Just checking in

[Guest guest]

Patty in Alaska, I'm glad to know you have a doctor's appointment next week. Maybe something straightforward will turn up, something with an easy solution. We'll be thinking of you.

Harper

[Guest guest]

In a message dated 12/1/01 6:13:02 PM Pacific Standard Time, seafarer52@... writes:

I am taking asprin and Ibuprofen but it doesnt last very long and it only takes the edge off.

See if your doctor can suggest something that might be safer for people with liver disease. Best wishes.

Harper

[Guest guest]

Hi Patty in Alaska,

Gosh...I am sorry you're feeling so tired and in pain.....

what a lot to deal with all at once...

I do agree with Ann though...about the other pain meds.

Only take what your doc. perscribes! wouldn't want you to suffer

anymore than you already are....

I read somewhere here about hot packs...seem they work for some people....heating pads too are good.....

I like a nice hot bath before bed........just be sure to use a good lotion afterwards....(without alcohol in it) bec. of the itching we all have!

I sure hope you feel better soon.....

HUGS, HUGS, HUGS TO YOU....

Bert.

**HAPPY**HOLIDAYS**

**AND WARM HUGS**

Bert.

[Guest guest]

Don't take aspirin. It harms the liver. At least that's what my dr. says. You should check with your doctor to find out what they can give you for the pain. I have trouble sleeping and toss and turn most of the night. I sometimes soak in the hot tub for a short time and that helps a little. Hope things get better for you. Ann [ ] just checking in Hi everyone. Im sorry I havent answered any posts lately. I have a Dr appt on Tuesday. Im feeling pretty darn awful! I only sleep about 3 hrs at a time and am tossing and turning the whole time. So I never feel rested. I am extremely irritable my joints are hurting me so badly. My hips, toes, knees, elbows, neck, shoulders, fingers!!!!!!!!!!!!! I am not on prednisone right now. Only Imuran. I dont know what in the world is going on. I have had pain before but I can barely climb the stairs. I have been suffering through this since around Thanksgiving. I feel Im going crazy. My liver feels ok though. I have dark circle under my eyes. I havent ever had that before. I had yellow eyes when I was diagnosed. My sister in law thinks I should be checked for anemia. I do have very bad monthly menstruals. I think my world is slowly coming apart for me. I cant even get excited about the holidays. I hurt constantly. I am taking asprin and Ibuprofen but it doesnt last very long and it only takes the edge off. What I would give for a day or two without pain. I really need to regroup and pull myself together. Thanks for the ear everyone... I will post when I know something. Or sooner perhaps. Patty in Alaska not Florida Aih 98peady Get your FREE download of MSN Explorer at http://explorer.msn.com

[Guest guest]

Patty,

Sounds awful, hang in there and torture your Dr for answers until you get some. I'm sorry I don't have any other suggestions...

Patty in Florida

-----Original Message-----From: patty eady [mailto:pattyeady@...]Sent: Saturday, December 01, 2001 8:51 PM Subject: [ ] just checking in

Hi everyone.

Im sorry I havent answered any posts lately. I have a Dr appt on Tuesday. Im feeling pretty darn awful! I only sleep about 3 hrs at a time and am tossing and turning the whole time. So I never feel rested. I am extremely irritable my joints are hurting me so badly. My hips, toes, knees, elbows, neck, shoulders, fingers!!!!!!!!!!!!! I am not on prednisone right now. Only Imuran. I dont know what in the world is going on. I have had pain before but I can barely climb the stairs. I have been suffering through this since around Thanksgiving. I feel Im going crazy. My liver feels ok though. I have dark circle under my eyes. I havent ever had that before. I had yellow eyes when I was diagnosed. My sister in law thinks I should be checked for anemia. I do have very bad monthly menstruals. I think my world is slowly coming apart for me. I cant even get excited about the holidays. I hurt constantly. I am taking asprin and Ibuprofen but it doesnt last very long and it only takes the edge off. What I would give for a day or two without pain. I really need to regroup and pull myself together. Thanks for the ear everyone... I will post when I know something. Or sooner perhaps.

Patty in Alaska not Florida

Aih 98peady

Get your FREE download of MSN Explorer at http://explorer.msn.com

[Guest guest]

Dear Patty,

I am so sorry to hear that you are doing so poorly. Praying that you

will feel much better soon. I know what you mean about the constant

pain as I have it too. I am so afraid to take anything that will

effect my liver that I don't even take the Ibuprophen. Take care and

let us know what dr. says.

~~~~~Joanna

AIH 8/01

[Guest guest]

Patty i sure will be praying for you . What a bad time you are haveing. When do you see the Dr.? Maybe you should call him NOW . Get Better!!! Sherry:

Hi everyone.

Im sorry I havent answered any posts lately. I have a Dr appt on Tuesday. Im feeling pretty darn awful! I only sleep about 3 hrs at a time and am tossing and turning the whole time. So I never feel rested. I am extremely irritable my joints are hurting me so badly. My hips, toes, knees, elbows, neck, shoulders, fingers!!!!!!!!!!!!! I am not on prednisone right now. Only Imuran. I dont know what in the world is going on. I have had pain before but I can barely climb the stairs. I have been suffering through this since around Thanksgiving. I feel Im going crazy. My liver feels ok though. I have dark circle under my eyes. I havent ever had that before. I had yellow eyes when I was diagnosed. My sister in law thinks I should be checked for anemia. I do have very bad monthly menstruals. I think my world is slowly coming apart for me. I cant even get excited about the holidays. I hurt constantly. I am taking asprin and Ibuprofen but it doesnt last very long and it only takes the edge off. What I would give for a day or two without pain. I really need to regroup and pull myself together. Thanks for the ear everyone... I will post when I know something. Or sooner perhaps.

Patty in Alaska not Florida

Aih 98peady

Get your FREE download of MSN Explorer at http://explorer.msn.com

[Guest guest]

Hi,

The doctors also warned me about Ibuprofen. Seems to be very bad for the liver.

Loes, The Netherlands

[ ] just checking in

Hi everyone.

Im sorry I havent answered any posts lately. I have a Dr appt on Tuesday. Im feeling pretty darn awful! I only sleep about 3 hrs at a time and am tossing and turning the whole time. So I never feel rested. I am extremely irritable my joints are hurting me so badly. My hips, toes, knees, elbows, neck, shoulders, fingers!!!!!!!!!!!!! I am not on prednisone right now. Only Imuran. I dont know what in the world is going on. I have had pain before but I can barely climb the stairs. I have been suffering through this since around Thanksgiving. I feel Im going crazy. My liver feels ok though. I have dark circle under my eyes. I havent ever had that before. I had yellow eyes when I was diagnosed. My sister in law thinks I should be checked for anemia. I do have very bad monthly menstruals. I think my world is slowly coming apart for me. I cant even get excited about the holidays. I hurt constantly. I am taking asprin and Ibuprofen but it doesnt last very long and it only takes the edge off. What I would give for a day or two without pain. I really need to regroup and pull myself together. Thanks for the ear everyone... I will post when I know something. Or sooner perhaps.

Patty in Alaska not Florida

Aih 98peady

Get your FREE download of MSN Explorer at http://explorer.msn.com

[Guest guest]

Loes,

Ibuprofen is just as dangerous as Tylenol. How my liver went into failure and I needed an emergency transplant. My doctors will approve no more than 2 grams of Tylenol, or use Aleve. For me I have so much pain right now I take Percosetts.

gayle/trans 6-99

galye@... q~q

^

[Guest guest]

Caroline,

Welcome to the group! I think of myself as " healthy " too (diagnosed

with AIH 12/2001)! I am glad to hear you are excercising! I also

love to swim and walk. I lift weights, too, to keep the osteoporosis

away! I think many people don't realize how much excercise can

help. It helps in every possible way, from stress reduction to

symptom control! I think that combined with healthy eating it even

helps the meds along! Keep on movin'!

p.s. I thought I posted this, but it got lost in cyber space...sorry

if it double posts later on!

> Hi everyone from a kiwi member. Normally I don't

> have access to a computer on a daily basis but have

> been living in a household with 2 of them and have

> taken time to play around etc.

> I have autoimmune hepatitis and would really enjoy

> being able to communicate with others either here in

> NZ or overseas.

> Am 54 and enjoy life - in fact I like to think I'm

> really quite healthy!!! However - there may be better

> ways of dealing with certain situations that can make

> life even better!

> Walking is about my most favourite from of exercise

> and I tend to do this as much as possible, I'd swim if

> the facilities were closer to home.

> Anyway - just thought I'd say hi. Caroline

>

> __________________________________________________

>

[Guest guest]

In a message dated 2/8/02 11:52:09 AM Pacific Standard Time, seajay192002@... writes:

Hi everyone from a kiwi member. Normally I don't

have access to a computer on a daily basis but have

been living in a household with 2 of them and have

taken time to play around etc.

I have autoimmune hepatitis and would really enjoy

being able to communicate with others either here in

NZ or overseas.

Am 54 and enjoy life - in fact I like to think I'm

really quite healthy!!! However - there may be better

ways of dealing with certain situations that can make

life even better!

Walking is about my most favourite from of exercise

and I tend to do this as much as possible, I'd swim if

the facilities were closer to home.

Anyway - just thought I'd say hi. Caroline

We're glad to hear from you, Caroline. You aren't the only Australian member.

Harper (AIH dx 5/00, female, 57)

[Guest guest]

In a message dated 2/8/02 11:52:09 AM Pacific Standard Time, seajay192002@... writes:

Hi everyone from a kiwi member. Normally I don't

have access to a computer on a daily basis but have

been living in a household with 2 of them and have

taken time to play around etc.

I have autoimmune hepatitis and would really enjoy

being able to communicate with others either here in

NZ or overseas.

Am 54 and enjoy life - in fact I like to think I'm

really quite healthy!!! However - there may be better

ways of dealing with certain situations that can make

life even better!

Walking is about my most favourite from of exercise

and I tend to do this as much as possible, I'd swim if

the facilities were closer to home.

Anyway - just thought I'd say hi. Caroline

In my message of a moment ago, I may have left the impression that I was one of the Australian contingency. Not so -- I live in the United States.

Harper

[Guest guest]

Welcome Caroline. We as a group are very understanding and try to answer as many questions that we can. Harper is very knowledgeable. More so then me. Bert is very funny and we all can contribute one way or another. Need to vent. This is the right place to be. Hope you stay healthy and are able to do everything you like. Ann CT [ ] just checking in Hi everyone from a kiwi member. Normally I don'thave access to a computer on a daily basis but havebeen living in a household with 2 of them and havetaken time to play around etc.I have autoimmune hepatitis and would really enjoybeing able to communicate with others either here inNZ or overseas.Am 54 and enjoy life - in fact I like to think I'mreally quite healthy!!! However - there may be betterways of dealing with certain situations that can makelife even better!Walking is about my most favourite from of exerciseand I tend to do this as much as possible, I'd swim ifthe facilities were closer to home.Anyway - just thought I'd say hi. Caroline__________________________________________________

[Guest guest]

Welcome Caroline! I am very glad you found this group! It will give you lots of information! Welcome! I was just dx July of 01...my labs are normal for now...this is good!

debby

[ ] just checking in

Hi everyone from a kiwi member. Normally I don'thave access to a computer on a daily basis but havebeen living in a household with 2 of them and havetaken time to play around etc.I have autoimmune hepatitis and would really enjoybeing able to communicate with others either here inNZ or overseas. Am 54 and enjoy life - in fact I like to think I'mreally quite healthy!!! However - there may be betterways of dealing with certain situations that can makelife even better!Walking is about my most favourite from of exerciseand I tend to do this as much as possible, I'd swim ifthe facilities were closer to home. Anyway - just thought I'd say hi. Caroline__________________________________________________

[Guest guest]

In a message dated 2/9/02 4:36:19 PM Pacific Standard Time, scott_p@... writes:

Harper.. kiwi is New Zeland ... Aussie is Austrailian.

Patty

Duuuh. Sorry.

Harper

[Guest guest]

Caroline,

We have another 'kiwi', also I think Bozena is an 'aussie'. Hope this is not

offensive... I don't think so but sorry in advance if I am non-PC. Welcome

to the group, we also have members from europe. Jeanette is from GB as is

? and Loes from Netherlands. Somehow the disease passes where ever it

pleases. Glad to hear you are so healthy. I think I'll go take a walk...

yeah right, not with my Husband barbequeing corn & chicken... I should make

a salad instead. Then walk!

Anyway welcome!

Patty - Miami

[ ] just checking in

Hi everyone from a kiwi member. Normally I don't

have access to a computer on a daily basis but have

been living in a household with 2 of them and have

taken time to play around etc.

I have autoimmune hepatitis and would really enjoy

being able to communicate with others either here in

NZ or overseas.

Am 54 and enjoy life - in fact I like to think I'm

really quite healthy!!! However - there may be better

ways of dealing with certain situations that can make

life even better!

Walking is about my most favourite from of exercise

and I tend to do this as much as possible, I'd swim if

the facilities were closer to home.

Anyway - just thought I'd say hi. Caroline

__________________________________________________

[Guest guest]

Also Bert gives good HUGS if you dare get close [she also has whizpoppers]

Patty

-----Original Message-----From: Ann Rita [mailto:seafarer52@...]Sent: Friday, February 08, 2002 9:30 PM Subject: Re: [ ] just checking in

Welcome Caroline. We as a group are very understanding and try to answer as many questions that we can. Harper is very knowledgeable. More so then me. Bert is very funny and we all can contribute one way or another. Need to vent. This is the right place to be. Hope you stay healthy and are able to do everything you like.

Ann CT

[ ] just checking in

Hi everyone from a kiwi member. Normally I don'thave access to a computer on a daily basis but havebeen living in a household with 2 of them and havetaken time to play around etc.I have autoimmune hepatitis and would really enjoybeing able to communicate with others either here inNZ or overseas.Am 54 and enjoy life - in fact I like to think I'mreally quite healthy!!! However - there may be betterways of dealing with certain situations that can makelife even better!Walking is about my most favourite from of exerciseand I tend to do this as much as possible, I'd swim ifthe facilities were closer to home.Anyway - just thought I'd say hi. Caroline__________________________________________________

[Guest guest]

Harper.. kiwi is New Zeland ... Aussie is Austrailian.

Patty

-----Original Message-----From: flatcat9@... [mailto:flatcat9@...]Sent: Saturday, February 09, 2002 1:03 AM Subject: Re: [ ] just checking inIn a message dated 2/8/02 11:52:09 AM Pacific Standard Time, seajay192002@... writes:

Hi everyone from a kiwi member. Normally I don't have access to a computer on a daily basis but have been living in a household with 2 of them and have taken time to play around etc. I have autoimmune hepatitis and would really enjoy being able to communicate with others either here in NZ or overseas. Am 54 and enjoy life - in fact I like to think I'm really quite healthy!!! However - there may be better ways of dealing with certain situations that can make life even better! Walking is about my most favourite from of exercise and I tend to do this as much as possible, I'd swim if the facilities were closer to home. Anyway - just thought I'd say hi. CarolineIn my message of a moment ago, I may have left the impression that I was one of the Australian contingency. Not so -- I live in the United States. Harper

[Guest guest]

I have been wondering why you refer to kiwi! I just thought you were talking aobut the silly fruit....yummy too...debby

RE: [ ] just checking in

Harper.. kiwi is New Zeland ... Aussie is Austrailian.

Patty

-----Original Message-----From: flatcat9@... [mailto:flatcat9@...]Sent: Saturday, February 09, 2002 1:03 AM Subject: Re: [ ] just checking inIn a message dated 2/8/02 11:52:09 AM Pacific Standard Time, seajay192002@... writes:

Hi everyone from a kiwi member. Normally I don't have access to a computer on a daily basis but have been living in a household with 2 of them and have taken time to play around etc. I have autoimmune hepatitis and would really enjoy being able to communicate with others either here in NZ or overseas. Am 54 and enjoy life - in fact I like to think I'm really quite healthy!!! However - there may be better ways of dealing with certain situations that can make life even better! Walking is about my most favourite from of exercise and I tend to do this as much as possible, I'd swim if the facilities were closer to home. Anyway - just thought I'd say hi. CarolineIn my message of a moment ago, I may have left the impression that I was one of the Australian contingency. Not so -- I live in the United States. Harper

[Guest guest]

Hi Amber,

A big WELCOME back to you! My you are the lucky person to trave in

Switzerland. Good for you!

>Am I suppose to take all the recommended vitamins daily (liquid

chlorophyll, vit b,c and e, fish and cod liver oil)?

Amber, the supplements are basic ones to help boost your immune

system until you get the diet in full swing. After that, you will

find most of what you need in the nutrient-dense diet I recommend,

except for: fish oils, cod liver oil & chlorophyll (I'm off almost

all supplements except these now). But you take cod liver oil in the

winter when you don't get enough sun to make vitamins A & D on your

skin, and switch to only " fish oils " in the summer, if you do get

enough sun.

>Also, is purple cabbage ok? And what > about Celestiel Teas?

Purple cabbage is great. I think I've had those teas, and if they

are decaffeinated they are okay.

It's good to have you back.

Warm regards,

Bee

[Guest guest]

Dear Lara,

Thanks so much for the update. I's happy to hear how well you are

progressing. I'm not much of a cook, but your fun in the kitchen

sounds great. Would you have any recipes you'd want to share - I'll

post them in our files.

Love your description about Oil of Oregano; I can identify

with " drooling afterward holding it your mouth " . When I bought my

first bottle of it, it said to put 3 drops under the tongue.

Woooeeee! Was that hot, to say the least. My eyes watered and I

literally drooled afterward. lol!

Cheers,

Bee

[Guest guest]

Suzie,

There is a way to swim (for me, at least) without too much pain. If you do the Australian Crawl, there is a way to do it almost in slow motion. Trying it in an empty lap lane helps a lot. One would have to do the correct breathing to do this. Instead of rotating the head and neck, it is possible to roll the whole body sort of like a log, breathe, and roll back the other way. I did this for a long time (no pool available right now) and was taught by another person with back pain. As it turned out, by doing the "slow motion" I actually picked up speed. This did not involve strenuous kicking -- more of a flutter kick.

I hope someone out there understands what I am trying to describe! We ended up with a little crew of people all doing the same thing -- no formal teacher.

Good luck to you in case you are able to try this. Sharon, are you there? How do you do it?

Carole M.

[Guest guest]

Suzie - Glad to see your post. If you have an aqua-jogger-type belt,

just put that on and " jog " in the water...even if you don't go anywhere

at first. Swimming is over-rated as far as I'm concerned - too painful

for me to do right now as well, but if I get in the water and just

MOVE, it feels so good to be weightless for a bit. When I am done with

my workout, I usually just hold the belt and dangle for a bit before I

get out. It allows all of my muscles to stretch just a bit and relaxes

me...so nice. That being said, I have a terrible sinus infection

(stress got the best of me) and opted to skip the water tonight. Oh,

how I would love to be there right now, though. Perhaps I will feel

sufficiently well tomorrow. ~kam

[Guest guest]

Sharon,

You really have EARNED your beautiful pool! How you have worked! We do a lot of yard work here, but no pool (yet). I can dream, can't I? Ha! Ha! I was thinking of massage, but was told not to try it. Boy! We all get different messages, right?

Carole

[Guest guest]

Hi Sharon,

I have just looked at your site and all the pictures. How beautiful! And, what great photography! Loved the dragon fly. We have a pentiant for them. Our little granddaughter has given us several make believe ones of different media for our gardens. We do get the real ones, too. But, your picture is just wonderful!

Thanks for including the link!

Carole