Has your child had an EEG gone wrong?

[Guest guest]

My 8 year old had a sleep deprived eeg scheduled and I had my reservations about

the sleep deprivation part. I think most kids with issues do very poorly with

little sleep. You're supposed to let your child only have 4 to 5 hours of sleep

before the test so that they have a better chance of falling asleep for parts of

the test. My son went through maybe a 1/3 of the test and just after the strobe

lights he wanted out of there. I did tell my son prior to the eeg what to expect

and that I owuld be there the entire time with him. I'm positive the test with

be incomplete and the doctor will want a more advanced and possible 24 hour stay

in the hospital for the next eeg. Am I the only one who went through this type

of eeg outcome?

[Guest guest]

My daughter's EEG was " inconclusive " because she grinded her teeth throughout

most of it which made interpretation too difficult. I am told one that is

performed under sedation is best for a true reading... thus, if the child

happens to have a scheduled surgery sometime in the future, you might want to

ask for an EEG to be done at the same time.

Our daughter had the EEG for suspicion of seizure activity. Turned out, e

actually got a diagnosis when she was in the pediatrician's office and had a

seizure while looking up at the flourescent lights. It was witnessed by us, her

teacher (along for the appointment) and the doctor.

>

> My 8 year old had a sleep deprived eeg scheduled and I had my reservations

about the sleep deprivation part. I think most kids with issues do very poorly

with little sleep. You're supposed to let your child only have 4 to 5 hours of

sleep before the test so that they have a better chance of falling asleep for

parts of the test. My son went through maybe a 1/3 of the test and just after

the strobe lights he wanted out of there. I did tell my son prior to the eeg

what to expect and that I owuld be there the entire time with him. I'm positive

the test with be incomplete and the doctor will want a more advanced and

possible 24 hour stay in the hospital for the next eeg. Am I the only one who

went through this type of eeg outcome?

>

[Guest guest]

wow, was ur dd having these in front on u before the appt. my son 11 went to spend the night at his aunts house and she thinks he had one while sleeping but he has never indicated even a sign of anything being wrong this is scary stuff but not sure how to handle, could he have been having a night mare instead could he be seeking attention he feels he is not getting i just dont know.justone more thing for me to worry about. sherryFrom: tdhssp <johnvel@...>Subject: ( ) Re: Has your child had an EEG gone wrong? Date: Tuesday, March 31, 2009, 5:20 PM

My daughter's EEG was "inconclusive" because she grinded her teeth throughout most of it which made interpretation too difficult. I am told one that is performed under sedation is best for a true reading... thus, if the child happens to have a scheduled surgery sometime in the future, you might want to ask for an EEG to be done at the same time.

Our daughter had the EEG for suspicion of seizure activity. Turned out, e actually got a diagnosis when she was in the pediatrician' s office and had a seizure while looking up at the flourescent lights. It was witnessed by us, her teacher (along for the appointment) and the doctor.

>

> My 8 year old had a sleep deprived eeg scheduled and I had my reservations about the sleep deprivation part. I think most kids with issues do very poorly with little sleep. You're supposed to let your child only have 4 to 5 hours of sleep before the test so that they have a better chance of falling asleep for parts of the test. My son went through maybe a 1/3 of the test and just after the strobe lights he wanted out of there. I did tell my son prior to the eeg what to expect and that I owuld be there the entire time with him. I'm positive the test with be incomplete and the doctor will want a more advanced and possible 24 hour stay in the hospital for the next eeg. Am I the only one who went through this type of eeg outcome?

>

[Guest guest]

We were worried because what we saw was our daughter would seem to momentarily

stop what she was doing - but, literally for only moments at a time - and then

resume activity. For instance, she might be eating dinner, poise with fork in

hand for a few seconds and then continue eating. These, we learned, were absence

seizures/aka: auras which were also occuring at school and mentioned to us by

staff during an IPP. (We had already figured the same and at that point, had the

EEG done; the one that came back 'inconclusive'.) Then, within a short time, we

were at the peds app't. when our little girl, looking at flourescent lights, her

eyes were zig-zagging rapidly from side to side and thus, she was diagnosed with

witnessed seizure. She once scared us by vomiting in the middle of the night,

but was neither sick before or after the event. I suspect that she may have had

seizure activity during sleep. So, yes, there were signals that we were

investigating. Our little girl, however, mainly non-verbal was unable to alert

us. Our friend's child who has the same disorder speaks pretty well and has had

similar episodes... Fortunately, she is able to tell her mommy, " dizzy " , " head

hurts " to alert the parents. We also learned from the school that our daughter

would rest her head at the table and press her fingertips to her temples, as if

in pain. So, there were the momentary lapses, vomiting, and headaches that were

seen.

What made auntie feel there may have been a seizure?

Mention to doctor for sure, but if there are no other signs, I would probably

not worry too much... (But, as moms, of course we do!! : )

>

> >

>

> > My 8 year old had a sleep deprived eeg scheduled and I had my reservations

about the sleep deprivation part. I think most kids with issues do very poorly

with little sleep. You're supposed to let your child only have 4 to 5 hours of

sleep before the test so that they have a better chance of falling asleep for

parts of the test. My son went through maybe a 1/3 of the test and just after

the strobe lights he wanted out of there. I did tell my son prior to the eeg

what to expect and that I owuld be there the entire time with him. I'm positive

the test with be incomplete and the doctor will want a more advanced and

possible 24 hour stay in the hospital for the next eeg. Am I the only one who

went through this type of eeg outcome?

>

> >

>

[Guest guest]

she said that he was shaking and kinda flopping around on her sons bed, but i am not sure what i am sure of is today my son was taken from school by ambulance to hospital because of quess what suspected a seizure. but i dont know the stupid hospital did not even do an eeg, they took blood they took urine and did a ct scan. i find it alittle appalling but i am not an expert, we are now pending an appt. with a pediatric nuerologist, because the one we have here doesnt see children. thanks for sharing your story though. sherryFrom: tdhssp <johnvel@...>Subject: ( ) Re: Has your child had an EEG gone wrong? Date:

Wednesday, April 1, 2009, 2:55 AM

We were worried because what we saw was our daughter would seem to momentarily stop what she was doing - but, literally for only moments at a time - and then resume activity. For instance, she might be eating dinner, poise with fork in hand for a few seconds and then continue eating. These, we learned, were absence seizures/aka: auras which were also occuring at school and mentioned to us by staff during an IPP. (We had already figured the same and at that point, had the EEG done; the one that came back 'inconclusive' .) Then, within a short time, we were at the peds app't. when our little girl, looking at flourescent lights, her eyes were zig-zagging rapidly from side to side and thus, she was diagnosed with witnessed seizure. She once scared us by vomiting in the middle of the night, but was neither sick before or after the event. I suspect that she may have had seizure activity during sleep. So, yes, there were signals that we were investigating. Our

little girl, however, mainly non-verbal was unable to alert us. Our friend's child who has the same disorder speaks pretty well and has had similar episodes... Fortunately, she is able to tell her mommy, "dizzy", "head hurts" to alert the parents. We also learned from the school that our daughter would rest her head at the table and press her fingertips to her temples, as if in pain. So, there were the momentary lapses, vomiting, and headaches that were seen.

What made auntie feel there may have been a seizure?

Mention to doctor for sure, but if there are no other signs, I would probably not worry too much... (But, as moms, of course we do!! : )

>

> >

>

> > My 8 year old had a sleep deprived eeg scheduled and I had my reservations about the sleep deprivation part. I think most kids with issues do very poorly with little sleep. You're supposed to let your child only have 4 to 5 hours of sleep before the test so that they have a better chance of falling asleep for parts of the test. My son went through maybe a 1/3 of the test and just after the strobe lights he wanted out of there. I did tell my son prior to the eeg what to expect and that I owuld be there the entire time with him. I'm positive the test with be incomplete and the doctor will want a more advanced and possible 24 hour stay in the hospital for the next eeg. Am I the only one who went through this type of eeg outcome?

>

> >

>

[Guest guest]

So sorry to hear this Sherry. Yes, I understand your concern. Your son has no

history; of course, it is upsetting why this would occur all of a sudden.

Someone mentioned to me that kids that are approaching puberty sometimes

begin/increase in seizure activity... Do you have any idea how long you must

wait to be seen by a neurologist? I'll pray for you to get in early. XO

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> > > My 8 year old had a sleep deprived eeg scheduled and I had my reservations

about the sleep deprivation part. I think most kids with issues do very poorly

with little sleep. You're supposed to let your child only have 4 to 5 hours of

sleep before the test so that they have a better chance of falling asleep for

parts of the test. My son went through maybe a 1/3 of the test and just after

the strobe lights he wanted out of there. I did tell my son prior to the eeg

what to expect and that I owuld be there the entire time with him. I'm positive

the test with be incomplete and the doctor will want a more advanced and

possible 24 hour stay in the hospital for the next eeg. Am I the only one who

went through this type of eeg outcome?

>

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[Guest guest]

well, this am the nurse from family dr called said not until june i freaked i simply cannot accept that long of a wait, so she called dr dr called me i was very upset of course he said he'd have his nurse contact childrens in pittsburgh and get back maybe they could see him sooner, the nurse called back he is to be seen in pittsburgh on april 7 at 2:00 awesome. they are going to do a sleep-deprived eeg. he is only allowed to sleep for 5 hrs the night before and not to fall asleep on the trip down as it will take at least 2 hrs to drive to pittsburgh with road work maybe longer. i am just glad i only have to wait 5 days instead of 3 months. but i am scared. sherryFrom:

tdhssp <johnvel@...>Subject: ( ) Re: Has your child had an EEG gone wrong? Date: Wednesday, April 1, 2009, 11:02 PM

So sorry to hear this Sherry. Yes, I understand your concern. Your son has no history; of course, it is upsetting why this would occur all of a sudden. Someone mentioned to me that kids that are approaching puberty sometimes begin/increase in seizure activity... Do you have any idea how long you must wait to be seen by a neurologist? I'll pray for you to get in early. XO

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> > > My 8 year old had a sleep deprived eeg scheduled and I had my reservations about the sleep deprivation part. I think most kids with issues do very poorly with little sleep. You're supposed to let your child only have 4 to 5 hours of sleep before the test so that they have a better chance of falling asleep for parts of the test. My son went through maybe a 1/3 of the test and just after the strobe lights he wanted out of there. I did tell my son prior to the eeg what to expect and that I owuld be there the entire time with him. I'm positive the test with be incomplete and the doctor will want a more advanced and possible 24 hour stay in the hospital for the next eeg. Am I the only one who went through this type of eeg outcome?

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[Guest guest]

Ours wasn't so bad but my granddaughter is not that severe. She said the strobe

really made her feel anxious.

I can understand and agree that depriving some people of sleep is a really bad

idea. It can trigger an episode. These kids don't sleep that well anyway and

one whole night with little sleep could be a disaster.

Best wishes,

Jill T

[Guest guest]

Wow, I bet you were so scared and so was he! Definitely want to see the neurologist! Let us know how it goes.

Roxanna

The government’s view of the economy could be summed up in a few short phrases:If it moves, tax it. If it keeps moving, regulate it.And if it stops moving, subsidize it. Reagan

( ) Re: Has your child had an EEG gone wrong? Date: Wednesday, April 1, 2009, 2:55 AM

We were worried because what we saw was our daughter would seem to momentarily stop what she was doing - but, literally for only moments at a time - and then resume activity. For instance, she might be eating dinner, poise with fork in hand for a few seconds and then continue eating. These, we learned, were absence seizures/aka: auras which were also occuring at school and mentioned to us by staff during an IPP. (We had already figured the same and at that point, had the EEG done; the one that came back 'inconclusive' .) Then, within a short time, we were at the peds app't. when our little girl, looking at flourescent lights, her eyes were zig-zagging rapidly from side to side and thus, she was diagnosed with witnessed seizure. She once scared us by vomiting in the middle of the night, but was neither sick before or after the event. I suspect that she may have had seizure activity during sleep. So, yes, there were signals that we were investigating. Our little girl, however, mainly non-verbal was unable to alert us. Our friend's child who has the same disorder speaks pretty well and has had similar episodes... Fortunately, she is able to tell her mommy, "dizzy", "head hurts" to alert the parents. We also learned from the school that our daughter would rest her head at the table and press her fingertips to her temples, as if in pain. So, there were the momentary lapses, vomiting, and headaches that were seen.What made auntie feel there may have been a seizure?Mention to doctor for sure, but if there are no other signs, I would probably not worry too much... (But, as moms, of course we do!! : )> > >> > > My 8 year old had a sleep deprived eeg scheduled and I had my reservations about the sleep deprivation part. I think most kids with issues do very poorly with little sleep. You're supposed to let your child only have 4 to 5 hours of sleep before the test so that they have a better chance of falling asleep for parts of the test. My son went through maybe a 1/3 of the test and just after the strobe lights he wanted out of there. I did tell my son prior to the eeg what to expect and that I owuld be there the entire time with him. I'm positive the test with be incomplete and the doctor will want a more advanced and possible 24 hour stay in the hospital for the next eeg. Am I the only one who went through this type of eeg outcome?> > >>

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[Guest guest]

If they are having seizures, you would want to trigger one to confirm it so you can treat them asap.

Roxanna

The government’s view of the economy could be summed up in a few short phrases:If it moves, tax it. If it keeps moving, regulate it.And if it stops moving, subsidize it. Reagan

( ) Re: Has your child had an EEG gone wrong?

Ours wasn't so bad but my granddaughter is not that severe. She said the strobe really made her feel anxious. I can understand and agree that depriving some people of sleep is a really bad idea. It can trigger an episode. These kids don't sleep that well anyway and one whole night with little sleep could be a disaster. Best wishes,Jill T

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[Guest guest]

thanks alot and yes we were very scared i cant sleep very good cuz i am worried it will happen while i am a sleep, this whole ordeal is just awful.

From: tdhssp <johnvelshaw (DOT) ca>Subject: ( ) Re: Has your child had an EEG gone wrong? Date: Wednesday, April 1, 2009, 2:55 AM

We were worried because what we saw was our daughter would seem to momentarily stop what she was doing - but, literally for only moments at a time - and then resume activity. For instance, she might be eating dinner, poise with fork in hand for a few seconds and then continue eating. These, we learned, were absence seizures/aka: auras which were also occuring at school and mentioned to us by staff during an IPP. (We had already figured the same and at that point, had the EEG done; the one that came back 'inconclusive' .) Then, within a short time, we were at the peds app't. when our little girl, looking at flourescent lights, her eyes were zig-zagging rapidly from side to side and thus, she was diagnosed with witnessed seizure. She once scared us by vomiting in the middle of the night, but was neither sick before or after the event. I suspect that she may have had seizure activity during sleep. So, yes, there were signals that we were investigating.. Our little girl, however, mainly non-verbal was unable to alert us. Our friend's child who has the same disorder speaks pretty well and has had similar episodes... Fortunately, she is able to tell her mommy, "dizzy", "head hurts" to alert the parents. We also learned from the school that our daughter would rest her head at the table and press her fingertips to her temples, as if in pain. So, there were the momentary lapses, vomiting, and headaches that were seen.What made auntie feel there may have been a seizure?Mention to doctor for sure, but if there are no other signs, I would probably not worry too much.... (But, as moms, of course we do!! : )> > >> > > My 8 year old had a sleep deprived eeg scheduled and I had my reservations about the sleep deprivation part. I think most kids with issues do very poorly with little sleep. You're supposed to let your child only have 4 to 5 hours of sleep before the test so that they have a better chance of falling asleep for parts of the test. My son went through maybe a 1/3 of the test and just after the strobe lights he wanted out of there. I did tell my son prior to the eeg what to expect and that I owuld be there the entire time with him. I'm positive the test with be incomplete and the doctor will want a more advanced and possible 24 hour stay in the hospital for the next eeg. Am I the only one who went through this type of eeg outcome?> > >>

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[Guest guest]

i am just glad that he will be going to the childrens hospital when he has to go with out sleep just reeally scared about the whole day and especially the trip down, what if he has one before we get him to pittsburgh, that would be awful. but the seizure he had in school the nurse who has been a nurse for along time says what she witnessed was a grand mal seizure, and had i seen what she seen that morning i would have been terrified because the school staff who were pressent were scared too death and so ofcourse was my son. i don t know what to think or anything these days, tuesday wont get here fast enough. sherryFrom: Jill <datjat1@...>Subject: ( )

Re: Has your child had an EEG gone wrong? Date: Friday, April 3, 2009, 1:51 AM

Ours wasn't so bad but my granddaughter is not that severe. She said the strobe really made her feel anxious.

I can understand and agree that depriving some people of sleep is a really bad idea. It can trigger an episode. These kids don't sleep that well anyway and one whole night with little sleep could be a disaster.

Best wishes,

Jill T