gluten

[Guest guest]

i know if you have celiac disease, you can have no gluten at all.

for children with ASD however, has there been any changes with behavior

when a gluten reduced diet has been implemented?

[Guest guest]

I reduced dairy because of keratone I think thats how you spell it I am probabably wrong and my son eats very little bread items. All of a sudden he does have some clarity in the cognitive department it took about 3 - 4 days when I did notice changes and behavior is lots better. I do beleive this can work for some children dietary are huge factors in how children sleep, play and behave. So I think it can make huge or small changes in a child. I think its all the preservatives they use these days. Anyway hope this helps. Ada TickleSandy <sandy1122@...> wrote: i know if you have celiac disease, you can have no gluten at all.for children with ASD however, has there been any changes with behavior when a gluten reduced diet has been implemented?

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[Guest guest]

My daughter is sensative to gluten and needs enzymes to have any. See

cannot have casein at all even with enzymes.

>

> i know if you have celiac disease, you can have no gluten at all.

> for children with ASD however, has there been any changes with

behavior

> when a gluten reduced diet has been implemented?

>

[Guest guest]

Learning to joke around is a tough concept for some kids. It took my now 18 yo many years to start learning how to joke around. And when he first learned, he was really bad at it! He didn't know when to stop joking either. He still takes things too far and will joke around at times when he really shouldn't.

I think he didn't start joking around until he was a sophomore in high school. I also feel it was due to his sped teacher, who was a young guy with a wicked sense of sarcastic humor to him. My ds tried to copy him and over time, he got to be ok at it.

RoxannaAutism Happens

Re: ( ) gluten

We have had our son on the gluten, casien free diet for about 2 1/2 months, he has less stomach pain, and bowel problems, as for his behavior it's hard to tell if this diet has helped or the medications he takes. He is still quick to get angry at someone or something that is bothering him. He doesn't like joking around, we have tried to work with him on this, tell him it's a way of life, not to take everything so seriously, but he'll say he just doesn't like people joking around with him. Although, we aren't giving up on him learning how to have a laugh or two, it's an up hill battle. haha

His doctor gave us a Rx for Vyvanse 50 mg, it is a new drug to help with attention at school. Most of his problems are at school, the doctor feels most of his behavior is from being frustrated at school. I think he's right. We really don't have that much behavior problems at home. Have any of you heard of this medication before? The doctor said that other mother's have told him that it really works well with the attention problems.pj

..

[Guest guest]

Hi I have just started Enbrel, and I can say the results are noticeably in my

favor. I can actually wake up without having pain in my knees.

Anyhow I am trying to eat products without gluten. I think sometimes are bodies

are allergic to what we are eating so I have been doing this for about a month.

There are many products at specialty stores that are gluten free, like pastas,

bread machine mixes, cereals, waffles, that have been really good.

I didn't know that there was a test for celiac disease I would like to get

tested for that.

Thanks for the info.

Rita

[Guest guest]

I too have noticed I feel better when off gluten. I have done the

elimination diet where I eliminated all gluten. Dairy. Sugar and corn as

well as tomatoes, white potatoes and eggplant. I felt worlds better today

is my first day starting that plan again as I have been pretty badly

inflamed.

Barb

[Guest guest]

Rita,

I don't know much about gluten intolerance but I have heard of it.

In regard to possible celiac diagnosis, you need to be consuming

gluten when you are tested to get a valid result.

The blood tests measure your levels of antibodies to gluten and these

will not show unless you are consuming it. The most import tests are

the TTG and EMA. There are older tests that measure your overall

antibodies but they are not useful indicators of Celiac. I asked my

family doctor to do the tests. He thought it was a waste of time,

but he did them for me.

If you have celiac 'trying' to avoid gluten probably doesn't meet the

dietary requirements. 1/8th of a teaspoon of gluten a day can keep

you inflamed in the small intestine. This could be the amount I

found in a serving of my favorite salad toppings. Intolerance could be

different.

Going 100% gluten free is life changing and not something I would do

without a certain diagnosis. My wife is tyring to cook for me and 3

children, one of which has a egg allergy. Plus I have to give up

beer which is a favorite of mine.

Good luck,

Harry

[Guest guest]

Thank you very much!

Re: [ ] gluten

I'm allergic to gluten as well. There is nothing (supplements or herbs)

that will get rid of this condition. She'll need to stay away from it for

the rest of her life. It's a bit overwhelming at first but the benefits out

weigh the effects of gluten! Once she removes it from her diet, she'll

never want to consume it again. There are many people discovering they are

allergic to it these days and a lot of food companies have caught on to

this. So luckily, she has a lot more options available now than before.

Some products don't taste so well but keep working at it, you'll find

brands that you'll both come to love. Few suggestions: A brand called Udi

(http://udisfood.com/), makes amazing products... pizza crusts, bread,

muffins. These products are available at most Whole Foods Markets. Also,

's Deli now offers gluten free bread which makes dining out on the run

more convenient. Quinoa might become her new best friend. (

http://www.whfoods.com/genpage.php?dbid=142 & tname=foodspice) many pastas are

made from this wonderful, healthy food. And don't forget, many sauces such

as soy sauce, gravy, some supplements, seasonings may contain gluten or

wheat so it's important to always read labels. At first, it's time

consuming but I promise it gets easier.

On Fri, Oct 8, 2010 at 8:20 AM, team_garp <johnirving@...> wrote:

>

>

> Thanks to all who replied to my post about my wife...the hits keep coming.

> She just heard from her LDD that she tested positive for gluten

> intolerance and must now go " Gluten Free " . She scored a 25 on the test

> and anything over a 10 is bad. I have read a little bit on this and

> how it relates to LD and it seems to be a problem for others. Are

> there any herbs or supplements that can help or even reverse this or

> is this a " life style change " that she will be forced to endure for the

rest of her life?

>

>

>

[Guest guest]

When we started on a gluten free diet a few years ago, we got a lot of helpful

info from www.csaceliacs.org. A friend gave me a large notebook from them that

lists safe foods to eat, including which chips and fast foods are safe. This was

helpful for my teenager to know where she could go with friends and be safe. It

was also helpful to learn that there are many products that contain gluten, such

as vanilla extract, certain toothpastes, certain yogurts, etc. Gluten is used as

a filler. We learned how to cook so as to not cross-contaminate.

Many restaurants now offer gluten-free pizza crust and menu options that are

celiac friendly. Ethnic foods are often ok to eat.

Now, we only stay away from wheat and do not practice the full celiac diet.

However, this information is very helpful for someone that has extreme

sensitivities to gluten.

My 16 year old has been wheat-free for 4 years now. The pain and nausea she gets

from eating wheat is not worth it. She also tested positive for Lyme this year.

The eosinophilic gastroenteritis and gluten intolerance she was diagnosed with 2

years ago was part of lyme, we just didn't know it then.

We have all found that we do better on low carb diets anyway. Our LLMD and LLND

have said that most lyme pt's do better on low carb diets.

[Guest guest]

>

> Now, we only stay away from wheat and do not practice the full celiac diet.

However, this information is very helpful for someone that has extreme

sensitivities to gluten.

>

it is important to make a distinction between gluten intolerance and gluten

allergy. The last will give an immediate reaction (within hours) even on a tiny

dose of gluten. In that case you probably have to stay away from gluten for

life; I don't think you can 'cure' or block this type of allergy except with

dangerous medication.

With gluten intolerance you usually get some discomfort (e.g. cramping) after a

few days on a standard diet, depending on how serious it is. Certain theories

suggest that the problem will appear if you use gluten for more than 3-4 days,

so eating normal food for one time should not be a problem. Gluten intolerance

can be (mostly) cured with some lifestyle changes.

I developed 'gluten intolerance' after one year on ABX for (chronic) Lyme. I

guess I have had this problem from around the time I got lyme, resulting in

cramping in the intestines that varies a bit over the weeks/months. Some people

say their gluten intolerance predated the lyme symptoms or ABX though,

After about a year on a low-gluten diet most of the problem is gone. I'n now

eating gluten products from time to time if I have to, and try to use

replacement products like spelt bread (another grain that also contains gluten,

but it is less 'allergenic'). The glutenfree products are extremely expensive

and often rather untasty over here (Europe), so difficult to stick to such a

diet.

I'm guessing most people with gluten intolerance also make other changes to

their diet, e.g. specific blood group diets and use of more raw food instead of

processed food.

[Guest guest]

I don't eat regular wheat, but I seem to do fine with Spelt. I get spelt

products from here:

http://www.purityfoods.com/catalog/21/gourmet_white_pastas

Connie

" After about a year on a low-gluten diet most of the problem is gone. I'n now

eating gluten products from time to time if I have to, and try to use

replacement products like spelt bread (another grain that also contains gluten,

but it is less 'allergenic'). The glutenfree products are extremely expensive

and often rather untasty over here (Europe), so difficult to stick to such a

diet. "