Guest guest Posted February 23, 2001 Report Share Posted February 23, 2001 Hi Cheryl, I noticed that you mentionned that has feeding problems. This is very common with the DS/ASD diagnosis. Brook had a lot of the same kinds of problems when he was little and has improved a lot over the years. We did get an OT who was a feeding specialist to work with him. I know I wrote a lot about this around last January 2000. We used a lot of different techniques to get him to accept different foods and textures. I would be happy to tell you about them if you are interested. Marisa Mom to Miles 14, Brook 11 and Gennie 3yrs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2001 Report Share Posted February 23, 2001 nathan is nine and we still have quite a time getting him to eat most regualr yummy foods and he still often chokes or gags on his foods, but we keep trying the different textures etc. eventually he will get it. shawna. Re: Re: feeding problems > Hi Cheryl, > I noticed that you mentionned that has feeding problems. This is > very common with the DS/ASD diagnosis. Brook had a lot of the same kinds of > problems when he was little and has improved a lot over the years. We did get > an OT who was a feeding specialist to work with him. I know I wrote a lot > about this around last January 2000. We used a lot of different techniques to > get him to accept different foods and textures. I would be happy to tell you > about them if you are interested. > Marisa > Mom to Miles 14, Brook 11 and Gennie 3yrs > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 23, 2001 Report Share Posted February 23, 2001 Dear Marisa....thank you for answering....YES YES YES ...I'd love to hear anything you can tell me...write when you have time! gives me hope...did any md ever tell you that an in patient hosp. admission for 6 weeks might be a good idea? Thanks for your help! Re: Re: feeding problems Hi Cheryl, I noticed that you mentionned that has feeding problems. This is very common with the DS/ASD diagnosis. Brook had a lot of the same kinds of problems when he was little and has improved a lot over the years. We did get an OT who was a feeding specialist to work with him. I know I wrote a lot about this around last January 2000. We used a lot of different techniques to get him to accept different foods and textures. I would be happy to tell you about them if you are interested. Marisa Mom to Miles 14, Brook 11 and Gennie 3yrs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 24, 2001 Report Share Posted February 24, 2001 Cherie, No, no one ever said a word about hospitalization. What kind of treatment would that be for? Let me know more about and what his issues are with food. It sounds like he has a problem with textures. I'm trying to remember what we did that really helped Brook with the feeding issues. Brook did have GERD, gastrointestinal reflux disease. We thought that it would go away as he got older, but learned that he was way past that age at 3 when we went in for testing to a ped GE. He had developed self injurious behaviors because of the pain of the reflux. He ended up having a Nissen-fundoplication and a g tube for 10 weeks after that. No doubt the reflux also made the feeding issues worse. Brook would not eat most foods with textures. He only ate foods like cream of wheat, Gerber 3rd food fruits, pudding, yogurt. Sound familiar? Brook refused foods and spit foods out of his mouth constantly. He also used to put his hand in his mouth all the time, kind of like to help him swallow. We got an OT feeding specialist as part of his IEP who helped us increase his ability to tolerate different foods and textures. I also have a friend who is a speech therapist who had a baby with mosaic DS around the same time Brook was born, she suggested that I try junk food because kids like it. So we tried Cheetos cheese puffs. This turned out to be the perfect food because even though the puffs seem crunchy they melt in your mouth almost immediately. At first Brook hated them and threw them on the carpet. A little while later when he was crawling by he put some in his mouth and didn't spit them out. This one food was the beginning of our success. We started putting some cheese puffs on his plate with most meals as a way to get him started eating, this seemed to help. Contrary to other advice we received we found that we had to start with a food that he liked in order to get him to eat. Forget about that " if he is hungry he will eat it . " Also we found that we always had to have a musical toy or tape player or distraction at the table to get him to eat, also contrary to advice we received. Our feeding specialist recommended putting food in the sides of Brook's mouth instead of in the middle. This helped to lessen his rejection of foods. She also recommended we try rubbing his mouth and teeth with toothbrushes and washcloths to desensitize them before eating. She also recommended we try Nutrigrain bars. We did and Brook learned to eat little pieces if we put it on the sides of his mouth. He still eats them now. We had it included in his IEP for years that the school would work on getting him to tolerate something like 1 new food a month. This worked into snack and lunch time perfectly. Eventually Brook very slowly began to tolerate more foods. So here is what he eats now at 11 years, turkey and ham sandwiches with the crust removed, salami and cheese sandwiches, peanut butter and jelly sandwiches, cheez its, crackers, cheese-n-crackers, string cheese softened and cut in to small pieces or other pieces of cheese, fruit cups, pancakes, pizza, pretzels juice and lots of milk. If we dare to go to a restaurant we can usually get him chicken nuggets and fries or a grilled cheese sandwich and he will eat it. He still is very picky and still doesn't chew very well and spits foods out but has improved greatly from the early years. Let me know if you have any questions. I hope this was helpful. Marisa Mom to Miles 14, Brook 11 and Gennie 3 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2001 Report Share Posted February 25, 2001 Cheri, Actually Brook always grew well, even though he had reflux and didn't eat well. He used to be 100% for HT & WT on the DS growth chart. He was on Depakote though for seizures which makes you gain weight. It sounds really scary to me to have him put in a hospital program like the one you described. I would have to have a lot of evidence that it was going to work for my child before I would consent to it. Especially if he doesn't generalize well. Maybe you should look into the meds to see if they could help with his compulsions. We are thinking about that for Brook too, he's obsessed with spraying water, we have to guard against that everyday. By the way, Brook drinks out of a special cup we buy at the grocery store. It's made by Playtex. It has a twist on top with a straw that pops up. That way it's harder to dump out the drink, which he would do. Would Nick drink out of a cup with a straw? As for videos, Brook likes to watch them very much, but he is picky about which one he is going to watch. He doesn't know which one he wants to watch so often we have to try several and wait for his rejection until we know if we have a winner. He likes them but he also gets really bored with them too. I don't feel guilty about it because Brook really is not interested in doing other things. I do feel guilty about my 3 year old daughter Gennie, who watches too much TV because of Brook. It's hard to stop her and let him watch it. It is really hard to engage Brook in activities and take him on outings. If he isn't watching a video he is listening to his tape player or playing with one of his music toys or twirling something. Other than that he takes a real long bath everyday. If it's nice weather he likes to sit outside in the sun. If he gets too bored like yesterday he starts throwing things, which he did a lot of yesterday. We don't watch any videos or TV with our meals which is a really good thing. Well, I hope the Cheetos puffs work for Nick too, even though you'll be cleaning up orange messes forever after that. Take Care. Marisa Mom to Miles 14, Brook 11, Gennie 3 yrs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2001 Report Share Posted February 25, 2001 In a message dated 2/25/01 3:29:55 PM Eastern Standard Time, poggim@... writes: << Well, I hope the Cheetos puffs work for Nick too, even though you'll be cleaning up orange messes forever after that. Take Care. Marisa >> Did you see the pic of Maddie with the cheese puffs? It's in the files. LOL You may think twice about giving him those things! LOL Gail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2001 Report Share Posted February 25, 2001 Hi Marisa, this was extremely helpful...I'm sorry you had to go through the feeding thing too but your story gives us hope. Nick used to eat a large variety of food...not pureed but ground or finely chopped...if we went to a restaurant he would eat spaghetti and meatballs. then he had a couple of gagging experiences at our dinner table and that was that for food with textures...sounds like Brook is not motivated by hunger ...nick isn't either ... I worry that if we forced the issue he'd go for who knows how long without eating anything. the other thing that complicates all of this is his chronic constipation...he takes senokot and lactulose which we hide in the stuff that he is willing to eat/drink, he also has baby food prunes in his cream of wheat once a day (yuck...but nick likes it)...he needs all of that or he does not go to the bathroom at all...i should say no dirty diapers ...we are not at the bathroom stage yet! his diet sounds just like Brook's was...did brook grow ok on that? so far nick is growing great and nutritionally he is doing well. did you ever have concerns over the wheat and milk? Nick so far does not love to put anything in his mouth....finger food related but he definitely chews on his thumb which is much larger than his other thumb now.. the one thing that we have to be very careful of is that he separates home and school so much...for instance very independant with cup at school but not at home...still takes a bottle which i am embarassed to say...doesn't really care about the bottle really...it's just the way he drinks and that's how it is...it's the change he doesn't like ....he has the same cup at home but drinks out of it ONLY when in his mind it is time to...never at the same time that he would ordinarily drink out of a bottle...get tons of helpful hints from those who just think we are ineffective parents...they don't get it...his speech therapist at school gets him to bite fish crackers af she laughs this cackling kind of laugh after each bite....he won't actually eat them ...he spits out little half fish but at least for a second they're in his mouth...I am going to get the cheese doodles at your suggestion...you are right...they will kind of melt and then maybe he will like the taste and see that he does not gag. the hospital program sounds VERY INTENSE...although they don't say exactly what they would it sounds like eating through force....we know nick and my bet is that that would upset him more....the MD says it works and he'll come home eating but at what price....a 6 weeks admission in another state away from the rest of his family and with me sitting there while they force him to eat does not sound ok to me ...we have selected the gradual approach using specially trained therapists who go to school and home ....since he separates things so much...the issue is there is that the school district must approve and pay so it will take some advocating (fighting and yelling) at his CSE meeting ...can you imagine with his issue of separating things ...he'd go to inpatient, come home and see his own chair and dinner table and revert right back. other thing that sounds like Brook is that nick needs some musical or sound distraction...for him it is just the right video...used to be any video...now it's a major life decision before every meal which one it'll be...if it doesn't feel right he will get down from his chair in the middle of the meal and change it...I always am concerned about how much to let him get away with...once we start something it becomes part of his repetoire and we're onto another " compulsion " meds may be in his future...holding out on that one too until we've tried some other stuff.... we will definitely try the tooth brushing before eating...he loves that ...don't know if he'll let us change that routine but we'll try...also we'll try side of the mouth for introducing foods...i am also going to approach school about using music therapy...music is definitely his thing. one other question to anybody....does your child want to watch videos ALL the time and do you let them? my guilt is driving me crazy.... i am so thakful i found this list....thank you so much for all your input...you all have helped tremendously...partly be just knowing you are out there! hope I will be able to help someone too...I've gotten good at praying so you can count on me for that! cheri Re: Re: feeding problems Cherie, No, no one ever said a word about hospitalization. What kind of treatment would that be for? Let me know more about and what his issues are with food. It sounds like he has a problem with textures. I'm trying to remember what we did that really helped Brook with the feeding issues. Brook did have GERD, gastrointestinal reflux disease. We thought that it would go away as he got older, but learned that he was way past that age at 3 when we went in for testing to a ped GE. He had developed self injurious behaviors because of the pain of the reflux. He ended up having a Nissen-fundoplication and a g tube for 10 weeks after that. No doubt the reflux also made the feeding issues worse. Brook would not eat most foods with textures. He only ate foods like cream of wheat, Gerber 3rd food fruits, pudding, yogurt. Sound familiar? Brook refused foods and spit foods out of his mouth constantly. He also used to put his hand in his mouth all the time, kind of like to help him swallow. We got an OT feeding specialist as part of his IEP who helped us increase his ability to tolerate different foods and textures. I also have a friend who is a speech therapist who had a baby with mosaic DS around the same time Brook was born, she suggested that I try junk food because kids like it. So we tried Cheetos cheese puffs. This turned out to be the perfect food because even though the puffs seem crunchy they melt in your mouth almost immediately. At first Brook hated them and threw them on the carpet. A little while later when he was crawling by he put some in his mouth and didn't spit them out. This one food was the beginning of our success. We started putting some cheese puffs on his plate with most meals as a way to get him started eating, this seemed to help. Contrary to other advice we received we found that we had to start with a food that he liked in order to get him to eat. Forget about that " if he is hungry he will eat it . " Also we found that we always had to have a musical toy or tape player or distraction at the table to get him to eat, also contrary to advice we received. Our feeding specialist recommended putting food in the sides of Brook's mouth instead of in the middle. This helped to lessen his rejection of foods. She also recommended we try rubbing his mouth and teeth with toothbrushes and washcloths to desensitize them before eating. She also recommended we try Nutrigrain bars. We did and Brook learned to eat little pieces if we put it on the sides of his mouth. He still eats them now. We had it included in his IEP for years that the school would work on getting him to tolerate something like 1 new food a month. This worked into snack and lunch time perfectly. Eventually Brook very slowly began to tolerate more foods. So here is what he eats now at 11 years, turkey and ham sandwiches with the crust removed, salami and cheese sandwiches, peanut butter and jelly sandwiches, cheez its, crackers, cheese-n-crackers, string cheese softened and cut in to small pieces or other pieces of cheese, fruit cups, pancakes, pizza, pretzels juice and lots of milk. If we dare to go to a restaurant we can usually get him chicken nuggets and fries or a grilled cheese sandwich and he will eat it. He still is very picky and still doesn't chew very well and spits foods out but has improved greatly from the early years. Let me know if you have any questions. I hope this was helpful. Marisa Mom to Miles 14, Brook 11 and Gennie 3 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2001 Report Share Posted February 25, 2001 In a message dated 2/24/01 6:46:41 PM Eastern Standard Time, poggim@... writes: > Brook refused foods and spit foods out of his mouth constantly. He also > used to put his hand in his mouth all the time, kind of like to help him > swallow. We got an OT feeding specialist as part of his IEP who helped us > increase his ability to tolerate different foods and textures. > I also have a friend who is a speech therapist who had a baby with > mosaic > DS around the same time Brook was born, she suggested that I try junk food > because kids like it. So we tried Cheetos cheese puffs. This turned out to > be the perfect food because even though the puffs seem crunchy they melt in > your mouth almost immediately. At first Brook hated them and threw them on > > the carpet. A little while later when he was crawling by he put some in his > > mouth and didn't spit them out. > This one food was the beginning of our success. We started putting some > > cheese puffs on his plate with most meals as a way to get him started eating, > > this seemed to help. Contrary to other advice we received we found that we > had to start with a food that he liked in order to get him to eat. Forget > about that " if he is hungry he will eat it . " Boy...you guys are making me remember things from the past. When Jordan was learning to eat real food at last (4 to 6 yrs. old), people would look at me aghast. I had never been offered a " feeding specialist " (don't even know if we had such things!) or any advice. So I admit that the only way I found was..(are you ready for this?)..to grab his head in a headlock and force a morsel into his mouth! All he needed to do was to get a taste of it and then he'd happily want more! I know that people who didn't know this were appalled...but we develop thick skins, don't we? And then a couple of years ago we went through over a year of trying to be close to the fridge at all times. Jordan would sneak into the fridge and, if he could find any meat, he would eat it raw!!!! So you can see he got over the aversion to certain textures! LOL Now we have the problem that he eats like a stevadore, gets no exercise, and is overweight. He's always hungry! He was so skinny and tiny as a small child....and now he equates his weight with being strong. He'll grab the belly handing over his track pants and say, " Look mom, I'm strong! " But I can't tell him he's fat or he'll walk up to some big person and tell them they are..instead of what he does now..which is sometimes to tell some stranger (in a congratulatory way), " You're strong! " LOL Anyway...I'll bet the " feeding specialist " wouldn't have suggested the junk food approach that the mother gave you...and that's what worked! So I'm sure no specialist would have suggested my way either....but it worked for Jordan. Dodi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2001 Report Share Posted February 25, 2001 In a message dated 2/25/01 6:01:16 PM Eastern Standard Time, Evesmother@... writes: << So I admit that the only way I found was..(are you ready for this?)..to grab his head in a headlock and force a morsel into his mouth! All he needed to do was to get a taste of it and then he'd happily want more! I know that people who didn't know this were appalled...but we develop thick skins, don't we? >> Dodi, That's just what we do with Seth today. Whatever works I guess! LOL Like Jordan, once he gets a taste, he usually likes it. Well, at school anyway! I don't have enough arms to get the food into his mouth while holding down his arms and legs! LOL Seems like he only needs to be held down like that a couple of times, until he recognizes the food, then he just willing eats it. But, with each new food, it's the same routine, and I'm wondering if it isn't a learned behavior now? He never cries about it, and seems almost ready and waiting for the routine! LOL At school they have it down to just touching his cheek, and he tries the new food. Wish I had an OT and an aide at feeding time at home! LOL Gail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2001 Report Share Posted February 25, 2001 In a message dated 2/25/01 12:58:08 PM Eastern Standard Time, ct616@... writes: > then he had a couple of gagging experiences at our dinner table and that > was that for food with textures.. My son used to have horrible gagging incidents but that is past now. This email did remind me though of something funny. For about 7 years...if you showed him cottage cheese, he'd scream and shake his hands and arms! The LOOK of cottage cheese scared the life out of him!!!!!! Dodi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2001 Report Share Posted February 25, 2001 In a message dated 2/25/01 12:58:08 PM Eastern Standard Time, ct616@... writes: > one other question to anybody....does your child want to watch videos ALL the > time and do you let them? my guilt is driving me crazy.... Short answer is " Yes! " Long answer is video, computer and music tape can all be in use at the same time. He just arrived home with his sister Cyndy (36) who had taken him to a movie. He was in a frenzy to get upstairs to his TV...Couldn't wait to say goodbye to her because he was afraid he'd miss something. The routine when he arrives home from school each day is he comes to me and hugs and kisses me and tells me how wonderful I am and then he gets anxious if I try to keep him to talk to him because.....he has to get upstairs to his technology. I call it his " fix. " His older siblings try to make me feel guilty....but I decided long ago that Irma Bombeck was right. She said that guilt was a female hormone that gets pumped out there every month from the ovaries of mothers. So....I have passed menopause!!! Dodi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2001 Report Share Posted February 25, 2001 ive never heard of trying to put food on the side of nathan's mouth, thats an idea, he only eats a few things, like pizza, pepperoni sandwiches, or pband j sandwhiches, i usually make a sandwhich he likes or get out the applesauce so after each bite of food he tries even though chokes or gags wit it, we have a very very hard time getting him to chew, and he is diagnosed with larynpharyngeal inccordination since around 2-3years of age. I have tried several different textures, even when i puree his food he gags or chokes occasionally not as much as on the chopped food, but i find it hard ot make certain foods taste right or good when they are pureed. doesnt like candy or junkfood, with the exception of peanut butter cups, occasionally a nutty bar, wont touch chips or candy bars or cookies, sometimes a bite or two of cake but prefers to squish that, lol, ice cream if i feed it to him, also i find he doesnt even have the attention span long enough for a meal, and i have to get him going timeand time again, and often feed him most of his meal. We have an inpatient stay coming up in march for behavior and many other appts. I have them schedule his appts together because the UIHC is four hours away but they are the only ones who will treat nathan and seem to do a good job. shawna. Re: Re: feeding problems > Cherie, > No, no one ever said a word about hospitalization. What kind of treatment > would that be for? Let me know more about and what his issues are with > food. It sounds like he has a problem with textures. > I'm trying to remember what we did that really helped Brook with the > feeding issues. Brook did have GERD, gastrointestinal reflux disease. We > thought that it would go away as he got older, but learned that he was way > past that age at 3 when we went in for testing to a ped GE. He had developed > self injurious behaviors because of the pain of the reflux. He ended up > having a Nissen-fundoplication and a g tube for 10 weeks after that. No doubt > the reflux also made the feeding issues worse. Brook would not eat most > foods with textures. He only ate foods like cream of wheat, Gerber 3rd food > fruits, pudding, yogurt. Sound familiar? > Brook refused foods and spit foods out of his mouth constantly. He also > used to put his hand in his mouth all the time, kind of like to help him > swallow. We got an OT feeding specialist as part of his IEP who helped us > increase his ability to tolerate different foods and textures. > I also have a friend who is a speech therapist who had a baby with mosaic > DS around the same time Brook was born, she suggested that I try junk food > because kids like it. So we tried Cheetos cheese puffs. This turned out to > be the perfect food because even though the puffs seem crunchy they melt in > your mouth almost immediately. At first Brook hated them and threw them on > the carpet. A little while later when he was crawling by he put some in his > mouth and didn't spit them out. > This one food was the beginning of our success. We started putting some > cheese puffs on his plate with most meals as a way to get him started eating, > this seemed to help. Contrary to other advice we received we found that we > had to start with a food that he liked in order to get him to eat. Forget > about that " if he is hungry he will eat it . " Also we found that we always > had to have a musical toy or tape player or distraction at the table to get > him to eat, also contrary to advice we received. > Our feeding specialist recommended putting food in the sides of Brook's > mouth instead of in the middle. This helped to lessen his rejection of foods. > She also recommended we try rubbing his mouth and teeth with toothbrushes and > washcloths to desensitize them before eating. She also recommended we try > Nutrigrain bars. We did and Brook learned to eat little pieces if we put it > on the sides of his mouth. He still eats them now. > We had it included in his IEP for years that the school would work on > getting him to tolerate something like 1 new food a month. This worked into > snack and lunch time perfectly. Eventually Brook very slowly began to > tolerate more foods. > So here is what he eats now at 11 years, turkey and ham sandwiches > with the crust removed, salami and cheese sandwiches, peanut butter and jelly > sandwiches, cheez its, crackers, cheese-n-crackers, string cheese softened > and cut in to small pieces or other pieces of cheese, fruit cups, pancakes, > pizza, pretzels juice and lots of milk. If we dare to go to a restaurant we > can usually get him chicken nuggets and fries or a grilled cheese sandwich > and he will eat it. He still is very picky and still doesn't chew very well > and spits foods out but has improved greatly from the early years. > Let me know if you have any questions. I hope this was helpful. > Marisa > Mom to Miles 14, Brook 11 and Gennie 3 > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2001 Report Share Posted February 25, 2001 Re: Re: feeding problems " ....Well, I hope the Cheetos puffs work for Nick too, even though you'll be cleaning up orange messes forever after that. " For all you parents out there who hate cleaning up the orange messes from Cheesies, I may have a solution. My local grocery store carries a snack food, like Cheesies, called Chester's Corn Twists. Sara loves them (almost as much as Cheesies) and they make no mess since they are not made with cheese. The texture is very much like cheesies and look like them, but they are yellow. I like them too, but not as much as Cheesies. , mom to Sara 4.5yrs, DS/Autism and almost 7, ADHD Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2001 Report Share Posted February 25, 2001 In a message dated 2/25/01 6:57:38 PM Eastern Standard Time, gsgreen@... writes: << ive never heard of trying to put food on the side of nathan's mouth, thats an idea, >> a, We also rub food *around* Seth's mouth so he can lick it off to taste it. That also helps with his muscle tone in his mouth. We do the cheek thing for the same reason, plus he has to work at it longer to be able spit it out so he gets a better taste of it! LOL Gail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2001 Report Share Posted February 26, 2001 In a message dated 2/25/01 4:40:57 PM Eastern Standard Time, smilinggail@... writes: << Did you see the pic of Maddie with the cheese puffs? It's in the files. LOL You may think twice about giving him those things! LOL Gail >> LOL And remember the time she licked my black stockinged legs before I went to a school meeting??? After she'd had a cheesie-fest? LOL Donna (mom to the Cheesie Queen) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2001 Report Share Posted February 26, 2001 In a message dated 2/26/01 8:54:20 AM Eastern Standard Time, duffey48@... writes: << LOL And remember the time she licked my black stockinged legs before I went to a school meeting??? After she'd had a cheesie-fest? LOL Donna (mom to the Cheesie Queen) >> LOL LOL LOL Yep, turned you into a Halloween decoration! LOL Gail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2001 Report Share Posted February 26, 2001 In a message dated 2/25/01 6:34:52 PM Eastern Standard Time, smilinggail@... writes: << Wish I had an OT and an aide at feeding time at home! LOL >> Maddie was incredibly ritualistic with regards to food for such a long time. For an entire year, she ate ONLY spaghetti for dinner. Would NOT eat anything else for dinner. So I chopped food up in the food processor and hid it in her spaghetti. Broccoli, chicken, spinach.............you name it, it went in. Since she started school in September, she eats almost everything (still won't do cereal though). Melmark has made a HUGE soup fan out of her. She still HAS to have her same breakfast each morning though..............toast with strawberry preserves (or, I SHOULD say strawberry preserves with toast), a banana, and yogurt. But she eats lots of other things for dinner. I have to say she eats more variety now than my other 4. Whodda thunk? Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2001 Report Share Posted February 26, 2001 Do y'all know how to get a 8 yr old autistic kid to eat healty food? I've tried everytime that I babysitt for him to have like dairy, or meat products instead of junk food like crackers, popcorn, bacon. He does have a bannana sometimes. --- Evesmother@... wrote: > In a message dated 2/25/01 12:58:08 PM Eastern > Standard Time, ct616@... > writes: > > > then he had a couple of gagging experiences at > our dinner table and that > > was that for food with textures.. > My son used to have horrible gagging incidents but > that is past now. > This email did remind me though of something funny. > For about 7 years...if > you showed him cottage cheese, he'd scream and shake > his hands and arms! The > LOOK of cottage cheese scared the life out of > him!!!!!! Dodi > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2001 Report Share Posted February 26, 2001 Our OT suggested you try " spicier foods " . Kids with sensory issues seem to gravitate toward spicier foods. You can dip meat into barbecue sauce etc. it has worked wonders for us. Re: Re: feeding problems > In a message dated 2/25/01 6:57:38 PM Eastern Standard Time, > gsgreen@... writes: > > << ive never heard of trying to put food on the side of nathan's mouth, thats > an idea, >> > a, > We also rub food *around* Seth's mouth so he can lick it off to taste it. > That also helps with his muscle tone in his mouth. We do the cheek thing for > the same reason, plus he has to work at it longer to be able spit it out so > he gets a better taste of it! LOL > Gail > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2001 Report Share Posted February 26, 2001 In a message dated 2/26/01 2:13:38 PM Eastern Standard Time, duffey48@... writes: << But she eats lots of other things for dinner. I have to say she eats more variety now than my other 4. Whodda thunk? Donna >> LOL Donna! I think when I keep Seth home, feeding is going to be the biggest issue. Glad to hear there is hope. :-) Gail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2001 Report Share Posted February 26, 2001 In a message dated 2/26/01 5:40:56 PM Eastern Standard Time, texasbluebonnets@... writes: << Another thing is putting peanut butter on a tongue depressor and dabbing a dot of peanut butter on his lower lipand then using your hand to help hold up his upper lip and encourage them to use thier teeth to get the peanut butter off thier lower lip, as this developes you can have them practice saying V words and F words, so they can learn those sounds. just some thoughts. >> Cool tips , thanks. I'm putting these in my files so that if I can ever get these foods into Seth's mouth, I can take advantage of your wisdom! Gail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 3, 2001 Report Share Posted March 3, 2001 sorry If I'm writting this late, I've had speech tharepy since I was an infant till when I graduated high school. I think when I was little they have tried some food, etc. to make my tounge move and to make me speek better. Also I've had some horseback riding thearpy, some OT and PT when I was younger. ===== Friends Till The End __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 26, 2009 Report Share Posted March 26, 2009 Send cereal for lunch. My son takes cereal in his lunch every day! LOL He just gets milk at school now but when he refused to do get milk there because he thought it meant he had to get lunch, we bought a container that has a bowl on top for dry cereal and a smaller one that screws underneath that is able to be frozen (insulated) which we'd take out of the freezer each morning and put milk in. My son NEVER takes anything different in his lunch. It's always the same 5 things. Some day I hope he'll try other things but for now, oh well. It's not worth the fight. Good luck!! From: jimandjeanine <jimandjeanine@...>Subject: ( ) Re: feeding problems Date: Wednesday, March 25, 2009, 7:46 PM I wish we were allowed to bring peanut butter! My son's school is peanut free. My life would be so much easier! Dealing with his issues is not hard at breakfast b/c he eats waffles, pancakes, and cereal. Lunch is a problem b/c he eats at school and he won't eat most "lunch time" foods. For dinner, he generally wants pasta of some sort. I try to also have a veggie that he will eat like carrots. One of the other moms mentioned that her son will try something, say he likes it, but then he won't eat it again. That is my son!! The more I read on here, the more convinced I am that my son is an Aspie. Right now, his diagnosis is PDD-NOS, but the dev ped said he seems more Asperger's like now.Anyway, thanks for the assistance!Jeanine Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2009 Report Share Posted March 27, 2009 Oh, it would be dreadful if we had to be peanut butter free! That is the only lunch protein my son gets, it's all carb otherwise. He always takes the same thing too, with minor variations in the carby snacks. But the main lunch is peanut butter on a corn thin. Willa Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 28, 2009 Report Share Posted March 28, 2009 Welcome to MY world… where not only do I have the picky boy, but he’s ALLERGIC to peanuts, and SEVERELY!! There’s SO few things I can send for lunch that he’ll actually eat It’s a real struggle most of the time. At home, we have LONG enforced the “one bite” rule. I tell him he can’t tell me he doesn’t like it if he’s never tried it. So he has to have one “real” sized bite, and if he doesn’t like it, he doesn’t have to eat any more. We, too, get the… “I like it, but I don’t want any more” responses sometime, but then we just try that again another time. We also do the “take one bite of everything on your plate”. The other thing we’ve had to add since moving here, and the fact that we end up at someone’s house for dinner quite often, is saying “Thank you” and eating SOME, not all, but SOME of whatever they give you, even if you don’t like it. That seems to be working, you should see the faces he makes as he “Suffers” through suppers sometimes LOL !! Lunch being the same all the time, yeah… I know how that goes. At least at this school, they have a set group of volunteers who heat up lunches for the kids every day. So that’s broadened our options quite a bit !!! But lots of times he’ll come home and apologize because he didn’t eat his lunch, and stuck to the yogurt and milk. He loves apples, and won’t take a full apple because it has to be “CUT UP” and it has to be cut up using our apple cutter and not a knife. I tried sending those packages of pre-cut apples, but those were no good. LOL All in a days work =) From: [mailto: ] On Behalf Of Willa Hunt Sent: Friday, March 27, 2009 2:51 PM Subject: Re: ( ) Re: feeding problems Oh, it would be dreadful if we had to be peanut butter free! That is the only lunch protein my son gets, it's all carb otherwise. He always takes the same thing too, with minor variations in the carby snacks. But the main lunch is peanut butter on a corn thin. Willa Quote Link to comment Share on other sites More sharing options...
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