Guest guest Posted January 9, 2003 Report Share Posted January 9, 2003 The lady who posted that her DS daughter like spicy foods reminded of something Emma's SLP said to me. She had been to a conference and they were told that oftentimes DS kids like spicier foods simply because they like and need more input, even in foods. It's just like Emma needing to have her hips pushed down to help her stand up so that her joints are receiving more input than her small weight can give. Perhaps the foods are just too bland in flavor? I haven't tried this on Emma because she is a very fair skinned child who still wears diapers and I'm afraid it will cause diaper rash, but I'm already seeing some stubborness re: food. Hope this helps, Jill (Mom to Luke, , Song, , & Emma--DS) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2003 Report Share Posted January 9, 2003 My son is only 22 months & once in awhile he'll try to eat like daddy off my husbands plate & he loves the spicy stuff. If he's open to try something other then his normal that day he will eat it. He just smiles at the hotness. At first i yelled at my husband for it & the our OT suggested i let him do it. It's not alot but ny loves it. My hubby just tries to not spice it to to much when he sees ny is interested. Re: food issues The lady who posted that her DS daughter like spicy foods reminded of something Emma's SLP said to me. She had been to a conference and they were told that oftentimes DS kids like spicier foods simply because they like and need more input, even in foods. It's just like Emma needing to have her hips pushed down to help her stand up so that her joints are receiving more input than her small weight can give. Perhaps the foods are just too bland in flavor? I haven't tried this on Emma because she is a very fair skinned child who still wears diapers and I'm afraid it will cause diaper rash, but I'm already seeing some stubborness re: food. Hope this helps, Jill (Mom to Luke, , Song, , & Emma--DS) Click reply to all for messages to go to the list. Just hit reply for messages to go to the sender of the message. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2003 Report Share Posted January 10, 2003 I went to a Sara Rosenfeld- conference and she said the same thing about spicy foods. She said it's common for kids with Ds to not only have low tone in the regular places we think about--legs, trunk, neck, tongue--but also the taste buds and the ability to taste is low tone--that's why they may really like spicy foods or even condiments (ketchup, dressing...) so they can better taste the food. I thought that was interesting and had never thought of that. Jill Mom to Mac & Kit Re: food issues > The lady who posted that her DS daughter like spicy foods reminded of > something Emma's SLP said to me. She had been to a conference and > they were told that oftentimes DS kids like spicier foods simply > because they like and need more input, even in foods. It's just like > Emma needing to have her hips pushed down to help her stand up so > that her joints are receiving more input than her small weight can > give. Perhaps the foods are just too bland in flavor? > > I haven't tried this on Emma because she is a very fair skinned child > who still wears diapers and I'm afraid it will cause diaper rash, but > I'm already seeing some stubborness re: food. > > Hope this helps, > > Jill (Mom to Luke, , Song, , & Emma--DS) > > > Click reply to all for messages to go to the list. Just hit reply for messages to go to the sender of the message. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 10, 2003 Report Share Posted January 10, 2003 My OT told me the same thing. Our kids taste buds are like the rest of them. Like their muscle tone is more flaccid, their taste buds are kind of flat. The spicy foods and bold flavors wakes up the mouth and makes food more interesting, Try lemons and salsa and Micah loves Lentil soup!!!! Oh yeah and garlic. Re: food issues > The lady who posted that her DS daughter like spicy foods reminded of > something Emma's SLP said to me. She had been to a conference and > they were told that oftentimes DS kids like spicier foods simply > because they like and need more input, even in foods. It's just like > Emma needing to have her hips pushed down to help her stand up so > that her joints are receiving more input than her small weight can > give. Perhaps the foods are just too bland in flavor? > > I haven't tried this on Emma because she is a very fair skinned child > who still wears diapers and I'm afraid it will cause diaper rash, but > I'm already seeing some stubborness re: food. > > Hope this helps, > > Jill (Mom to Luke, , Song, , & Emma--DS) > > > Click reply to all for messages to go to the list. Just hit reply for messages to go to the sender of the message. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2003 Report Share Posted January 15, 2003 Okay, since I never get to my email on a daily basis..... I am now reading all about the 'spicy' condiments etc... and taking notes. Mom to Jillian 1, DS Jake 6 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2003 Report Share Posted January 17, 2003 Cheese doodles are very good because they melt. This was the first food finger fed herself. Any other puffed food would be good Maureen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2003 Report Share Posted February 11, 2003 I also am having food problems. My is 20 months and will only eat 2nd stage foods. Now we are discovering that he is not only allergic to dairy, so he is on nutramigen formula, but might also be allergic to meats, so far we have recently taken turkey out of his diet. I and one of his pt said he might end up being a vegitarian. I feel so bad for him, because I love my meats. anyway, we can't get him to eat solids at all. We try all the time and he just either throws it on the ground or he clinches his lips tight. For Thanksgiving I tried to trick him and put so mashed potatoes in his bowl and used his spoon and as soon as I gave it to him he freaked out. He acted like I was trying to kill him. The therapist and his ped. said that he is just so picky and knows what he wants and what he doesn't. He will only eat these specific foods: (all foods are gerber 2nd stage), chicken, sweet potatoes, carrots, sweet peas and corn, stuff like that and as far as green stuff he is just now taking a liking to peas, and he has to be in the mood for green beans, and fruits he'll eat anything with bananas, everything else has to be mixed with cereal. I don't have the slightest idea what to do. At least you are able to eat the things she eats now. I would love if he would eat any solids period. Another bad part about this is he has 11 teeth. jolene 31yrs justin ray 20 months w/ds d'andre 8yrs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2003 Report Share Posted February 12, 2003 My sympathies that is on Nutramigen! was on that for the first year and it is sooooo expensive!!! Good luck with the eating issues, I know that can be so frustrating. It will come in time. Mom to (8, DS) and Grace (5) Now we are discovering that he is not only allergic to dairy, so he is on nutramigen formula, but might also be allergic to meats, so far we Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2004 Report Share Posted April 7, 2004 wow marta 2 years congrats and your wt loss is amazing take care amber Food issues I have completely changed the way I eat. I now am basically stir- frying meat and veggies, eating sprouted grain bread at least twice daily, and avoiding white flour like the plague. I do not overload on fats, either, but don't eat low fat foods. I *never* eat fast food, it turns my stomach just to think of it. I quit drinking soda, but if it was the only thing available I would drink it. I eat candy, but not in huge amounts. That's basically it. No exercise to speak of, lol. Shame on me! Marta two years on Saturday sticking at 126, dropped twenty lbs after tummy tuck BMI 50 down to BMI 24 ------------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 7, 2004 Report Share Posted April 7, 2004 wow marta 2 years congrats and your wt loss is amazing take care amber Food issues I have completely changed the way I eat. I now am basically stir- frying meat and veggies, eating sprouted grain bread at least twice daily, and avoiding white flour like the plague. I do not overload on fats, either, but don't eat low fat foods. I *never* eat fast food, it turns my stomach just to think of it. I quit drinking soda, but if it was the only thing available I would drink it. I eat candy, but not in huge amounts. That's basically it. No exercise to speak of, lol. Shame on me! Marta two years on Saturday sticking at 126, dropped twenty lbs after tummy tuck BMI 50 down to BMI 24 ------------------------------------------------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2006 Report Share Posted November 12, 2006 Hi My dd (10) has lots of food issues also. Her satiety switch never turns off lately either-lol!!! It's always something! hugs to you Judy L <bamama48@...> wrote: Hi again everyone! I really have to say once again how much I appreciate all of your postings. It is helping SO much to know I'm not alone in this. My daughter doesn't NOT eat. Ever since she was very young (she's 9 now) she has been " hungry " . I even think it started while she was breastfeeding. I kept telling the nurses and doctors through all of her check-ups, that I don't think Jessika knows when she's full. No one ever listened...it'll pass, they said. Well, now that she's overwieght it's a different story. Jeezzzz. I think she confuses hunger with other feelings and emotions and she says her stomach hurts A LOT! And that she's hungry and she has fits until she finally gets something to eat. If she knows something is in the kitchen she cannot relax until she gets to eat it. I finally got her in to see a dietician and she was absolutely NO help. I am so hoping that seeing a psykiatrist on Wednesday and finally getting a diagnosis and HOPEFULLY som help, will end up helping with the food issues also. I know it is all connected. I've always known!!! NOW, I hope my daughter and the rest of our family will finally start on our road to recovery. Thanks for listening! Hugs, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 12, 2006 Report Share Posted November 12, 2006 Hi My 7 year old daughter has satiety issues as well & has for most of her life. Her's are because she has Prader-Willi Syndrome. While many of the kids with satiety issues don't have PWS could be caused from side effects from medications they may be taking or stress related issues. I know how agrivating it can get having a kid who constantly asks for something to eat, as if we are short order cooks or something. I have to hide food & lock some foods up to prevent her from eating too much at one time. It's difficult for both me & her at times. Gretchen, mom to Tristan 7, PWS, OCD, SID, Hypotonia, Food Texture Sensitivity/ Oral Defensiveness, Sleep Apnea, Uninhibited Bladder Spasms & Allergies... > Hi again everyone! I really have to say once again how much I appreciate all of your postings. It is helping SO much to know I'm not alone in this. > > My daughter doesn't NOT eat. Ever since she was very young (she's 9 now) she has been " hungry " . I even think it started while she was breastfeeding. I kept telling the nurses and doctors through all of her check-ups, that I don't think Jessika knows when she's full. No one ever listened...it'll pass, they said. Well, now that she's overwieght it's a different story. Jeezzzz. > > I think she confuses hunger with other feelings and emotions and she says her stomach hurts A LOT! And that she's hungry and she has fits until she finally gets something to eat. If she knows something is in the kitchen she cannot relax until she gets to eat it. I finally got her in to see a dietician and she was absolutely NO help. > > I am so hoping that seeing a psykiatrist on Wednesday and finally getting a diagnosis and HOPEFULLY som help, will end up helping with the food issues also. I know it is all connected. I've always known!!! NOW, I hope my daughter and the rest of our family will finally start on our road to recovery. > > Thanks for listening! > Hugs, > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 2, 2009 Report Share Posted February 2, 2009 I have been thinking about this food stuff (allergies, gluten, carbs etc) and my kids and you know all my kids, both nt girls and my as boy, like the snacky foods and sweets. The major difference is that the girls have this little thing called fear of authority (mom and dad) that keeps them from taking without asking. My son on the other hand has this little thing called no impulse control. Therefore, he takes first and then begs forgiveness if and when he gets caught. As far as cravings, its really not just about the wheat and carbs. Most of these foods like crackers, cookies, candy, soda are also very high in sugar and fats. Or in other words, they taste good. Kids like junk food. Thats why we have an epidemic of obesity in this country. Take away a kids normal filters (ie Executive disfunction) and they are going to break all the rules and sneak or steal junk food. Vickie Quote Link to comment Share on other sites More sharing options...
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