Guest guest Posted September 24, 2007 Report Share Posted September 24, 2007 I watched it as well and wondered the same thing, . > > I watched 20/20 friday night and by my on screen guide was > supposed to be on there but i watched the whole thing and never saw > her on there at all? Does anyone know anything about it? > > brandi > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2007 Report Share Posted September 24, 2007 She was on about 8:20 pm Central time---it was a two hour show....it was brief. She was better--whole show---last Tuesday on Oprah---can probably find it if have TiVo / DVR to find a re-showing.....she was better on Oprah in my husband and my opinion----Ruthie ( ) McCarthey 20/20 I watched 20/20 friday night and by my on screen guide was supposed to be on there but i watched the whole thing and never saw her on there at all? Does anyone know anything about it?brandi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2007 Report Share Posted September 24, 2007 I tuned in late and thought I missed it! ( ) McCarthey 20/20 I watched 20/20 friday night and by my on screen guide was supposed to be on there but i watched the whole thing and never saw her on there at all? Does anyone know anything about it?brandi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2007 Report Share Posted September 24, 2007 makes sure to say that he is not cured, but that the changes they have made in his diet and therapy have helped to decrease the symptoms considerably. Her book is awesome! When I read it, I felt that it could have been our story as my son and her parallel quite a bit. I am not sure about likening autism to alcoholism, etc.... Our children have not made a "choice" at any point to partake in anything that brings about the autism symptoms. However, I do believe that through the therapy and constant day to day modifications, our children can be active members of society with minimal characteristics evident. Afterall, there isn't an "appearance" per se, so most people don't realize that my son is HFA unless they watch him or spend time with him. Definitely get her book, though..it's an easy read! Tonight's top picks. What will you watch tonight? Preview the hottest shows on TV. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2007 Report Share Posted September 24, 2007 KLMO, I don't think anyone was implementing that Autism and Alcoholism are the same. I think what she was saying is that with Alcoholism you can go to meetings and you will stop drinking (and other negative behaviors that follow alcoholism) as long as you keep going to the meetings, staying out of bars and anything that triggers that behavior. but the disease of Alcoholism is still there, your not cured, but in remission. if one would to stop going to the meetings (AAA) they can relapse and go back to drinking or that one drink is all it takes.. the meetings/sponsors are what is keeping that person sober. He/she is never cured of alcoholism. Now, I'm not saying Autism is a disease, but relating to the example with alcoholism, if we stopped all the therapies, interventions, services that was needed to get them to that appropriate state that they are in now. they might regress back to the past behaviors. (if they stopped all services) Autism will always be there, but they can be "active members of society. (with continuing some services). I hope I explained this right. My point is: I don't think she meant alcoholism and autism are the same. RoseKLMO <galady3744@...> wrote: makes sure to say that he is not cured, but that the changes they have made in his diet and therapy have helped to decrease the symptoms considerably. Her book is awesome! When I read it, I felt that it could have been our story as my son and her parallel quite a bit. I am not sure about likening autism to alcoholism, etc.... Our children have not made a "choice" at any point to partake in anything that brings about the autism symptoms. However, I do believe that through the therapy and constant day to day modifications, our children can be active members of society with minimal characteristics evident. Afterall, there isn't an "appearance" per se, so most people don't realize that my son is HFA unless they watch him or spend time with him. Definitely get her book, though..it's an easy read! Tonight's top picks. What will you watch tonight? Preview the hottest shows on TV. Pinpoint customers who are looking for what you sell. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2007 Report Share Posted September 24, 2007 NO---I did not mean that at all! I was using that as an example, among a list of others.....And, McCarthey did not say that either; she is using the diet, treatments, and I was referring to someone's post, asking if she means their child is 'cured.' So, by no means is it the same but an anology. Thanks. Ruthie Re: ( ) Re: MCcarthey 20/20 KLMO, I don't think anyone was implementing that Autism and Alcoholism are the same. I think what she was saying is that with Alcoholism you can go to meetings and you will stop drinking (and other negative behaviors that follow alcoholism) as long as you keep going to the meetings, staying out of bars and anything that triggers that behavior. but the disease of Alcoholism is still there, your not cured, but in remission. if one would to stop going to the meetings (AAA) they can relapse and go back to drinking or that one drink is all it takes.. the meetings/sponsors are what is keeping that person sober. He/she is never cured of alcoholism. Now, I'm not saying Autism is a disease, but relating to the example with alcoholism, if we stopped all the therapies, interventions, services that was needed to get them to that appropriate state that they are in now. they might regress back to the past behaviors. (if they stopped all services) Autism will always be there, but they can be "active members of society. (with continuing some services). I hope I explained this right. My point is: I don't think she meant alcoholism and autism are the same. RoseKLMO <galady3744 > wrote: makes sure to say that he is not cured, but that the changes they have made in his diet and therapy have helped to decrease the symptoms considerably. Her book is awesome! When I read it, I felt that it could have been our story as my son and her parallel quite a bit. I am not sure about likening autism to alcoholism, etc.... Our children have not made a "choice" at any point to partake in anything that brings about the autism symptoms. However, I do believe that through the therapy and constant day to day modifications, our children can be active members of society with minimal characteristics evident. Afterall, there isn't an "appearance" per se, so most people don't realize that my son is HFA unless they watch him or spend time with him. Definitely get her book, though..it's an easy read! Tonight's top picks. What will you watch tonight? Preview the hottest shows on TV. Pinpoint customers who are looking for what you sell. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2007 Report Share Posted September 24, 2007 Rose, I guess my post seemed abrupt..forgive me...I didn't mean to sound rude, hopefully I didn't. I guess putting the two in one sentence just hit a cord. Not to get personal, but my biological father was a very abusive alcoholic. In all actuality, he probably has Asperger's. I totally believe that based on what I know of him and his behaviors that he is...but was raised in a time where the dx didn't exist. Sorry... Catch up on fall's hot new shows on TV. Watch previews, get listings, and more! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2007 Report Share Posted September 24, 2007 Hi ! I think we all can have our own " triggers. " For example, when Oprah was quoting part of 's book, it rubbed me the wrong way. It was a quote about how if your child had cancer, the community would rally behind you and support you; but if your child has an autism spectrum disorder, folks walk the other way in a grocery store. I'm optimistic that there was no intentional slight there, but the suggestion is there that " it's better if your child had cancer than being diagnosed with an autism spectrum disorder. " That was my trigger. The two are very distinct and are not comparable. A child having cancer is NEVER better than anything else. I don't think that was the message she was trying to say, but that's how it came across to me. My experience, when my child had cancer, the community did not rally behind us [we lost a lot of friends and many neighbours would not speak to me for years until they felt he was " cured " ]. On the other hand, with his Asperger diagnosis, the school folks and friends and neighbours have all been wonderful at supporting him (and me). He is doing as well as he is because of the compassionate, patient and caring folks in the community who present opportunities for him and don't get angry/frustrated when his reactions aren't " typical " ; instead, they'll try again at a later date with encouragement. Tea ----- Original Message ----- I guess my post seemed abrupt..forgive me...I didn't mean to sound rude, hopefully I didn't. I guess putting the two in one sentence just hit a cord. Not to get personal, but my biological father was a very abusive alcoholic. In all actuality, he probably has Asperger's. I totally believe that based on what I know of him and his behaviors that he is...but was raised in a time where the dx didn't exist. Sorry... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2007 Report Share Posted September 24, 2007 KLMO, You didn't sound abrupt nor rude. And you shared your opinion which is great and what this site is all about. You have nothing to be sorry for. Except I'm sorry about your past. (abusive bio-father). But we are all here to learn from each other. thanks for posting what you posted. others might of read it that same way as you and have another understanding. And you are right, the two are very different. Hugs to you RoseKLMO <galady3744@...> wrote: Rose, I guess my post seemed abrupt..forgive me...I didn't mean to sound rude, hopefully I didn't. I guess putting the two in one sentence just hit a cord. Not to get personal, but my biological father was a very abusive alcoholic. In all actuality, he probably has Asperger's. I totally believe that based on what I know of him and his behaviors that he is...but was raised in a time where the dx didn't exist. Sorry... Catch up on fall's hot new shows on TV. Watch previews, get listings, and more! Fussy? Opinionated? Impossible to please? Perfect. Join 's user panel and lay it on us. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2007 Report Share Posted September 25, 2007 Hi Rose, My son has been OT [off treatment] for Wilms since 2000. Autism spectrum disorders aren't the only place that struggle with the word "cured." I don't tell folks my son is "cured." Rather, I use the term NED [no evidence of disease]. I don't like the word "cured" because it gives folks the false impression that everything is fine and back to the way things were before cancer diagnosis. As I've outlined, he has some long-term effects from the treatment and we go for annual checkups because there are other possible side effects that may show up years later [or, hopefully, never at all]. The risk of relapse is very small for him. So I'm not that worried that his cancer will return. He is at a higher risk for a secondary cancer [because of treatment]. Aside from the physical side-effects, there are emotional and psychological effects as well [part of the reason it took so long to get him assessed and diagnosed with Asperger's - for a while I thought his behaviours were a result/reaction to the cancer experience (I'm sure it didn't help), but he was exhibiting Aspie traits even before the cancer diagnosis]. Overall, health-wise, he's doing VERY well. We're dealing with GI issues (specifically stomach cramps and constipation) and that seems to be the worst we're dealing with now. So nice to meet all of you, Tea http://www.caringbridge.org/visit/luke99 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2007 Report Share Posted September 25, 2007 Tea, I'm glad to hear your son is doing much better.. You wrote, {{{ for a while I thought his behaviors were a result/reaction to the cancer experience}}}. That's what I was already thinking as I was reading your post. the behaviors was from the cancer experience. You are one strong determine mom. you keep going and take it to that next step and search further. AND THEN YOUR RIGHT!!!! you go mom!!!! you are an excellent advocate for your children. Also, you must of researched many doctors to find a good doctor to pick this up. (aspergers) and not be so quick to point it towards his past medical condition/treatments. hugs Rose Hi Rose, My son has been OT [off treatment] for Wilms since 2000. Autism spectrum disorders aren't the only place that struggle with the word "cured." I don't tell folks my son is "cured." Rather, I use the term NED [no evidence of disease]. I don't like the word "cured" because it gives folks the false impression that everything is fine and back to the way things were before cancer diagnosis. As I've outlined, he has some long-term effects from the treatment and we go for annual checkups because there are other possible side effects that may show up years later [or, hopefully, never at all]. The risk of relapse is very small for him. So I'm not that worried that his cancer will return. He is at a higher risk for a secondary cancer [because of treatment]. Aside from the physical side-effects, there are emotional and psychological effects as well [part of the reason it took so long to get him assessed and diagnosed with Asperger's - for a while I thought his behaviours were a result/reaction to the cancer experience (I'm sure it didn't help), but he was exhibiting Aspie traits even before the cancer diagnosis]. Overall, health-wise, he's doing VERY well. We're dealing with GI issues (specifically stomach cramps and constipation) and that seems to be the worst we're dealing with now. So nice to meet all of you, Tea http://www.caringbridge.org/visit/luke99 Got a little couch potato? Check out fun summer activities for kids. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2007 Report Share Posted September 25, 2007 Yeah, I think what she was saying is that when your child has a clinical medical diagnosis, people jump in with both feet to help you, but when your child is diagnosed with an autism spectrum disorder, people don't know what to do or don't care to try so they walk the other way. I can understand her point, too -- I've got a child with epilepsy (not cancer, but a clinical medical diagnosis) and when she was diagnosed, people were more available than when my son was diagnosed. Some people babied her, but when my son acted out due to his autism, those same people told me to spank him or not let him get away with it -- but both are very real disorders. I think the difference that she's trying to point out mostly is that a proven, medical diagnosis is more accepted than a behavioral one. Tea wrote: Hi ! I think we all can have our own "triggers." For example, when Oprah was quoting part of 's book, it rubbed me the wrong way. It was a quote about how if your child had cancer, the community would rally behind you and support you; but if your child has an autism spectrum disorder, folks walk the other way in a grocery store. I'm optimistic that there was no intentional slight there, but the suggestion is there that "it's better if your child had cancer than being diagnosed with an autism spectrum disorder." That was my trigger. The two are very distinct and are not comparable. A child having cancer is NEVER better than anything else. I don't think that was the message she was trying to say, but that's how it came across to me. My experience, when my child had cancer, the community did not rally behind us [we lost a lot of friends and many neighbours would not speak to me for years until they felt he was "cured"]. On the other hand, with his Asperger diagnosis, the school folks and friends and neighbours have all been wonderful at supporting him (and me). He is doing as well as he is because of the compassionate, patient and caring folks in the community who present opportunities for him and don't get angry/frustrated when his reactions aren't "typical"; instead, they'll try again at a later date with encouragement. Tea ----- Original Message ----- I guess my post seemed abrupt..forgive me...I didn't mean to sound rude, hopefully I didn't. I guess putting the two in one sentence just hit a cord. Not to get personal, but my biological father was a very abusive alcoholic. In all actuality, he probably has Asperger's. I totally believe that based on what I know of him and his behaviors that he is...but was raised in a time where the dx didn't exist. Sorry... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2008 Report Share Posted February 27, 2008 ok this has started so much hostility,I was wondering...Exactly how many of us could even afford it if we had the chance to take our children to DAN? I know I couldn't .I firmly believe it was created for and by people who have lots of money. Us Peons who aren't rich are left to suffer with all of the many problems our children are developing. Or am I alone in this? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2008 Report Share Posted February 27, 2008 No you are not alone, we live on a fixed income pretty much, my boyfriend has been working but he has Fibromalgia (sorry don't know how to spell that) and not sure how long he can keep doing it, so this would not even be an option for us just like the special diets, i am not sure we could manage that as we have large family w/ not enough income. Sherrydgoneau <dgoneau@...> wrote: ok this has started so much hostility,I was wondering...Exactly how many of us could even afford it if we had the chance to take our children to DAN? I know I couldn't .I firmly believe it was created for and by people who have lots of money. Us Peons who aren't rich are left to suffer with all of the many problems our children are developing. Or am I alone in this? Looking for last minute shopping deals? Find them fast with Search. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2008 Report Share Posted February 28, 2008 I think that about so many things really. There was a cute joke I heard a while ago that reminds me of our situations with autism. A farmer had a box of kittens and needed to get rid of them. He put out a sign, "Free kittens." Nobody came and got a kitten. Then he put out a sign, "Amish kittens, $20" and they were gone by the end of the day. It's probably told a lot better than I just did. lol. I'm not a good joke teller. But it seems to me as if you put the word "autism" on a book and it suddenly costs $30 more than it is worth. Ditto with fabrics, keychains - anything to do with autism. The cost for these tests they give kids on their hair and their pee and everything else - just to sell more vitamins or whatever. It just seems a good way to make money. One time at a meeting we had of our autism group, one parent brought in a video of her kid getting his treatment from his DAN doctor. The theory was that he was "allergic" to foods. So he laid on this table and the DAN doc went over his body pushing on various parts. Done. All done. He would come back for another treatment like that and eventually be "cured" and not be allergic to foods any more. There was a big explanation about how the doc was channeling the allergy out of him by touching him in certain places. Or something like that. It's been a long time (maybe 5 years) since I have seen this video. But I really wondered how much they were paying for this. I bet a lot! We seem to be out of the loop in this area - and yes, they all had the money or managed to get the money to do these kinds of things. One lady didn't and I remember she would wait until she could afford each segment of the treatment. I guess it didn't matter when you did this stuff (relative to previous treatments.) RoxannaAutism Happens ( ) Re: MCcarthey 20/20 ok this has started so much hostility,I was wondering...Exactly how many of us could even afford it if we had the chance to take our children to DAN? I know I couldn't .I firmly believe it was created for and by people who have lots of money. Us Peons who aren't rich are left to suffer with all of the many problems our children are developing. Or am I alone in this? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2008 Report Share Posted February 28, 2008 Cute Roxanna and i agree w/ the prices people and or drs. want to charge for things that are possibly helpful for our children, or that raise awareness,some of it is just outragous.SherryRoxanna <madideas@...> wrote: I think that about so many things really. There was a cute joke I heard a while ago that reminds me of our situations with autism. A farmer had a box of kittens and needed to get rid of them. He put out a sign, "Free kittens." Nobody came and got a kitten. Then he put out a sign, "Amish kittens, $20" and they were gone by the end of the day. It's probably told a lot better than I just did. lol. I'm not a good joke teller. But it seems to me as if you put the word "autism" on a book and it suddenly costs $30 more than it is worth. Ditto with fabrics, keychains - anything to do with autism. The cost for these tests they give kids on their hair and their pee and everything else - just to sell more vitamins or whatever. It just seems a good way to make money. One time at a meeting we had of our autism group, one parent brought in a video of her kid getting his treatment from his DAN doctor. The theory was that he was "allergic" to foods. So he laid on this table and the DAN doc went over his body pushing on various parts. Done. All done. He would come back for another treatment like that and eventually be "cured" and not be allergic to foods any more. There was a big explanation about how the doc was channeling the allergy out of him by touching him in certain places. Or something like that. It's been a long time (maybe 5 years) since I have seen this video. But I really wondered how much they were paying for this. I bet a lot! We seem to be out of the loop in this area - and yes, they all had the money or managed to get the money to do these kinds of things. One lady didn't and I remember she would wait until she could afford each segment of the treatment. I guess it didn't matter when you did this stuff (relative to previous treatments.) RoxannaAutism Happens ( ) Re: MCcarthey 20/20 ok this has started so much hostility,I was wondering...Exactly how many of us could even afford it if we had the chance to take our children to DAN? I know I couldn't .I firmly believe it was created for and by people who have lots of money. Us Peons who aren't rich are left to suffer with all of the many problems our children are developing. Or am I alone in this? Be a better friend, newshound, and know-it-all with Mobile. Try it now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2008 Report Share Posted February 28, 2008 I may be wrong and I am sure someone will correct me if I am – LOL. But, since the whole DAN subject has come up and been so controversial I have done some research. From what I can find there are no scientific studies (research) to support DAN therapies. I don’t mean studies that DAN doctors or their Autism Research Institute has done, I mean real scientific studies. A scientific study is based on gathering observable, empirical, and measurable evidence subject to specific principles of reasoning – in other words, the scientific method is used which consists of data collection through observation and experimentation and then formulating and testing of hypotheses (suggested explanations). Scientific researchers propose hypotheses (suggested explanations) and design experimental studies to test these hypotheses. These steps must be repeatable in order to dependably predict any future results. This process must be objective to reduce a biased interpretation. Another expectation of scientific research is to document, archive, and share all data and methodology so other scientists can scrutinize it and verify the results by attempting to reproduce it. Scientific work will be accepted by the scientific community when it has been confirmed and when it is reproduced by others (independent of the initial researcher(s)) in the scientific community. This is called peer review. The researcher writes a paper detailing his research and results and presents it to editors of scientific journals. These editors then submits this paper to 1-3 fellow anonymous scientists familiar with the field for evaluation. Once they complete their evaluation they may or may not recommend publication, publication w/ suggested modifications, or publication in another journal. This keeps the scientific literature free of unscientific or crackpot work, helps cut down on obvious errors, and improves the quality of the scientific literature. Work announced in the popular press (newspapers, magazines, etc.) before going thru this process is generally frowned upon and looked at as questionable. I think that DAN doctors and therapies are often not reimbursed by insurance as they are considered “alternative” therapies. Sorry, this is so long. If anyone wants to read more about scientific method you can google it. (I am laughing out loud as I am sure I have told you more than you ever wanted to know about it!!) I used Wickipedia to help me explain it in layman’s terms. I am a nurse; part of my educational requirement was two classes that dealt specifically with research – a statistics class and a research class. I know I am weird but I liked both of these classes and find research interesting! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2008 Report Share Posted February 28, 2008 I CAN NOT afford it!!dgoneau <dgoneau@...> wrote: ok this has started so much hostility,I was wondering...Exactly how many of us could even afford it if we had the chance to take our children to DAN? I know I couldn't .I firmly believe it was created for and by people who have lots of money. Us Peons who aren't rich are left to suffer with all of the many problems our children are developing. Or am I alone in this? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2008 Report Share Posted February 28, 2008 – I just asked this question in a long post earlier but insurance generally does not pay for DAN treatment does it? From: [mailto: ] On Behalf Of Ake Sent: Thursday, February 28, 2008 5:57 PM Subject: Re: ( ) Re: MCcarthey 20/20 I CAN NOT afford it!! dgoneau <dgoneau@...> wrote: ok this has started so much hostility,I was wondering...Exactly how many of us could even afford it if we had the chance to take our children to DAN? I know I couldn't .I firmly believe it was created for and by people who have lots of money. Us Peons who aren't rich are left to suffer with all of the many problems our children are developing. Or am I alone in this? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2008 Report Share Posted February 28, 2008 Just off the top of my head, I couldn't afford it. But, if it sounded like good results were possible and if I tried it once and thought it may help more in the long run,,,,,I'd find the money, If that meant cancelling Cable or whatever. I'd find the money. I think for something that we either thought WOULD work or DID work,,,,,,we'd all find the money. Right? Robin Ake <lessen@...> wrote: I CAN NOT afford it!!dgoneau <dgoneau > wrote: ok this has started so much hostility,I was wondering...Exactly how many of us could even afford it if we had the chance to take our children to DAN? I know I couldn't .I firmly believe it was created for and by people who have lots of money. Us Peons who aren't rich are left to suffer with all of the many problems our children are developing. Or am I alone in this? Never miss a thing. Make your homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2008 Report Share Posted February 28, 2008 I think all of us would find the money for something that had been proven to help or had proven to have a good possibility of helping our children. I am happy for anyone who is seeing improvements in their children. Again, I have very strong reservations about the DAN thing – all very logical reasons that I have fully explained in this group. All the mainstream therapies that are spoken about in this group have been studied and have supporting documentation to show they are effective. From: [mailto: ] On Behalf Of and/or Robin Lemke Sent: Thursday, February 28, 2008 7:36 PM Subject: Re: ( ) Re: MCcarthey 20/20 Just off the top of my head, I couldn't afford it. But, if it sounded like good results were possible and if I tried it once and thought it may help more in the long run,,,,,I'd find the money, If that meant cancelling Cable or whatever. I'd find the money. I think for something that we either thought WOULD work or DID work,,,,,,we'd all find the money. Right? Robin Ake <lessensbcglobal (DOT) net> wrote: I CAN NOT afford it!! dgoneau <dgoneau > wrote: ok this has started so much hostility,I was wondering...Exactly how many of us could even afford it if we had the chance to take our children to DAN? I know I couldn't .I firmly believe it was created for and by people who have lots of money. Us Peons who aren't rich are left to suffer with all of the many problems our children are developing. Or am I alone in this? Never miss a thing. Make your homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2008 Report Share Posted February 28, 2008 absolutely, I'm <<finding>> the money for everything we need for now. tutoring, doctors, co-pay, therapy, social skills and gas. LOL, sometimes I'm counting change too. LOL. for us, this is all working, you know Robin, us parents aren't out there doing our nails every week, and going out to clubs and expensive restaurants, but instead, we're all doing what we need to do for our kids. right now, this is it for us. and because of this, my son went from " with his reading state test, " not meeting the learning standards, to a year later, with all the after school reading programs and tutoring, ' grade level, above average '. and everyplace I need to take him is from 20 minutes to 1 1/2 hrs away, each.. I can see he will be in the skills group for a very long time. now we are working on life skills. I just got someone to help me with that. yea !!! we are getting there very slow, but its in the right direction... I do want to compliment his teacher... today, he got his mark back on his writing report. is was a low passing grade. my son told me at the end of the day. his teacher called him back into the room. said to him that he did a great job. ( she knew where he came from - with reading, writing & spelling). she said, I can tell this is all your work without any help from your mom, and you typed it up by yourself. she also explained to him I can tell with some others, it looked like their parents wrote and typed the whole report for them. but she made my son feel ' good ' about himself because it was his work...and what an improvement from a kid who couldn't read, write, or spell - AT ALL...so, even though he got a very low passing mark, it's so much better then what he used to do, which was have only one incomplete sentence that you couldn't read because of the spelling. so with all that said, if there were something else that works better, and has better results, I'll get the money for it, even if I have to work 3 jobs to do it...*smile*. Rose and/or Robin Lemke <jrisjs@...> wrote: Just off the top of my head, I couldn't afford it. But, if it sounded like good results were possible and if I tried it once and thought it may help more in the long run,,,,,I'd find the money, If that meant cancelling Cable or whatever. I'd find the money. I think for something that we either thought WOULD work or DID work,,,,,,we'd all find the money. Right? Robin Ake <lessensbcglobal (DOT) net> wrote: I CAN NOT afford it!!dgoneau <dgoneau > wrote: ok this has started so much hostility,I was wondering...Exactly how many of us could even afford it if we had the chance to take our children to DAN? I know I couldn't .I firmly believe it was created for and by people who have lots of money. Us Peons who aren't rich are left to suffer with all of the many problems our children are developing. Or am I alone in this? Never miss a thing. Make your homepage. Never miss a thing. Make your homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2008 Report Share Posted February 28, 2008 Unfortuantely I do not have time to wait for this research to be done. I spent time reading research in college and did know prior to starting the diet that no real research exists. My daughter was 4 already and I wanted to start on treatment as early as possible. I spent almost 3 months researching before trying anything. I never considered the diet to be anything other than trying something to see if it worked. She was not eating well anyway so I considered it may be a step up in nutrition if I could get her to eat meat or veggies. I was concerned about the nutrients lost with the diet and eventually was able to get her to eat more of a varied diet. Many lost nutrients were gained in other food groups. I tried it not to cure her but to help her if she did have digestions issues. She made much more progress than I expected. > > I may be wrong and I am sure someone will correct me if I am - LOL. But, > since the whole DAN subject has come up and been so controversial I have > done some research. From what I can find there are no scientific studies > (research) to support DAN therapies. I don't mean studies that DAN doctors > or their Autism Research Institute has done, I mean real scientific studies. > A scientific study is based on gathering observable, empirical, and > measurable evidence subject to specific principles of reasoning - in other > words, the scientific method is used which consists of data collection > through observation and experimentation and then formulating and testing of > hypotheses (suggested explanations). Scientific researchers propose > hypotheses (suggested explanations) and design experimental studies to test > these hypotheses. These steps must be repeatable in order to dependably > predict any future results. This process must be objective to reduce a > biased interpretation. Another expectation of scientific research is to > document, archive, and share all data and methodology so other scientists > can scrutinize it and verify the results by attempting to reproduce it. > Scientific work will be accepted by the scientific community when it has > been confirmed and when it is reproduced by others (independent of the > initial researcher(s)) in the scientific community. This is called peer > review. The researcher writes a paper detailing his research and results > and presents it to editors of scientific journals. These editors then > submits this paper to 1-3 fellow anonymous scientists familiar with the > field for evaluation. Once they complete their evaluation they may or may > not recommend publication, publication w/ suggested modifications, or > publication in another journal. This keeps the scientific literature free > of unscientific or crackpot work, helps cut down on obvious errors, and > improves the quality of the scientific literature. Work announced in the > popular press (newspapers, magazines, etc.) before going thru this process > is generally frowned upon and looked at as questionable. I think that DAN > doctors and therapies are often not reimbursed by insurance as they are > considered " alternative " therapies. > > > > Sorry, this is so long. If anyone wants to read more about scientific > method you can google it. (I am laughing out loud as I am sure I have told > you more than you ever wanted to know about it!!) I used Wickipedia to help > me explain it in layman's terms. I am a nurse; part of my educational > requirement was two classes that dealt specifically with research - a > statistics class and a research class. I know I am weird but I liked both > of these classes and find research interesting! > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2008 Report Share Posted February 28, 2008 That's awesome about your sons' paper!!!!Yay!!!!!!!!!!!!!!!!!!!!! RobinRose <beachbodytan2002@...> wrote: absolutely, I'm <<finding>> the money for everything we need for now. tutoring, doctors, co-pay, therapy, social skills and gas. LOL, sometimes I'm counting change too. LOL. for us, this is all working, you know Robin, us parents aren't out there doing our nails every week, and going out to clubs and expensive restaurants, but instead, we're all doing what we need to do for our kids. right now, this is it for us. and because of this, my son went from " with his reading state test, " not meeting the learning standards, to a year later, with all the after school reading programs and tutoring, ' grade level, above average '. and everyplace I need to take him is from 20 minutes to 1 1/2 hrs away, each.. I can see he will be in the skills group for a very long time. now we are working on life skills. I just got someone to help me with that. yea !!! we are getting there very slow, but its in the right direction... I do want to compliment his teacher... today, he got his mark back on his writing report. is was a low passing grade. my son told me at the end of the day. his teacher called him back into the room. said to him that he did a great job. ( she knew where he came from - with reading, writing & spelling). she said, I can tell this is all your work without any help from your mom, and you typed it up by yourself. she also explained to him I can tell with some others, it looked like their parents wrote and typed the whole report for them. but she made my son feel ' good ' about himself because it was his work...and what an improvement from a kid who couldn't read, write, or spell - AT ALL...so, even though he got a very low passing mark, it's so much better then what he used to do, which was have only one incomplete sentence that you couldn't read because of the spelling. so with all that said, if there were something else that works better, and has better results, I'll get the money for it, even if I have to work 3 jobs to do it...*smile*. Rose and/or Robin Lemke <jrisjs > wrote: Just off the top of my head, I couldn't afford it. But, if it sounded like good results were possible and if I tried it once and thought it may help more in the long run,,,,,I'd find the money, If that meant cancelling Cable or whatever. I'd find the money. I think for something that we either thought WOULD work or DID work,,,,,,we'd all find the money. Right? Robin Ake <lessensbcglobal (DOT) net> wrote: I CAN NOT afford it!!dgoneau <dgoneau > wrote: ok this has started so much hostility,I was wondering...Exactly how many of us could even afford it if we had the chance to take our children to DAN? I know I couldn't .I firmly believe it was created for and by people who have lots of money. Us Peons who aren't rich are left to suffer with all of the many problems our children are developing. Or am I alone in this? Never miss a thing. Make your homepage. Never miss a thing. Make your homepage. Never miss a thing. Make your homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2008 Report Share Posted February 28, 2008 I don't know that this is how it goes, unfortunately. I think people kind of scramble to put together their own version of it to save on the costs. RoxannaAutism Happens Re: ( ) Re: MCcarthey 20/20 Just off the top of my head, I couldn't afford it. But, if it sounded like good results were possible and if I tried it once and thought it may help more in the long run,,,,,I'd find the money, If that meant cancelling Cable or whatever. I'd find the money. I think for something that we either thought WOULD work or DID work,,,,,,we'd all find the money. Right? Robin Ake <lessensbcglobal (DOT) net> wrote: I CAN NOT afford it!!dgoneau <dgoneau > wrote: ok this has started so much hostility,I was wondering...Exactly how many of us could even afford it if we had the chance to take our children to DAN? I know I couldn't .I firmly believe it was created for and by people who have lots of money. Us Peons who aren't rich are left to suffer with all of the many problems our children are developing. Or am I alone in this? Never miss a thing. Make your homepage. Quote Link to comment Share on other sites More sharing options...
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