Guest guest Posted July 25, 2008 Report Share Posted July 25, 2008 As an FYI, our specialists are not sold on the T & A route either. They would like to see some further long term studies on the success rate. We are still keeping this open as an option however, but are waiting until our son, now 34 months, is a bit older. Regards, Sent on the TELUS Mobility network with BlackBerry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2008 Report Share Posted July 25, 2008 I am also that person that person that thinks of really good stuff to say,, after the fact! I am glad you know have a diagnosis.. Most doc's that I know of encourage the parents to keep track and notes.. I would not be going back there either, if I were you. I do agree on waiting on the T & A, however, as does our doc. Our doc said the tonsils are there for a reason and we should wait and see if she outgrows it first. That, of course is the parents choice on what they see is best for their child. For us we are choosing meds for now, and so far so good.. no fever since she started Colchicine. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2008 Report Share Posted July 25, 2008 I am also that person that person that thinks of really good stuff to say,, after the fact! I am glad you know have a diagnosis.. Most doc's that I know of encourage the parents to keep track and notes.. I would not be going back there either, if I were you. I do agree on waiting on the T & A, however, as does our doc. Our doc said the tonsils are there for a reason and we should wait and see if she outgrows it first. That, of course is the parents choice on what they see is best for their child. For us we are choosing meds for now, and so far so good.. no fever since she started Colchicine. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2008 Report Share Posted July 25, 2008 I am also that person that person that thinks of really good stuff to say,, after the fact! I am glad you know have a diagnosis.. Most doc's that I know of encourage the parents to keep track and notes.. I would not be going back there either, if I were you. I do agree on waiting on the T & A, however, as does our doc. Our doc said the tonsils are there for a reason and we should wait and see if she outgrows it first. That, of course is the parents choice on what they see is best for their child. For us we are choosing meds for now, and so far so good.. no fever since she started Colchicine. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2008 Report Share Posted July 25, 2008 Hi Cassandra, I'm not sure where you are in Northern California, but I just wanted to mention that we see the rheumatolohists and ENT at LPCH at Stanford and have been very helpful. They were very supportive of doing a T & A, which we did in May. We saw Dr. Messner who is an ENT who said that she's sees a couple of cases like this a year and has never had an T & A that didn't work (although I do wonder if actually hears back from all of the patients). Anyhow, feel free to contact me if you need any additional information. A supportive doctor is KEY! am Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2008 Report Share Posted July 25, 2008 Hi Cassandra, I'm not sure where you are in Northern California, but I just wanted to mention that we see the rheumatolohists and ENT at LPCH at Stanford and have been very helpful. They were very supportive of doing a T & A, which we did in May. We saw Dr. Messner who is an ENT who said that she's sees a couple of cases like this a year and has never had an T & A that didn't work (although I do wonder if actually hears back from all of the patients). Anyhow, feel free to contact me if you need any additional information. A supportive doctor is KEY! am Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2008 Report Share Posted July 25, 2008 Hi Cassandra, I'm not sure where you are in Northern California, but I just wanted to mention that we see the rheumatolohists and ENT at LPCH at Stanford and have been very helpful. They were very supportive of doing a T & A, which we did in May. We saw Dr. Messner who is an ENT who said that she's sees a couple of cases like this a year and has never had an T & A that didn't work (although I do wonder if actually hears back from all of the patients). Anyhow, feel free to contact me if you need any additional information. A supportive doctor is KEY! am Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2009 Report Share Posted February 25, 2009 Might I suggest transdermal magnesium? I have 2 heart diseases and no insurance. Based on Dr. Mark Sircus' book Transdermal Magnesium Therapy, I have used magnesium foot soaks for the last couple of years, to help ward off heart problems. I feel MUCH stronger when I'm getting plenty of magnesium in through the skin. My Aspie dd has several clay baths weekly, always loaded with magnesium flakes. There is quite a correlation between heart attack/stroke and low magnesium. If you go to the hospital in cardiac arrest, they will pump you full of magnesium right away. Many of the kids experience a noticable calming effect with epsom salts or magnesium flakes/oil, so that might also help with the adhd symptoms. Magnesium can be bought in bulk at a reasonable price, as nigari. Sounds like it would be a great product for your whole family. hth - Darla I don't sell it, just a happy user. ( ) Finally Diagnosed I've been lurking since suspecting Asperger's with my 6 year old and finally after a long waiting list we got in with the specialist and sure enough he has Asperger's and ADHD. I'm new to this so I look forward to all the info I can receive. I especially interested in what I can ask the public school system for help with. My son was recently denied getting into AIG even though his reading skills are many grades ahead of first grade b/c he can't sit still and has trouble with schedule changes of taking him from his classroom to another. We've been told we can not put him on ADHD medication until seeing a cardiologist b/c of family history of heart disease (dad had heart attack at age 32 and his mom at age 30). I don't understand the reasoning why except to be on the safe side. I can't wait to learn more. . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 25, 2009 Report Share Posted February 25, 2009 being cautious is the best way to go ...my son had a test he took at school ..then they gave him an i .e.p. which tells me what he is going to work on for the year ,(his strenghs and weakness)he also had speech therapy .the only problems ,we had was ;he went to a different school then (my other 4 kids )even though they are all in elementary school .not all schools cater to special needs children ..you are doing a great job by asking a lot of questions and inquiring ."what your child need are "....teresa From: H <mphooker@...>Subject: ( ) Finally Diagnosed Date: Wednesday, February 25, 2009, 2:50 PM I've been lurking since suspecting Asperger's with my 6 year old and finally after a long waiting list we got in with the specialist and sure enough he has Asperger's and ADHD. I'm new to this so I look forward to all the info I can receive. I especially interested in what I can ask the public school system for help with. My son was recently denied getting into AIG even though his reading skills are many grades ahead of first grade b/c he can't sit still and has trouble with schedule changes of taking him from his classroom to another. We've been told we can not put him on ADHD medication until seeing a cardiologist b/c of family history of heart disease (dad had heart attack at age 32 and his mom at age 30). I don't understand the reasoning why except to be on the safe side. I can't wait to learn more. . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2009 Report Share Posted February 28, 2009 Why can't the school have someone walk him to his different classes? Ask for an ARD or IEP meeting and request this for him. Also until he can be given meds to help, they need to find a solution to help him stay in his sit in class. They need to help you and your son. Learn the law get an IDEA book and read up on things. From: H <mphooker@...> Sent: Wednesday, February 25, 2009 3:50:21 PMSubject: ( ) Finally Diagnosed I've been lurking since suspecting Asperger's with my 6 year old and finally after a long waiting list we got in with the specialist and sure enough he has Asperger's and ADHD. I'm new to this so I look forward to all the info I can receive. I especially interested in what I can ask the public school system for help with. My son was recently denied getting into AIG even though his reading skills are many grades ahead of first grade b/c he can't sit still and has trouble with schedule changes of taking him from his classroom to another. We've been told we can not put him on ADHD medication until seeing a cardiologist b/c of family history of heart disease (dad had heart attack at age 32 and his mom at age 30). I don't understand the reasoning why except to be on the safe side. I can't wait to learn more. . Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2009 Report Share Posted March 11, 2009 It's discriminatory to not allow him into gifted classes because he has a disability. They are obligated to make things available to all kids who qualify and make appropriate accommodations. Go to www.wrightslaw.com and you will learn a wealth of information about the IEP process and how to advocate. Remember to get everything in writing. If they say he can't have something, request the denial in writing with a reason(s) as to why they made that decision. If they quote law or something to you, ask to see it in writing. RoxannaYou're UniqueJust like everyone else... ( ) Finally Diagnosed I've been lurking since suspecting Asperger's with my 6 year old and finally after a long waiting list we got in with the specialist and sure enough he has Asperger's and ADHD. I'm new to this so I look forward to all the info I can receive. I especially interested in what I can ask the public school system for help with. My son was recently denied getting into AIG even though his reading skills are many grades ahead of first grade b/c he can't sit still and has trouble with schedule changes of taking him from his classroom to another. We've been told we can not put him on ADHD medication until seeing a cardiologist b/c of family history of heart disease (dad had heart attack at age 32 and his mom at age 30). I don't understand the reasoning why except to be on the safe side. I can't wait to learn more. . No virus found in this incoming message.Checked by AVG - www.avg.com Version: 8.0.237 / Virus Database: 270.11.3/1971 - Release Date: 02/25/09 06:40:00 Quote Link to comment Share on other sites More sharing options...
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