Guest guest Posted August 31, 2001 Report Share Posted August 31, 2001 Dear Jan, I am an old member of this list and mostly read the digests these days, but I wanted to respond to your post, in part because we are in Fremont and so live not too far from you. Our docs are in Walnut Creek and San Bruno so probably not practical for you, but if you need referrals I'll see what I can do. With luck, the psychiatrist you see today will be familiar with treating OCD and will prescribe accordingly. I will suggest that you visit the OCF's web site, where you'll find good information about medication for children who have OCD. A common mistake docs make is setting the dosage too low to have an anti-obsessive effect. My daughter is 8 years old, starting third grade, and coping pretty well with her OCD. She has been taking Prozac for OCD and Buspar for anxiety for about three years now. Our experience has been that the meds bring her anxiety and OCD symptoms down to a level she can manage, aided by CBT (therapy). We have been very pleased with the results. Proper levels of medication have also allowed her to progress farther with her therapy. IMHO, some people with a history of drug or alcohol abuse were attempting to self-medicate a brain chemistry problem, such as anxiety, depression or OCD. So I would not worry about the possibility of therapeutic medication leading to an addictive personality in your son. Rather, his good mental health should make him more resistant to the lure of drugs and alcohol. (this is just my own, personal opinion.) I also see (and some docs do too), hypochondria as a form or variant of OCD. My husband has mild OCD and bouts of hypochondria as well. As for the separation anxiety your son may be experiencing, it has been our experience that sometimes OCD can look like separation anxiety, especially in kids. For years, my daughter used me as a coping mechanism against OCD, and so was understandably stressed out when not in my presence. Now that her OCD is more under control, the separation anxiety has disappeared. Take care, Jan, and let us know how Tyler is doing. I hope things will be looking up for you both soon. ~Lesli in Fremont Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2002 Report Share Posted November 11, 2002 Jan,you are doing great! and I am so proud of you.VIKKI-RN-NC/SC.MGB 06/07/02.206/133. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2003 Report Share Posted October 8, 2003 hi jan, just got back from the hospital. what a waste of time. i got a new doctor again and he says that you dont get pain and fatigue with aih and he wrote on my notes chronic hepatitis probably auto-immune. i then had to correct him. he said a cholestrol level of 8.2 is very low, i know this is totally incorrect and why worry about high blood pressure. i am going to see my g.p and sort it out. hope all is well with you love and hugs anita Message date : Oct 08 2003, 02:25 AM From : dssll2@... To : Copy to : Subject : [ ] Hi everyone I have been reading the posts and I have to say as newly diagnosed with AIH this has been really scarey. The Dr told me not to worry and quit reading stuff on the internet. BUt you all have been through this and are going through this. I would think that you know what this is like. I am so afraid of this disease. I have never had anything like this before and with everything that I read my life is going to be miserable. I have only been on treatment for a couple of weeks and I am so afraid that it won't work. Everyone here is so positive even with all you are going through. My heart is just pounding knowing that I haven't even experienced half of what is coming my way. I am so scared that I know I am blubbering in this e-mail. I am afraid of what the prednisone and Imuran are doing to my body and afraid of what would happen if I weren't taking it. Does this fear ever go away? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 8, 2003 Report Share Posted October 8, 2003 Is this doctor for real?? I hope ur GP can get U a better specialist Anita!! I will be thinking of U! Trish > hi jan, just got back from the hospital. what a waste of time. i got a new doctor again and he says that you dont get pain and fatigue with aih and he wrote on my notes chronic hepatitis probably auto- immune. i then had to correct him. he said a cholestrol level of 8.2 is very low, i know this is totally incorrect and why worry about high blood pressure. i am going to see my g.p and sort it out. > hope all is well with you > love and hugs > anita > > > > > Message date : Oct 08 2003, 02:25 AM > From : dssll2@a... > To : > Copy to : > Subject : [ ] Hi everyone > > > I have been reading the posts and I have to say as newly diagnosed with AIH this has been really scarey. The Dr told me not to worry and quit reading stuff on the internet. BUt you all have been through this and are going through this. I would think that you know what this is like. I am so afraid of this disease. I have never had anything like this before and with everything that I read my life is going to be miserable. I have only been on treatment for a couple of weeks and I am so afraid that it won't work. Everyone here is so positive even with all you are going through. My heart is just pounding knowing that I haven't even experienced half of what is coming my way. I am so scared that I know I am blubbering in this e- mail. I am afraid of what the prednisone and Imuran are doing to my body and afraid of what would happen if I weren't > taking it. Does this fear ever go away? > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2003 Report Share Posted November 19, 2003 Hi Romina, I am doing better - I am not sure if you have a good doctor, but I had a hard time getting a decent one. Mine is not perfect, but she is the 3rd doctor I've seen who is not a complete moron when it comes to thyroid disease. I am from Rio originally, but have lived all over. I now live in Salvador. Are you from Buenos Aires, or somewhere else? I've been to your country, it is beautiful there. Jan > Hi Jan > i hope you are doing fine, where in Brasil are you from? > take care of your self > Romina >] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 19, 2003 Report Share Posted November 19, 2003 Hi Jan i am glad you have finaly found a good doctor, it is no easy. mine is ok., but i have changed twice. i visited Rio a couple of time, it is an amazing city, and brasileros are very fun people. I am from Buenos Aires, and rigth now I am living in Los Angeles. i am glad to meet you Romina janjv1311 <janaina@...> wrote: Hi Romina, I am doing better - I am not sure if you have a good doctor, but I had a hard time getting a decent one. Mine is not perfect, but she is the 3rd doctor I've seen who is not a complete moron when it comes to thyroid disease. I am from Rio originally, but have lived all over. I now live in Salvador. Are you from Buenos Aires, or somewhere else? I've been to your country, it is beautiful there. Jan > Hi Jan > i hope you are doing fine, where in Brasil are you from? > take care of your self > Romina >] Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2008 Report Share Posted July 29, 2008 Please don't cry, Jan. I was trying to explain that I wasn't replying to "just" your post. I wasn't trying to pick on you or what you personally said. I was reading a series of posts and I saw a pattern that I don't agree with, so I spoke up. I just hit reply on your post at random. I did not mean to hurt your feelings at all. RoxannaAutism Happens ( ) Re: torn Date: Saturday, July 26, 2008, 3:10 PM Robin and Donna,It appears I'm in the same 'boat' as you two. My 18 yr old son soundsvery much like Robin's. And, like Donna, our son loves to travel onfamily vacations.I struggle with feeling sad that he doesn't socialize, other thanfamily and church and, rarely, someone his own age group. It waseasier in high school as it was a very small school and he belonged tothe academic team and such. But this first year of college has beenrough. I had always hoped he'd find it easier by the time he got tocollege.At the same time, I'm not sure he 'misses' socializing. He enjoys hisown company and reads, has a strict exercise routine (yes,OCD-ish) ,and loves his animals. And like Robin mentioned, he doesn't get those'mild freak-outs' after forced social situations.How do you ever know if you are doing the right thing? We have justdecided to stay informed, pray/meditate and have faith that it willunfold as it should.And I am grateful for this comforting forum.sue> > > I just gotta say one thing.....and I hope this comes out right. I > > get how this thread is talking about exposing our kids to all kind > > of experiences so that they can learn to deal and cope.......> >> > But,,,,,is there anyone out there, other than us, that has let their > > child just "be" and seen good things?> >> > We not only pulled him from traditional school for this last > > grade,,,,,,, but I don't put him in anything he doesn't want to try.> >> > He goes to the pool when he wants....or stays home if he doesnt' > > want to go. He rides bikes......or not. He takes our dog for a > > walk with his ltl sis,,,,,,,,, or not. We go to church.> >> > We visit friends..... ......... ..some days are hermit- > > days......others are wonderful.> > He doesn't freak like he used to,,,,as if he was "coming down" from > > interaction or having to keep it "together" all day.> >> > He talks to us. He's calmer.> > I guess we took a different approach.... .in a way. Maybe it was > > because the social stuff he "got" was all negative,,,, ,that we saw > > that not everyone enjoys being social.....> >> > I love to stay home. Love to see friends,,,but love to get home.> > Not all of us have "social" jobs........ .........> >> > So,,,,,I'm wondering if anyone else just lets their kid "be" with AS > > and doesn't try to mold it into something better for them. (Please > > don't take that wrong......cause I struggle from time to time with > > whether we should still be going to therapists, etc. I stopped > > them, too, cause we were told to always be "getting out there" and > > playing with more and more other kids to get experience on how to > > "be". We saw that Ian was nicer than most of the kids we were > > supposed to put him with. Sure,,,,,,,he talked aobut his > > games.....whatever, ,,,, but he was nicer. Ick.> >> > Anyway,,,,I hope I didn't offend. Just wondering if there were > > "others" like us.> >> > Hee hee.> >> >> > Robin> >> > Normal is just a cycle on a washing machine!! Ta semester! - sök efter resor hos Kelkoo. Jämför pris på flygbiljetter och hotellrum: http://www.kelkoo. se/c-169901- resor-biljetter. html No virus found in this incoming message.Checked by AVG - http://www.avg. com Version: 8.0.138 / Virus Database: 270.5.6/1577 - Release Date: 7/28/2008 6:55 AM Sök efter kärleken! Hitta din tvillingsjäl på Dejting: http://se.meetic. .net No virus found in this incoming message. Checked by AVG - http://www.avg.com Version: 8.0.138 / Virus Database: 270.5.6/1579 - Release Date: 7/29/2008 6:43 AM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2008 Report Share Posted July 29, 2008 thanks again... Janice Rushen Mom, Mentor, Wife, Teacher, Advocate, Accountant, Maid, Taxi, Shopper, Bulletin Board Artist Nanny, Crafter, Therapist, Friend, Sister, Aunt, Daughter, Grand-daughter, Personal Care Aide, Student, Believer, and Giver. From: Sue Ann <iamgr8fulgmail (DOT) com>Subject: ( ) Re: torn Date: Saturday, July 26, 2008, 3:10 PM Robin and Donna,It appears I'm in the same 'boat' as you two. My 18 yr old son soundsvery much like Robin's. And, like Donna, our son loves to travel onfamily vacations.I struggle with feeling sad that he doesn't socialize, other thanfamily and church and, rarely, someone his own age group. It waseasier in high school as it was a very small school and he belonged tothe academic team and such. But this first year of college has beenrough. I had always hoped he'd find it easier by the time he got tocollege.At the same time, I'm not sure he 'misses' socializing. He enjoys hisown company and reads, has a strict exercise routine (yes,OCD-ish) ,and loves his animals. And like Robin mentioned, he doesn't get those'mild freak-outs' after forced social situations.How do you ever know if you are doing the right thing? We have justdecided to stay informed, pray/meditate and have faith that it willunfold as it should.And I am grateful for this comforting forum.sue> > > I just gotta say one thing.....and I hope this comes out right. I > > get how this thread is talking about exposing our kids to all kind > > of experiences so that they can learn to deal and cope.......> >> > But,,,,,is there anyone out there, other than us, that has let their > > child just "be" and seen good things?> >> > We not only pulled him from traditional school for this last > > grade,,,,,,, but I don't put him in anything he doesn't want to try.> >> > He goes to the pool when he wants....or stays home if he doesnt' > > want to go. He rides bikes......or not. He takes our dog for a > > walk with his ltl sis,,,,,,,,, or not. We go to church.> >> > We visit friends..... ......... ..some days are hermit- > > days......others are wonderful.> > He doesn't freak like he used to,,,,as if he was "coming down" from > > interaction or having to keep it "together" all day.> >> > He talks to us. He's calmer.> > I guess we took a different approach.... .in a way. Maybe it was > > because the social stuff he "got" was all negative,,,, ,that we saw > > that not everyone enjoys being social.....> >> > I love to stay home. Love to see friends,,,but love to get home.> > Not all of us have "social" jobs........ .........> >> > So,,,,,I'm wondering if anyone else just lets their kid "be" with AS > > and doesn't try to mold it into something better for them. (Please > > don't take that wrong......cause I struggle from time to time with > > whether we should still be going to therapists, etc. I stopped > > them, too, cause we were told to always be "getting out there" and > > playing with more and more other kids to get experience on how to > > "be". We saw that Ian was nicer than most of the kids we were > > supposed to put him with. Sure,,,,,,,he talked aobut his > > games.....whatever, ,,,, but he was nicer. Ick.> >> > Anyway,,,,I hope I didn't offend. Just wondering if there were > > "others" like us.> >> > Hee hee.> >> >> > Robin> >> > Normal is just a cycle on a washing machine!! Ta semester! - sök efter resor hos Kelkoo. Jämför pris på flygbiljetter och hotellrum: http://www.kelkoo. se/c-169901- resor-biljetter. html No virus found in this incoming message.Checked by AVG - http://www.avg. com Version: 8.0.138 / Virus Database: 270.5.6/1577 - Release Date: 7/28/2008 6:55 AM Sök efter kärleken! Hitta din tvillingsjäl på Dejting: http://se.meetic. .net No virus found in this incoming message. Checked by AVG - http://www.avg. com Version: 8.0.138 / Virus Database: 270.5.6/1579 - Release Date: 7/29/2008 6:43 AM No virus found in this incoming message. Checked by AVG - http://www.avg. com Version: 8.0.138 / Virus Database: 270.5.6/1579 - Release Date: 7/29/2008 6:43 AM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2008 Report Share Posted July 29, 2008 thanks again... Janice Rushen Mom, Mentor, Wife, Teacher, Advocate, Accountant, Maid, Taxi, Shopper, Bulletin Board Artist Nanny, Crafter, Therapist, Friend, Sister, Aunt, Daughter, Grand-daughter, Personal Care Aide, Student, Believer, and Giver. From: Sue Ann <iamgr8fulgmail (DOT) com>Subject: ( ) Re: torn Date: Saturday, July 26, 2008, 3:10 PM Robin and Donna,It appears I'm in the same 'boat' as you two. My 18 yr old son soundsvery much like Robin's. And, like Donna, our son loves to travel onfamily vacations.I struggle with feeling sad that he doesn't socialize, other thanfamily and church and, rarely, someone his own age group. It waseasier in high school as it was a very small school and he belonged tothe academic team and such. But this first year of college has beenrough. I had always hoped he'd find it easier by the time he got tocollege.At the same time, I'm not sure he 'misses' socializing. He enjoys hisown company and reads, has a strict exercise routine (yes,OCD-ish) ,and loves his animals. And like Robin mentioned, he doesn't get those'mild freak-outs' after forced social situations.How do you ever know if you are doing the right thing? We have justdecided to stay informed, pray/meditate and have faith that it willunfold as it should.And I am grateful for this comforting forum.sue> > > I just gotta say one thing.....and I hope this comes out right. I > > get how this thread is talking about exposing our kids to all kind > > of experiences so that they can learn to deal and cope.......> >> > But,,,,,is there anyone out there, other than us, that has let their > > child just "be" and seen good things?> >> > We not only pulled him from traditional school for this last > > grade,,,,,,, but I don't put him in anything he doesn't want to try.> >> > He goes to the pool when he wants....or stays home if he doesnt' > > want to go. He rides bikes......or not. He takes our dog for a > > walk with his ltl sis,,,,,,,,, or not. We go to church.> >> > We visit friends..... ......... ..some days are hermit- > > days......others are wonderful.> > He doesn't freak like he used to,,,,as if he was "coming down" from > > interaction or having to keep it "together" all day.> >> > He talks to us. He's calmer.> > I guess we took a different approach.... .in a way. Maybe it was > > because the social stuff he "got" was all negative,,,, ,that we saw > > that not everyone enjoys being social.....> >> > I love to stay home. Love to see friends,,,but love to get home.> > Not all of us have "social" jobs........ .........> >> > So,,,,,I'm wondering if anyone else just lets their kid "be" with AS > > and doesn't try to mold it into something better for them. (Please > > don't take that wrong......cause I struggle from time to time with > > whether we should still be going to therapists, etc. I stopped > > them, too, cause we were told to always be "getting out there" and > > playing with more and more other kids to get experience on how to > > "be". We saw that Ian was nicer than most of the kids we were > > supposed to put him with. Sure,,,,,,,he talked aobut his > > games.....whatever, ,,,, but he was nicer. Ick.> >> > Anyway,,,,I hope I didn't offend. Just wondering if there were > > "others" like us.> >> > Hee hee.> >> >> > Robin> >> > Normal is just a cycle on a washing machine!! Ta semester! - sök efter resor hos Kelkoo. Jämför pris på flygbiljetter och hotellrum: http://www.kelkoo. se/c-169901- resor-biljetter. html No virus found in this incoming message.Checked by AVG - http://www.avg. com Version: 8.0.138 / Virus Database: 270.5.6/1577 - Release Date: 7/28/2008 6:55 AM Sök efter kärleken! Hitta din tvillingsjäl på Dejting: http://se.meetic. .net No virus found in this incoming message. Checked by AVG - http://www.avg. com Version: 8.0.138 / Virus Database: 270.5.6/1579 - Release Date: 7/29/2008 6:43 AM No virus found in this incoming message. Checked by AVG - http://www.avg. com Version: 8.0.138 / Virus Database: 270.5.6/1579 - Release Date: 7/29/2008 6:43 AM Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 29, 2008 Report Share Posted July 29, 2008 thanks again... Janice Rushen Mom, Mentor, Wife, Teacher, Advocate, Accountant, Maid, Taxi, Shopper, Bulletin Board Artist Nanny, Crafter, Therapist, Friend, Sister, Aunt, Daughter, Grand-daughter, Personal Care Aide, Student, Believer, and Giver. From: Sue Ann <iamgr8fulgmail (DOT) com>Subject: ( ) Re: torn Date: Saturday, July 26, 2008, 3:10 PM Robin and Donna,It appears I'm in the same 'boat' as you two. My 18 yr old son soundsvery much like Robin's. And, like Donna, our son loves to travel onfamily vacations.I struggle with feeling sad that he doesn't socialize, other thanfamily and church and, rarely, someone his own age group. It waseasier in high school as it was a very small school and he belonged tothe academic team and such. But this first year of college has beenrough. I had always hoped he'd find it easier by the time he got tocollege.At the same time, I'm not sure he 'misses' socializing. He enjoys hisown company and reads, has a strict exercise routine (yes,OCD-ish) ,and loves his animals. And like Robin mentioned, he doesn't get those'mild freak-outs' after forced social situations.How do you ever know if you are doing the right thing? We have justdecided to stay informed, pray/meditate and have faith that it willunfold as it should.And I am grateful for this comforting forum.sue> > > I just gotta say one thing.....and I hope this comes out right. I > > get how this thread is talking about exposing our kids to all kind > > of experiences so that they can learn to deal and cope.......> >> > But,,,,,is there anyone out there, other than us, that has let their > > child just "be" and seen good things?> >> > We not only pulled him from traditional school for this last > > grade,,,,,,, but I don't put him in anything he doesn't want to try.> >> > He goes to the pool when he wants....or stays home if he doesnt' > > want to go. He rides bikes......or not. He takes our dog for a > > walk with his ltl sis,,,,,,,,, or not. We go to church.> >> > We visit friends..... ......... ..some days are hermit- > > days......others are wonderful.> > He doesn't freak like he used to,,,,as if he was "coming down" from > > interaction or having to keep it "together" all day.> >> > He talks to us. He's calmer.> > I guess we took a different approach.... .in a way. Maybe it was > > because the social stuff he "got" was all negative,,,, ,that we saw > > that not everyone enjoys being social.....> >> > I love to stay home. Love to see friends,,,but love to get home.> > Not all of us have "social" jobs........ .........> >> > So,,,,,I'm wondering if anyone else just lets their kid "be" with AS > > and doesn't try to mold it into something better for them. (Please > > don't take that wrong......cause I struggle from time to time with > > whether we should still be going to therapists, etc. I stopped > > them, too, cause we were told to always be "getting out there" and > > playing with more and more other kids to get experience on how to > > "be". We saw that Ian was nicer than most of the kids we were > > supposed to put him with. Sure,,,,,,,he talked aobut his > > games.....whatever, ,,,, but he was nicer. Ick.> >> > Anyway,,,,I hope I didn't offend. Just wondering if there were > > "others" like us.> >> > Hee hee.> >> >> > Robin> >> > Normal is just a cycle on a washing machine!! Ta semester! - sök efter resor hos Kelkoo. Jämför pris på flygbiljetter och hotellrum: http://www.kelkoo. se/c-169901- resor-biljetter. html No virus found in this incoming message.Checked by AVG - http://www.avg. com Version: 8.0.138 / Virus Database: 270.5.6/1577 - Release Date: 7/28/2008 6:55 AM Sök efter kärleken! Hitta din tvillingsjäl på Dejting: http://se.meetic. .net No virus found in this incoming message. Checked by AVG - http://www.avg. com Version: 8.0.138 / Virus Database: 270.5.6/1579 - Release Date: 7/29/2008 6:43 AM No virus found in this incoming message. Checked by AVG - http://www.avg. com Version: 8.0.138 / Virus Database: 270.5.6/1579 - Release Date: 7/29/2008 6:43 AM Quote Link to comment Share on other sites More sharing options...
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