Guest guest Posted July 24, 2002 Report Share Posted July 24, 2002 Hi , Glad you found us! I know what you mean about being glad to know it is not all in your head. I was really beginning to question myself and my pains. I was beginning to wonder if they were really there or if it was psychological!?! I know everyone else thought I was crazy! It was a relief to get the diagnosis for me, too. But Scary at the same time! What an emotional roller coaster! Good luck with your treatment. I just started methotrexate about 3 weeks ago. I also started prednisone and I think that is what is helping the pain right now. Many people have said that after being on methotrexate for a few weeks the nausea kicks in. Have you had any nausea? Do you take the metho in pill form or in a shot? Glad to have you as a new member! Meredith [ ] I'm new! Hi all, I am new to this group and new to PA. I was " officially " diagnosed in January. After being told over the last year that I had patella femoral syndrome, a sprained toe, swollen finger from clicking a mouse too much and a morton's neuroma on my foot, and that the fatigue and aches and pains were in my head, my general practioner finally referred me to a podiatrist for my foot who put all these various ailments together and referred me to a rheumetologist. I have had psoriasis for years--since I was 3 or 4. I am now 38. While I don't yet feel much better, I am relieved to know that it is not all in my head. I was started on methotrexate immediately in January as well as indomethacin. It has helped a bit, but not as well as I would like it to. The pain is still there but the psoriasis I had on my elbows and in my hair are pretty much gone for the first time in years. The PA is mostly in my left hand and right foot. It also affects my index finger on my right hand. And of course, my knees. I try very hard not to let it stop me, but sometimes it does. Anyway, I find this message board most helpful. I know that there are people out there who know how I feel. I have also learned a lot about meds and doctors. Thanks for being there! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2002 Report Share Posted July 24, 2002 Hi When I initially went to my family Dr. 6 years ago, at the age of 35 ... he told me that everyone has a few aches and pains. My hands are really bad, also my toes, knees, and I think my back is starting also. I've also had psoriasis for years. Vivian > > From: " laskyone2002 " <laskins@...> > Date: 2002/07/23 Tue PM 02:00:30 EST > > Subject: [ ] I'm new! > > Hi all, > > I am new to this group and new to PA. I was " officially " diagnosed > in January. After being told over the last year that I had patella > femoral syndrome, a sprained toe, swollen finger from clicking a > mouse too much and a morton's neuroma on my foot, and that the > fatigue and aches and pains were in my head, my general practioner > finally referred me to a podiatrist for my foot who put all these > various ailments together and referred me to a rheumetologist. > > I have had psoriasis for years--since I was 3 or 4. I am now 38. > > While I don't yet feel much better, I am relieved to know that it is > not all in my head. > > I was started on methotrexate immediately in January as well as > indomethacin. It has helped a bit, but not as well as I would like > it to. The pain is still there but the psoriasis I had on my elbows > and in my hair are pretty much gone for the first time in years. > > The PA is mostly in my left hand and right foot. It also affects my > index finger on my right hand. And of course, my knees. I try very > hard not to let it stop me, but sometimes it does. > > Anyway, I find this message board most helpful. I know that there > are people out there who know how I feel. I have also learned a lot > about meds and doctors. > > Thanks for being there! > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2002 Report Share Posted July 24, 2002 > Hi all, > > I am new to this group and new to PA. I was " officially " diagnosed > in January. After being told over the last year that I had patella > femoral syndrome, a sprained toe, swollen finger from clicking a > mouse too much and a morton's neuroma on my foot, and that the > fatigue and aches and pains were in my head, my general practioner > finally referred me to a podiatrist for my foot who put all these > various ailments together and referred me to a rheumetologist. > > I have had psoriasis for years--since I was 3 or 4. I am now 38. > > While I don't yet feel much better, I am relieved to know that it is > not all in my head. > > I was started on methotrexate immediately in January as well as > indomethacin. It has helped a bit, but not as well as I would like > it to. The pain is still there but the psoriasis I had on my elbows > and in my hair are pretty much gone for the first time in years. > > The PA is mostly in my left hand and right foot. It also affects my > index finger on my right hand. And of course, my knees. I try very > hard not to let it stop me, but sometimes it does. > > Anyway, I find this message board most helpful. I know that there > are people out there who know how I feel. I have also learned a lot > about meds and doctors. > > Thanks for being there! > > , I am relatively new also to the group. Just got diagnosed with PA this year, but have been a psoriasis sufferer for a long time. I have been on MTX since May, and have seen a little relief. The P is clearing up on my scalp and forehead, but the rest of me is reacting much slower. I have a pretty severe case of P, so my derm tells me. The PA mostly effects my knees, my back and my right hand. Have nail pitting almost every nail, and have several sausage toes. I also work full time as a secretary at a hospital, and have 2 VERY active kids ( 10 and 12), and a sympathetic husband who has been very wonderful throughout this ordeal. I also had a doc tell me I would just have to " learn to deal with it...ect... " . Notice I said " HAD A DOC " . I felt like I was losing my mind, but now have a new doc that is willing to try whatever it takes to get me better. Auto-immune is scarey itself, to me. My body attacking itself, but I am learning to take things day by day, good with bad. I hope you have a supportive family or friends, and even though I don't post alot, this group has helped me understand alot more about the disease process and it has given me hope that I WILL beat this someday. Hang in there...you have alot of new friends that will be wonderful to help you out. Hugs, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2002 Report Share Posted July 24, 2002 Hi Meredith! I take the MTX in pill form--12.5 mgs is my dose right now. The nausea kicked in a couple of weeks ago. My rheumy didn't put me on prednisone which I was happy about. I have been on that stuff off and on for the past 10 years for my asthma. I don't like the side effects of the prednisone. I just saw my doctor yesterday who said I was progressing. I think that I am as the pain is not as intense when the indomethacin wears off. She did, however, give me cortisone shots. OUCH! The one in the hand wasn't so bad. It's the 4 in my index finger that killed me! And yes, it has been an emotional roller coaster. The PA has left my hands hurting and weak which has made it difficult to do some simple things--like open a stupid can. It is very frustrating at times. > Hi , > Glad you found us! I know what you mean about being glad to know it is not all in your head. I was really beginning to question myself and my pains. I was beginning to wonder if they were really there or if it was psychological!?! I know everyone else thought I was crazy! > It was a relief to get the diagnosis for me, too. But Scary at the same time! What an emotional roller coaster! > Good luck with your treatment. I just started methotrexate about 3 weeks ago. I also started prednisone and I think that is what is helping the pain right now. Many people have said that after being on methotrexate for a few weeks the nausea kicks in. Have you had any nausea? Do you take the metho in pill form or in a shot? > Glad to have you as a new member! > Meredith > [ ] I'm new! > > > Hi all, > > I am new to this group and new to PA. I was " officially " diagnosed > in January. After being told over the last year that I had patella > femoral syndrome, a sprained toe, swollen finger from clicking a > mouse too much and a morton's neuroma on my foot, and that the > fatigue and aches and pains were in my head, my general practioner > finally referred me to a podiatrist for my foot who put all these > various ailments together and referred me to a rheumetologist. > > I have had psoriasis for years--since I was 3 or 4. I am now 38. > > While I don't yet feel much better, I am relieved to know that it is > not all in my head. > > I was started on methotrexate immediately in January as well as > indomethacin. It has helped a bit, but not as well as I would like > it to. The pain is still there but the psoriasis I had on my elbows > and in my hair are pretty much gone for the first time in years. > > The PA is mostly in my left hand and right foot. It also affects my > index finger on my right hand. And of course, my knees. I try very > hard not to let it stop me, but sometimes it does. > > Anyway, I find this message board most helpful. I know that there > are people out there who know how I feel. I have also learned a lot > about meds and doctors. > > Thanks for being there! > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2009 Report Share Posted February 12, 2009 Hi! I just joined. I have a 10-year old son who just got his Asperger's diagnosis in November. He is in a small private school. Unfortunately, I still have issues with his previous school, because my younger son is in the magnet gifted program there. The 10 year old *used* to be in the gifted program, but the school refused to test him for special services and refused to protect him from playground bullies. They treated us as if he had a psycho-emotional issue that was a " family problem. " Unfortunately, my younger son still gets the fallout from this. I guess that all for my intro. I look forward to meeting all of you. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2009 Report Share Posted February 16, 2009 Welcome! Sounds like we’ll have lots to chat about! My son is getting tested for Gifted next week after pushing, pushing, and begging. While the school didn’t want to do the IEP initially because he was testing too well academically, they didn’t want to recognize him as ‘Gifted’ either because his behavior didn’t fit into the nice neat package of the kids they like to be in the program. The teacher and I have reminded the district rep several times that his issues need to be taken into consideration when testing. We’re anticipating failure to be accepted into the program. I hope I’m wrong! I’ll keep you posted… Does the new private school have a gifted program? Lori From: [mailto: ] On Behalf Of mom2aspie_gt Sent: Thursday, February 12, 2009 7:46 PM Subject: ( ) I'm new! Hi! I just joined. I have a 10-year old son who just got his Asperger's diagnosis in November. He is in a small private school. Unfortunately, I still have issues with his previous school, because my younger son is in the magnet gifted program there. The 10 year old *used* to be in the gifted program, but the school refused to test him for special services and refused to protect him from playground bullies. They treated us as if he had a psycho-emotional issue that was a " family problem. " Unfortunately, my younger son still gets the fallout from this. I guess that all for my intro. I look forward to meeting all of you. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 23, 2009 Report Share Posted April 23, 2009 How did your son's gifted testing go? Did they accommodate him? My son's current school is too small for a gifted program! There are only 20 kids, K-12 attending. He is doing very well there, despite a tendency to " wig out " and not finish his homework. Fortunately, he aces all of his tests. He is able to work slightly above grade level in some areas, but I think that he is probably bored. How does your son cope with being too advanced in some areas? My son has spent the last 2 years practicing his writing skills, because he has large and small motor delays! > > Welcome! > > > > Sounds like we'll have lots to chat about! My son is getting tested for > Gifted next week after pushing, pushing, and begging. While the school > didn't want to do the IEP initially because he was testing too well > academically, they didn't want to recognize him as 'Gifted' either because > his behavior didn't fit into the nice neat package of the kids they like to > be in the program. > > > > The teacher and I have reminded the district rep several times that his > issues need to be taken into consideration when testing. We're anticipating > failure to be accepted into the program. I hope I'm wrong! > > > > I'll keep you posted. > > > > Does the new private school have a gifted program? > > > > Lori > > > > _____ > > From: > [mailto: ] On Behalf Of mom2aspie_gt > Sent: Thursday, February 12, 2009 7:46 PM > > Subject: ( ) I'm new! > > > > Hi! I just joined. I have a 10-year old son who just got his > Asperger's diagnosis in November. He is in a small private school. > Unfortunately, I still have issues with his previous school, because > my younger son is in the magnet gifted program there. The 10 year old > *used* to be in the gifted program, but the school refused to test him > for special services and refused to protect him from playground > bullies. They treated us as if he had a psycho-emotional issue that > was a " family problem. " Unfortunately, my younger son still gets the > fallout from this. I guess that all for my intro. I look forward to > meeting all of you. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2009 Report Share Posted April 27, 2009 Has anyone advocated specifically regarding Gifted testing?? My son was nominated for the K program, but after months of pushing in 1st grade, he was finally tested. Both the teacher and I explained that they would have to be very patient in their testing and that his attention would be hard to keep. Then, I just get scores in the mail telling me he tested at 33% so he is not eligible. I’m trying to decide what to do. I’ve got my IEP and I’m meeting with the principal on Friday about placement (teacher) for next year, but do I push the Gifted or wait to see if he does better with Meds?? (Just started Tenex last Thursday and will also have Respiradol prn) Lori Lashley From: [mailto: ] On Behalf Of mom2aspie_gt Sent: Thursday, April 23, 2009 12:41 PM Subject: Re: ( ) I'm new! How did your son's gifted testing go? Did they accommodate him? My son's current school is too small for a gifted program! There are only 20 kids, K-12 attending. He is doing very well there, despite a tendency to " wig out " and not finish his homework. Fortunately, he aces all of his tests. He is able to work slightly above grade level in some areas, but I think that he is probably bored. How does your son cope with being too advanced in some areas? My son has spent the last 2 years practicing his writing skills, because he has large and small motor delays! > > Welcome! > > > > Sounds like we'll have lots to chat about! My son is getting tested for > Gifted next week after pushing, pushing, and begging. While the school > didn't want to do the IEP initially because he was testing too well > academically, they didn't want to recognize him as 'Gifted' either because > his behavior didn't fit into the nice neat package of the kids they like to > be in the program. > > > > The teacher and I have reminded the district rep several times that his > issues need to be taken into consideration when testing. We're anticipating > failure to be accepted into the program. I hope I'm wrong! > > > > I'll keep you posted. > > > > Does the new private school have a gifted program? > > > > Lori > > > > _____ > > From: > [mailto: ] On Behalf Of mom2aspie_gt > Sent: Thursday, February 12, 2009 7:46 PM > > Subject: ( ) I'm new! > > > > Hi! I just joined. I have a 10-year old son who just got his > Asperger's diagnosis in November. He is in a small private school. > Unfortunately, I still have issues with his previous school, because > my younger son is in the magnet gifted program there. The 10 year old > *used* to be in the gifted program, but the school refused to test him > for special services and refused to protect him from playground > bullies. They treated us as if he had a psycho-emotional issue that > was a " family problem. " Unfortunately, my younger son still gets the > fallout from this. I guess that all for my intro. I look forward to > meeting all of you. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2009 Report Share Posted April 27, 2009 Sometimes the kids can score lower in an overall score - the average of the other test scores. It can then be hard to get gifted services for kids with sped needs because they do have that tendancy to have mixed scores, especially if they have a LD. The dir. of gifted services here told me, "He can't qualify because his scores are not consistent." Well, that is not true plus most kids with LD's will have an uneven profile. That is why they have an LD. So you have to be a good and active advocate to get in the door and stay there. I am not sure if pushing for gifted is a good idea or a bad idea overall. It varies so much from place to place and teacher to teacher, program to program. Some schools have nothing in place, others have a variety of services for gifted students while some schools have limited services. How much do these gifted teachers understand about learning disabilities or AS? As with any program, that is half your battle. I would look into the gifted services offered by your school and see what you think. Talk to the people in charge and see what their attitudes are towards kids with sped needs. Are they willing to work with you for the benefit of the child? Roxanna "Suppose you were an idiot. And suppose you were a member of Congress. But I repeat myself." ~ Mark Twain ( ) I'm new!> > > > Hi! I just joined. I have a 10-year old son who just got his> Asperger's diagnosis in November. He is in a small private school. > Unfortunately, I still have issues with his previous school, because> my younger son is in the magnet gifted program there. The 10 year old> *used* to be in the gifted program, but the school refused to test him> for special services and refused to protect him from playground> bullies. They treated us as if he had a psycho-emotional issue that> was a "family problem." Unfortunately, my younger son still gets the> fallout from this. I guess that all for my intro. I look forward to> meeting all of you.> No virus found in this incoming message.Checked by AVG - www.avg.com Version: 8.5.287 / Virus Database: 270.12.4/2082 - Release Date: 04/27/09 06:19:00 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 27, 2009 Report Share Posted April 27, 2009 Thanks Roxanna. Ruth gave pretty similar advice. I’m going to find out exactly what the 2nd-4th grade program entails before I do anything. I probably will not push at this age and this stage. I really appreciate the insight. From: [mailto: ] On Behalf Of Roxanna Sent: Monday, April 27, 2009 11:46 AM To: Subject: Re: ( ) I'm new! Sometimes the kids can score lower in an overall score - the average of the other test scores. It can then be hard to get gifted services for kids with sped needs because they do have that tendancy to have mixed scores, especially if they have a LD. The dir. of gifted services here told me, " He can't qualify because his scores are not consistent. " Well, that is not true plus most kids with LD's will have an uneven profile. That is why they have an LD. So you have to be a good and active advocate to get in the door and stay there. I am not sure if pushing for gifted is a good idea or a bad idea overall. It varies so much from place to place and teacher to teacher, program to program. Some schools have nothing in place, others have a variety of services for gifted students while some schools have limited services. How much do these gifted teachers understand about learning disabilities or AS? As with any program, that is half your battle. I would look into the gifted services offered by your school and see what you think. Talk to the people in charge and see what their attitudes are towards kids with sped needs. Are they willing to work with you for the benefit of the child? Roxanna " Suppose you were an idiot. And suppose you were a member of Congress. But I repeat myself. " ~ Mark Twain ( ) I'm new! > > > > Hi! I just joined. I have a 10-year old son who just got his > Asperger's diagnosis in November. He is in a small private school. > Unfortunately, I still have issues with his previous school, because > my younger son is in the magnet gifted program there. The 10 year old > *used* to be in the gifted program, but the school refused to test him > for special services and refused to protect him from playground > bullies. They treated us as if he had a psycho-emotional issue that > was a " family problem. " Unfortunately, my younger son still gets the > fallout from this. I guess that all for my intro. I look forward to > meeting all of you. > size=2 width="100%" align=center> No virus found in this incoming message. Checked by AVG - www.avg.com Version: 8.5.287 / Virus Database: 270.12.4/2082 - Release Date: 04/27/09 06:19:00 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 6, 2010 Report Share Posted July 6, 2010 Welcome aboard This group is great, the key is to ask questions. From: s_holbert@... <s_holbert@...> Subject: I'm New! Date: Tuesday, July 6, 2010, 3:48 AM I have just applied to the Pharmacy Technician program at my local community college. They require that I take Introduction to Health Care Professions first and in my research for my portfolio for this class I happened upon this group which I think just might become my lifeline once I start the program (hopefully) in August. We're are doing a group oral presentation in class tomorrow and I'm a little scared because only half of the group has pitched in. I'm hoping people will be more serious once I get into my program. Wish me luck!! Sara Holbert Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2010 Report Share Posted July 11, 2010 Welcome Sara! Please excuse my tardieness in welcoming you. I have been busy fighting some ID theft (again). How did your presentation go? What did you present on ? Since you are so serious I am sure that your grade reflected the work you put into it. I grade team effort and individual effor ton a team with two times the individual grade pluse on times the team effort. There is no " I " in team, and yet in a class room one's grade is affected by team members. I used to grade each person with theh whole team effort. That seemed unfair. But the reason I did is to teach a lesson: in real life a team effort is needed to save a life and prevent harm or injury. This must be accomplished with everyone's work, input and timing together: a synergy. In class one is penalized in real; life on the job the patient is penalized. I howp you will share with us your experience. Respectfully, Jeanetta Mastron CPhT BS Founder/Owner > > I have just applied to the Pharmacy Technician program at my local community college. They require that I take Introduction to Health Care Professions first and in my research for my portfolio for this class I happened upon this group which I think just might become my lifeline once I start the program (hopefully) in August. We're are doing a group oral presentation in class tomorrow and I'm a little scared because only half of the group has pitched in. I'm hoping people will be more serious once I get into my program. > > Wish me luck!! > Sara Holbert > Quote Link to comment Share on other sites More sharing options...
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