Guest guest Posted July 15, 2008 Report Share Posted July 15, 2008 Hello everyone! I thought I'd take a few moments finally to post a little intro. I've been slow at getting to this as I joined right towards the end of my husbands R & R home and even after he got on the plane to go back to Iraq our days were very crazy there after and are just winding down a bit more to normal! I'm Laci and I'm 25yrs old and a stay at home mom. My husband is 25 and is in the Army. We are currently stationed out of Fort Hood, TX but I am staying in Lawton, OK with family during deployment to take care of a few things. We have a 5yr old son named Aidan who is about to go into his 2nd year of school in kindergarten. I can't believe how fastly that has approached! Both of my boys are from a previous marriage and my older one had a bit of anger issues for awhile and had to be in counceling but part of his issues came from him being so smart and testing out to be 2yrs ahead of himself! Now if only he can apply that where needed! haha My 2nd child Keagan is 3yrs old and is the one on the spectrum. It was first brought up to me by my ex's side that he was not talking, very with drawn, something was not right. I was determined it was because he was no where near comfortable with him and did not know his biological father till a year old. Finally at the age of 2yrs he had said 5 words and showed no facial expressions what so ever and I was very concerned. I asked the dr about it. Explained he was very with drawn, didn't speak, acted weird and was late on developing in some areas. She said stated he seemed fine and just getting a late start but encouraged me to have him checked out further later on if I felt the need. I moved back here last November and by this time he was talking quit a bit but you couldn't understand a thing he was saying. I found out I could have him evaluated from the state for free on speech and get services. I took him in and found out he was 60% speech delayed and about 6 months developementally delayed. She referred me to the school system to get him speech services through the school being that it was almost his 3rd birthday. The school services then told me that he did not have a speech delay and denied me services. After speaking to my best friend who is a special education teacher and telling her everything that I was concerned about with him from his speech delay, mild developement delays, chewing his finger nails off, picking his nose contanstly to the point he always has a huge scar around it, not making a lot of eye contact, never wanting to be touched, pointing at things and grunting for what he wants, not social at all.. he will hide under objects when we are out and grunt at children and run when they talk to them. He has never played with another child. Chewing on his clothes, freakign out if the tv is more then a whisper loud and yelling it was to loud or that the tub is to hot when the other two kids are in it and playing happily, and much much more... she suggested that he might have PDD and I looked up the symptoms and sure enough he fit everything it said. I then faught with the school system to put him into speech and that my pediatrician gave a recomendation for him to have speech services and demanded them to do more developemental testing and that I believed he was autistic and they ignored my concern on that and told me it was middle child syndrome and that I was comparing him to my other children. But after the 3rd articulation test finally put him into half an hour of speech once a week and wrote up an IEP based on that and the few concerns I had. I had my pediatrician put in a referral for a developemental specialist and we waited 4 months to be seen. Once we were into the her she saw him for 5 hours and said that he is high functioning autism and that he has traits that suggest PDD vs High Functioning Autism vs Aspervers. We are going through more testing with her to get a better plan of action but for now she has recommended a few sensory books to us to work with him on things, told us to start doing a picture activity schedule for every day, stated he needed to be given 2 hours of speech a week and taht he would benifit from being in special education services in school on her plan of action. I turned all this into special services this morning to get a head start to hopefully get him enrolled in a special education class for early prek (as he would not go till next year but would this year if qualified for (special services) and hopefully the fight is not like it was to get him in for speech and that this time I have enough on me the first time around to get the job done and them see my side of things. I mean their input is coming from them seeing my child 3 times for a course of 30 minutes! There is absolutely no way they could even make a judgement on it! I have ran a playgroup since my oldest son was 10 months old so my middle sone has been around other children at least twice a week for playgroup and once a week for a local storytime and other things so his social problems was definatly not from me keeping him cooped up at home! There is so much more I can't even think of off the top of my head right now. She also has us on a Gluten Free/Casien Free diet. Is anyone else doing this? Tried it? What was/is your input on it? Down falls, things you liked, how you dealt with the transition? I got a few cook books and went ot the health food store and got some foods for him as well as bought a bread machine from the thrift shop. So with that being said, my boys have kept me very busy the last few months and then I have a 20 month old daughter named Brooklyn who is just a handful herself because well she's the only girl so why wouldn't she be right? haha I'm sure I left a ton of things out but that is the basics of who we are and what we are going throgh right now! I'm really hoping to gain a lot of advice through this support group and make sure I'm getting my son in the right direction to makign sure that he starts in the school system when he should and where he should to get his needs met the best there and at home as well. Look forward to chatting with you all! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2008 Report Share Posted July 16, 2008 I have been going through similiar problems with my 3 year old son with PDD NOS. I have had to fight to get him ST and have done the due process to get him a special ed class. Summer is here so we are waiting til fall to see what will happen. Everyone thinks he is fine except for the MD who diagnosed him. The ST said he has great communication skills. He talks ok to adults but doesn't talk to kids. That is why I want a special ed class. I also was denied OT even though he has low tone and delayed fine motor. His delays we not by more than a year so he does not need services according to them. He is not potty trained and is delayed in all self help skills but selfcare is not covered under OT in school. Only special ed covers that! My 6 year old daughter also is on the spectrum. When she was 3 I knew she had a speech delay but had no idea she was on the spectrum. I just thought she was very difficult and would grow out of it. She had a lot of sensory issues and lack of awareness of others. The IEP team recommended special ed and OT. I actually fought it not wanting my daughter in a class with children with worse behavior than her. At 4 she was given a placement under autism. I did not believe it for awhile but did a lot of research. I removed gluten and casein when she was almost 4 1/2. She made huge progress after removing casein and some improvement when gluten was removed. She was extremely hyperactive before I removed high fructose corn syrup and artificial colors. After a few months she started talking in full sentences and stopped all delayed echolalia. She made eye contact and her sensory issues decreased. A lot of obsessive behavior decreased and she started to make friends. My husband was not sure that the changes were due to food so we did many challenges to the diet to see. She was on the diet for 1 year, with enzymes for the last 6 months. At first she did fine with a regular diet with enzymes but slowly she started to regress. I did not want to see it and my husband saw no change, so we continued. In her 1st grade private school class she started to get sent to the director's room. She was throwing herself into the floor almost with the teacher on top of her. She started to talk very nasty and refused to pay attention in class. She was hyper again and could not sit in her seat to eat or do homework. She fell out of her chair and distracted the other children. She withdrew from her friends and played by herself. I decided to remove all casein and she made progress. But she was not the same. On her 6th birthday I removed gluten too. She made more progress and the hyperactivity disappeared. But it is like we are starting over because whatever gluten was not broken down by the enzymes stays in the body for about 1 year. I tried the enzymes on my son but there was no effect. It will not work for all children but can be a treatment for some. Others here have pointed out in the past that some parents focus only on diet and do not focus on other treatments that are necessary. I view it that for the children that respond, the diet can allow them to focus and learn to adapt. I have a lot of food items that my daughter loves. Email me if you want to talk. > > Hello everyone! I thought I'd take a few moments finally to post a > little intro. I've been slow at getting to this as I joined right > towards the end of my husbands R & R home and even after he got on the > plane to go back to Iraq our days were very crazy there after and are > just winding down a bit more to normal! > > I'm Laci and I'm 25yrs old and a stay at home mom. My husband > is 25 and is in the Army. We are currently stationed out of Fort > Hood, TX but I am staying in Lawton, OK with family during deployment > to take care of a few things. We have a 5yr old son named Aidan who > is about to go into his 2nd year of school in kindergarten. I can't > believe how fastly that has approached! Both of my boys are from a > previous marriage and my older one had a bit of anger issues for > awhile and had to be in counceling but part of his issues came from > him being so smart and testing out to be 2yrs ahead of himself! Now > if only he can apply that where needed! haha > My 2nd child Keagan is 3yrs old and is the one on the spectrum. It > was first brought up to me by my ex's side that he was not talking, > very with drawn, something was not right. I was determined it was > because he was no where near comfortable with him and did not know > his biological father till a year old. Finally at the age of 2yrs he > had said 5 words and showed no facial expressions what so ever and I > was very concerned. I asked the dr about it. Explained he was very > with drawn, didn't speak, acted weird and was late on developing in > some areas. She said stated he seemed fine and just getting a late > start but encouraged me to have him checked out further later on if I > felt the need. I moved back here last November and by this time he > was talking quit a bit but you couldn't understand a thing he was > saying. I found out I could have him evaluated from the state for > free on speech and get services. I took him in and found out he was > 60% speech delayed and about 6 months developementally delayed. She > referred me to the school system to get him speech services through > the school being that it was almost his 3rd birthday. The school > services then told me that he did not have a speech delay and denied > me services. After speaking to my best friend who is a special > education teacher and telling her everything that I was concerned > about with him from his speech delay, mild developement delays, > chewing his finger nails off, picking his nose contanstly to the > point he always has a huge scar around it, not making a lot of eye > contact, never wanting to be touched, pointing at things and grunting > for what he wants, not social at all.. he will hide under objects > when we are out and grunt at children and run when they talk to them. > He has never played with another child. Chewing on his clothes, > freakign out if the tv is more then a whisper loud and yelling it was > to loud or that the tub is to hot when the other two kids are in it > and playing happily, and much much more... she suggested that he > might have PDD and I looked up the symptoms and sure enough he fit > everything it said. > I then faught with the school system to put him into speech and that > my pediatrician gave a recomendation for him to have speech services > and demanded them to do more developemental testing and that I > believed he was autistic and they ignored my concern on that and told > me it was middle child syndrome and that I was comparing him to my > other children. But after the 3rd articulation test finally put him > into half an hour of speech once a week and wrote up an IEP based on > that and the few concerns I had. I had my pediatrician put in a > referral for a developemental specialist and we waited 4 months to be > seen. Once we were into the her she saw him for 5 hours and said that > he is high functioning autism and that he has traits that suggest PDD > vs High Functioning Autism vs Aspervers. We are going through more > testing with her to get a better plan of action but for now she has > recommended a few sensory books to us to work with him on things, > told us to start doing a picture activity schedule for every day, > stated he needed to be given 2 hours of speech a week and taht he > would benifit from being in special education services in school on > her plan of action. I turned all this into special services this > morning to get a head start to hopefully get him enrolled in a > special education class for early prek (as he would not go till next > year but would this year if qualified for (special services) and > hopefully the fight is not like it was to get him in for speech and > that this time I have enough on me the first time around to get the > job done and them see my side of things. I mean their input is coming > from them seeing my child 3 times for a course of 30 minutes! There > is absolutely no way they could even make a judgement on it! I have > ran a playgroup since my oldest son was 10 months old so my middle > sone has been around other children at least twice a week for > playgroup and once a week for a local storytime and other things so > his social problems was definatly not from me keeping him cooped up > at home! There is so much more I can't even think of off the top of > my head right now. > > She also has us on a Gluten Free/Casien Free diet. Is anyone else > doing this? Tried it? What was/is your input on it? Down falls, > things you liked, how you dealt with the transition? I got a few cook > books and went ot the health food store and got some foods for him as > well as bought a bread machine from the thrift shop. > > So with that being said, my boys have kept me very busy the last few > months and then I have a 20 month old daughter named Brooklyn who is > just a handful herself because well she's the only girl so why > wouldn't she be right? haha > > I'm sure I left a ton of things out but that is the basics of who we > are and what we are going throgh right now! I'm really hoping to gain > a lot of advice through this support group and make sure I'm getting > my son in the right direction to makign sure that he starts in the > school system when he should and where he should to get his needs met > the best there and at home as well. > > Look forward to chatting with you all! > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2008 Report Share Posted July 24, 2008 Welcome to the group!!! I just wanted you to know that there is a wonderful group for the GFCF diet, which I am also a part of. It is a great group with tons of information and tips. Good luck. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2008 Report Share Posted August 8, 2008 Hello Laci!! Welcome to our group! It must be hard to have your dh over in Iraq and deal with things at home by yourself. Is the school cooperating this time? I hope so! Feel free to join in here whenever you like! RoxannaYou're UniqueJust like everyone else... ( ) Little Intro Hello everyone! I thought I'd take a few moments finally to post a little intro. I've been slow at getting to this as I joined right towards the end of my husbands R & R home and even after he got on the plane to go back to Iraq our days were very crazy there after and are just winding down a bit more to normal!I'm Laci and I'm 25yrs old and a stay at home mom. My husband is 25 and is in the Army. We are currently stationed out of Fort Hood, TX but I am staying in Lawton, OK with family during deployment to take care of a few things. We have a 5yr old son named Aidan who is about to go into his 2nd year of school in kindergarten. I can't believe how fastly that has approached! Both of my boys are from a previous marriage and my older one had a bit of anger issues for awhile and had to be in counceling but part of his issues came from him being so smart and testing out to be 2yrs ahead of himself! Now if only he can apply that where needed! haha My 2nd child Keagan is 3yrs old and is the one on the spectrum. It was first brought up to me by my ex's side that he was not talking, very with drawn, something was not right. I was determined it was because he was no where near comfortable with him and did not know his biological father till a year old. Finally at the age of 2yrs he had said 5 words and showed no facial expressions what so ever and I was very concerned. I asked the dr about it. Explained he was very with drawn, didn't speak, acted weird and was late on developing in some areas. She said stated he seemed fine and just getting a late start but encouraged me to have him checked out further later on if I felt the need. I moved back here last November and by this time he was talking quit a bit but you couldn't understand a thing he was saying. I found out I could have him evaluated from the state for free on speech and get services. I took him in and found out he was 60% speech delayed and about 6 months developementally delayed. She referred me to the school system to get him speech services through the school being that it was almost his 3rd birthday. The school services then told me that he did not have a speech delay and denied me services. After speaking to my best friend who is a special education teacher and telling her everything that I was concerned about with him from his speech delay, mild developement delays, chewing his finger nails off, picking his nose contanstly to the point he always has a huge scar around it, not making a lot of eye contact, never wanting to be touched, pointing at things and grunting for what he wants, not social at all.. he will hide under objects when we are out and grunt at children and run when they talk to them. He has never played with another child. Chewing on his clothes, freakign out if the tv is more then a whisper loud and yelling it was to loud or that the tub is to hot when the other two kids are in it and playing happily, and much much more... she suggested that he might have PDD and I looked up the symptoms and sure enough he fit everything it said. I then faught with the school system to put him into speech and that my pediatrician gave a recomendation for him to have speech services and demanded them to do more developemental testing and that I believed he was autistic and they ignored my concern on that and told me it was middle child syndrome and that I was comparing him to my other children. But after the 3rd articulation test finally put him into half an hour of speech once a week and wrote up an IEP based on that and the few concerns I had. I had my pediatrician put in a referral for a developemental specialist and we waited 4 months to be seen. Once we were into the her she saw him for 5 hours and said that he is high functioning autism and that he has traits that suggest PDD vs High Functioning Autism vs Aspervers. We are going through more testing with her to get a better plan of action but for now she has recommended a few sensory books to us to work with him on things, told us to start doing a picture activity schedule for every day, stated he needed to be given 2 hours of speech a week and taht he would benifit from being in special education services in school on her plan of action. I turned all this into special services this morning to get a head start to hopefully get him enrolled in a special education class for early prek (as he would not go till next year but would this year if qualified for (special services) and hopefully the fight is not like it was to get him in for speech and that this time I have enough on me the first time around to get the job done and them see my side of things. I mean their input is coming from them seeing my child 3 times for a course of 30 minutes! There is absolutely no way they could even make a judgement on it! I have ran a playgroup since my oldest son was 10 months old so my middle sone has been around other children at least twice a week for playgroup and once a week for a local storytime and other things so his social problems was definatly not from me keeping him cooped up at home! There is so much more I can't even think of off the top of my head right now. She also has us on a Gluten Free/Casien Free diet. Is anyone else doing this? Tried it? What was/is your input on it? Down falls, things you liked, how you dealt with the transition? I got a few cook books and went ot the health food store and got some foods for him as well as bought a bread machine from the thrift shop. So with that being said, my boys have kept me very busy the last few months and then I have a 20 month old daughter named Brooklyn who is just a handful herself because well she's the only girl so why wouldn't she be right? haha I'm sure I left a ton of things out but that is the basics of who we are and what we are going throgh right now! I'm really hoping to gain a lot of advice through this support group and make sure I'm getting my son in the right direction to makign sure that he starts in the school system when he should and where he should to get his needs met the best there and at home as well. Look forward to chatting with you all!No virus found in this incoming message. Checked by AVG - http://www.avg.com Version: 8.0.138 / Virus Database: 270.5.0/1555 - Release Date: 7/16/2008 6:43 AM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 8, 2008 Report Share Posted August 8, 2008 Hi, Laci. I'm Robin. My hubby got back from Iraq last July. How are the kiddo's taking dad being gone? This is a great group. Welcome!!!! From: Roxanna <madideas@...>Subject: Re: ( ) Little Intro Date: Friday, August 8, 2008, 2:35 PM Hello Laci!! Welcome to our group! It must be hard to have your dh over in Iraq and deal with things at home by yourself. Is the school cooperating this time? I hope so! Feel free to join in here whenever you like! RoxannaYou're UniqueJust like everyone else... ( ) Little Intro Hello everyone! I thought I'd take a few moments finally to post a little intro. I've been slow at getting to this as I joined right towards the end of my husbands R & R home and even after he got on the plane to go back to Iraq our days were very crazy there after and are just winding down a bit more to normal!I'm Laci and I'm 25yrs old and a stay at home mom. My husband is 25 and is in the Army. We are currently stationed out of Fort Hood, TX but I am staying in Lawton, OK with family during deployment to take care of a few things. We have a 5yr old son named Aidan who is about to go into his 2nd year of school in kindergarten. I can't believe how fastly that has approached! Both of my boys are from a previous marriage and my older one had a bit of anger issues for awhile and had to be in counceling but part of his issues came from him being so smart and testing out to be 2yrs ahead of himself! Now if only he can apply that where needed! haha My 2nd child Keagan is 3yrs old and is the one on the spectrum. It was first brought up to me by my ex's side that he was not talking, very with drawn, something was not right. I was determined it was because he was no where near comfortable with him and did not know his biological father till a year old. Finally at the age of 2yrs he had said 5 words and showed no facial expressions what so ever and I was very concerned. I asked the dr about it. Explained he was very with drawn, didn't speak, acted weird and was late on developing in some areas. She said stated he seemed fine and just getting a late start but encouraged me to have him checked out further later on if I felt the need. I moved back here last November and by this time he was talking quit a bit but you couldn't understand a thing he was saying. I found out I could have him evaluated from the state for free on speech and get services. I took him in and found out he was 60% speech delayed and about 6 months developementally delayed. She referred me to the school system to get him speech services through the school being that it was almost his 3rd birthday. The school services then told me that he did not have a speech delay and denied me services. After speaking to my best friend who is a special education teacher and telling her everything that I was concerned about with him from his speech delay, mild developement delays, chewing his finger nails off, picking his nose contanstly to the point he always has a huge scar around it, not making a lot of eye contact, never wanting to be touched, pointing at things and grunting for what he wants, not social at all.. he will hide under objects when we are out and grunt at children and run when they talk to them. He has never played with another child. Chewing on his clothes, freakign out if the tv is more then a whisper loud and yelling it was to loud or that the tub is to hot when the other two kids are in it and playing happily, and much much more... she suggested that he might have PDD and I looked up the symptoms and sure enough he fit everything it said. I then faught with the school system to put him into speech and that my pediatrician gave a recomendation for him to have speech services and demanded them to do more developemental testing and that I believed he was autistic and they ignored my concern on that and told me it was middle child syndrome and that I was comparing him to my other children. But after the 3rd articulation test finally put him into half an hour of speech once a week and wrote up an IEP based on that and the few concerns I had. I had my pediatrician put in a referral for a developemental specialist and we waited 4 months to be seen. Once we were into the her she saw him for 5 hours and said that he is high functioning autism and that he has traits that suggest PDD vs High Functioning Autism vs Aspervers. We are going through more testing with her to get a better plan of action but for now she has recommended a few sensory books to us to work with him on things, told us to start doing a picture activity schedule for every day, stated he needed to be given 2 hours of speech a week and taht he would benifit from being in special education services in school on her plan of action. I turned all this into special services this morning to get a head start to hopefully get him enrolled in a special education class for early prek (as he would not go till next year but would this year if qualified for (special services) and hopefully the fight is not like it was to get him in for speech and that this time I have enough on me the first time around to get the job done and them see my side of things. I mean their input is coming from them seeing my child 3 times for a course of 30 minutes! There is absolutely no way they could even make a judgement on it! I have ran a playgroup since my oldest son was 10 months old so my middle sone has been around other children at least twice a week for playgroup and once a week for a local storytime and other things so his social problems was definatly not from me keeping him cooped up at home! There is so much more I can't even think of off the top of my head right now. She also has us on a Gluten Free/Casien Free diet. Is anyone else doing this? Tried it? What was/is your input on it? Down falls, things you liked, how you dealt with the transition? I got a few cook books and went ot the health food store and got some foods for him as well as bought a bread machine from the thrift shop. So with that being said, my boys have kept me very busy the last few months and then I have a 20 month old daughter named Brooklyn who is just a handful herself because well she's the only girl so why wouldn't she be right? haha I'm sure I left a ton of things out but that is the basics of who we are and what we are going throgh right now! I'm really hoping to gain a lot of advice through this support group and make sure I'm getting my son in the right direction to makign sure that he starts in the school system when he should and where he should to get his needs met the best there and at home as well. Look forward to chatting with you all!No virus found in this incoming message. Checked by AVG - http://www.avg. com Version: 8.0.138 / Virus Database: 270.5.0/1555 - Release Date: 7/16/2008 6:43 AM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2008 Report Share Posted August 9, 2008 Hi Laci, I just wanted to say hi and welcome along with sharing with you that my 2nd oldest son is in Fort Sill now and will be graduating 9/5 from basic training. Sometimes it seems like a really small world!! Sue From: Roxanna <madideas@zoomintern et.net>Subject: Re: ( ) Little Intro Date: Friday, August 8, 2008, 2:35 PM Hello Laci!! Welcome to our group! It must be hard to have your dh over in Iraq and deal with things at home by yourself. Is the school cooperating this time? I hope so! Feel free to join in here whenever you like! RoxannaYou're UniqueJust like everyone else... ( ) Little Intro Hello everyone! I thought I'd take a few moments finally to post a little intro. I've been slow at getting to this as I joined right towards the end of my husbands R & R home and even after he got on the plane to go back to Iraq our days were very crazy there after and are just winding down a bit more to normal!I'm Laci and I'm 25yrs old and a stay at home mom. My husband is 25 and is in the Army. We are currently stationed out of Fort Hood, TX but I am staying in Lawton, OK with family during deployment to take care of a few things. We have a 5yr old son named Aidan who is about to go into his 2nd year of school in kindergarten. I can't believe how fastly that has approached! Both of my boys are from a previous marriage and my older one had a bit of anger issues for awhile and had to be in counceling but part of his issues came from him being so smart and testing out to be 2yrs ahead of himself! Now if only he can apply that where needed! haha My 2nd child Keagan is 3yrs old and is the one on the spectrum. It was first brought up to me by my ex's side that he was not talking, very with drawn, something was not right. I was determined it was because he was no where near comfortable with him and did not know his biological father till a year old. Finally at the age of 2yrs he had said 5 words and showed no facial expressions what so ever and I was very concerned. I asked the dr about it. Explained he was very with drawn, didn't speak, acted weird and was late on developing in some areas. She said stated he seemed fine and just getting a late start but encouraged me to have him checked out further later on if I felt the need. I moved back here last November and by this time he was talking quit a bit but you couldn't understand a thing he was saying. I found out I could have him evaluated from the state for free on speech and get services. I took him in and found out he was 60% speech delayed and about 6 months developementally delayed. She referred me to the school system to get him speech services through the school being that it was almost his 3rd birthday. The school services then told me that he did not have a speech delay and denied me services. After speaking to my best friend who is a special education teacher and telling her everything that I was concerned about with him from his speech delay, mild developement delays, chewing his finger nails off, picking his nose contanstly to the point he always has a huge scar around it, not making a lot of eye contact, never wanting to be touched, pointing at things and grunting for what he wants, not social at all.. he will hide under objects when we are out and grunt at children and run when they talk to them. He has never played with another child. Chewing on his clothes, freakign out if the tv is more then a whisper loud and yelling it was to loud or that the tub is to hot when the other two kids are in it and playing happily, and much much more... she suggested that he might have PDD and I looked up the symptoms and sure enough he fit everything it said. I then faught with the school system to put him into speech and that my pediatrician gave a recomendation for him to have speech services and demanded them to do more developemental testing and that I believed he was autistic and they ignored my concern on that and told me it was middle child syndrome and that I was comparing him to my other children. But after the 3rd articulation test finally put him into half an hour of speech once a week and wrote up an IEP based on that and the few concerns I had. I had my pediatrician put in a referral for a developemental specialist and we waited 4 months to be seen. Once we were into the her she saw him for 5 hours and said that he is high functioning autism and that he has traits that suggest PDD vs High Functioning Autism vs Aspervers. We are going through more testing with her to get a better plan of action but for now she has recommended a few sensory books to us to work with him on things, told us to start doing a picture activity schedule for every day, stated he needed to be given 2 hours of speech a week and taht he would benifit from being in special education services in school on her plan of action. I turned all this into special services this morning to get a head start to hopefully get him enrolled in a special education class for early prek (as he would not go till next year but would this year if qualified for (special services) and hopefully the fight is not like it was to get him in for speech and that this time I have enough on me the first time around to get the job done and them see my side of things. I mean their input is coming from them seeing my child 3 times for a course of 30 minutes! There is absolutely no way they could even make a judgement on it! I have ran a playgroup since my oldest son was 10 months old so my middle sone has been around other children at least twice a week for playgroup and once a week for a local storytime and other things so his social problems was definatly not from me keeping him cooped up at home! There is so much more I can't even think of off the top of my head right now. She also has us on a Gluten Free/Casien Free diet. Is anyone else doing this? Tried it? What was/is your input on it? Down falls, things you liked, how you dealt with the transition? I got a few cook books and went ot the health food store and got some foods for him as well as bought a bread machine from the thrift shop. So with that being said, my boys have kept me very busy the last few months and then I have a 20 month old daughter named Brooklyn who is just a handful herself because well she's the only girl so why wouldn't she be right? haha I'm sure I left a ton of things out but that is the basics of who we are and what we are going throgh right now! I'm really hoping to gain a lot of advice through this support group and make sure I'm getting my son in the right direction to makign sure that he starts in the school system when he should and where he should to get his needs met the best there and at home as well. Look forward to chatting with you all!No virus found in this incoming message. Checked by AVG - http://www.avg. com Version: 8.0.138 / Virus Database: 270.5.0/1555 - Release Date: 7/16/2008 6:43 AM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2008 Report Share Posted August 10, 2008 Hi Laci, My husband was in the military (army) for 16 years he wanted to make a career out of it but our son was dx with AS and I was Dx with RA and we were going through so much that he took and early out and we came back to the real world, which I am glad because it is so hard when our husbands are gone for a year at a time or more. Its hard on the kids and hard on us moms when we have kids like ours. My husband was in Dessert Storm that was a long time ago we are in our forties you are much younger but he was also in bosnia and in germany for 2 years and we were last stationed at fort Bragg in N carolina before he finally retired. I am so glad because this Iraq war is too much. I still have friends that their husbands are still in and my one friends husband is on his 3rd round to Iraq. I think it is so unfair that they have to keep going back but that is the life in the military. If they arnt gone to Iraq their out in the field for weeks at a time and they work 12 or more hours a day anyway. My husband was in charge of a platoon of over a hundred men so he was never home. I actually had a friend named Laci when I was at fort bragg she had a little boy around my sons age which he is now 10. That would be funny if it were you, My name is gina and my husband is and our son is collin actually the laci I knew her husband was in my husbands platoon , Sargeant Kinde?? He had a strange name Im trying to remember it ??? Any way, good luck to you and if you need to talk Im here. -- In , Sue <susiejones58@...> wrote: > > Hi Laci, >  > I just wanted to say hi and welcome along with sharing with you that my 2nd oldest son is in Fort Sill now and will be graduating 9/5 from basic training. Sometimes it seems like a really small world!! >  > Sue > > > > From: Roxanna <madideas@zoomintern et.net> > Subject: Re: ( ) Little Intro > > Date: Friday, August 8, 2008, 2:35 PM > > > > > > Hello Laci!! Welcome to our group! It must be hard to have your dh over in Iraq and deal with things at home by yourself. Is the school cooperating this time? I hope so! Feel free to join in here whenever you like! >  > Roxanna > You're Unique > Just like everyone else... > > ( ) Little Intro > > > > Hello everyone! I thought I'd take a few moments finally to post a > little intro. I've been slow at getting to this as I joined right > towards the end of my husbands R & R home and even after he got on the > plane to go back to Iraq our days were very crazy there after and are > just winding down a bit more to normal! > > I'm Laci and I'm 25yrs old and a stay at home mom. My husband > is 25 and is in the Army. We are currently stationed out of Fort > Hood, TX but I am staying in Lawton, OK with family during deployment > to take care of a few things. We have a 5yr old son named Aidan who > is about to go into his 2nd year of school in kindergarten. I can't > believe how fastly that has approached! Both of my boys are from a > previous marriage and my older one had a bit of anger issues for > awhile and had to be in counceling but part of his issues came from > him being so smart and testing out to be 2yrs ahead of himself! Now > if only he can apply that where needed! haha > My 2nd child Keagan is 3yrs old and is the one on the spectrum. It > was first brought up to me by my ex's side that he was not talking, > very with drawn, something was not right. I was determined it was > because he was no where near comfortable with him and did not know > his biological father till a year old. Finally at the age of 2yrs he > had said 5 words and showed no facial expressions what so ever and I > was very concerned. I asked the dr about it. Explained he was very > with drawn, didn't speak, acted weird and was late on developing in > some areas. She said stated he seemed fine and just getting a late > start but encouraged me to have him checked out further later on if I > felt the need. I moved back here last November and by this time he > was talking quit a bit but you couldn't understand a thing he was > saying. I found out I could have him evaluated from the state for > free on speech and get services. I took him in and found out he was > 60% speech delayed and about 6 months developementally delayed. She > referred me to the school system to get him speech services through > the school being that it was almost his 3rd birthday. The school > services then told me that he did not have a speech delay and denied > me services. After speaking to my best friend who is a special > education teacher and telling her everything that I was concerned > about with him from his speech delay, mild developement delays, > chewing his finger nails off, picking his nose contanstly to the > point he always has a huge scar around it, not making a lot of eye > contact, never wanting to be touched, pointing at things and grunting > for what he wants, not social at all.. he will hide under objects > when we are out and grunt at children and run when they talk to them. > He has never played with another child. Chewing on his clothes, > freakign out if the tv is more then a whisper loud and yelling it was > to loud or that the tub is to hot when the other two kids are in it > and playing happily, and much much more... she suggested that he > might have PDD and I looked up the symptoms and sure enough he fit > everything it said. > I then faught with the school system to put him into speech and that > my pediatrician gave a recomendation for him to have speech services > and demanded them to do more developemental testing and that I > believed he was autistic and they ignored my concern on that and told > me it was middle child syndrome and that I was comparing him to my > other children. But after the 3rd articulation test finally put him > into half an hour of speech once a week and wrote up an IEP based on > that and the few concerns I had. I had my pediatrician put in a > referral for a developemental specialist and we waited 4 months to be > seen. Once we were into the her she saw him for 5 hours and said that > he is high functioning autism and that he has traits that suggest PDD > vs High Functioning Autism vs Aspervers. We are going through more > testing with her to get a better plan of action but for now she has > recommended a few sensory books to us to work with him on things, > told us to start doing a picture activity schedule for every day, > stated he needed to be given 2 hours of speech a week and taht he > would benifit from being in special education services in school on > her plan of action. I turned all this into special services this > morning to get a head start to hopefully get him enrolled in a > special education class for early prek (as he would not go till next > year but would this year if qualified for (special services) and > hopefully the fight is not like it was to get him in for speech and > that this time I have enough on me the first time around to get the > job done and them see my side of things. I mean their input is coming > from them seeing my child 3 times for a course of 30 minutes! There > is absolutely no way they could even make a judgement on it! I have > ran a playgroup since my oldest son was 10 months old so my middle > sone has been around other children at least twice a week for > playgroup and once a week for a local storytime and other things so > his social problems was definatly not from me keeping him cooped up > at home! There is so much more I can't even think of off the top of > my head right now. > > She also has us on a Gluten Free/Casien Free diet. Is anyone else > doing this? Tried it? What was/is your input on it? Down falls, > things you liked, how you dealt with the transition? I got a few cook > books and went ot the health food store and got some foods for him as > well as bought a bread machine from the thrift shop. > > So with that being said, my boys have kept me very busy the last few > months and then I have a 20 month old daughter named Brooklyn who is > just a handful herself because well she's the only girl so why > wouldn't she be right? haha > > I'm sure I left a ton of things out but that is the basics of who we > are and what we are going throgh right now! I'm really hoping to gain > a lot of advice through this support group and make sure I'm getting > my son in the right direction to makign sure that he starts in the > school system when he should and where he should to get his needs met > the best there and at home as well. > > Look forward to chatting with you all! > > No virus found in this incoming message. > Checked by AVG - http://www.avg. com > Version: 8.0.138 / Virus Database: 270.5.0/1555 - Release Date: 7/16/2008 6:43 AM > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 10, 2008 Report Share Posted August 10, 2008 My heart goes out to you ladies with hubbies " over there " . My husband has a new job that requires some travel for the first time ever, and he has been gone for the past 12 days. He's a Navy vet and now his job requires consulting on Air Nat'l Guard bases. I'm going nuts with him gone!!! But I know 12 days is nothing compared to what a military wife goes through. Being a temporary single parent is really hard. God bless you guys! > > > > From: Roxanna <madideas@zoomintern et.net> > > Subject: Re: ( ) Little Intro > > > > Date: Friday, August 8, 2008, 2:35 PM > > > > > > > > > > > > Hello Laci!! Welcome to our group! It must be hard to have your > dh over in Iraq and deal with things at home by yourself. Is the > school cooperating this time? I hope so! Feel free to join in here > whenever you like! > >  > > Roxanna > > You're Unique > > Just like everyone else... > > > > ( ) Little Intro > > > > > > > > Hello everyone! I thought I'd take a few moments finally to post a > > little intro. I've been slow at getting to this as I joined right > > towards the end of my husbands R & R home and even after he got on > the > > plane to go back to Iraq our days were very crazy there after and > are > > just winding down a bit more to normal! > > > > I'm Laci and I'm 25yrs old and a stay at home mom. My husband > > is 25 and is in the Army. We are currently stationed out of Fort > > Hood, TX but I am staying in Lawton, OK with family during > deployment > > to take care of a few things. We have a 5yr old son named Aidan who > > is about to go into his 2nd year of school in kindergarten. I can't > > believe how fastly that has approached! Both of my boys are from a > > previous marriage and my older one had a bit of anger issues for > > awhile and had to be in counceling but part of his issues came from > > him being so smart and testing out to be 2yrs ahead of himself! Now > > if only he can apply that where needed! haha > > My 2nd child Keagan is 3yrs old and is the one on the spectrum. It > > was first brought up to me by my ex's side that he was not talking, > > very with drawn, something was not right. I was determined it was > > because he was no where near comfortable with him and did not know > > his biological father till a year old. Finally at the age of 2yrs > he > > had said 5 words and showed no facial expressions what so ever and > I > > was very concerned. I asked the dr about it. Explained he was very > > with drawn, didn't speak, acted weird and was late on developing in > > some areas. She said stated he seemed fine and just getting a late > > start but encouraged me to have him checked out further later on if > I > > felt the need. I moved back here last November and by this time he > > was talking quit a bit but you couldn't understand a thing he was > > saying. I found out I could have him evaluated from the state for > > free on speech and get services. I took him in and found out he was > > 60% speech delayed and about 6 months developementally delayed. She > > referred me to the school system to get him speech services through > > the school being that it was almost his 3rd birthday. The school > > services then told me that he did not have a speech delay and > denied > > me services. After speaking to my best friend who is a special > > education teacher and telling her everything that I was concerned > > about with him from his speech delay, mild developement delays, > > chewing his finger nails off, picking his nose contanstly to the > > point he always has a huge scar around it, not making a lot of eye > > contact, never wanting to be touched, pointing at things and > grunting > > for what he wants, not social at all.. he will hide under objects > > when we are out and grunt at children and run when they talk to > them. > > He has never played with another child. Chewing on his clothes, > > freakign out if the tv is more then a whisper loud and yelling it > was > > to loud or that the tub is to hot when the other two kids are in it > > and playing happily, and much much more... she suggested that he > > might have PDD and I looked up the symptoms and sure enough he fit > > everything it said. > > I then faught with the school system to put him into speech and > that > > my pediatrician gave a recomendation for him to have speech > services > > and demanded them to do more developemental testing and that I > > believed he was autistic and they ignored my concern on that and > told > > me it was middle child syndrome and that I was comparing him to my > > other children. But after the 3rd articulation test finally put him > > into half an hour of speech once a week and wrote up an IEP based > on > > that and the few concerns I had. I had my pediatrician put in a > > referral for a developemental specialist and we waited 4 months to > be > > seen. Once we were into the her she saw him for 5 hours and said > that > > he is high functioning autism and that he has traits that suggest > PDD > > vs High Functioning Autism vs Aspervers. We are going through more > > testing with her to get a better plan of action but for now she has > > recommended a few sensory books to us to work with him on things, > > told us to start doing a picture activity schedule for every day, > > stated he needed to be given 2 hours of speech a week and taht he > > would benifit from being in special education services in school on > > her plan of action. I turned all this into special services this > > morning to get a head start to hopefully get him enrolled in a > > special education class for early prek (as he would not go till > next > > year but would this year if qualified for (special services) and > > hopefully the fight is not like it was to get him in for speech and > > that this time I have enough on me the first time around to get the > > job done and them see my side of things. I mean their input is > coming > > from them seeing my child 3 times for a course of 30 minutes! There > > is absolutely no way they could even make a judgement on it! I have > > ran a playgroup since my oldest son was 10 months old so my middle > > sone has been around other children at least twice a week for > > playgroup and once a week for a local storytime and other things so > > his social problems was definatly not from me keeping him cooped up > > at home! There is so much more I can't even think of off the top of > > my head right now. > > > > She also has us on a Gluten Free/Casien Free diet. Is anyone else > > doing this? Tried it? What was/is your input on it? Down falls, > > things you liked, how you dealt with the transition? I got a few > cook > > books and went ot the health food store and got some foods for him > as > > well as bought a bread machine from the thrift shop. > > > > So with that being said, my boys have kept me very busy the last > few > > months and then I have a 20 month old daughter named Brooklyn who > is > > just a handful herself because well she's the only girl so why > > wouldn't she be right? haha > > > > I'm sure I left a ton of things out but that is the basics of who > we > > are and what we are going throgh right now! I'm really hoping to > gain > > a lot of advice through this support group and make sure I'm > getting > > my son in the right direction to makign sure that he starts in the > > school system when he should and where he should to get his needs > met > > the best there and at home as well. > > > > Look forward to chatting with you all! > > > > No virus found in this incoming message. > > Checked by AVG - http://www.avg. com > > Version: 8.0.138 / Virus Database: 270.5.0/1555 - Release Date: > 7/16/2008 6:43 AM > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2008 Report Share Posted August 11, 2008 Welcome, and thanks to you and your family and husband for your service to our country. My husband is a Navy vet - he served in the late 80's - he's an old guy now. One thing I learned was that you can't depend on the school system for our kids. They have budgets to stick to and unfortunately that is a big, but real factor. Keep up the good fight, mama! On the plus side it sounds like your doctor is really up on things! Good for her and you. Here is a link to a great GFCF blog with product recommendations and recipes: http://gfcfblog.blogspot.com/ We did not go gfcf for our son, because I had him muscle tested (or applied kinesiology) to see which foods were problematic for him, and the only food issues that were found were dyes, preservatives, chemicals,artificial flavorings, and mainly soy/soy derivatives. Which confirmed what I had already discovered with food journaling. We just planned menus and altered our shopping a bit and cook everything from scratch in big batches to freeze and it's not that big of a deal anymore. I've always been a bit of a nutrition nazi so it wasn't that big of a change. Also, after a few months we added digestive enzymes to my son's supplements and he could have a restaurant meal once in awhile, or prepackaged garbage at a relatives house w/o problems. We still however cook carefully at home everyday, after all - why continue to dump chemicals and dyes from prepackaged foods and pesticides and genetically modified " produce " that the body doesn't even recognize, or hormone/antibiotic laden meats into a little boy I'm trying to detox and heal? I don't want to eat that stuff, myself, either. For us the dietary changes made a HUGE difference in his self care abilities and sensory issues with clothing. And while he had not gained ONE pound in the year from 4-5, (he only weighed 34 lbs when he turned 5 - but our doctor was unconcerned!) despite us letting him eat as much of anything as he wanted, when we made the dietary changes and added digestive enzymes he gained 2 pounds in one month! I really think there is something to the whole " starving brains " theory of autism. It sounds like you are a bright and capable mom, and like you have a lot on your shoulders. Come to this site or email if you have questions, or need to vent, or cry. We will be here for you to have adult support from moms who know your frustrations and joys. This is a tough road to walk alone. I have a client whose husband is ready to deploy over seas and she regularly talks about her feelings and how difficult it is as a wife. Welcome aboard! > > Hello everyone! I thought I'd take a few moments finally to post a > little intro. I've been slow at getting to this as I joined right > towards the end of my husbands R & R home and even after he got on the > plane to go back to Iraq our days were very crazy there after and are > just winding down a bit more to normal! > > I'm Laci and I'm 25yrs old and a stay at home mom. My husband > is 25 and is in the Army. We are currently stationed out of Fort > Hood, TX but I am staying in Lawton, OK with family during deployment > to take care of a few things. We have a 5yr old son named Aidan who > is about to go into his 2nd year of school in kindergarten. I can't > believe how fastly that has approached! Both of my boys are from a > previous marriage and my older one had a bit of anger issues for > awhile and had to be in counceling but part of his issues came from > him being so smart and testing out to be 2yrs ahead of himself! Now > if only he can apply that where needed! haha > My 2nd child Keagan is 3yrs old and is the one on the spectrum. It > was first brought up to me by my ex's side that he was not talking, > very with drawn, something was not right. I was determined it was > because he was no where near comfortable with him and did not know > his biological father till a year old. Finally at the age of 2yrs he > had said 5 words and showed no facial expressions what so ever and I > was very concerned. I asked the dr about it. Explained he was very > with drawn, didn't speak, acted weird and was late on developing in > some areas. She said stated he seemed fine and just getting a late > start but encouraged me to have him checked out further later on if I > felt the need. I moved back here last November and by this time he > was talking quit a bit but you couldn't understand a thing he was > saying. I found out I could have him evaluated from the state for > free on speech and get services. I took him in and found out he was > 60% speech delayed and about 6 months developementally delayed. She > referred me to the school system to get him speech services through > the school being that it was almost his 3rd birthday. The school > services then told me that he did not have a speech delay and denied > me services. After speaking to my best friend who is a special > education teacher and telling her everything that I was concerned > about with him from his speech delay, mild developement delays, > chewing his finger nails off, picking his nose contanstly to the > point he always has a huge scar around it, not making a lot of eye > contact, never wanting to be touched, pointing at things and grunting > for what he wants, not social at all.. he will hide under objects > when we are out and grunt at children and run when they talk to them. > He has never played with another child. Chewing on his clothes, > freakign out if the tv is more then a whisper loud and yelling it was > to loud or that the tub is to hot when the other two kids are in it > and playing happily, and much much more... she suggested that he > might have PDD and I looked up the symptoms and sure enough he fit > everything it said. > I then faught with the school system to put him into speech and that > my pediatrician gave a recomendation for him to have speech services > and demanded them to do more developemental testing and that I > believed he was autistic and they ignored my concern on that and told > me it was middle child syndrome and that I was comparing him to my > other children. But after the 3rd articulation test finally put him > into half an hour of speech once a week and wrote up an IEP based on > that and the few concerns I had. I had my pediatrician put in a > referral for a developemental specialist and we waited 4 months to be > seen. Once we were into the her she saw him for 5 hours and said that > he is high functioning autism and that he has traits that suggest PDD > vs High Functioning Autism vs Aspervers. We are going through more > testing with her to get a better plan of action but for now she has > recommended a few sensory books to us to work with him on things, > told us to start doing a picture activity schedule for every day, > stated he needed to be given 2 hours of speech a week and taht he > would benifit from being in special education services in school on > her plan of action. I turned all this into special services this > morning to get a head start to hopefully get him enrolled in a > special education class for early prek (as he would not go till next > year but would this year if qualified for (special services) and > hopefully the fight is not like it was to get him in for speech and > that this time I have enough on me the first time around to get the > job done and them see my side of things. I mean their input is coming > from them seeing my child 3 times for a course of 30 minutes! There > is absolutely no way they could even make a judgement on it! I have > ran a playgroup since my oldest son was 10 months old so my middle > sone has been around other children at least twice a week for > playgroup and once a week for a local storytime and other things so > his social problems was definatly not from me keeping him cooped up > at home! There is so much more I can't even think of off the top of > my head right now. > > She also has us on a Gluten Free/Casien Free diet. Is anyone else > doing this? Tried it? What was/is your input on it? Down falls, > things you liked, how you dealt with the transition? I got a few cook > books and went ot the health food store and got some foods for him as > well as bought a bread machine from the thrift shop. > > So with that being said, my boys have kept me very busy the last few > months and then I have a 20 month old daughter named Brooklyn who is > just a handful herself because well she's the only girl so why > wouldn't she be right? haha > > I'm sure I left a ton of things out but that is the basics of who we > are and what we are going throgh right now! I'm really hoping to gain > a lot of advice through this support group and make sure I'm getting > my son in the right direction to makign sure that he starts in the > school system when he should and where he should to get his needs met > the best there and at home as well. > > Look forward to chatting with you all! > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.