Re: Re: MCcarthey 20/20

[Guest guest]

Was MCcarthey's information helpful? do you think her child was mis-diagnosed(from autism) because she says her child is cured now? or do you think with all the interventions she has done with her child that he's (still autistic) but, he learned to adapt, to be age appropriate and non autistic like? by non-autistic I mean: autistic traits not obvious because of the interventions? If she were to stop all the interventions now because according to her, her child is cured, would the autistic systems become noticeable again? The reason why I ask is because, my son had the toe walking, hand flapping, no eye contact, non -verbal till age of 3-31/2 and aggressive. with early interventions at 18months old, and continued therapies, he doesn't do any of these behaviors and does have speech. He is still continuing therapy. To people of today who don't know how

intense and consistent all his therapies were and still have. they wouldn't guess he has autism. But, when he is playing his favorite ball game, being at the park or just getting very excited. I see the hand flapping again. He did compensate with the hand flapping to rolling his fingers and hand into each other. (not as obvious) but when too excited he just can't help it. He can speak, but when needed(to express a feeling) he is lost for words or holds them back. If someone specializes in autism they can see it right away. but to a parent that has no special needs child would not see it. So, I'm wondering when MCcarthey says her son is cured from autism. I'm wondering what she means by that? RoseKLMO <galady3744@...> wrote: She was on. It was the 2nd piece that they did. Not too long. She said basically the same information as on her other appearances. She is going to be on Larry King, also. Luggage? GPS? Comic books? Check out fitting gifts for grads at Search.

Take the Internet to Go: Go puts the Internet in your pocket: mail, news, photos more.

[Guest guest]

I did enjoy listening to ....as did my husband....

As a mom, I saw Barron (is anyone else familiar with him)? He is about 45 years old and claims to be 'healed from autism'.....while he is living a productive life now, and even has a girlfriend for a few years now that is 'healed from autism,' a lot of us talked about it at the conference I attended, and agreed that you can still tell---He is great to listen to though, because he tells you how he felt as a child but could not say at the time. He was in treatment for behaviors (which struck a cord with us, as we did have to put our son in treatment---he got more mad and started new behaviors---mind you, we did not know it was AS yet), diets were tried, treatments to get the devil out, OT, speech, sounds like he had everything imaginable, parents moved for services, etc. It is great to hear what he wishes he COULD have said at 4, 10, etc. and did not know HOW TO DO THAT! I would think THAT could be very helpful, especially to parents with non-verbal or limited verbal skills.

I would think that autism is like alcoholism, cancer, or anything else, you are never cured but can put it into 'remission....' or make it better by learning better ways to deal with it (we have done what you report---our son ate and chewed his toes to nothing---we have him to his fingers----and that is getting better as he won't use a chewy at 13!---but we do what we can do, including meds, etc. to make it better.

My cousin and his wife have four sons, eldest one is 18 now; they have PKU--Phenylketoneuria---body cannot break down protein; if not on a special diet, by age of 1, they would have been profoundly Mentally Retarded; diagnosed at birth, special protein free diets, they are normal, kids! There are people about 35 and older now that are profoundly MR though, so....using that as an example, they are not CURED FROM PKU but are living each day with it---they can eat 'normal' now if they want, but physicians and experts studying it believe the effects would be like that of an alcoholic, eventually making it so they kill their brain cells, etc.; their two eldest children have already said they will NEVER go off the diets as they do not know anything else / do not know what they are missing---they eat 'some protein' but it is not much---like one ice cream sandwich treat is all the protein they can have for the day!----they eat super healthy, pickles, special bread makes it so they can have it as a sandwich but they love ketchup and pickle sandwiches, green beans, etc.---they can go anywhere and find lots of things they can eat.

Also, I think that made it clear that he is not CURED but living better, still has seizures, has to work everyday at it. And, I would think Jim Carey would help!! That would be about the right amount of humor anyone with this could use.....I am sure he is 'God send,' too.

Ruthie

Re: ( ) Re: MCcarthey 20/20

Was MCcarthey's information helpful? do you think her child was mis-diagnosed(from autism) because she says her child is cured now? or do you think with all the interventions she has done with her child that he's (still autistic) but, he learned to adapt, to be age appropriate and non autistic like? by non-autistic I mean: autistic traits not obvious because of the interventions? If she were to stop all the interventions now because according to her, her child is cured, would the autistic systems become noticeable again?

The reason why I ask is because, my son had the toe walking, hand flapping, no eye contact, non -verbal till age of 3-31/2 and aggressive. with early interventions at 18months old, and continued therapies, he doesn't do any of these behaviors and does have speech. He is still continuing therapy. To people of today who don't know how intense and consistent all his therapies were and still have. they wouldn't guess he has autism. But, when he is playing his favorite ball game, being at the park or just getting very excited. I see the hand flapping again. He did compensate with the hand flapping to rolling his fingers and hand into each other. (not as obvious) but when too excited he just can't help it. He can speak, but when needed(to express a feeling) he is lost for words or holds them back. If someone specializes in autism they can see it right away. but to a parent that has no special needs child would not see it.

So, I'm wondering when MCcarthey says her son is cured from autism. I'm wondering what she means by that?

RoseKLMO <galady3744 > wrote:

She was on. It was the 2nd piece that they did. Not too long. She said basically the same information as on her other appearances. She is going to be on Larry King, also.

Luggage? GPS? Comic books? Check out fitting gifts for grads at Search.

Take the Internet to Go: Go puts the Internet in your pocket: mail, news, photos more.

[Guest guest]

Ruthie, you write very well... Remission, that is the word I was looking for. I think my son goes through this (remission) but as he gets older, new concerns start and need immediate interventions/therapy to help him through it. I'm still learning lots with each year that he gets older. first it was full focus on his reading, writing, & spelling skill. He had none. People told me (just accept this) this is something he just isn't capable of doing. But we continued the tutoring every day after school. It did take 2 1/2 years of consistent tutoring, but he is at grade level now. and just when I thought things were good/normal and The reading is catching up, I noticed another deficit. Poor Organization ugh!!! now we are working diligently with this. He will forget everything and anything. A new teacher he has thinks he is doing this

intentionally?.(forgetting his books/papers) They think he doesn't have autism, in spite of all the doctors reports I have stating he has Autism. "High function". But what is happening is: With early interventions he has had since 18 months old, and continuing with services and therapies till present. I think it's in remission and will stay there as long as we keep on top of it and continue the therapies, social skills, along with speech. But, the school thinks he is cured. He is far from cured, but with all this interventions, he is doing much better. He had the anger, controlling issues, aggression. all before 1st grade. (school calling complaining every day) It took years to change these behaviors to better ones. and Time consuming with the doctors/traveling/therapies/expenses. and being consistent. So, when the school says, I don't see him as having autism. (now) instead of getting

so upset, because I know what it took to get here, and with all his doctors stating he has autism. I say to myself, this does work.(therapies) it just takes so much time and many baby steps to get to this point where we are now. And, I'm still learning more. So when I post my experiences to others, it's from my experience. not blaming anyone because no child comes with instructions, so there is no right or wrong way we raise our children because each child is so different and a learning experience, and what works for one might never work for another. but, someone might post something that works for someone through their own experience. This site is an awesome site. Rose RUTHIE BRYAN DOLEZAL <DOLEZAL123@...> wrote: I did enjoy listening to ....as did my husband.... As a mom, I saw Barron (is anyone else familiar with him)? He is about 45 years old and claims to be 'healed from autism'.....while he is living a productive life now, and even has a girlfriend for a few years now that is 'healed from autism,' a lot of us talked about it at the conference I attended, and agreed that you can still tell---He is great to listen to though, because he tells you how he felt as a child but could not say at the time. He was in treatment for

behaviors (which struck a cord with us, as we did have to put our son in treatment---he got more mad and started new behaviors---mind you, we did not know it was AS yet), diets were tried, treatments to get the devil out, OT, speech, sounds like he had everything imaginable, parents moved for services, etc. It is great to hear what he wishes he COULD have said at 4, 10, etc. and did not know HOW TO DO THAT! I would think THAT could be very helpful, especially to parents with non-verbal or limited verbal skills. I would think that autism is like alcoholism, cancer, or anything else, you are never cured but can put it into 'remission....' or make it better by learning better ways to deal with it (we have done what you report---our son ate and chewed his toes to nothing---we have him to his fingers----and that is getting better as he won't use a chewy at 13!---but we do what we can do,

including meds, etc. to make it better. My cousin and his wife have four sons, eldest one is 18 now; they have PKU--Phenylketoneuria---body cannot break down protein; if not on a special diet, by age of 1, they would have been profoundly Mentally Retarded; diagnosed at birth, special protein free diets, they are normal, kids! There are people about 35 and older now that are profoundly MR though, so....using that as an example, they are not CURED FROM PKU but are living each day with it---they can eat 'normal' now if they want, but physicians and experts studying it believe the effects would be like that of an alcoholic, eventually making it so they kill their brain cells, etc.; their two eldest children have already said they will NEVER go off the diets as they do not know anything else / do not know what they are missing---they eat 'some protein' but it is not much---like one ice cream sandwich treat is all the

protein they can have for the day!----they eat super healthy, pickles, special bread makes it so they can have it as a sandwich but they love ketchup and pickle sandwiches, green beans, etc.---they can go anywhere and find lots of things they can eat. Also, I think that made it clear that he is not CURED but living better, still has seizures, has to work everyday at it. And, I would think Jim Carey would help!! That would be about the right amount of humor anyone with this could use.....I am sure he is 'God send,' too. Ruthie Re: ( ) Re: MCcarthey 20/20 Was MCcarthey's information helpful? do you think her child was mis-diagnosed(from autism) because she says her child is cured now? or do you think with all the interventions she has done with her child that he's (still autistic) but, he learned to adapt, to be age appropriate and non autistic like? by non-autistic I mean: autistic traits not obvious because of the interventions? If she were to stop all the interventions now because according to her, her child is cured, would the autistic systems become noticeable

again? The reason why I ask is because, my son had the toe walking, hand flapping, no eye contact, non -verbal till age of 3-31/2 and aggressive. with early interventions at 18months old, and continued therapies, he doesn't do any of these behaviors and does have speech. He is still continuing therapy. To people of today who don't know how intense and consistent all his therapies were and still have. they wouldn't guess he has autism. But, when he is playing his favorite ball game, being at the park or just getting very excited. I see the hand flapping again. He did compensate with the hand flapping to rolling his fingers and hand into each other. (not as obvious) but when too excited he just can't help it. He can speak, but when needed(to express a feeling) he is lost for words or holds them back. If someone specializes in autism they can see it right away. but to a

parent that has no special needs child would not see it. So, I'm wondering when MCcarthey says her son is cured from autism. I'm wondering what she means by that? RoseKLMO <galady3744 > wrote: She was on. It was the 2nd piece that they did. Not too long. She said basically the same information as on her other appearances. She is going to be on Larry King, also. Luggage? GPS? Comic books? Check out fitting gifts for grads at Search. Take the Internet to Go: Go puts the Internet in your pocket: mail, news, photos more.

Catch up on fall's hot new shows on TV. Watch previews, get listings, and more!

[Guest guest]

Rose---We just had a professional--actually, she is tutor that used to teach at our middle school (was injured in a school roller skating accident and is now permanently disabled / cannot got back to work--) that we hired privately to tutor our middle school son----tell us that, when the school tells you 'capable' / 'loosing work on purpose,' etc. they are looking at the PHYSICAL disability NOT a learning disability and that is NOT OKAY, as AUTISM / Asperger's are NOT necessarily PHYSICAL DISABILITIES; she works with (our 13 yr. old) and he has some distinct LEARNING DISABILITIES as well as diagnosed ones, so something you may want to address in your IEP for him. Just an idea....We know quite a bit, and had NEVER SEEN IT THAT WAY or thought of that, so that was very helpful; we are addressing THAT again next week in yet another IEP meeting at our school.

Thanks.

Ruthie

Re: ( ) Re: MCcarthey 20/20

Was MCcarthey's information helpful? do you think her child was mis-diagnosed(from autism) because she says her child is cured now? or do you think with all the interventions she has done with her child that he's (still autistic) but, he learned to adapt, to be age appropriate and non autistic like? by non-autistic I mean: autistic traits not obvious because of the interventions? If she were to stop all the interventions now because according to her, her child is cured, would the autistic systems become noticeable again?

The reason why I ask is because, my son had the toe walking, hand flapping, no eye contact, non -verbal till age of 3-31/2 and aggressive. with early interventions at 18months old, and continued therapies, he doesn't do any of these behaviors and does have speech. He is still continuing therapy. To people of today who don't know how intense and consistent all his therapies were and still have. they wouldn't guess he has autism. But, when he is playing his favorite ball game, being at the park or just getting very excited. I see the hand flapping again. He did compensate with the hand flapping to rolling his fingers and hand into each other. (not as obvious) but when too excited he just can't help it. He can speak, but when needed(to express a feeling) he is lost for words or holds them back. If someone specializes in autism they can see it right away. but to a parent that has no special needs child would not see it.

So, I'm wondering when MCcarthey says her son is cured from autism. I'm wondering what she means by that?

RoseKLMO <galady3744 > wrote:

She was on. It was the 2nd piece that they did. Not too long. She said basically the same information as on her other appearances. She is going to be on Larry King, also.

Luggage? GPS? Comic books? Check out fitting gifts for grads at Search.

Take the Internet to Go: Go puts the Internet in your pocket: mail, news, photos more.

Catch up on fall's hot new shows on TV. Watch previews, get listings, and more!

[Guest guest]

Ruthie, what you are saying is to state in his IEP that he doesn't have a physical disability but a neurological disability? best wishes with your next IEP meeting. Please let us know how it goes. Hugs RoseRUTHIE BRYAN DOLEZAL <DOLEZAL123@...> wrote: Rose---We just had a professional--actually, she is tutor that used to teach at our middle school (was injured in a school

roller skating accident and is now permanently disabled / cannot got back to work--) that we hired privately to tutor our middle school son----tell us that, when the school tells you 'capable' / 'loosing work on purpose,' etc. they are looking at the PHYSICAL disability NOT a learning disability and that is NOT OKAY, as AUTISM / Asperger's are NOT necessarily PHYSICAL DISABILITIES; she works with (our 13 yr. old) and he has some distinct LEARNING DISABILITIES as well as diagnosed ones, so something you may want to address in your IEP for him. Just an idea....We know quite a bit, and had NEVER SEEN IT THAT WAY or thought of that, so that was very helpful; we are addressing THAT again next week in yet another IEP meeting at our school. Thanks. Ruthie Re: ( ) Re: MCcarthey 20/20 Was MCcarthey's information helpful? do you think her child was mis-diagnosed(from autism) because she says her child is cured now? or do you think with all the interventions she has done with her child that he's (still autistic) but, he learned to adapt, to be age appropriate and non autistic like? by non-autistic I

mean: autistic traits not obvious because of the interventions? If she were to stop all the interventions now because according to her, her child is cured, would the autistic systems become noticeable again? The reason why I ask is because, my son had the toe walking, hand flapping, no eye contact, non -verbal till age of 3-31/2 and aggressive. with early interventions at 18months old, and continued therapies, he doesn't do any of these behaviors and does have speech. He is still continuing therapy. To people of today who don't know how intense and consistent all his therapies were and still have. they wouldn't guess he has autism. But, when he is playing his favorite ball game, being at the park or just getting very excited. I see the hand flapping again. He did compensate with the hand flapping to rolling his fingers and hand into each other. (not as obvious) but when too excited he

just can't help it. He can speak, but when needed(to express a feeling) he is lost for words or holds them back. If someone specializes in autism they can see it right away. but to a parent that has no special needs child would not see it. So, I'm wondering when MCcarthey says her son is cured from autism. I'm wondering what she means by that? RoseKLMO <galady3744 > wrote: She was on. It was the 2nd piece that they did. Not too long. She said basically the same information as on her other appearances. She is going to be on Larry King, also. Luggage? GPS? Comic books? Check out fitting gifts for grads at Search. Take the Internet to Go: Go puts the Internet in your pocket: mail, news, photos more. Catch up on fall's hot new shows on TV. Watch previews, get listings, and more!

Luggage? GPS? Comic books?

Check out fitting gifts for grads at Search.

[Guest guest]

Barron has an amazing book about autism that he wrote with his mom.

RoxannaAutism Happens

Re: ( ) Re: MCcarthey 20/20

Was MCcarthey's information helpful? do you think her child was mis-diagnosed(from autism) because she says her child is cured now? or do you think with all the interventions she has done with her child that he's (still autistic) but, he learned to adapt, to be age appropriate and non autistic like? by non-autistic I mean: autistic traits not obvious because of the interventions? If she were to stop all the interventions now because according to her, her child is cured, would the autistic systems become noticeable again?

The reason why I ask is because, my son had the toe walking, hand flapping, no eye contact, non -verbal till age of 3-31/2 and aggressive. with early interventions at 18months old, and continued therapies, he doesn't do any of these behaviors and does have speech. He is still continuing therapy. To people of today who don't know how intense and consistent all his therapies were and still have. they wouldn't guess he has autism. But, when he is playing his favorite ball game, being at the park or just getting very excited. I see the hand flapping again. He did compensate with the hand flapping to rolling his fingers and hand into each other. (not as obvious) but when too excited he just can't help it. He can speak, but when needed(to express a feeling) he is lost for words or holds them back. If someone specializes in autism they can see it right away. but to a parent that has no special needs child would not see it.

So, I'm wondering when MCcarthey says her son is cured from autism. I'm wondering what she means by that?

RoseKLMO <galady3744 > wrote:

She was on. It was the 2nd piece that they did. Not too long. She said basically the same information as on her other appearances. She is going to be on Larry King, also.

Luggage? GPS? Comic books? Check out fitting gifts for grads at Search.

Take the Internet to Go: Go puts the Internet in your pocket: mail, news, photos more.

[Guest guest]

Hi. First,,,,I totally get what you're saying about famous, rich people dealing with "issues". Money makes it much easier, I'm sure. I wouldn't know....haha. I feel like many tune in to see Oprahs' show about and autism. What you get is how she has made her sons' life better and now he is not experiencing autism the way he did before. She did emphasize that he is not cured,,,,,,but that the things she is doing with him has turned him around to look like there really is no autism............I hope I described that right. She does the GFCF, and treats for fungus/yeast, therapies....and a couple of other things. She really DID know her stuff. She explained on "The View" that there is a definite correlation btwn food and brain. She said, "look at a bar....you drink and it DOES affect your head"......so true. Anyway,,,,,,,she also explained

that she didn't think it was 1 think that caused autism,,,,but to look at our kids as a bucket. Fill it with vaccines, diet, etc and for some kids,,,,,,,,,the bodies just don't digest it/handle it well. And the buckets overflow. SO,,,,,,,I liked hearing her. But,,,,,I agree with you where,,,,,,,,,instead of bringing on a famous, rich woman to talk about how her baby is "better",,,,,,,,,,please bring on the famous, rich lady to talk about AS specifically (or autism, I guess) and talk about how sometimes,,,,,,,,your child just IS the way they ARE. That no matter how many therapy sessions ro vitamins or diets or whatever you use and try,,,,,,,,they just ARE. But,,,,I guess, shows that show people not getting better just aren't upbeat enough. Hee hee. But,,,,,,,,she was good to listen to. On "The View" she questioned why the AMER ASSOC of PED'S won't look at the tests, studies that

certain autism groups and work with them. So,,,,,,,,,I'm grateful that she is using her celebrity to perhaps tighten the screws on the people in the research fields, etc. Oh well. Have a good one.Robin Roxanna <madideas@...> wrote: I didn't see her on any show or read her book - but sometimes - don't Hollywood types kind of rub you the wrong way? I mean, she said her kid is cured of autism now? They always

come along with the big fix, the instant cure, the easy route to a good result. Who knows which way is up sometimes. I just get...weary of each Oprah autism show. Who will come along next - a famous person will briefly feel our pain and yet, they are better, smarter, brighter, richer - and their kids are cured while the rest of us slugs move along.... lol. Guess I sound a bit jaded? But seriously, if her kid has seizures, a lot of his problems or symptoms may be due to seizures as well as anything else like autism. I didn't see the show. But I would wonder that first. Second, I would wonder how old he is. I saw their picture, advertising her new book, on the cover of People at the check out today. He looks young. Easy to talk about cures at that age, IMO. They have no clue what

is ahead if it's really autism. Again, just a little snippet without reading her/seeing her book. I don't want to either! She will move along and be replaced by the next star-with-an-autistic-child. What is more interesting is the idea that one could be cured from autism. Because this is neurological, I don't believe that happens. I think people learn to adapt and adjust, just like everyone does. To what extent they can do that, is the bigger question. I've said before that a lot of hard work can improve a lot of things - lots of therapy and effort can improve a child's outcomes. But sometimes you can do everything under the son and not make big strides and improvements. Why not? Why do some kids improve, why do some improve a lot

and why do some improve so little. It is especially interesting to me as I work with a little guy who has moderate/severe autism. I spend hours with him and literally wonder the whole time - why is this so hard for him? Will he suddenly hit a learning curve and improve a lot? Is he destined to never come out of this autism fog at all? And if not, why not? Why would he not but others who have had less therapy improve drastically? I never think, "gosh, should he have taken a vitamin and then he'd be all better like this famous lady's kid?" To me, the answers are harder than this. Each little glitch inside - each connection that didn't connect - it all weighs on him and prevents him from overcoming autism in a meaningful way. I know, everyone has their POV and I've learned over the years to

just accept that for what it is. But I have mine as well. There are a few things on my list of "grrr" and stars with autistic kids is one of those on the list. I suppose it's nice to have people discussing autism as a by-product of all this. But it's all an "oprah-y" kind of way - they will move on to the next interesting item soon enough. RoxannaAutism Happens Re: ( ) Re: MCcarthey 20/20 Was MCcarthey's information helpful? do you think her child was mis-diagnosed(from autism) because she says her child is cured now? or do you think with all the interventions she has done with her child that he's (still autistic) but, he learned to adapt, to be age appropriate and non autistic like? by non-autistic I mean: autistic traits not obvious because of the interventions? If she were to stop all the interventions now because according to her, her child is cured, would the autistic systems become noticeable again? The reason why I ask is because, my son had the toe walking, hand flapping, no eye contact, non -verbal till age of 3-31/2 and

aggressive. with early interventions at 18months old, and continued therapies, he doesn't do any of these behaviors and does have speech. He is still continuing therapy. To people of today who don't know how intense and consistent all his therapies were and still have. they wouldn't guess he has autism. But, when he is playing his favorite ball game, being at the park or just getting very excited. I see the hand flapping again. He did compensate with the hand flapping to rolling his fingers and hand into each other. (not as obvious) but when too excited he just can't help it. He can speak, but when needed(to express a feeling) he is lost for words or holds them back. If someone specializes in autism they can see it right away. but to a parent that has no special needs child would not see it. So, I'm wondering when MCcarthey says her son is cured from autism. I'm

wondering what she means by that? RoseKLMO <galady3744 > wrote: She was on. It was the 2nd piece that they did. Not too long. She said basically the same information as on her other appearances. She is going to be on Larry King, also. Luggage? GPS? Comic books? Check out fitting gifts for grads at Search. Take the Internet to Go: Go puts the Internet in your pocket: mail, news, photos more.

Boardwalk for $500? In 2007? Ha! Play Monopoly Here and Now (it's updated for today's economy) at Games.

[Guest guest]

She didn't say "cured" though -- they nailed her on that this morning

on The View, too, and she clarifies that she does not say "cure." She

says "recovery," and explains the difference, in her opinion, via an

analogy of someone who is hit by a bus. They may get better, but they

will never be the same -- they can recover, but not cured, as they'll

always have scars or intermittent pain when it's cold, that kind of

thing. She clarifies that to say "cure" is misleading, but there is

treatment to help "recover" these kids, and her way of explanation is

really something you'd have to hear, I can't quote her.

I have her book here, it FINALLY was re-delivered last night and I'm

only on page 70, so I can't speak to it much other than to say she has

been through an awful lot, like most of us, and she didn't give up. Her

main message is hope -- try different things, don't give up and don't

sit on waiting lists and do nothing.

I like her message of hope. Barbara Walters questioned her this morning

on whether or not she was misleading people into thinking their kids

could be cured, and is clear that there is at least hope even if

the doctors don't say it. At least try something, you might find some

positive change or a way to make something more livable. She did an

awesome job!

I did wonder about the seizures though -- the frequent mention of them

makes me afraid that people are going to think that autism causes

seizures and therefore the two must always be connected. Me, my

autistic son does not have seizures, yet I have a 12 yod who does, go

figure. I just don't want people to watch just enough to get freaked

out or feel like 'well, my kid can't have autism, he doesn't have

seizures.' I'd still keep my child on anti-seizure meds until we'd gone

a long time seizure-free, despite biomed treatment, if he did have

seizures. But, then again, I'm not far enough into the book to know

when she removed his anti-seizure meds either.

Roxanna wrote:

I didn't see her on

any show or read her book - but sometimes - don't Hollywood types kind

of rub you the wrong way? I mean, she said her kid is cured of autism

now? They always come along with the big fix, the instant cure, the

easy route to a good result. Who knows which way is up sometimes. I

just get...weary of each Oprah autism show. Who will come along next -

a famous person will briefly feel our pain and yet, they are better,

smarter, brighter, richer - and their kids are cured while the rest of

us slugs move along....

lol. Guess I sound a

bit jaded? But seriously, if her kid has seizures, a lot of his

problems or symptoms may be due to seizures as well as anything else

like autism. I didn't see the show. But I would wonder that first.

Second, I would wonder how old he is. I saw their picture, advertising

her new book, on the cover of People at the check out today. He looks

young. Easy to talk about cures at that age, IMO. They have no clue

what is ahead if it's really autism. Again, just a little snippet

without reading her/seeing her book. I don't want to either! She will

move along and be replaced by the next star-with-an-autistic-child.

What is more

interesting is the idea that one could be cured from autism. Because

this is neurological, I don't believe that happens. I think people

learn to adapt and adjust, just like everyone does. To what extent

they can do that, is the bigger question. I've said before that a lot

of hard work can improve a lot of things - lots of therapy and effort

can improve a child's outcomes. But sometimes you can do everything

under the son and not make big strides and improvements. Why not? Why do some kids improve, why do

some improve a lot and why do some improve so little. It is especially

interesting to me as I work with a little guy who has moderate/severe

autism. I spend hours with him and literally wonder the whole time -

why is this so hard for him? Will he suddenly hit a learning curve and

improve a lot? Is he destined to never come out of this autism fog at

all? And if not, why not? Why would he not but others who have had

less therapy improve drastically?

I never think, "gosh,

should he have taken a vitamin and then he'd be all better like this

famous lady's kid?" To me, the answers are harder than this. Each

little glitch inside - each connection that didn't connect - it all

weighs on him and prevents him from overcoming autism in a meaningful

way. I know, everyone has their POV and I've learned over the years to

just accept that for what it is. But I have mine as well. There are a

few things on my list of "grrr" and stars with autistic kids is one of

those on the list. I suppose it's nice to have people discussing

autism as a by-product of all this. But it's all an "oprah-y" kind of

way - they will move on to the next interesting item soon enough.

Roxanna

Autism Happens

-----

Original Message -----

From:

Rose

To:

Sent:

Monday, September 24, 2007 9:04 AM

Subject:

Re: ( ) Re: MCcarthey 20/20

Was MCcarthey's information helpful? do you think her

child was mis-diagnosed(from autism) because she says her

child is cured now? or do you think with all the interventions she has

done with her child that he's (still autistic) but, he learned to

adapt, to be age appropriate and non autistic like? by non-autistic I

mean: autistic traits not obvious because of the interventions? If

she were to stop all the interventions now because according to her,

her child is cured, would the autistic systems become noticeable again?

The reason why I ask is because, my son had the toe walking,

hand flapping, no eye contact, non -verbal till age of 3-31/2 and

aggressive. with early interventions at 18months old, and continued

therapies, he doesn't do any of these behaviors and does have speech.

He is still continuing therapy. To people of today who don't know how

intense and consistent all his therapies were and still have. they

wouldn't guess he has autism. But, when he is playing his favorite

ball game, being at the park or just getting very excited. I see the

hand flapping again. He did compensate with the hand flapping to

rolling his fingers and hand into each other. (not as obvious) but when

too excited he just can't help it. He can speak, but when needed(to

express a feeling) he is lost for words or holds them back. If

someone specializes in autism they can see it right away. but to a

parent that has no special needs child would not see it.

So, I'm wondering when MCcarthey says her son is cured

from autism. I'm wondering what she means by that?

Rose

KLMO <galady3744 > wrote:

She was on. It was the 2nd piece that they did. Not too

long. She said basically the same information as on her other

appearances. She is going to be on Larry King, also.

Luggage? GPS? Comic books?

Check out fitting gifts

for grads at Search.

Take the Internet to Go: Go puts the Internet

in your pocket: mail, news, photos mor

[Guest guest]

All I have to say is AMEN to everything you wrote Roxanna!!

Jackie

Owner of Sassy Banana Boutique

Boutique style hairbows & More

d at: www.sassybananaboutique.com

~~Mod for TabbyWabbyRibbon4Bows~~

On Sep 24, 2007, at 8:38 PM, Roxanna wrote:

> I didn't see her on any show or read her book - but sometimes - don't

> Hollywood types kind of rub you the wrong way?  I mean, she said her

> kid is cured of autism now?  They always come along with the big fix,

> the instant cure, the easy route to a good result.  Who knows which

> way is up sometimes.  I just get...weary of each Oprah autism show. 

> Who will come along next - a famous person will briefly feel our pain

> and yet, they are better, smarter, brighter, richer - and their kids

> are cured while the rest of us slugs move along....

>  

> lol.  Guess I sound a bit jaded?  But seriously, if her kid has

> seizures, a lot of his problems or symptoms may be due to seizures as

> well as anything else like autism.  I didn't see the show.  But I

> would wonder that first.  Second, I would wonder how old he is.  I saw

> their picture, advertising her new book, on the cover of People at the

> check out today.  He looks young.  Easy to talk about cures at that

> age, IMO.  They have no clue what is ahead if it's really autism. 

> Again, just a little snippet without reading her/seeing her book.  I

> don't want to either!  She will move along and be replaced by the next

> star-with-an-autistic-child. 

>  

> What is more interesting is the idea that one could be cured from

> autism.  Because this is neurological, I don't believe that happens. 

> I think people learn to adapt and adjust, just like everyone does.  To

> what extent they can do that, is the bigger question.  I've said

> before that a lot of hard work can improve a lot of things - lots of

> therapy and effort can improve a child's outcomes.  But sometimes you

> can do everything under the son and not make big strides and

> improvements.  Why not? Why do some kids improve, why do some improve

> a lot and why do some improve so little.  It is especially interesting

> to me as I work with a little guy who has moderate/severe autism.  I

> spend hours with him and literally wonder the whole time - why is this

> so hard for him?  Will he suddenly hit a learning curve and improve a

> lot?  Is he destined to never come out of this autism fog at all?  And

> if not, why not?  Why would he not but others who have had less

> therapy improve drastically? 

>  

> I never think, " gosh, should he have taken a vitamin and then he'd be

> all better like this famous lady's kid? "   To me, the answers are

> harder than this.  Each little glitch inside - each connection that

> didn't connect - it all weighs on him and prevents him from overcoming

> autism in a meaningful way.  I know, everyone has their POV and I've

> learned over the years to just accept that for what it is.  But I have

> mine as well.  There are a few things on my list of " grrr " and stars

> with autistic kids is one of those on the list.  I suppose it's nice

> to have people discussing autism as a by-product of all this.  But

> it's all an " oprah-y " kind of way - they will move on to the next

> interesting item soon enough. 

>  

> Roxanna

> Autism Happens

>> Re: ( ) Re: MCcarthey 20/20

>>

>>

>> Was  MCcarthey's information helpful?  do you think her child

>> was mis-diagnosed(from autism)  because she says her child is cured

>> now?  or do you think with all the interventions she has done with

>> her child that he's (still autistic) but, he learned to adapt, to be

>> age appropriate and non autistic like?  by non-autistic I mean: 

>> autistic traits not obvious because of the interventions?  If she

>> were to stop all the interventions now because according to her, her

>> child is cured, would the autistic systems become noticeable again?

>> The reason why I ask is because, my son had the toe walking, hand

>> flapping, no eye contact,  non -verbal till age of 3-31/2 and

>> aggressive.  with early interventions at 18months old, and continued

>> therapies, he doesn't do any of these behaviors and does have

>> speech.  He is still continuing therapy.  To people of today who

>> don't know how intense and consistent all his therapies were and

>> still have.  they wouldn't guess he has autism.  But, when he is

>> playing his favorite ball game, being at the park or just getting

>> very excited.  I see the hand flapping again.  He did compensate with

>> the hand flapping to rolling his fingers and hand into each other.

>> (not as obvious) but when too excited he just can't help it.  He can

>> speak, but when needed(to express a feeling)   he is lost for words

>> or holds them back.  If someone specializes in autism they can see it

>> right away.  but to a parent that has no special needs child would

>> not see it.

>> So, I'm wondering when MCcarthey says her son is cured from

>> autism.  I'm wondering what she means by that?

>> Rose

>>

>> KLMO <galady3744@...> wrote:

>>> She was on.  It was the 2nd piece that they did.  Not too long.  She

>>> said basically the same information as on her other appearances. 

>>> She is going to be on Larry King, also.

>>> Luggage? GPS? Comic books?

>>> Check out fitting gifts for grads at Search.

>>

>> Take the Internet to Go: Go puts the Internet in your pocket:

>> mail, news, photos more.

>>

>

[Guest guest]

Couldn't agree better!! I had the same opinion of her until I read the book and saw her on many talk shows. She doesn't mean cured in the sense that he is completely healed but he is doing better....

Re: ( ) Re: MCcarthey 20/20> > > > Was MCcarthey's information helpful? do you think her child was mis-diagnosed(from autism) because she says her child is cured now? or do you think with all the interventions she has done with her child that he's (still autistic) but, he learned to adapt, to be age appropriate and non autistic like? by non-autistic I mean: autistic traits not obvious because of the interventions? If she were to stop all the interventions now because according to her, her child is cured, would the autistic systems become noticeable again?> The reason why I ask is because, my son had the toe walking, hand flapping, no eye contact, non -verbal till age of 3-31/2 and aggressive. with early interventions at 18months old, and continued therapies, he doesn't do any of these behaviors and does have speech. He is still continuing therapy. To people of today who don't know how intense and consistent all his therapies were and still have. they wouldn't guess he has autism. But, when he is playing his favorite ball game, being at the park or just getting very excited. I see the hand flapping again. He did compensate with the hand flapping to rolling his fingers and hand into each other. (not as obvious) but when too excited he just can't help it. He can speak, but when needed(to express a feeling) he is lost for words or holds them back. If someone specializes in autism they can see it right away. but to a parent that has no special needs child would not see it.> So, I'm wondering when MCcarthey says her son is cured from autism. I'm wondering what she means by that?> Rose> > KLMO <galady3744@...> wrote: > She was on. It was the 2nd piece that they did. Not too long. She said basically the same information as on her other appearances. She is going to be on Larry King, also.> > ------------------------------------------------------------------> Luggage? GPS? Comic books? > Check out fitting gifts for grads at Search. > > > > > --------------------------------------------------------------------> Take the Internet to Go: Go puts the Internet in your pocket: mail, news, photos more.>

[Guest guest]

Well, that is probably my problem then - I never sat around thinking about this person before or who was watching her kid while she was filming whatever. I don't even know what she films. So to know that she was a good mom while flying here and there does not seem to alter my original thinking about this. I know, I should work harder at caring more about popular tv stars but I have been so sleep deprived by raising my kids with autism that I don't really even sit and watch tv shows except for a few really good ones. And haven't seen her in any of those.

I still think she has a long road to go before she can pretend to know how to cure autism. And if she doesn't mean "cure" then she should get a scriptwriter to find a new word for her to use. I am surprised all those groups that hate the idea of an "autism cure" are not out there with signs trying to push her down. Curious how that works. I don't pretend to understand it.

RoxannaAutism Happens

Re: ( ) Re: MCcarthey 20/20> > > > Was MCcarthey's information helpful? do you think her child was mis-diagnosed(from autism) because she says her child is cured now? or do you think with all the interventions she has done with her child that he's (still autistic) but, he learned to adapt, to be age appropriate and non autistic like? by non-autistic I mean: autistic traits not obvious because of the interventions? If she were to stop all the interventions now because according to her, her child is cured, would the autistic systems become noticeable again?> The reason why I ask is because, my son had the toe walking, hand flapping, no eye contact, non -verbal till age of 3-31/2 and aggressive. with early interventions at 18months old, and continued therapies, he doesn't do any of these behaviors and does have speech. He is still continuing therapy. To people of today who don't know how intense and consistent all his therapies were and still have. they wouldn't guess he has autism. But, when he is playing his favorite ball game, being at the park or just getting very excited. I see the hand flapping again. He did compensate with the hand flapping to rolling his fingers and hand into each other. (not as obvious) but when too excited he just can't help it. He can speak, but when needed(to express a feeling) he is lost for words or holds them back. If someone specializes in autism they can see it right away. but to a parent that has no special needs child would not see it.> So, I'm wondering when MCcarthey says her son is cured from autism. I'm wondering what she means by that?> Rose> > KLMO <galady3744@...> wrote: > She was on. It was the 2nd piece that they did. Not too long. She said basically the same information as on her other appearances. She is going to be on Larry King, also.> > ------------------------------------------------------------------> Luggage? GPS? Comic books? > Check out fitting gifts for grads at Search. > > > > > --------------------------------------------------------------------> Take the Internet to Go: Go puts the Internet in your pocket: mail, news, photos more.>

[Guest guest]

In the photo's, he looks like he is 3 or 4 years old.

RoxannaAutism Happens

Re: ( ) Re: MCcarthey 20/20> > > > Was MCcarthey's information helpful? do you think her child was mis-diagnosed(from autism) because she says her child is cured now? or do you think with all the interventions she has done with her child that he's (still autistic) but, he learned to adapt, to be age appropriate and non autistic like? by non-autistic I mean: autistic traits not obvious because of the interventions? If she were to stop all the interventions now because according to her, her child is cured, would the autistic systems become noticeable again?> The reason why I ask is because, my son had the toe walking, hand flapping, no eye contact, non -verbal till age of 3-31/2 and aggressive. with early interventions at 18months old, and continued therapies, he doesn't do any of these behaviors and does have speech. He is still continuing therapy. To people of today who don't know how intense and consistent all his therapies were and still have. they wouldn't guess he has autism. But, when he is playing his favorite ball game, being at the park or just getting very excited. I see the hand flapping again. He did compensate with the hand flapping to rolling his fingers and hand into each other. (not as obvious) but when too excited he just can't help it. He can speak, but when needed(to express a feeling) he is lost for words or holds them back. If someone specializes in autism they can see it right away. but to a parent that has no special needs child would not see it.> So, I'm wondering when MCcarthey says her son is cured from autism. I'm wondering what she means by that?> Rose> > KLMO <galady3744@...> wrote: > She was on. It was the 2nd piece that they did. Not too long. She said basically the same information as on her other appearances. She is going to be on Larry King, also.> > ------------------------------------------------------------------> Luggage? GPS? Comic books? > Check out fitting gifts for grads at Search. > > > > > --------------------------------------------------------------------> Take the Internet to Go: Go puts the Internet in your pocket: mail, news, photos more.>

Never miss a thing. Make your homepage.

[Guest guest]

How old is her son?Roxanna <madideas@...> wrote: Well, that is probably my problem then - I never sat around thinking about this person before or who was watching her kid while she was filming whatever. I don't even know what she films. So to know that she was a good mom while flying here and there does not seem to alter my original thinking about this. I know, I should work harder at caring more about popular tv stars but I have been so sleep deprived by raising my kids

with autism that I don't really even sit and watch tv shows except for a few really good ones. And haven't seen her in any of those. I still think she has a long road to go before she can pretend to know how to cure autism. And if she doesn't mean "cure" then she should get a scriptwriter to find a new word for her to use. I am surprised all those groups that hate the idea of an "autism cure" are not out there with signs trying to push her down. Curious how that works. I don't pretend to understand it. RoxannaAutism Happens Re: ( ) Re: MCcarthey 20/20> > > > Was MCcarthey's information helpful? do you think her

child was mis-diagnosed(from autism) because she says her child is cured now? or do you think with all the interventions she has done with her child that he's (still autistic) but, he learned to adapt, to be age appropriate and non autistic like? by non-autistic I mean: autistic traits not obvious because of the interventions? If she were to stop all the interventions now because according to her, her child is cured, would the autistic systems become noticeable again?> The reason why I ask is because, my son had the toe walking, hand flapping, no eye contact, non -verbal till age of 3-31/2 and aggressive. with early interventions at 18months old, and continued therapies, he doesn't do any of these behaviors and does have speech. He is still continuing therapy. To people of today who don't know how intense and consistent all his therapies were and still have. they wouldn't guess he has autism. But, when he

is playing his favorite ball game, being at the park or just getting very excited. I see the hand flapping again. He did compensate with the hand flapping to rolling his fingers and hand into each other. (not as obvious) but when too excited he just can't help it. He can speak, but when needed(to express a feeling) he is lost for words or holds them back. If someone specializes in autism they can see it right away. but to a parent that has no special needs child would not see it.> So, I'm wondering when MCcarthey says her son is cured from autism. I'm wondering what she means by that?> Rose> > KLMO <galady3744@...> wrote: > She was on. It was the 2nd piece that they did. Not too long. She said basically the same information as on her other appearances. She is going to be on Larry King, also.> >

------------------------------------------------------------------> Luggage? GPS? Comic books? > Check out fitting gifts for grads at Search. > > > > > --------------------------------------------------------------------> Take the Internet to Go: Go puts the Internet in your pocket: mail, news, photos more.>

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