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Re: any advice welcome!....

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I don't know what your situation is, but my advice is to get some evaluations

done yourself rather than waiting on whoever it is that you keep waiting on and

are getting bad results from.

Ruth

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Good advice! You should not wait for the system if your child needs help now. Sent from my BlackBerry® smartphone with SprintSpeedFrom: "r_woman2" Date: Mon, 16 Mar 2009 15:03:48 -0000< >Subject: ( ) Re: any advice welcome!.... I don't know what your situation is, but my advice is to get some evaluations done yourself rather than waiting on whoever it is that you keep waiting on and are getting bad results from. Ruth

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Oh, my heart goes out to you. Can you go to a Psychiatrist thru your medical insurance and not wait for the nurse to refer him. Doesn't your school do evaluations? My son was evaluated for learning disabilities and then the school provided a lic. psychiatrist to eval. him. I went to the Child welfare office in town and applied for wrap around services for him with his dx of Aspergers. We get help from an agency that supplies us with a mobile therapist, TSS worker and a Behavioral Specialist.

There are lots of books out that that can help you too. I like Lavoire...I read one of his books and saw two of his DVD/s one on motivation and the other called Last one Picked, First one Picked on.

Push the school to test him....do what ever you have to. Advocate for your son!!!! REad everthing and anythinbg you can get your hands on. There are a lot of great sites out there ...I will have to write them down for you ....and post them.

www.thelittleprofessor.com

www.thegreycenter.com

www.wrightslaw.com

My son is 13 so I have read a lot of books in the past year....you may need to get different books as your son is much younger. You are lucky in a way that you have learned this while he is so young and you have many years ahead to work with him on his social skills.

Have the school test him in speech espcially for Pragmatics. Advocate for social skills training...Get him an IEP.

Just some thoughts ....I am sure others will have great ideas. And, try to join a Asperger's group if there is one near by you. Keep posting here too.

Best wishes....

Jan

Janice Rushen

"I will try to be open to all avenues of wisdom and hope"

From: mrss1981 <maddie.samson@...>Subject: ( ) any advice welcome!.... Date: Monday, March 16, 2009, 7:24 AM

this time last year my son was 4 1/2 and his school pointed out to me that his "quirks" and lack of social skills weren't quite normal, he was seen by the school nurses who suggested he had aspergers and when i read up on it i realised it fits with his behaviour. unfortunately he got severly bullied at school and they excused the bullying as my son was different to the other children (as if he deserved it!) so i changed his school in june. we then got refferred to the childrens developement centre and saw an awful dr who hadnt read the notes (she didn't see that this had orriginally been picked up by the school, NOT ME! and she blamed his behaviour on being an only child when he has a sister!) the forms his new school (he'd only been there a few weeks) had filled out implied he had adhd and my forms implied he had aspergers, i was treated as if i was there because i wanted my son to have problems which couldn't be further from the truth. i left that

meeting being told she doesnt diagnose children under 6 and she'd review him in a few months. we went back in december and once again the dr wasnt interested in anything i had to say and both mine and the schools forms came back for aspergers this time but the dr said theres nothing wrong with him he's just immature and she'd see us in a year when he was over 6. i then got sent a letter saying he'd been discharged and if i had any problems to speak to the health visitor. i was going to leave it but recently he's been so negative and a couple of his traits i need help with how to help him with them (he has a special way of going to the toilet and will only go at home and has had accidents because he wont go at school and he struggles immensley in new social situations, he gets so upset over little things and has other problems that i cant find ways of helping him cope) i'm now waiting for the school nurses to refer him again but i'm worried that i'm

dragging him (and me) through it all again but not going to get any help. its driving me mad because i just want him to be happy and i need help on how to understand him better, its breaking my heart.

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