RE: hello - intro

[Guest guest]

Hi Tammy,

You seem to be doing a very good job with

your kids. What is EH? Does the school recognize the comprehension issue?

Our son, 9, stuggles with comprehension. What help are you getting? With that?

Sorry you felt ignored. I have felt that way on lists before, I just keep

hanging in there.

Regina

From:

[mailto: ] On Behalf Of kidsrmylife12

Sent: Friday, April 25, 2008 10:00

PM

To:

Subject: ( ) hello

- intro

Well I have tried to interject into conversation, and

either you all

are just used to each other or just are unsure about my qualifications

as a parent with a child in the spectrum. I am not used to be totally

ignored as I have been dealing with these issues for almost 15 years

and have learned a thing or two, dealt with 3 different diagnoses and

many doctors over the years. I also have a lot to learn from others

about how they deal with their teens and the school system, puberty

and dating perhaps that may come at some point. I was hoping to join

the group to help and to learn but so far it has been less than welcoming.

I have 3 children, one with severe attention deficit hyperactivty

disorder (20yr and on her own), 16 yo dd who had seizure disorder as a

younger child but seems to have outgrown it but has an EH label at

school, an IEP and a learning/comprehension issue. She however is

doing wonderful in 9th grade and so far is on the honor roll. My 14

yo ds is my AS and he is also in 9th grade, extremely bright, but the

school system has not been as kind to us with him. He is finally in a

regular school working toward a lesser restrictive environment

(shortened days) because he gets too stimulated and then over anxious

and then will start getting violent. We are working to avoid that at

all costs seeing that my boy is 6ft3in and 300# he tends to frighten

people when he tosses desks or start growling. I am one who can stand

up to him because I know he isn't going to hurt a person, but those

who don't know him, are unsure of the limits.

He doesn't write and that is our major struggle. He will do a short

answer writing assignment but anything longer than 2-3 sentences and

he is overwhelmed. His learned behavior has been that if I throw a

big enough stink, then I can get out of it. Well it isn't working

anymore because it is getting brought home via the teachers and they

are letting me fight it out with him and I tend to win.

Anyway, if I can help I am here. i will interject if I have something

to offer, otherwise I tend to just read. Tammy

[Guest guest]

Hi there, We appreciate you! Mom's with experience are what we all need to help us get through this with our kids. If you have been there....done that.....it sure makes it a whole lot easier. Please do lend advice as we do read the postings. Have a great day. Where do you live? My girlfriend started an AS group and I took it over and would love help. Shauna kidsrmylife12 <Kidsrmylife@...> wrote: Well I

have tried to interject into conversation, and either you allare just used to each other or just are unsure about my qualificationsas a parent with a child in the spectrum. I am not used to be totallyignored as I have been dealing with these issues for almost 15 yearsand have learned a thing or two, dealt with 3 different diagnoses andmany doctors over the years. I also have a lot to learn from othersabout how they deal with their teens and the school system, pubertyand dating perhaps that may come at some point. I was hoping to jointhe group to help and to learn but so far it has been less than welcoming.I have 3 children, one with severe attention deficit hyperactivtydisorder (20yr and on her own), 16 yo dd who had seizure disorder as ayounger child but seems to have outgrown it but has an EH label atschool, an IEP and a learning/comprehension issue. She however isdoing wonderful in 9th grade and so far is on the

honor roll. My 14yo ds is my AS and he is also in 9th grade, extremely bright, but theschool system has not been as kind to us with him. He is finally in aregular school working toward a lesser restrictive environment(shortened days) because he gets too stimulated and then over anxiousand then will start getting violent. We are working to avoid that atall costs seeing that my boy is 6ft3in and 300# he tends to frightenpeople when he tosses desks or start growling. I am one who can standup to him because I know he isn't going to hurt a person, but thosewho don't know him, are unsure of the limits.He doesn't write and that is our major struggle. He will do a shortanswer writing assignment but anything longer than 2-3 sentences andhe is overwhelmed. His learned behavior has been that if I throw abig enough stink, then I can get out of it. Well it isn't workinganymore because it is getting brought home via the teachers

and theyare letting me fight it out with him and I tend to win. Anyway, if I can help I am here. i will interject if I have somethingto offer, otherwise I tend to just read. Tammy

Be a better friend, newshound, and know-it-all with Mobile. Try it now.

[Guest guest]

Hi Tammy and Regina,I also am new to the list and sent in an intro and didn't get any responses to it. I'm just starting out on the AS/HFA journey, and was really hoping that I'd get some support and help here, but because I got no response to my introduction email, have just been reading and gleaning what information I can. Seeing my boys are almost 4 (in about 2 weeks) and 3 in July, and we're just starting in the IEP system, I have no experience with some of the things people are dealing with with older kids, so perhaps that is why I didn't get a response. In any case, I just wanted to say "hi". )Mina Mina SmolinskiMommy to: 9/25/02 5/13/04Owen 7/1/05Lila 3/3/07 On Apr 26, 2008, at 12:39 AM, genasu wrote:Hi Tammy,You seem to be doing a very good job with your kids. What is EH? Does the school recognize the comprehension issue? Our son, 9, stuggles with comprehension. What help are you getting? With that? Sorry you felt ignored. I have felt that way on lists before, I just keep hanging in there.Regina From: [mailto: ] On Behalf Of kidsrmylife12Sent: Friday, April 25, 2008 10:00 PM Subject: ( ) hello - intro Well I have tried to interject into conversation, and either you allare just used to each other or just are unsure about my qualificationsas a parent with a child in the spectrum. I am not used to be totallyignored as I have been dealing with these issues for almost 15 yearsand have learned a thing or two, dealt with 3 different diagnoses andmany doctors over the years. I also have a lot to learn from othersabout how they deal with their teens and the school system, pubertyand dating perhaps that may come at some point. I was hoping to jointhe group to help and to learn but so far it has been less than welcoming.I have 3 children, one with severe attention deficit hyperactivtydisorder (20yr and on her own), 16 yo dd who had seizure disorder as ayounger child but seems to have outgrown it but has an EH label atschool, an IEP and a learning/comprehension issue. She however isdoing wonderful in 9th grade and so far is on the honor roll. My 14yo ds is my AS and he is also in 9th grade, extremely bright, but theschool system has not been as kind to us with him. He is finally in aregular school working toward a lesser restrictive environment(shortened days) because he gets too stimulated and then over anxiousand then will start getting violent. We are working to avoid that atall costs seeing that my boy is 6ft3in and 300# he tends to frightenpeople when he tosses desks or start growling. I am one who can standup to him because I know he isn't going to hurt a person, but thosewho don't know him, are unsure of the limits.He doesn't write and that is our major struggle. He will do a shortanswer writing assignment but anything longer than 2-3 sentences andhe is overwhelmed. His learned behavior has been that if I throw abig enough stink, then I can get out of it. Well it isn't workinganymore because it is getting brought home via the teachers and theyare letting me fight it out with him and I tend to win. Anyway, if I can help I am here. i will interject if I have somethingto offer, otherwise I tend to just read. Tammy

[Guest guest]

Mina, welcome. Please let us know of any questions you have. We are a large group and certainly don't mean to overlook any new members. Pam :)Need a new ride? Check out the largest site for U.S. used car listings at AOL Autos.

[Guest guest]

Thanks Tammy, I really appreciated hearing your experience.My 16 year old son is at a school in North Carolina called Southwest Journeys. We found it because they also have a summer camp called Talisman for aspies.My son doesn't write either. He went to public school for years and learned that if he refused and/or threw a fit, he could wear the teacher out.Southwest Journeys is a boarding school. If he refuses to do the work, it follows him until the evening and he can't go bowling or hang out with his friends.Sending my ds to a boarding school was the hardest thing that we've ever done. He's been there a year and behaviorally I can really see the difference. Academically, he's starting to make some strides, however, I'm not sure when he'll be

able to take his GED.Yesterday, I took 4 boxes of books to a local child care center. When they were looking through them, it was like looking through a photo album for me. I started to cry. I miss him so much and I think about how hard we tried to work things out at home.Raising AS kids is hard. Trying to get my son to a place where he is self-sufficient may never happen but we have to try. I live in Fairfax, VA and it is suppose to have an excellent school system. I don't think that is true for Special Ed in middle and high school. He really needs to be engaged in the learning. In public school, they talk at him.I'm sorry for everyone's struggles but it really helps to feel like I am apart of a group of parents that have similar issues. I think the hardest part is not having a parent support system. Thank you for being here. Jody "Be the change you want to see in the world" Gandhi ( ) hello - intro

Well I have tried to interject into conversation, and either you all

are just used to each other or just are unsure about my qualifications

as a parent with a child in the spectrum. I am not used to be totally

ignored as I have been dealing with these issues for almost 15 years

and have learned a thing or two, dealt with 3 different diagnoses and

many doctors over the years. I also have a lot to learn from others

about how they deal with their teens and the school system, puberty

and dating perhaps that may come at some point. I was hoping to join

the group to help and to learn but so far it has been less than welcoming.

I have 3 children, one with severe attention deficit hyperactivty

disorder (20yr and on her own), 16 yo dd who had seizure disorder as a

younger child but seems to have outgrown it but has an EH label at

school, an IEP and a learning/comprehens ion issue. She however is

doing wonderful in 9th grade and so far is on the honor roll. My 14

yo ds is my AS and he is also in 9th grade, extremely bright, but the

school system has not been as kind to us with him. He is finally in a

regular school working toward a lesser restrictive environment

(shortened days) because he gets too stimulated and then over anxious

and then will start getting violent. We are working to avoid that at

all costs seeing that my boy is 6ft3in and 300# he tends to frighten

people when he tosses desks or start growling. I am one who can stand

up to him because I know he isn't going to hurt a person, but those

who don't know him, are unsure of the limits.

He doesn't write and that is our major struggle. He will do a short

answer writing assignment but anything longer than 2-3 sentences and

he is overwhelmed. His learned behavior has been that if I throw a

big enough stink, then I can get out of it. Well it isn't working

anymore because it is getting brought home via the teachers and they

are letting me fight it out with him and I tend to win.

Anyway, if I can help I am here. i will interject if I have something

to offer, otherwise I tend to just read. Tammy

Be a better friend, newshound, and know-it-all with Mobile. Try it now.

[Guest guest]

Oh my gosh, someone feels 'ignored' on here? I am sorry for that....I will try and find your original postings; I am usually trying to be very helpful on here but have been so busy I can hardly handle myself and just keeping up---since 'winter' has returned (or nearly) for the weekend, I will try to spend some time on here and catch up on the 1000 emails I need to get up and out of my box. NEVER FEEL IGNORED ON HERE----we are an amazing group; this group has been my life and family's saving grace; we have been on here only since about August last year, and I am telling you, it is the best thing I have ever in my life experienced. I have chosen to pull my eldest aspie and home school, fought the school (public), advocate for him, fought to keep him out of treatment again (PMIC / RESIDENTIAL); hospitalized him three times in those months (as he is challenging)...........am now preparing to get another degree or masters to help others (LEGALLY and for PAY!!!)------just can't tell you the differences.

Would you repost what HELP and ADVISE you desire? We have been a lot less 'chatty' on here, dear, but weather do affect that, too; I know, as we have three boys and two in sports and baseball is for both of them so we are happy to get a day at home (when will that be again????????????)..........so, don't give up on us. Post this weekend what you want, and I PROMISE, I will help!

Ruthie

From: genasu@...Date: Fri, 25 Apr 2008 23:39:12 -0500Subject: RE: ( ) hello - intro

Hi Tammy,

You seem to be doing a very good job with your kids. What is EH? Does the school recognize the comprehension issue? Our son, 9, stuggles with comprehension. What help are you getting? With that? Sorry you felt ignored. I have felt that way on lists before, I just keep hanging in there.

Regina

From: [mailto: ] On Behalf Of kidsrmylife12Sent: Friday, April 25, 2008 10:00 PM Subject: ( ) hello - intro

Well I have tried to interject into conversation, and either you allare just used to each other or just are unsure about my qualificationsas a parent with a child in the spectrum. I am not used to be totallyignored as I have been dealing with these issues for almost 15 yearsand have learned a thing or two, dealt with 3 different diagnoses andmany doctors over the years. I also have a lot to learn from othersabout how they deal with their teens and the school system, pubertyand dating perhaps that may come at some point. I was hoping to jointhe group to help and to learn but so far it has been less than welcoming.I have 3 children, one with severe attention deficit hyperactivtydisorder (20yr and on her own), 16 yo dd who had seizure disorder as ayounger child but seems to have outgrown it but has an EH label atschool, an IEP and a learning/comprehension issue. She however isdoing wonderful in 9th grade and so far is on the honor roll. My 14yo ds is my AS and he is also in 9th grade, extremely bright, but theschool system has not been as kind to us with him. He is finally in aregular school working toward a lesser restrictive environment(shortened days) because he gets too stimulated and then over anxiousand then will start getting violent. We are working to avoid that atall costs seeing that my boy is 6ft3in and 300# he tends to frightenpeople when he tosses desks or start growling. I am one who can standup to him because I know he isn't going to hurt a person, but thosewho don't know him, are unsure of the limits.He doesn't write and that is our major struggle. He will do a shortanswer writing assignment but anything longer than 2-3 sentences andhe is overwhelmed. His learned behavior has been that if I throw abig enough stink, then I can get out of it. Well it isn't workinganymore because it is getting brought home via the teachers and theyare letting me fight it out with him and I tend to win. Anyway, if I can help I am here. i will interject if I have somethingto offer, otherwise I tend to just read. Tammy

[Guest guest]

Okay---as for the 14 year old---that is EXACTLY why I pulled my son---you are NOT alone; they HATE TO WORK WITH US because our children are SO SMART. Schools are failing our kids everywhere, everyday, dear. If you are one that is getting services (some are, and over the top almost services) then they are RARE and LUCKY and just not the 'norm.' We are always advocating ourselves. The main thing I can say is that you must be grounded, and keep trying but most of us are home schooling DUE to failures over YEARS of the school. Home schooling is NOT impossible with these kids (if it were, I would be the last human on earth doing it-----my son has been in treatment-------and was abused---and has about 10-11 diagnosis and no IEP / 504 (and he is a type I diabetic).....it is illegal but they do it anyway (and no one is stopping them).................My son was not home schoolable-------so I THOUGHT..........we are a model for other parents to envy and learn from (per our home school assistance program teacher).............we do unschooling methods; right now, he tutors for math and reading 2 hours a week (we can't afford MORE than that)...........and, he does stats daily of all the CUBS games (memorizes all the stats, knows entire history of anything and more about baseball)-----------in football season, he is in to that----------he learns other things too but uses most learning to do what he loves (we have to take the blinders off and say SCHOOL does not look like this----------who SAID school looks like this?------as a person that went to college and completed 133 credit hours in elem / spec education, I have struggled with this-------------------but I AM NOW DOING IT..............he is thriving........when his meds need adjusted (which they just were) he is hospitalized, sometimes; this was the first time since before we started home schooling (and that was over a month ago)-------his anti-depressant was upped, and he is back to himself now............

Don't give up, but just know, you are NOT alone. Ruthie

From: Kidsrmylife@...Date: Sat, 26 Apr 2008 03:00:27 +0000Subject: ( ) hello - intro

Well I have tried to interject into conversation, and either you allare just used to each other or just are unsure about my qualificationsas a parent with a child in the spectrum. I am not used to be totallyignored as I have been dealing with these issues for almost 15 yearsand have learned a thing or two, dealt with 3 different diagnoses andmany doctors over the years. I also have a lot to learn from othersabout how they deal with their teens and the school system, pubertyand dating perhaps that may come at some point. I was hoping to jointhe group to help and to learn but so far it has been less than welcoming.I have 3 children, one with severe attention deficit hyperactivtydisorder (20yr and on her own), 16 yo dd who had seizure disorder as ayounger child but seems to have outgrown it but has an EH label atschool, an IEP and a learning/comprehension issue. She however isdoing wonderful in 9th grade and so far is on the honor roll. My 14yo ds is my AS and he is also in 9th grade, extremely bright, but theschool system has not been as kind to us with him. He is finally in aregular school working toward a lesser restrictive environment(shortened days) because he gets too stimulated and then over anxiousand then will start getting violent. We are working to avoid that atall costs seeing that my boy is 6ft3in and 300# he tends to frightenpeople when he tosses desks or start growling. I am one who can standup to him because I know he isn't going to hurt a person, but thosewho don't know him, are unsure of the limits.He doesn't write and that is our major struggle. He will do a shortanswer writing assignment but anything longer than 2-3 sentences andhe is overwhelmed. His learned behavior has been that if I throw abig enough stink, then I can get out of it. Well it isn't workinganymore because it is getting brought home via the teachers and theyare letting me fight it out with him and I tend to win. Anyway, if I can help I am here. i will interject if I have somethingto offer, otherwise I tend to just read. Tammy

[Guest guest]

Hello Regina. EH is emotionally handicapped. She received that label only because she would be resistant to going to school and would have " school anxiety " and her doctor wrote a letter stating that is what she had. She had Title 1 help, tutors from school to help her with her reading. Basically what helps her best is to have her book that she is supposed to read and also have the book on tape so she can hear it and see it because sometimes the words are jumbled. I found that she will see the first 2-3 letters of the word and then say one word and it really is a different one. This changes the meaning of the sentence completely. Having the tape and the book, she is assisted, she has to read with the tape, but learns the words and the information at the same time. It may not work for everyone, but it has worked for her.

TammyOn Sat, Apr 26, 2008 at 12:39 AM, genasu <genasu@...> wrote:

Hi Tammy,

You seem to be doing a very good job with

your kids. What is EH? Does the school recognize the comprehension issue?

Our son, 9, stuggles with comprehension. What help are you getting? With that?

Sorry you felt ignored. I have felt that way on lists before, I just keep

hanging in there.

Regina

From:

[mailto: ] On Behalf Of kidsrmylife12

Sent: Friday, April 25, 2008 10:00

PM

To:

Subject: ( ) hello

- intro

Well I have tried to interject into conversation, and

either you all

are just used to each other or just are unsure about my qualifications

as a parent with a child in the spectrum. I am not used to be totally

ignored as I have been dealing with these issues for almost 15 years

and have learned a thing or two, dealt with 3 different diagnoses and

many doctors over the years. I also have a lot to learn from others

about how they deal with their teens and the school system, puberty

and dating perhaps that may come at some point. I was hoping to join

the group to help and to learn but so far it has been less than welcoming.

I have 3 children, one with severe attention deficit hyperactivty

disorder (20yr and on her own), 16 yo dd who had seizure disorder as a

younger child but seems to have outgrown it but has an EH label at

school, an IEP and a learning/comprehension issue. She however is

doing wonderful in 9th grade and so far is on the honor roll. My 14

yo ds is my AS and he is also in 9th grade, extremely bright, but the

school system has not been as kind to us with him. He is finally in a

regular school working toward a lesser restrictive environment

(shortened days) because he gets too stimulated and then over anxious

and then will start getting violent. We are working to avoid that at

all costs seeing that my boy is 6ft3in and 300# he tends to frighten

people when he tosses desks or start growling. I am one who can stand

up to him because I know he isn't going to hurt a person, but those

who don't know him, are unsure of the limits.

He doesn't write and that is our major struggle. He will do a short

answer writing assignment but anything longer than 2-3 sentences and

he is overwhelmed. His learned behavior has been that if I throw a

big enough stink, then I can get out of it. Well it isn't working

anymore because it is getting brought home via the teachers and they

are letting me fight it out with him and I tend to win.

Anyway, if I can help I am here. i will interject if I have something

to offer, otherwise I tend to just read. Tammy

[Guest guest]

Ruthie,I had thought about homeschooling (the 14yr old). The school had continually failed us. He went to a special school for special needs (state paid) and he started to do better. They were more equiped to look for his needs, had the staff, and probably were more interested. After a few years there we started transitioning him back into a regular ed school but only AS I SAID TO. So we put him in science because that is his favorite and an english because we needed to see his reactions. So they bussed him to both schools for that half of the year. His first week in science he had memorized the periodic table in science wowing his science teacher as they had been working on it the whole prior semester with the rest of the kids.

For this year I told them that he couldn't be at school the whole day and he was successful at taking 4 classes and a resource so they arranged transportation to pick him up later to take him at a later time and have been great this year at working with us. We will see how the next year goes with 10th as we added a class - almost a full day. Some teachers are a little less cooperative however but others realize what he can do and grade him based on his strengths versus his weaknesses.

I just wish I knew how I could get him to do his writing assignments, to push him to do the things that he should do. He wants to go to college and be a dolphin trainer and he will have to write papers in college. He has to learn to do it here but he refuses. This is one of our hardest academic hurdles. I can usually get him to do the assignment here, but I am transcribing and edging him along.

ThanksTammyOn Sat, Apr 26, 2008 at 9:24 AM, BRYAN DOLEZAL <DOLEZAL123@...> wrote:

Okay---as for the 14 year old---that is EXACTLY why I pulled my son---you are NOT alone; they HATE TO WORK WITH US because our children are SO SMART. Schools are failing our kids everywhere, everyday, dear. If you are one that is getting services (some are, and over the top almost services) then they are RARE and LUCKY and just not the 'norm.' We are always advocating ourselves. The main thing I can say is that you must be grounded, and keep trying but most of us are home schooling DUE to failures over YEARS of the school. Home schooling is NOT impossible with these kids (if it were, I would be the last human on earth doing it-----my son has been in treatment-------and was abused---and has about 10-11 diagnosis and no IEP / 504 (and he is a type I diabetic).....it is illegal but they do it anyway (and no one is stopping them).................My son was not home schoolable-------so I THOUGHT..........we are a model for other parents to envy and learn from (per our home school assistance program teacher).............we do unschooling methods; right now, he tutors for math and reading 2 hours a week (we can't afford MORE than that)...........and, he does stats daily of all the CUBS games (memorizes all the stats, knows entire history of anything and more about baseball)-----------in football season, he is in to that----------he learns other things too but uses most learning to do what he loves (we have to take the blinders off and say SCHOOL does not look like this----------who SAID school looks like this?------as a person that went to college and completed 133 credit hours in elem / spec education, I have struggled with this-------------------but I AM NOW DOING IT..............he is thriving........when his meds need adjusted (which they just were) he is hospitalized, sometimes; this was the first time since before we started home schooling (and that was over a month ago)-------his anti-depressant was upped, and he is back to himself now............

Don't give up, but just know, you are NOT alone. Ruthie

From: Kidsrmylife@...Date: Sat, 26 Apr 2008 03:00:27 +0000

Subject: ( ) hello - intro

Well I have tried to interject into conversation, and either you allare just used to each other or just are unsure about my qualificationsas a parent with a child in the spectrum. I am not used to be totallyignored as I have been dealing with these issues for almost 15 years

and have learned a thing or two, dealt with 3 different diagnoses andmany doctors over the years. I also have a lot to learn from othersabout how they deal with their teens and the school system, pubertyand dating perhaps that may come at some point. I was hoping to join

the group to help and to learn but so far it has been less than welcoming.I have 3 children, one with severe attention deficit hyperactivtydisorder (20yr and on her own), 16 yo dd who had seizure disorder as a

younger child but seems to have outgrown it but has an EH label atschool, an IEP and a learning/comprehension issue. She however isdoing wonderful in 9th grade and so far is on the honor roll. My 14yo ds is my AS and he is also in 9th grade, extremely bright, but the

school system has not been as kind to us with him. He is finally in aregular school working toward a lesser restrictive environment(shortened days) because he gets too stimulated and then over anxiousand then will start getting violent. We are working to avoid that at

all costs seeing that my boy is 6ft3in and 300# he tends to frightenpeople when he tosses desks or start growling. I am one who can standup to him because I know he isn't going to hurt a person, but thosewho don't know him, are unsure of the limits.

He doesn't write and that is our major struggle. He will do a shortanswer writing assignment but anything longer than 2-3 sentences andhe is overwhelmed. His learned behavior has been that if I throw abig enough stink, then I can get out of it. Well it isn't working

anymore because it is getting brought home via the teachers and theyare letting me fight it out with him and I tend to win. Anyway, if I can help I am here. i will interject if I have somethingto offer, otherwise I tend to just read. Tammy

[Guest guest]

Tammy,,I'm sorry you've felt ignored. I, for one, have had a lot going on in my life right now and haven't spent much time on the list. You are certainly welcome here. My son had a seizure disorder as a child, too, but outgrew it as an older adolescent. He no longer takes anti-seizure meds, and is doing just fine.My son is older -- 20 -- and has completed a year of college. He's going into a special program that combines college with an Asperger's program in the summer/fall.Do let us know how we can help,LizOn Apr 25, 2008, at 11:00 PM, kidsrmylife12 wrote:Well I have tried to interject into conversation, and either you allare just used to each other or just are unsure about my qualificationsas a parent with a child in the spectrum. I am not used to be totallyignored as I have been dealing with these issues for almost 15 yearsand have learned a thing or two, dealt with 3 different diagnoses andmany doctors over the years.

[Guest guest]

Ruth, we too, have our son home for school now, and reading your post made me wonder how many people who have brought their kids home for school out of being failed or not "fitting" in the public/private school system, THEN pulled their NT kids from school, too? I have 3 others that are fine,,,,,but yet,,,,,,I still see myself teaching things at home that I FEEL should have been taught...etc. I struggle daily with wondering if I should get them all here. Robin "Normal is just a cycle on a washing machine"BRYAN DOLEZAL <DOLEZAL123@...> wrote: Okay---as for the 14 year old---that is EXACTLY why I pulled my son---you are NOT alone; they HATE TO WORK WITH US because our children are SO SMART. Schools are failing our kids everywhere, everyday, dear. If you are one that is getting services (some are, and over the top almost services) then they are RARE and LUCKY and just not the 'norm.' We are always advocating ourselves. The main thing I can say is that you must be grounded, and keep trying but most of us are home schooling DUE to failures over YEARS of the school. Home schooling is NOT impossible with these kids (if it were, I would be the last human on earth doing it-----my son has been in treatment-------and was abused---and has about 10-11 diagnosis and no IEP / 504 (and he is a type I diabetic).....it is illegal but they do it anyway (and no one is stopping

them).................My son was not home schoolable-------so I THOUGHT..........we are a model for other parents to envy and learn from (per our home school assistance program teacher).............we do unschooling methods; right now, he tutors for math and reading 2 hours a week (we can't afford MORE than that)...........and, he does stats daily of all the CUBS games (memorizes all the stats, knows entire history of anything and more about baseball)-----------in football season, he is in to that----------he learns other things too but uses most learning to do what he loves (we have to take the blinders off and say SCHOOL does not look like this----------who SAID school looks like this?------as a person that went to college and completed 133 credit hours in elem / spec education, I have struggled with this-------------------but I AM NOW DOING IT..............he is thriving........when his meds need

adjusted (which they just were) he is hospitalized, sometimes; this was the first time since before we started home schooling (and that was over a month ago)-------his anti-depressant was upped, and he is back to himself now............ Don't give up, but just know, you are NOT alone. Ruthie From: KidsrmylifegmailDate: Sat, 26 Apr 2008 03:00:27 +0000Subject: ( ) hello - intro Well I have tried to interject into conversation, and either you allare just used to each other or just are unsure about my qualificationsas a parent with a child in the spectrum. I am not used to be totallyignored as I have been dealing with these issues for almost 15 yearsand have learned a thing or two, dealt with 3 different diagnoses

andmany doctors over the years. I also have a lot to learn from othersabout how they deal with their teens and the school system, pubertyand dating perhaps that may come at some point. I was hoping to jointhe group to help and to learn but so far it has been less than welcoming.I have 3 children, one with severe attention deficit hyperactivtydisorder (20yr and on her own), 16 yo dd who had seizure disorder as ayounger child but seems to have outgrown it but has an EH label atschool, an IEP and a learning/comprehension issue. She however isdoing wonderful in 9th grade and so far is on the honor roll. My 14yo ds is my AS and he is also in 9th grade, extremely bright, but theschool system has not been as kind to us with him. He is finally in aregular school working toward a lesser restrictive environment(shortened days) because he gets too stimulated and then over anxiousand then will start getting violent. We are

working to avoid that atall costs seeing that my boy is 6ft3in and 300# he tends to frightenpeople when he tosses desks or start growling. I am one who can standup to him because I know he isn't going to hurt a person, but thosewho don't know him, are unsure of the limits.He doesn't write and that is our major struggle. He will do a shortanswer writing assignment but anything longer than 2-3 sentences andhe is overwhelmed. His learned behavior has been that if I throw abig enough stink, then I can get out of it. Well it isn't workinganymore because it is getting brought home via the teachers and theyare letting me fight it out with him and I tend to win. Anyway, if I can help I am here. i will interject if I have somethingto offer, otherwise I tend to just read. Tammy

Be a better friend, newshound, and know-it-all with Mobile. Try it now.

[Guest guest]

Welcome to a very active group! Try not to be insulted. I think if

you had posted a new topic with a question or need, you would have

gotten several quick and helpful responses in a matter of days. I've

found lots of helpful people in my short time here, but the sheer

volume of messages is hard to keep up with. Lots of us with younger

kids will need your expertise in a few years, so please stick around.

>

> Well I have tried to interject into conversation, and either you all

> are just used to each other or just are unsure about my qualifications

> as a parent with a child in the spectrum. I am not used to be totally

> ignored as I have been dealing with these issues for almost 15 years

> and have learned a thing or two, dealt with 3 different diagnoses and

> many doctors over the years. I also have a lot to learn from others

> about how they deal with their teens and the school system, puberty

> and dating perhaps that may come at some point. I was hoping to join

> the group to help and to learn but so far it has been less than

welcoming.

> I have 3 children, one with severe attention deficit hyperactivty

> disorder (20yr and on her own), 16 yo dd who had seizure disorder as a

> younger child but seems to have outgrown it but has an EH label at

> school, an IEP and a learning/comprehension issue. She however is

> doing wonderful in 9th grade and so far is on the honor roll. My 14

> yo ds is my AS and he is also in 9th grade, extremely bright, but the

> school system has not been as kind to us with him. He is finally in a

> regular school working toward a lesser restrictive environment

> (shortened days) because he gets too stimulated and then over anxious

> and then will start getting violent. We are working to avoid that at

> all costs seeing that my boy is 6ft3in and 300# he tends to frighten

> people when he tosses desks or start growling. I am one who can stand

> up to him because I know he isn't going to hurt a person, but those

> who don't know him, are unsure of the limits.

> He doesn't write and that is our major struggle. He will do a short

> answer writing assignment but anything longer than 2-3 sentences and

> he is overwhelmed. His learned behavior has been that if I throw a

> big enough stink, then I can get out of it. Well it isn't working

> anymore because it is getting brought home via the teachers and they

> are letting me fight it out with him and I tend to win.

> Anyway, if I can help I am here. i will interject if I have something

> to offer, otherwise I tend to just read. Tammy

>

[Guest guest]

I'm sorry you felt ignored. This is a great group. I've only been a

member for a short time. I don't post alot, but I do read every post

& find them to be very helpful. I have a DS (6) and a DD (5) both

with Asperger's, so believe me, I need the information posted by the

parents here! Just stick around, I know you can help others &

possibly others can help you. Connie

>

> Well I have tried to interject into conversation, and either you all

> are just used to each other or just are unsure about my

qualifications

> as a parent with a child in the spectrum. I am not used to be

totally

> ignored as I have been dealing with these issues for almost 15 years

> and have learned a thing or two, dealt with 3 different diagnoses

and

> many doctors over the years. I also have a lot to learn from others

> about how they deal with their teens and the school system, puberty

> and dating perhaps that may come at some point. I was hoping to

join

> the group to help and to learn but so far it has been less than

welcoming.

> I have 3 children, one with severe attention deficit hyperactivty

> disorder (20yr and on her own), 16 yo dd who had seizure disorder

as a

> younger child but seems to have outgrown it but has an EH label at

> school, an IEP and a learning/comprehension issue. She however is

> doing wonderful in 9th grade and so far is on the honor roll. My 14

> yo ds is my AS and he is also in 9th grade, extremely bright, but

the

> school system has not been as kind to us with him. He is finally

in a

> regular school working toward a lesser restrictive environment

> (shortened days) because he gets too stimulated and then over

anxious

> and then will start getting violent. We are working to avoid that

at

> all costs seeing that my boy is 6ft3in and 300# he tends to frighten

> people when he tosses desks or start growling. I am one who can

stand

> up to him because I know he isn't going to hurt a person, but those

> who don't know him, are unsure of the limits.

> He doesn't write and that is our major struggle. He will do a short

> answer writing assignment but anything longer than 2-3 sentences and

> he is overwhelmed. His learned behavior has been that if I throw a

> big enough stink, then I can get out of it. Well it isn't working

> anymore because it is getting brought home via the teachers and they

> are letting me fight it out with him and I tend to win.

> Anyway, if I can help I am here. i will interject if I have

something

> to offer, otherwise I tend to just read. Tammy

>

[Guest guest]

I agree with Connie; when I started, Rox may say I am off my rocker here, but I am pretty sure I was 'quiet' for a while but wow did I learn a lot. And, it seems that whenever that issue presents itself in my life / our family units life, we are starting some research, as I have to get all the knowledge, facts, etc., I can, and POOF----like magic, we have that on here with streams about it.....it has been pretty ironic how this group seems to have 'spirit' about it, at least for me anyway.........perhaps it IS the time of year, because, even though a lot of us are behind on this right now, trust us, in the winter months, during storms, etc., there will be a lot more posts; perhaps even when it is hot outside; but right now, I think there is so much going on; we are NOT as active as we often are.........so, hang with us, and if you need something, have a question, post it (and make sure to put the main point up top; trust me, you will get answers; if not, post again and remind us---------we are all just people too but there are, to my last knowledge per Roxanna, over 3000 people on this sight (and that was at least 50-100 ago--------)--------so, we are all here; sometimes just not able to type to this and live and manage these children but we are ALL here together (trust me).......and, please do hang around and learn with us.

Ruthie

From: chsmith1108@...Date: Sun, 27 Apr 2008 01:57:13 +0000Subject: ( ) Re: hello - intro

I'm sorry you felt ignored. This is a great group. I've only been a member for a short time. I don't post alot, but I do read every post & find them to be very helpful. I have a DS (6) and a DD (5) both with Asperger's, so believe me, I need the information posted by the parents here! Just stick around, I know you can help others & possibly others can help you. Connie>> Well I have tried to interject into conversation, and either you all> are just used to each other or just are unsure about my qualifications> as a parent with a child in the spectrum. I am not used to be totally> ignored as I have been dealing with these issues for almost 15 years> and have learned a thing or two, dealt with 3 different diagnoses and> many doctors over the years. I also have a lot to learn from others> about how they deal with their teens and the school system, puberty> and dating perhaps that may come at some point. I was hoping to join> the group to help and to learn but so far it has been less than welcoming.> I have 3 children, one with severe attention deficit hyperactivty> disorder (20yr and on her own), 16 yo dd who had seizure disorder as a> younger child but seems to have outgrown it but has an EH label at> school, an IEP and a learning/comprehension issue. She however is> doing wonderful in 9th grade and so far is on the honor roll. My 14> yo ds is my AS and he is also in 9th grade, extremely bright, but the> school system has not been as kind to us with him. He is finally in a> regular school working toward a lesser restrictive environment> (shortened days) because he gets too stimulated and then over anxious> and then will start getting violent. We are working to avoid that at> all costs seeing that my boy is 6ft3in and 300# he tends to frighten> people when he tosses desks or start growling. I am one who can stand> up to him because I know he isn't going to hurt a person, but those> who don't know him, are unsure of the limits.> He doesn't write and that is our major struggle. He will do a short> answer writing assignment but anything longer than 2-3 sentences and> he is overwhelmed. His learned behavior has been that if I throw a> big enough stink, then I can get out of it. Well it isn't working> anymore because it is getting brought home via the teachers and they> are letting me fight it out with him and I tend to win. > Anyway, if I can help I am here. i will interject if I have something> to offer, otherwise I tend to just read. Tammy>

[Guest guest]

is right; I know there is a way to view old posts, too; not too long ago, there was a lot of information about vocational issues with older kids (now adults---some like 20's and 30's year old)..........we all relate and have had numerous money and other responsibility issues (or our child's / childrens lacks thereof)----------putting them in homes / getting services, etc. (and this can be older and adults as well as treatments and schooling options for teens (and younger).........so, let us know what you are wanting from us specifically, and we will be here.

Ruthie

From: kellypywtorak@...Date: Sun, 27 Apr 2008 00:22:47 +0000Subject: ( ) Re: hello - intro

Welcome to a very active group! Try not to be insulted. I think ifyou had posted a new topic with a question or need, you would havegotten several quick and helpful responses in a matter of days. I'vefound lots of helpful people in my short time here, but the sheervolume of messages is hard to keep up with. Lots of us with youngerkids will need your expertise in a few years, so please stick around.>> Well I have tried to interject into conversation, and either you all> are just used to each other or just are unsure about my qualifications> as a parent with a child in the spectrum. I am not used to be totally> ignored as I have been dealing with these issues for almost 15 years> and have learned a thing or two, dealt with 3 different diagnoses and> many doctors over the years. I also have a lot to learn from others> about how they deal with their teens and the school system, puberty> and dating perhaps that may come at some point. I was hoping to join> the group to help and to learn but so far it has been less thanwelcoming.> I have 3 children, one with severe attention deficit hyperactivty> disorder (20yr and on her own), 16 yo dd who had seizure disorder as a> younger child but seems to have outgrown it but has an EH label at> school, an IEP and a learning/comprehension issue. She however is> doing wonderful in 9th grade and so far is on the honor roll. My 14> yo ds is my AS and he is also in 9th grade, extremely bright, but the> school system has not been as kind to us with him. He is finally in a> regular school working toward a lesser restrictive environment> (shortened days) because he gets too stimulated and then over anxious> and then will start getting violent. We are working to avoid that at> all costs seeing that my boy is 6ft3in and 300# he tends to frighten> people when he tosses desks or start growling. I am one who can stand> up to him because I know he isn't going to hurt a person, but those> who don't know him, are unsure of the limits.> He doesn't write and that is our major struggle. He will do a short> answer writing assignment but anything longer than 2-3 sentences and> he is overwhelmed. His learned behavior has been that if I throw a> big enough stink, then I can get out of it. Well it isn't working> anymore because it is getting brought home via the teachers and they> are letting me fight it out with him and I tend to win. > Anyway, if I can help I am here. i will interject if I have something> to offer, otherwise I tend to just read. Tammy>

[Guest guest]

I totally agree with you Robin; but, I have to admit that, the 14 year old is doing a lot of preparations for our dreams and hopes for him to be able to live on his own (or own with help) as an adult, so we do lots of living skills at our home, following directions, remembering things on our own (LOL), and all the things he can do that drive us crazy (just like in your homes).... but, for him, reality is, these are skills and things he needs to be able to do on his own! He cannot remember to do much without us telling him but at least he is learning to do them for himself PERIOD......like cooking, cleaning (and ways to really do it not his half-way or less effort ways and without arguing.).

As for home schooling the others; I am crazy Robin, but I 't'ain't that crazy!!!!! My six year old (seven in May)-----he is AS, too, and I have to have him there, at school; I have to have that break each day!!! And, my five year old NT; well, he is ready for kindergarten in the fall. I am certain that, my six year old is brilliant and does not have the abuse issues that my fourteen year old has on his plate with the AS (and 10 other diagnosis) so I am hoping he can stay in public schools; reality is, I know in junior high, I may be back here and I can do it now-------but, I am glad for the break; of course, I do DAYCARE too, so I get plenty of kid time!! If I did not do that, perhaps I would want all three home with me? I don't know.

And, in Iowa, we are fighting again for home-schooling programs like the HSAP. It was voted down with senate last night to start cutting the funding, so next year, we have to fight for our home school assistance programming AS WELL as home schooling period in Iowa..........fun, fun............we will just keep advocating, though.

Well, I have to get to bed; my parents love your washing machine spin phrase..........mom thought that was perfect to describe our home!!! (thanks, mom!)......lol

Ruthie Dolezal

From: jrisjs@...Date: Sat, 26 Apr 2008 15:33:49 -0700Subject: RE: ( ) hello - intro

Ruth, we too, have our son home for school now, and reading your post made me wonder how many people who have brought their kids home for school out of being failed or not "fitting" in the public/private school system, THEN pulled their NT kids from school, too?

I have 3 others that are fine,,,,,but yet,,,,,,I still see myself teaching things at home that I FEEL should have been taught...etc.

I struggle daily with wondering if I should get them all here.

Robin

"Normal is just a cycle on a washing machine"BRYAN DOLEZAL <DOLEZAL123msn> wrote:

Okay---as for the 14 year old---that is EXACTLY why I pulled my son---you are NOT alone; they HATE TO WORK WITH US because our children are SO SMART. Schools are failing our kids everywhere, everyday, dear. If you are one that is getting services (some are, and over the top almost services) then they are RARE and LUCKY and just not the 'norm.' We are always advocating ourselves. The main thing I can say is that you must be grounded, and keep trying but most of us are home schooling DUE to failures over YEARS of the school. Home schooling is NOT impossible with these kids (if it were, I would be the last human on earth doing it-----my son has been in treatment-------and was abused---and has about 10-11 diagnosis and no IEP / 504 (and he is a type I diabetic).....it is illegal but they do it anyway (and no one is stopping them).................My son was not home schoolable-------so I THOUGHT..........we are a model for other parents to envy and learn from (per our home school assistance program teacher).............we do unschooling methods; right now, he tutors for math and reading 2 hours a week (we can't afford MORE than that)...........and, he does stats daily of all the CUBS games (memorizes all the stats, knows entire history of anything and more about baseball)-----------in football season, he is in to that----------he learns other things too but uses most learning to do what he loves (we have to take the blinders off and say SCHOOL does not look like this----------who SAID school looks like this?------as a person that went to college and completed 133 credit hours in elem / spec education, I have struggled with this-------------------but I AM NOW DOING IT..............he is thriving........when his meds need adjusted (which they just were) he is hospitalized, sometimes; this was the first time since before we started home schooling (and that was over a month ago)-------his anti-depressant was upped, and he is back to himself now............ Don't give up, but just know, you are NOT alone. Ruthie

From: KidsrmylifegmailDate: Sat, 26 Apr 2008 03:00:27 +0000Subject: ( ) hello - intro

Well I have tried to interject into conversation, and either you allare just used to each other or just are unsure about my qualificationsas a parent with a child in the spectrum. I am not used to be totallyignored as I have been dealing with these issues for almost 15 yearsand have learned a thing or two, dealt with 3 different diagnoses andmany doctors over the years. I also have a lot to learn from othersabout how they deal with their teens and the school system, pubertyand dating perhaps that may come at some point. I was hoping to jointhe group to help and to learn but so far it has been less than welcoming.I have 3 children, one with severe attention deficit hyperactivtydisorder (20yr and on her own), 16 yo dd who had seizure disorder as ayounger child but seems to have outgrown it but has an EH label atschool, an IEP and a learning/comprehension issue. She however isdoing wonderful in 9th grade and so far is on the honor roll. My 14yo ds is my AS and he is also in 9th grade, extremely bright, but theschool system has not been as kind to us with him. He is finally in aregular school working toward a lesser restrictive environment(shortened days) because he gets too stimulated and then over anxiousand then will start getting violent. We are working to avoid that atall costs seeing that my boy is 6ft3in and 300# he tends to frightenpeople when he tosses desks or start growling. I am one who can standup to him because I know he isn't going to hurt a person, but thosewho don't know him, are unsure of the limits.He doesn't write and that is our major struggle. He will do a shortanswer writing assignment but anything longer than 2-3 sentences andhe is overwhelmed. His learned behavior has been that if I throw abig enough stink, then I can get out of it. Well it isn't workinganymore because it is getting brought home via the teachers and theyare letting me fight it out with him and I tend to win. Anyway, if I can help I am here. i will interject if I have somethingto offer, otherwise I tend to just read. Tammy

Be a better friend, newshound, and know-it-all with Mobile. Try it now.

[Guest guest]

Hee hee. I hear you. I don't see my other kids NEEDING to be here like Ian did,,,,but I have seen such tremendous results.........so I wonder about the others. Like you, though, the idea of certain kids here would probably not be good for them or me,,,, ,,,,hee hee. I also agree with what may happen come middle school. Even before we knew that Ian had issues, we talked about how we may bring them home in junior high no matter what. So,,,,,we'll see. Tell me more about your states' fight for homeschooling. We just won a major fight in Wisc for virtual schooling. The states' teachers unions were suing the virtual schools saying that the kids doing it from home was not the problem, but when and if the parents had to help and teach sometimes,,,,that we were not qualified as they (the teacher of a pub school) had to be. It

was a fight going on for a couple of years,,,,,,,,whew. They basically continued to allow it but with caps on the limit per year of new kids. And for them to have to make more specific rules. Oh.......sorry abou the book. Robin "Normal is just a cycle on a washing machine"BRYAN DOLEZAL <DOLEZAL123@...> wrote: I totally agree with you Robin; but, I have to admit that, the 14 year old is doing a lot of preparations for our dreams and hopes for him to be able

to live on his own (or own with help) as an adult, so we do lots of living skills at our home, following directions, remembering things on our own (LOL), and all the things he can do that drive us crazy (just like in your homes).... but, for him, reality is, these are skills and things he needs to be able to do on his own! He cannot remember to do much without us telling him but at least he is learning to do them for himself PERIOD......like cooking, cleaning (and ways to really do it not his half-way or less effort ways and without arguing.). As for home schooling the others; I am crazy Robin, but I 't'ain't that crazy!!!!! My six year old (seven in May)-----he is AS, too, and I have to have him there, at school; I have to have that break each day!!! And, my five year old NT; well, he is ready for kindergarten in the fall. I am certain that, my six year old is brilliant and

does not have the abuse issues that my fourteen year old has on his plate with the AS (and 10 other diagnosis) so I am hoping he can stay in public schools; reality is, I know in junior high, I may be back here and I can do it now-------but, I am glad for the break; of course, I do DAYCARE too, so I get plenty of kid time!! If I did not do that, perhaps I would want all three home with me? I don't know. And, in Iowa, we are fighting again for home-schooling programs like the HSAP. It was voted down with senate last night to start cutting the funding, so next year, we have to fight for our home school assistance programming AS WELL as home schooling period in Iowa..........fun, fun............we will just keep advocating, though. Well, I have to get to bed; my parents love your washing machine spin phrase..........mom thought that was perfect to describe our home!!! (thanks, mom!)......lol Ruthie

Dolezal From: jrisjs Date: Sat, 26 Apr 2008 15:33:49 -0700Subject: RE: ( ) hello - intro Ruth, we too, have our son home for school now, and reading your post made me wonder how many people who have brought their kids home for school out of being failed or not "fitting" in the public/private school system, THEN pulled their NT kids from school, too? I have 3 others that are fine,,,,,but yet,,,,,,I still see myself teaching things at home that I FEEL should have been taught...etc. I struggle daily with wondering if I should get them all here. Robin "Normal is just a cycle on a washing machine"BRYAN DOLEZAL <DOLEZAL123msn> wrote: Okay---as for the 14 year old---that is EXACTLY why I pulled my son---you are NOT alone; they HATE TO WORK WITH US because our children are SO SMART. Schools are failing our kids everywhere, everyday, dear. If you are one that is getting services (some are, and over the top almost services) then they are RARE and LUCKY and just not the 'norm.' We are always advocating ourselves. The main thing I can say is that you must be grounded, and keep trying but most of us are home schooling DUE to failures over YEARS of the school. Home schooling is NOT impossible with these kids (if it were, I would be the last human on earth doing it-----my son has been in treatment-------and was abused---and has about 10-11 diagnosis and no IEP / 504 (and he is a type I diabetic).....it is illegal but they do it anyway (and no one is stopping

them).................My son was not home schoolable-------so I THOUGHT..........we are a model for other parents to envy and learn from (per our home school assistance program teacher).............we do unschooling methods; right now, he tutors for math and reading 2 hours a week (we can't afford MORE than that)...........and, he does stats daily of all the CUBS games (memorizes all the stats, knows entire history of anything and more about baseball)-----------in football season, he is in to that----------he learns other things too but uses most learning to do what he loves (we have to take the blinders off and say SCHOOL does not look like this----------who SAID school looks like this?------as a person that went to college and completed 133 credit hours in elem / spec education, I have struggled with this-------------------but I AM NOW DOING IT..............he is thriving........when his meds need

adjusted (which they just were) he is hospitalized, sometimes; this was the first time since before we started home schooling (and that was over a month ago)-------his anti-depressant was upped, and he is back to himself now............ Don't give up, but just know, you are NOT alone. Ruthie From: KidsrmylifegmailDate: Sat, 26 Apr 2008 03:00:27 +0000Subject: ( ) hello - intro Well I have tried to interject into conversation, and either you allare just used to each other or just are unsure about my qualificationsas a parent with a child in the spectrum. I am not used to be totallyignored as I have been dealing with these issues for almost 15 yearsand have learned a thing or two, dealt with 3 different

diagnoses andmany doctors over the years. I also have a lot to learn from othersabout how they deal with their teens and the school system, pubertyand dating perhaps that may come at some point. I was hoping to jointhe group to help and to learn but so far it has been less than welcoming.I have 3 children, one with severe attention deficit hyperactivtydisorder (20yr and on her own), 16 yo dd who had seizure disorder as ayounger child but seems to have outgrown it but has an EH label atschool, an IEP and a learning/comprehension issue. She however isdoing wonderful in 9th grade and so far is on the honor roll. My 14yo ds is my AS and he is also in 9th grade, extremely bright, but theschool system has not been as kind to us with him. He is finally in aregular school working toward a lesser restrictive environment(shortened days) because he gets too stimulated and then over anxiousand then will start getting

violent. We are working to avoid that atall costs seeing that my boy is 6ft3in and 300# he tends to frightenpeople when he tosses desks or start growling. I am one who can standup to him because I know he isn't going to hurt a person, but thosewho don't know him, are unsure of the limits.He doesn't write and that is our major struggle. He will do a shortanswer writing assignment but anything longer than 2-3 sentences andhe is overwhelmed. His learned behavior has been that if I throw abig enough stink, then I can get out of it. Well it isn't workinganymore because it is getting brought home via the teachers and theyare letting me fight it out with him and I tend to win. Anyway, if I can help I am here. i will interject if I have somethingto offer, otherwise I tend to just read. Tammy Be a

better friend, newshound, and know-it-all with Mobile. Try it now.

Be a better friend, newshound, and know-it-all with Mobile. Try it now.

[Guest guest]

Ever have her tested for dyslexia?

RoxannaAutism Happens

Re: ( ) hello - intro

Hello Regina. EH is emotionally handicapped. She received that label only because she would be resistant to going to school and would have "school anxiety" and her doctor wrote a letter stating that is what she had. She had Title 1 help, tutors from school to help her with her reading. Basically what helps her best is to have her book that she is supposed to read and also have the book on tape so she can hear it and see it because sometimes the words are jumbled. I found that she will see the first 2-3 letters of the word and then say one word and it really is a different one. This changes the meaning of the sentence completely. Having the tape and the book, she is assisted, she has to read with the tape, but learns the words and the information at the same time. It may not work for everyone, but it has worked for her.Tammy

On Sat, Apr 26, 2008 at 12:39 AM, genasu <genasumylittle (DOT) org> wrote:

Hi Tammy,

You seem to be doing a very good job with your kids. What is EH? Does the school recognize the comprehension issue? Our son, 9, stuggles with comprehension. What help are you getting? With that? Sorry you felt ignored. I have felt that way on lists before, I just keep hanging in there.

Regina

From: [mailto: ] On Behalf Of kidsrmylife12Sent: Friday, April 25, 2008 10:00 PM Subject: ( ) hello - intro

Well I have tried to interject into conversation, and either you allare just used to each other or just are unsure about my qualificationsas a parent with a child in the spectrum. I am not used to be totallyignored as I have been dealing with these issues for almost 15 yearsand have learned a thing or two, dealt with 3 different diagnoses andmany doctors over the years. I also have a lot to learn from othersabout how they deal with their teens and the school system, pubertyand dating perhaps that may come at some point. I was hoping to jointhe group to help and to learn but so far it has been less than welcoming.I have 3 children, one with severe attention deficit hyperactivtydisorder (20yr and on her own), 16 yo dd who had seizure disorder as ayounger child but seems to have outgrown it but has an EH label atschool, an IEP and a learning/comprehension issue. She however isdoing wonderful in 9th grade and so far is on the honor roll. My 14yo ds is my AS and he is also in 9th grade, extremely bright, but theschool system has not been as kind to us with him. He is finally in aregular school working toward a lesser restrictive environment(shortened days) because he gets too stimulated and then over anxiousand then will start getting violent. We are working to avoid that atall costs seeing that my boy is 6ft3in and 300# he tends to frightenpeople when he tosses desks or start growling. I am one who can standup to him because I know he isn't going to hurt a person, but thosewho don't know him, are unsure of the limits.He doesn't write and that is our major struggle. He will do a shortanswer writing assignment but anything longer than 2-3 sentences andhe is overwhelmed. His learned behavior has been that if I throw abig enough stink, then I can get out of it. Well it isn't workinganymore because it is getting brought home via the teachers and theyare letting me fight it out with him and I tend to win. Anyway, if I can help I am here. i will interject if I have somethingto offer, otherwise I tend to just read. Tammy

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[Guest guest]

Yes, we did have tested for dyslexia, but they said she didn't have it. However dyslexia is a complicated disorder and it tends to manifest in different ways so I just keep plugging away and finding ways that best help as she needs it. School has been reluctant to treat her as LD (learning disabled) for comprehension, but willing to go with her EH (emotionally handicap) because of her education anxiety. Go figure.

TammyOn Sun, Apr 27, 2008 at 9:22 AM, Roxanna <madideas@...> wrote:

Ever have her tested for dyslexia?

RoxannaAutism Happens

Re: ( ) hello - intro

Hello Regina. EH is emotionally handicapped. She received that label only because she would be resistant to going to school and would have " school anxiety " and her doctor wrote a letter stating that is what she had. She had Title 1 help, tutors from school to help her with her reading. Basically what helps her best is to have her book that she is supposed to read and also have the book on tape so she can hear it and see it because sometimes the words are jumbled. I found that she will see the first 2-3 letters of the word and then say one word and it really is a different one. This changes the meaning of the sentence completely. Having the tape and the book, she is assisted, she has to read with the tape, but learns the words and the information at the same time. It may not work for everyone, but it has worked for her.Tammy

On Sat, Apr 26, 2008 at 12:39 AM, genasu <genasu@...> wrote:

Hi Tammy,

You seem to be doing a very good job with your kids. What is EH? Does the school recognize the comprehension issue? Our son, 9, stuggles with comprehension. What help are you getting? With that? Sorry you felt ignored. I have felt that way on lists before, I just keep hanging in there.

Regina

From: [mailto: ] On Behalf Of kidsrmylife12

Sent: Friday, April 25, 2008 10:00 PM Subject: ( ) hello - intro

Well I have tried to interject into conversation, and either you allare just used to each other or just are unsure about my qualificationsas a parent with a child in the spectrum. I am not used to be totallyignored as I have been dealing with these issues for almost 15 yearsand have learned a thing or two, dealt with 3 different diagnoses andmany doctors over the years. I also have a lot to learn from othersabout how they deal with their teens and the school system, pubertyand dating perhaps that may come at some point. I was hoping to jointhe group to help and to learn but so far it has been less than welcoming.I have 3 children, one with severe attention deficit hyperactivtydisorder (20yr and on her own), 16 yo dd who had seizure disorder as ayounger child but seems to have outgrown it but has an EH label atschool, an IEP and a learning/comprehension issue. She however isdoing wonderful in 9th grade and so far is on the honor roll. My 14yo ds is my AS and he is also in 9th grade, extremely bright, but theschool system has not been as kind to us with him. He is finally in aregular school working toward a lesser restrictive environment(shortened days) because he gets too stimulated and then over anxiousand then will start getting violent. We are working to avoid that atall costs seeing that my boy is 6ft3in and 300# he tends to frightenpeople when he tosses desks or start growling. I am one who can standup to him because I know he isn't going to hurt a person, but thosewho don't know him, are unsure of the limits.He doesn't write and that is our major struggle. He will do a shortanswer writing assignment but anything longer than 2-3 sentences andhe is overwhelmed. His learned behavior has been that if I throw abig enough stink, then I can get out of it. Well it isn't workinganymore because it is getting brought home via the teachers and theyare letting me fight it out with him and I tend to win. Anyway, if I can help I am here. i will interject if I have somethingto offer, otherwise I tend to just read. Tammy

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[Guest guest]

Currently: 2772 members. The group changes and grows dramatically as

I've seen myself over the past 3+ years. I have found a wealth of

information and support here.

>> Well I have tried to interject into conversation, and either

you all> are just used to each other or just are unsure about my

qualifications> as a parent with a child in the spectrum. I am not

used to be totally> ignored as I have been dealing with these issues

for almost 15 years> and have learned a thing or two, dealt with 3

different diagnoses and> many doctors over the years. I also have a

lot to learn from others> about how they deal with their teens and

the school system, puberty> and dating perhaps that may come at some

point. I was hoping to join> the group to help and to learn but so

far it has been less than welcoming.> I have 3 children, one with

severe attention deficit hyperactivty> disorder (20yr and on her

own), 16 yo dd who had seizure disorder as a> younger child but seems

to have outgrown it but has an EH label at> school, an IEP and a

learning/comprehension issue. She however is> doing wonderful in 9th

grade and so far is on the honor roll. My 14> yo ds is my AS and he

is also in 9th grade, extremely bright, but the> school system has

not been as kind to us with him. He is finally in a> regular school

working toward a lesser restrictive environment> (shortened days)

because he gets too stimulated and then over anxious> and then will

start getting violent. We are working to avoid that at> all costs

seeing that my boy is 6ft3in and 300# he tends to frighten> people

when he tosses desks or start growling. I am one who can stand> up to

him because I know he isn't going to hurt a person, but those> who

don't know him, are unsure of the limits.> He doesn't write and that

is our major struggle. He will do a short> answer writing assignment

but anything longer than 2-3 sentences and> he is overwhelmed. His

learned behavior has been that if I throw a> big enough stink, then I

can get out of it. Well it isn't working> anymore because it is

getting brought home via the teachers and they> are letting me fight

it out with him and I tend to win. > Anyway, if I can help I am here.

i will interject if I have something> to offer, otherwise I tend to

just read. Tammy>

>

[Guest guest]

Well said, Ruthie. With two soccer games every Saturday, three practices during the week, my full-time job challenging me considerably even more these days, church group Wednesday nights, karate after school, etc...etc...etc... this single mom of 2 is up to HERE with everything right now. Always seems to be worse March-May. But I'm still trying to read and post where I can and keep up with everyone. I've definitely been lurking in the "shadows" a lot more recently.

For an update on my son (Dylan, 11, Aspergers)...he's doing good right now. We had some problems on his soccer team with him being too aggressive and I realized he's acting out what was happening to him in PE, I think. The boys bothering him in PE have been told if they breathe wrong around him again, there's a good chance they'll be sent to the Alternative Learning Center which is another way of saying almost-juvie for kids who act up in Austin, TX. My dad wants me to file assault charges on the boys who circled my son and was pushing/kicking him about a month ago, but I've stopped just short of doing it. I'm still reserving the right to do it though.

Dylan just got his report card for the 5th six-weeks of 6th grade and he made two 88's and the rest were A's. It's his best report card since the 1st six-weeks of school. We have an autism specialist working on a Functional Behavior Assessment and should be having an ARD to incorporate an updated IEP within the next two weeks. He also scored a "1" on his solo in Band and a "2" on his ensemble. He plays the tuba. He was so nervous about playing! I sat in to support him and when he talked, I could barely hear him speak. This coming from my son who can project from across a football field with no problem! But he made it through and scored the highest score he could get.

So I feel fortunate right now. I personally went through a rough patch emotionally for awhile over the past few months too. I think it was another reason I wasn't on here as much. I was really depressed. It was kind of scary to me b/c I usually have a better handle on things. But I had to withdraw from mostly all social groups (even this one) to circle my wagons and get through my day-to-day. I'm doing much better now though.

Keep the posts coming!

( ) Re: hello - intro

I'm sorry you felt ignored. This is a great group. I've only been a member for a short time. I don't post alot, but I do read every post & find them to be very helpful. I have a DS (6) and a DD (5) both with Asperger's, so believe me, I need the information posted by the parents here! Just stick around, I know you can help others & possibly others can help you. Connie>> Well I have tried to interject into conversation, and either you all> are just used to each other or just are unsure about my qualifications> as a parent with a child in the spectrum. I am not used to be totally> ignored as I have been dealing with these issues for

almost 15 years> and have learned a thing or two, dealt with 3 different diagnoses and> many doctors over the years. I also have a lot to learn from others> about how they deal with their teens and the school system, puberty> and dating perhaps that may come at some point. I was hoping to join> the group to help and to learn but so far it has been less than welcoming.> I have 3 children, one with severe attention deficit hyperactivty> disorder (20yr and on her own), 16 yo dd who had seizure disorder as a> younger child but seems to have outgrown it but has an EH label at> school, an IEP and a learning/comprehens ion issue. She however is> doing wonderful in 9th grade and so far is on the honor roll. My 14> yo ds is my AS and he is also in 9th grade, extremely bright, but the> school system has not been as kind to us with him. He is finally in

a> regular school working toward a lesser restrictive environment> (shortened days) because he gets too stimulated and then over anxious> and then will start getting violent. We are working to avoid that at> all costs seeing that my boy is 6ft3in and 300# he tends to frighten> people when he tosses desks or start growling. I am one who can stand> up to him because I know he isn't going to hurt a person, but those> who don't know him, are unsure of the limits.> He doesn't write and that is our major struggle. He will do a short> answer writing assignment but anything longer than 2-3 sentences and> he is overwhelmed. His learned behavior has been that if I throw a> big enough stink, then I can get out of it. Well it isn't working> anymore because it is getting brought home via the teachers and they> are letting me fight it out with him and I tend to win.

> Anyway, if I can help I am here. i will interject if I have something> to offer, otherwise I tend to just read. Tammy>

[Guest guest]

Perhaps because you are LUCKY to be having IEP's so young, too............a lot of us with Aspergers, did not get a diagnosis that early out, so we are NOT in your shoes; I think, which is what you would want, unless we are an 'expert' in it, we are NOT going to respond to you either; I know I don't want to misinform or say something I DO NOT KNOW FOR A FACT (or at least a fact in my area / state depending upon what it is............and, I did read about 10 of the 1168 letters in my box over the weekend; I think we are still in the same boat. Hang in there, dear...........and, we are HERE------------Ruthie

From: madideas@...Date: Sun, 27 Apr 2008 09:21:55 -0400Subject: Re: ( ) hello - intro

Hi Mina,

It's such a busy list that getting attention is sometimes difficult. I know I am swamped in my "real" life and behind in reading emails. You just have to find your voice here and you will.

I have a lot of experiences in IEP "stuff" and still remember when my kids were that young. So if you have questions or need help, just yell. But give me a few days to catch up sometimes. lol.

RoxannaAutism Happens

(AspegersSupport) hello - intro

Well I have tried to interject into conversation, and either you allare just used to each other or just are unsure about my qualificationsas a parent with a child in the spectrum. I am not used to be totallyignored as I have been dealing with these issues for almost 15 yearsand have learned a thing or two, dealt with 3 different diagnoses andmany doctors over the years. I also have a lot to learn from othersabout how they deal with their teens and the school system, pubertyand dating perhaps that may come at some point. I was oping to jointhe group to help and to learn but so far it has been less than welcoming.I have 3 children, one with severe attention deficit hyperactivtydisorder (20yr and on her own), 16 yo dd who had seizure disorder as ayounger child but seems to have outgrown it but has an EH label atschool, an IEP and a learning/comprehension issue. She however isdoing wonderful in 9th grade and so far is on the honor roll. My 14yo ds is my AS and he is also in 9th grade, extremely bright, but theschool system has not been as kind to us with him. He is finally in aregular school working toward a lesser restrictive environment(shortened days) because he gets too stimulated and then over anxiousand then will start getting violent. We are working to avoid that atall costs seeing that my boy is 6ft3in and 300# he tends to frightenpeople when he tosses desks or start growling. I am one who can standup to him because I know he isn't going to hurt a person, but thosebr>who don't know him, are unsure of the limits.He doesn't write and that is our major struggle. He will do a shortanswer writing assignment but anything longer than 2-3 sentences andhe is overwhelmed. His learned behavior has been that if I throw abig enough stink, then I can get out of it. Well it isn't workinganymore because it is getting brought home via the teachers and theyare letting me fight it out with him and I tend to win. Anyway, if I can help I am here. i will interject if I have somethingto offer, otherwise I tend to just read. Tammy

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[Guest guest]

Who is "they?"

The school is obligated to address her special education needs whether they are related to her "label" or not. So if she already has the IEP, a good eval would highlight problems associated with reading and you could then ask for specific instruction in that area. slaw.com has great information regarding reading, especially in the "NCLB" section which highlights reading. There are programs out there for older kids who have dyslexia to improve their reading. They don't have to call it "dyslexia" either - many school's won't say the word. Just get the help proven by the MFE/eval's.

RoxannaAutism Happens

Re: ( ) hello - intro

Hello Regina. EH is emotionally handicapped. She received that label only because she would be resistant to going to school and would have "school anxiety" and her doctor wrote a letter stating that is what she had. She had Title 1 help, tutors from school to help her with her reading. Basically what helps her best is to have her book that she is supposed to read and also have the book on tape so she can hear it and see it because sometimes the words are jumbled. I found that she will see the first 2-3 letters of the word and then say one word and it really is a different one. This changes the meaning of the sentence completely. Having the tape and the book, she is assisted, she has to read with the tape, but learns the words and the information at the same time. It may not work for everyone, but it has worked for her.Tammy

On Sat, Apr 26, 2008 at 12:39 AM, genasu <genasumylittle (DOT) org> wrote:

Hi Tammy,

You seem to be doing a very good job with your kids. What is EH? Does the school recognize the comprehension issue? Our son, 9, stuggles with comprehension. What help are you getting? With that? Sorry you felt ignored. I have felt that way on lists before, I just keep hanging in there.

Regina

From: [mailto: ] On Behalf Of kidsrmylife12Sent: Friday, April 25, 2008 10:00 PM Subject: ( ) hello - intro

Well I have tried to interject into conversation, and either you allare just used to each other or just are unsure about my qualificationsas a parent with a child in the spectrum. I am not used to be totallyignored as I have been dealing with these issues for almost 15 yearsand have learned a thing or two, dealt with 3 different diagnoses andmany doctors over the years. I also have a lot to learn from othersabout how they deal with their teens and the school system, pubertyand dating perhaps that may come at some point. I was hoping to jointhe group to help and to learn but so far it has been less than welcoming.I have 3 children, one with severe attention deficit hyperactivtydisorder (20yr and on her own), 16 yo dd who had seizure disorder as ayounger child but seems to have outgrown it but has an EH label atschool, an IEP and a learning/comprehension issue. She however isdoing wonderful in 9th grade and so far is on the honor roll. My 14yo ds is my AS and he is also in 9th grade, extremely bright, but theschool system has not been as kind to us with him. He is finally in aregular school working toward a lesser restrictive environment(shortened days) because he gets too stimulated and then over anxiousand then will start getting violent. We are working to avoid that atall costs seeing that my boy is 6ft3in and 300# he tends to frightenpeople when he tosses desks or start growling. I am one who can standup to him because I know he isn't going to hurt a person, but thosewho don't know him, are unsure of the limits.He doesn't write and that is our major struggle. He will do a shortanswer writing assignment but anything longer than 2-3 sentences andhe is overwhelmed. His learned behavior has been that if I throw abig enough stink, then I can get out of it. Well it isn't workinganymore because it is getting brought home via the teachers and theyare letting me fight it out with him and I tend to win. Anyway, if I can help I am here. i will interject if I have somethingto offer, otherwise I tend to just read. Tammy

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RoxannaAutism Happens

( ) Re: hello - intro

I'm sorry you felt ignored. This is a great group. I've only been a member for a short time. I don't post alot, but I do read every post & find them to be very helpful. I have a DS (6) and a DD (5) both with Asperger's, so believe me, I need the information posted by the parents here! Just stick around, I know you can help others & possibly others can help you. Connie>> Well I have tried to interject into conversation, and either you all> are just used to each other or just are unsure about my qualifications> as a parent with a child in the spectrum. I am not used to be totally> ignored as I have been dealing with these issues for almost 15 years> and have learned a thing or two, dealt with 3 different diagnoses and> many doctors over the years. I also hae a lot to learn from others> about how they deal with their teens and the school system, puberty> and dating perhaps that may come at some point. I was hoping to join> the group to help and to learn but so far it has been less than welcoming.> I have 3 children, one with severe attention deficit hyperactivty> disorder (20yr and on her own), 16 yo dd who had seizure disorder as a> younger child but seems to have outgrown it but has an EH label at> school, an IEP and a learning/comprehension issue. She however is> doing wonderful in 9th grade and so far is on the honor roll. My 14> yo ds is my AS and he is also in 9th grade, extremely bright, but the> school system has not been as kind to us with him. He is finally in a> regular school working toward a lesser restrictive environment> (shortened days) because he gets too stimulated and then over anxious> and then will start getting violent. e are working to avoid that at> all costs seeing that my boy is 6ft3in and 300# he tends to frighten> people when he tosses desks or start growling. I am one who can stand> up to him because I know he isn't going to hurt a person, but those> who don't know him, are unsure of the limits.> He doesn't write and that is our major struggle. He will do a short> answer writing assignment but anything longer than 2-3 sentences and> he is overwhelmed. His learned behavior has been that if I throw a> big enough stink, then I can get out of it. Well it isn't working> anymore because it is getting brought home via the teachers and they> are letting me fight it out with him and I tend to win. > Anyway, if I can help I am here. i will interject if I have something> to offer, otherwise I tend to just read. Tammy>

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[Guest guest]

Glad to hear the PE boys are behaving.

RoxannaAutism Happens

( ) Re: hello - intro

I'm sorry you felt ignored. This is a great group. I've only been a member for a short time. I don't post alot, but I do read every post & find them to be very helpful. I have a DS (6) and a DD (5) both with Asperger's, so believe me, I need the information posted by the parents here! Just stick around, I know you can help others & possibly others can help you. Connie>> Well I have tried to interject into conversation, and either you all> are just used to each other or just are unsure about my qualifications> as a parent with a child in the spectrum. I am not used to be totally> ignored as I have been dealing with these issues for almost 15 years> and have learned a thing or two, dealt with 3 different diagnoses and> many doctors over the years. I also have a lot to learn from others> about how they deal with their teens and the school system, puberty> and dating perhaps that may come at some point. I was hoping to join> the group to help and to learn but so far it has been less than welcoming.> I have 3 children, one with severe attention deficit hyperactivty> disorder (20yr and on her own), 16 yo dd who had seizure disorder as a> younger child but seems to have outgrown it but has an EH label at> school, an IEP and a learning/comprehens ion issue. She however is> doing wonderful in 9th grade and so far is on the honor roll. My 14> yo ds is my AS and he is also in 9th grade, extremely bright, but the> school system has not been as kind to us with him. He is finally in a> regular school working toward a lesser restrictive environment> (shortened days) because he gets too stimulated and then over anxious> and then will start getting violent. We are working to avoid that at> all costs seeing that my boy is 6ft3in and 300# he tends to frighten> people when he tosses desks or start growling. I am one who can stand> up to him because I know he isn't going to hurt a person, but those> who don't know him, are unsure of the limits.> He doesn't write and that is our major struggle. He will do a short> answer writing assignment but anything longer than 2-3 sentences and> he is overwhelmed. His learned behavior has been that if I throw a> big enough stink, then I can get out of it. Well it isn't working> anymore because it is getting brought home via the teachers and they> are letting me fight it out with him and I tend to win. > Anyway, if I can help I am here. i will interject if I have something> to offer, otherwise I tend to just read. Tammy>

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