Guest guest Posted July 23, 2008 Report Share Posted July 23, 2008 Hi Sue I developed ReA in 1991 - I do have ongoing problems with it - I got a double dose, a few months after the initial onset after a urinary tract infection I then got really ill from Salmonella poisoning and off it went again. I don't want to scare you though, I have many other health issues going on at the same time. I have Ankylosing Spondlylitis and Fibromyalgia as well and had Chronic Fatigue for years, however that seems to be passing at last which is just wonderful. My main problem nowadays is my back from the AS., I am on a lot of painkillers for this and just yesterday my doctor added prednisone to help as well because my thoracic spine is fusing and the disease is very active causing a lot of problems just now. I know that this can sound frightening and depressing but as we all know, everyone is different and certainly not everyone goes on to develop anything more after ReA and in fact it can be a self limiting problem that eventually burns itself out in most cases although not all. I am not surprised that doctors have a hard time diagnosing and differentiating from each of these spondylitis type diseases as they are all so similar. Ask me any questions you may have, I don't mind in the least. Di Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2008 Report Share Posted July 24, 2008 Di: Are you able to work w/ your condition / pain? Regards, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2008 Report Share Posted July 25, 2008 Hi , unfortunately not - I have been on disability for quite some time - I have attempted to go back to work several times over the years but it was just too much - who wants to pay someone to do a job when they can't be relied upon? Losing my independence was probably the biggest problem and adjustment I have had to make since I contracted ReA. Regards, Di Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 20, 2008 Report Share Posted August 20, 2008 > > Hi , unfortunately not - I have been on disability for quite some > time - I only have been diagnosed a year and a half and I am going to part time work next week for the first time. Full time I get extremely tired. Ive called off more in the last year than I have in 26 years of working full time. I just get very achey, and exhausted. I get alot of foot and ankle pain also. Sue Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2009 Report Share Posted February 20, 2009 I am sitting here wondering if my son has aspergers. He was diagnosed with autism spectrum disorder then pdd-nos and I don't accept that one. But as of late he comes home feeling bad that he has no friends. No one will play with him on the playground. He just feels awefull. He does not understand not only what a friend is but more so how to make friends. We have had to stop him from talking about video games because if you let him that is all he will talk about. I have tried to talk to his speech theropist an she has no clue on how to help help him. is now being picked on at school on the playground and he he feels worse about that and I can only keep calling the school. I am looking for help and or ideas of what I can do for him. is not our only child on the spectrum his younger brother by 3 years also is on the spectrum. Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2009 Report Share Posted February 20, 2009 Hi , Welcome to you. I'm Sharon in New Jersey. My son is 18 and is an Aspie. (Asperger's syndrome) Sounds to me like yours is also. Asperger's is a social problem. My son knows alot of people, but is a loner, and doesn't feel he needs friends. And the same as your son, when he gets into a certain thing, whether it's wrestling, videos, the weather or any other subject he can go on about it also. Not as much as he used to when he was younger, he has gotten better. He used to get picked on also when he was young, but not really now, as he is a senior in high school. He told me when he was very young, that he didn't feel like the other kids. Took him longer to do things, (walk, talk, tie shoes, write sentences) Also, when he was younger he had a hard time taking direction. He didn't have much empathy either. And when he got upset he used (and still does sometimes) flap his hands. I have to say though, he is great young adult, polite, charming, intelligent, humorous, loving and kind. He also has a great vocabulary, which sometimes I think put the other kids off. He relates much better to adults, and children, but not his own peers. Hope this info has helped you. Good luck to you. Sharon From: athome_with_sarah <athome_with_sarah@...>Subject: ( ) Hello I am new here Date: Friday, February 20, 2009, 10:57 AM I am sitting here wondering if my son has aspergers. He was diagnosed with autism spectrum disorder then pdd-nos and I don't accept that one. But as of late he comes home feeling bad that he has no friends. No one will play with him on the playground. He just feels awefull. He does not understand not only what a friend is but more so how to make friends. We have had to stop him from talking about video games because if you let him that is all he will talk about. I have tried to talk to his speech theropist an she has no clue on how to help help him. is now being picked on at school on the playground and he he feels worse about that and I can only keep calling the school. I am looking for help and or ideas of what I can do for him. is not our only child on the spectrum his younger brother by 3 years also is on the spectrum. Thanks Quote Link to comment Share on other sites More sharing options...
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