mind people asking questions and there are

people who disagree with ABA

- that is ok. You should realize a lot

of people will not agree over this subject and that's going to be

ok. You do what works for you and you have to learn to take

criticism and use it to further your study into this. Take what is

being asked and ask yourself that question. How do you personally

see it? How do you explain it? I don't mean here on this group - I

just mean for yourself. I think it is a good way to make sure you

agree with your choices and maybe you find you disagree and try

something else instead. I remember when we were trying to get ABA in

school for our ds, they had tons of scare stories to throw at me. I

didn't know all the answers either! So sometimes I left meetings

wondering, " What if they are right? " So I would come home and study

that subject/topic/concern. And I would make my own conclusions from

that. Next time it would get brought up, I would have my opinion

ready and feel more confident in my choices because they did this.

So it's not always a bad thing to hear criticisms of a therapy if you

use it to learn more about your choices. It can really cement your

decisions and make you more confident in what you've decided to do.

>

> Roxanna

> Autism Happens

>

[Guest guest]

My oldest ds was always a spinner. As a little toddler, he would take the nintendo controller and spin that cord like a wild man. He spun himself a lot too. He spun tires on bikes and toys. When he got into school, he spun pencils and erasers and anything else he could spin. We had a meeting one time with his teacher that began, "Your son spins all day long in class." (Not a great meeting, btw, lol) And now here it is almost midnight and my 11 yo is in the living room giggling and spinning himself in cirlces. sigh.

RoxannaAutism Happens

Re: ( ) Re: MCcarthey 20/20- Long

Rose, i agree with u there have been a few times i thought to myself maybe they were wrong to dx my son with asperger's but then reality slaps me upside the head and sometimes it is a real hard slap,Lol like the last few days, he is spinning and spinning and he has been repeating for like a week now who's turn is it? even when not playing a game, TSS spoke w/ me on it yesterday, she said she doesn't know what has caused the onset but noticing more and more symptoms as well, and he has in home therapy he sees,psychtrist, psychologist behavior specialist and is taking meds, so i just hope for the best for him in the end, but feel there isn't a cure for this, but doesn't change my feelings for him or others u know? SherryRose <beachbodytan2002 > wrote:

,

in our school, the teacher started a big mess by stating my son doesn't look auti stic and is progressing. even though he has documentation starting at a very young age to present stating he's autistic. they challenged that doctor. so the school did some testing and said he's not autistic. (all because they wanted to change his classification before going into middle school next September) I took him back to the neurologist and she did her testing and stated he is progressing but still autistic. higher functioning, but still on the autistic spectrum. the school then sent their findings to her, ( this went back and forth for months) and that's when she explained to the school that autism is neurological which effects the brain. since you can't give a child a new brain, you can't cure the child. she also said the same things Roxanna had posted when she was explaining how our kids can progress. but how can you fix the brain?. I hope I'm wording this right, you can redirect, you can teach, you can roll model to the point where the child won't stand out. and progress to the point where he/she can function in the real world, but that child would always be different. My son would always flap his hands like a bird whenever he's excited. I taught him not to do that and he found another appropriate thing to do with his hands that doesn't stand out, or an eye catcher that would make him a target in school. because he was taught not to flap his hands and drilled to look at the person he's speaking to, and other things that he was drilled to learn over the years, doesn't mean he's cured from autism because he was taught to act "normal"...He is very high functioning, but there is always something new that we have to work on. or something with social skills he's not getting, or prompting needed in school. I wish there was a cure, and if I believed that a Dan doctor can cure him instead of doing all that we are doing now. I would do what ever I can to get my son there. The reason why this really hit a spot with me, is because I believe there are so many people being mis lead about the cu re, and spending so much time with this instead of getting the interventions need for their child to progress. and like any parent, we all want to hear our child is cured when making progress. I do wish you the best for you and your child. And I pray your child continues to do well because our children do work hard with all the strategies we give them. and being though this is such a sensitive topic, I'm not responding to this topic anymore. I think our last hot topic was the vaccines?

jennifer_thorson <jennifer_thorson > wrote:

Yes. The children were diagnosed, then treated, and then re-evaluated. The chance of being re-evaluated by the same person seems not very likely to me. I don't know the answer to this part. > > > > She was on. It was the 2nd piece that they did. Not too > > > long. She said basically the same information as on her other > > > appearances. She is going to be on Larry King, also.> > > > > > > > ----------------------------------------------------------> > > --------> > > > Luggage? GPS? Comic books? > > > > Check out fitting gifts for grads at Search. > > > > > > > > > > > > > > > > > > > > ----------------------------------------------------------> > > ----------> > > > Take the Internet to Go: Go puts the Internet in your > > > pocket: mail, news, photos more.> > > >> > >> > > > > > > > > > > > > > ---------------------------------> > Be a better friend, newshound, and know-it-all with Mobile. > Try it now.> >> > > > > > > ---------------------------------> Never miss a thing. Make your homepage.>

Looking for last minute shopping deals? Find them fast with Search.

Be a better friend, newshound, and know-it-all with Mobile. Try it now.

Be a better friend, newshound, and know-it-all with Mobile. Try it now.

Never miss a thing. Make your homepage.

[Guest guest]

I don't want to bash the original poster either..

Yet I do want to add.. I hate it every time does her little junket.. And I have people

That come up to me and say "HEY Did you hear? They have a cure for autism?" Now I know doesn't specifically say her child is cured.. However that is the impression she leaves

And .. To me its a step backwards in society. Because we have fought so hard to have it recognized for what it is.. A LIFE LONG Disability.. And the perception is.. If we just get our kids to a certain point then they are a symptomatic and therefore all the services will be cut off that got them to that point!

I am blessed however, my son has NEVER had any diet issues.. So I am indeed thrilled for those of whom this has worked!

-- Re: ( ) Re: MCcarthey 20/20- Long

I should have said that differently than I did, you are right it came out badly. I did not mean it to sound that way as in you should leave. It is something that I have wondered about people (not you specifically) who are in these forums but they say that they have cured autism or decreased the problems to such a degree through DAN protocol that you could not tell their kid had a dx at all. I then want to ask them, "So why are you hanging out here????" You know, if my kid were cured, I'd be filling my time with all those fun things I dream that NT people get to do. <g> lol.

I do think diet can affect behavior. If a kid is allergic or sensitive to milk, for instance, it can cause problems with behavior. I am sensitive to milk and so is my dd. She isn't autistic. But even as a baby, we had to get soy for her and she was very colicky. Today she is 16 yo and a vegetarian so who knows. lol.

I think we are not always talking about the same things here - what one person is doing might not be the whole thing - the "whole DAN protocol package." But when I am talking about the whole DAN thing, I am thinking the whole pee in a cup for a week, get the joint pulls and touches to remove allergies, take tons of vitamins and minerals based on hair samples, chelation - the whole package. Then I saw a post you wrote where you talked about just eliminating milk/dairy and I thought - maybe we are not even talking about the same thing entirely. I believe diet can affect us but not to the degree that it causes autism. Obviously, if a person has an allergy, I think it could really cause major problems. I don't think changing their diet fixes autism or cures it. If anyone is sensitive to a food, changing the diet will make them do better overall. But I don't feel it is so dramatic as a cure for autism.

Maybe it's a "chicken or egg" discussion most times. I sometimes think they have the digestion problems first and not that the problems are caused by foods they are eating. So many times it is just assumed that the kid has autism so they have the leaky gut and we need to chelate and give these pills and....on and on. What if the food didn't cause the digestion problems. Maybe it's not cause/effect at work sometimes? I would like to change the equation around sometimes and have other possibilities studied instead of just assuming it is this specific protocol. I think we need to look at all causes for these problems because it could be that they have another disorder going on and not just needing vitamins or special diets to fix it.

And sometimes the way some of the parents talk who do all the protocol - it can make me dizzy and they sound dizzy. I've gone to IEP meetings where they have all sat around and said, "Yep, he ate french fries again, didn't he." Nobody had to look at the behavior or figure out if the kid had any other problems going on aside from having major autism and being non-verbal (lol) - it was always blame the french fry and meeting is over. whoosh, solved that problem! <g> One mom had her pet die and she thought her kid had hit the pet, causing seizures to the pet, causing the pet to die. So for days she said, "It was the red popcicle." She blamed giving him a red popcicle the week before for him hitting the pet and the pet dying. ACK! (Turns out, the pet licked up some paint in the bathroom they were remodeling. So that red popcicle did nothing at all.!) THAT is the kind of stuff that makes me crazy.

RoxannaAutism Happens

( ) Re: MCcarthey 20/20- Long

When you said "Why are you here if your child is cured?" I felt like you meant I should not be here. I am a member of other forums that discuss diet/biomedical issues but they do not talk much about school. I have always found this to be the place to ask questions and learn about school related issues. You and others have been doing this for a long time and I value your suggestions. Regarding the diet I was a skeptic and my husband was the biggest skeptic. We have challenged the diet so many times because he did not believe. For me I can see how GI issues can create symptoms or magnify symptoms. Do you believe that food allergies/intolerances affect behavior? Pain decreases attention span and can put someone in a bad mood. Some try the diet with no symptoms and have no result. This makes sense to me. My daughter has always had GI problems. For me it makes sense that she is sensative to certain foods. Removing these foods removed some behavior due to pain, being gassy,and overstimulated. Whether it affects her behavior or not, her pediatrician supports it due to the fact that she gained significant weight after starting the diet, after losing a pound over 2 years.The problem with anything in written form is that we cannot see facial expressions or hear tone of voice. Questions asked in a non-threatening way are fine. Reading the questions without seeing/hearing the writer appeared confrontational. You brought up a good point earlier about the tape you watched of a DAN Dr. moving energy. That is more like Eastern Medicine which does not have scientific data. Some swear by it but many do not. For me I would not have engaged in that or detox through the feet into water. I also agree that parents that rely on the DAN Dr to cure their child without any hard work on their end is bad for the child. I started behavior modification when she was 3 and have worked with the ST/OT. I am an OT myself so I have spent a lot of time on therapy. I took her to ballet to address gross motor delay, attention span, and socialization. She made a lot of progress prior to starting the diet. She was in special ed and received wonderful instruction. The diet was one of many treatments. The diet allowed her to participate more fully in her treatments to meet her goals.I don't need you to believe in the diet. Just support me with the issues I still face. I was just reading back to a post you wrote about getting an IEE for my son. I appreciate all the advice you give. My daughter is doing so much better, but I know I still have a lot to face. >> I don't mean to make you feel bad. I just honestly don't believe in this stuff - it is nothing against you specifically at all. I would love to be supportive and tell you it works but I could not do that. If you've been here for two years, you know I have never been a fan of this stuff. If it works for you, then I am glad it is. I just don't see the theory overall. I think we were discussing this McCarthy lady and not you specifically. I'm not sure how you managed to become the focus of this except that you were trying to argue that McCarthy did mean to say "cure" and to defend her for saying it. Anytime you say "cure" in an autism forum, you are ripe for debate, that is for sure! But someone brought up an older email where I said I was sick of these hollywood people coming in and becoming experts overnight, yadda yadda yadda. It had less to do with her specific choice of therapy (althought that bothers me as well) but more to do with just tired of seeing her plastered everywhere when there is so much ahead of her, so much she doesn't know.> > If you believe it works, then you must know a lot of people do not believe it works already. So this can't be the first time you've been discussing it and had someone ask questions and say they don't believe it works. I know there are that specialize in this and you would probably get support for your choice if you joined one. And no! I don't mean to say you need to leave here. I am just saying that you would probably get support among a group of people who agree with what you are doing already and if you joined one of those in addition to groups you may already be in (like this one), you could freely discuss your choice and be supported in the way you feel you need. I've joined other over the years based on my specific needs at that time so I could learn from like-minded people who are practicing the same therapies I believe in and was doing myself. > > Here, you are welcome to say you disagree and provide reasons why. It works both ways and you are welcome to your POV. But for me personally, I can't agree or support this kind of therapy. I have a lot of questions and I don't feel it's not being supportive to question these things. I know some groups are always "positive" and everything is wonderful and nobody can ever disagree. I am always the one who asks, "Wait a minute, that doesn't make sense...." and then people think I'm being mean because I'm "not supportive." I always state the obvious (to me) and it isn't that i personally am trying to pick on someone. I just think outloud sometimes. I think being supportive is more than just saying "wonderful" to everything no matter what. I think we process what we know, we provide information that we feel is based on fact, we give our experiences. This is how I feel I can be supportive, even if I disagree with someone. > > We did ABA with my now 11 yo and I took a lot of heat from people over that. It is finally becoming more mainstream but years ago, it was a more controversial topic in the autism world. I think we have to carefully study what we feel is a good idea or therapy or way to deal with things. I don't mind people asking questions and there are people who disagree with ABA - that is ok. You should realize a lot of people will not agree over this subject and that's going to be ok. You do what works for you and you have to learn to take criticism and use it to further your study into this. Take what is being asked and ask yourself that question. How do you personally see it? How do you explain it? I don't mean here on this group - I just mean for yourself. I think it is a good way to make sure you agree with your choices and maybe you find you disagree and try something else instead. I remember when we were trying to get ABA in school for our ds, they had tons of scare stories to throw at me. I didn't know all the answers either! So sometimes I left meetings wondering, "What if they are right?" So I would come home and study that subject/topic/concern. And I would make my own conclusions from that. Next time it would get brought up, I would have my opinion ready and feel more confident in my choices because they did this. So it's not always a bad thing to hear criticisms of a therapy if you use it to learn more about your choices. It can really cement your decisions and make you more confident in what you've decided to do.> > Roxanna> Autism Happens>

[Guest guest]

He should see the PT for that.

RoxannaAutism Happens

Re: ( ) Re: MCcarthey 20/20- Long

Rose, i agree with u there have been a few times i thought to myself maybe they were wrong to dx my son with asperger's but then reality slaps me upside the head and sometimes it is a real hard slap,Lol like the last few days, he is spinning and spinning and he has been repeating for like a week now who's turn is it? even when not playing a game, TSS spoke w/ me on it yesterday, she said she doesn't know what has caused the onset but noticing more and more symptoms as well, and he has in home therapy he sees,psychtrist, psychologist behavior specialist and is taking meds, so i just hope for the best for him in the end, but feel there isn't a cure for this, but doesn't change my feelings for him or others u know? SherryRose <beachbodytan2002 > wrote:

,

in our school, the teacher started a big mess by stating my son doesn't look auti stic and is progressing. even though he has documentation starting at a very young age to present stating he's autistic. they challenged that doctor. so the school did some testing and said he's not autistic. (all because they wanted to change his classification before going into middle school next September) I took him back to the neurologist and she did her testing and stated he is progressing but still autistic. higher functioning, but still on the autistic spectrum. the school then sent their findings to her, ( this went back and forth for months) and that's when she explained to the school that autism is neurological which effects the brain. since you can't give a child a new brain, you can't cure the child. she also said the same things Roxanna had posted when she was explaining how our kids can progress. but how can you fix the brain?. I hope I'm wording this right, you can redirect, you can teach, you can roll model to the point where the child won't stand out. and progress to the point where he/she can function in the real world, but that child would always be different. My son would always flap his hands like a bird whenever he's excited. I taught him not to do that and he found another appropriate thing to do with his hands that doesn't stand out, or an eye catcher that would make him a target in school. because he was taught not to flap his hands and drilled to look at the person he's speaking to, and other things that he was drilled to learn over the years, doesn't mean he's cured from autism because he was taught to act "normal"...He is very high functioning, but there is always something new that we have to work on. or something with social skills he's not getting, or prompting needed in school. I wish there was a cure, and if I believed that a Dan doctor can cure him instead of doing all that we are doing now. I would do what ever I can to get my son there. The reason why this really hit a spot with me, is because I believe there are so many people being mis lead about the cu re, and spending so much time with this instead of getting the interventions need for their child to progress. and like any parent, we all want to hear our child is cured when making progress. I do wish you the best for you and your child. And I pray your child continues to do well because our children do work hard with all the strategies we give them. and being though this is such a sensitive topic, I'm not responding to this topic anymore. I think our last hot topic was the vaccines?

jennifer_thorson <jennifer_thorson > wrote:

Yes. The children were diagnosed, then treated, and then re-evaluated. The chance of being re-evaluated by the same person seems not very likely to me. I don't know the answer to this part. > > > > She was on. It was the 2nd piece that they did. Not too > > > long. She said basically the same information as on her other > > > appearances. She is going to be on Larry King, also.> > > > > > > > ----------------------------------------------------------> > > --------> > > > Luggage? GPS? Comic books? > > > > Check out fitting gifts for grads at Search. > > > > > > > > > > > > > > > > > > > > ----------------------------------------------------------> > > ----------> > > > Take the Internet to Go: Go puts the Internet in your > > > pocket: mail, news, photos more.> > > >> > >> > > > > > > > > > > > > > ---------------------------------> > Be a better friend, newshound, and know-it-all with Mobile. > Try it now.> >> > > > > > > ---------------------------------> Never miss a thing. Make your homepage.>

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[Guest guest]

Yes, I agree!

RoxannaAutism Happens

Re: ( ) Re: MCcarthey 20/20- Long

Rose, i agree with u there have been a few times i thought to myself maybe they were wrong to dx my son with asperger's but then reality slaps me upside the head and sometimes it is a real hard slap,Lol like the last few days, he is spinning and spinning and he has been repeating for like a week now who's turn is it? even when not playing a game, TSS spoke w/ me on it yesterday, she said she doesn't know what has caused the onset but noticing more and more symptoms as well, and he has in home therapy he sees,psychtrist, psychologist behavior specialist and is taking meds, so i just hope for the best for him in the end, but feel there isn't a cure for this, but doesn't change my feelings for him or others u know? SherryRose <beachbodytan2002 > wrote:

,

in our school, the teacher started a big mess by stating my son doesn't look auti stic and is progressing. even though he has documentation starting at a very young age to present stating he's autistic. they challenged that doctor. so the school did some testing and said he's not autistic. (all because they wanted to change his classification before going into middle school next September) I took him back to the neurologist and she did her testing and stated he is progressing but still autistic. higher functioning, but still on the autistic spectrum. the school then sent their findings to her, ( this went back and forth for months) and that's when she explained to the school that autism is neurological which effects the brain. since you can't give a child a new brain, you can't cure the child. she also said the same things Roxanna had posted when she was explaining how our kids can progress. but how can you fix the brain?. I hope I'm wording this right, you can redirect, you can teach, you can roll model to the point where the child won't stand out. and progress to the point where he/she can function in the real world, but that child would always be different. My son would always flap his hands like a bird whenever he's excited. I taught him not to do that and he found another appropriate thing to do with his hands that doesn't stand out, or an eye catcher that would make him a target in school. because he was taught not to flap his hands and drilled to look at the person he's speaking to, and other things that he was drilled to learn over the years, doesn't mean he's cured from autism because he was taught to act "normal"...He is very high functioning, but there is always something new that we have to work on. or something with social skills he's not getting, or prompting needed in school. I wish there was a cure, and if I believed that a Dan doctor can cure him instead of doing all that we are doing now. I would do what ever I can to get my son there. The reason why this really hit a spot with me, is because I believe there are so many people being mis lead about the cu re, and spending so much time with this instead of getting the interventions need for their child to progress. and like any parent, we all want to hear our child is cured when making progress. I do wish you the best for you and your child. And I pray your child continues to do well because our children do work hard with all the strategies we give them. and being though this is such a sensitive topic, I'm not responding to this topic anymore. I think our last hot topic was the vaccines?

jennifer_thorson <jennifer_thorson > wrote:

Yes. The children were diagnosed, then treated, and then re-evaluated. The chance of being re-evaluated by the same person seems not very likely to me. I don't know the answer to this part. > > > > She was on. It was the 2nd piece that they did. Not too > > > long. She said basically the same information as on her other > > > appearances. She is going to be on Larry King, also.> > > > > > > > ----------------------------------------------------------> > > --------> > > > Luggage? GPS? Comic books? > > > > Check out fitting gifts for grads at Search. > > > > > > > > > > > > > > > > > > > > ----------------------------------------------------------> > > ----------> > > > Take the Internet to Go: Go puts the Internet in your > > > pocket: mail, news, photos more.> > > >> > >> > > > > > > > > > > > > > ---------------------------------> > Be a better friend, newshound, and know-it-all with Mobile. > Try it now.> >> > > > > > > ---------------------------------> Never miss a thing. Make your homepage.>

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