Guest guest Posted April 15, 2009 Report Share Posted April 15, 2009 Again, Sue, thanks for the full perspective! Its nice to be able to clearly thing about all the pros and cons. I had thought about pre-existing conditions/health insurance “labels” but not the military. I am just so grateful for your (and everyone’s) feedback about considerations like this So it sounds like if one DOES go the med route, ADD meds are more effective than simply anxiety/OCD…? From: [mailto: ] On Behalf Of carolynsuelowerychattanooga Sent: Wednesday, April 15, 2009 7:04 AM Subject: ( ) Re: Miserable couple of days... DS, 24, has been on ADD type meds since he was 9 or 10. This weekend he was home from JobCorps and even though he insisted he took his meds (to get us off his back!) we kept asking all day if he was sure because he was so annoying! It is very subtle with him but DH and I could both tell that he was different. By the end of the day, he 'fessed up that he had left them at school. The next afternoon he found them, in suitcase and what a difference after he took them! We have seen more affect since he's older. THe meds works better, plus he can tell you how he feels a lot better. He functions better, but it is different in every child. He is on Vyvanse now. His physician also takes it, so I feel she can certainly relate. Now we are up against the fact that they won't let you in the military if you have taken ADD type meds within past year...even though they give those same drugs to their pilots and some others for alertness. So, DS will not be able to join, something he would dearly like to do. Sue in TN > > Hi > > > > Thanks so much for sharing! > > > > We have an appt on the 21st (long time waiting) and I had been on the fence > for a long time about medication. I've finally decided its what we want, > but reading something like this really helps drive that home! > > > > Wish us luck! > > > > Lori > > > > _____ > > From: > [mailto: ] On Behalf Of O'Brien > Sent: Tuesday, April 14, 2009 6:13 PM > > Subject: ( ) Miserable couple of days... > > > > > > > > > I screwed up. > > > > I thought we had a week left of my sons Concerta, and we didn't. I ran out > on the weekend, and of course the dr's office was closed Saturday, Sunday > AND Monday. So three days without medication for my son, for the first time > since he started taking it over a year ago. > > > > I thought. ok. This should be interesting. It was FAR from interesting It > was MISERABLE !!! > > > > He was miserable. He told me he couldn't listen to me because he couldn't > hear me. too many other noises. As the days went on, he got worse. I > realized that not only has the Concerta helped his " ADHD " type symptoms, but > WOW has it helped in other areas too. Stimming is one area. For him, it's > ALWAYS been echolalia. From Kindergarten, there was always the comments from > teachers about " nonsense noises " . Well my boy has been making them NON STOP > for the last three days. And it took that to show me how LITTLE he's been > doing it while TAKING the Concerta. Another area? He has been so LIPPY the > last few days Really, really terrible. Completely no thought about anyone > else but himself, and up to this point, he's actually been making huge > efforts to be concerned about others, etc. But today? My gosh. we went into > the DR to get a prescription refill (PHEW!) and every time the DR would say > something, he'd " talk back " to him. Thankfully, our dr is wonderful and just > laughed it off. but I was quite honestly shocked. And another thing I was? > Completely scared, and lost Despite the research I've done, I realized > how much that medication has helped him and continues to help him, and I > don't know that we could focus on helping my son with all his other areas of > struggle without it. I hate giving it to him, but I can't deny that it > helps. He told me. " Mom, my brain is just spinning too fast. " and > " Everything is too hard, too confusing, and too scary! " I also learned > that I have MUCH to learn when it comes to AS and how to help him. We will > be waiting a long time for that DX, but I need to know how to help him NOW! > Oy. > > > > To make the last few days even worse, my youngest broke his elbow. The boys > were playing, beautifully actually, driving their cars around. They'd > decided that underneath my bed was a " Garage " . I was thrilled to see their > creativity, esp. my eldest, because that's not a strength for him when it > come to play. He was even letting his little brother come up with a few > ideas, and that's not something that EVER happens lol. Anyway. all of a > sudden I heard this blood curdling scream. Apparently my youngest was under > the bed, with his arms up on the bed, and my eldest was on top of the bed. > He moved over, and it pushed my boy's arm down with a twist to the side, and > he told us it " cracked " . It was one of those things that neither of them > planned, or had any control over. It was a complete accident. > > > > WELL my eldest, he lost it. When I went to help my youngest out from under > the bed, he was SCREAMING, and my eldest was on the floor looking under the > bed, frozen like a deer in headlights. He had NO idea what to do. After we > checked my youngest out, and realized we had to take him to the DR, my > eldest was running around the house, crying, angry. lashing out. I tried to > talk to him and he kept pushing me away (SO not like him. esp. with me. > Normally he'll push others away, but NEVER me!). He said " I am going to kill > myself " I finally helped him calm down, and figured out that he thought > he was somehow responsible for what happened to his little brother. It took > me FOREVER to convince him that it was JUST an accident, and it wasn't > anything he did. I was quite shocked by his response. but given that he > hasn't been taking his medication, I guess I'm not AS surprised, because he > was SO quick to negativity before medications, too. Never that severe. that > really scared me > > > > I am trying to remind myself that a GOOD chunk of this is just the shocking > " cold turkey " of it all for him. His body had gotten used to it. And if I've > ever had my doubts about giving him medication, and it being the right thing > for him, but I can't question it anymore. I don't care about how he behaves, > and if it makes things easier for me, etc. I love him no matter what. But it > REALLY does make things easier for HIM!!! > > > > MAN it's been a long few days I'm gonna go have a rum and put my feet up > lol. > > > > =) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2009 Report Share Posted April 15, 2009 For my son, ADHD meds were the way to go b/c he needed help focusing in school. He's struggled w/ being very impulsive for a long time. I think the meds help him stop, even briefly, before he responds at school. He has improved a lot on this when he's not on the meds outside of school, but the environment is totally different. The sounds, people, stress, etc... at school make the meds necessary. Although my son obviously struggles w/ anxiety at times, we chose the ADHD meds route b/c they've historically had more tests done for short- and long-term side effects than meds for anxiety and children. We also had an unfortunate experience w/ an anxiety med when he was 8 so that pretty much closed the door on those meds for us. In lieu of meds, we've implemented a sensory diet for my son both at school (on occasion) and at home (frequently used) and that seems to help decrease the anxiety naturally. "Over-optimism is waiting for you ship to come in when you haven't sent one out." From: Lori Lashley <LLashley@...> Sent: Wednesday, April 15, 2009 10:30:42 AMSubject: RE: ( ) Re: Miserable couple of days... Again, Sue, thanks for the full perspective! Its nice to be able to clearly thing about all the pros and cons. I had thought about pre-existing conditions/health insurance “labels†but not the military. I am just so grateful for your (and everyone’s) feedback about considerations like this So it sounds like if one DOES go the med route, ADD meds are more effective than simply anxiety/OCD…? From: [mailto: ] On Behalf Of carolynsuelowerycha ttanoogaSent: Wednesday, April 15, 2009 7:04 AM Subject: ( ) Re: Miserable couple of days... DS, 24, has been on ADD type meds since he was 9 or 10. This weekend he was home from JobCorps and even though he insisted he took his meds (to get us off his back!) we kept asking all day if he was sure because he was so annoying! It is very subtle with him but DH and I could both tell that he was different. By the end of the day, he 'fessed up that he had left them at school. The next afternoon he found them, in suitcase and what a difference after he took them! We have seen more affect since he's older. THe meds works better, plus he can tell you how he feels a lot better. He functions better, but it is different in every child. He is on Vyvanse now. His physician also takes it, so I feel she can certainly relate.Now we are up against the fact that they won't let you in the military if you have taken ADD type meds within past year...even though they give those same drugs to their pilots and some others for alertness. So, DS will not be able to join, something he would dearly like to do.Sue in TN>> Hi > > > > Thanks so much for sharing!> > > > We have an appt on the 21st (long time waiting) and I had been on the fence> for a long time about medication. I've finally decided its what we want,> but reading something like this really helps drive that home!> > > > Wish us luck!> > > > Lori > > > > _____ > > From: > [mailto: ] On Behalf Of O'Brien> Sent: Tuesday, April 14, 2009 6:13 PM> > Subject: ( ) Miserable couple of days...> > > > > > > > > I screwed up.> > > > I thought we had a week left of my sons Concerta, and we didn't. I ran out> on the weekend, and of course the dr's office was closed Saturday, Sunday> AND Monday. So three days without medication for my son, for the first time> since he started taking it over a year ago.> > > > I thought. ok. This should be interesting. It was FAR from interesting It> was MISERABLE !!!> > > > He was miserable. He told me he couldn't listen to me because he couldn't> hear me. too many other noises. As the days went on, he got worse. I> realized that not only has the Concerta helped his "ADHD" type symptoms, but> WOW has it helped in other areas too. Stimming is one area. For him, it's> ALWAYS been echolalia. From Kindergarten, there was always the comments from> teachers about "nonsense noises". Well my boy has been making them NON STOP> for the last three days. And it took that to show me how LITTLE he's been> doing it while TAKING the Concerta. Another area? He has been so LIPPY the> last few days Really, really terrible. Completely no thought about anyone> else but himself, and up to this point, he's actually been making huge> efforts to be concerned about others, etc. But today? My gosh. we went into> the DR to get a prescription refill (PHEW!) and every time the DR would say> something, he'd "talk back" to him. Thankfully, our dr is wonderful and just> laughed it off. but I was quite honestly shocked. And another thing I was?> Completely scared, and lost Despite the research I've done, I realized> how much that medication has helped him and continues to help him, and I> don't know that we could focus on helping my son with all his other areas of> struggle without it. I hate giving it to him, but I can't deny that it> helps. He told me. "Mom, my brain is just spinning too fast." and> "Everything is too hard, too confusing, and too scary!" I also learned> that I have MUCH to learn when it comes to AS and how to help him. We will> be waiting a long time for that DX, but I need to know how to help him NOW!> Oy.> > > > To make the last few days even worse, my youngest broke his elbow. The boys> were playing, beautifully actually, driving their cars around. They'd> decided that underneath my bed was a "Garage". I was thrilled to see their> creativity, esp. my eldest, because that's not a strength for him when it> come to play. He was even letting his little brother come up with a few> ideas, and that's not something that EVER happens lol. Anyway. all of a> sudden I heard this blood curdling scream. Apparently my youngest was under> the bed, with his arms up on the bed, and my eldest was on top of the bed.> He moved over, and it pushed my boy's arm down with a twist to the side, and> he told us it "cracked". It was one of those things that neither of them> planned, or had any control over. It was a complete accident. > > > > WELL my eldest, he lost it. When I went to help my youngest out from under> the bed, he was SCREAMING, and my eldest was on the floor looking under the> bed, frozen like a deer in headlights. He had NO idea what to do. After we> checked my youngest out, and realized we had to take him to the DR, my> eldest was running around the house, crying, angry. lashing out. I tried to> talk to him and he kept pushing me away (SO not like him. esp. with me.> Normally he'll push others away, but NEVER me!). He said "I am going to kill> myself" I finally helped him calm down, and figured out that he thought> he was somehow responsible for what happened to his little brother. It took> me FOREVER to convince him that it was JUST an accident, and it wasn't> anything he did. I was quite shocked by his response. but given that he> hasn't been taking his medication, I guess I'm not AS surprised, because he> was SO quick to negativity before medications, too. Never that severe. that> really scared me > > > > I am trying to remind myself that a GOOD chunk of this is just the shocking> "cold turkey" of it all for him. His body had gotten used to it. And if I've> ever had my doubts about giving him medication, and it being the right thing> for him, but I can't question it anymore. I don't care about how he behaves,> and if it makes things easier for me, etc. I love him no matter what. But it> REALLY does make things easier for HIM!!!> > > > MAN it's been a long few days I'm gonna go have a rum and put my feet up> lol.> > > > =)> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2009 Report Share Posted April 15, 2009 My son who is now 19 has taken concerta since he was in the 6th grade. One time when we were going on vacation, we left without his meds and didn't realize it until we were a couple of hours down the road. We never made that mistake again! Our Tyler talks uncontrollable and is very flighty and extremely impulsive. He, too was rejected from the military which he wanted very much. Another thing to be aware of is that ADHD is a prediagnosed condition and we cannot get health insurance on him. Lori mother of Tyler:ADHD Korby:ODD aunt of Cole:AS From: MacAllister <smacalli@...>Subject: Re: ( ) Re: Miserable couple of days... Date: Wednesday, April 15, 2009, 10:47 AM For my son, ADHD meds were the way to go b/c he needed help focusing in school. He's struggled w/ being very impulsive for a long time. I think the meds help him stop, even briefly, before he responds at school. He has improved a lot on this when he's not on the meds outside of school, but the environment is totally different. The sounds, people, stress, etc... at school make the meds necessary. Although my son obviously struggles w/ anxiety at times, we chose the ADHD meds route b/c they've historically had more tests done for short- and long-term side effects than meds for anxiety and children. We also had an unfortunate experience w/ an anxiety med when he was 8 so that pretty much closed the door on those meds for us. In lieu of meds, we've implemented a sensory diet for my son both at school (on occasion) and at home (frequently used) and that seems to help decrease the anxiety naturally. "Over-optimism is waiting for you ship to come in when you haven't sent one out." From: Lori Lashley <LLashley@...> Sent: Wednesday, April 15, 2009 10:30:42 AMSubject: RE: ( ) Re: Miserable couple of days... Again, Sue, thanks for the full perspective! Its nice to be able to clearly thing about all the pros and cons. I had thought about pre-existing conditions/health insurance “labels†but not the military. I am just so grateful for your (and everyone’s) feedback about considerations like this So it sounds like if one DOES go the med route, ADD meds are more effective than simply anxiety/OCD…? From: [mailto: ] On Behalf Of carolynsuelowerycha ttanoogaSent: Wednesday, April 15, 2009 7:04 AM Subject: ( ) Re: Miserable couple of days... DS, 24, has been on ADD type meds since he was 9 or 10. This weekend he was home from JobCorps and even though he insisted he took his meds (to get us off his back!) we kept asking all day if he was sure because he was so annoying! It is very subtle with him but DH and I could both tell that he was different. By the end of the day, he 'fessed up that he had left them at school. The next afternoon he found them, in suitcase and what a difference after he took them! We have seen more affect since he's older. THe meds works better, plus he can tell you how he feels a lot better. He functions better, but it is different in every child. He is on Vyvanse now. His physician also takes it, so I feel she can certainly relate.Now we are up against the fact that they won't let you in the military if you have taken ADD type meds within past year...even though they give those same drugs to their pilots and some others for alertness. So, DS will not be able to join, something he would dearly like to do.Sue in TN>> Hi > > > > Thanks so much for sharing!> > > > We have an appt on the 21st (long time waiting) and I had been on the fence> for a long time about medication. I've finally decided its what we want,> but reading something like this really helps drive that home!> > > > Wish us luck!> > > > Lori > > > > _____ > > From: > [mailto: ] On Behalf Of O'Brien> Sent: Tuesday, April 14, 2009 6:13 PM> > Subject: ( ) Miserable couple of days...> > > > > > > > > I screwed up.> > > > I thought we had a week left of my sons Concerta, and we didn't. I ran out> on the weekend, and of course the dr's office was closed Saturday, Sunday> AND Monday. So three days without medication for my son, for the first time> since he started taking it over a year ago.> > > > I thought. ok. This should be interesting. It was FAR from interesting It> was MISERABLE !!!> > > > He was miserable. He told me he couldn't listen to me because he couldn't> hear me. too many other noises. As the days went on, he got worse. I> realized that not only has the Concerta helped his "ADHD" type symptoms, but> WOW has it helped in other areas too. Stimming is one area. For him, it's> ALWAYS been echolalia. From Kindergarten, there was always the comments from> teachers about "nonsense noises". Well my boy has been making them NON STOP> for the last three days. And it took that to show me how LITTLE he's been> doing it while TAKING the Concerta. Another area? He has been so LIPPY the> last few days Really, really terrible. Completely no thought about anyone> else but himself, and up to this point, he's actually been making huge> efforts to be concerned about others, etc. But today? My gosh. we went into> the DR to get a prescription refill (PHEW!) and every time the DR would say> something, he'd "talk back" to him. Thankfully, our dr is wonderful and just> laughed it off. but I was quite honestly shocked. And another thing I was?> Completely scared, and lost Despite the research I've done, I realized> how much that medication has helped him and continues to help him, and I> don't know that we could focus on helping my son with all his other areas of> struggle without it. I hate giving it to him, but I can't deny that it> helps. He told me. "Mom, my brain is just spinning too fast." and> "Everything is too hard, too confusing, and too scary!" I also learned> that I have MUCH to learn when it comes to AS and how to help him. We will> be waiting a long time for that DX, but I need to know how to help him NOW!> Oy.> > > > To make the last few days even worse, my youngest broke his elbow. The boys> were playing, beautifully actually, driving their cars around. They'd> decided that underneath my bed was a "Garage". I was thrilled to see their> creativity, esp. my eldest, because that's not a strength for him when it> come to play. He was even letting his little brother come up with a few> ideas, and that's not something that EVER happens lol. Anyway. all of a> sudden I heard this blood curdling scream. Apparently my youngest was under> the bed, with his arms up on the bed, and my eldest was on top of the bed.> He moved over, and it pushed my boy's arm down with a twist to the side, and> he told us it "cracked". It was one of those things that neither of them> planned, or had any control over. It was a complete accident. > > > > WELL my eldest, he lost it. When I went to help my youngest out from under> the bed, he was SCREAMING, and my eldest was on the floor looking under the> bed, frozen like a deer in headlights. He had NO idea what to do. After we> checked my youngest out, and realized we had to take him to the DR, my> eldest was running around the house, crying, angry. lashing out. I tried to> talk to him and he kept pushing me away (SO not like him. esp. with me.> Normally he'll push others away, but NEVER me!). He said "I am going to kill> myself" I finally helped him calm down, and figured out that he thought> he was somehow responsible for what happened to his little brother. It took> me FOREVER to convince him that it was JUST an accident, and it wasn't> anything he did. I was quite shocked by his response. but given that he> hasn't been taking his medication, I guess I'm not AS surprised, because he> was SO quick to negativity before medications, too. Never that severe. that> really scared me > > > > I am trying to remind myself that a GOOD chunk of this is just the shocking> "cold turkey" of it all for him. His body had gotten used to it. And if I've> ever had my doubts about giving him medication, and it being the right thing> for him, but I can't question it anymore. I don't care about how he behaves,> and if it makes things easier for me, etc. I love him no matter what. But it> REALLY does make things easier for HIM!!!> > > > MAN it's been a long few days I'm gonna go have a rum and put my feet up> lol.> > > > =)> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2009 Report Share Posted April 15, 2009 I've never had problems with insurance for Dylan? "Over-optimism is waiting for you ship to come in when you haven't sent one out." From: lori jennings <lozzy3us@...> Sent: Wednesday, April 15, 2009 2:34:09 PMSubject: Re: ( ) Re: Miserable couple of days... My son who is now 19 has taken concerta since he was in the 6th grade. One time when we were going on vacation, we left without his meds and didn't realize it until we were a couple of hours down the road. We never made that mistake again! Our Tyler talks uncontrollable and is very flighty and extremely impulsive. He, too was rejected from the military which he wanted very much. Another thing to be aware of is that ADHD is a prediagnosed condition and we cannot get health insurance on him. Lori mother of Tyler:ADHD Korby:ODD aunt of Cole:AS From: MacAllister <smacalli (DOT) com>Subject: Re: ( ) Re: Miserable couple of days... Date: Wednesday, April 15, 2009, 10:47 AM For my son, ADHD meds were the way to go b/c he needed help focusing in school. He's struggled w/ being very impulsive for a long time. I think the meds help him stop, even briefly, before he responds at school. He has improved a lot on this when he's not on the meds outside of school, but the environment is totally different. The sounds, people, stress, etc... at school make the meds necessary. Although my son obviously struggles w/ anxiety at times, we chose the ADHD meds route b/c they've historically had more tests done for short- and long-term side effects than meds for anxiety and children. We also had an unfortunate experience w/ an anxiety med when he was 8 so that pretty much closed the door on those meds for us. In lieu of meds, we've implemented a sensory diet for my son both at school (on occasion) and at home (frequently used) and that seems to help decrease the anxiety naturally. "Over-optimism is waiting for you ship to come in when you haven't sent one out." From: Lori Lashley <LLashley@conditanda ssoc.com> Sent: Wednesday, April 15, 2009 10:30:42 AMSubject: RE: ( ) Re: Miserable couple of days... Again, Sue, thanks for the full perspective! Its nice to be able to clearly thing about all the pros and cons. I had thought about pre-existing conditions/health insurance “labels†but not the military. I am just so grateful for your (and everyone’s) feedback about considerations like this So it sounds like if one DOES go the med route, ADD meds are more effective than simply anxiety/OCD…? From: [mailto: ] On Behalf Of carolynsuelowerycha ttanoogaSent: Wednesday, April 15, 2009 7:04 AM Subject: ( ) Re: Miserable couple of days... DS, 24, has been on ADD type meds since he was 9 or 10. This weekend he was home from JobCorps and even though he insisted he took his meds (to get us off his back!) we kept asking all day if he was sure because he was so annoying! It is very subtle with him but DH and I could both tell that he was different. By the end of the day, he 'fessed up that he had left them at school. The next afternoon he found them, in suitcase and what a difference after he took them! We have seen more affect since he's older. THe meds works better, plus he can tell you how he feels a lot better. He functions better, but it is different in every child. He is on Vyvanse now. His physician also takes it, so I feel she can certainly relate.Now we are up against the fact that they won't let you in the military if you have taken ADD type meds within past year...even though they give those same drugs to their pilots and some others for alertness. So, DS will not be able to join, something he would dearly like to do.Sue in TN>> Hi > > > > Thanks so much for sharing!> > > > We have an appt on the 21st (long time waiting) and I had been on the fence> for a long time about medication. I've finally decided its what we want,> but reading something like this really helps drive that home!> > > > Wish us luck!> > > > Lori > > > > _____ > > From: > [mailto: ] On Behalf Of O'Brien> Sent: Tuesday, April 14, 2009 6:13 PM> > Subject: ( ) Miserable couple of days...> > > > > > > > > I screwed up.> > > > I thought we had a week left of my sons Concerta, and we didn't. I ran out> on the weekend, and of course the dr's office was closed Saturday, Sunday> AND Monday. So three days without medication for my son, for the first time> since he started taking it over a year ago.> > > > I thought. ok. This should be interesting. It was FAR from interesting It> was MISERABLE !!!> > > > He was miserable. He told me he couldn't listen to me because he couldn't> hear me. too many other noises. As the days went on, he got worse. I> realized that not only has the Concerta helped his "ADHD" type symptoms, but> WOW has it helped in other areas too. Stimming is one area. For him, it's> ALWAYS been echolalia. From Kindergarten, there was always the comments from> teachers about "nonsense noises". Well my boy has been making them NON STOP> for the last three days. And it took that to show me how LITTLE he's been> doing it while TAKING the Concerta. Another area? He has been so LIPPY the> last few days Really, really terrible. Completely no thought about anyone> else but himself, and up to this point, he's actually been making huge> efforts to be concerned about others, etc. But today? My gosh. we went into> the DR to get a prescription refill (PHEW!) and every time the DR would say> something, he'd "talk back" to him. Thankfully, our dr is wonderful and just> laughed it off. but I was quite honestly shocked. And another thing I was?> Completely scared, and lost Despite the research I've done, I realized> how much that medication has helped him and continues to help him, and I> don't know that we could focus on helping my son with all his other areas of> struggle without it. I hate giving it to him, but I can't deny that it> helps. He told me. "Mom, my brain is just spinning too fast." and> "Everything is too hard, too confusing, and too scary!" I also learned> that I have MUCH to learn when it comes to AS and how to help him. We will> be waiting a long time for that DX, but I need to know how to help him NOW!> Oy.> > > > To make the last few days even worse, my youngest broke his elbow. The boys> were playing, beautifully actually, driving their cars around. They'd> decided that underneath my bed was a "Garage". I was thrilled to see their> creativity, esp. my eldest, because that's not a strength for him when it> come to play. He was even letting his little brother come up with a few> ideas, and that's not something that EVER happens lol. Anyway. all of a> sudden I heard this blood curdling scream. Apparently my youngest was under> the bed, with his arms up on the bed, and my eldest was on top of the bed.> He moved over, and it pushed my boy's arm down with a twist to the side, and> he told us it "cracked". It was one of those things that neither of them> planned, or had any control over. It was a complete accident. > > > > WELL my eldest, he lost it. When I went to help my youngest out from under> the bed, he was SCREAMING, and my eldest was on the floor looking under the> bed, frozen like a deer in headlights. He had NO idea what to do. After we> checked my youngest out, and realized we had to take him to the DR, my> eldest was running around the house, crying, angry. lashing out. I tried to> talk to him and he kept pushing me away (SO not like him. esp. with me.> Normally he'll push others away, but NEVER me!). He said "I am going to kill> myself" I finally helped him calm down, and figured out that he thought> he was somehow responsible for what happened to his little brother. It took> me FOREVER to convince him that it was JUST an accident, and it wasn't> anything he did. I was quite shocked by his response. but given that he> hasn't been taking his medication, I guess I'm not AS surprised, because he> was SO quick to negativity before medications, too. Never that severe. that> really scared me > > > > I am trying to remind myself that a GOOD chunk of this is just the shocking> "cold turkey" of it all for him. His body had gotten used to it. And if I've> ever had my doubts about giving him medication, and it being the right thing> for him, but I can't question it anymore. I don't care about how he behaves,> and if it makes things easier for me, etc. I love him no matter what. But it> REALLY does make things easier for HIM!!!> > > > MAN it's been a long few days I'm gonna go have a rum and put my feet up> lol.> > > > =)> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2009 Report Share Posted April 15, 2009 My son was on medicaid until he was 18 and then when we checked into insurance for him-he was denied or told him they would cover him but it would be extremely expensive. Lori From: MacAllister <smacalli (DOT) com>Subject: Re: ( ) Re: Miserable couple of days... Date: Wednesday, April 15, 2009, 10:47 AM For my son, ADHD meds were the way to go b/c he needed help focusing in school. He's struggled w/ being very impulsive for a long time. I think the meds help him stop, even briefly, before he responds at school. He has improved a lot on this when he's not on the meds outside of school, but the environment is totally different. The sounds, people, stress, etc... at school make the meds necessary. Although my son obviously struggles w/ anxiety at times, we chose the ADHD meds route b/c they've historically had more tests done for short- and long-term side effects than meds for anxiety and children. We also had an unfortunate experience w/ an anxiety med when he was 8 so that pretty much closed the door on those meds for us. In lieu of meds, we've implemented a sensory diet for my son both at school (on occasion) and at home (frequently used) and that seems to help decrease the anxiety naturally. "Over-optimism is waiting for you ship to come in when you haven't sent one out." From: Lori Lashley <LLashley@conditanda ssoc.com> Sent: Wednesday, April 15, 2009 10:30:42 AMSubject: RE: ( ) Re: Miserable couple of days... Again, Sue, thanks for the full perspective! Its nice to be able to clearly thing about all the pros and cons. I had thought about pre-existing conditions/health insurance “labels†but not the military. I am just so grateful for your (and everyone’s) feedback about considerations like this So it sounds like if one DOES go the med route, ADD meds are more effective than simply anxiety/OCD…? From: [mailto: ] On Behalf Of carolynsuelowerycha ttanoogaSent: Wednesday, April 15, 2009 7:04 AM Subject: ( ) Re: Miserable couple of days... DS, 24, has been on ADD type meds since he was 9 or 10. This weekend he was home from JobCorps and even though he insisted he took his meds (to get us off his back!) we kept asking all day if he was sure because he was so annoying! It is very subtle with him but DH and I could both tell that he was different. By the end of the day, he 'fessed up that he had left them at school. The next afternoon he found them, in suitcase and what a difference after he took them! We have seen more affect since he's older. THe meds works better, plus he can tell you how he feels a lot better. He functions better, but it is different in every child. He is on Vyvanse now. His physician also takes it, so I feel she can certainly relate.Now we are up against the fact that they won't let you in the military if you have taken ADD type meds within past year...even though they give those same drugs to their pilots and some others for alertness. So, DS will not be able to join, something he would dearly like to do.Sue in TN>> Hi > > > > Thanks so much for sharing!> > > > We have an appt on the 21st (long time waiting) and I had been on the fence> for a long time about medication. I've finally decided its what we want,> but reading something like this really helps drive that home!> > > > Wish us luck!> > > > Lori > > > > _____ > > From: > [mailto: ] On Behalf Of O'Brien> Sent: Tuesday, April 14, 2009 6:13 PM> > Subject: ( ) Miserable couple of days...> > > > > > > > > I screwed up.> > > > I thought we had a week left of my sons Concerta, and we didn't. I ran out> on the weekend, and of course the dr's office was closed Saturday, Sunday> AND Monday. So three days without medication for my son, for the first time> since he started taking it over a year ago.> > > > I thought. ok. This should be interesting. It was FAR from interesting It> was MISERABLE !!!> > > > He was miserable. He told me he couldn't listen to me because he couldn't> hear me. too many other noises. As the days went on, he got worse. I> realized that not only has the Concerta helped his "ADHD" type symptoms, but> WOW has it helped in other areas too. Stimming is one area. For him, it's> ALWAYS been echolalia. From Kindergarten, there was always the comments from> teachers about "nonsense noises". Well my boy has been making them NON STOP> for the last three days. And it took that to show me how LITTLE he's been> doing it while TAKING the Concerta. Another area? He has been so LIPPY the> last few days Really, really terrible. Completely no thought about anyone> else but himself, and up to this point, he's actually been making huge> efforts to be concerned about others, etc. But today? My gosh. we went into> the DR to get a prescription refill (PHEW!) and every time the DR would say> something, he'd "talk back" to him. Thankfully, our dr is wonderful and just> laughed it off. but I was quite honestly shocked. And another thing I was?> Completely scared, and lost Despite the research I've done, I realized> how much that medication has helped him and continues to help him, and I> don't know that we could focus on helping my son with all his other areas of> struggle without it. I hate giving it to him, but I can't deny that it> helps. He told me. "Mom, my brain is just spinning too fast." and> "Everything is too hard, too confusing, and too scary!" I also learned> that I have MUCH to learn when it comes to AS and how to help him. We will> be waiting a long time for that DX, but I need to know how to help him NOW!> Oy.> > > > To make the last few days even worse, my youngest broke his elbow. The boys> were playing, beautifully actually, driving their cars around. They'd> decided that underneath my bed was a "Garage". I was thrilled to see their> creativity, esp. my eldest, because that's not a strength for him when it> come to play. He was even letting his little brother come up with a few> ideas, and that's not something that EVER happens lol. Anyway. all of a> sudden I heard this blood curdling scream. Apparently my youngest was under> the bed, with his arms up on the bed, and my eldest was on top of the bed.> He moved over, and it pushed my boy's arm down with a twist to the side, and> he told us it "cracked". It was one of those things that neither of them> planned, or had any control over. It was a complete accident. > > > > WELL my eldest, he lost it. When I went to help my youngest out from under> the bed, he was SCREAMING, and my eldest was on the floor looking under the> bed, frozen like a deer in headlights. He had NO idea what to do. After we> checked my youngest out, and realized we had to take him to the DR, my> eldest was running around the house, crying, angry. lashing out. I tried to> talk to him and he kept pushing me away (SO not like him. esp. with me.> Normally he'll push others away, but NEVER me!). He said "I am going to kill> myself" I finally helped him calm down, and figured out that he thought> he was somehow responsible for what happened to his little brother. It took> me FOREVER to convince him that it was JUST an accident, and it wasn't> anything he did. I was quite shocked by his response. but given that he> hasn't been taking his medication, I guess I'm not AS surprised, because he> was SO quick to negativity before medications, too. Never that severe. that> really scared me > > > > I am trying to remind myself that a GOOD chunk of this is just the shocking> "cold turkey" of it all for him. His body had gotten used to it. And if I've> ever had my doubts about giving him medication, and it being the right thing> for him, but I can't question it anymore. I don't care about how he behaves,> and if it makes things easier for me, etc. I love him no matter what. But it> REALLY does make things easier for HIM!!!> > > > MAN it's been a long few days I'm gonna go have a rum and put my feet up> lol.> > > > =)> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2009 Report Share Posted April 15, 2009 Has anyone with a child with ADHD ever applied for SSI benefits? I guess I never thought about it. Honestly I don't know what our son would do if we didn't have the business. He has trouble comprehending directions and understanding basic knowledge. lodri From: r_woman2 <me2ruth@...>Subject: ( ) Re: Miserable couple of days... Date: Wednesday, April 15, 2009, 3:54 PM >> When son left job to go to JobCorps, we tried to get individual policy, not only was it very expensive, they denied coverage for anything related to ADD/HD. Meds, dr. exam, therapies, etc. DENIED. If your children are part of a group policy, such as your family policy, they can't do this. But if you are applying for individual coverage,forget it. Yes, this is the difference between private insurance and group insurance (through your employer). I just want to point out that this is not just an ADD/HD thing. You can't get private insurance if you have ANYTHING other than perfect health, for the most part. This is why you might want to check out social security disability. Just like the schools, you might have to hire an attorney to get it, but if it is disabling the person or affecting employment, I would think you have a chance. We don't have anyone in our family with ADD/HD, so I haven't checked into this at all (just have the blind husband!), but one of ya all might want to! It DOES NOT mean you can't work.Ruth------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2009 Report Share Posted April 15, 2009 I always use one of those 7 day pill organizers for all my kids' meds. I know 7 days ahead of time when they are running low. This helps when a script has to be written every time. Lori From: <@...>Subject: ( ) Re: Miserable couple of days... Date: Wednesday, April 15, 2009, 6:16 PM Well, the "up side" is you got to see how much Concerta is helping. Wanted to say that my son used to take Celexa (for OCD) and when we were unexpectedly running out, the pharmacy gave me a few days worth until I could get back to the doctor. Just a thought to ask your pharmacy if it ever happens again. (I said "gave" but it did cost) >> I screwed up.> > > > I thought we had a week left of my sons Concerta, and we didn't. I ran out> on the weekend, and of course the dr's office was closed Saturday, Sunday> AND Monday. So three days without medication for my son, for the first time> since he started taking it over a year ago.------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2009 Report Share Posted April 15, 2009 What is important to remember is that all children are different and react differently to medications. A medication that works well for one child may be a total disaster when used by another. My son was diagnosed as ADHD at age 5 and we went the ADHD med route. But, after many years on different ADHD meds – they seemed to work well for a while but would then lose their “flavorâ€. Eventually, he developed severe motor and vocal tics as well as hair pulling and we had to take him off all stimulants. We have had good success with Prozac, Topomax, and Abilify – did a major dose adjustment in October and he is the best he has been in years. Maybe the best he has ever been. But, of course, I have to give him credit.  He has matured and really worked hard to make improvements.      From: [mailto: ] On Behalf Of MacAllister Sent: Wednesday, April 15, 2009 10:48 AM Subject: Re: ( ) Re: Miserable couple of days... For my son, ADHD meds were the way to go b/c he needed help focusing in school. He's struggled w/ being very impulsive for a long time. I think the meds help him stop, even briefly, before he responds at school. He has improved a lot on this when he's not on the meds outside of school, but the environment is totally different. The sounds, people, stress, etc... at school make the meds necessary. Although my son obviously struggles w/ anxiety at times, we chose the ADHD meds route b/c they've historically had more tests done for short- and long-term side effects than meds for anxiety and children. We also had an unfortunate experience w/ an anxiety med when he was 8 so that pretty much closed the door on those meds for us. In lieu of meds, we've implemented a sensory diet for my son both at school (on occasion) and at home (frequently used) and that seems to help decrease the anxiety naturally. " Over-optimism is waiting for you ship to come in when you haven't sent one out. " From: Lori Lashley <LLashley@...> Sent: Wednesday, April 15, 2009 10:30:42 AM Subject: RE: ( ) Re: Miserable couple of days... Again, Sue, thanks for the full perspective! Its nice to be able to clearly thing about all the pros and cons. I had thought about pre-existing conditions/health insurance “labels†but not the military. I am just so grateful for your (and everyone’s) feedback about considerations like this So it sounds like if one DOES go the med route, ADD meds are more effective than simply anxiety/OCD…? From: @ groups. com [mailto: ] On Behalf Of carolynsuelowerycha ttanooga Sent: Wednesday, April 15, 2009 7:04 AM Subject: ( ) Re: Miserable couple of days... DS, 24, has been on ADD type meds since he was 9 or 10. This weekend he was home from JobCorps and even though he insisted he took his meds (to get us off his back!) we kept asking all day if he was sure because he was so annoying! It is very subtle with him but DH and I could both tell that he was different. By the end of the day, he 'fessed up that he had left them at school. The next afternoon he found them, in suitcase and what a difference after he took them! We have seen more affect since he's older. THe meds works better, plus he can tell you how he feels a lot better. He functions better, but it is different in every child. He is on Vyvanse now. His physician also takes it, so I feel she can certainly relate. Now we are up against the fact that they won't let you in the military if you have taken ADD type meds within past year...even though they give those same drugs to their pilots and some others for alertness. So, DS will not be able to join, something he would dearly like to do. Sue in TN > > Hi > > > > Thanks so much for sharing! > > > > We have an appt on the 21st (long time waiting) and I had been on the fence > for a long time about medication. I've finally decided its what we want, > but reading something like this really helps drive that home! > > > > Wish us luck! > > > > Lori > > > > _____ > > From: @ groups. com > [mailto: @ groups. com] On Behalf Of O'Brien > Sent: Tuesday, April 14, 2009 6:13 PM > @ groups. com > Subject: ( ) Miserable couple of days... > > > > > > > > > I screwed up. > > > > I thought we had a week left of my sons Concerta, and we didn't. I ran out > on the weekend, and of course the dr's office was closed Saturday, Sunday > AND Monday. So three days without medication for my son, for the first time > since he started taking it over a year ago. > > > > I thought. ok. This should be interesting. It was FAR from interesting It > was MISERABLE !!! > > > > He was miserable. He told me he couldn't listen to me because he couldn't > hear me. too many other noises. As the days went on, he got worse. I > realized that not only has the Concerta helped his " ADHD " type symptoms, but > WOW has it helped in other areas too. Stimming is one area. For him, it's > ALWAYS been echolalia. From Kindergarten, there was always the comments from > teachers about " nonsense noises " . Well my boy has been making them NON STOP > for the last three days. And it took that to show me how LITTLE he's been > doing it while TAKING the Concerta. Another area? He has been so LIPPY the > last few days Really, really terrible. Completely no thought about anyone > else but himself, and up to this point, he's actually been making huge > efforts to be concerned about others, etc. But today? My gosh. we went into > the DR to get a prescription refill (PHEW!) and every time the DR would say > something, he'd " talk back " to him. Thankfully, our dr is wonderful and just > laughed it off. but I was quite honestly shocked. And another thing I was? > Completely scared, and lost Despite the research I've done, I realized > how much that medication has helped him and continues to help him, and I > don't know that we could focus on helping my son with all his other areas of > struggle without it. I hate giving it to him, but I can't deny that it > helps. He told me. " Mom, my brain is just spinning too fast. " and > " Everything is too hard, too confusing, and too scary! " I also learned > that I have MUCH to learn when it comes to AS and how to help him. We will > be waiting a long time for that DX, but I need to know how to help him NOW! > Oy. > > > > To make the last few days even worse, my youngest broke his elbow. The boys > were playing, beautifully actually, driving their cars around. They'd > decided that underneath my bed was a " Garage " . I was thrilled to see their > creativity, esp. my eldest, because that's not a strength for him when it > come to play. He was even letting his little brother come up with a few > ideas, and that's not something that EVER happens lol. Anyway. all of a > sudden I heard this blood curdling scream. Apparently my youngest was under > the bed, with his arms up on the bed, and my eldest was on top of the bed. > He moved over, and it pushed my boy's arm down with a twist to the side, and > he told us it " cracked " . It was one of those things that neither of them > planned, or had any control over. It was a complete accident. > > > > WELL my eldest, he lost it. When I went to help my youngest out from under > the bed, he was SCREAMING, and my eldest was on the floor looking under the > bed, frozen like a deer in headlights. He had NO idea what to do. After we > checked my youngest out, and realized we had to take him to the DR, my > eldest was running around the house, crying, angry. lashing out. I tried to > talk to him and he kept pushing me away (SO not like him. esp. with me. > Normally he'll push others away, but NEVER me!). He said " I am going to kill > myself " I finally helped him calm down, and figured out that he thought > he was somehow responsible for what happened to his little brother. It took > me FOREVER to convince him that it was JUST an accident, and it wasn't > anything he did. I was quite shocked by his response. but given that he > hasn't been taking his medication, I guess I'm not AS surprised, because he > was SO quick to negativity before medications, too. Never that severe. that > really scared me > > > > I am trying to remind myself that a GOOD chunk of this is just the shocking > " cold turkey " of it all for him. His body had gotten used to it. And if I've > ever had my doubts about giving him medication, and it being the right thing > for him, but I can't question it anymore. I don't care about how he behaves, > and if it makes things easier for me, etc. I love him no matter what. But it > REALLY does make things easier for HIM!!! > > > > MAN it's been a long few days I'm gonna go have a rum and put my feet up > lol. > > > > =) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2009 Report Share Posted April 16, 2009 Hi That is quite enlightening. It sounds like we’re just in for “a ride” no matter what we do. It’ll have to be trial and error. I am very fearful of stimulants, but based on everyone’s combined responses, I am leaning toward ADHD meds to start, knowing that we can change our course to anxiety meds down the road if it doesn’t seem to be the right road. My #1 hope is that down the road I will be able to say that my son has matured and worked really hard to make improvements! At 7, he definitely recognizes his issues and wants change. He does try hard. Thank you all!! My mentors!! From: [mailto: ] On Behalf Of Elgamal Sent: Wednesday, April 15, 2009 7:33 PM Subject: RE: ( ) Re: Miserable couple of days... What is important to remember is that all children are different and react differently to medications. A medication that works well for one child may be a total disaster when used by another. My son was diagnosed as ADHD at age 5 and we went the ADHD med route. But, after many years on different ADHD meds – they seemed to work well for a while but would then lose their “flavor”. Eventually, he developed severe motor and vocal tics as well as hair pulling and we had to take him off all stimulants. We have had good success with Prozac, Topomax, and Abilify – did a major dose adjustment in October and he is the best he has been in years. Maybe the best he has ever been. But, of course, I have to give him credit. He has matured and really worked hard to make improvements. From: [mailto: ] On Behalf Of MacAllister Sent: Wednesday, April 15, 2009 10:48 AM Subject: Re: ( ) Re: Miserable couple of days... For my son, ADHD meds were the way to go b/c he needed help focusing in school. He's struggled w/ being very impulsive for a long time. I think the meds help him stop, even briefly, before he responds at school. He has improved a lot on this when he's not on the meds outside of school, but the environment is totally different. The sounds, people, stress, etc... at school make the meds necessary. Although my son obviously struggles w/ anxiety at times, we chose the ADHD meds route b/c they've historically had more tests done for short- and long-term side effects than meds for anxiety and children. We also had an unfortunate experience w/ an anxiety med when he was 8 so that pretty much closed the door on those meds for us. In lieu of meds, we've implemented a sensory diet for my son both at school (on occasion) and at home (frequently used) and that seems to help decrease the anxiety naturally. " Over-optimism is waiting for you ship to come in when you haven't sent one out. " From: Lori Lashley <LLashleyconditandassoc> Sent: Wednesday, April 15, 2009 10:30:42 AM Subject: RE: ( ) Re: Miserable couple of days... Again, Sue, thanks for the full perspective! Its nice to be able to clearly thing about all the pros and cons. I had thought about pre-existing conditions/health insurance “labels” but not the military. I am just so grateful for your (and everyone’s) feedback about considerations like this So it sounds like if one DOES go the med route, ADD meds are more effective than simply anxiety/OCD…? From: [mailto: ] On Behalf Of carolynsuelowerycha ttanooga Sent: Wednesday, April 15, 2009 7:04 AM @ groups. com Subject: ( ) Re: Miserable couple of days... DS, 24, has been on ADD type meds since he was 9 or 10. This weekend he was home from JobCorps and even though he insisted he took his meds (to get us off his back!) we kept asking all day if he was sure because he was so annoying! It is very subtle with him but DH and I could both tell that he was different. By the end of the day, he 'fessed up that he had left them at school. The next afternoon he found them, in suitcase and what a difference after he took them! We have seen more affect since he's older. THe meds works better, plus he can tell you how he feels a lot better. He functions better, but it is different in every child. He is on Vyvanse now. His physician also takes it, so I feel she can certainly relate. Now we are up against the fact that they won't let you in the military if you have taken ADD type meds within past year...even though they give those same drugs to their pilots and some others for alertness. So, DS will not be able to join, something he would dearly like to do. Sue in TN > > Hi > > > > Thanks so much for sharing! > > > > We have an appt on the 21st (long time waiting) and I had been on the fence > for a long time about medication. I've finally decided its what we want, > but reading something like this really helps drive that home! > > > > Wish us luck! > > > > Lori > > > > _____ > > From: @ groups. com > [mailto: @ groups. com] On Behalf Of O'Brien > Sent: Tuesday, April 14, 2009 6:13 PM > @ groups. com > Subject: ( ) Miserable couple of days... > > > > > > > > > I screwed up. > > > > I thought we had a week left of my sons Concerta, and we didn't. I ran out > on the weekend, and of course the dr's office was closed Saturday, Sunday > AND Monday. So three days without medication for my son, for the first time > since he started taking it over a year ago. > > > > I thought. ok. This should be interesting. It was FAR from interesting It > was MISERABLE !!! > > > > He was miserable. He told me he couldn't listen to me because he couldn't > hear me. too many other noises. As the days went on, he got worse. I > realized that not only has the Concerta helped his " ADHD " type symptoms, but > WOW has it helped in other areas too. Stimming is one area. For him, it's > ALWAYS been echolalia. From Kindergarten, there was always the comments from > teachers about " nonsense noises " . Well my boy has been making them NON STOP > for the last three days. And it took that to show me how LITTLE he's been > doing it while TAKING the Concerta. Another area? He has been so LIPPY the > last few days Really, really terrible. Completely no thought about anyone > else but himself, and up to this point, he's actually been making huge > efforts to be concerned about others, etc. But today? My gosh. we went into > the DR to get a prescription refill (PHEW!) and every time the DR would say > something, he'd " talk back " to him. Thankfully, our dr is wonderful and just > laughed it off. but I was quite honestly shocked. And another thing I was? > Completely scared, and lost Despite the research I've done, I realized > how much that medication has helped him and continues to help him, and I > don't know that we could focus on helping my son with all his other areas of > struggle without it. I hate giving it to him, but I can't deny that it > helps. He told me. " Mom, my brain is just spinning too fast. " and > " Everything is too hard, too confusing, and too scary! " I also learned > that I have MUCH to learn when it comes to AS and how to help him. We will > be waiting a long time for that DX, but I need to know how to help him NOW! > Oy. > > > > To make the last few days even worse, my youngest broke his elbow. The boys > were playing, beautifully actually, driving their cars around. They'd > decided that underneath my bed was a " Garage " . I was thrilled to see their > creativity, esp. my eldest, because that's not a strength for him when it > come to play. He was even letting his little brother come up with a few > ideas, and that's not something that EVER happens lol. Anyway. all of a > sudden I heard this blood curdling scream. Apparently my youngest was under > the bed, with his arms up on the bed, and my eldest was on top of the bed. > He moved over, and it pushed my boy's arm down with a twist to the side, and > he told us it " cracked " . It was one of those things that neither of them > planned, or had any control over. It was a complete accident. > > > > WELL my eldest, he lost it. When I went to help my youngest out from under > the bed, he was SCREAMING, and my eldest was on the floor looking under the > bed, frozen like a deer in headlights. He had NO idea what to do. After we > checked my youngest out, and realized we had to take him to the DR, my > eldest was running around the house, crying, angry. lashing out. I tried to > talk to him and he kept pushing me away (SO not like him. esp. with me. > Normally he'll push others away, but NEVER me!). He said " I am going to kill > myself " I finally helped him calm down, and figured out that he thought > he was somehow responsible for what happened to his little brother. It took > me FOREVER to convince him that it was JUST an accident, and it wasn't > anything he did. I was quite shocked by his response. but given that he > hasn't been taking his medication, I guess I'm not AS surprised, because he > was SO quick to negativity before medications, too. Never that severe. that > really scared me > > > > I am trying to remind myself that a GOOD chunk of this is just the shocking > " cold turkey " of it all for him. His body had gotten used to it. And if I've > ever had my doubts about giving him medication, and it being the right thing > for him, but I can't question it anymore. I don't care about how he behaves, > and if it makes things easier for me, etc. I love him no matter what. But it > REALLY does make things easier for HIM!!! > > > > MAN it's been a long few days I'm gonna go have a rum and put my feet up > lol. > > > > =) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2009 Report Share Posted April 16, 2009 Concerta is not a narcotic but a CNS stimulant like Ritalin and many other ADHD drugs. But, as a stimulant it is a controlled substance and requires a written prescription. From: [mailto: ] On Behalf Of Vickie Boehnlein Sent: April 16, 2009 10:02 AM Subject: ( ) Re: Miserable couple of days... Because Concerta is a narcotic it is on the list of meds that require an actual physical prescription. The doctors cannot fax or call in a refill. Therefore I think it is unlikely that a pharmacy would fill even a few days worth without a written prescription from the doctor. It can be a frustrating situation when you have to either drive to pick up the prescription or wait on the mail. I have found that it is really important to make sure that we don't run out because you cannot just call and get a nurse to call in a refill to the pharmasist. Vickie > > > > I screwed up. > > > > > > > > I thought we had a week left of my sons Concerta, and we didn't. I ran out > > on the weekend, and of course the dr's office was closed Saturday, Sunday > > AND Monday. So three days without medication for my son, for the first time > > since he started taking it over a year ago. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2009 Report Share Posted April 16, 2009 Hi Vickie! Invaluable info! You hit the nail on the head saying that you don’t have your son on meds to make your life or the school’s life easier—it’s to make his life easier. That is SO true. My son—bearly 7 years old—cried and begged for meds—he tells me things like he can’t make his brain be quiet and “I’m sad, mom.” I don’t look forward to the experiments ahead, but I feel comforted knowing others have ridden it out and found benefit that outweighed the negative. Again, thanks so much for the input! Lori From: [mailto: ] On Behalf Of Vickie Boehnlein Sent: Thursday, April 16, 2009 8:26 AM Subject: ( ) Re: Miserable couple of days... You may find that he needs both depending on the problems. My son is on both an antianxiety med (Sertraline - Generic Zoloft) and Stimulant-ADHD med (Concerta and Generic Ridlin). In s's case he has anxiety and this can cause him to get very angry when he gets stressed. He is very impulsive and has some significant transitioning and processing issues which is what the stimulant meds help. Because the stimulant meds can in some cases cause kids to get moody or agitated the Zoloft can counteract those side effects by smoothing out his mood and taking the edge off his anxiety. I don't have my son on meds to make my life easier and I don't have my son on meds to make the schools life easier I have him on meds to make his life easier. I have seen him without the meds and in his case (like the boy in the earlier story) it is really hard to watch him when he doesn't get the meds. It is like he is overwhelmed and stressed and ready to break out of his own skin. I am not saying it is easy. The right cocktail of meds has to be determined and there are constant adjustments being made. In some regards the anti-anxiety meds are harder because you have to build them up in the system and you can't just stop taking them. So if we ever decide we need to try something else we will need to wean him off the zoloft and then build up in his system something else. This will likely take 4-8 weeks and I am sure it will not be fun. The stimulants can pretty much be started or stopped whenever and they can be changed at any time. A lot for you to mull over. I hope this helps. Vickie > > > > Hi > > > > > > > > Thanks so much for sharing! > > > > > > > > We have an appt on the 21st (long time waiting) and I had been on the > fence > > for a long time about medication. I've finally decided its what we want, > > but reading something like this really helps drive that home! > > > > > > > > Wish us luck! > > > > > > > > Lori > > > > > > > > _____ > > > > From: @ <mailto: %40> > groups. com > > [mailto: @ <mailto: %40> > groups. com] On Behalf Of O'Brien > > Sent: Tuesday, April 14, 2009 6:13 PM > > @ <mailto: %40> > groups. com > > Subject: ( ) Miserable couple of days... > > > > > > > > > > > > > > > > > > I screwed up. > > > > > > > > I thought we had a week left of my sons Concerta, and we didn't. I ran out > > on the weekend, and of course the dr's office was closed Saturday, Sunday > > AND Monday. So three days without medication for my son, for the first > time > > since he started taking it over a year ago. > > > > > > > > I thought. ok. This should be interesting. It was FAR from interesting > It > > was MISERABLE !!! > > > > > > > > He was miserable. He told me he couldn't listen to me because he couldn't > > hear me. too many other noises. As the days went on, he got worse. I > > realized that not only has the Concerta helped his " ADHD " type symptoms, > but > > WOW has it helped in other areas too. Stimming is one area. For him, it's > > ALWAYS been echolalia. From Kindergarten, there was always the comments > from > > teachers about " nonsense noises " . Well my boy has been making them NON > STOP > > for the last three days. And it took that to show me how LITTLE he's been > > doing it while TAKING the Concerta. Another area? He has been so LIPPY the > > last few days Really, really terrible. Completely no thought about > anyone > > else but himself, and up to this point, he's actually been making huge > > efforts to be concerned about others, etc. But today? My gosh. we went > into > > the DR to get a prescription refill (PHEW!) and every time the DR would > say > > something, he'd " talk back " to him. Thankfully, our dr is wonderful and > just > > laughed it off. but I was quite honestly shocked. And another thing I was? > > Completely scared, and lost Despite the research I've done, I realized > > how much that medication has helped him and continues to help him, and I > > don't know that we could focus on helping my son with all his other areas > of > > struggle without it. I hate giving it to him, but I can't deny that it > > helps. He told me. " Mom, my brain is just spinning too fast. " and > > " Everything is too hard, too confusing, and too scary! " I also learned > > that I have MUCH to learn when it comes to AS and how to help him. We will > > be waiting a long time for that DX, but I need to know how to help him > NOW! > > Oy. > > > > > > > > To make the last few days even worse, my youngest broke his elbow. The > boys > > were playing, beautifully actually, driving their cars around. They'd > > decided that underneath my bed was a " Garage " . I was thrilled to see their > > creativity, esp. my eldest, because that's not a strength for him when it > > come to play. He was even letting his little brother come up with a few > > ideas, and that's not something that EVER happens lol. Anyway. all of a > > sudden I heard this blood curdling scream. Apparently my youngest was > under > > the bed, with his arms up on the bed, and my eldest was on top of the bed. > > He moved over, and it pushed my boy's arm down with a twist to the side, > and > > he told us it " cracked " . It was one of those things that neither of them > > planned, or had any control over. It was a complete accident. > > > > > > > > WELL my eldest, he lost it. When I went to help my youngest out from under > > the bed, he was SCREAMING, and my eldest was on the floor looking under > the > > bed, frozen like a deer in headlights. He had NO idea what to do. After we > > checked my youngest out, and realized we had to take him to the DR, my > > eldest was running around the house, crying, angry. lashing out. I tried > to > > talk to him and he kept pushing me away (SO not like him. esp. with me. > > Normally he'll push others away, but NEVER me!). He said " I am going to > kill > > myself " I finally helped him calm down, and figured out that he thought > > he was somehow responsible for what happened to his little brother. It > took > > me FOREVER to convince him that it was JUST an accident, and it wasn't > > anything he did. I was quite shocked by his response. but given that he > > hasn't been taking his medication, I guess I'm not AS surprised, because > he > > was SO quick to negativity before medications, too. Never that severe. > that > > really scared me > > > > > > > > I am trying to remind myself that a GOOD chunk of this is just the > shocking > > " cold turkey " of it all for him. His body had gotten used to it. And if > I've > > ever had my doubts about giving him medication, and it being the right > thing > > for him, but I can't question it anymore. I don't care about how he > behaves, > > and if it makes things easier for me, etc. I love him no matter what. But > it > > REALLY does make things easier for HIM!!! > > > > > > > > MAN it's been a long few days I'm gonna go have a rum and put my feet > up > > lol. > > > > > > > > =) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2009 Report Share Posted April 16, 2009 Hi Everybody! My AS d still refuses meds. She call me from College all the time: "Help me, I am sad", etc......................... I hate my life....................................etc. Sleeping between 2-5 hours daily since her OCD issues takes a lot of her time. Everyday brings different issues and sometimes I feel like riding a carousel all the time. She appears ackward, weird... to the rest of people living in campus that get to see her and she does not socialize much, actually she feels better being by herself. I would like to share with everybody this moment of happiness and assure you that we there is hope for our children. Years ago I was not sure if she would be able to finish HS, and now she has just been placed in the Honors program at the University where she is a freshman. This is like a refreshing moment in the middle of a constant storm. Love to all of you, Ana ( ) Miserable couple of days... > > > > > > > > > > > > > > > > > > I screwed up. > > > > > > > > I thought we had a week left of my son s Concerta, and we didn't. I ran out > > on the weekend, and of course the dr's office was closed Saturday, Sunday > > AND Monday. So three days without medication for my son, for the first > time > > since he started taking it over a year ago. > > > > > > > > I thought. ok. This should be interesting. It was FAR from interesting > It > > was MISERABLE !!! > > > > > > > > He was miserable. He told me he couldn't listen to me because he couldn't > > hear me. too many other noises. As the days went on, he got worse. I > > realized that not only has the Concerta helped his "ADHD" type symptoms, > but > > WOW has it helped in other areas too. Stimming is one area. For him, it's > > ALWAYS been echolalia. From Kindergarten, there was always the comments > from > > teachers about "nonsense noises". Well my boy has been making them NON > STOP > > for the last three days. And it took that to show me how LITTLE he's been > > doing it while TAKING the Concerta. Another area? He has been so LIPPY the > > last few days Really, really terrible. Completely no thought about > anyone > > else but himself, and up to this point, he's actually been making huge > > efforts to be=2 0concerned about others, etc. But today? My gosh. we went > into > > the DR to get a prescription refill (PHEW!) and every time the DR would > say > > something, he'd "talk back" to him. Thankfully, our dr is wonderful and > just > > laughed it off. but I was quite honestly shocked. And another thing I was? > > Completely scared, and lost Despite the research I've done, I realized > > how much that medication has helped him and continues to help him, and I > > don't know that we could focus on helping my son with all his other areas > of > > struggle without it. I hate giving it to him, but I can't deny that it > > helps. He told me. "Mom, my brain is just spinning too fast." and > > "Everything is too hard, too confusing, and too scary!" I also learned > > that I have MUCH to learn when it comes to AS and how to help him. We will > > be waiting a long time for that DX, but I need to know how to help him > NOW! > > Oy. > > > > > > > > To make the last few days even worse, my youngest broke his elbow. The > boys > > were playing, beautifully actually, driving their cars around. They'd > > decided that underneath my bed was a "Garage". I was thrilled to see their > > creativity, esp. my eldes t, because that's not a strength for him when it > > come to play. He was even letting his little brother come up with a few > > ideas, and that's not something that EVER happens lol. Anyway. all of a > > sudden I heard this blood curdling scream. Apparently my youngest was > under > > the bed, with his arms up on the bed, and my eldest was on top of the bed. > > He moved over, and it pushed my boy's arm down with a twist to the side, > and > > he told us it "cracked". It was one of those things that neither of them > > planned, or had any control over. It was a complete accident. > > > > > > > > WELL my eldest, he lost it. When I went to help my youngest out from under > > the bed, he was SCREAMING, and my eldest was on the floor looking under > the > > bed, frozen like a deer in headlights. He had NO idea what to do. After we > > checked my youngest out, and realized we had to take him to the DR, my > > eldest was running around the house, crying, angry. lashing out. I tried > to > > talk to him and he kept pushing me away (SO not like him. esp. with me. > > Normally he'll push others away, but NEVER me!). He said "I am going to > kill > > myself" I finally helped him calm down, and figured out that he thought > > he was somehow responsible for what happened to his little brother. It > took > > me FOREVER to convince him that it was JUST an accident, and it wasn't > > anything he did. I was quite shocked by his response. but given that he > > hasn't been taking his medication, I guess I'm not AS surprised, because > he > > was SO quick to negativity before medications, too. Never that severe. > that > > really scared me > > > > > > > > I am trying to remind myself that a GOOD chunk of this is just the > shocking > > "cold turkey" of it all for him. His body had gotten used to it. And if > I've > > ever had my doubts about giving him medication, and it being the right > thing > > for him, but I can't question it anymore. I don't care about how he > behaves, > > and if it makes things easier for me, etc. I love him no matter what. But > it > > REALLY does make things easier for HIM!!! > > > > > > > > MAN it's been a long few days I'm gonna go have a rum and put my feet > up > > lol. > > > > > > > > =) > > > =2 0 Why pay full price? Check out this month's deals on the new AOL Shopping. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2009 Report Share Posted April 16, 2009 Thanks for sharing Ana! Kudos to your daughter (and you for all the hard work you did to get here there!!) J From: [mailto: ] On Behalf Of ACuitino@... Sent: Thursday, April 16, 2009 11:54 AM To: Subject: Re: ( ) Re: Miserable couple of days... Hi Everybody! My AS d still refuses meds. She call me from College all the time: " Help me, I am sad " , etc......................... I hate my life....................................etc. Sleeping between 2-5 hours daily since her OCD issues takes a lot of her time. Everyday brings different issues and sometimes I feel like riding a carousel all the time. She appears ackward, weird... to the rest of people living in campus that get to see her and she does not socialize much, actually she feels better being by herself. I would like to share with everybody this moment of happiness and assure you that we there is hope for our children. Years ago I was not sure if she would be able to finish HS, and now she has just been placed in the Honors program at the University where she is a freshman. This is like a refreshing moment in the middle of a constant storm. Love to all of you, Ana -----Original Message----- From: Lori Lashley <LLashleyconditandassoc> Sent: Thu, 16 Apr 2009 11:41 am Subject: RE: ( ) Re: Miserable couple of days... =0 A Hi Vickie! Invaluable info! You hit the nail on the head saying that you don’t have your son on meds to make your life or the school’s life easier—it’s to make his life easier. That is SO true. My son—bearly 7 years old—cried and begged for meds—he tells me things like he can’t make his brain be quiet and “I’m sad, mom.” I don’t look forward to the experiments ahead, but I feel comforted knowing others have ridden it out and found benefit that outweighed the negative. Again, thanks so much for the input! Lori From: [mailto: ] On Behalf Of Vickie Boehnlein Sent: Thursday, April 16, 2009 8:26 AM Subject: ( ) Re: Miserable couple of days... You may find that he needs both depending on the problems. My son is on both an antianxiety med (Sertraline - Generic Zoloft) and Stimulant-ADHD med (Concerta and Generic Ridlin). In s's case he has anxiety and this can cause him to get very angry when he gets stressed. He is very impulsive and has some significant transitioning and processing issues which is what the stimulant meds help. Because the stimulant meds can in some cases cause kids to get moody or agitated the Zoloft can counteract those side effects by smoothing out his mood and taking the edge off his anxiety. I don't have my son on meds to make my life easier and I don't have my son on meds to make the schools life easier I have him on meds to make his life easier. I have seen him without the meds and in his case (like the boy in the earlier story) it is really hard to watch him when he doesn't get the meds. It is like he is overwhelmed and stressed and ready to break out of his own skin. I am not saying it is easy. The right cocktail of meds has to be determined and there are constant adjustments being made. In some regards the anti-anxiety meds are harder because you have to build them up in the system and you can't just stop taking th em. So if we ever decide we need to try something else we will need to wean him off the zoloft and then build up in his system something else. This will likely take 4-8 weeks and I am sure it will not be fun. The stimulants can pretty much be started or stopped whenever and they can be changed at any time. A lot for you to mull over. I hope this helps. Vickie > > > > Hi > > > >=2 0 > > > > Thanks so much for sharing! > > > > > > > > We have an appt on the 21st (long time waiting) and I had been on the > fence > > for a long time about medication. I've finally decided its what we want, > > but reading something like this really helps drive that home! > > > > > > > > Wish us luck! > > > > > > > > Lori > > > > > > > > _____ > > > > From: @ <mailto: %40> > groups. com > > [mailto: @ <mailto: %40> > groups. com] On Behalf Of O'Brien > > Sent: Tuesday, April 14, 2009 6:13 PM > > @ <mailto: %40> > groups. com > > Subject: ( ) Miserable couple of days... > > > > > > > > > > > > > > > > > > I screwed up. > > > > > > > > I thought we had a week left of my son s Concerta, and we didn't. I ran out > > on the weekend, and of course the dr's office was closed Saturday, Sunday > > AND Monday. So three days without medication for my son, for the first > time > > since he started taking it over a year ago. > > > > > > > > I thought. ok. This should be interesting. It was FAR from interesting > It > > was MISERABLE !!! > > > > > > > > He was miserable. He told me he couldn't listen to me because he couldn't > > hear me. too many other noises. As the days went on, he got worse. I > > realized that not only has the Concerta helped his " ADHD " type symptoms, > but > > WOW has it helped in other areas too. Stimming is one area. For him, it's > > ALWAYS been echolalia. From Kindergarten, there was always the comments > from > > teachers about " nonsense noises " . Well my boy has been making them NON > STOP > > for the last three days. And it took that to show me how LITTLE he's been > > doing it while TAKING the Concerta. Another area? He has been so LIPPY the > > last few days Really, really terrible. Completely no thought about > anyone > > else but himself, and up to this point, he's actually been making huge > > efforts to be=2 0concerned about others, etc. But today? My gosh. we went > into > > the DR to get a prescription refill (PHEW!) and every time the DR would > say > > something, he'd " talk back " to him. Thankfully, our dr is wonderful and > just > > laughed it off. but I was quite honestly shocked. And another thing I was? > > Completely scared, and lost Despite the research I've done, I realized > > how much that medication has helped him and continues to help him, and I > > don't know that we could focus on helping my son with all his other areas > of > > struggle without it. I hate giving it to him, but I can't deny that it > > helps. He told me. " Mom, my brain is just spinning too fast. " and > > " Everything is too hard, too confusing, and too scary! " I also learned > > that I have MUCH to learn when it comes to AS and how to help him. We will > > be waiting a long time for that DX, but I need to know how to help him > NOW! > > Oy. > > > > > > > > To make the last few days even worse, my youngest broke his elbow. The > boys > > were playing, beautifully actually, driving their cars around. They'd > > decided that underneath my bed was a " Garage " . I was thrilled to see their > > creativity, esp. my eldes t, because that's not a strength for him when it > > come to play. He was even letting his little brother come up with a few > > ideas, and that's not something that EVER happens lol. Anyway. all of a > > sudden I heard this blood curdling scream. Apparently my youngest was > under > > the bed, with his arms up on the bed, and my eldest was on top of the bed. > > He moved over, and it pushed my boy's arm down with a twist to the side, > and > > he told us it " cracked " . It was one of those things that neither of them > > planned, or had any control over. It was a complete accident. > > > > > > > > WELL my eldest, he lost it. When I went to help my youngest out from under > > the bed, he was SCREAMING, and my eldest was on the floor looking under > the > > bed, frozen like a deer in headlights. He had NO idea what to do. After we > > checked my youngest out, and realized we had to take him to the DR, my > > eldest was running around the house, crying, angry. lashing out. I tried > to > > talk to him and he kept pushing me away (SO not like him. esp. with me. > > Normally he'll push others away, but NEVER me!). He said " I am going to > kill > > myself " I finally helped him calm down, and figured out that he thought > > he was somehow responsible for what happened to his little brother. It > took > > me FOREVER to convince him that it was JUST an accident, and it wasn't > > anything he did. I was quite shocked by his response. but given that he > > hasn't been taking his medication, I guess I'm not AS surprised, because > he > > was SO quick to negativity before medications, too. Never that severe. > that > > really scared me > > > > > > > > I am trying to remind myself that a GOOD chunk of this is just the > shocking > > " cold turkey " of it all for him. His body had gotten used to it. And if > I've > > ever had my doubts about giving him medication, and it being the right > thing > > for him, but I can't question it anymore. I don't care about how he > behaves, > > and if it makes things easier for me, etc. I love him no matter what. But > it > > REALLY does make things easier for HIM!!! > > > > > > > > MAN it's been a long few days I'm gonna go have a rum and put my feet > up > > lol. > > > > > > > > =) > > > =2 0 Why pay full price? Check out this month's deals on the new AOL Shopping. Quote Link to comment Share on other sites More sharing options...
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